Fibromyalgia Mystery Finally Solved!

Fibromyalgia Mystery Finally Solved!

Fibromyalgia Mystery Finally Solved! Researchers Find Main Source of Pain in Blood Vessels

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

RELATED: Fibromyalgia: Proof of Physical Origins Vs. Two Danish Psychiatrists

By: Rebecca Savastio

Source: Redorbit

Source: Womenshealth.gov

Source: Yahoo News

3,068 thoughts on “Fibromyalgia Mystery Finally Solved!

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    1. It amazes me that people are still responding to this post five years on from when this was first published.

      There has been follow up to this by the writer, no mention of any more tests that have been done and no cure. Virtually a waste of time, and disgusting, since they are giving hope to all the sufferers with nothing solved!

      1. Valerie, it is more than 27 years I am suffering of Fibromyalgia. I found respite with vitamins, herbs, amino acids given to me by an alternative doctor that helped me.
        Now there are new discoveries about cannabis. It is not the cannabis we usually know. Episode 1
        runs until this evening, at 9pm begins episode 2. I have seen the first series, amazing what cannabis can do. It is used in a lot of countries.
        Please look at it and listen carefully

        1. Thanks for your reply Viviane. Cannabis is very good for pain relief, but that is not my main symptom, though sometimes, when bad weather is coming in, it might help. As it is, I take a couple of Paracetamol for a few days which tides me over till it is warm and sunny again. I didn’t see the programme as I only read your post today. Very busy in the garden yesterday. I am not sure if you live in S. Africa or where you live, as obviously it would have a bearing on whether the programme was being aired or not. My problems are tiredness, lack of co-ordination, extreme tiredness when standing or walking. Lots of money spent on every sort of Doctor who could possibly have helped, and specialists, even Hypnotherapy and a Bioenergist. Nothing helps. I have had it for 17 years, and am 69 years old, and worried about the future having this. If Cannabis helps you, I am very glad for you.

          1. Dear Valerie,
            I live in the US, where are you living?This program was aired even to New Zealand, just to tell you it was in the whole world. Everything you tried is useless. The only way to get much better is to strengthen your immune system. And this is what I did, going to an alternative medicine doctor. Only the vitamins, antioxidants, herbs turning into a vegetarian raccomended by my doctor I could get rid of my arthritis and everything that goes with Chronic fatigue and Fibromyalgia. I still have rheumatism that when there is bad weather I can feel it in my bones, but I go to a spa with a spring specially for rhumatism that can help me and it does.
            As for Cannabis, it should be given by a doctor who deals with it. It is not marijuana at all.
            I know what I said before and it seems that they don’t listen and do not want to try to get out of CFS. Just the will to begin.

    2. there is one surgean in the world, dr. johann bauer in switserland, who can help with the diagnose and surgery.

      Info v-can also be found at fibromyalgie-vlaned.nl

      1. Thank you for your post Guy. I have gone on a couple of sites showing You Tube videos and have saved this. I will also look for the other site you mentioned re Dr. Bauer. It is all very interesting, but it means an operation I believe, in Switzerland, and we just do not have this amount of money. Have wasted 17 years of my life with this which has caused a lot of weakness and pain at times. Did you take your wife through to Switzerland?

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  15. @INTiDYN
    research was published in 2013 in the journal Pain Medicine.
    It is very real. These are critical findings for anyone searching for answers.
    Clues as to the possible origin/etiology of the disorder.
    #HandTherapy

  16. Right……and you all believe this load of garbage? Along with everything else online I guess…..

    1. I experienced bleach poisoning in both hands which caused a lot of pain. I eventually developed FM. Makes me wonder

    2. I did mention this article to my doctor. She said she hadn’t heard of it.

  17. I am a 79-year-old lady. My FIBROMYALGIA disease appeared at the age of 74, with no hope of a cure from the hospital i looked further for an alternative treatments, a friend of mine told me about Health Herbal Clinic in Johannesburg South Africa who sell herbal treatments for diseases including FIBROMYALGIA disease, I contacted the herbal clinic via their website and purchased the fibromyalgia herbal remedy. I received the herbal remedy through DHL couriers within 8 days and i immediately commenced usage as prescribed, i used the herbal remedy for about a month and 1 week, my condition has greatly improved, all my symptoms including Chronic muscle pain, Abdominal pain, nausea, I am fibromyalgia free! contact Health Herbal Clinic via their email healthherbalclinic gmail com or visit www healthherbalclinic weebly com PLS fibromyalgia is not a death sentence, there is a cure!

  18. Personally I am skeptical of this 3 year old article. I’ve been disabled with fibro for 20 years now along with its evil twin sister, CFS. If this article came out 3 years ago, where are the treatments? What are the options, amputations of both hands? No thanks! Sorry! I don’t buy this article. Based on my own observations and other practitioners, FM sufferers have a high incidence of head injuries and car accidents and/or abuse history. I almost lost my life in 1969 due to a serious head on collision with a telephone pole. Best things I’ve found for FM are high CBD medical cannabis and kratom. I just recently discovered kratom a month ago after the DEA planned to ban the herb to protect the profits of Big Pharma. Kratom works on the opiate receptors in the body but is not lethal like opiates. Kratom also helps me with more energy. Getting lots of sleep and avoiding all stress also helps if you can do it. It’s harder than it looks. Good luck because FM really sucks!

    1. I agree with your statements of FM. I too suffer with CFS as well. Have had this for 4 years. I personally think it is caused from H-pylori or something like it that is in the stomach. Just my thoughts is all. Will look into some of the other suggestions you have offered. Thank you for sharing your thoughts

  19. What about our memory and speech problems i was told that was part of it too feel like im loosing my brain the way i can’t reamember of speek and try to understand people

  20. I have a question to anyone who happens to read this: I have had Fibromyalgia for the past 16 years (I’m 45 years old now), and I’ve noticed over the past two to three years, my hands, from the knuckles down, will go completely white and then numb. Both my hands do this. It only lasts about 5 minutes, and then goes back to normal again. At first, it was only happening about once a week. But now, it’s happening at least once a day. Just last week, I saw the same thing happening in my toes. My question is; is this a symptom of fibro? Should I be more concerned? I told my GP about this approximately two years ago, and he didn’t seem very concerned at the time. My father had a 90% blockage in the main artery in one of his legs, and needed emergency surgery to save his life. I often think about this and wonder if what I have is just a symptom of the fibro, or if I should be more concerned and adamantly ask my GP to have my circulation checked?

    Thanks in advance for any info/answers to my question.

    1. Hi Heather it sounds like raynaurds disease often the hands don’t hurt when they are hun but can be excruciatingly painful when the blood tried to reach the ex remedies. I would be demanding that you go do some tests or refer you over to a rheumatologist I pray to go though that you don’t get a rude horrid one like me in Liverpool.

      Gentle hugs
      Karen

      1. Hello Karen Anne,
        Thank you for your reply, your info and your advice! I looked up that disease and it seems I’m showing every symptom. I actually see the Rheumatologist at the end of September (initially to help with my fibro), so I’ll definitely bring this to his attention, and hopefully get some answers regarding both.
        Once again, thank you very much for taking the time to answer me, Karen Anne. Gentle hugs right back to you!

        1. Hi Heather. No problems I am glad to have helped. I am also glad that you have found a rheumatologist who will entertain a patient with fibromyalgia. I have recently had a terrible experience with a consultant in Liverpool. Who treated me like trash. I might add that I paid 170 pound for the pleasure of his insults. He said for me to get back to work or I will loose my job, end up on benefits and that will be the end of me. He then followed me up in NHS were he appeared a little better but then sent a separate letter to my doctor saying I was a hypochondriac and would benefit from seeing a clinical psychologist. I was distraught. Had a meeting with my GP who defended him but I am awaiting on a formal response to my complaint. Like I said to my GP just because you cannot measure it doesn’t mean that it doesn’t exist. I am still Seething but hey ho. X

          1. That is terrible you’re being treated that way! I’m so sorry you are, Karen! I get so angry reading and hearing the same from so many people! Makes me wish we could transfer our pain on to these ‘Specialists’ and ‘Doctors’ to then make them realise just how much pain we’re actually in! I’m live in Canada, and when I initially went to a Rheumatologist about my pain 16 years ago, I was made to feel so low. He humiliated me, telling me to lose weight and it will go away. Well, I lost all the excess weight and am worse now than ever before! Makes me so mad that these are the kinds of people ‘treating’ us! I truly hope you can get some answers and the much needed and deserved help, Karen! X

          2. Thanks Heather. I hope you get sorted real soon. X oh and I’m so jealous that you live in Canada. Never been but always wanted to be a nurse in Canada. Ha. Maybe in another lifetime ha xx

          3. Really, Karen Anne?! Wow! It has been my lifelong dream to visit all of the UK! That is what my daughter and I would love to do together! Go visit all the places where our ancestors originated from! We have good friends who live in Wales and I just wish so badly that it wasn’t so costly to get over there! 🙁 Like you said, perhaps in another life *sigh* lol. Either that, or maybe if teleportation is invented before I die! lol xx

      2. Hi Karen, I don’t usually reply to these but, here I go…….I have Raynauds and my Dr said, there is no cure for this. It does not get worse. It happens more so in cold weather, or in a room with air-conditioning is COLD. It can be scary when it happens. Rub your hands and fingers together, and wear MITTENS, rather than GLOVES. Or as I have done several times..SIT ON THEM, anything to get the blood to return to your extremities;;;fingers, toes, nose. Hope this helps. It is also a side effect of Fibrmyalgia.

  21. FINALLY, some light has been shed on our incredibly debilitating and painful disease. To the many doctors and specialists out there: NO, it’s not “just in our heads”! This disease is very real, and I am hopeful… soooo hopeful that a cure is in sight for us all.

    1. Heather – sorry to rain on your parade, but this post is over three years old. So far, nothing further has been posted by the original person on this subject as to how to tackle it. Doctors are still handing out Anti-depressants like sweeties, which may help to an extent with the pain but are addictive, and if you read the papers, the medication can cause the same problems as what you already have, maybe more so. I have been on Anti-depressants for around ten years already, and use a Benzodiazepine twice a week. The latter helped me stand and walk for a couple of years, but the more you take these medications, the more you need. I also took Pur blocker to slow my bodily system down, but that didn’t help either. The Benzo’s are even more addictive than the Anti- depressants. Some Doctors will say that the Anti-depressants are not addictive, but believe me, they must slowly be tailed off over months. Even if you get better, you won’t know because the side effects of leaving them off, if you do it too quickly are worse than what you have. At the moment, swimming, walking, certain pain killers and Trepiline is the only Arsenal we have. If another post from the original person comes up on this site, I will have more faith!

      1. Hello Valerie,
        I actually wasn’t aware that the article was that old! Thank you for pointing that out to me. How frustrating to learn this!
        I completely understand where you’re coming from with regards to the Doctors handing out the Antidepressants and various other addictive meds like candies. I too have been given, and am still on a myriad of different drugs to try to ‘help’, but the side effects tend to be worse at times than the actual Fibro! I was put on Cymbalta at one point and that drug reacted so horribly in my system! I took it for three days and had to stop because I honestly felt like I was dying, the side effects were so bad! I’m currently taking (strictly for the Fibromyalgia): Oxycodone, Percocet, Celebrex, Amitriptyline, and Trazodone. The last two meds are to try to help me sleep, as the pain from the fibro was keeping me from that. All those meds help somewhat… better than if I didn’t have anything, but I wish I didn’t suffer so much from the side effects from those meds. And, as you stated, the increasing addiction as a result.
        Anyway, thank you for taking the time to reply back to me with your info/insight, Valerie.

        1. Hi again Heather. Thanks for your nice reply! I am just taking Aspen trazodone and Amitriptyline, and both things are known to improve sleep. With the latter, just taking a half, and mostly, unless my mind is very revved up, it gives me eight hours or more sleep. Don’t know what the other things you are taking do, will have to look them up. Cymbalta is supposed to be the main thing which helps with Fibro, but I also couldn’t take it. I have had Fibro for 16 years, and now at 68 yrd old use a wheelchair round the Malls and shops. I can’t walk much or stand for long, but am moving soon to the country where, it being flat (unlike where I live presently,) I will be able to walk more. That is very important, and swimming is marvelous, but I now feel scared of the water of any depth, as my core muscles are not strong any more. That is why exercise is important. Wishing you luck and mostly pain free days. The better your sleep, the better you feel. Wish the Doctors knew more!
          I also belong to My Fibro Team, which is a supportive website. If you go on there, I will add you to my team…x

        2. Oh! my word,why are all of you on some of the crappiest meds on earth. None of those helped me,I took those 28 years ago and I almost died from taking all that crap. Get off it and go on muscle relaxers and Naproxen. They saved my life,I was bedridden before I started them. I couldn’t do anything for myself and I had to crawl on the floor,just to get from room,to room. Going to the doctor was a nightmare,my husband had to help me to the car and once I got in the car,I had to lay down. It might sound like,I was a big baby if not for the fact,that I was told I must have a high Torrance for pain. Due to the fact,that I had a busted appendix,ovary wrapped around a kidney and my uterus stuck in place,by adhesion’s. And my only complaint was,that I had a back ache and some pelvic pain and had a fowl vaginal smell,even after bathing. I had just lost,from 300lbs down to 145lbs,when I got sick. I have Fibro,osteoarthritis and scoliosis. I take the muscle relaxers 10mgs 3X a day and Naproxen 550mg 2x a day. Most of the time,that is all I need,depending on what I do and how,I do it. I’ve been taking them,for 25 years and my doc says,heart,kidney’s,etc.are all fine. I do have high blood pressure and they are claiming the Naproxen,causes high blood pressure. But I had it before,I started the Naproxen and it’s actually gotten better,not worse. They don’t,take away all my pain and I still have,spasms,cramps,headaches,IBS,bladder problems,numbness,etc, etc. However,all those things usually are milder,than if I wasn’t taking anything. The Naproxen,takes down swelling,which is where half your pain comes from. Muscle relaxers,help those spasms,cramps,to not be so severe and you’ll be able to sleep. Veins causing Fibro what a hoot,if that was the case,you’d have fibro as soon as you were born,you’d have pain from birth. But I do want to point out,that it is I believe hereditary. Why,because I have a daughter with it,diagnosed at 14 actually before me,although I had it since she was 5. My husbands Mother (deceased)and two sisters,have it. I have another daughter different father,she doesn’t have that,but has high blood pressure and osteoarthritis. Plus,I have two Nieces with Fibro and several 1st cousins,2nd and one 3rd cousin,with it. So check with everybody in your family, and see if anyone else has it,besides you.

      2. Years ago I experienced bleach poisoning in both hands which caused incredible pain. Some time after that I developed fibromyalgia. I woke up one morning and my life changed. To me this article has merit.

    2. Years ago I experienced bleach poisoning in both hands which caused incredible pain. Some time after that I developed fibromyalgia. I woke up one morning and my life changed. To me this article has merit. I wonder was it the bleach? How many times I used cleaning products without wearing rubber gloves. Having said that, nobody has answered the question, what causes FM.

  22. Good day, I have a dear family member with the same symptoms. Is there a blog or online group that would support patients and or less than understanding family members?

    1. DLSteyl if you go to wwwfibromyagiatreatment.com this treatment works to alleviate symptoms if you stick to it. Wish your friend well.

    2. Hi DL Steyn, there is a Fibro community online that’s called MyFibroTeam. Your family member can try it, of they’d like 🙂

  23. I hope they can find a cure but I don’t think they ever will sorry. I also am fed up of being in so much pain I have f/m and r/a and don’t think I could cope much longer I want a life nor this .

  24. I’ve had this since I was 12 (now 68) it would come and go but there didn’t seem to be any reason what brought it on… I was very active as a kid thru my late 50’s then it hit me hard. No breaks. No let up. But I looked like every other woman out there…. perfectly fine. I finally found a doctor who actually believed it was an illness… just not one many clues. I too was sent to a Rheumatologist that basically said it was all in my head and to make an appointment for a follow-up in a year… my theory was if she was know-it-all who didn’t know what she was talking about a year would not have made her any smarter! I am so excited about this possible breakthrough. Have been praying for a cure/treatment other than pain meds for so many years. Gentle hugs to all who have this….

  25. Just been reading all these comments. I too suffer with terrible hand pain, worse in my right. Awful but I keep swimming. I have now registered for the swimathon 2017 in aid of Marie curie. Will pace myself aNd take it all in my stride

  26. I am so happy to read this. I have just endured the worst ever. A callous rheumatologist wrote to my GP and basically called me a hypochondriac. Was totally devastated

  27. I always dream of one day will find the cure.hope they will because i am tired of all my pain.

  28. Does anyone get reallyirritating feeling in their arms (as opposed to pain)that makes you want to rip your arms off. I find it worse than the pain in other parts of my body

    1. Yes I have Restless Leg Syndrome and at its worse I feel it in my arms as well…I take a muscle relaxer plus pain patch it helps settle feelings and movement in legs to settle

  29. White blood cells have nothing to do with fibro but everything to do with polymyalgia.
    Please ask to be tested x

  30. I am In so mush pain. I was going to quiropractir they really know mush about it than regular doctors. now I Am going back again 🙁

  31. For nerve pain release I Can recommend the specialist treatment with LDN, where Naltrexon of 4,5mg (in my case) helps taking these pains. Lyrica is calming the overactivated muscles, that make me strength again for shorter walks. Still look forward to hear more about the Update on the blood research though. Any Update since 2013?

  32. Makes some sense to me. Shortly after being diagnosed with fibromyalgia, I began having unrelenting pain in both of my hands,right more than left. I was then examined and tested for Rheumatoid Arthritis which I was diagnosed with. So far those two things have been treated in me as separate disease processes. I have recently stopped the prescription (Plaquenil) for the R.A. as I don’t find it slows or changes my pain. It also has side affects ie: irreversible vision changes.

  33. Basal ganglia part of the brain is where the solution to fibromyalgia originates. The proprietary gland can lend easement if properly diagnosed and integrated

  34. I am tired of people calling me crazy and it’s all in my head. Now that other members of the family have it , it seems like it is not crazy any more. Pain is bad and I won’t take narcotics. Hope the help comes fast……

  35. My hands absolutely change relative to the level of pain I am experiencing in other parts of my body. My right hand is more indicative than my left. It’s great for the affirmation, but it doesn’t change anything. You get used to hanging, if you hang often enough.

  36. The origine of the most cases of Fybromialgia is a disturbance of the slow proprioceptive system. This system controls the tonus muscle and the vascular tonus as well. So , the solution is to manage the proprioceptive system. This is possible by postural reprogramming technics and active prisms.It is what we are doing with sucess from 30 years ago in about 40 thousand patients
    O.Alves da Silva M.D.

  37. I have Fibromyalgia and my eldest son was diagnosed with Type 1V Ehlers Danlos. This is one of the worst types to have,involving cardio vascular problems, amongst many other things. The consultant who eventually diagnosed my son’s condition was pretty sure that he had inherited it from my side of the family. I didn’t have Fibromyalgia then but have had it diagnosed 3 years ago.

  38. This all makes sense to me I have been suffering every since I had a traumatic fall and job loss at the same time. It has been five years and only gets worse. Going thru an episode right now and don not know what brings it on. Pills do not work only make you crazy and no one every believe me just looks at me like I am crazy including doctors.
    I am 69 years old and for years have had the hands of a ninety year ol (think skin and huge puffy ropes of veins.My hands are in horrific pain all the time, also itch pain.

  39. I have herd that magnesium plays a part in helping relieve pain. more magnesium less pain?

  40. I’ve said this for years after doing my own research…I was so happy they had a name for what was going on with me I didn’t question it…went on meds that made me crazy then after few yrs of it not working started my own research…I couldn’t understand when I took b12 shots why the nerve pain would go away for a week then I needed another one…Here in Canada you can do your own shots and purchase without prescription…long story I told doctor to check me for pylori…it was positive and I got treated….however the pain was still there…so long story short my body was attacking not only bad cells but the good ones and toxins were now being released into my blood stream because my body didn’t know the difference anymore…the b 12 helps with oxygen in your blood that’s why that helps only problem is checking for toxins is expensive and not covered on health system so if I can get this confirmed then I can get help to rid toxins….I do all the home remedies but need to do more research on doctor to help me

  41. I think this is a bunch of garbage. I had fibromyalgia many years ago when it didn’t even have a name. Although at first many doctors thought it was all in my mind they never suggested it was caused by my brain. When a doctor finally took me seriously he had me take PT which helped a lot. I did not take a lot of different medicines, just something for the pain and would relax for a period of time when it was the worst. Over a number of years the problem gradually went away completely. It had NOTHING to do with some traumatic event.

  42. i need to find out if this is real and not harmful! i have tried several things, take alot of meds. if i miss a dose, the pain is over the top. help me decide?!

  43. Finally solved?? This article is almost two years old. I guess in the big scheme of things a cure will be out soon. Maybe 20 years or so.

  44. everything is in relation to your central nervous system, which is in relation to you circulatory system. Think about it for a minute / Pick up an anatomy book. This is new research!! We all go through Tragedy, it is a guaranteed part of life. It could be predisposed and your are blaming it on traumatic events. ,When stress takes hold the body becomes out of balance and our predispositions play in. God knows it happened to me this way.

  45. Hey Dave… Yes, my fibromyalgia started after being involved in a serious violent attack 21 years ago. I certainly believe that trauma is most likely the cause as many sufferers seem to have gone through something nasty prior to symptoms occurring. I once read a book called The Mindbody Prescription by Dr Sarno that was able to shed some light onto one happens to the mind and body following incidents like this. He goes on to explain why psychological trauma causes widespread body pain. Maybe give it a read and see if any of it makes sense to you too.

  46. There seems to be a connection to EDS…Ehler-Danlos Syndrome…wihich is hereditary connective tissue disease….it causes hyper mobility, digestive problems, vein issues..exhaustive fatigue…balance issues…and all the symptoms that FM has….so this can be added to the causes of FM…EDS is often misdiagnosed as FM….plus EDS has 6 varieties of manifestations…could be why we are all so different…

  47. How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
    I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
    what do you thin

  48. How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
    I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
    what do you think

  49. As all fibro sufferers know , dealing with it is an exhaustive living hell. I have been living with this for 10 yrs..and it changed my life in the worse way. I was diagnosed by several specialists after my car accident . And have prayed for a cure ever since. I really really hope this is real, and an actual cure is very near. Cuz I want my life back!! I have lost so much dealing with fibro. It’s heartbreaking , I once was a prominent athlete who could do anything . ..now it’s a struggle to conquer the most simplest tasks.
    I hope and pray for all fibro sufferers that fibromalgia will be a thing of the past. WE ALL WANT OUR LIVES BACK !!!

    1. Like you Robin I have been suffering for many years and the older I get the more severe my symptoms are. I pray that a cure is found quickly as I would like to enjoy what years I have. I am so limited in what I can do and the pain physio has been suggesting a wheel chair as my balance is poor. I can only imagine what you feel like to have this happen when you are young and had been athletic. Good luck to you and gentle hugs. X

  50. I have been “living” with fibro since I was 10 I cannot even remember what it is like to be pain free I have been given many different drugs that did nothing aside from suffering from the side effects as well as my pain. I have been told everything from I’m a hypochondriac to “she’s just a drug seeker. I was even told I was too fat to lose weight from a doctor and I took that to heart lost 110 lbs and was still in a tremendous amount of pain. I went through about 22 years of this until I was diagnosed at 32 and I was overjoyed to finally know it was not all in my head to now just having doctors blame everything I go to them for as being my fibromyalgia. Really hope this discovery can finally bring the suffering to an end excited at the thought of being pain free as I said I cannot even remember what that feels like!! Bring on the cure!!!!

  51. I also have Fibromyalgia and “anything” that would help ease the (in my case) whole body pain would be excellent … Fibro is something you learn to “live with” but it would be wonderful to wake up pain free 🙂

  52. Good to see results of more research — keeps hope alive — I am 74 years old and ‘hope’ to see a CURE in my lifetime.

  53. What is the cure???? I wish if they can cure me. I think I was born with FM. It really became worse after I had an accident, trauma and finally an operation.

    1. My thoughts exactly. I have suffered with FM for over 40-years. There have been many studies but no good treatments or cures yet. I will not hold my breath on a cure or treatment as a result of this study either.

  54. I don’t know what to believe anymore. I don’t think they really know what does cause fibromyalgia. And CFS…People who have pain all the time are, of course, going to be fatigued. Dealing with pain all the time makes you very tired. I definitly think there needs to be more research. I have fibro. and Renaulds…my hands are always cold and painful. Definitly need more research.

  55. I just commented to my husband on how Doctors thought Firbo stemmed from traumatic injuries. This “hand vessel” therory would confirm my personal suspisions, as I suffered 3rd degree burns on my hand in ’05, and been falling apart with chronic pain since.

  56. I have the disease and have found relief through Gelatin. I put it in my coffee or Tea every morning and it has reduced the number of flare ups. It contains protein, collegan and over 25 amino acids. I also noted that sugar triggers the attacks along with stress. Keep moving and never give up are my go to cures. the pain brings me to my knees. The doctors treat with pain relievers and drugs which I refuse to take. My disease made itself known after a nasty accident, west nile virus and shoulder surgery.

  57. MsJinnifer, if you’d actually read anything in the medical journal article you’d see there were 47 subjects

    1. The report here said: ” researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain…” . I did afterwards read the actual study. Has there been any follow up since 2013? Any updates? I’m actually interested — not trolling!

  58. Dianne it’s not bogus information, it’s published in a medical journal. I put the details in my other comment

  59. To the people who say they won’t believe it until it’s published in a medical journal, it already has been. It’s in Pain med, 2013 June 14(6) page 895-915
    You can find it on PubMed

  60. I thought this was published by Neuroscientist Dr. Frank L. Rice. It should say what journal it appears in though.

  61. When this is published in a major medical journal and agreed upon by specialists in the field of Fibromyalgia treatment and research, I’ll believe it. In other words, I don’t trust your “solution.”

  62. Oh wow. ..exactly! !! Some people say well if you have FM you can’t work. I know there are people out there that say they can’t work! I GO TO WORK and work in PAIN every day…i can’t wait to go to bed ..i love my bed. People don’t know how much pain a person is in because i don’t complain. I may say i hurt occasionally to some family members but i keep it bottled up inside. I suffer in silence! ! They look at you and think oh she looks ok there’s nothing wrong with her…

  63. Such BS and a terrible way to spread bogus information about a condition that can be researched on real, scientifically sound, peer reviewed journals. This site is 100% pure bad Information. Readers Beware!

  64. I’ve read around this subject as I was diagnosed in 2012. Neuroplasticity, Sarno etc. My conclusion? Many so called experts are making a ton of money from our mystique. No one knows what causes it .. end of. I have now insisted that my medical records show that I do not suffer from fibromyalgia. I’ve walked away from the inevitability that this diagnosis imposes on your life, how people perceive you but more importantly how you perceive yourself, I’ve stopped anti depressants after 19 years. I am no longer scared of the bogey man. I’ve had fantastic support from my local (free) anxiety /depression service and pain psychologist. My medication used to occupy a large drawer and now can fit in a pocket. Believe me, the hand and foot pain started in my thirties and things went from bad to extremely bad . Yes I still silently scream in agony OCCASIONALLY but it no longer defines the incredible woman I am at 65. I’ve learned to meditate for 15 – 20 mins a day. I sing, giggle and enjoy every second. Please don’t think of me as boastful. If this helps someone kick that bi…..h to the kerb, then hallelujah! ! Live well and wisely.

  65. What they talk about in this article and others as well. Is completely different than how my Dr explains FM. They figure it was my car accident is the trigger. And it not an imaginary disease. Its a part of the brain that tells my body it hurts.
    If we get stressed out over exert it makes it worse. Winter is worse why because we tense up as soon as we get out in the cold. And my doc says that my blood innfammmation is high (due to either having Lupus or MS which I will be tested for one day. Out healthcare sucks in Alberta) so if my inflammation is high they why don I hurt so much. And yes I know Lupus and MS and FM all have cross symptoms. However I have other sytoms outside the FM ones that indicate something else is going on.
    I am also well hydrated. I am instructed to drink a Gatorade a day. So that on yet my salts because I drink a ton of water. So much that I dehydaeate myself. I need the salt. And still chonic pain and fatigue. So theree goes you dehydration theory Chris.
    I hope that one day a treatment is found. Currently I’m in 11 different medications. Some are regular and some are as needed. It finding the best combination and finding the right ones you can handle as well.

    1. I agree Chantelle. I was also in a car accident and received a whiplash injury as well as other trauma in the younger years of my life, including emotional and physical abuse as a child, rape at 18, Hong Kong flu etc. I think we use too much of our adrenaline and it causes our substance P to increase.

  66. Well I don’t believe any more anything I read ! It will remain a mystery disease …no one can understand the pain a fibromyalgia Sufferer endures …even a spouse doesn’t understand because so many of us continue to work through the pain you do what you have to. Thirty plus years of suffering no one could guess until at sixty one Ican not push myself through the pain any longer I give in and stay in bed longer and I sit down longer periods of time.

  67. Chris regarding the water cure, I would like to contact you please how may I do that as I am very interested in what you say

  68. Danny, I read your comment and it was interesting. I have also started thinking about the mindbody connection between fibromyalgia pain and the mind. Have you read anything by Dr Sarno? He talks about Tension Myositis Syndrome (TMS) which is a mindbody condition that he believes includes fibromyalgia as he has had a very good success rate at treating the condition.

  69. This is old (2013) research, and is nothing new. Articles like this just exacerbate functional somatic syndromes.

  70. When I read the first tiny article I immediately thought here is something! I have been researching Fibromyalgia. It took me years of research to make sure what my problems were. It was a suffering itself and nothing really helped.
    This makes sense to me totally!! My hands are the signs that it’s coming. The veigns in my hands totaly change.
    The spreading makes total sense too.
    Keep in mind how nerves can change pathways
    I do have those in my right hand and foot. If I don’t do something about it quickly chaos! Instinct drawn me to gel that goes to a freezing temperature. But add heat (beenbags) immediately. Covered and silence. I have serious nerve damage partly because of wrong treatment.
    If I can get to these scientists. I will be getting my life back and my family for first time in almost 30 years.
    I pray to get in contact with the with specialists.
    Please?!

  71. As fibromyalgia is a syndrome and has many aspects I don’t think it stems from the hands. How can TMJ, Insomnia, IBS etc all be linked to this, it doesn’t make sense. I have fibromyalgia which has been diagnosed by top specialist in the UK who has done the pain tests and apart from some but not all of the “tender points” I have a high pain threshold in other areas of the body. “Now that the cause has been pin-pointed” really? from one study? Seems a bit awry….

    1. Hi, Susie.

      My thoughts relate w/ yours. It’s good that they’re doing more research to figure out what causes fibromyalgia, but I don’t think this is quite it. I have migraines, TMJ, chronic sharp pain through chest – back, ribs, pain in hips, knees, feet, and sometimes hands. Tingly sensations, speech / fibro fog, anxiety/depression, GERD, and so on. All of these are not due to my hands.

  72. Look at the date of the article..2013..if it’s factual then something would have been done to really help the people suffering from this

  73. ITs goddamn chronic dehydration… not enough water and salts in the body. wouldnt kill anyone to give up coffee, pop, tea, sugar drinks and alcohol..diuretics-dehydrate you. junk dead and dry foods dont help either. Take salts and water not just water that will make it worse! SAlts help you retain water, they alkalyze you (not table salt thats poison) Skin thats dehydrated becomes a hell of a lot more sensitive. Muscles become sore, joints become stiff and arthritic with acid buildup… bloodflow is impacted by dehydration. lactic acid removal is impacted by dehydration. histamine to regulate drought in the body causes you pain. dehydration causes depression and anxiety. Im no doctor.. dont believe me. but read up and try it.. all you have to lose is the cost of sea salt. 1/8tsp per liter eaten or mixed. watercure2.org is a good place but laid out badly. I had chronic acute atrophic gastritis. pills out the wazoo.. just needed water and salt. thats how messed up our sickcare system is! PILLLLLLS

  74. All comments from 2016….have you not noticed the story is from 2.5 years ago? That pretty much proves that this claim is bogus, since no treatments have arisen.

  75. Where are the official tests? Who has made these claims. WHO are the researchers? There recently was another article- with different study “results” I wish the paper was backed up a bit more citing specific studies.

  76. I will believe it when I have seen it I am in so much pain that some days I cannot walk at all and have to use my wheelchair to get from a to b

  77. Very intersecting article – as a psychotherapist in the UK I see a close intertwined relationship between the body and the mind something that Eastern Medicine has long recognised. A link I didn’t see recognised by those in the medical proffesion 15 years ago when I developed a illness with similar syptoms ME. There was then and hopefully less commonly now: a belief between oposing therories that illness such as ME / Fybromyalga were totally psychological or completely physical in origin. I like to think that some doctors as well as body psychotherapists and counsellors recognise that some of these ailments often reside somewhere in between the body and the mind two parts of us that are inseperatly intertwined .. It’s never a question of someone imagining physical symptoms, the body is creating them but the brain is also registering and interpreting messages from the body – but having been on the receiving end of such views I understand some peoples frustration.. I do also believe which fascinatingly ties in with many comments here that there is also a link between trauma (both physical and mental) and Fibromyalga / ME something hope to investigate more some day..

  78. I was diagnosed with fibro 11 years ago. I was tanking all kinds of meds, all listed in these comments. I believe with everything in me that its inherated. I watched my Dad and my Aunt,[ his sister} suffer for years. I always wondered what the problem was. My dad lived all his life on the couch suffering from mystery pain. No one could help either one of them.

  79. I have suffered with fibromyalgia now for Six years following Two Hip Replacements . I was in a lot of Pain for a year and a half before they found out my problem,bc I was also diagnosed with DDD in my Back and was on Crutches a year before they finally replaced my Hips. But after Surgeries my Pain continued and I’m still dealing with my pain. I had to give up my Buisness that I had & loved doing , My life has never been the same . I now stay home all the time, fighting the pain…

  80. I too believe my fibromyalgia was triggered by surgery, I had 3 surgery a in 2 yrs., was fine before , now I can’t even work.

  81. Sufferers please go to wwwfibromyalgiatreatment.com and read this book What your Dr may not tell you about Fibromyalgia. The “Protocol” worked for me n I suffered for 25yrs. Now 5yrs way less pain no drugs, it’s a strict protocol but way worth it. Please try for your own sake. Jan Barker.

  82. I am so pleased to know that the mystery has finally been solved. I was diagnosed with HORSESHOE kidneys in 1987, Fybromyalgia in 2005 and Acoustic Neuroma in 2013. The pain that I endure with the three is overwhelming. I am a person who fights back and I have a strong pain threshold. I am eternally grateful God for His hand that rests upon .me , and the fact that Fybromyalgia is finally understood.

  83. I’m so glad research has come so far I’m a suffer from 2002 and it’s old that some of my drotors think I’m nuts but I’m one of the ones that have an extreme time with the cold

  84. My sister has fibromyalgia & I am sure this was brought on by trauma to her body after surgery in her neck for bulging discs.
    Mood can make my sister feel worse but isn’t thT the same for any illness. If you are in hospital & your family or friends visit it makes you feel better. No mystery. I will keep you all in my prayers. Be kind to yourselves

  85. I have suffered with fibromyalgia for three decades now. I get relief from the chronic pain from ingesting medical marijuana I a coconut oil basement which I maker myself from ground up, or bud form. I have far less fibromyalgia pain, and less frequent Raynauds attacks now that I stopped using cymbalta, lorazepam, lyrica, ativan, ssri’s, and all the other pain causing terrible bad medications forced on me. IT NEVER WAS A SYNDROME. SEEK HELP WITH CHINESE HERBAL REMEDIES. I FEEL BETTER. NOT CURED, BETTER.

  86. I’ll believe it when I see it! Til then, I’ll be painfully waiting! I am a Male patient that developed it from a major shoulder surgery. Prior to the surgery I was perfectly normal!!

  87. Don’t get too excited fellow fibromyalgia sufferers. This article has NOT covered the “Mystery” of Fibromyalgia. It has NOT as quoted in the article, “Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure”. It has discussed the “Mystery” of one of the thousands of symptoms – pain. This is no good news – not worth putting out there. Very disappointed with what I read. So what, they diagnosed (sort of) a “mystery” of a symptom. Whoopy ding! They did not even say what the treatment could be, I want to know the SOURCE OF FRIBROMYALGIA, NOT A SYMPTOM. I have been suffering from fibromyalgia since I was 7 years old (not diagnosed until 35 yrs of age) and diagnosed as severe, general (entire body) fibromyalgia. Yes, it will be great to have the pain of these painful symptoms relieved but this is NOT discovering the “mystery” of the cause NOR source of fibromyalgia. After all these almost 52 YEARS of suffering, I still believe it is severe trauma to the body that caused chemical and hormonal imbalances to the body that never returned to being balanced. This is what should be researched, not the symptoms. I am also reading headings “Discovered “Mystery” of Fibromyalgia….”, “Discovered.,,,,,. Fibromyalgia…….” when in reality the article is only about finding a source of A SYMPTOM, not the CAUSE of the condition itself!.

  88. Kim, I would like the name of one doctor who believes this. I will make an appointment immediately.

  89. It is very common knowledge amongst the immunologists and others in the field of vaccines that fibromyalgia is the direct result of vaccinations and no other cause.
    There are no reported cases in the non-vaccinated.

  90. Riddled with it 8 years now, I’ve been found fit fore work I’ve never been so I’ll. Worked all me life as a window conservatory installer, can’t change me job at fifty tried even went on computer course they don’t wana no sick of bein called a liar, with all the meds Im taking only my son keeps me going

  91. I have FM syndrome for 15 years already. If you had a syndrome it means you have all the symptom’s of FM at once. I was in a lot of pain the first 4 years and could not sleep at all. My muscles was so weak that it was difficult to do my everyday routine. The Dr dont know how to treat my symptoms because I also have porforia and was allergic to most of the medicine that was available for treating FM.

  92. I used to have Fibromyalgia (emphasis on “USED TO”) . . . after 5 years of pain and crippling fatigue I finally discovered a book by Dr. Daniel Dantini called “The New Fibromyalgia Remedy” . . . he is a doctor who had Fibromyalgia as well and cured himself . . . he claims that different people have different causes for the Fibromyalgia, which is one reason why scientists today have not been able to find a solution that works for everyone.

    As it turns out, my Fibromyalgia was being caused by a combination of 2 viruses that my immune system had lost it’s resistance to (following a severe crisis in my life).

    After taking a 3 month viral treatment all my FM symptoms were gone and I have been pain free for almost 3 years now!

  93. My FMS appeared suddenly, noticed when I left hospital after 1980 car accident. It wasn’t given the “fibromyalgia” tag until 1993. There is a host of variable symptoms and it is systemic, affecting my whole body and mind. This article is so misleading, it is one person;s opinion and nothing more. I also suffered physical and mental abuse from both parents and two ex-husbands. Now I am being abused by a medical community which refuses to acknowledge the complexity of my condition by withholding effective treatment, based on personal prejudices and the behaviors of other people. When a heart attack finally ends my suffering I will be the only one who knows how much all this stress caused it.

    1. @ Roz Sanders, I hear you loud and clear. I also suffer with “fibromyalgia” and feel my quality of life is non-existing. I was a active person, very socially active and a fun person to be around. Now I feel like a zombie with no reason to live. This condition has made me become miserable and with drawn. The people at work only get to see the exhausted side of me and probably think I am someone who enjoys being down, but it is a side that I would prefer anyone see. Being sick is awful and some days I have to think that this world would be a better place without me. After almost 7 years being diagnosed with FM my doctor feels I should go and see Pain Management Doctor (7 years!!). The first appointment I can get is in March 2016. So where is the attention to helping us, the sufferers of this depilating pain.

  94. I have FM I was diagnosed in 1992 but I think I was born with it. I am on PMS Amitriptyline for my sleep disturbence I hope they find a cure and from there after be able to life pain free.

  95. Lyme disease is systemic. There is no cure.

    Perhaps your Lyme wasn’t really Lyme.

    Proclaiming this ‘miracle cure’ deminishes the seriousness of these illnesses.

    As for the disfigurement in the other person’s hands, that would be rheumatoid arthritis. If you had a negative blood test, have it checked again. Many people test negative in the early stages. And, the two illnesses often go hand-in-hand.

    I’ve had multiple traumas, from multiple serious car accidents – to – years of abuse from a violent first husband – to – playing hard as a child with four older brothers and their friends, all who didn’t want their little sister anywhete near them – to – working hard for many years – to – sonewhat severe joint and spine problems – to – various injuries through the years.

    I heard “It’s all in your head” bull from doctors for decades before finally finding a specialist who understood. I actually cried everytime I went in for an office visit for a long time merely because of the relief and validation.

    I am hopeful this discovery will lead to long lasting treatments and possibly a cure. That would change sufferers’ lives forever!

  96. My daughter had the trauma of having 19 inches of her large bowel removed because of a 2lb cyst, caused her surgeon said by one of the worst cases of Diverticulitis in such a young woman [she was 36]. 2 months later the first symptoms of FM started with in her hands. Now 12 years later she has gained 3 stone is a type 2 diabetic and sometimes cant get out of bed. She is one of the strongest women I know having bought her 2 children up alone for the last 26 yrs but even she cries sometimes. I am firmly convinced that this illness is bought on in some cases by trauma.

  97. Do you think this could have been a more accurate account of the pain and disfiguring of my hands and fingers.

  98. First of all I have had Lyme disease and a co-infection, twice, since 2004, and now am dealing with what appears to be FM. I have found that when the weather changes I am at my worst as far as fatigue and total body aches. Thank heavens at age 78 I am able to take my pain medication & just go to bed. Did my years of dealing with Lyme disease have anything to do with what I am now experiencing? Good question.

    1. I cured my Lyme disease with the “salt/vitamin C” treatment…go to Lymephotos.com it’s all there. I did approximately 16 grams of salt, 4 grams each time after eating 4 times a day (sodium cloride tablets, 1 gram/tablet, which are pure salt, from Consolated Midland Corporation or CMC as it’s called)and 16 grams of Vitamin C powder (mixed w/orange juice). Vitamin C powder at Trader Joe’s here in California is only about $10 a pound, cheap! Followed that protocol for approximately 4 months, til diagnosed w/ colon cancer, totally unrelated to the Lyme. Stopped the protocol and now 7 years later, still no Lyme symptoms, and I was really bad, lots of symptoms. As for the FM which I was diagnosed with, my dear wife finallly convinced me to give up gluten…and WOW FM symptoms gone in about 2-3 months! Off all drugs!

  99. Ive been diagnosed with Fibromyalgia and im so confused. I feel im going mad as i seem to have one thing after another going wrong. Add that to the fatigue and its getting me down. Does anyone know if itching all over is one of the symptoms of fibromyalgia or am i going nutty!!! Xx

  100. THE ONE PILL THAT STOPPED THE BURNING SKIN,FROM NERVE ENDINGS , WAS LYRICA …… IT WASTO EXPENSIVE TO KEEP TAKING… MANY SIDE EFFECTS.

  101. Penny, I am so glad you are finding such relief. Just a little heads-up, I have had fm all my life and I’m in my late fifties. I have found its a cyclical thing. Successful treatment has greatly lessened the cycles but they are still there.
    May yours be so small you don’t even notice them.

  102. I am on my third year – I now know the signs and how to control it but I still have to take my Lopraxer drugs each night… Cold weather and tiredness makes it so much worse.

  103. I believe that I am at the end of my Fibromyalgia & Chronic Fatigue after 2 years. I found that Mickel Therapy lessened my pain to the point where i could go off meds from G.P. Changed my diet, done yoga & walking only to my comfort. Found balance in my days which is taught in Mickel Therapy. I had almost given in to the fact that this will be my life, BUT, when I heard about this Therapy I had to try, and I’m so grateful & thankful that I did. I wish you all the very best, find a Mickel Therapist, you can do it by Skype, God Bless you & Good luck.. 🙂

  104. Two years on and most doctors still think it’s in the head. Why is this information not getting down to the gps? And why is treatment still not changing?

  105. pourquoi la firomyalgie est reconnue dans certains départements en France par la mdph et ne l’ai pas reconnue dans d’autres departementx n’es t il pas la une forme de descrimination,

  106. The medical world is not interested in finding a cure for any disease. If you cure it then you can’t charge for procedures, pills, and office visits. Studying the problem is well and good but if nothing comes of it, what’s the point? Even with all the new information, many doctors treat us as chronic complainers who only want pain and sleeping pills. I’ve be accused of being a drug addict and I’ve never taken opioids or even asked for a pain pill.

  107. Why isn’t this research sourced? No way to check any of the claims made in this article match facts discovered at a lab, hospital, or university. It’s really just more crap I read on the internet. It may have been made up off the top of the author’s head.

  108. It’s been 2 years since this article was published and the fibromyalgia mystery has NOT been “solved.” Its causes and pathology are still not fully understood, nor has it been proven that the pain isn’t psychological in many cases.

    This article presents theories as facts. Theories are not facts.

  109. As a suffer for 26 plus years, as took years to be diagnosed am so pleased to read this, Hopefully the researches will now find treatment soon, and imagine if a cure is found we could all lead a normal life again

  110. I also suffer from this disease and do get pains in my hands to so would really love them to find a solution

  111. I agree with Linda. Cure it & then I will believe. This ‘breakthrough post’ is from 2013 and it is now 2015 and we are STILL suffering with this horrid condition/disease. MY hands are about the only thing that does NOT HURT. hmmm

  112. It’s not just in the hands, My lower back, hips, knees and sometimes shooting pain in my eyes. Other words I hurt all over it feels like the inside of my bones hurt.

  113. I’ll believe they found a cure when they CURE IT!! Just in the hands?? Why does EVERYTHING HURT then????

  114. lad there is Hope! I was diagnosed with Fibromyalgia and Psoriatic Arthritis in 2008 by my Rheumatogist. She has faithfully worked on these conditions. The Psoriatic Arthritis was a simple enough to control. The Fibromyalgia has been quite a bit more difficult. But these findings may help put a answer out there for those of us that still suffer from this.

  115. I took a course called the Lightning Process. It helped me to stop waiting for a cure and judging myself for feeling the pain (which wan’t real in most people’s eyes). I can see why a lot of people would have a problem with the LP because, as these findings show, FM is a physical and very real condition but it helped me get on with life. FM doesn’t always stay down though and likes to return and remind me how ferocious it can be.

  116. These findings sound like more symptoms of this condition rather than the cause. I would be looking at gut health. Inflammation; leaky gut will upset the fine balance of the body. It disturbs the nervous system, endocrine system and immune system and is a catalyst for many diseases.

  117. I am so tired of the ‘no eye contact’ from medical experts when I say I have Fybromyalgia. I am so grateful for the support I have received from my GP and rheumatologist. For years (since 1996) I suffered the disbelieving stare, but now I have support. Relief is yet to be achieved! The pain is excruciating and can drive you crazy!

  118. Wow I knew it wasn’t all in my head I suffer since I had a dental abcess which nearly killed me !! I’ve never felt pain like this fibromyalgia in my life until then I’m glad this reserch has found an answer !!

  119. Never had an epidural but i have fybromyalgia and polymyalgia trust me when both of those start to play together the pain can be unbearable

  120. And what about those that have never had an epidural that are diagnosed with fibromyalgia? I really don’t think that it has anything to do with it… Every person is different and some of us are prone to diseases over others.

  121. Wonder if someone has ever tested the link between fibromyalgia and epidural injections?

  122. For 18 of the last 20 years I have suffered from FM. I have tried every intervention available to Western medicine as well as several years of Chinese acupuncture, Japanese acupressure, naturopaths, homeopaths, an FM specialist I saw every 3 months in LA. Very little relief. My pain manager won’t even use the word — fibromyalgia. He prefers to talk about myo-fascial problems which do not include the sleep disorder or the cognition issues. Forgive me if I don’t just jump on the bandwagon here. The trip on the bandwagon has been very long and without much relief.

  123. Nicola , there are many just like you . Push hard to see specialists. Try find a new doctor that will listen . Dont give up, take heart .

  124. @Connie, so you’d rather live off of the government instead of them finding a cure?? Just wow.

  125. This is great news. I hope they recognize this as a serious medical conditions and let us qualify for SSI.

  126. My doctor told me it’s in my head. Not been back to the doctors for 3 years I live with the pain daily and have no one to help or talk to. Find a test and a reason soon please. Or just get the doctors to belive us.

  127. People all over the world encountered an TICK? behave yourself I have been tested for Lyme Disease guess what I DON’T have it what I DO have is Fibromyalgia. I have been working with it on clients for many years and now I get to have it…Lucky eh? Wonder if I contract it? that will be the next nonsense.

    Whilst I accept the symptoms of Lyme and a multitude of other “diseases” can be applied to the symptoms see *google* for everything! It is extremely condescending and disrespectful not only to the sufferer but to the doctor and other professional to be told after a lengthy elimanation process that they are wrong! or its Lyme! or its Arthritis or its all in their heads.

    I have my own idea of how I got it. I will now work towards managing it no thanks to people like you.

  128. This is from 2013 and they still don’t get it! If the “mystery” is “solved” then why the €¥*# is it still one of the most mysterious ailments affecting millions all over the world? We need current upto date research, we need Doctors who are willing to help those who suffer the constant pain, the exhaustion even after hours of sleep, the loss of self esteem from the inability to function like others and on and on and on…… We don’t need drug companies trying to sell their “approved for all Fibromyalgia suffers” with their side effects that make those of Fibromyalgia even worse, or suicidal, yes, suicidal. I know because one of those expensive ” miracle ” made me suicidal! We need to be treated like the real people, intelligent people that we are, not chronic complainers, slackers, addicts or ” nut cases”.

  129. By high time that they getting the problem to help us with relieve wimter time is the worse time pain never stop getting worse

  130. Since we.don’t really know what fibro is or what causes.it this explanation is as.good as any.of them, and more plausible than you ‘are crazy’.
    My questions are why does this become an issue for those of us who are in the 30-40 age range? Granted there are people who are younger who suffer. But most of us report this pain when we are middle aged. Did we suddenly gain more of these blood vessels? Or did we have them all the time but something happened? If we had these extra blood vessels all along, then why did they flare up during middle age?

    1. I’m sure those with fibromyalgia that live in places on the planet where being struck by lightning is statistically more likely than encountering a tick will disagree with you (let alone one with a specific bacterial infection). People that haven’t left that city in their lives, vectors of secondary infection in those enviroments are up to lottery odds. “Symptoms the same as” right, and symptoms for Lyme disease are similar to early onset MS… does that mean Lyme disease or MS doesn’t exist? Similarity isn’t a exclusionary or inclusionary criteria.

      Meanwhile all sorts of diseases have to be identified by symptoms and observation. Lyme disease however, has a primary infection stage. Asymptomatic initial infection is particularly rare in bacterial infection, otherwise we wouldn’t be around after the black plague, TB etc as we’d have all these hidden retransmission sources. There would be thinga like parallel infection from blood to blood transmission via donor/transfusion that raise red flags. Sure testing for Lyme disease isn’t great… but how many people test negative AND mistook primary symptoms or don’t remember having them AND hadn’t presented with a rash (as I don’t think you’d f look forget that ONE time you had the flu and a rash) AND had tick exposure that they missed AND don’t have post infection antibodies AND still have symptoms that they never noticed variation during antibiotic therapy for an unrelated infection? It’s all contingent on a “Facebook” understanding of medical science. The fact you can’t see fibromyalgia on a slide is why many syndromes are hard to treat. Meanwhile Lyme has been isolated, treated in verified lab environments… yet somehow people have it and yet don’t, circumventing ALL of those diagnostic protocols. Lyme exists, but so do people that will except a wrong answer to feel like they can understand and act against the unknown as well as those who have something to sell as cases = $$$

  131. All comments are good. Is Hidrocortizone the same as hydrocortisone ? See comment Louise. I have had this condition since I was approx 10 years old and I am 73,. I was first diagnosed with polio..wore braces a short time until my Father made dr, remove them..he said to let me do what I could own my own. They changed my diagnosis to Pollymyalgis..then etc etc…sometime in the 70’s they called it FIBROMYALGIA.I HAVE TRIED ALMOST EVERY SUGGESTION UNTIL BOUT 1980.. No drugs now except aspirin…like none, I exercise, walk, stretch, cry, cuss, pray, friends, sex.& laughter…they all help. 4 or 5 times a year I will take a pain medicine ..if that foes not help..I go to hospital for MEDS and help…

  132. Louise, there is not and never has been one type of treatment that works for every case of fibromyalgia or chronic fatigue syndrome. Many including myself have tried and many still use magnesium, but still don’t get good sleep. I’m very pleased that what you described has worked for you, but please be careful when telling others and making it sound like you have a cure. If it worked for everyone, scientists, researchers, pain specialists and Rheumatologists would know about it and would be recommending it for all FM and CFS sufferers. Good luck with your progress.

  133. The lack of magnesium in our body do not let us go into REM sleep. If you take magnesium chloride you will fix this on the first night! Take it at dinner time. I did and it is amazing! In one week only I was sleeping without any drugs for 5 hours directly.
    I’m doing auto hemotherapy in myself and didn’t have brain fog for more than a year now. All the pain disappeared in less than a month. It has none contraindication. Here people do this to increase the immunology and it is excellent.

    Chronic fatigue is due the adrenal exhaustion. Ask your doctor for hidrocortisone (not cortisone!)

    So…. Auto hemotherapy took all the pain in my body in less than a month. But the fatigue and lack of energy was still there. I did some research and discovered some doctors already know it is adrenal exhaustion due many problems we face in life (divorce, loses, jobs, bankrupts, stress, etc… ) ALL solved with hidrocortisone.

    Go to a GOOD modern doctor. Here we call then ortomolecular and into bio-medicine.

    After doing that, you will find lots of energy to go to the gym or walking. Your life will be back!

    Learn everything about auto hemotherapy on internet. No one will tell you about these cheap things…. you know. It did miracles for me. NONE pain… well can say I am free of pain in 95% what is wonderful! I can use my high heels again…. A woman will know what I mean. 🙂 No pain on my feet anymore.

  134. Well…. here everybody knows that FM is a lack of Magnesium Chloride in our body and it has a lot to do with Adrenal Exhaustion, too. So, hidrocortisone solves all the fatigue and magnesium takes all the pain, helps sleep, etc…. One just need to do some research….

  135. I find it difficult to believe this because every 6 months it is claimed that fibro is caused by this or that. I have the pain, brain fog, chronic sleep problems, lack of energy, etc. and as far as I know I don’t have extra of nerve anywhere in my body.

  136. I have Fibromyalgia and also have a blood disorder, my blood clots way too easily. I’m on constant blood thinners. I wonder if there is any correlation there since my veins often hurt anyway from the high number of clots I’ve endured and the bouts of cellulitis I’ve had in my legs. I hope that a cure can one day be had. I’ve been in constant pain since I was 28 years old and am 42 now.

  137. Fibromyalgia is also linked to UARS – Upper Airways Resistance Syndrome which is airflow limitation during sleep . This is diagnosed during s Sleep Study that measures Obstructive Sleep Apnea and RERAS.

  138. I’ll believe it when I see it need to do something to many suffering
    with this including myself I’m just after two very bad days and nights need cure

  139. there may be a simple ‘cure’ which we have used often over the past 16 years as Light & colour Therapists. We use a Bioptron and when first treating a patient for Carpal tunnel (on the forearm and base of thumb) she reported later that her fibromyalgia had also lessened.
    So a simple 4 minute light treatment can get the cell memory to repair itself, as it does with almost any health complaint.

    There will be those who may scoff but be aware the author has also successfully treated a premature baby born without formed lungs, an elephant with arthritis, a rhino in difficult birth, numerous stroke victims as well as Olympic Gold medalists.

    The only thing that keeps everything alive on this planet is light and in 1903 a Danish doctor won the nobel Medicine prize for light therapy – a pity it took 82 years for the Bioptron Linear Polarised Light to be invented.

  140. I can not help but notice that this article was dated 2013 and we r just now seeing it…. I have been suffering from the pain for a long time… Endless tests and blood work because there is no explanations as to why the severe pain is felt in areas that an organ is located… My pain is also compiled with endometriosis… Takes days sometimes weeks for a flare up to subside… But I refuse to take daily meds to get thru the pain… The last thing I need is a bad liver and or worse side effects from meds…I just hope that they can find a cure… I hate that my kids can not enjoy time with me as much as they should… Sometime the pain from just a tiny hug from my loving children is just to much to bare… Here’s to hoping!!!

  141. I have always had severe pain in my hands, and did not know the reason of that pain.
    It seems hopeful but, quite honestly, I am suspicious because I have suffered and am still suffering so much with the pain of fibromyalgia and for so many years, and physicians have tried so many “treatments”, without any result except when I take really strong medicaments, that eventually we stop believing that future will be better than today.
    This disease destroys our self-esteem, we no longer can make plans because we don’t know how we will feel the next day.
    It is really a depressant disease and very hard to live with.
    Just hope these investigators find the cure for the millions of persons suffering with Fibromyalgia.

  142. I have suverd for along time. It is all I have to do to get through the day

  143. I agree with the sufferer in the above message. I too, have the pain, sheets sometimes rub against my feet and the pain is excruciating. I get very little sleep, one foot I swear is broken. I have Neuropathy and it is extremely painful, I do my own acupuncture and it helps some, plus the jets in the pool loosen it up some, but the pain is always there. I don’t bother asking for anything as it ends up with me feeling like a criminal if I should have a drug that eases some of the pain. I could get addicted to it they tell me. I wonder what the doctors would do if they were in this pain. In the morning it is like breaking my feet in half to be able to walk to the bathroom. All this, after have a 5 yr. bout of Morgellons, that still nips at me all the time. Scars, and pain, and life goes on, I wonder what pain killers are for if I cannot have them?

  144. The first thing that alerts me to an impending flareup is shooting pains and swelling in my hands, as if I have excess fluid in them. This is extremely interesting and I’m going to ask my rheumatologist about it the next time I see him. Thanks for this article.

  145. I have suffered from this disease for over 20 years, and am tired from morning till night and beyond. If my arms are uncovered and cold air blows on them, I suffer from intense pain and the only relief is to wear a sweater when I go into any place that is extremely cool. My feet,hips, and knees as well as my hands ache and have spasms which keep me awake or wake me up when I finally do get to sleep. I have many sleepless nights as well. Years ago, my feet were so bad when I woke up in the morning, that my husband would have to help me to the bathroom and many times help me get dressed. After I got on my feet and got dressed, I managed to get to work and get through the day. A cure would be very acceptable to me. Please let me know when that time comes.

  146. Although I am still in pain constantly, I have had improvements in fatigue, and a reduction in my muscle weekness. I have done this by cutting out pharmaceuticals, which weren’t working anyway, and changing my diet, to mainly raw food, with a mixture of herbs and spices. My daily veggie smoothie is a god send. The only thing I found to relieve the pain isn’t easily available, and thanks to the government of the 1920’s was made illegal! So I’ve learned to just tolerate it, and live with the pain!

  147. Nope cut out gluten like i di and completely cleared my macular degeneration which was supposed to be incurable !!!! going blind totally was supposed to be my future ??? i cut out flute and now my eyes are perfect and my gum disease has miraculously disappeared too ?? x

  148. I realy need some positive information here. too many years of pain and fatigue. I will do or take almost anything to relieve this misery.
    If this is real relief some one please start a site with information and contacts to push research and support.

  149. I expect a full healthy diet will remedy it mostly.Modern day avoidance of fat is a stupid idea.I did it previously.Fat is needed to cover nerves for insulation.Peter. BA&S degree

  150. its great they think they have some kind of cure i hope it helps all of us not just a few

  151. This explains a lot to me in what my daughter is going through, she is 17 now but she started going through these problems when she was 11 12 an no docs would say she was dealing with this, hence now she is dealing with full on anxiety, depression and feelings of doubt, when she was 16 we went to birmingham hosp and straight away they told her she was dealing with fibromyalgia, so from then on we had something we knew we were dealing with, we are still battling this problem and we and everyone with this problem needs your support please help us x

  152. Thank you so much for the article, this explains all my problems that just resently happened. Still with all the pain meds I’m on I still get about 4 hours of sleep a night.

  153. I do not believe this article. I have had this condition since my teens (I am now in my 70s. I have had every diagnosis and treatment. I am as ill now as I ever was. The only thing that has helped at all has been cymbalta and arthotec. I eat health, do water aerobics three times a week but am never without serious pain.

  154. Another red flag: should not someone drawing inferences about a condition be aware of the very basics of the condition?! Like, for instance, the FACT that Fibromyalgia is NOT an inflammatory condition?

  155. Sloppy, sloppy science… or sloppy, sloppy reporting (take your pick). There is absolutely no scientific basis upon which they can infer causality. They have not discovered THE CAUSE, they have discovered a physiological anomaly amongst SOME Fibro patients that MIGHT be a factor in SOME Fibro symtomology.

  156. Another demonstration of quick, but wrong, conclusions scientists make. I have no doubt that the findings are correct. However, these findings are the end result of a process, not the cause of the problem.

    It is still our subconscious brain that is in control of our entire physiology. So yes, it is all in the brain. If you want to know how the brain really controls our health, you might want to take a look at the amazing informative and easy to read blogs at: http://pmamninded.com.

  157. I have suffered the most severe pain every single day for just over 4 years, to the point you don’t want to live anymore. I’m just turning 30 and have less mobility than someone going on 130!
    A cure would be the most amazing thing ever. Let’s hope it’s soon I already feel like I have missed out on so much of my life

  158. had this illness over 50 years would be lovely to find a cure oh to be pain free just one day would be heaven i too have ostoathritis of the spine hips now knees i am 73 years of age so what more can i expect . i get bad aura migrains too now a bad tendonitisn in my right hand having operation august

    1. I agree Annette, most people don’t understand how just one or two days would make such a difference in how we act, think & behave. They, obviously, have never experienced real pain! 🙁

  159. This is insane. Fibromyalgia is an autoimmune disorder resulting from viral infection. It is not and never will be anything other than that. The simple facts are that REAL people have a REAL disorder and need REAL research based on what we know and have come to understand about our own bodies. This will lead to REAL treatments that are not experimental and will give us a REAL LIFE not the shadow of the ones we lived before.

    1. I have never had a viral infection!
      Nor a traumatic event nor a serious (or minor) accident so how do I have Fibro?
      I literally woke up one day and couldn’t move my arms. Fast forward 8 years and I’m in severe pain constantly, I manage maybe (if I’m lucky) 2 hours sleep a night and I spend every morning when I wake in tears because it feels like my neck broke in my sleep.

  160. I have suffered for 28 yrs and am told i am also suffering from osteo arthrites.i am fed up with taking percoset and morphine for last 12 years. I am 71 and my mind is like a 30 yr old.but wish my body could stop sufering.

    1. Hi Fay, if you could send me a private message to my email I have something I could share with you that may help you.

  161. I see a lot of different doctors for the many problems I have & I’m just so fed up with doctors rolling their eyes when I tell them I have Fibro. I think you should send a memo to every doctor in America so people stop getting belittled.

  162. Just a question can low platelets in the blood cause this as I suffer with pain most of the time especially more in the winter and I’m currently seeing a heamotologist about my low blood platelets

  163. Our daughter was diagnosed when she was 14. I was an overprotective mother with a child who was a hypochondriac according to most. Hope real relief comes soon for the sufferers of this painful, draining condition.

  164. My oldest brother was dxed with fibro back in the 70s by Mayo Clinic. The only thing they did for him was give him a prescription of NSAIDs and told him to exercise.
    I am not so sure I totally believe this article. I think there is more to this since it affects our muscles and tendons not just our skin.

    1. That is true Cindy but anything that may give it a real name or a reason for being is more than just a good start. yes I suffer every day and every night?

  165. Thus story came out two years ago. Should have thought there would be more of an answer by now
    :'(

  166. I was diagnosed with Fibromyalgia, in 1988. I was 46. I believe I had it in 1968, when I carried my 4th child.
    In 1988, I had to tell the Army Dr’s what it was…they never heard of it! lol
    I understand that many people cannot even function @ all. I feel so sad for them. I am fortunate, that I have a very high Pain Tolerance. I guess having 7 children is proof enough of that! lol
    I will pray for all of us, that something good will come of these findings! Sometimes it takes a few years for Whoever To Act On Medical Findings! ;-(
    Good Luck To All! Hugs,,.”Babe” 😉 And Special Thanks To My Good Friend Carol for sending this to me! 😉

  167. Article 2 years old and still nothing for a cure EXCEPT some form of pain killer that may make our suffering better or the same, but ultimately will cause something else to wrong with us, it would be nice if this is all it is, but I’m not buying it until they develop something that works for all of us which in my opinion will never happen. There are other individual contributing factors and a lot of times the doctors are like it’s arthritis or fibromyalgia or something else that’s similar in nature, although something totally different may have been the cause leading to these diagnoses. I’m 45, have suffered most of my life since childhood, have given up on all medications and shot treatments for pain, and simply feel like it’s something that we have to deal with in our own ways (good or bad). Support is not our friend and we’ll be lucky to have someone in our life that will love us anyway. Prayers to all of us, God bless!!

  168. I have been suffering for 6 yrs now. It took 4 yrs for anyone to listen to me!! I swell up head to toe. I feel like my neck and spine are killing me. Red knuckles, burning, numb, tingly or painful hands. Pain in my shoulders, knees, ankles and toes. It used to come and go. Then eventually it stayed for good. I live it every day.I’m 35 and feel like I’m 95. I used to be an avid outdoors person with lots of energy! I had been the bread winner in my family for years. I’ve lost just about everything. My great job, my spouse, my sense of freedom and accomplishment. But I haven’t given up or lost the fight. This news brought me to tears. I hope and pray that this will help us get our lives back!!!

  169. I do believe this ever since I was about 10 I’ve had red blotchy palms and I explain my pain as my blood is burning and I can feel my blood pumping and I have lots of tender tender points that hurt all the time I’m looking forward to trying their new cure

  170. I have had Fibromyalgia since 1990!! Long before it became overdiagnosed. Only YOU (and God) KNOW IF YOU TRULY HAVE IT. 25 LONG, HARD, PAIN-FILLED YEARS it didn’t take me very long before I KNEW!! I read this but I DO NOT TRUST IT!!

  171. My wife has Fibromyalgia and she is the one that is the bread winner. I feel for her every day as she hurts and I know she hurts from how she acts and responds. Worse is the impact on her being able to work. Loosing days has placed our family into a hole that we just can not seem to get out of. It is why I am now looking for help to help relieve the stress for her. This link (gofund.me/wpyp63k) is to that. I look forward to a cure like any one…but until then we all have to do what we have to to get by and help those we love.

  172. I am so excited! There is hope to be free of pain now! I don’t even remember what that feels like

  173. The heat is my worst enemy so that would be out.. but ice packs cold weather is great

  174. Best therapy I’ve seen actually work has been the high-dose Guaifenesin researched by Dr. St.Amand out in California. Theory is that people with fibromyalgia do not process phosphates out of their body normally, it builds up and makes the lumps in the tissues. Guaifenesin (OTC Mucinex) has the side effect of making the body excrete phosphates. Susan has been on it for almost 25 years, is almost completely cleared the lumps and painful joints. She has to be careful what she eats, any herbal food with salicylates will block the action of the guai. St. Amand has a website http://www.guaidoc.com It works, and it’s cheap.

  175. I too was put on Prozac 15 yrs ago, all it did was give me suicide thoughts. I stopped taking it and the suicide thoughts went away. I only took it for a short period of time, no lasting effects. I moved to Arizona because I could no longer tolerate N.Y.’s cold weather which triggers flare ups. I fare must better living in a hot environment. Having said that, I still get tough days, although I get more days of waking up not sick or mild flare ups. Moving here was the best decision I made to help myself.

  176. When the pain became unnearable I saw a specialist who put me on prozac. I didnt realise as it was a slow decline but the prozac made me angry, frustrated and gave me severe anxiety. I lost it at work and was suspended, I was taken off the medication and started feeling more myself. However the destructiom it has left in its path is unrecoverable from. Being put on prozac destroyed me, I hurt the people I care about, I lost my reputation. My boss did everything he could to ruin me, because he couldn’t understand that I was working my arse off every day, in agony, putting in extra hours and doing my best but all he saw was someone who lost it and had time off. This illness has ruined my life and I am currently desperate for help. I can’t take living any more.

    1. I stand beside u in a life of chronic pain. Fibro, tmj, MS, daily headache, cerebral aneurysms. It’s ridiculous. I hav stopped being social. Even going to doc appoitmnts cause added pain. I do have prescribed pain meds but my life has grown to be small . Hang in there!

    2. DEAR HANNA UR COMMENTS MADE ME SO SAD. SAME THING HAPPENED TO ME. ALL THIS TIME DRs HAVE PUT ME ON STUFF I WAS TOTALLY ALLERGIC TO. LOOK UP ON GOGGLE “MAYO CLINIC” AND WRITE THEM A LETTER. NOT AN EMAIL IT WILL GET IGNORED! TELL THEM YOU NEED HELP. EXPLAIN IN DETAIL IT HELPS TO WRITE AND WHO KNOWS THERE ARE ANWERS WE JUST HAVE NOT FOUND THEM YET. HANG IN THERE. XXOOKK

  177. I’ve told my doc my symptoms for years with no relief. The only thing I’ve found is a hot rice pack. I wrap my hands around it when the pain gets bad.

  178. I laid on bed with pain in my throat and no voice . I have been finally told after seeing various oligts that it’s my brain telling my throat it wants to work like this. So does mean that it’s ive too many blood vessels that’s causing me these problems

  179. My question is:
    What caused our dna to make an extraordinary large amount of these fibrous veins??? Something affected us to cause our bodies to grow more than the norm.

      1. I know people with Fibromyalgia who have never even touched a computer let alone a cell phone or a laptop. That doesn’t effect your DNA anywy, for crying out loud.

      2. FIBRO FLIPPING MY ALGIA WAS AROUND WAAAAY B4 CELL PHONES AND COMPUTERS TRUST ME! SINCE THE BEGINNING OF TIME IT’S JUST THAT NO ONE REALEEEEEEEEEEEE HAS DONE RESEARCH. JUST SHOVE PILLS IN YOUR MOUTH SO U SHUT UP!

  180. I get pins and needles in my hands,they are week at the wrists.i don’t sleep.find it hard to cope most days.the pain is arrendous.

  181. I am so tired all the time, and my hands do have tender spots…but at least it is not my imaginery friend…

  182. I doubt this very much. I agree with Rebecca, although not the way it was presented. I, too, am tired of the excuses and the constant pain. Getting upset makes it worse for me. Most certainly has to due with the brain. I was put on anti-depressants before being diagnosed with fibromyalgia. I just want some answers.

    1. Jackie go to wwwfibromyalgiatreatment.com. the protocol is working for me
      n others hope it worked for U 2. Jan.

  183. Hm, I dunno. This would tie into Chinese Medicine as a possible cure, but how do you reckon the correlation of this + Raynaud’s Syndrome plays out? My hands and feet are cold and numbish 90% of the time, leaving me to think that I have less blood vessels in my hands/feet. Just sayin’.

  184. that’s bogus it has nothing too do with blood vessel in youre hands who came up with that crap, as a sufferer I know dang well it isn’t that! come up with a better excuse… it does have something too do with having viruss like Epstein barr, I do know that! it also has too have something too do with the cns so it is brain related duh!

    1. What a rude way to communicate your thoughts in a public forum. I didn’t understand a single point you were trying to make because of your insolent presentation. Obviously you are feeling poorly and I am sorry about that. But maybe you could try to have a tiny bit of respect for scientists who are trying to unlock the mysteries behind this disorder for the benefit of us all.

      1. NY ADVISE CHILL! JUST SAYIN. DOCTORS MAKE PEOPLE FEEL LIKE THAT. ONCE AGAIN THEY CAN MAKE A DRIVERLESS CAR BUT CAN’T FIGURE OUT FIBRO OR R/A VENTING IS GOOD. U NO WHY CUZ HE/SHE HURTS. MOVING ON 🙂

  185. Recent research shows a virus is more likely thought to be the villan responsible for fibromyalgia, probably of the herpes family.

      1. IF U R ASKING ABOUT THRYROID AND R/A YOU JUST HAVE TO GOOGLE IT. OTHERWISE I DON’T KNOW WHAT U R ASKING FOR BUUT I CAN FIND OUT. JUST MAKES ME MAD WHEN THIS PAGE SAYS “FINELY SOLVED” IT HAS SAID THAT FOR A FEW YEARS NOW. IT IS NOT SOLVED!; 🙂

    1. just last week I went to see a new doctor and he they did the same thing, but it could potentially be a virus. currently just waiting on my medical file to be sent to him so he can review previous lab work and request new ones if needed. but the possibility is there.

    2. Hi trishvr. Please can you point me to the research showing the herpes virus may be responsible. I have fibromyalgia and currently have shingles.

    1. DEAR CARLA: I HAVE DONE SO MUCH RESEARCH ON R/A IF U GOOGLE THYROID DISEASE AND RHEUMATOID ARTHRITIS YOU WILL BE MAD BUT ENLIGHTENED. THEY CAN BUILD A DRIVERLESS CAR BUT THEY CAN’T FIND A SOLUTION TO R/A 🙁 SO SAD. R/A IS AN AUTOIMMUNE DISEASE AND DOCTORS THAT SAY YOU HAVE R/A AND THEN DON’T CHECK YOUR THYROID ARE IDIOTS! THE DRUGS OUT NOW CAUSE BLINDNESS AND CANCER IN A LOT MORE PEOPLE THEN YOU KNOW. I HAVE HAD IT 21 YEARS. IF THEY HAD CHECKED MY THYROID I WOULD NOT BE IN SO MUCH PAIN. FIND A DOCTOR THAT ISN’T BEFUDDLED BY QUESTIONING. WE MUST BE OUR OWN ADVOCATES! HERE IS HOW YOU TYPE IN GOOGLE “THYROID DISEASE AND RHEUMATOID ARTHRITIS, THE CONNECTION” GOOD LUCK AND I WISH I HAD AN ANSWER. XXOOKAREN

  186. The reason statin drugs are still ‘out there’ is because it is one of the biggest selling drugs for companies like Pfizer bringing in profits in the millions.
    In Australia, when questioned (reported on) by our ABC’s ‘Catalyst’ program over a year ago – there was a “put down” by our Heart Foundation who also succeeded in having it ‘pulled’ from the on-line catch-up programs. Interestingly, i found that one of
    the Heart Foundations biggest sponsors is Pfizer — go figure!

  187. I have been taking Simvastatin for years and my legs are weak and are restless at night. I intend to talk to my internist about discontinuing it.

  188. Why don’t the researchers just continue with Dr. Paul St. Amands discoveries and research. Check out his book, “What your doctor may not tell you about Fibromyalgia”. He’s already done the research, for over 50 years in fact, and he’s helped himself and thousands of others. He works out of Marina Del Rey, California.

  189. Both, my wife and I, had long periods of intense pain in our legs when I happened to read an article in our local newspaper cautioning people who were on various forms of Statin drugs widely used to control cholesterol. The article contained a warning of potential damage to muscles with sustained use of a Statin drug and that; further it urged the FDA to “…require that an FDA-approved medication guide be distributed to patients filling statin prescriptions, advising them to immediately stop using the drug if they experience muscle pain, tenderness, weakness or tiredness. Finally, drug companies should be required to send ‘Dear Doctor’ letters to all U.S. physicians about the risk of muscle damage due to statins.” To finish my story, after stopping the use of our latest Statin drug (Simvastatin), within 2 weeks our pains began to reduce in intensity and within a year our legs were pain free. My point being that perhaps the pain that people report having may not be the result of fibromyalgia but, if they are users of Statin drugs, it could be the drugs that’s the cause.

    1. Hi I believe 100% about the danger os statins I can NOT tolerate any form any shape of thia poison suppose medixine to help you onw way amd and killed you in amother way so I don’t know why it is still out there It caused me pain pain and more pain in my bones also my liver function went high.
      LOOK THE WHOLE PICTURE BEFORE YOU GET LABEL BY A PERSON THAT IS CALLED A DOCTOR AND TOOK MAY BE 5 MINUTES TO GIVE YOU A DIGNOST they don’t care. I started studying every detail of things that I do and things I don’t do and believe me it make a difference.
      Best wishes to all!!

    2. I have been saying this same thing for quite some time after having gone through near excrutiating muscle pain throughout my body caused by statins.

      1. HI ROXY :SOMETIMES HIGH FAT IN THE BODY IS JUST THAT-GENEIC AND STATINS OR NOT IF LETS SAY UR DAD HAD HIGH CHOLESTEROL- U MAY TOO. ESPECIALLY IN WOMEN NOT SUCH A GOOD DRUG. READ ABOUT IT EVEN DOCTORS DON’T KNOW ENOUGH THEY JUST GIVE U A PILL & SAY SEE YA NEXT TIME! WORKS FOR SOME-NOT FOR MOST. I THINK WHEN EVERYONE ON THIS SITE COMMENT ON SOMETHING THEY SHOULD REFER TO AT LEAST YOUR COMMENT 🙂 OR SOMETHING IN THE Q & A SO US OLD FOLKS CAN REMEMBER – LOL 🙂

  190. It seems like a stretch, but I’m open to anything that could stop the pain. 20 years of unending agony takes a toll on body, mind and spirit.

  191. Not sure if I have fibro or not. All I know is that my arms and legs hurt so bad I can’t walk or even dress myself. My white blood cells are extremely high during a flair up and I am treated like a drug addict even though I don’t even have pain meds. My heart goes out to anyone that is suffering with this!

  192. Since the beginning of scientific inquiry there has not been found one single cure for one single non-infectious or dietary disease. They can treat the symptoms or burn or cut on you, but there never is a true cure. The reason is quite clear, science is in total denial that our attitudes and emotions effect on our health.

    Being an acupuncturist the “head acupoints” through out the body show tenderness and swelling, just exactly as the diagram above shows. But also all the fibro patients I have worked with have a common attitude of being stubborn and refuse to listen to reason. They tend to be hyper-sensitive to the slightest slight, even if none are intended. They also tend to be professional victims blaming others for whatever is wrong in their lives.

    And no acupuncture does not cure it either, but it does temporarily relieve the pain. For all of you fibro sufferers that want to send me hate mail, I rest my case. You need a personality makeover to heal, there is no other way, unless you want to take the risk and have nerves cut.

    1. Wow, that’s incredible that you can categorize all fibro patients that way. I have an incredibly positive outlook on life and yet somehow that hasn’t affected my pain level. I choose to take the very minimal amount of narcotics as possible and only on days when flare ups are so bad I can’t even stand up. But I still manage to laugh and play games with my family.
      Something you may want to consider when treating these patients is that they have been trying to deal with widespread whole body pain probably for years before they were ever even diagnosed. And then they were told the debilitating news that there is no cure and the prognosis is to learn to live with the pain. It is disheartening and can break down someone with even a positive attitude and outlook on life. It takes time for people to learn to live with this. I used to e able to hug and snuggle my sweet little boy as much and he could stand and when he would run and jump on me we would laugh about how he tackled me. Now he has learned that he has to ask me how hard a hug he can give me. Because if he is too rough on me the pain will last for hours. How sad that my sweet 6 year old can’t show me how he feels because it hurts me when he hugs me too tight?!! There are huge adjustments that have to be made to life and that can be hard and depressing and some people cope in different ways than others or you.
      Might I suggest that you learn a bit more about the struggles others deal with before you judge and spew your negative thoughtless energy around. It has been my expieriences that when people go places for treatment they are at a higher stress level, and nearly always only talk about their ailments because the treating Dr or physician or acupuncturist asks them…”how are you feeling today?” You won’t see people at their best because they aren’t there to see you because they aren’t fine, otherwise they would have no reason to come to your office in the first place.

    2. chalkee, I’m sorry but you are so wrong about this topic! Better to butt out.
      Read wwwfibromyalgiatreatment.com SUFFERERS go to this site it works. Jan.

  193. Yes, Terry. My hands are affected worse than the rest of me. I think this makes all the sense in the world.

  194. annie, did you even read the article? “hand story doesn’t even match up”??? That is just plain ignorance. I could give you plenty of examples of how and why that makes no sense, but I’ll just quote one line from the article instead; “…but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.”
    You may regard this article as false hope, but please spare and not dash those that would prefer to have hope!!!!!!

  195. @annie: Many of our sensory nerves are incorrectly mapped by the brain. Add to this,sciatica, which often tells our brain that there is pain in the buttock, knee, heel or foot, when the sensation is actually caused by spinal damage. Most of the few places which are correctly mapped, is in our skin, and pain in our muscles is very likely to be a symptom rather than the disease. A build up of lactic acid is very plausable, though also just a symptom of the disease.

    1. Sciatica is not “caused” by spinal damage. It is a person’s attitude that causes it. I cure it all the time with my patients, No needles, drugs or therapies. I just talk to them and find out what their unfulfilled goals are. Once found the relief is instant. Fibro is more difficult because the patients also have an “attitude” of stubborn refusal to listen, they play the professional victim game and are offended at the slightest provocation even if none is intended. Fibro patients require a personality makeover before they can be healed.

      1. You have no idea what you are taking about. I woke up one morning like I had the most incredible flu virus, body aches, migraine etc. etc…… & it never went away. It was no “attitude” which brought on this pain.

  196. I had it for over 40 yrs. When I went in to have my partial knee surgery the surgeon had to clip the main nerve that is the main problem with Fybro. The Main Nerve runs through your back and crosses over your knee. Since my surgeon clipped that Nerve I do not have any Symptoms of Fybro. Thanks Dr.

    1. What about you upper body? If you entire body is not effected then you don’t have Fibro. There is no main nerve which is responsible for Fibro. You were misdiagnosed.

  197. im not buying this article at all. fibro means tissue, myalgia means pain. it is a hyper sensitivity of the connective tissues in our muscles and joints. so this hand story doesnt even match up. im saying this is a false hope story.

  198. Why haven’t we heard about this before? And when should we expect a cure?

  199. This sounds pretty dumb to me. I work in the medical field and have never heard of this. Non of my doctors have heard of this either.

  200. I have had many many surgeries on my hands because my major pain was arms and hands. I have had 30+ surgeries total on my body because doctors just did not know anything. I hope it is truly in the hand, I have some skin left that has not been stitched on. Ha ha. I decided not to take all the pain meds because I had a doctor say as he walked in the exam room…”I am not giving you pain meds”. I never asked a doctor for pain meds. I have gotten them but never asked. The stigma with fibro needs to stop.

  201. I have severe pain in my hands and had lots of treatment to try cure what the pain I suffer in my hands. The skin splits on my hands like knife wounds from doing little tasks. I spend days using steroid creams to try and heal the wounds and sometimes end up having antibiotics as well as the wounds can become infected. I have had sore hands ever since the fibromyalgia started. I want to get tested now for this condition as docs in Dublin say they can do no more for my hands

  202. All these years I’ve been suffering and not only have I had family and friends question wether I’m a hypochondriac but also doctors looking at me like I’m a loony now they can see I am in pain and its flipping real ………

    1. Yes the pain is real!!!! For an effective treatment go to.
      wwwfibromyalgiatreatment.com jan

  203. Could there also be a connection for Polimyalagia.???. Please do some research on this

  204. Interesting reading. I suppose different treatments works differently on Fibro sufferers. For them the pain is REAL

  205. Upper Cervical Specific Chiropractic may be the answer for some people and the Specific adjustments sometimes have to be experienced to understand.

  206. I was diagnosed with fibromyalgia and chronic fatigue in 1995. I began the guaifenesin protocol developed by Dr. St Armand and now do not have chronic fatigue and rarely have fibro symptoms. I don’t see any mention of his protocol listed. It has worked for thousands of patients.

    1. Its just my humble opinion but from the solid research, not anecdotal reports, this is a placebo cure. Hey, if it benefits someone, great, but the double blind studies show it does nothing. In fact, they did not even want to do the studies as they felt the claim by St. Armand were not to even be been taken serious that this cough syrup would cure CFS and fibro.

      1. If you can find an “upper cervical SPECIFIC” chiropractor, you will find out the difference. No meds will cure fibro….another “humble opinion” from personal experience. Placebo cure is not what you want, you want to get to the cause.

  207. 50 000 units of Vit D once a week seems to keep my pain away. Still have some sleep issues, but it’s less than before.

  208. I am not to sure about this. I have had fibro since 1987, from an accident troma is what I was told. I don’t think that gave me extra vains in my hands.

  209. Well I will be reserving my judgement until there is a lot more research done on this. There is so much out there that just isn’t true, so much that is down right blalant ploys to buy this cure and that vitamin and I will not be spending one more penny till I see some legitimate research. I have seen people spend thousands of dollars on snake oil and it makes me shake my head. Even if had a placebo effect I wouldn’t be so upset but so much of it is harmful, not helpful so this gal will wait and watch!!!

  210. there are certainly ways to alleviate the soreness – eat foods that don’t cause inflammation – no wheat, grains and cut the carbs and seed oils. Worked a treat for my partner 🙂

  211. Oh my. So many responses!!!! I could rant a full reem about this but all I really desire is a cure. This paper was doing the rounds 2 years ago but where is the miracle cure?
    If anyone of any scientific standing bothers to read what sufferers really feel contact me and I will whole heartedly most willingly participate in clinical trials (so long as it doesn’t involve yet another cocktail of useless drugs)

  212. Sorry!
    According to the article it will only benefit 5m Americans. So, if you’re not a Yank, just give up on any hope you may have harboured!

    By the way: an AWFUL lot of you should really learn how to spell!

  213. I would like to know how many patients were tested to confirm this theory? I agree that FM is not “all in the mind” as many Dr’s say. It seems that this debilitating disease is taking over the world. Almost daily I hear of new people being diagnosed with FM. If this theory of the excess blood vessels and nerve fibers are true, is there anything that can be done or spesific meds that can be taken to bring satisfactory relieve? I am tired of Dr’s prescribing many different drugs and many different combinations of drugs that makes you feel worse and like a zombie most of the times and it is costly. I had to throw away many costly drugs because it caused side effects. I also had many procedures done to try and alleviate pain but that only worsened the pain. The problem with FM is that there are so many different symptoms. I struggle with chronic pain, migraines and headaches, IBS, chronic fatigue, depression and the worst of it all is the severe spasmic muscles. I had many physio sessions with no relieve. I don’t even want to touch the topic of exercise as many sufferers know that it only aggrevates the symptoms. To conclude I think that many sufferers would love to know the exact cause of this disease and have some hope of a cure.

    1. Read excitotoxyns, by Russell Blaylock and The Hundred Year Lie by Randall Fitzgerald.

  214. The article is written very much like it’s a definite answer. It does seem to me to be the results of one small round of research. I for one hope it is indeed the answer, as I would love to live a “normal” life, but I can’t help but feel apprehensive that the article may just get people’s hopes up on the chance that further studies show it is only in certain cases of FM.

  215. I am so glad!!!! I wish and hope that there wil soon be a treatment or something for us. I am going bad of painful muscles and headaches. I feel like i can not go on like this anymore!!!! I hope the cure can help us all!!!!!

  216. I’m convinced that my fibro was from mono – a mega virus that compromised my immune system. My hands are fine. I’m a dental hygienist & still able to work @ 67. But the fact that someone is doing research on the cause is a definite positive.

  217. There doesn’t seem to be much in the way of clinical trials? I would hope that more in depth studies would be undertaken. It was always believed that the condition was related to the immune system.

  218. I am skeptical still. Doubt this is actually the cause. It may contribute. Will probably never really know the case or have a cure. That would be too good to be true! What is arnica?y

  219. The cold weather make since….. During cold blood vessels constrict. So logically the AV shunts are sensitive even to the constricted blood flow or friction against the blood vessels walls….

  220. I have been diagnosed with fibromyalgia for many years on top of other physical problems do to 5 car accidents. I will share a couple things with you guys that helped me personally, Epsom salt bath, supplements such as celery seed extract, tumeric, ginger, magnesium, b-12 w/ folic acid and cherry. I also make arnica muscle sticks which helps with the inflamation and muscle spasms. I hope this helps all of you find some type of temporary relief. People who don’t suffer from fibromyalgia have no idea of the pain we go through. God bless

    1. I have arnica patched I have ordered. Need a place to get them they help

      1. I haven’t found arnica patches, but arnica muscle sticks can be ordered at nanasnaturals.net.

    2. Ask your doc re low dose naltrexone (LDN) .
      It’s changed my life for the better !
      Good luck n god bless 🙂

      1. Do you take that by injection or pills? My holistic doc wants to give me this for Lymn diease.They are so many people that have Lymn are diagnosed as fibomyalgia. I was also but knew it was more than that .I also suffer from Toxic Mold.

  221. I was ‘diagnosed’ with FM some 18 years ago. It’s a word that basically has become an easy diagnosis in that it is cheap for the NHS in the UK to throw this at you with their limited budget. I have since found out I have an underactive thyroid, severe B12 deficiency, and adrenal insufficiency. All this caused by antibodies attacking my body. Took some pushing for this diagnosis and lots of tests but last year, I wasn’t going to accept this ridiculous fibromyalgia word. I showed borderline on most tests after asking for print outs of results, and insisted further tests were carried out.
    My question to all those who have been diagnosed: IF your doctor told you your child had cancer WITHOUT doing full blood work/scans etc, would you accept this diagnosis and allow chemo and radiation to go ahead? No?! You would want PROOF that your child had cancer. Same with this. ‘We can’t prove or disprove.’ Why?….because it DOESN’T EXIST. You ARE ILL for goodness sake. You need the right diagnosis AND medication to make you well again. 16 years I’ve put up with this and all along, it’s been actual ailments, EASILY rectified with medication, WITHOUT being drugged up on amitriptylene.
    Please go back to your doctor and insist on further testing. You deserve to be well.

  222. I think this cause is just another bunch of wind. Probably some pharmacy company out there with a new pill.

  223. i have fibromyalga i have had it 7 years im 32 years old i can not play with my children i cant get in or out of the bath on my own i cant cut my own food i cant walk for more then a few min because of the server pain i can sleep a whole night as i have to turn some days i wish i was dead and if my kids wasnt here i would be . i cant have sex any more because of the pain and people think this is in the brain really you think i want to be like this 32 years old and cant do any think for myself and all the comments it cant be that bad i beg to differ i had 6 children with no pain releaf and im telling you i would rather be dead then live like this every day

    1. As a Fellow sufferer I sympathise wholeheartedly with you. Although my symptoms are not nearly as severe as yours I know exactly what you mean and each day seems to be worse than the day before. I have had this for some years without the official diagnosis and being told it was pretty much all in the mind. I feel glad somebody knows how I feel and understands the pain involved with this complaint. Hopefully a cure will be found soon.

      1. Hi have had this now for 12 or more years , the pain is something that you can’t put in to words don’t let anyone tell you it’s in your head this pain is very real as we are the ones that live with it some days I can’t get up or even walk or sit, but I make my self get up & just try it’s up to you to try to live or let it rule you its one of the hardest thing I have to some day ,but we need to live I whish that it would be nice just to get up with no pain but I live in hope .I live up north they have something up here that is called the p m u pani management unit @ the hospital it is one of the best place to be seen they doc that get what I say about pain which has helped me lots just remember to live your life as much as you can don’t let the pain rule you be strong with it

    2. Couldn’t of put it better. If we was believed we wouldn’t be so I’ll either. Let medical profession feel our pain. They wouldn’t wait 7 months for the next app for the pain clinic. To be given 1 poxy injection. When you need 4 or 5 waiste of effort. Not worth more than 100 every 7 months

    3. Hi Maria,my heart goes out to you I have had this for 15 years I am 63 now it stole the life I loved my Husband betrayed me because he missed our old life too it is really hard for everyone,your children love very much just do a little with them and tell them you love them very much, My youngest son is my rock he helps and motivate me when I feel down. Take Care

  224. Good grief even as physical differences are found in Fibromyalgia sufferers people are queueing up to reiterate to them that their pain is virtually psychosymatic.

  225. My partner suffers with fibromyalga and our doctors made him feel like it was all in his mind until my partner finally spoke out and said there’s no way anybody is going to get up and say I want to be in pain like Iam in all the time . He carnt even hold his granddaughter for more than 5 mins he is 38 years old carnt play with his children his life is a total mess he’s on 6 different types of pain killers and still no release from pain so please don’t make anyone make you think it’s all in your minds because it’s not .

  226. Fingers crossed that a cure can be found. The pain I have now is changing me from a fun happy person to an introvert as socialising is out of the question. I have become increasingly immobile and spend time on my own as I don’t want to burden family with my problems x

    1. it’s good news, I have fibro too, it’s not nice you up one minute then down, People don’t understand, take care of yourself regards hackie

  227. I HAVE TRYED TO SEND A MESSAGE ABOUT THE HORRIBLE PAIN I HAVE DELT WITH GOING ON THIRTY YEARS ULNAR NERVE RIPPED FROM MY SPINAL CORD TO MY RIGHT ARM THIS WINTER HAS BEEN THE MOST HORRIBLE I EVER HAD FOR PAIN MY WHOLE LIVE HAS BEEN DISTROYED BECAUSE OF THE PAIN WOULD THIS HELP ME.

  228. Fibromyalgia is one of many symptoms of Mind Body Syndrome or TMS, as described by Dr. John Sarno. All of these “discoveries” about the physical source for the pain do not negate the fact that the brain controls the physical. We can not feel without the brain. This does not mean that the pain is “all in the mind”! They are real physical sensations. However, the cause is not due to some physical deficiency but due to the brain choosing to send pain signals, usually for psychological reasons.

    1. You are absolutely right. Just finished a year in Pain Neuroscience. There is no singular cause to chronic pain syndromes like Fibromyalgia.

    2. This could be said for any pain, the brain controls it all. If I cut my hand, the nerves tell the brain and the brain makes you “feel” the pain.

  229. “They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunt.
    “…we had evidences that the blood vessel endings could also contribute to our conscious sense of touch”

    What? An arteriole-venule shunt is an abnormal connection between a vein and an artery which has absolutely nothing to do with nerves. There are no “blood vessel endings”. Blood vessels are in a continuous circuit to distribute blood – no “endings”.

  230. I am really happy they did progress in fibromyalgia research. As soon as we understand the biological underpinning of a disease we are happy it is not a psychological mistery anymore and call it a “real disorder”. This is stigmatising towards psychiatric disorders. We should take everyone serious if he has pain no matter if we allready undersood the biological underpinnings or not. I am a psychologist and would never tell my patients they are crazy if they suffer pain which is not (yet) explainable by biological causes, but trying to find ways to cope with the pain. I am shure in some years we will have more understanding of biological underpinnings of manys psychiatric disorders. And then we wont consider these disorders as psychiatric disorders anymore but will still keep stigmatizing those people suffering of disoreders where we have not found thebiological underpinnings yet.

  231. Jackie Waite 48 iv been diagnosed with Fibromyalgia my Arthirities Dr has put me on Lyrica and now taking 300 ml of Lyrca twice a day. Find it does help with pain. I take Cymboltan. too 60 mg as well as mobic, I take Calcium and Magnesium to as wel as Mobic. Last week hit a bad week. I hate the doggie brain the most I am so excited that be a cure.

  232. Glad to know they are making progress. Sure hope they’ll come up with a treatment that Medicaid will pay for, unlike so many of the treatments that used to work for me, that are now disallowed… Thanks a lot Obama.

  233. I’m 68 y.o. and I can’t remember any days without pain. So I think I’ve developed a way of life and coped with pain.Now I have better days then others. I still teach full time and love my profession. But lately I had acute pain in my face and head due to a problem in my
    cerebral vertebrae and my doctor prescribed some neurontin (pregabalin 50mg in the morning and 75mg at night). We had to work at the dosage and with the side effects. It took time but finally we solved that part of the pain. I missed one or two pills and believe me I’ve been fast aware that this little one was in control of the pain. That problem was solved but I still struggle with the rest of my body’s pain. I still have overwork muscles syndrome. I sleep with pain killers because I’m a workaholic and do not want to bother people around with my state. Voltaren became my best friend. But I know the side effects of it. When you are in pain you do not ask yourself any question about it.Life goes on and it is still beautiful. I keep myself informed of the new discovery in that field…. maybe something will come out before my end of my venture on this earth.

    1. For real help go to wwwfibromyalgiatreatment.com I am now 4yrs into the protocol and its working really well. Jan

  234. lyrica is a nerve med. It does work for fybro to a point. The weight gain and foggy days stink though. I have tried it it helps with the pain but gave me thrush everytime! With the side effects were not worth it for me. but it is def. worth a try as many people dont have those kinds of side effects!

  235. Not sure you have the right title for this work.

    Fibromyalgia Has been solved !

    with comments like
    Could contribute
    Thought to be due to
    could be a source
    the discovery may lead to

    To solve the mystery the researchers zeroed in the skin from the hand of one patient ,it did not say how many other patients were tested.

    With what I have read and how long these things take to come to fruition,I feel this is a little too early to be accepted .

  236. This original post was made on June 20th 2013……so i think this “latest cure” is a dead duck or we wouldn’t all still be suffering today as we are.

  237. My dr prescribed a medicine that is given to fibromyalgia patients for the severe migraines that I have been having. He wanted me to try it to see if it would help the nerves and muscles in my neck, I also have spinal stenosis in my neck. I just wondered if anyone had ever heard of or taken “Lyrica” as a migraine medicine.

  238. I have suffered with this illness for over 30 years now. I have gone through so many doctors and most of them would prescribe Valium for my instability, they said over and over it was all in my head.It , took me years to learn how to cope with this disease. I have learned to pace myself so I can do for myself at every level. I finally have a good doctor who has given me a life with a cocktail of medications that allowed me to go back to work after 19 years. I worked to mornings a week and it has brought me a quality of life to a certain degree. It has been a long battle and I am so happy that it is finally understood and there is now hope for a cure. To all the people whom are suffering from this I say hang in there!!!

    1. Hello. Would u be willing to share what meds R in the “cocktail” that has helped you? Maybe it could help others.

    2. Tell me what medicine u taken I will talk to my Dr to see if I can take ….god bless

      1. I am on day 3 of Savella. Nothing positive to report yet. Bit of nausea and GI upset. Also more weepy than usual..

  239. I completely understand why people feel put down by doctors. Over the past three months I have been diagnosed with vulvular cancer and have had two surgeries since that time. The docs couldn’t diagnose it because they were thinking it was all in my head! I started visiting doctors in 1997 – ended up firing my family doctor because he would actually argue with me and tell me that there was nothing wrong with me. I told him at one point that I had lived inside a my body for over 50 years and I k ow when there is something out of the ordinary going on. He still would not listen to me! For those of us who have diseases that cannot be seen from the outside life is very hard – we have the anxiety of the pain itself and the stress of people who are doubting what we are saying! I feel that I am very lucky to be alive – the doctors sure didn’t help until now! Now I have the best surgeon God has put on this earth!!

    1. Linda I have found that the treatment on web site: wwwfibromyalgiatreatment.com has worked for me God willing it will work for you too, and anyone else who wants to try it. Jan. LITL

  240. I hope this is true. I have had this since 1957 but my muscles in arms and legs the worst.

  241. My hands always bother me– this is great news- my heels have always bothered me also… wonder if there will be a simple easy to treatment without drugs to harm other parts of the body. Lots of time, I warm up my hands and feet and feel better.

  242. I have had ( Fibromyalgia ) now for over 18 years, and I wish they would come up with a cure ! It has been so painful and continues to get worse as time goes on. Nothing seems to help and more in did not start in my hands. Are these for sure facts?

  243. I would like to see more on this. Where are they at with a cure? My pain didn’t start in my hands, it was in my lower spine. My hands are fine.

    1. Mine started in my spine too when i hear it starts in the hands i think my hands are fine its getting harder to have a doctor each month to give you your meds alot of doctors now willnt take my ins and i had my last pain med doctor appt the first of may and i took morphine and oxys and if i want to see a doctor its going to cost me 300 a month so i have to go cold turkey on my meds now

  244. Hi after suffering Fibromyalgia for just over a year now I am delighted to know that this could be a cure for the future. I was in so much pain at the beginning of my illness that I was sure I had a stroke at first due to not having the ability and strength to move my upper body and some pain in the legs with my hands closing in on themselves also not able to open a shower or turn on the tap. When I first visited my Doctor I was surprised to be told that I was 1 the wrong age (57yrs) and wrong sex(male) and if I had been a women it would possible have been detected???? I was put on medication of Steroids along with tablets for my bones and also a tablet to take each day for my stomach and another tablet once a week for the stomach to counteract. I have had so many blood test in the last year and visits to hospitals it was very scary. I am now reducing the tablets 6 weekly and I hope to be free in the coming months of the medication if not I am happy to continue to take the table medication for life but hoping this news will stop al that in the future
    Look to the future guys .

  245. Nothing in this article provides a protocol for treatment. It only indicates causes, not remedies

    1. plus its 2 years since posted…looks like nothing came of this or we would have known by now

  246. I am s happy they are finally finding out what fibro is and how o treat it……

  247. The best we can say thus far about Rice’s findings is that these vascular anomalies are a physical feature of FM that may be common among patients.
    While we’re happy to see proof of any physical sign of FM, it’s a two-edged sword. Imagine you have a car accident, a rear-ender, and you develop FM (This is common, as I know from my law practice.).
    Now imagine you are tested for the presence of these venules in the hand.
    If you don’t have them, you’ll have a worse time proving you have FM than patients do today (and that’s bad enough, believe me).
    If you do have them, what will the judge think about your claim that a bump in the rear created these unusual vessels in your hands? Your lawyer will pull out a lot of hair, trying to find an expert who will vouch for this!
    Proving an accident triggered FM has always been a nightmare. Misunderstanding Rice’s findings could make that a lot worse.

  248. What’s the cure? Surgery? Yet more poisonous drugs?
    How does this explain why 4 out of 5 FMS patients are female?
    Why don’t people with these weird hands develop FMS earlier in life?
    How does excess blood flow in the hands translate into “hyperactivity in the brain” (first time I’ve heard of that FMS “symptom”!)?
    Does this mean that if your hands aren’t sore, you aren’t a fibromyalgic?
    What about the zillion other symptoms that fibromyalgics reliably complain of–how does “mismanaged blood flow” cause those?
    I’ve been dagnosed with FM since 1992 and completed a study of 100 women with FM that was postered at the world FM convention but I need to know a lot more before this makes any sense. This has to be one of the worst-written quasi-medical articles ever.

    1. Well said Eva. There are many unanswered questions in this article. I hope someone reads your informative and intelligent questions and is able to give some of the details you outlined. I hadn’t thought to ask any of the things you asked and am glad on behalf of myself and others like me that you did.

      1. Thanks for your comments and the Albany article, which is far more informative. It’s great that FM patients can finally feel vindicated; it’s amazing that it took 25 years to prove the disorder is real.

        (I am not calling FM a disease because I am skeptical that it is. My experience tells me it’s a set of symptoms that is becoming more and more common and is linked to endocrine disruption. That avenue can explain a lot of the observations of the past about FM, such as gender skew, variability of symptoms, and so on.)

        The next question is, how will this observation about the shunts in FM hands help heal the patient?

    2. ‘hyperactivity of the brain” I read as neurological overstimulation… which can happen with ANY chronic pain, whatever the cause. Whether the root cause of fibromyagia is in the brain or elsewhere, it is the brain that processes the sensation, and so the constant stimulation registers in and affects the brain. (whether that’s what the writer meant, I can’t say, but it’s what I got out of it.)

      Problems that have to do with circulation are OFTEN more prevalent among women, because our circulation is very different from men’s…. we are more prone to cold hands, likely for the same reason…. our circulation is core-centered, for the biological purpose of keeping babies alive. (I wonder if there is a link between fibromyalgia and blood pressure…. are people with HIGH BP less prone to it?)

      I was hoping that the article actually had some solutions, though understanding is at least a start. frustrating that it’s not MORE….

  249. So relieved to there maybe a cure,i have suffered with this for at least 20 yrs or more my friend and family thought it was in my head,the goverment would not do anything for me .I fell asleep driving my car to work glad no cars were coming in my direction as the car swirl i woke up.I was relieve nothing happen,I quit my job.Takeing many pills nothing to help me. Ida Close -Robb

  250. I too have tried everything my doctor has suggested, and we have found Lyrica has made it tolerable, what is there to do?

  251. THE MOST SENSIBLE ANSWER I HAVE EVER HEARD. FITS AND MEETS ALL THAT AILS ME. OVER 20 YEARS OF ON AGAIN OFF AGAIN SUFFERING. HAVE NEVER FALLEN FOR DRUG TREATMENT AS MY DOCTOR AND MYSELF THOUGHT IT WAS NOT WORTH IT. AFTER ALL THIS TIME AM NOT CONVINCED THAT IT IS JUST WEAR ,TARE, ARTHRITIS, OR MENTAL. DEFINITELY TAKES A TOLL ON YOUR MENTAL STATE. NOW? HOW DO WE SOLVE THIS?

    1. I am so glad to know that we now can prove that this pain is not in our head, it is very real. I have suffered more than 20 years with this terrible and debilitating pain. I will speak to my doctor at the pain control clinic to see what they think. Thank God for this breakthrough. Keep up the good work

  252. Yes, who can sleep? Who can exercise? I try but some days, I can’t even put my socks on. I know for a fact it’s not in my head, I can feel the pain, so it must be real. I don’t like being in bed a lot, but I don’t have much choice.
    Yes please, I’ll take a cure.
    Sleepless in Ottawa.

  253. Is this a flipping joke!! Get more Sleep, Get more exercise!! Wish I could sleep more, exercise as much as my body will allow until fatigue sets in and the pain stops me being active. At least one good thing has come about by this research “it’s Not in Our Heads” lol I could have told you that along with all fibro sufferers!

    1. TotAlly agree wi u its all good to say what we should do but the fail to understand we can’t because of fibro I keep getting offered depression tablets how bout trying to fix the problem instead of trying to find the quickest solution to get me out the surgery cause they have no answers

  254. Please take the time to read this.This may help you.I was diagnose with Fibromyalgia and Chronicle Fatique .I suffered for so many years .My life was called no life.There are days i just wanted to die,if it would not have been for my love one i am telling you i would not be living on this hearth today. I started taking this ,it is not a drug ,they say it’s just like food. It is call Marine Phytoplankton. They do sell it at the Pharmacist .Talk to your pharmacist about it or google it.You will be amaze of how many others got cured on it. It is the talk off all Natural Doctors and Pharmacist. My DR Peter Ford made me and my husband laught ,he said take this little green stuff that taste like seaweed and i will call you in 4 weeks to see how you are feeling.( just letting you know that i take mine in half a cup of pure orange juice so it is not bad to taste.) Then he look at me and said i may never need to see you again in my office. I looked at him and laugh and said in your dreams . I started the medication the 26 of Mach 2015 and this is what i have to say to all my Fibromyalgia and Chronicle Fatique friends. I noticed in the first week my hair getting a bit greasy for maybe a week now my hair looks more healthy then ever, then the color of my face was just went i was a kid nice rosy colors. I stated feeling more alive waking up in the morning singing and thinking of what could i do today ,making plan to get up and do something, the past 5 years of my life where the worst in bed, day and night with pain i can not describe .All my friends ask me what happened to me , they say wow your skin is so nice and you look so happy smiling all the time,one friend said did you win the jackpot ,i said yes it is not call money but i got my life back. I was on a lot of medication and vitamines as you know thats what they prescribe you, i stop taking all my vitamins and medication except 1. I am talking to you this morning at 7 30 in the morning and it not a beautiful day outside but it is a dam good morning for me, being happy with no pain.I can not wait to get out of the house to do something . Believe it i am crying this morning reading what i am posting for you ,Happy crying because of all the pain i suffered for so many years and with this little green stuff i have a life. I always read the post but i never replied but i really need to share this to tell my story. i remember all the doctors saying to me there is no cure, you just have to accept and live with the decease .It is my 8 th days being alive again,it does take time ,we are all different ,it took me 3 weeks some of you it can take longer on the Marine Phytoplankton but please do not give up on this ,i am telling you if it work for me it could work for you just be patient.The reason i stop a lot of my medication are that went i woke up in the morning i felt so good that i forgot to take my med for a couple a days went i started them again i felt like crap so sense then i stop taking them and i feel great on just taking this new Marine Phytoplankton. And do not fool yourself it is not because i stop my medication that i am feeling better i try stopping them before and i was crashing ,more pain and more sleep so yes it if for sure this new Marine Phytoplankton. If you read on the Marine Phytoplankton it is for a lot of illness not just for Fibromyalgia and Chronique fatique,what do you have to lose it is not a drug just a food that come from the ocean. Have a great day i know i am finally getting one,i am calling my very good friend Monique and i am going to enjoy my day out of my cage name the bed. Thanks for taking the time to read this ,i hope this can help someone in need .Get your life back. (:

  255. This is very exciting news for me, I hope a cure is found soon. I was diagnosed in 1998,and have continued to be my quadriplegic husband’s main carer. At times it has been a real struggle for me to continue. Hopefully,although I’m 64yrs, Icould have a few pain free years before I kick the bucket, it would be bliss to be pain-free

  256. this is wonderful news ,my questions are ,is this going to be available in canada ,iam very interested in the out come and any new meds to combat this painful life, i was diag in 2004, iam 52 not one single day goes by that i dont feel pain ,iam tired all day all night ,i work five days a week as a home care house keeper ,very phi work , and iam ok doing that 8 hr aday ,its when i stop moving thats when the pain starts right away, my meds are lyrica , tylenel , iam ready for some thing stronger , iam ready to quiet my job ,

  257. Can we follow the outcome of this new discovery online somewhere….and hopeful treatments?

  258. Now I am wondering if the chronic pain that I have been in for years and years is actually Fibromyalgia.

  259. Oh yes, I’ve heard all the “in your head” stories and had every imaginable and painful test they could think of for about 50 years. One doctor even told me I had “the suburban wife syndrome,” which meant I was bored – yeah, right with home, trying to keep up with and organize activities/lives of two kids (3 if you count hubby), 3 dogs (two canine pregnancies), dance troupe member, etc., etc., etc. Bored, right. And all these years, I’ve wondered why my hands hurt so much. And still, I’m eagerly waiting for the cure – what’s the ETA?

  260. Oh please tell me about a cure ,,I have suffered so much ,and yes Drs tell ya it’s all in your head .leaving me wishing they got it ten times worst than me lol

  261. I coNor acted this disease via a viral infection in the brain. It left me severly disabled ( there are different levels) and on a DVLA life award. I was healed and came out of my wheelchair, gave all my benefits back and my life has completely changed. Nothing is impossible with God. Any new developments are welcome to those still suffering.

  262. Oh please I would love something for fibromyalgia please tell me what to get
    Thank you Rita x

  263. I’m trying Magnesium Dimalato and I’m having excellent results. No pain in the ENTIRE BODY.
    No fog… no muscle spasms…. no hip pain…. no joint pains…. nothing!!! And I’m sleeping lots better…. There is NONE side effect or contra indication.
    Only people on hemodialises can’t use it. Magnesium is the salt of life! Do your own research on internet, please….

    1. They don’t have a cure, Diane. They just said they finally determined what causes the pain, which is a big step in figuring out how to fix it.

      1. They have found parts of what has caused this. This information has been around for a couple of years now. I wish I could remember or had saved where I saw that they had found something they thought was the genetic marker that caused fibro, that one is pretty new. Keep up with the research as much as you can. But also look at general Chronic Pain management, Its a b*tch to do but you can make things somewhat easier.

    2. Diane their is treatment. Go to;- fibromyalgiatreatment.com and read the protocol if you can follow this strictly you can be much better as I have proved for the last 4 yrs. In good health JB

  264. I suffer with my C56 & C57 vertebrae and at times can be so painful that I cannot move. Prescription painkillers will not even take the edge away. I find taking1000 mg of Paracetamol and 400 mg of Ibuprofen relieves the pain more so than Codeine, Tramadol, Solpadol and many other pain killing medication.

    1. That amount of tylenol is probably killing your liver. Agreed with other commenters–our paranoia about “drug abuse” really only hurts chronic pain patients.

      1. If you are worried about your liver and the amount of drug use (a valid concern) talk to your Dr, ask them to run some tests.

  265. The DEA has gotten so strict about allowing doctors to treat patients with pills due to the pain pill epidemic that has gotten out of control. I live in a small town and since these new regulations from the DEA heroin has finally showed its presence. An a lot of doctors won’t treat patients from fear of getting in trouble. Some people that do need pain medication can’t get it and that is just wrong. Tylenol and Ibuprofren don’t treat chronic pain.

  266. MaryAnn, not sure what u meant re: having pain meds but not narcotics. I am in similar situation as u, my sympathies! My GP is kind and prescribes pain meds/narcotics …I try to get by on the # he writes for. I am thankful for him. Totally agree wth if we were dogs they’d. put us to sleep. Take care .

  267. Narcotics??? Had this disease for nearly 30 years. I lived normal life with pain meds. Thanks to the medical community that does the bidding of the DEA, I have found no doc that will prescribe narcotics for pain. I also have arthritis and numerous painful conditions. We have a PAIN disease. Why not treat it with things that work for the individual. If I were a dog they would be kind and put me down.

  268. The Author has misunderstood the scientific report. Just because the hand was tested, doesnt mean its just from the hand. They believe, but have yet to run a larger trial to verify, that a subset of FM sufferers can have as many as 10 times the normal amount of capillaries all over their body. This could be the overload of sensation that leads to the neurological changes now seen.

  269. I had to give up ALL fruit except bananas for another problem I have and the poly myalgia went away?.????? Certainly worth a try.

  270. Anita arnell, You are so right, they are so off track on this one i think.I have fibro and other disorders for 16 years, suffer horribly, if you get this message and want to know somwething that truley will help you(it’s a miricle-a God send for me) go to a group on facebook called Kratom(new and current users) read all the posts there, and consider kratom for fibro pain, help with sleep, deprpression and all the other nasty crap that goes with it…i hope you get this messagem cause this will help you

  271. Thats absurd,im not dr at all but a blood vessel in ones hand? Ok come on thats like sayin pms is from my pinky toe on my foot!!! Iv suffered with this crap for 17 yrs been on every med,had every test,percedure,done every excercise thats been invented. Im only 47yo,iv had onsomnia for yrs&iv slept full nights waking up whet i cnt move.iv got several bulging disc,arthiritis thru out my spine,in my hips,shoulders&hands.I hurt so bad that i dnt ent anyone to touch me,my skin hurts,joints,bones,everything. So this comin frm a blood vessel in my hand is so “IN THEIR HANDS! and another TRIAL&ERROR case for us patience that wil fall to be ther guinea pigs!! Just my opinion. Have a nice day. THANKS BUT NO THANKS,DOC! GODBLESS!

  272. It makes some sense to me. When I wake up in the morning I can hardly move my hands and as the day goes on when my hands feel better my body pain is not as bad. We will see what else come up with.

  273. Honestly this sounds like a bunch of scrap. They can’t come up with a real reason so they throw a bunch of stuff together and expect US to believe it because they have no other explanation for it. It’s just like saying “it’s all in your head.” Thank God that I have a doctor that listens and is helpful.

  274. I am also sceptical about this article but appreciate that fibromyalgia is ‘not in the head’ as somebody said to me just last week. This made me angry. She has no idea what it’s like to have fibromyalgia. A book I read recently on chronic fatigue syndrome which I also have as a result of Lupus was very helpful in that it promoted routine and exercise which Joan Ross also found helpful. I am trying to swim in naturally hot springs more often and walking more often which I think is helping me.

  275. I have fibro and have had it for many years. And this sounds like a bunch of hooky to me. There is a huge list of things fibro fighters live with every day, and i don’t for one minute think that it can be summed up so easily. For me I believe these experts don’t actually have fibro.

  276. Well this is weird as I also suffer from fybromyalgia & I have what looks like burst blood vessels on the palms of my hands that no doctors av seen can explain 5hay dnt know why I have them or what as caused it I would love to find out more information about this & would like to send u a photo of my hands but don’t know how to on this link

  277. I found this article very interesting as I am a fibromyalgia sufferer whom the Dr’s prescribed anti depressent etc. Meantime I heard from someone that if I took Magnesium and Zinc it would help . I have done this taking Ulitmag which has Zinc in it and Calmag which has Calcium in it and since then slowly the pain disappeared and I weaned myself off all the medication. I do walk as often as possible and can now climb stairs whereas before I could hardly step onto the curb. I also have been doing Pilates and Stretch excercises. Hope this is of help to someone.

  278. I read this last year same article doing the rounds but still no closer to finding relief

  279. IT IS JUST A MAGAZINE OR WHATEVER. NEVER MENTION WHO THE RESEARCHERS ARE! BUT THIS IS A WASTE OF TIME. GOOGLE WEBMD OR MAYO CLINIC OR ANOTHER UNIVERSITY MEDICAL SITE. NO ONE KNOWS NUTTIN 🙁

  280. There’s a reason doctors thought it was all in your head. Because most patients with fibromyalgia are women and the medical profession has never been good at believing women.

    1. Bingo! ‘Women’s’ diseases are at the bottom of the list because we live in a sexist society. Men don’t get diagnosed with ‘fibromyalgia’–they get diagnosed for pain, and treated for pain.

  281. I suffer this it happened to me after my mum died my doc has me on medication it doesn’t help the pain an tiredness is real bad wat else can I do

  282. Hey Cindy maybe your wording should be “A Cure”……NOT THE CURE. OR PERHAPS, ONE VERY EFFECTIVE TREATMENT HAS BEEN……. OBVIOUSLY YOU DON’T HAVE FIBRO…OR YOU WOULDN’T BE SO CALLOUS !

  283. What about all the people that get relief by floating and ignoring the pain? (Same premise as anxiety disease.) Not in your head at all; but the cure is actually in your head and your attitude.

  284. My fibro started from an injury that affected my shoulder and In turn affected my hand and arm then spread all over. Also by co Incidence I also had a personal crisis happen so all thoughts. Lent towards brainFor the cause. I think this could have some merit

  285. Source?
    Who publishes something that is health related without providing their sources???
    Besides it is wrong to announce that a mystery has been solved based on only one “unlocked” source.
    This is not journalism.

    1. AMEN. SO DISAPPPPOINTING REALLLEEE AND THIS PLACE IS OVER 2 YEARS OLD. I JUST LIKE READING WHAT OTHERS THINK. MOST DON’T KNOW THAT IT HAS BEEN ON THE NET FOR A LONG WHILE WITH NO REAL RESULTS.

  286. Google the relationship between chronic lyme disease symptoms and fibromyalgia

  287. I had a lot of fillings removed as well to rid the mercury. Because my immune system is so shot, most of my teeth abscessed and I had them all pulled and now wear dentures. Hard telling if removing the mercury helped or not.

  288. Since going gluten free and not eating foods containing high levels of mercury, such as certain fish and other sea foods, some of my FM symptoms decreased by 70%. Also some allergies has disappeared or lessened. I also had tooth containing mercury fillings extracted (12) as I could not afford to have the fillings removed. I can now use my hands like I have not done in years.

    1. I have just had ten fillings removed, some of which had been in place for sixty years. I am not feeling better yet, as It can take forty to fifty years for the body to get rid of it. Haven’t got that long, I am sure, so am chelating. First you take a challenge test of two tablets, and then three hours later, you take your urine. Then, it gets tested in various parts of the country. Then you go on chelation therapy. It is very hard to chelate the brain. The Mercury gets stuck in various organs of the body, so you must chelate.

  289. I just wish some would find an end to this debilitating problem, sleep would be great if you could get pain relief but it’s a vicious circle. Your dead tired but the pain keeps you awake as for exercise well who can exercise when your in that much pain and your limbs are so swollen that you can hardly move.3

  290. I have been diagnosed with fibromyalgia many years ago. I do not have pain in my hands; The only medication that works for me is Lyrica. I do not know what I would do without this medication
    ..

  291. WELL THIS IS NOT NEW AS U MIGHT THINK. BEEN ON THE NET FOR A FEW YEARS AND THERE HAVE BEEN NO, NONE, NADA UPDATES SO WHO KNOWS.? ;(

  292. I pray that this opens the door wide open to wisdom understanding and ultimately a cure for Fibromyalgia. Lord let it be so. Bring up medical teams to investigate this and produce life giving cures to all fibro suffers. May it not be put on the back burner nor something that the government fda or unbelieving doctors or pharmeceuticals would try to squelch before it is even considered a real possibility of an answer resulting into the cure. Yes & Amen.

  293. I had Stevens Johnson Sydrome 2 years ago and it is believed that this trauma to my immune system brought on fibromyalgia. I would like to know if this could be true?

  294. My mother suffered from fibro all throughout her adult life. She was never able to fulfill her dreams. Sometimes she says she’s lucky to be alive. It saddens me that there was no cure for this.

  295. WOW I JUST STARTED READING VERY INTERESTING. SOOOOOOOOO WHY DON’T DOCTORS KNOW MORE ABOUT THIS? SO UPSETTING. THANKS 4 SHARING 🙂

    1. Karen if we all share with our own Doctor we may just get an acceptance of this treatment.
      Wish you all success.

  296. Folks try reading “What Your Doctor may not tell you about Fibromyalgia” by Dr R Paul St. Amand, MD., & Claudia Craig Marek. On the web at. http://www.fibromyalgiatreatment.com
    I have been following this “protocol for 4 years now and I find it works, so don’t wait get reading. Wishing you better health.

  297. Ithink this is amazing,i have exreme pain in my hands as well as other parts of my body.Sometimes it feels like my thumbs are fractured,I was prescribed epilepsy drugs although i am not epileptic .I refused to take them,it is shocking really. But this is good news.

  298. I will be askin about this treatments wen I next go to c n my doc at the hospital I hope that here in the north east they know about this as it sounds great linda in Middlesbrough xx,

  299. Please read the book “The Brain’s Way of Healing”. I’m only on the third chapter and it is blowing me away about removing pain from your life.

  300. Chronic back pain for years that is made it difficult to do much of anything. I hope they find the answers for pain. Have already had several facet ablations done but they don’t last more than 9 mos to a year. It helps but doesn’t stop all the pain.

  301. queue facebook people who mention age old “remedies” that have been there all along!…. and …. GO!

  302. I think the feet as well as the hands should be tested for this too. I get swelling and pain on the soles of my feet just the same as I get on the palms of my hands.

  303. My Dr has made me feel like I was going mad they have even stopped my tablet for the second time in. Living with this pain every day and am finding it very difficult to stay working as I’m in so much pain may be they will give me them back and stop making me feel this way

  304. I am skeptical until a treatment is successfully formed from this knowledge. I have had excess pain since I was a child. Being tickled was fun but hurt at the same time and if I said something about it I was told I was too sensitive or being a brat. The first pain I remember was in my feet. So this break through needs to be something more before I will be excited.

  305. They need to understand WHY the patients have too many blood vessels. What did they eat/drink (diet pop, sugar, GMO’s), vaccines, etc., that could have caused too many blood vessels. You don’t just wake up one morning and have too many blood vessels.

  306. I’ve been diagnosed with Fibromyalgia since I was 15 nothing has worked and not holding my breathe for a cure

  307. Well it thats true Why does it come on in later life with most people and not there when you are younger?

  308. I have a theory that works. I have been able to help hundreds of people defeat fibromyalgia. Read my theory on Page 19 on my Free E Book. You will find it at http://www.saltt.com.au Click on the information tab, then Free E Book. Happy reading!
    Sharyn Cook

  309. I have watch my daughter suffer greatly, for 30 years. I knew it wasn’t in her head. So sad.

  310. I experienced the same indifference from Drs. But..what are we really to believe – this new study or the last one I read describing a large clinic in Phoenix, devoted entirely to Fibromyalgia. They are sure that it is caused by an infection somewhere else in your body, so how can it now be solved when they each think that they have the answer.
    I am puzzled.
    Shirley

  311. i was one of these people who got told it was all in my head and told to take the antidepression tablets and go away i am glad there have been a break through and now people who are not depressed wont be given tablets they dont need

  312. I’ve got the condition and suffer so badly with every day living, it’s a nightmare and no one underStands

  313. hi i was told in 1902 that i had fibrostic that’s what they called it back then & the doctor put me on pill’s & i had 3 young’s kid’s & workin & i couldn’t handle the pain & my husband could handle me so i gave up the pill’s & he rubbed all of my boby every day & night sometime’s he had to pull me up in the bednow i think i have it in my chest i’m shagged

  314. Phil, I am with you 100%! I am now 62 and had FMS for at least 25 years, along with other health issues. Over 5 years ago I was diagnosed with diabetes, and being obese and unhealthy I can’t say I was surprised, but unhappy all the same. After starting on the meds (taking my total to 12!) and quickly gaining about 25 more pounds and feeling worse than ever, I had a total melt down. I had seen “Forks Over Knives” in the past, and I knew it was time for me to act or face the consequences. I jumped in with both feet and totally turned my life around. Lo and behold, in less than a month my blood sugars were normal, and over the next year I not only lost over 150 lbs and got off all the meds, but my FMS symptoms reduced to nearly zero! Through my research and experience I’ve come to learn that we are meant to live close to nature, and when we do we will be healthier! I only eat what comes from the earth, no processed food, no animals or their products, nothing man-made at all, including free (taken from the food they belong in) oils, fats, sugars and flours, (unless I grind them myself from the whole grain, which I do rarely). Five years later, I feel better than I ever have, and never even have a cold! It wasn’t easy at first, but I can’t even begin to tell you how worth it it was, and how much I love it now! People stress over all these weird diets and eliminate this and that on the say so of some author or controlling lobby with an agenda and end goal of making $$$ and manipulating our ideas! Fads come and go, but nature has and always will be the basis for what we are all about! Man can never hope to top that! People want to hear fat is good and meat is healthy so they don’t want to believe the truth, but they need to wake up to the reality…they are sick and getting sicker!!! I challenge anyone to improve their health, and possibly their fibro, in just three weeks (though that usually takes longer) by taking the 21 day vegan kickstart! I have no affiliation, and they aren’t selling anything! http://pcrm.org/kickstartHome/
    Please stop believing the silly pseudo-science BS that sells books and products, and THINK! Do your own research from the REAL facts! I just want everyone to give it a fair try, you have nothing to lose and everything to gain!

  315. this article is too ‘far out there’ for me to believe it is valid. The only reference to specifics was Danish scientists without the name of the trial/lab institution, university or names of any scientists heading up the study. In 2012? the big discovery was a link to a type of virus also found with prostate cancer. That article had back-up sources to cross reference & covered by reliable well-known media sources. Causal links I’m aware of include trauma, food & chemical sensitivities and possible chronic Lyme Disease. Immune system over reactivity explains episodes of flu symptoms. Mood swings with black holes of depression for me are critical. I’ve been ill for 20 yrs. Treatments are a crap shoot from day to day and many not affordable.

  316. i find it weird there in absolutely no email address for anyone who can answer the questions we have. this site has been up waaaaaaaaay to long for someone IN THE KNOW NOT TO COMMENT. DESPERATE 🙁

  317. I would caution that, while this is a positive sign, there are too many ‘could’s and ‘may’s in the above paragraph for my liking yet. I’ll be watching hopefully for my wife, but in the meantime I do caution against running too far with this news – the research is ongoing, and science is a process of theory-test. Once this has been tested a lot more, I’ll be more excited.

    1. ACTUALLY I WOULD LIKE TO KNOW HOW MANY YEARS HAVE STUDIES BEEN GOING ON FOR FIBROMYALGIA? SEEMS NOT TTTOOO LONG. WHAT DOCTORS, CLINICS ETC ARE INVOLVED ANY IN NORTHER CALIFORNIA. MY EMAIL ADDRESS IS:

  318. I have had Fibromyalgia for over 20 years and am on Nsaids, Morphine, Anti-depressants and anti-seizure drugs. I would love to be cured but somehow believe this will never happen. Please prove me wrong. Currently living in Spain where I moved because I was house-bound in cold wet England. Heat certainly helps with mobility. If there is ever a trial started for cures, I would be very willing to take part and get off all these drugs.

  319. Ive got fibromyalgia and ivr found nearly all the women i know who have it hold the same blood type as myself which id A neg rhsD factor. Whys this and is it connected?

    1. Kim, I’m A neg. also, but I never thought fibro would be connected to blood types. I thought I got mine when I was around 14 and fell from a second story porch. The railing gave way. I always had my arms out of the covers at night and above my head. Weird, I know. After the fall I had to have my arms under covers.

      1. I’m O pos. I do think this condition has a lot to do with our spines and a flaw in the signals to our bodies. I have an old whiplash injury, endured a traumatic childhood and a rape at 18. I also find that smells are more intense to me. There are so many variables, but most of us have experienced a trauma..we tend to be animal lovers too.

  320. Both my hand pain was due to Carpal Tunnel in both hands… so I had surgery and they are all fixed! No more pain! I do, however, have Fibro pain all over but mainly down my spine and lower back.. and a bad case of Cognitive issues! I’m having a hard time understanding the connection between the hands and Fibro pain and cognitive issues.. ?

  321. I suffer with this disease but i dont have painful hands perse’. I have carpel tunnel tho. when I stopped eating sugar and gluten last year my pain stopped!

  322. I eliminated all sources of wheat from my diet and now months later, all symptoms of rheumatoid arthritis and nerve pain is gone.

  323. I was told by a highly-regarded rheumatologist in 1982 that fibromyalgia was the result of inadequate stage 4 sleep (deep sleep after REM). He was right. In my experience, when I get enough sleep, I do not have fibro, and when I can’t finish my sleep cycle, fibromyalgia hits me really hard. It’s one-to-one, cause and effect. I don’t know how that could be related to this blood-flow-regulating nerve ending thing, but maybe it is…

  324. OK WELL THEN NEXT YOUR GONNA SAY THAT CARPELL TUNNEL STARTS IN THE ANUS. WELL LET ME TELL YOU I HAVE BOTH WAS DIAGNOSED 18 YEARS AGO I DO NOT TAKE THE PAIN MEDS AS THEY WILL RENDER ME UNABLE TO WORK… I CHOOSE TO WORK AND NOT GIVE IN THERE TRUELY ARE
    DAYS THAT I WANT TO GIVE IN THEN I REMEMBER MY SONS AND KEEP GOING!!!!!!!

  325. Big Pharma will develope a drug that may ask the problem, sell it at a rediculous price and the problem will still not be solved. Proof in point is cancer treatment, how many billions have gone into the drug developement with still no cure….I think this still needs to be looked at further, as Fibro affects so many people each in different ways, it’s really become an umbrella term of sorts.

  326. I had ME/Chronic Fatigue Syndrome for 3 years. Couldn’t work or do anything; was in searing pain. Went back to training as a Clinical Hypnotherapist/ Psychotherapist; where I responded immediately to treatment. I’ve helped patients since (also with Fibromyalgia) to get back to full time work and are pain-free! if you want to know more please contact me at [email protected]

  327. I’ve had Fibro & Chronic Fatigue for17 years. This research is interesting but I’m not convinced at all. I do believe that blood vessels are involved which effect every part of your body,but my legs are worse than my hands . Maybe because my hands are smaller ? From the beginning though my hands have been very sensitive to touch ,cold mostly . My feet are also sensitive . Is this the same blood vessel problem ? I’d like to know to can a lack of something like magmesium effect your blood vessels ? Still not a one size fits all problem! I’ll keep searching thanks.

    1. Ellen, for sure the lack of magnesium would effect blood vessels and all cells! Not that this may be your only problem, but I can tell you for sure that the lack of circulation causing my tremendous stove pipe legs, frozen feet and lack of mobility in all extremities has been triggered by the lack of magnesium–and has greatly improved since the continued use of magnesium oil! Research blood vessels and magnesium for more answers!

  328. Congratulations on your continued health Phil you are very lucky,however, it does not always work.Having been meat free since 1982 you would think if your theory was correct regarding diet I would be well. Not so. I have arthritis as well as fibromyalgia and nothing seems to help me be pain free. I am interested in the hand theory as I have had problems with trigger fingers, pulled muscles, joint inflammation and carpel tunnel in both hands with no explanation as to why it has happened. I also have a friend with MS that was a gymnast and nutritionist and hers has advanced at an alarming rate and she now is in a wheel chair and in hospital permanently.

  329. I’m fibro free now!!! Seriously, and my arthritis is no longer confining me to my home!! MAGNESIUM OIL– honest to God– this is and has been my new lease on life! Check it out on Facebook under Magnesium Oil .. or any site that you can— just get on the oil and don’t look back!!!

  330. I have had lupus which is an autoimmune disease. Never had to take any medication except a muscle relaxer here and there over a 4 year period. I had my second son in July, 3 weeks later I became ill. It wasn’t my lupus they said it was fibromyalgia. I have lost 45 lbs after having my son and I’m still a walling pills left and right. So the ones who say lose weight and exercise are wrong. I’m battling two chronic illnesses. Losing weight is not helping.

  331. To Phil See – as a vegetarian of 30 years how do you therefore explain my fibromyalgia. I understand that diet can and does help but I also know it is not a cure.
    Regarding this article, I will wait and see what happens but I am not necessarily optimistic.

  332. I’m right beside Georgette. Let’s wait and see. I’ve read of this ‘cure’ before – it’s not brand-new, but I’ve seen no large-scale test results that would convince me the hands problem is the source of Fibro for all of us. I think Phil’s dietary approach is a good one, whether we’ve got Fibro or not, but is it the cure? Again, no test results of any significance have been reported.

    I’ve been very fortunate not to have encountered any doctor who has not taken Fibromyalgia seriously…and I’ve learned that there is a very fine line between this disease and Rheumatoid Arthritis, making it somewhat difficult to diagnose immediately. Perhaps there’s some connection between the two..don’t know, but if the hand problem is truly the basic cause, let us please see some useful data gleaned from large tests. It would be wonderful if a cure were found!!

  333. Fibromyalgia is one of many conditions that come from improper diet, e.g., too much animal protein (meat and dairy) ingested and processed foods in general. There is absolutely no conclusive, let alone renowned, evidence to support the “theory” of extra blood vessels “solving the mystery”. Having fought my disease, multiple sclerosis, very successfully with 0 meds (ever) and only my lowering my animal protein intake down to 5% or less per serving, has given me amazing results. If everyone did that, changed their diet to a mostly whole-foods and plant-based diet, there would be no Fibromyalgia, diverticulitis, diabetes, gross obesity, or heart disease, etc. The bottom line is “we are what we eat” so, people need to stop living to eat and instead eat to live. Eating smart. I was a musician when I was diagnosed MS and I played multiple instruments. That was in 2002. It’s now 2015, I am still a musician and I still play all the same instruments. The answer is a healthy diet and exercise. Period!

  334. mmmm excess blood vessels in the hands cause me my pain in my back and legs and a few other joints too nope not convinced sounds like to me another false mystery solved case to be able to sell new treatments and medications to the public just like they did when they put everybody on the autistic spectrum in one bracket regardless of how sever they where

  335. I’m cautiously optimistic….. but I’ve tried too many things already that cost me a fortune and didn’t end up working in the long run. I will take a wait and see approach with this before jumping in. The best thing I have found to manage my symptoms over the past 20 years is to be very careful with my diet (no sugar or starches definitely helps reduce the pain) and try to maintain moderate exercise such as walking on the treadmill. It can be difficult to stick to a strict diet but when the pain and fatigue is bad enough, I run back to restricting my diet and keep moving…… those have worked the best for me. I agree that having the doctors treat us the way they do has greatly added to the stress and depression that so often accompanies this condition. I hope they are really onto something with this discovery.

  336. Lactic acid doesn’t cause the feeling of fatigue and pain; that is caused by the degradation of myofibrils (fibers in muscle cells) by an enzyme that is activated when calcium is released and not reabsorbed in overused muscles.

  337. Don’t know where to start With this. So pleased there Might be some relief. Over 30 years since I told Consultant about severe pain in hands, arms, etc and he told me to go home and forget it. So glad people persisted in researching this. Still remindeD by excruciating pain daily.

  338. Myofascial Pain and Dysfunction is within muscles which collects damages over time that do not heal correctly. The muscles subsequently begins to act erratic and contract onto itself starting a kinda “auto-destruct sequence.” These sick muscles will continuously exert a tremendous amount of force into itself and surrounding structures which alters cellular and DNA structures. These forces lead to damages and will affect all metabolic function too.
    1. In the future, many more of these secondary distortions will be found in all tissues.
    2. Important! Secondary findings are not primary causes.
    3. Treating the resulting secondary problems will not yield a cure.
    4. The treatments for the primary cause of MFP&D is still the same as it was 60 years ago; using the entire spectrum of myofascial tissue release techniques with hands-on and needling options in a wellness recipe.

  339. Well, I’ve always known that its not all in my head. I know Me! Why would anyone make it up? Its very debilitating and no-one would chose to have this. It will be interesting to see if the new findings help.

  340. My doctor still won’t diagnose me and I’ve been suffering for the last three years and getting frustrated… As I have kids to be raising and want to be there with and for them and to turn down things like swimming or skating or going to the park because of the pain that I would be in…

  341. I can’t wait for a cure either. I was told fibro was what doctors said you had when they can’t figure out what’s wrong with you. Well I also suffer from RA. Which adds to the pain sensitivity.I just hope this helps with fibro.

  342. I am recently diagnosed with Fibro, though i have been suffering with extreme pain and other symptoms for about 3 years. i have been told many possibilities of the cause of my pain, including the fact that that its all in my head which was degrading. Some medical professionals believe there is no such thing as fibro of which i find unbelievable. I have been doing a lot of research since being given the news and still feel at a total loss at what i or my doctor should be doing. Reading this has given me some hope of a more effective treatment for the future and do hope that support and funding is given to research program’s. Its a wide spread illness that needs to be addressed and adapted to individual needs as from what i have read is very different for each Fibro sufferer.

  343. I have had FM for over 30 years ..everything said here by Evi Blueth is exactly my response, and would also like a link to the study….I do not believe in panaceas ,as Evi said it manifests differently in everyone. Yes the article surely lacks details….
    Would be nice though…… ……

  344. I have had FM for 30 years. Why should I believe that this is conclusively the cause of the disease. It manifests so differently in each person. I hope more exploration is done. It seems a bit too soon to announce and arrogant to make this a FACT. More exploration has to be done, and if the blood vessels in the hand are the cause, then what can be done? I find this article lacking a whole lot of details.

    1. Evi, do you have any specific additions to this article you would like to see?

      We appreciate your feedback, and if you can get me some specifics, I will do my best to address your concerns.

  345. Now hurry and find a way to rescue each person that suffers from this most aggravating pain!

  346. I have so many little blood vessels that have popped that started around same time I got this… I have gotten this weird blood vessel problem where they pop and swell during my fibro flairs and I always tried to ask if their was a connection… Hmmm….

  347. Those intrusively insistent pop ups make me wonder about the information I was there to read. Mark S.

    1. No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

  348. Very good information when you are able to read it in spite of those Spammy Popups that popup regardless. Now if I clicked on one or hovered over them that would be different.
    to bad.

    1. No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

  349. In November 2008, the California Board of Chiropractic Examiners accused Whitcomb of incompetence, gross negligence, and unprofessional conduct, based on his management of seven patients. The accusation states that he (a) administered excessive treatments, (b) failed to provide adequate structural examinations, (c) failed to develop treatment plans that were medically necessary, (d) failed to perform sufficiently detailed follow-up examinations to gauge patient progress, and (e) advertised with sensational statements that were intended to deceive the public. The number of neck manipulations ranged from 60 to 143 [6]. ….. http://www.chirobase.org/06DD/whitcomb.html

  350. Fibromyalgia stems from the axis and the skull becoming mis-aligned. My daughter HAD fibromyalgia and Dr Paul Whitcomb cured her.

  351. I do not understand the biochemical relationship between blood vessels and Fibro. Would you be able to elaborate. Thanks

  352. About time I hope and pray this it…my previous doctor refer me to see a psychologist because he believed it was all in my head..I also hope we find a cure for sjogren’s, and why one suffers from migraines everyday.

  353. Do some research on Lyme Disease if you have be diagnosed with Fibro. I think what they have found here is just one of the results of damage but at least they are doing something and it wont always be out fault.

  354. I have had fibromyalgia for over 10 years now and doctors made me feel like a malingering fraud I have thyroid problems as well and chronic arthritis. I hope that they find a cure because this illness has absolutely ruined my life with constant fatigue etc maybe the world is actually listening to us for a change a bit late for me at 65 but will help others in the future

    1. Sally
      Its never too late! Me too had life totally rearranged by this condition and same treatment by others, dont give up try everything thats out there and keep going. Ive decided to go totally unorthodox with my remedies and against gp advice, but sometimes what they dont offer is the best help. I researched a guy called Rick Simpson and his work. He doesnt sell anything but what he teaches folk to make for themselves has certainly helped me.
      Currently on iodine, accupuncture, spirulina and a bucketfull…..
      Go well and keep looking at each day as a gift!
      C

  355. Fibromyalgia also goes along with CFS I also found that Lyme causes Fibromyalgia. Along with thyroid issues, CFS, IBS, adrenal fatigue, sensitivity to heat and /or cold and the list goes on. There is no cure for fibromyalgia and in order to get well from Lyme we need doctors who will treat and the CDC to change guidelines otherwise people will forever live in this pain and not get well.

  356. I would be looking up about adrenal fatigue…this is a factor in chronic fatigue, fibromyalgia,etc….the adreals sit above the kidneys, if they become stressed, bang everything becomes out of whack and causes severe fatigue along with thryoid issues…lugols Iodine protocol is amazing for helping and eliminating these symptoms and bringing relief, eventually cure…read up on Dr. Brownsteins lugols iodine protocol

  357. There are no medical research references here and the “source” page on Womenshealth has been taken down. I am very skeptical!

  358. I suffer with fibromyalgia and have lost of pain, I was reading your email Paula and there you mentioned Lyrica.
    my son also told me to ask the doctor as he says it is very effective, i love to go for a walk but can only do 15 minutes at the most.

    1. My GP with a recommendation from our local Pain Clinic, put me on Lyrica some years ago, and it helped me manage my pain. Doesn’t remove, but it does help manage it more than anything else I have tried.

  359. I was diagnosed in 1979. I Was lucky enough to find a Doctor in 1981 who believed it was real. The Rheumatologist who diagnosed me said it, “was typical of the Type A personality woman, overachiever” Thank Goddess for Lyrica. It has taken the pain down so much. This makes so much sense. I am printing this and taking it to my current Primary Care MD. If you haven’t tried Lyrica it might work for you.

  360. I have been dealing with this for more than 20 yrs. I have fibromyalgia, chronic fatique, colitis, IBS, interstitial cystitis, restless leg syndrome, poor circulation, lots of nerve pain, had neck surgery, have more blushing disk, scoliosis, osteoporosis. And probably leaving something’s out. Oh always freezing. I wish I could get some relief b

  361. was diagnosed in 1989 w chronic fatigue and fibro. It was really terrible back then because many Drs thought, it was something to give a patient so they could kick back and relax and know they werent crazy…I went to a rheumatoid specialist and he was so nice and understood it better than anyone Ive ever been to. Its not just in your head! Its real. Live it and you will understand. i would love to see something that would help this.

  362. God help us all this IS truly the most painful REAL thing about 8 yrs ago I was diagnosed I had to be carried to the doc I was out of control pain so intense I could not walk craziest thing this doc knew what it was and had actually just started intensive research on fibro so many many diff drugs later and then stopping them all I still suffer so so so bad doc,s think I’m faking it can not get pain meds crying hysterically barely walk they won’t give me anything for relief then I start feeling like they think I’m a druggy or just want pain drugs and I’m just acting sometimes I do feel like I’m a druggy going in desperately asking for drugs or a big fat shot of pain killers right then and there!! Please let it be true they have found a cause and we can finally get some relief and have some kind of life finally
    Every night I stress out knowing I will be up most the night trying to rub the pain from my body so I can maybe get some sleep but all night I find the pressure points and rub hoping like crazy will help or relieve the pain just a little then I’m just exhausted in morning then the cycle starts all over again it’s pure he’ll please let it be true they found the cause and hope docs will be able to help us!!!!!! God bless u all and hang in there

  363. Fibro, along with Migraines and I.B.S, have now been “CONFIRMED” to be caused by Endo-Cannabinoid Deficiencies: http://www.ncbi.nlm.nih.gov/pubmed/24977967

    Clinical endocannabinoid deficiency (CECD) revisited: can this concept explain the therapeutic benefits of cannabis in migraine, fibromyalgia, irritable bowel syndrome and other treatment-resistant conditions?

    Smith SC, Wagner MS.

    Abstract

    OBJECTIVES: Ethan B. Russo’s paper of December 1, 2003 explored the concept of a clinical endocannabinoid deficiency (CECD) underlying the pathophysiology of migraine, fibromyalgia, irritable bowel syndrome and other functional conditions alleviated by clinical cannabis.

    METHODS: Available literature was reviewed, including searches via the National Library of medicine database and other sources.

    RESULTS: A review of the literature indicates that significant progress has been made since Dr. Ethan B. Russo’s landmark paper, just ten years ago (February 2, 2004). Investigation at that time suggested that cannabinoids can block spinal, peripheral and gastrointestional mechanisms that promote pain in headache, fibromyalgia, irritable bowel syndrome and muscle spasm.

    CONCLUSION: Subsequent research has ***confirmed*** that underlying endocannabinoid deficiencies indeed play a role in migraine, fibromyalgia, irritable bowel syndrome and a growing list of other medical conditions. Clinical experience is bearing this out. Further research and especially, clinical trials will further demonstrate the usefulness of medical cannabis. As legal barriers fall and scientific bias fades this will become more apparent.”

    1. I tend to think one can get the same benefits from other natural sources without the negative “side effects” that cannabis can cause. A more potent source of the chemical constituent that gives pain relief (beta-caryophellene) is a So. American balsa tree, and the product is called copaiba, or copal. It is potent, safe, legal, and reasonably priced. Just 2-5 drops of a therapeutic-grade oil makes for a powerful dose. Apply on the site of pain and rub in, or take in a capsule. I have had fibro for 25 years. This product has helped me greatly. https://www.youngliving.com/en_US/products/essential-oils/singles/copaiba-essential-oil

  364. I have been struggling with fibro for years and getting people to understand is very difficult as you look normal on the outside they think it is not as bad as it really is. Pain clinic have me on a cocktail of drugs everything from morphine to Gabapentin I some times wonder which is worse coping with the pain or being out of it with medication. I hope and pray that a real solution comes along soon then we may all get a quality of life

    1. Jan, I was on a similar cocktail and am completely off the drugs, and using natural sources now. Cedarwood essential oil in a diffuser by my bed gives me seven hours of sleep; copaiba, frankincense, wintergreen, and many other oils give me instant pain relief and energy that lasts for hours. You can re-apply every couple hours whenever you need for pain without overdose. It’s wonderful. Not trying to lurk here for personal profit, just sharing what has helped me. There are facebook support groups for fibros learning to use the oils. Go to facebook.com/ardengarden or purchase at https://beta.youngliving.com/vo/#/signup/start?site=US&sponsorid=1579733&enrollerid=1579733

  365. I have had Fibromyalia 4 many years. My dr told me that it was my muscles. Dr gave me medication which helped a.lot. Dr than re refer me to the pain clinic.where they gave me anaesthetic. It has been getting worse as the days go by ,but I manage for my family sake

  366. I just got pa!d $5689 w0rking off my lapt○p this week, d○ing easy and incredibly fun tasks from this ○ne cool site. It’s dead simple! Ideal for making a decent extra in-c○me; A must see site… http://bizreport300.tk

  367. Pain meds are a waste of time and money. Slow release Guaifenesin has worked wonders for me. I am more like I used to be, although of the pastI still have some very tired days and nights when I dont sleep so well. Pain is almost a thing.of the past.
    I stopped taking the medication for 5 weeks and was back to square one and couldnt move without pain, My brain was foggy I couldnt think straight. Walking, sleeping, standing and moving were crippling. I could’nt relax and felt exhausted and low, but within a week of restarting I restarted again. (would also add that through out the time I continued to take the medication from the GP, as I have to order Guai in from the USA and pay for it myself..Seratonin makes no difference at all or at lest very little.
    It will be great to if this finding leads to a cure or better medications, I suppose like most things it will take a few years of research and trials, but fingers crossed the end of the foggy tunnel is in sight. Sheila

  368. I have been treating fibro for the last 14 years. I know it is inherited. Trauma and stress play a big part in setting it off. I just try to keep moving because the sitting still is what hurts. Low doses of anti depressants helps a little, but is not a cure. I spent many dollars trying to get well before being diagnose.

  369. Donna,62
    I have had fibromyalgia for 5 years but all the Dr.’s made me feel like it was in my head. Now I have a Dr. that understands but won’t give me pain med. I have to go see a pain management Dr. first. I am hanging in there.

    1. Best of luck Donna. One person a few days ago wrote they take two capfuls of whiskey for their pain her md will not prescribe pain meds. Thankfully my GP is willing to prescribe. I had terrible time with md@ pain clinic. I hope u get some relief soon! Ruth

  370. hello in there—ive had fibromylgia for years.the only thing keeping me out of pain is whiskey. i take two caps full at a time till out of pain. never had a pain medicine as docters dont believe in it. i

  371. Reduced reaction to pain?!!!! I don’t understand that at all! If I stub a toe or bump a knee the pain is immediate & more painful than it should be & the pain lasts longer than it should. The pain is excruciating. I’ve had symptoms of Fibro since I was a child & it became “full blown” in 2003. I am 48 now. My mother had it, my sister has it & so do both of my brothers. My neighbor has it, 2 women I worked with in the late 90’s had it, a former neighbor had it. I have met many people who have it or know someone who has it. My sister is now going through the horrible raw stabbing pain in the lower back/sacral area that leaves you breathless & puking & unable to move. The pain moves into the hip joint like a hot dagger stabbing you & down the buttock & leg all the way to the little toe. I experienced this same type of pain for years, so I know what she is feeling. Except, here’s a real kicker- her husband has chronic progressive MS & he is a quadriplegic in a wheelchair. She has to do EVERYTHING for him. The pulling of this 250 pound man up from a laying down position to sitting position & getting the lift harness around him & pumping the lift up & moving him onto the toilet & off the toilet & into the shower chair & back into lift & then back onto his back on the bed to dress him & rolling him around during the dressing process & pulling him back up to sitting position to get the harness back around him so she can lift him into the wheelchair is killing her. Then she has to do this again at night. To top that off – he is a real ahole! He always has been but he is losing his mental faculties & is driving her nuts. They cannot afford to get help or put him in a nursing home. She can’t work outside the home. She has been his fulltime caregiver for the last 11 years. He doesn’t understand or believe that Fibro is real, so that makes her feel terrible. I too have had doctors, my husband & others tell me that it is all in my head. I’m telling them all now, no it is not all in my head! This is real & it is horrible. It is not just pain either. There is the debilitating weakness & fatigue, bladder problems, intestinal problems, headaches, a strange feeling of having swollen toes, feet, hands & teeth. Teeth, you say? Yep, that’s a really weird sensation. There are many other symptoms I have not listed. Please, someone in science take this debilitating disorder seriously & help the millions of suffers of fibromyalgia.

  372. I feel for both of you. I’m 43 and have suffered for years from Fibro/depression/fatigue. Just tonight I was mourning not being more involved with my children, who are now 17 and 20. I was to busy trying to find an excuse to go lie down. I promised we’d “play that game” or “watch that movie,” etv, tomorrow. My guilt is monumental.

    My boyfriend, of 2 years, knows very little of the disease. Because of the negative connotation I’ve been ashamed to talk about it. I always thought women with Fibro were hypocondriacs or weak, so I’ve tried to hide it. Jj

  373. I have suffered with fibromyalgia for yrs. I was a ball room dancer. very active , ate properly and looked after myself..Now I am on pain meds ,anti depressants(wrong kind as I do NOT feel less depressed ) My life has changed I do not feel like going anywhere .The pain has taken my life over..and the feeling of I do not give a damn anymore comes to mind more every day. I take injections,am dopey from the pain meds and because I do not have any broken bones my family cannot understand WHY???? am I always complaining about being in pain.

    1. Hey Carole, I HEAR you, different story( 67 yrs old, diag by rheumatologist 20+ yrs ago!TMJ for longer and daily bad, on a scale, headaches. 20 yrs ago diag. With MS and also cerebral aneurysms . Today I am gearin up to go find out about tooth implant. Every time I do anything my body pain is extra bad for 5 days or so. Reading what I wrote sounds unbelievable but sadly is true. It must be extra hard for u having had such a truly physical life filled with people.
      My husband thank god is a real trooper. He’s had to do so much. My friends have withered away except for a few cause I was always cancelling lunch or movie date…so depressed.
      You r not alone, there’s a bunch of us out here. Hang on. Ruth

  374. When I was first diagnosed, I was told it would never get worse but it would also never go away. Clearly by now, they know it CAN get worse. Somedays I hurt so bad, I just want to stay in bed. But I hurt just as much there as just getting up. People think you are making it up. The pain. Doctors have tried the low dosages of anti depressants, but I have bad reactions to those. Also a diabetic with arthritis. Hips and upper spine are getting thinner. After over 30 years if pain, it can get to you. Especially when you were active from the time your feet hit the floor to the time you laid your head down. Would truly love to wake with no pain again.

    1. Hi Jerry Ann, sorry to hear(read) about your experience living with chronic pain. I have a very similar situation and it is pretty lonely living this life. I had the poor luck of watching dr Phil give a lady with chronic illness (granted she was a kind of crazy gal) the ” you r being self indulgent and making a bad situation worse”. She was a nut job, but it made me feel so bad about not being able to do much and if I do something social or even have teeth cleaned , I am in extra body and head pain…
      Hope u have some good parts of today.
      Ruth

  375. I have Dupetryns’s contracture. would that have anything to do with it. It does not hurt but I have had two surgeries on one hand and the other is getting worse all the time. It runs in my amily. My father had it and so did my brother. I have had more problems than either of them.

  376. i suffer with fibromyalgia doctors told me it was all in my mind too,even before i was diagnoised in 2002 when i had visited i drew pictures to pin point the pain areas where it was painful,i was even admitted numreous of times to hospital, for blood test nothing was found even thought i had throat cancer cause i couldn’t swallow anything. When eventually i WAS thinking it all in my head i got really depressed, panicky, paronoid etc…the consultant examined me with exercise which were so painful it made me cry, i was given a leaflet which showed all where i pinpointed my pain all those years of not knowing,sometimes i don’t go to my gp incase am told its my fibromyalgia unless its a pain i don’t recognise as i’v learnt to detect different pains, i do try and eat a healthy diet as certain foods triggers somethinsg i eat. Its now 2014

  377. I am suffering from this fibromyalgia at list for 30 years, I hope they will come out with a cure. I have been told from doctors and even people close to me that the pain was in my head. I am 63 now and I have been suffering at list since I was 30 years at old. I am a walking burmeter I know excacly when the weather is going to change. At time in the morning I felt like someone has beat me up. I sincere hope that they find a cure and special for young people.

  378. Also, fibro is generally used by doctors as an umbrella term for aches they don’t understand. A fibro diagnosis is rarely a legit fibro diagnosis. I’ve seen patients with “fibromyalgia” as a diagnosis… but only trigger points were present. So be careful about what your doc tells you, a second opinion is always good. And maybe now the umbrella diagnosis of fibro for body aches will cease.

  379. I have been diagnosed in 2006 after my car accident , i was 3 and a half months pregnant at the time. i tied medications for this but i have gotten every system ut said on the package. so my specialist recommended meditation which i have been doing and i still do and it works awesome because it relaxes all the muscles ect. but the fatigue is what the big thing that bothers me no matter how much of it i get i need more. i have 5 kids and its hard at times to get sleep. i believe it is fibro that affects my moods also soooo i am so hoping this is a cure as i need my life back .

  380. Im new and also have fibromyalgia and rheumatoid arthritis I also was In a Car accident in 2011 Wich I also told my lawyer about I had nk ne of these issues before that car accident after about a year of being sick and not living I started taking sevalla and malozicam and tradable in the last two years I have quit taking all these medicines due to I feel much better now I try hard everyday to egnore the pains and aches and I get plenty of rest and that’s what keeps me going I think

    1. I’m so happy to hear somebody was able to make their way out of this nightmare. What helped you?

  381. I too suffered greatly with fibro. Pain fatigue brain fog ADD insomnia bad depression. So hope everyone gets the help they need. It’s hard to believe that things could be better

  382. Hi and God bless to you all. First time posting. Please allow me to share a short story, wondering if anyone else can relate. I was in a car accident in 2009. Was rear ended and at a stop, driver going 40mph. I hurt all over, for about a week. Afterwards I noticed other pains and did not go away, along with fatigue, diarrhea that started a few weeks after the car accident. Weak legs, brain fog, vision impairment, and the list goes on. I have told my attorney the accident brought this on. They keep telling me that it is something that you are born with and lies dorement. I think this is untrue but whom am I to say. I sent them a clip from the National Fibromyalgia website where it STATES, I could be caused by trauma to the body!
    Anyhoo, I also wanted to share, I have been diagnosed with arthritis a few years back and get it so bad in the knees that I cant walk. They gave me steroid pills that I took for two weeks. I felt so great, no pain from Fibro and arthritis for months! I took it in the spring and hope I can get a dose this winter to see if it works again.. as winter is so bad on both!

    1. What I have been told is that it develops in your body, generally due to some kind of abuse, but lays dormant until there is some kind of trauma. Mine was also triggered by a car accident. I was hit head-on by a woman who lost control on wet roads and crossed over into my lane. After a while, my hands started hurting and going numb. First, they tested me for Carpal Tunnel. That came back that I had it mildly in one hand, but not the other. Then they referred me to a Rheumatologist and he diagnosed my Fibro. He is the one who explained it to me and gave me some paperwork that also had the same information, plus more about some of the side effects which I was having, but didn’t realize it was related. Of course, now I suddenly get treated like I’m some kind of drug seeking pain pill addict, even though I hardly ever take my pain meds. I hope this story is right, and that they figure out a cure soon, because I would like nothing more than to have my life back!

  383. I was diagnosed with F M about 30 years ago. Finally had to stop working 5 years ago.
    No matter what I did the good days were fewer. They,ve tried everything medically possible.I could not take ati immflamatories. So I really hope that what they think is the answer is an the come up with some cure or better help. Atleast someone cares. Our government doesn’t seem to.It been along tough road an no income.

  384. I remember way back to when I was 3 or 4 and thinking, “I wonder why God made it so that it hurts when you have to pick up something from the floor.” I hurt always to bend over and pick something up. I also believed that everyone had pain and that was how the world turned. My family didn’t go to doctors often – very rare and you had to be half dead to go. My parents would never have considered my pain as real or even worth talking about. But I imagine I’ve had this fibro crap for all my life. It got dx when I begged for pain medicine – so humiliating that I couldn’t show them the pain. 🙁 I got sent to a pain center and they did some kind of spinal infusion – which did nothing. They gave me oxycontin. I took one dose and felt so bizarre and sick that I never took another. I kept telling them to just give me darvocet. It worked and the chances of addiction were lower. I don’t know. They gave it to me until they said it kills people. Isn’t it crazy that with all this so called drug research NO ONE can find something safe, non addictive and works to make you feel better? I guess there’s no profit in it. Now they have decided they know best about pain killers out now and insist on triplicate so you have to go in to your doctors office and be humiliated to stand at the counter in line for your rx. I’ve taken the stuff for over 15 years. That’s a long time. and my dignity is out the window because I need pain medicine. I hate hate hate this disease and would do most anything to get rid of it for everyone!!

    1. I sure hope you get the help you need, both physically and mentally! MD’s can be so ridiculously self-riotous! I think DO’s a better physicians (In case you don’t know, a DO is a Doctor of Osteopathy. They are permitted to do everything an MD can do, but their training is more of the muscular-skeletal systems than internal organs. I have always found them to be more understanding in areas of physical pain.. Good luck!

  385. Wow! Now I can relate to them saying it stems from your hand’s. Because every time I clean the house ,or do gardening etc etc. I’m down & out for a day @ least. I usually take antinflamatory drug’s & over the counter pain meds. I get very fatigued. & depressed afterwards. Please find a cure. I’m so tired of suffering. As well !

  386. I’m 54 years old. I was officially diagnosed by a Rheumatologist abt 20 years ago. But a few years back I was thinking about my childhood and my illnesses. I remembered I was sick a lot with low fevers, chronic stomach problems, joints hurt and more. Drs thought at first it was rheumatic fever, but they ruled that out. Finally frustrated, when I was about 10 they said all they could say was that I just had growing pains. Now I realize I was suffering with fibromyalgia at that age. So I’ve been suffering for at least 45 years with this “all in my head” disorder. I pray they find a cure soon.

  387. I have had it for 10 years. If this is a cause, it is only one. My Fibro flairs up badly if I intake artificial sweeteners, MSG and some additives and preservatives in foods. I tested my body with foods which took about 8 months total when first diagnosed. I can tell you with NO doubt that these items make my pain much worse. I have documented my journey and what makes my pain level higher or lower and will be glad to share my story.

    1. I, too, cannot eat anything the is not natural or organic. I have flare ups from foods with additives. It is expensive to eat healthy but I have to do it.

      1. Yep, me too. I take a supplement called Takesumi Supreme. It filters out the toxins from your blood & organs. It is a high grade bamboo charcoal. Just like charcoal is given when a poison is ingested. Now, don’t freak out at charcoal. It’s not like the charcoal that you use in a BBQ grill. It is all natural, no toxins of any sort. This gets rid of the “fibro fog”, food headaches & other allergic reactions from eating foods at restaurants or at other peoples homes that contain msg, dyes, preservatives etc… It cannot be taken within 2 hours of taking any prescription or OTC meds as it will filter them out as well. This stuff is great! If I indulge in takeout pizza & I get a headache & fibro fog, I take the Takesumi & within an hour the headache is gone. I eat as clean as I can though but sometimes I indulge in a treat. The organic & natural is more expensive but worth it. I definitely can tell when I have eaten “unclean” food. I feel like crap.

  388. I was diagnosed with F M in 1992 had tried to work with pain and fatigue till I could not do it anymore ,from then on it was Doctors Specialists Hospitals Shock Treatment Pills that made me worse and its all in your head ,I hope they can find a cure for everyone who has it but more for younger people so that they dont spend there life suffering this awful illness.

  389. I was diagnosed with FM 1992 had to quit work right away because I could not drag myself there anymore.Went threw hell after that doctors specailists hospital shock treatment I have learned to live with it and pillsI am in Canada.

  390. If you have not gone a gluten free diet you must, immediately. My health is 500 times better than it used to be. My fibromyalgia symptoms are not gone but have subsided dramatically. I’m not in pain everyday, I was able to get off of my anti-depressant, I clot now after a cut, I have more energy. It took 3 months for me to see the results but I have now been gluten free for 9 years and feel much better. Don’t tell me you can’t give up bread and then complain. DO IT!

  391. I have always felt like I’m being beaten with a baseball bat…continually! The pain and fatigue have become relentless the older I get. The weather changes have become more debilitating. I’m so tired of doctors telling me that it’s all in my head and I need to get through the pain by more exercise or go to support groups. How can you exercise if you have no energy? And how many support groups can you attend while listening to others complaining when I’m trying not to complain! I’m tired of being frustrated all the time because I can’t do what I know my body should be able to do. If this article is real and the treatment is true, then I’m all for it!

  392. I have often explained to people that the pain is like severe arthritis is to the joints FM is to the muscles. Pain is one thing but the fatigue is crippling as well. Even when I sleep I don’t get to REM. I get the best results from a mild muscle relaxer, something for pain, something to help me sleep and lots of vitamins. The article is encouraging.

  393. I was diagnosed with FM about 18 years ago and I have since had to stop working because of the pain and the unpredictability of my general health. I’ll be happy if they can find the cure or at least better treatment in time for me to be able to return to the workforce. I live in Canada and I am a very willing guinea pig.

  394. Hi my name is elizabeth i have had fibro for a long time i take gabapentin it and it does help slightly if there is a some one out there how needs a giney pig please let me know

  395. Aye get told av got a thirties in my hands neck back sides even my feet am pretty sure it’s fm take tramadol but it’s getting worse wish there was a cure xx

  396. anyone with a Fibromyalgia diagnosis may want to seek help from vascular surgeons, they can do a blood pressure cuff test that will reveal if the issue is actually a DIFFERENT FIBRO-“FMD-Fibromuscular Dysplasia,” mine showed I have only 40% blood flow in my arteries, they usually come up looking like a string of beads or rosary beads. I also have Reynauds, fingers turn red and white so far no Blue! another issue may be Ankylosing spondylitis, caused from Klebsiella infection then it get sin to bones causing all sorts of pains from neck to back and hoops, even knees and feet, literally ALL OVER! Lyme is another issue many with Fibromyalgia have that docs wont test for when they do and find some bands they DENY the patient proper care then give them a lot of imaging making them sicker…this happened to me for years

    word of caution is to watch what you allow to be put into your body by virtue of imaging studies. I have found FIBROSIS occurred within my exposures to Gadolinium contrast MRI’s for my 22+ years of undiagnosed Lyme. Check out the site http://www.gadoliniumtoxicity.com a very well researched site it is NTO just happening to those with kidney disease (Nephrogenic Systemic Fibrosis is the name of the disease process-the ONLY man-made disease there is!)

  397. I read this a year ago and yet im still suffering so I’m guessing it’s not important enough to do it within our lifetime

  398. At 66 yrs old I’ve had Fibro since before they gave it a name (back in my mid-20’s). After years of physicians telling me ‘nothing was wrong’ or ‘see a psychiatrist’ etc. a Rheumatologist sent me to a Dr. in St. Louis, MO (near my home) so he could examine me. Come to find out he was the physician who named the condition and he verified that I had it. I remember crying because FINALLY I wasn’t being told yet again that it was my imagination. He died many years ago and I can’t remember his name anymore. But he was such a kind man.

    The best explanation I’ve heard about the condition is that it resides in the soft liquid area between tendons and muscles. That made sense to me especially since any change in barometric pressure REALLY effects the condition! I admit I’m quite skeptical about this apparent ‘new discovery’. I guess time will tell if it’s correct or not. Until then I’ll continue on taking 600 mg Ibuprofen every morning to get me moving and a pain pill at night to help me sleep. Basically I just live with it. Don’t get me wrong though. I hope this IS the cause and that a cure will finally be found… Hope DOES ‘spring eternal’!

  399. More dumb idiots trying to say they got a cure. This crap will go nowhere just like all the other “We’ve figured it out finally’s”. Please…..

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  401. I was diagnosed 4 years ago, fibromyalgia, osteoarthritis, nerve damage in my arms and carpal tunnel.
    I exercise lightly but very regularly, I hardly touch beer. The biggest help has been a refusal to give in. I was medically retired from royal mail but have recently taken a part time job. It’s hard going but I won’t give in.
    If a cure is found, I’ll be ecstatic. Until then it’s melodically and trampoline for me. Sleep is hard, but I take it when I can get it!
    My joints ache, my muscles ache, my stomach hurts and my extremities tingle, but I’m fighting back, so can you!!

  402. Im having bad simpoms in my left hand point with my accupuncture treatments. It brused two months ago and i’ m having pain in my finger and thumb. Also, when she tune forked my damaged T11/12, a pain shot right up to that left hand point. Accupuncture has been helping my energy and sleep. Takes some time to peal the layers of fibro damage in this practice

  403. I have been diagnosed with fibromyalgia; arthritis; fused vertebrae and sclerosis of the pelvis, hip and lower back.

    When I first was having MRI scans etc. and wondering if I had fibromyalgia, as all the symptoms suggested, my line manager asked if I had had an unhappy childhood.

    I worked in education which is supposedly a caring vocation, however I felt as others seem to have done, that it was viewed as ‘all in my head’. It took a year to diagnose and because of the evidence of MRI scans and x-rays I received early retirement on ill health.

    I also have had a partial thyroidectomy, because of an overactive thyroid,(Graves Disease). As well as a bleeding condition called Von Willebrand’s Disease. I think the thyroid is definitely linked and wonder how many other sufferers of fibromyalgia have this?

    It is unfortunate that chronic pain is sometimes not visible. At the moment I take Gabapentin and Co-codamol for the pain and wonder if there is other treatment or suggestions which help.

    I used to walk long distances and loved gardening, however I now feel 78 instead of 58
    and just want to feel more in control of the pain.

    1. Me too Linda. I have a fused spine in my lower back. And I did have an awfully traumatic childhood. I have an appt with a chiropractor who understands injuries as I have an old whiplash injury, so I will put it on here if this helps me walk better. I want to give you all hope and less pain. By the way, I’m 63, look 45 but feel at least 80.

    2. I also had graves disease several years ago and had the radioactive iodine treatment. I have fibromyalgia too. I was told by the endocrinologist that once you get one disease that has a positive ANA factor its easy to get another. I am always borderline for rheumatoid arthritis. Found out i have scoliosis in my back. Just everyday in pain as you know is not fun but we keep on with hope. Take care and blessings.

  404. Yeah, doctors do seem to say things like, it’s all in your head, or I never heard of that (as if to dismiss you). The problem is that Doctors have huge egos and put themselves on a pedestal (right next to God). They are afraid to simply say, “I don’t know what is wrong with you”. They also receive huge pressure from the pharmaceuticals to sell pills. Else they miss out on their convention trips to Pago Pago. Advice to the patient: Don’t be afraid to tell your doctor his if full of you know what! Seriously!

  405. Before I finally got my diagnosis, and sometimes after, the doctors either didn’t know what was wrong, or when I mentioned I had depression………boom, we had a diagnosis. I was just depressed and all the pain and fatigue was a part of the depression. I knew better, but I couldn’t tell the doctors that or they got mad for questioning their diagnosis. It was a battle I fought for many years, until one doctor finally referred me to a Rheumatologist and within a few minutes with him, he diagnosed fibromyalgia, along with osteoarthritis. No wonder I was in pain. But, now it is still very bad, and I have nothing to take but Tylenol and that is a joke. It does nothing for me.
    .

  406. Each person is different… each need is different…my fibromyalgia is ruled in combination to degenerative disk’ and RA, osteoporosis… over coming cancer’ and this pain starts at the base of my skull & neck , where muscles pinch nerves, causing severe pain & headache.. muscle spasm’s that control everything simetrickly’ trigger point shot’s sometimes knock out pain instantly’ to certain nerves…I know we all have pressure points, and who ever said it is all in the hands , needs to live in a few different types of pain’ from Fibromyalgia… it is in the head’ and neck muscles, shoulder muscles …feels like your head is too heavy for your shoulder’s some days, and sleep is a joke, when you’re tossing every 20 minutes to another position because your bones & joints hurt from the position your in..ask some one who is not a pill pusher’ believes that God can still heal…

    1. Sooo true! In addition to mild scoliosis, arthritis and other disorders, My whiplash injury from 1979 has caused my body the most pain, My head has to to be supported by my shoulder muscles. I’m in constant pain, and my chiropractor says it’s akin to trying to balance a bowling ball on the tip of a pencil. This really does a work out on the shoulders, and the spine. No wonder I’m in pain 24/7.

    2. I have all of the exact same symptons as you…..have been bedfast for 2yyears…..i quit going to doctors…..some days i can barely move….i use a walker to go to bathroom….but struggle to get back into bed….i can only sleep one hour at a time and nap all day…my neck and shoulders are the most painfull….guess we are doomed to this life

      1. I have had fibromyalgia for many years and I find that the longer I stay in bed the worse my pain is. Your muscles atrophy the longer you don’t use them. Marge please get up and push yourself to move. A little at a time but keep going. Do stretching exercises with your muscles or yoga! Go back to see a doctor they have new ways of handling this. Pain meds as needed but activity is a must. Where do you live? Don’t give in to this you can change things.

    3. I am curious if you guys and gals would share what meds u take and also what meds help.
      I wondered if we are not “allowed” to mention names of meds.
      I recently added Flexeril to my meds and find it helps.

      1. Potential side effects of Flexeril:

        Common:

        Blurred vision
        dizziness or lightheadedness
        drowsiness
        dryness of mouth

        Less common:

        Bloated feeling or gas, indigestion, nausea or vomiting, or stomach cramps or pain
        constipation
        diarrhea
        excitement or nervousness
        frequent urination
        general feeling of discomfort or illness
        headache
        muscle twitching
        numbness, tingling, pain, or weakness in hands or feet
        pounding heartbeat
        problems in speaking
        trembling
        trouble in sleeping
        unpleasant taste or other taste changes
        unusual muscle weakness
        unusual tiredness

        Be sure to check the ‘interactions’ also. They can be profound.

        and click my name for the most likely cause of your Fibromybadback, err, I mean Fibromyalgia.

      2. Ruth I too take Flexeril and it does help when my pain gets worse. I don’t take it daily but as needed. Also Tramadol helps.

  407. If this is in the hands then what is the therapy for it? I get such pain in my hands and test done said i had carpal tunnel but the brace doesn’t relieve the pain and the pain goes up to my shoulders so how can that be carpal tunnel. I see the posts on qigong and cranialsacral but what else can i start with? I have a very understanding wonderful Muslim woman doctor who is working with me but my insurance doesn’t cover lyrica which was beginning to give me relief. I take herbal & vitamin supplements and even blended my own herbal tea which i have had some relief with. Now this news changes everything.

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    1. It doesn’t affect women more than men. Men simply don’t report it to there doctor because they’re too “manly” to have something they think only women get.

  409. Qigong and reflexology has given me my life back. So much better than any medication I had to take for fibromyalgia, although I still have to rely on them when going thru a rough patch.

    1. Yep, I have seen a combination of Qigong and CranioSacral therapy completely remove all symptoms of Fibromyalgia. The problem is that most people want a magic pill and will not try exercise or alternatives to allopathic medicine.

      1. CranioSacral therapy is AMAZING! I can’t say that loud enough! You have to be open to it, but it definately helps!

  410. Exercise really makes me worse, I can’t move very well due to a crumbling spine and the resulting surgery. I can’t bend and definitely can’t get back on a bike. Sleep medication makes me drowsy for 12 hours but I still only get a few hours sleep, morphine doesn’t help with the pain just makes me a space cadet. I get temporary paralysis from the waist down, some days only for a few minutes, the longest time was over 3 hours, exercise makes this worse as it creates more wear and tear and further damage to the nerve endings.

    1. Like I mentioned above on Gin’s post: I have seen a combination of Qigong and CranioSacral therapy completely remove all symptoms of Fibromyalgia.

  411. I have had fibromyalgia since my late twenties, I am now in my seventies. I was diagnosed at about 43 years of age and have struggled since. Bring on a cure I say.

  412. I was diagnosed w/FB at least 10 yrs. back…but once I got on a C-Pap machine after being diagnosed w/Sleep Apnea, and after a lot of prayer for me I don’t claim it anymore. I experience some stiffness but not the debilitating inability to move w/o pain or when someone would touch my body. Receiving quality sleep and being able to enter into my deepest sleep levels, I am healed of Fibromyalgia…and I don’t want it back.

  413. My FB is a side effect of Cushing’s Disease. It actually causes your body to create more blood vessels throughout the body, as it enlarges the body more blood vessels are needed. This causes more wide spread pain. I’m curious if they examined if these patients have excess blood vessels throughout their bodies, or if the hands are the sole cause?

    Exercise makes Cushing’s worse and aggravates symptoms. It’s the only disease I know of that you should avoid exercise. Those who recommend it for Cushing’s patients make things worse for them without knowing what they’re doing.

    Without narcotics I am bedridden and wheelchair bound. I wish that FB was my only source of pain so that if a cure is found I could benefit too. Unfortunately, in my case, it won’t make much of a difference. Cushing’s disease brought with it too many problems to solve. They say I’m permanently disabled and probably suffering from MSA too. How does Cushing’s Disease cause all this! ?

  414. I have been diagnosed with FB and RA about 5 years ago, being on numerous medication and chemo tablets I cope from day to day. At one stage I could hardly walk with pains in my hips and muscles, I started cycling and it was wow with the change in my body, it made me feel better about myself and my pain got less although sleepless nights are getting me down. I refuse to take anti depressants. I would love to know if ever there will be a cure for FB. My sympathy with all my fellow FB friends out there….don’t stop exercising, hydro therapy is wonderful. Stay positive and don’t give up.

  415. in 30 years since I was diagnosed with it they still are no step further……all kinds of fundraising for research for all kinds of illnesses and or dideases I never saw one for fibromyalgia…in the Netherlands you are still treated as being stupid and its all in your head…..it sux

    1. They talked some months ago about a blood test is becoming available this e=will cost alot of money people cant afford a= something like 700 or 800$. this in the states and god only knows when we would have
      it available here in Ireland.

  416. What are the tests needed to diagnose Fibromyalgia ? . I had blood tests a few years ago and my Dr said I don’t have it !!

    1. There really isn’t one said test. It’s actually a battery of tests to rule out other things such as RA and Lupus. They do include blood tests though. My doc actually even tested me for Celiac’s and did an exclusion diet to see if I was allergic to foods as well as sent me to specialists for their own battery of tests. Super exhausting and then they say, “We have rules out this, that and the other thing so we believe we can safely diagnose you with Fibromyalgia.”. I was told to eat better, exercise more and to get more sleep. I was out on anti-depressants for over a decade. They did nothing but put me in a fog.

    2. I have had fibromyalgia for 51years my diagnosis was done on the 21 pressure points all over the body

    1. Cure the symptoms, you’ve cured the condition. Here is a video you may be interested in. “You know who” may have a horrible bedside manner, but he’s correct on all other counts. Raise your hand if you enjoy living in pain every moment of every day..If not, then watch this wonderful doctor offer us the hope and cure we’ve been searching for.
      https://www.youtube.com/watch?v=jJeP4RneCu0

      1. I was diagnosed with fibromyalgia 3 months ago. I suffered from the symptoms for about 2 years. I am 52 years old. I am currently in Namibia. Where can I find out more and maybe get the help I need! Please!!!

  417. With three new comments posted within four minutes by two new users, both seeking medical advice and after considering the seething hatred for and failed attempts to discredit me so far, it occurred to me that it may be illegal to advise others even with a disclaimer no matter how noble your intentions are, how damn good your advice is, or how desperately some people need to read the truth instead of the latest line of commercially motivated propaganda.

    It occurred to be that I could be set up by those who desperately want me off this website. Possibly by those who stand to lose ad revenue, clients, or drug sale profits.

    From now on, I will simply suggest a click on my name. Soon, I will create a new page explaining how I transformed my life drastically ultimately becoming the most healthy and resilient person I have ever known. I will also explain how I saved one life and significantly improved three more. Finally, I will explain my ‘suspicions’ regarding Fibro, RLS, and a number of ‘conditions’ which doctors have failed miserably to make any real progress on.

    What a pathetic state of affairs when the most bloated pig industry in the world can get away with drugging everyone while curing nothing and reaping multi-billion dollar profits.

  418. The symptoms hit me in my early. 3os. I found a book called what your doctors may not tell you about fibromyalgia. Dr st. Armand is the author. Get it. It explains how this condition operates at the cellular level. I take guaifenesin every day per the book. I am symptom free. My pressure points are gone. I sleep at night. No more fibrofog. This article misses the point.

    1. What exactly is guaifenesin? U see i,ve been put so many anti inflammatories and anti depressants but had absolutely no relief from pain whatsoever, only seem to cause all sorts of other problems. I WAS EVEN PUT ON THE GREAT SO CALLED BREAKTHROUGH DRUG FOR FB SUFFERERS FIRST ON IT’S ON AND THEN ALONGSIDE CYMBALTA AND NOCTAMID FOR SLEEP. AT THAT STAGE I WAS ON AT LEAST 12 TABS A DAY IF NEEDED HE SAID MAX TOP IT UP WITH PARACETAMOL. THERE WAS STILL NO PAIN RELIEF, THE NERVE PAIN SEEM TO GO CRAZY RIGHT AFTER INITIAL DOSAGE AND I WAS TOLD TO BE PATIENT BY MY DOC, WAS VERY TO DEAL WITH THE PAINS AT TIMES NEARLY DROVES ME UP THE WALLS NIGHT AND DAy. ONLY FOR BEING A SINGLE MOTHER TO A YOUNG SON, THERE WERE TIMES I JUST WOULD HAVE GLADLY WELCOMED DEATH SO I HAD TO WAS DESPERATE FOR RELIEF IN ORDER TO SAFEGUARD MY SON. IT WAS HE WHO SAVED ME. STILL NO CHANGES AFTER 2 YRS, I SAID TO MY DOC THIS BUT HE STILL INSISTED, I SAID I HAD ENOUGH,HE DIDN’T BELIEVE HE HAD ME ON THIS LONG, UNTIL HE WENT INTO MY FILES. THE END RESULT WITH TERRIBLE MUSH IN MY MUSCLES ‘FLACCIDITY’ FROM OVERUSE OF ANTI INFLAMES. AND BECAUSE MY UNDERLYING PROBLEM IS HYPERJOINT SYNDROME MY CONNECTIVE TISSUE WAS ALREADY WEAK,AND FAR WORSE NERVE, KIDNEYS AND STOMACH PROBLEMS TOO I ALSO NOTICE READING PROBLEMS AND TRY TO USE CAPS MOST OF THE TIME! SUFFERING ALL THE PAIN WAS BAD ENOUGH BUT WHEN YOU HAVE TO GO DOWN THIS ROAD IN THE HOPE OF RELIEF AND ONLY END UP WITH MORE PROBS. IT JUST KNOCKS THE STUFFING OUT OF YOU. CAN ONLY DESCRIBE IT LIKE BEN LOCKED IN A TORTURE CHAMBER AND THEN THEM THROWING AWAY THE KEY,… ALLOT OF PEOPLE I KNOW WITH HJS AND FB HAVE SIMILAR INTOLERANCES TO THE CHEMICALS IN DRUGS.THEREFORE I WONDER HOW YOU GOT THIS EASY CURE AND DID THEY MAYBE EVEN MISDIAGNOSE YOU

      Would be very interested in your answer please ssssssssssssssss! thanking u ,,,.

    2. WELL CAN’T COMMENT ON BOOK, BUT I HAVE SEEN THIS VIDEO SOME WEEKS AGO AND CAN RELATE TO EVERYTHING IN IT. MY SPINE AND NECK HAS SIMILAR DAMAGE AND MISALIGNMENT WHO HAD PULLED UP MY LEG SHORTER THAN THE OTHER DUE TO DISC DEGENERATION AND A SCOLIOSIS CURVATURE OF SPINE,ONE NECK DISC COLLAPSE AND AN EMPINCHMENTIN THE THE NERVE. THE REACTION TO PROCESSED FOOD AND ANYTHING THAT IS NOT NATURAL IN FOOD PRODUCTS, THE SAME.THE VIDEO DRAWS A VERY UNCANNY DESCRIPTION TO ALL THE SYMPTOMS I HAVE AND I FEEL WE ARE BEEN SLOWLY POISONED BETWEEN PROCESSED AND SPAYED FOODS AND ALSO USING DRUGS WITH CHEMICALS ADDED, AS ANYTHING UNNATURAL CAN’T REALLY CAN’T BE GOOD FOR US. I THINK MAYBE WE ALL HAVE TO OPEN OUR EYES MORE TO A MORE NATURAL ROUTE TO TRYING TO IN THE FIGHT AGAINST THIS FM AND OTHER CONDITIONS. MOTHER EARTH HAS GIVEN US SO MANY NATURAL GROWN HERBS AND EVEN WHAT WE REGARDS AS WEEDS, LIKE NETTLES. SO MORE MONEY SHOULD BE INVESTED IN THIS TYPE OF RESEARCH INSTEAD OF THE UNNATURAL CHEMICAL COMPOUNDS WE ARE STARTING HAVE BAD REACTION TOO. SOME PEOPLE ARE OK WITHOUT ANY IMMEDIATE REACTION BUT WHAT HARM COULD THEY BE DOING IN THE LONG TERM. IS MORE WORRYING, LYRICA PRODUCTION HAD BEEN WITHDRAWN AFTER THE DISCOVERY OF TUMORS ON THE MICES HEADS THAT THEY WERE BEEN RESEARCHED ON. I HAD FOUND OUT AT THE TIME I WAS BEEN PRESCRIBED IT IN SPAIN AND THAT WAS SCARY WOULD NEVER HAVE KNOWN A THING UNTIL I RESEARCHED FOR MY SELF. TO ME IF WE START TO DAMAGE THE VERY HUMAN CELLS WE, SHOULD BE TRYING TO PROTECT FROM FREE RADICALS AND THEN POISONOUS CHEMICALS, WE REALLY ARE ASKING FOR TROUBLE. I THINK A LOT OF DOCTORS HAVE COME ALONG WAY ON THIS AND MORE NO TO A HOLISTIC NATURAL APPROACH AS A COMPLIMENTARY MEDICINE AS I WAS NICELY SURPRISED TO KNOW I COULD AVAIL OF ACUPUNCTURE. THERE IS STILL MUCH WORK TO BE DONE! BEST OF LUCK TO ALL WHO SUFFER OUT THERE AND TO THE DOCTORS ALSO AND THE HOLISTIC WORLD, IN WORKING HAND IN HAND I BELIEVE ONE DAY A SOLUTION WILL BE FOUND, SORRY IF THIS VERY LONG BUT WE THE SUFFERERS KNOW ALL TO WELL THAT HARDLY ANY PART OF US THAT IT DOESN’T INCLUDING THE BRAIN WITH= ALL SORTS IF PAIN IN PLAY,ONE TRYING TO OUTDO THE OTHER,WE SO DESPERATELY NEED A LOT MORE RESEARCH { I’D GLADLY VOLUNTEER FOR THIS} ANY SUGGESTIONS OUT THERE ANYONE? AND MONEY TO GIVE PEOPLE SOME HOPE. PLEASE HELP,

  419. How do you get more sleep and do more exercise if you’re in so much pain that either of those options are impossible to achieve. ???

  420. I am 18 now, and have been struggling with Fibromyalgia for about just over 4 years now.. It has been a very rough road, and have gone through numerous so called ‘solution’ to my illness. I have found that everything I have been prescribed and tried only reduces the symptoms and makes life a bit more bearable.
    My mom is always on the look for new possibilities, so this was very helpful. I am currently on 120mg of Cymgem, which appears to be working so far. If anyone else has any suggestions that you have tried I would really appreciate it. I am in my Matrix year at the moment and am really trying to cope with this illness and my finals.. Any suggestions would be much appreciated! Thank you xx
    Kristina

      1. Watch your weight, improve the health of your back, and never take any pharmaceutical until you’re familiar with the potential side-effects.

        And of course, find a doctor you can trust within that miserable and corrupt industry and consult with him or her before taking my damn good advice.

  421. a chance some body will find a cure restless leg syndrum there is so many sufferes now thtre should be a cure

    1. RLS is caused by tickled spinal nerves. I know this because I’ve already cured two cases of it. If you’ve had the symptoms, consider your recent activities and try to avoid highly repetitive twisting motions of the lower back.

      The two cases I cured involved a woman doing too much laundry and a man doing too much shoveling.

      And never take any pharmaceutical until you are familiar with the side-effects.

      Of course, you must find a doctor you can trust within the miserable and corrupt healthcare industry and consult with him or her before taking my damn good advice.

  422. Thank you for this article!!! I was just diagnosed with Fibromyalgia; very helpful!!!

    1. I just watched and subscribed to the video. The Dr. could have been showing my spine and neck, that’s how similar mine was to the woman’s in the photo. It sure would be wonderful not to have to suffer anymore. He called it subluxation. Hit it right on.

  423. I just found a video produced by a chiropractor who is absolutely convinced that Fibromyalgia is essentially a back problem.

    Before you people accuse me, no I am not a chiropractor. I don’t need one because I have back health down to a science. Just watch the video and call your local chiropractor. A physical therapist may be able to help as well.

    The key to recovery is to improve the condition of your back.

    I can’t get the link to copy. Just go to Youtube and search the word Fibromyalgia. Look for the video with the diagram of a back shown. Or search Fibromyalgia chiropractor. You will probably find the same video or one like it.

    I am not a chiropractor. I’m just a blogger with strong opinions regarding health and anti-aging.

    Find the video and call your local chiropractor.

    1. He’s right. Yes, our bodies hurt like hell, that’s a real thing. But, this is the first time I have ever heard that Fibromyalgia is a symptom, not a medical condition. If it was, there would be a blood test for it, Others and myself have been spending years searching for validation when what we needed was the truth.

  424. But surely this is just a repeat of a report circulating ages ago, which at that time was said to be a couple of years old. I don’t think there’s anything new here (sadly)

  425. But your theory is entirely compatible with mine. After all, the impulses to those muscles are sent via the spinal cord. It seems to me that if those impulses are disturbed, especially on a regular basis, they could result in the ‘taut’ condition you refer to. They could effect the rate at which your body produces those chemicals or it’s need for them. So the way you sit or stand could be a huge factor regardless. Regular use of pain killers and/or other pharmaceuticals may interfere as well. Possibly in the same way.

    Whomever published that theory you refer to doesn’t want the underlying cause discovered. They want their particular layer considered for additional research. A layer subject to ‘treatment’ not prevention. My guess is that a drug maker is involved. They almost always are.

    By the way, it’s one hell of an interesting coincidence that you have scoliosis. That’s two admitted back problems on the same page.

  426. Stormfighter, I challenge you to explain, keeping in mind that there is no definitive ‘test’ for Fibromyalgia, how in the name of all that is logical it can be determined that babies are now being born with it. What? Do the doctors ask (in baby talk, of course) for newborns to describe their symptoms?

    If babies are now being born with something resembling Fibromyalgia, which I seriously doubt, it’s almost certainly because their idiot parents were on pharmaceuticals when they conceived or during pregnancy, which they ended up pumping right into the bloodstreams of their innocent babies during the critical stages of development.

    By the way, I do appreciate the fact that you rose above your contempt for me by admitting the possibility that I’m trying to help.

    Keep searching your lifestyle for possible contributory factors. I’m telling you this condition is avoidable like virtually all that Americans, IN PARTICULAR, suffer from.

      1. I stand by my theory regarding pinched or tickled spinal nerves. They are most likely, the primary contributory factor. I’ve already proven that they are the cause of Restless Leg Syndrome. However, the data you linked to lies in a ball park far too wide to be relevant here. After all, the word ‘Fibromyalgia’ doesn’t appear anywhere on that page. No implication whatsoever is made.

        1. You do understand that fibromyalgia can be compared to running a 5K marathon, but instead of relaxing, our muscles remain taut? This is the reality of just some of the pain and inflexibility endured. Some then turn to muscle relaxants for sleep, and pain medication to perform normally during the day.It is thought we have “lower levels of the muscle-cell chemicals phosphocreatine and adenosine triphosphate (ATP). Such chemicals regulate the level of calcium in muscle cells. Calcium is an important component in the muscles’ ability to contract and relax. If ATP levels are low, calcium is not “pushed back” into the cells, and the muscle remains contracted.” This makes more sense to me than how we sit or stand. I have scoliosis, so I don’t find sitting up straight to be comfortable in the least.

        2. Having a spinal Injury at neck level and lower back plus thoracic all from a mva. I have the symptoms for fibro. Is there any method you know of to help alleviate symptoms

          1. I’m not a doctor or a chiropractor. But I would recommend seeing a chiropractor or a physical therapist. Some of their techniques are shared.

            By the way, it was proven a few years back, after years of disbelief, that even severe disc injuries can be healed in many cases. But it takes months at the very least and its a bit tricky.

            Good luck.

          2. I was in a car accident which damaged my neck. My chiropractor calls it a military neck, because it has no curve. He described it as my head being a bowling ball trying to balance on the head of a pencil. He also said the condition could be repaired almost 100% He manipulated my neck, gave me exercises and they help tremendously. Of course, my insurance only pays for two visits a year and I need more than that. As for the pain of my arthritis and my fibromyalgia, I can live with that, what I find difficult to live with is the pain of inflexibility. Thankfully, opioids convince my muscles they’re not inflexible, as to be flexible we need to use our muscles. The opioids allow me to do that, especially at my job which is quite physical.

  427. I have been living with this for 20 years and any info i can get is awesome as long as it comes from a positive source .You know who … you are a dick .You presume that the gentleman was blaming his probs on fibro probs when IN FACT WHEN YOU SUFFER SEVERE PAIN ALL OVER YOUR BODY REGULARLY THE REST OF YOUR BODY SUFFERS AS WELL YOU IGNORANT PERSON.Have you ever heard of when one goes it all goes and itès just not a physical prob but it;s also a mental one when you live a life with no controll,where you can really plan nothing ahead of time because you hate to cancell yet again .And if you dont think that this man has sought propper help then by all means help but until then stay off the site.

    1. Hi there, I too was diagnosed with fibromyalgia about 25 yeats ago and it was very difficult to get supportive treatment. Many healthcare providers kind of blew it off as a mental issue which not only didn’t help the suffering, usually only managing to make us feel worse and irrevelent. I was fortunate, my fibro kind of outgrew itself, the pain just went away after about 3 years. Good luckt to you.

      1. I’m glad you recovered. But it didn’t just happen. Something significant about your lifestyle changed within that 3 years. Whatever it was, it probably resulted in a more healthy back.

        I am curious why you would visit a page like this 22 years later. I showed up specifically to give advice.

        As expected, as usual, it has not been taken seriously.

    2. The ‘proper help’ will come from a chiropractor, a physical therapist, or someone else with some sort of experience getting people in some sort of decent shape.

      Find a hotel with a pool, stay for three nights, use the pool each day, get a warm shower and a good rest on a quality mattress afterwards, and re-evaluate after three days.

      Or get a low stride elliptical. If your legs function, then you can use one. Period. If you refuse, then you are a lost cause.

      Because this is the litigation capital of the world, I must let you know to find a doctor you can trust (good luck) and consult with him or her before taking my damn good advice.

      1. You Know Who… Let me explain something, which will counter your “theory” around fibro. I am a 32 Y/O male who is active and in good shape. I eat healthy, exercise and have a sound mind. I do not smoke, nor do I consume allot of alcoholic beverages. When I was in my mid 20’s I started experiencing extreme pain and a shock sensation up my back, through my neck and into my arms. I was completely drained of all energy and found it hard to get out of bed in the morning to even function for an hour.

        To make a long story short, after dozens of blood tests, MRI’s, CT Scans etc. the diagnosis came back as fibro. I had some of the best doctors reviewing my files and consulted with many professionals from Mayo clinic. I went to a chiropractor regularly for treatment but in the end nothing helped.

        At the end of all my tests I was prescribed Lyrica. I have been taking Lyrica for about 1.5 years now and my ability to function a regular lifestyle has been restored.

        You comment “Keep searching your lifestyle for possible contributory factors. I’m telling you this condition is avoidable like virtually all that Americans, IN PARTICULAR, suffer from” is an ignorant, uneducated, selfish statement. Until you understand the TRUE facts about what someone suffering from Fibro is going through then I suggest you mind your own business. Nothing about my lifestyle is contributing to the pain and fatigue I suffer!!!

        1. The ‘extreme pain’ and ‘shock sensation’ up your back, through your neck and into your arms was almost certainly a pinched nerve (back problem). Something was suddenly altering the pain impulses your body sends to your brain. Sounds like a middle back injury. Those symptoms are dead ringers. If your doctors failed to address that damn near certainty FIRST AND FOREMOST, then like many doctors, they wanted to focus on the specific layers of your ‘condition’ more relevant to their own specific field so that they could ‘test’ and ‘treat’ you thereby making an ill-gotten profit. It’s called corruption and it’s become very common in commercial healthcare.

          ‘Dozens’ of tests including blood tests? For a man in his mid twenties who had “started experiencing” ‘extreme pain’ with ‘shock sensations’? Blood tests for symptoms most likely indicating a middle back injury?

          Your doctors were either crooks or morons. Another possibility is that you’re a liar so offended by me, because of my position on fibro and my ‘attitude’, which you people have become obsessed with, that you will resort to whipping up stories riddled with conflicting details in a desperate attempt to discredit me.

          Tell me. Which ‘test’ finally led to your diagnosis of ‘Fibromyalgia’. It’s a specific question. Be specific with your answer.

          By the way, an ‘MD’ would not have referred you to a chiropractor. They would have referred you to a physical therapist. It’s another fishy element of your story.

          Finally, Lyrica, a pharmaceutical with known side-effects including weight gain (thats right, it makes people fatter) and difficult concentrating, is prescribed on a ‘thought’. Not a clinically proven cause and effect. That sort of reckless medicine should be illegal.

          It’s funny how, in yet another conflicting detail, you seem to have avoided the most common side-effects.

          1. I have been watching your comments with interest and dismay. I don’t think you have Fibromyalgia, and don’t think you are a Doctor. I don’t even think you have been studying it for fifteen years as my husband and I have! Yet in quite a strident way, you pooh pooh everything anybody says. What absolute right have you to do this may I ask? You think you know everything, but you don’t. Nobody does, there is no cure, not yet, and not for certain, and I have been to many Doctors and Specialists, and they have all said the same.
            Fibromyalgia is a blanket term meaning pain in the muscles and stiffness. Mind you, if you had it, you would be looking at everything you could find on the Internet and in books and having many tests as I have, and trying many many things. I was diagnosed, after eight years, (which is pretty much the time it takes to get there), by a Rheumatologist who presses trigger points on the body, and if they are more painful than they should be, for pressure applied, along with other things such as allergies to many medications, little or no sleep, sensitivity to light and dark, loud noises, uncoordination, dizziness and lack of balance, digestive problems, IBS, the list goes on. A pretty good way of knowing whether one has Fibro, which is recognized now in so many countries by professionals.

            Before I was diagnosed, I went to a Neurologist, a Psychologist, a Psychiatrist, a Bio-energist, a Hypnotherapist. I had a brain scan as well as two spinal scans. According to them, I was healthy, but the Neurologist thought in time I would show more problems of Parkinson’s. All wrong! The Rheumatologist hit it on the head, but couldn’t give me anything much. Pur blokas to slow the mind/body connection down, as he said that the messages from my brain were getting confused as they went down to my limbs, therefore causing stress and shakiness and the uncoordination. A small dose of Trepiline for sleep, as anybody who doesn’t have deep Alpha sleep gets ill in one way or another. Also Anti-depressants in small doses, as if you had Fibro, and couldn’t walk like me, and had to crawl, you would sure feel bad, but then you wouldn’t know would you?
            I have been a hugely active person in my life, landscaping gardens, decorating, walking, hiking, doing stacks of admin, re-training at 48, taking stacks of exams, the lot. I have Scoliosis from when a child, and it was seen as round shoulders back then. Because of it, I take less oxygen into my body. Now at my age of 66 it is too late to do anything about. I also have had Amalgam fillings (10) from a child of six. Dentists don’t like using them now – poison in your body. I am presently having them out – a long expensive process. I think I am in a position to know more about this than you do, whatever you say.

            I think you should discontinue your posts, as people with Fibromyalgia are very sensitive, and have high anxiety levels. You will make them worse, not better. If you have any empathy at all, you will. However, I think as long as people reply, giving you oxygen, it will carry on from you. O.K. I have given you a reason to reply, but only because I know what I am talking about, I have had the scans, the examinations, all the blood tests and spent a fortune.

            I have exercised, know the complete exhaustion the following day, and lately have been to a Integrative practitioner who has given me extensive, blood, sputam and urine tests from expensive laboratories. I have eaten the right healthy foods, and have lost weight – 10 kilos, now 53 kilos, right for my height. I have critically low thryroid and also low good adrenaline. I would advise anybody who has Fibro to test for T3. It is simply not good enough to test for TSH. Also to test their Adrenals. Very, very important!

  428. If this is the main reason that’s great news because I’ve be dealing with this for 15 years and my life has be a living hell. I also have back,hip,neck and ankle problems and I never know when the fibromyalgia is going to flare up but when it does all hell breaks lose and my body just wont do what I want it to do.Simple things like walking gets difficult sleeping is non existent and the pain is unbearable. So if this is the beginning of treating fibromyalgia patients this is excellent news. And all these doctors that didn’t believe their patients and told them that the pain was all in their heads are quacks and I hope they get this ailment and I also hope they are not going to get treated for the amount of time that their patients had to deal with their pain.

    1. Another ‘fibro’ case with a back problem. Gee what a shock. Don’t you people make even the slightest attempt to think outside of your ‘poor little me’ ‘fibromyalgia’ boxes? How can you live with pain for 15 years and STILL be unaware that back problems alone have been known to cause pain all over the body? Look at a diagram sometime. You will see that most of your nerves run up your spine. So if those nerves are disturbed anywhere along the way, they can send pain signals right to your brain just as if they were being sent from another part of the body. You wouldn’t even know the difference. But it is well known within the medical and chiropractic fields. If you people are going to let yourself go and pretend as if Mother Nature is going to excuse your weight, inactivity, bad posture, bad form, bad work habits, bad sitting, resting, and sleeping habits, then you have nothing to complain about.

      See a chiropractor, take a few weeks to get in decent shape, then re-evaluate. If your chiropractor gives you a clean bill of back health and you STILL have the same degree of pain, then maybe you do have a legitimate condition. But you need to rule these factors out first.

      Regardless of which came first, the fact is that inactivity, poor flexibility, and/or bad form are literally enough to CAUSE pain all over your body.

      SEE A CHIROPRACTOR.

      1. You are obviously a chiropractor who is in desperate need of business, and with a bedside manner like that I can see why. Do not presume to think you know anything about everyone with fibro, I am not overweight, in fact under by every test, I excersise everyday, work fulltime + hours, have a family and a household to run, I have tried chiro, physo, naturopath, herbalist and from time to time conventional medication when the pain was truely unbearable. As for this “poor me” tgT again is a load of crap if you ask how many people with fibro tell people they have the condition it would be very few and a lot of the reason is due to small minded opionated pratts like yourself.
        I believed this thread was for those that wanted to he updated on any information regRding this study not to be made feel worse by trolls.

        1. I’m being censored again. Unable to post reply. Click my name and read it there.

          I’m not a kyropracter (I know but I’m being censored again) and I have NOTHING to gain. So find the courage, click my name, read my detailed reply, forget about my attitude and consider the possibility that I’m trying to help you.

          1. Giving theory upon theory isn’t really helpful. you don’t know everyone that has Fibro. You don’t know their stories, you don’t know what they’ve tried and hasn’t worked for them. and though your trying to help you don’t know everyone symptom’s. There’s even studies that babies are now being born with it. our bodies are made differently from normal people. Some people are born with Fibro and the symptom’s don’t kick in right away, it’s usually triggered and awaken at some point in their life. I was always sick as a kid and in eight grade I had one final sickness that activated my Fibro. it took three months to get an answer three days before my birthday. People who have Fibro don’t tell anyone outside their trust circle about their condition and even then they don’t even know. people are small minded and people with fibro just want to live their lives not under constant judgment from people who don’t understand. and people that have dealt with Fibro ( some) won’t be very open with accepting help outside the fibro community. But the one thing we need is some kind hope that there is a step toward a cure and we just need hope not theories that may or may not work.

  429. I wonder if those suffering with fibro would help answer another informal survey to see if this sheds light on the mystery of fibro:

    1) Do you have silver (amalgam) tooth fillings, and if so, how many and for how many years?

    2) How many vaccinations have you received, and do you get shots regularly?

    My theory is that those with fibro will have above average exposure to one or both of the above.

    1. Erik, good on you for thinking out of the box. I don’t know about your theory. But don’t expect much cooperation from these perfect little victims. Most of them just want to lay on the couch, take their meds, get fatter and tell each other how sick they are.

      I’ve known over a dozen women diagnosed with fibro. Only one of them has ever made any attempt at all to take care of herself. She is active. Unfortunately, she takes LOUSY care of her back. Always mixing cat food with one arm leaned over the counter or table slightly and always bending over to pick up cats, cat bowls, cat toys, cat blankets, cat furniture ect. Her form is TERRIBLE.

      To this day, I find it truly astonishing just how many people have no clue whatsoever about proper form, posture, or back health in general.

      Anyway, good luck researching your theory.

      1. Victims??? Moaning about their illness???? How dare you…do you have fibromyalgia…you have no clue with your theories…dont be so rude..I have no fillings….no vaccinations since I was a child…yes I believe we are born with it

    2. Erik, I may not be much help but the first question is no I don’t have silver fillings. I’ve never needed them and I’ve also heard silver fillings are actually bad for you. the second question I’ve had my acquired shots from birth to adult and I get the flu shot every year but I don’t get shots regularly. I have Fibro but not from the above reasons I was really sick from a viral infection and my symptom’s kicked in from a body that has never worked like it should for a normal person. And actually not everyone has bad posture it’s actually stiffness from fibro so we always need to be on the move we can’t always be proper or have good form actually sometimes it hurts to stand or sit in a proper form because of stiffness. I dance all the time and eat healthy for Hypoglycemia, I don’t take meds for now I take herbal vitamins. anyway I hope this helps. good luck with your theory

  430. article was added June of 2013. Really? def need to research origin..thought we had something to hand our hat on, but now, not so sure

  431. If your not seeking advice for problems from others on this comment thing. I suggest stfu everyone is entitled to their own opinion but don’t share it with others who do have Fibro cause we don’t want to hear it. it’s called got nothing nice to say keep it to yourself. I’m reading the comments to see if others can help me but all i’m actually reading is arguments that help no one. and with the comments and responds this is just uncomfortable to even seek help. everyone is crazy. and I need to worry about me. I am sorry for what each of you are going through but this shouldn’t be for making points or saying it’s not what your going through. okay yes not everyone has this problem in the article above but it’s not an article to bash on cause it’s not your one of your issues. everyone has different problems when it comes to Fibro but come on arguing doesn’t help anyone except make you angry. that’s all I wanted to say goodbye. BTW I will not be back to see responses to this. Cause and I’m sorry for anyone that goes through Fibro it sucks I know I go through it too I was thirteen it was a horrible 14th birthday gift but I don’t care for the responses. so again goodbye.

  432. Both of your entries suggest the possibility of a spinal issue. By the way, the very act of remaining in bed for any reason whatsoever legitimate or otherwise is known to cause back problems, stiffness, circulation problems, and pain all over the body.

  433. My critics need to read my entries more carefully and stop taking them so damn personally. Again, I’m not denying the concept of a mistake made by Mother Nature. It happens. Some of you may be innocent victims of circumstance. But we make mistakes a hell of a lot more often than Mother Nature does.

    Unless of course, any of you can explain why Mother Nature chose suddenly to transform most of America from healthy, slim, and relatively fit to fat, lethargic, and riddled with illness over the last 40 years. Or why she chose America in particular to hit a few hundred times with her ‘fat and sick’ stick.

    Explanations? Anyone?

    and don’t feed me some crap that I’m not trying to help. My attitude doesn’t come from hate. It comes from frustration. I don’t enjoy seeing so many people miserable and I’m not trying to hurt your feelings. I want people to be healthy, live long, and feel good. That includes every one of you.

    and if any of you have even the slightest doubts about wide-spread corruption or outright fraud within the healthcare industry then do some research. It’s been reported many times, proven many times, charged many times, and CONVICTED many times.

    I type the ugly truth.

  434. ‘My guess is that at least 9 out of 10 of those diagnosed with Fibromyalgia are to blame for their own conditions’ -really! that comment is repugnant. The pain that I am sufefering is due to cancer treatment and very real. My doctor is deciding whether to diagnose me with Fibromyalgia or chemotherapy induced periferal neuropathy. And no you are not trying to help sufferers with your comments-you know who

    1. Eleanor,
      Who are you to accuse people of causing their Fibromyalgia! It sounds like you think you are a know it all. How dare you make such a comment! Fibromyalgia is a real illness and a very painful one at that. Just because you have a Doctor that can’t make a proper diagnosis don’t go saying that fibromyalgia is named as a diagnosis for anything unknown. What would make you say people cause their fibromyalgia? Is it because some people are over weight? Is it because some people don’t look after themselves? If that is what you think then you don’t exercise your brain enough. You are very small minded and ignorant (as in not knowledgable). Weight has nothing to do with it. Neither does lack of exercise. Sure, something can trigger the on set. It could be an existing illness or it can appear by itself. Okay, there probably are some people out there that have abused their bodies and their health, but to say 9 out of 10 people is offensive. I will agree with you that the health care industry isn’t doing enough or being totally truthful to and for people. I have had Fibromyalgia for 15 years now. I don’t know why I got it but it sure wasn’t self inflicted! If you don’t have it, you have no idea what it does to you. It infuriates me that you are so uninformed and don’t seem to care to do some research to get your facts straight first before you shout your mouth off. Oh, by the way, I have Cancer as well. The side effects from the illness and the treatment are nowhere the same as the pain and all the other aspects of fibromyalgia.
      Just think before you insult people. Getting diagnosed with the disease is stressful, frustrating and a long process. To go years with pain and no diagnosis or treatment is very hard on a person. Now that we finally have a name and a treatment and a possible cause should not be slammed by you. It has been a long hard road for a lot of us.

      1. I don’t think you read what she wrote properly- she was quoting someone else and expressing disbelief at what they said- ‘9 out of 10 etc’ followed by – ” really!! “. Please take the time to read comments properly before you start abusing people.

        1. Everyone seems to have ADD these days.. Jan and Dottie, seems your attention failed you after Eleanor’s first line..

    2. Your so wrong. We don’t cause it I wouldn’t wish this on anyone. But someday when you can’t do for yourself remember your words.

  435. my comment is about finding a cure I hope this one soon but the lady that made the comment about Mother Nature in our own fault I wish you wouldn’t post anything she just seems irritable nasty and unkind.
    I can’t think of anything that I’ve done and I would like not to hurt so much.
    I will post my name its Nia Fowler I’m not a hit and run artists like that previous lady Or man.

  436. This is complete bollocks. An arterio-venous shunt is not a fibre at all, much less a nerve fibre, so obviously whoever wrote this knows nothing at all about human anatomy, much less fibromyalgia. Don’t believe a word of it, is my advice.

  437. In response to the following article:

    This article makes reference only to a single similarity among Fibromyalgia patients within the study group. An “excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts” within their hands.

    That’s it. The rest of the article is nothing but filler. ‘Breakthrough’ my a$$. Still, it’s worth addressing.

    My suspicion is that if true among a very large percentage of Fibromyalgia patients, again, we are not told one word about the size of the study group, then the ‘excess nerve fiber’ is the body’s way of trying to compensate for something being done to it by it’s owner. Perhaps, the ‘excess nerve fiber’ is created by the body in order to heighten sensitivity to injury because the owner had made a habit of either taking pain killers or ignoring pain all together. Or it could be created in response to a back injury resulting in a pinched spinal nerve. Or in response to a tickled spinal nerve due to excessive weight.

    In other words, I stand by my comment made earlier. Mother Nature isn’t perfect but we screw up a hell of a lot more often than she does. My guess is that at least 9 out of 10 of those diagnosed with Fibromyalgia are to blame for their own conditions.

    Renee may be one of the exceptions. Then again, she wasn’t part of the study group so we don’t know if she has the ‘arteriole-venule shunts’ within her hands. If she does, then perhaps she suffered an athletic injury which caused her body to produce the excess fiber. She may not even have the same condition. After all, like she points out, there isn’t a simple test to confirm it with any certainty.

    There are still too many unanswered questions. Some of which are acknowledged within the ‘filler’ of this article. Like I said, ‘breakthrough’ my a$$.

    Beware of articles like this one. The commercial healthcare industry has become notorious for hyping up so called ‘breakthroughs’ which are really nothing but tiny little hints of progress.

    They are even more notorious for ignoring the underlying causes of illness and curious ‘conditions’ like Fibromyalgia. This is no accident for their is no profit to be made by this industry in telling people how to avoid ending up in a doctor’s office to begin with.

    I take no pleasure in offending any of you. Like I said at the end of a detailed reply, which I tried multiple times to submit in various forms using the ‘Sxxxx’ ID, I am trying to help you.

    I am going to post that reply along with my original entry on a new blog page to be created within one hour of this entry. Click my name and check it out.

    1. My problem is I can’t take any pain meds I have a sensitive stomach. I would be hugging the toilet and still in pain. So I just indure the pain how ever long it last. I don’t think I’ll ever understand Fribromyalgia it can be sun shining out side and I’m bed ridden. It just hits me all the sudden. Sometimes bed ridden a week at a time. I do to much in my house cleaning one day and pay for it the next day. I’m very puzzeled as to what brings it on because you can bet if I knew I sure wouldn’t do it. And they say it not hiredtary but my girls are already starting to have the systems in their 30s and 40s. As a matter of fact I think I was misdiagnose in my 40s too. I sure wish they would find how to treat it. Linda Packer

    2. I do exercises when ever possible but I’ll be doing real good then it will hit me like a ton of bricks. Bed ridden agai. Then exercises again. Still go to the gym as much as possible. Treadmill, bike, elliptical. Round and round we go. Not to mention the fatigue. I trust in my God to help me indure. I thank him for every day because it could be life threatening.

      1. Both of your entries suggest the possibility of a spinal issue. The very act of remaining in bed for any reason whatsoever legitimate or otherwise is known to cause back problems, stiffness, circulation problems, and pain all over the body. Watch your form when you clean and exercise. It’s very important. Repetitive actions, one sided actions, and bad form have been known to cause back injuries. Because of nerves that run up your spine, some of the symptoms can be bizarre.

  438. One more thing. I believe I can give this piece of advice without being sued for it.

    Get a stiff bar installed somewhere in your home at the proper height that you can hang from safely. Watch your form and hang from that bar several times each day or whenever you feel like you need a good stretch. This will gently stretch your back and reduce pressure on discs and possibly reduce the effects of aggravated or tickled spinal nerves which are known to cause pain all over your body. If you don’t develop calluses on your hands, then you’re not hanging from that bar often enough. If you develop pain in your wrists specifically, you may be hanging too often. Our tendons need their rest on occasion.

    If you don’t have the strength to hang at all, even for a few seconds, then you are probably too heavy. If so, try to lose some weight. Start simple. If you want a treat or a snack, then deny yourself for 10 minutes. Then 20. Then 30 and so on. Don’t skip breakfast and don’t try to lose weight drastically or too quickly. Just try to get your food intake reasonable and your activity up enough to burn the excess calories. Always watch your form no matter what you do. Form is very important.

    Because America is the litigation capital of the world, I must also advise you to find a doctor you can trust (that’s the trick in today’s world of greed and corruption) and consult with that doctor before taking my advice.

    By the way, this entry was posted with a new ID and a new email address. The other is being censored so heavily that I am unable to post anything more than a shallow one or two liner with no mention whatsoever of the issue being discussed on this page.

  439. I am being censored heavily because my views are not sponsor friendly. It’s not the first time.

    Guardianlv, you just made a big mistake. Now, I will create a number of web pages ripping on your sponsors for their efforts to keep America fat, stupid, and in constant desire of little round or oval things to make their troubles go away. Starting with the big building where they go and the group that takes their money in exchange for coverage. I’m ripping on them starting today. If you continue to censor me, I will keep ripping on them.

    That is a solemn promise.

    Renee, good for you. You are evidently the exception to the rule. Perhaps Mother Nature is to blame in your case. Keep on fighting. But keep looking for contributory factors as well. Routine, posture, form, possible excess, furniture, shoes, car seat, mattress, diet, ect.

    and see a kyropracter (misspelled intentionally for I am being censored). It’s worth a try.

    Regarding the test you call for. Thats fine but they should test for the cause as well as the condition.

    Best wishes.

  440. Prolotherapy! Is an amazing treatment for pain. This was a last ditch effort for me after a car accident two years ago. Two years of continual pain. A new pain management doctor has tried the Prolotherapy treatment with me. This includes very small injections on the heads of nerve clusters and along the nerve paths in your limbs and back. Insurance companies do not recognize this therapy as a proven form of pain management. Therefore treatments are out of pocket and kind of costly. Usually runs $150 per limb and $200 for back but WORTH EVERY PENNY! I actually sat in his office and cried after back treatment because it was the first time in two years I had no pain! I have diminished pain in hips, legs, knees, and ankles. I would recommend this to anyone who lives with chronic pain.

  441. I don’t understand why patients who are told problems are all in their heads are not sent to treatment for having such thoughts in their heads. I was also told this after an unsuccessful SI Joint Fixation. I was left with nerve damage from my breasts down and awful pain from feeling like my back was being wrenched all the time. Every step I took pulled on my spine and twisted it. But I guess I made all that up while I was unconscious for my surgery. I think when Dr. say this they need to be put before the board to prove it instead of it being the universal “ooops i messed up but don’t tell” language.

  442. Oh dear. I used to be a very healthy individual who exercises and didn’t rely on any meds. Then one day I woke with pain, which turned out to be fibro. It is frustrating (if you let it be) to read comments from people who actually don’t know what they are talking about. You could know a million people with fibro but still not understand how it feels to not sleep much, feel exhausted and be in pain. For me, not only do I suffer every day (and yes I am now overweight mainly because of Gabapentin and not having the strength to do exercise – not to mention the psychological barrier because I know after I would be in even more pain) but I am also about to lose my job from too much time of sick. People like this gentleman think the answers are easy. They are not. I don’t mind working for a cure and to lose weight. But first you stop the inflammation and trapped nerves that are giving me excruciating pain at times, I’m struggling to write this but an determined to support my fellow sufferers, and then I can move one leg in front of the other without pain – oh unless my body decides to hurt on a new place today. People are ignorant (as in lack knowledge) and do not appreciate the level of pain we feel. Sir, if you stub your toe it will ease off. If I stub mine, I will feel pain all up the nerve and the pain I feel is 10 times what you feel because my pain receptors work differently to yours. My advice, change the type of research you do for a better understanding. Go for qualitative instead of statistical. You will see patterns. But they may not be what you expect. Learn more. Judge less.

  443. If you know all the answers we would not have to suffer. I am not overweight…do alot of walking each day and live on a healthy diet……but still have pain. By the way I use no medications.

  444. Have you ever thought that these patients are over weight and under exercise because they are in pain and exercise is painful for them so they gain weight it is a vicious cycle loosing weight when every movement hurts and you so tired you could sleep on a pin is not easy

  445. First of all I am not over weight,I do not run to the medicine cabinet,this person wriotic and does not have a clue.I hae never,ever been lazy,this disease changed my life bg time.I also have other diseases connected to fibro,don’t talk what you don’t know.I pray this person never has fibro,he will definetly have a better out look of it.Some times I can barely walk,I always hurt some where.Unless you;ve lived it you have no ideal.

  446. I’ve never accused Fibromyalgia patents of ‘imagining’ their symptoms. But I remain absolutely convinced that we as idiot hypochondriac Americans are screwing up our bodies by popping pills for every little ache, pain, jitter, worry, and sniffle. By doing so, we unnecessarily alter chemical balances, overwork certain organs and underwork others. Nerves and blood vessels included. We alter our body’s natural reactions to stimuli, including those which cause pain.

    I also remain convinced that nothing good comes from being overweight and/or inactive. Over the years, I’ve known at least a dozen people to complain of Fibromyalgia. Every single one of them to date, has been female, overweight, not particularly active except for one who had a number of bad habits related to posture and form and of course, on a number of medications to treat ordinary pain and the symptoms of being overweight and/or inactive.

    By total contrast, I’ve also known a number of people who take good care of their bodies, keep their weights reasonable, get some sort of daily exercise with good form and range of motion and keep their use of pharmaceuticals to an absolute minimum. They don’t run to the medicine cabinet at the first sign of a tummy ache, headache or backache.

    I’ve never known a single person of any age with the common sense and discipline to make a real effort and live responsibly to complain of Fibermyalgia. Not a single one.

    This is no coincidence.

    I’m not denying the concept of an occasional mistake made by Mother Nature. She isn’t perfect. But most of our health related issues are the result of our own mistakes.

    The vast overwhelming majority of Fibromyalgia patients don’t need anymore ‘treatment’. They need to get off the couch and get their weight down. They need to get those limbs moving through their full range of motion. They need to grow up and stop running to the medicine cabinet for every little ache, pain, worry, jitter, and sniffle. These are Mother Nature’s natural indicators. She isn’t telling you to run to the medicine cabinet. She is telling you to reevaluate and get it right. In other words, to take better care of yourself.

    This applies to at least 9 out of 10.

    Let the attacks commence. But first, read my Slort.

    1. Well think you have all the answers but you are far from the truth I rarely take medication am very active and still suffer fibro so your theories are not the case as in all people yes some may be over wieght and not active but that doesn’t mean the entire population of sufferers are and unless you have suffered it yourself I would keep ur sexist opinions to urself cos let me tell you it’s a terrible pain to suffer day in day out and I don’t take medication for it as i choose the side affects were as bad as the pain and I regularly go to the gym but when you have a flare up as Anna said there are days you can’t get up or walk

    2. Prayers are not necessary Slort, for me anyway.
      I don’t think the people replying to his comment really understand what he is saying. Yes it is harsh – but it’s true. The MAJORITY of people with FMS that I’ve come across are whining, lazy negative people – who will never make any good decisions about their health and stepping up to the plate….. Then I’ve met those with FMS (only one so far I must admit), who are truly remarkable humans – active and resilient, fighting spirit and a positive outlook on life even though they are in pain. I remember when I first got diagnosed with Fibromyalgia – I was 19 years old and half way through a personal trainers course. I was doing marathons/triathlons/ you name it, I did it. I didn’t even know what Fibro was, let alone spell it. I remember going along to a ‘support group’ for FMS… well well well… what a bunch of absolute sad sacks… some I’d even go as far as to say they were faking it, Me, someone who has just been hit with a diagnosis she can’t pronounce properly and I’m looking around this group thinking ‘what the hell have I been introduced too’. From that point on, I decided that FM wouldn’t rule my life, it wouldn’t change my views and it wouldn’t stop me. Unfortunately it did and, 11 years on it still does.. yes, there are days I cannot walk, there are days that I cannot hold up a book to read, but I be damned if I end up a bitter, fat old lady who has never really OWNED her own issues. I can’t wait until they can test for Fibro, bring it on I say! I think it will give me closure seeing the results and it will weed out all the ‘fakers’ I have seen out there. I still try and fight the Fibro, I still have days where I don’t believe I have it and I fight it’s very existence, but I know I still try my hardest and that’s one thing I would hate to lose. For me, it’s real, but I don’t feel the need to ‘convince’ anyone, I have nothing to hide and I truly would like to be in less pain – BUT, I do believe that you are right Slort, majority I’ve met…well, they don’t do themselves any favours anyway.

    3. omg, I lost tons of weight through exercise, I am on only medicine for my thyroid, I stay active, positive & nothing makes it go away, I work full time. I have suffered with fibro for over 15 years. I hope you never have to walk a mile in my shoes or anyone’s elses that suffers from this illness…You are an idiot, no other way to describe your ignorance to the illness that you know nothing about. Stick to something you understand & stop writing!!!

  447. So what happens to ALL the individuals on disability for this when there is a cure? Need to go to work?

  448. The woman that wrote this article didn’t even fully read the article she copied it from. She only pulled certain information out to come to her own conclusion.

  449. ok, so I suffered with lots of unexplained symptoms for a few years, and then eventually diagnosed with Fibro, after much prayer, was led to a Chiropractor who I have been going to for adjustments for the past six months. He believes in treating the cause of the problem and not the symptoms, I have more energy, have restful, refreshed sleep, hardly any pain, I can dance again. Think clearer. I have done more in the past six months than the past few years. I am happy again.

  450. There is some really great help out there if you know where to look. EFT matrix reimprinting can help people with this disease get through it as well as the right food and exercise. I know of people that don’t suffer no more after using EFT treatments. Hope this helps….also look into META Health that explains a lot of things that your local doctors don’t know or talk about. Namaste

  451. I have suffered with fybromialgia for ten years, I have taken every drug prescribed to me by my doctor, the drugs only succeeded in dulling my brain and the pain and fatigue continued.
    September 2013 I took myself off all medication and used ice and hot water bottle to the worse areas of pain, with in 12 weeks I felt mentally better and my pains although still there I felt more positive and able to manage my condition much better.
    6 weeks ago I watch a DID Jason Vale juicing, I started juicing and eating only none processed food ie : fruit, vegetables, nuts, dates figs, honey, fish, meat, and none fat fromance frie ( to make sauces for desserts and savoury ).
    My doctor arrange for me to attend a gym with a personal trainer,
    With in 3 days of being on the diet I felt much better, 6 weeks later l feel 100% better, the pains are reduced and also my fatigue is much less. The gym is slow going as I have no muscle tone in my body, but it’s early days, I’ve only been 2 weeks at the gym.
    I would just like to say too all fybromialgia patients please please try my methods, the coming off drugs is the hardest and you will need plenty of support but please believe me it will be worth it.
    I know I’m not cured but I feel the best I’ve felt in 10 years and feel nearly back to my normal self again

    Valerie Tunstall x

    [email protected]

    1. Thank is amazing to know Valeria,that we people take responsibility for our health.I been in disability for 2 and 1/2 years and, studied nutrition on my own.Three month ago, from my daughter I started my own company, taking this, plant – based, whole food vitamins and greens.Please everyone go to mu http://www.tapaswrapper.ca and click in shopping, produce and ingredients. I never felt this good, and I been taking some for over 2 months.
      Also let became I Yoga teacher, and I love my life.
      I wish everybody the best, Love and wisdom to be able to back it tru.
      With, love and respect Judita

    2. Thankyou for your information I will defo give this a go I have weaned myself off as much of the drugs as I could but still want to come off more so will try… When you. Say ice & heat which way please and time frame thankyou so much

  452. I just went thru a procedure called a rizotomy(don’t know how to spell it) This was very painful. Had it done on the 8th of Oct. and I’m in more pain. It feels like I just had it done,severe pain still. Called the doc at 8am ended up calling back at 1pm cuz I hadn’t heard from anybody. Got a live person she said” oh yea I have your message right here. The doc called me in some meds for inflamation . Boy I hope it works, pain meds , inflamation meds needles in my back at the pain clinic every month, this is also painful. I pray that they have Fibromyalgia figured out. Living in pain everyday all day is not a life anybody wants to live with

    1. Barbara, what did that procedure (rizotomy) involve…I mean what did they do to u? I hope u r feeling some improvement!

  453. No doctor ever thought “its all in your head”, no psychotherapist ever dismisses a clients mental health issues like that. To dismiss mental health issues with “its all in your head” is like dismissing physical illness by saying “its all in your body” – basically its beyond ignorant and shows no understanding of mental health. When an illness has no known causes after extensive testing, it is natural for doctors to suggest some type of mental illness or at least be open to the idea that underlying mental health issues may exist. To rule them out without evidence would be nonsense.

    1. Yes they do Dave, I was called a hypochondriac for years by my GP, and told by him I was making it up so to just get over it too when test after test (and I HATE tests) came back negative, (which I know is not the same as hypochondria as that is psychosomatic) till I got physio in ’02, she poked me for about 5 minutes and declared it was one of the worst cases of fibromyalgia she’d seen in a decade. She wrote the GP a strong note which I thoroughly enjoyed giving to him! ‘It’s all in your head’ is just as real as any other condition, most decent therapists and doctors now see that psychosomatic conditions (which I did not have) are just as valid.

    2. Sadly, Dave you are wrong. There are doctors who dismiss many conditions as being “all in the head”. One would like to think that those in the medical profession are more progressive and open minded but it is simply not true.
      How many western doctors won’t even entertain the idea of eastern medical remedies and discount them as voodoo medicine?
      Fibromyalgia is real. It is debilitating to those who suffer from it but many doctors don’t want to educate themselves on it because it an elusive condition and therefore time consuming. I’m happy to read about these hopeful advances.

      1. A lot of GP’s tend to do this I guess as they’re fairly over worked and want you out of their office as quickly as they can. Not condoning it, but I’m sure you have days at work where you do something half as well as you could. Everyone does it sometimes.

        In regards to the eastern medicine thing, there has been a lot of medical research into the matter, most of which has come up with little other than the placebo effect (which is a medically useful and effective treatment), some minor nutritional benefits, and charlatanism. Homeopathy for example, is complete garbage. There are a few with some merit, so researching yourself for suitability is always a good idea.

  454. A few of my family has always stop complaining about the cold and stop lying in also friends take the mickey of me for always feeling cold. Im also one of the lucky ones ive found horse riding (only road work no cantering or galloping) and found the motion really helped and now im pain free 80% anyway. Though when i do get cold especially my hands really hurt. But i am lucky.

  455. Let’s pray this is the solo root cause, with safe &effective treatments coming quickly to help relieve the suffering of millions of patients!!!

  456. this is brill news i hope something is now done about it . ive take medication for it and live with it and adapt my life to it coping with work ect its a terrible thing to have .

  457. Message to Charlotte who had the motorcycle accident, I hope you are ok! I am suffering pain in my shoulder and reoccurring stiff necks, I also suffer sharp needles in my hand and have oestoarthritis at the base of the same hand. I have had a back ache for 24yrs and now I am suffering hip pain and going for an x ray. I too ride a motorbike and sometime I could cry when I can’t cock my leg or use the clutch. I have been given pain relief that does nothing!! What is the best thing to do, I want to see my GP about these symptoms but I feel they send me away with pills and no explanation.. they always say it is old age.. I am 51

    1. You need to see a Rheumatologist as you may have more than just one pain condition. I was brushed off too and when I applied for SSDI their doctor tried to put me in positions my body just cannot do! He finally saw that I have scoliosis and referred me to a Dr. Swift, a Rheumatologist for diagnosing my fibro and mild RA. Dr. Swift treated me like porcelain and I will never forget his kindness.

    2. Fibro often comes about with a shock, stress or an accident, as happened in your case. I have had it for 14 years going on 15, and get little pain. I take just one anti depressant and Tripilene in the evening, to give me good sleep. I started with one tablet of Tripilene, really, the smallest dose, but now get away with just half. I sleep well, but wake late. Best to take it around 8.30 at night. Initially, in the evening, you might fall asleep in the chair.

      If you look on the Internet, on certain sites, you will see there are a myriad of symptoms, but who can tell really whether or not they could be side effects from the anti-depressant? Take a look at Molipaxin for instance, which helps you with sleep and is an anti depressant, and you will see that it can cause un-coordination, and dizziness, which is what I get now.

      Best that you go to a homoeopathic doctor, and find out through the medium of blood tests what exactly is wrong with you. Not just to find out that you have a blanket term of Fibro. My Doctor found out that my T3 (which is rarely tested by G.P’s unless you ask for it to be tested), was rock bottom, though my T4 and TSH were fine. Obviously, they were not converting. Also, my Adrenals were critically low, so that needs checking as well. Very often these things are quite common to people with Fibro.

      It has taken most people with Fibro a long time to get to the stage they are at, so it can’t be cured with a pill, but instead by finding the root cause and addressing it over quite some time. I have taken Cortisol tablets now for nine months, and I can see a bit of light at the end of the tunnel from time to time.
      I have spent a fortune of tablets, no holidays for us! A lot, I have had to discard. So, it is better that you go to an Integrative Practitioner, rather than a G.P. and find out through blood tests what is really wrong. They embrace all modes to get you well again. It started with me through my immune system going down and chronic stress after that. It can often start when one is going through the menopause when other hormones are low. I am 66 years old now, so you are not by any means old, but don’t waste your life getting worse, and rather have some decent tests now. By the way, I had my Cortisol tested by saliva, which is the best test, and my Thyroid tested via blood. Hope this might help you or somebody! This article by the way is pretty old now, I first saw it about a year ago, and have since heard nothing about extra blood vessels in the hands, or anything about further ‘cures’. You must understand that the drug companies are in it for huge profits, and prefer to put about there is no cure and to keep taking their drugs. If you are on anti depressants already, take it easy, don’t stop quickly, as you will get huge side effects. They have to be left off when you do, very gradually. Therefore pills are better than these see thru ‘bombs’.

  458. I would gladly be part of any studies to find a cure for this illness it has ruined my life and my career having to take early retirement and yes for years I was told it was all in my mind

  459. I have been like this for years. But I can say that I started investigating on my own and cannabis definitely helped me. Another I find that is helping me extremely well is Epson salts I bath in it and I take magnesium in tablet form as well. Nothing the doctors ever gave helped. I also was recently given ratilin and been on that for just over a month now. Still fatigued but not as bad. Overall my pain is manageable now except I had a motorcycle accident the weekend my first time ever. All the best to you all and God Bless

  460. Two promising avenues for treatment are selenium and cannabis. I would urge Fibro sufferers to explore the use of selenium supplements and ingestion of both raw and cooked cannabis as both a palliative and treatment

  461. They have found “cures” before. How can they say that my hands are the problem? I still am undecided on this new information and feel it’s just another rise to placate us sufferers

  462. I’ve suffer with this for seventeen year and if they need someone to try a drug to cure this please Contact me I would galdly do the study. I’ve been in a full blown flare up for about a month and the fatigue kills me more than the pain. I’ve learned todealwithmy pain but I can stand the exhaustion.

  463. That’s interesting because I’ve only known one person that was officially diagnosed with fibromyalgia and she suffered for several years. Finally, one day, she reported that she and her dietician figured out the cause. She said, “You’ll never believe what we discovered.” I was interested to know and she revealed the solution to her fibromyalgia struggle. She said that as soon as she stopped using artificial sweeteners, her pain disappeared!

  464. Insulting to suggest fibromyalgia is imaginary
    But from my experience, stress and insufficient respite, are definitely precursors
    Any one wanting some practical support, and can get to Manchester, do get in touch
    Help is at hand

  465. Would love to find out more information and follow the progress of the study and cure, even happy to take part in the study if you ever need more volunteers.

  466. Dear Robin

    Rarely to I read of a comment related to illness that comes from a bright and inteligent mind, you comment was a pleasure to read and so true. Add too it – Illness is an advantage and never a disadvantage as a protection from the traumatic cause and it may wewll be considered as near perfect as it need be. For me the only important issue with illness is it is a desire to force people to Understand and resolve the traumatic cause and why the immune systems appear to attack instead of defend and if understood will be repaired by the persons own immune systems. There are approx 100,000 illnesses in the world and our dedicated Doctors through Medical Sciense do not know the cause of one of them nor have a single cure. = No more illness and no more medications. A life time of medications or an operation although life saving is not a cure.

  467. Even if this is true it takes an average of 40 years for what is discovered to be taught in medical school. Most doctors do not continue their education (according to the cia and fbi behavioral profiles for them anyway; particularly for diseases they have decided do not exist. Thus it will take around 60-80 years for something discovered now to be utilized by all of the doctors and if the pharmaceutical companies can not find a way to profit off of it then it will be swept under the rug. They fund 98% of our America’s studies and America conducts the most studies of any country at this time so unless a private investor puts more money into a larger-scale study then it won’t go anywhere for some time though I would like it too. The other thing they fail to address in this is the fact that every person dx with fibromyalgia ends up with a dx of some type of auto-immune, connective tissue disease, or other chronic illness indicating that it is a co-morbid syndrome which only a few doctors recognize it as a reason to probe further to find all of the issues.

  468. This headline and article do not represent the way science actually works. One study does not mean that a medical condition “mystery” is solved, case closed. This is, at best, a theory. There are a number of other working theories about FM, and I don’t doubt there will be more. Please don’t anyone put all your ‘hope eggs’ into this one basket. I sure hope it leads to some true help for people with this awful illness, but I am far from ready to set off fireworks over it.

  469. don’t hold your breath , it’s taking longer and longer for profit pies to be baked and then split between doctors , big pharma and insurers

  470. I have fibromyalgia and myofascial pain syndrome and would do anything to be relieved of this so I can function again I can’t even work anymore and the pain in my hands is so serious I can’t even lift anything anymore baby. I would like more information about this and if there is something coming out I would like to know and study medication already and m. A.Pharmacy Technicianalready I would like as much information as possible

  471. Is there anything about peripheral neuropathy, coz thats a nerve decease, can they do anything for that?

  472. This article is over a year old, and we’re just hearing about this NOW?? Why hasn’t more been said about it in mainstream medicine?

    I want to be optimistic about this, but I’m cautiously so.

  473. I think I just came in my.. well.. I’m not wearing pants at the moment.. but you get the idea.

  474. We will see hope so do we go to our doctors now and see if they have heard they’ve found a cure !!

  475. So they didn’t have any treatments yet…just said they “think” they discovered the cause. Actually kind scares me a little…what if I DON’T have excess little blood vessels in my hand? Then they will say its all in my head?

  476. Interesting my trigger points related to heart attack & poor oxygen pumping causing breathing & mobility problems .I believe CFS/ fibro is a sympton of rare undiagnosed condition.

    1. Yes, it could. You probably all are predisposed to it. It can depend on stresses in your lives as to whether it comes out, or an accident. Perhaps you are all type A personalities? In other words, everything has to be right all the time, and perfect in all you do.

  477. Wow I hope this gives us credibility.I still have friends and family who think think it is in my head after all the years since I was diagnosed.We moved south and getting out of cold weather has really helped me.

  478. Really pleased reasearchers have found out this information . I would like to say thank you . As I’ve been walking around with this condition for years and I wouldn’t want to wish it upon anyone …. So pleased that fibro’s can say it’s not all in our heads now . I just hope doctors will now pay a little more attension to fibro patients & I will pray for the cure in the future.

  479. I truly donot think there is a cure out there but learning to manage the condition ixszas good as it gets. However much it hurts you must try to do a little exercise each day and this will release the tight muscles. By sitting or luing for long periods of time makes the muscle fibres contract and shorten thereby causing the dreadful pain each time we move. Try to exercise in bed, whilst warm and before getting uop and yes Fibro is affected by cold weather. Go to bed to warm up then get up again and try to do just a little strtching. It WILL help, sometimes more than others BUT DON’T GIVE INTO FIBRO OR IT WILL TAKE OVER YOUR LIFE!
    Jean

    1. What you said is so true, Jean. We cannot give in to the pain. I believe focusing on the pain and keeping it in the forefront, makes it impossible to escape the pain. I try to live a normal life being in pain but not focusing on it. I do stretches throughout the day. And, find a hobby to focus on in addition to work, if you are working. It helps take your mind off the pain. Don’t stop living.

      1. I am curious how long both Edna and Jean have had Fibro? Also if u each have another major health issue? I totally admire both of u for being able to push thru the pain. I have MS, chronic daily head aches ( 40+years for headache and 20 yr for MS). I also have several cerebral aneurysms. Up until about 2 yrs ago I went with the “working thru the pain”….at that point my doctor suggested I limit my activities to keep from doing things that increase my pain…or cause another fall….I have stopped going out to eat ( sitting upright and chatting hurts my neck, back and jaw) and limit long car trips. No fun. No easy choices. Ruth

  480. I have been suffering now for 8weeks it has been the worst bout, then again i beleive i say that every winter, a doctor told me it has nothing to do with the cold…HELLOoo..I have lived with this shocking pain for at least 15years refusing to take antidepression tablets always eat well etc etc… but to get some relief i do take analgesics and rest it also effects my sleep pattern,and I truly get angry and fed up,as I find it hard to leave the house…god I there is a cure coming soon

  481. I really do hope there is a cure coming. Cus im fed up of pain. Fibromyalgia takes over your life.im a mother with two young boys who haf to stop hugging there mother.
    I can not be the mother I need to me to my boys because of fibromyalgia.
    I rarly leave the house.

    1. Sharon, I kno how u feel. Now 68, have Fibro since late 1980’s. It has only got ton worse plus now I also have MS. If not for my doctor helping me thru by being willing to give pain meds I don’t kno where I’ d be, still I rarely go out or do anything . Even a car ride to the doc leaves me recovering for a few days from that. Hang in there, ur family needs u. My kids now 42 and 31 still need me. I kno it’s hard to live, it hurts so darn much 🙁 .for me sometimes I don’t know if MS or Fibro causes the pain….
      Hugs, Ruth

    2. Sharon, just wanted to say I know how you feel. I will still hug my kids (31 and 43) but cannot drive the distance to see them. I go out of the about once or twice a month now for doctor appointments. It beyond sucks. One problem about going out or “receiving” company is not being able to wear a bra for more than 10 minutes..or any clothes that bind even the slightest. Hang in there, no other choice really. Ruth

  482. If you are really ready to fully and completely overcome FMS, check out The Chrysalis effect. It is a ME/CFS/FMS supported recovery program.

    I completed this 9-month program last May and it has changed my life. I had been bed ridden from ME & FMS on and off for several years, but through this program, I have made improvements that no other medical or holistic program was able to help me achieve. I’m continuing to gain strength and stamina daily and do not have the incessant pain I did just a year ago. As I continue to follow their 8-phase program, I see myself entering the phase of full and sustained recovery. Their website is http://thechrysaliseffect.com/

    1. WELL SINCE IT IS ONLY IN EUROPE NO ONE IN THE STATES HAS THE MONEY. THEY HAVE ALREADY SPENT IT ON HUNDREDS OF PILLS, PROGRAMS, BRACES, ETC THAT DONT WORK 🙁 XXOO

  483. Perchance to dream, This paper is nothing more than searching for research for more funding by once again making a mysterious multifaceted illness biological in cause – when it is neither? When FM affects so many areas of the body how can any biological treatment be affected to all at the same time? This extremely painful and life destroying disorder is an expression of the entire body chemistry as instructed by the subconscious mind as the instructions never change yet the body attempts to cleanse itself of the now toxic and caustic chemicals it appears the condition is either affecting another area or gone away. http://talkingcures.co.uk/illness%20or%20Toxic%20Shock.html

  484. I have run the gamut with fibromyalgia and pray there really is a cure on the way. I know too many people suffering with this and no one else understanding the pain we go through on a daily basis. My fingertips hurt just lightly typing on my smartphone so maybe there is something to the hand theory. For me destressing on a daily basis helps me cope along with my Cymbalta. Bring on the cure…I am ready.

  485. Doctor’s told my mom it was all in her head they gave her shock treatments and hysterectomy and meds like Haldol and she always trying to kill herself she is dead now and I can’t say I’m sorry for not being more understanding. I have it now I thank God that my family is good to me and understand. I pray my daughters never get it. Lyrica is pushed by the doctor’s who get a kick back from drug companies and is more expensive. Neurontin/gabapentin does the same thing and is cheaper don’t be fooled by pain killers they make you hooked then your on the floor screaming it hurts so bad. Lots of rest and understanding is best. And focusing on a laydown computer activity helps like second Life/ making things that uses you brain only or photo shop so you don’t think about the pain so much. Make sure you make yourself look nice too it helps. Chew gum for the grinding of your teeth. Be aware, the weather will tell you what is coming and prepare yourself for the rest your going to do.Low pressure is a trigger. yes you may need some other meds too but read and see if it will become a painful habit. Take the meds as instructed never skip them you need too keep a balance and no alcohol its a depressant you don’t need and interferes with your sleep. Hugs to all my fellow fibro’s ‘)

    1. After almost 10 years of pain from Fibro, I finally got a handle on it. I recommend, taking MSM (Methylsulfonylmethane), Bovine Colostrum (or any kind of colostrum) and Wobenzyme. This disease is beatable. You just have to concentrate on a maxxed out nutritious diet, juicing and taking these 3 things. Feeding your nerves is the key to recovery.

  486. I am 26 yrs old, was diagnosed with fibromialgia 5 yrs or so ago, the only thing that some what helps me is lyrica . I’ve had shingles 3 times, have anxiety, Mild OCD – bipolar, I have mild asthma, arthritis, joint problems, exc my list Gose on. I do not take med every day I try and fight through the pain and tell my body I can. I have 6 kids and a husband who need me
    My doc said most people get fibro after having a serious impact like a motorcycle accident. But I don’t recall ever having such bodily trama, I believe it is overactive nerves and due to your body and mind being extremely stressed out. Even when u don’t think what you do is stressful your body dose. I may be in pain all the time but I love my life.

  487. This seems simple, but it’s hard to believe that all the pain, aches, fatigue, weakness, exc is coming from just the hands.
    But if it’s true what have they got now to fix it?

  488. I was told at a pain clinic that only in the past couple of years have doctors believe Fibro is real. Ask us, we kno for 20 years it is real.

  489. MAYBE HER MOM JUST HAD ENOUGH. NO ONE KNOWS NOT EVEN DOCTORS. GOOGLE TOP FIBRO DOC IN THE USA THERE ARE NONE! NO RESEARCH REALLLEEE EITHER
    !

  490. I have fibro and Osti plus rheumatoid I get a hot tingling in my hands , now wondering if this is connected ?

  491. This is such a crock. I do not believe this for a second. Fibromyalgia is either a part of an auto immune response and/or a little brother to Post Polio Syndrome caused by contracting Polio from the vaccine.

  492. Sorry to hear how many of us with Fibro are out there. Reading this article and seeing so many responses I wonder if there is a place online you all chat with each other . I have had Fibro for 25 years ans MS for 20 years. At this point I try and limit all activities that worsen my condition…no movie theaters, on restaurants, I stopped coloring my hair a year ago and went white ( I am 68 ) , no long car rides ( so driving to visit family and friends is off the list. Thank goodness my GP is willing to treat my pain. I do take pain meds. I just recently tried a new MS doc and the doc freaked out about my meds. Didn’t want to hear my reality. Stacie, so sorry to hear about you mom. If you wouldn’t mind sharing how she died from Fibro , I know that sounds insensitive and I do not mean to hurt you I did not know Fibro could be fatal.
    I do hope I can communicate with some of you about the difficulties of life with Fibro
    Ruth

    1. i hear you about talking with someone with fibro it would be nice to do i have to limit what i do you look fine on the outside but inside you are hurting i do take meds that is the only way i can get out of bed

      1. This website is giving me trouble. I will try again later. If u want we can exchange email addresses…some how

    2. MAYBE HER MOM JUST HAD ENOUGH! NO TOP FIBRO SPECIALIST IN THE USA-GOOGLE IT. IT IS AN IMMUNE SYSTEM DISEASE WITH NO ANSWERS…………..SAD 🙁

  493. OMG !!!! This is an answer to my long term prayers ! I have been told for years ( I am 56) that it is ” all in my head” and while I KNEW that it was not…. how can one argue with a doctor? I thought I was just nuts ! I do not have the education to argue with docs so I just gave up ….. figuring that they were right. THANK YOU GOD for someone finally figuring out that we with this debilitating disease are not crazy. i am truly in pain 24/7. I do not sleep well and have not really had a ” good” week in years. There are some days that are better than others but still the quality of my life stinks ! I used to be a viable member of society. I used to work, play and laugh and love like any other normal person. Over the past 20 or so years I cannot even remember the last time that I really laughed about anything. PLAY is not a part of my life at all. I simply exist. I really have gotten to the point where I just don’t care if I wake up in the morning or not. My first thought of every day is ” oooowwwww”….. and my last thought is the very same. I would say that %80 ( or more) of every thought in between is the same. PLEASE PLEASE keep up us to date as far as any treatments are concerned. I would do just about ANY thing to feel better and I am betting that there are thousands…. if not millions of us that feel the same way !

  494. im so glad that they have found the source of the horrible disorder! my mom died from fibro, I had to watch her suffer and be in so much pain and everyone telling her ITS ALL IN YOUR HEAD!!! I pray for you all that have it, that this will help you!

  495. I’ve had Fibro since in my early twenties, (altho had no idea what was wrong w/me at the time). I am now almost 68 and it’s so severe that I can do very little. I also have Neuropathy in my legs & feet, degenerating osteoarthritis in my knees and my lower back which is at the point the Drs. say all they can do is surgery & put the discs together w/rods & screws. (not ready for that !!!) It’s int’g that they talked about the hands because my pain started in my hands when I was 23. They felt like they were burnt, I couldn’t write at all, it was excruciating to pin my babies diapers, cook, clean, etc. I can’t tolerate cold at all, to get something out of the freezer is a nightmare, cold water hurts, etc. I’ve had all the treatments for Fibro, meds, shots, therapy, etc., etc. but nothing lasts longer than a few weeks. (Supposed to last at least 6 months!) For now I just function the best I can on pain meds. If I want to leave the house to do something fun I have to take extra pain meds which is ok’d by my pain Dr. Otherwise, I would be totally housebound. If they’re on their way to a cure hallelujah for those who have it so young. I have 4 grown children, 3 have been diagnosed with it, the 4th is in pain 24/7 but positive it’s Fibro as he’s not been to the Fibro specialist here in our city. My husband got it from trauma after being in a motorcycle accident. He’s in a lot of pain but not to the point he can’t do anything, he had to retire early as he was a carpenter and it was too painful to work with the tools. I hope my story will be an encouragement to someone to know there are so many of us out here suffering with this “all in our head” disease. And no, I don’t sleep well at all, some nights not at all. The Neuropathy is worse at night plus my hips and back and is very hard to go to sleep or stay asleep. God bless all you Fibro people, my heart goes out to you all.

    1. Carolyn, your story sounds so like mine!!! My daughter and older sister both have fibro and RA. Bless you too and may a cure be found asap! BTW I had the Hong Kong flu at age 17, chicken pox as a child (I’m 63) and shingles twice since then at age 20 and again at 60. I had a body scan for my vein insufficiency disorder in my legs and was told I’m riddled with arthritis, in addition to scoliosis, a rigid neck, fibro, and so much more!! ..I seethe when someone (not you) tells me I am in denial because I take pain meds to function on a daily basis..I want to tell that person..walk five steps in my shoes, then report back to me. X

  496. I hurt all over 24/7 taking more meds than I can say, I hope this is not just another made up cure. I do know this is not in my head, that is the only place that does not hurt

  497. There have been so many theories about this debilitating disease and no cures. Hopefully this will be something a doctor who cares will take into consideration. I pray for all the people who suffer as I do. 24hours 7 days a week.

  498. When I was a baby I had a broken hip, I have had alot of pain I guess off and on all my life , my parents always said that was the reason .its only gotten worse over the yrs .most of the time the worst of it doesnt start until I lay down at nite , in my younger yrs it was my hip, knee, down my leg bone into my ankle feel like I need to pop ankle over and over as iv gotten older in my 40s its now in my sholder and arm iv never really known how to explain the feeling except it hurts really bad iv had my share of sleepless nites where iv wanted to cut my legs off to not feel the pain im wondering if this could b it

  499. I suffer from this, and there are days when I want to cut my hands off they hurt so bad! Hopefully this will provide some long awaited answers, it not just in our heads!

  500. Finally! I have been saying for years that my skin is sensitive and it hurts when touched . Everyone looks at me and says “yeah right ” you are crazy. Nice to hear relief may be on the way for everyone. 🙂

  501. I’ve had fibro since 2006, at the age of 19. It ruined a good part of what was supposed to be my fun years, college, etc. This is good to hear. It’s kind of hard to sleep well, when I can’t even stay in delta sleep, because of the alpha bursts. It’s even harder to want to exercise when I’m so damn exhausted.
    I’m not even 30 yet and I feel old. Way older than I should. Hopefully this will turn things around, and I’ll have more energy, and just generally feel better.
    I kinda just make myself do things, and then I tend to overdo it, and it takes a while for my body to get back to “normal,” whatever that is.

  502. Fibro sufferers, please have your doctor test you for “Candida’s albicans”, then start reading everything u can about it. I think most fibro sufferers will think they are reading about theirselves. It’s pretty amazing info. And I hope this helps all of u find a path to getting well and feeling much better. Good Luck!

    1. I posted but have had no reply about testing for microbes and parasites. The symptoms can include fibromyalgia symptoms. I tested positive for Candida and am taking a supplement called Candida Plus by Priority One. Already the puffiness from systemic inflammation is decreasing in my arms and hands.

  503. I have had this since 1986, still working to live with it. I don’t think my current DR is on board with this.

  504. Also in the feet. Other studies link excess nerve endings in all extremities. My feet throb constantly. I can see the extra veins and they turn purple.

  505. Mr. Marturano,

    Thank you for posting this. I have had fibro for 10 years now and the pain is only dulled by narcotic pain relievers and Cymbalta. However my husband has a friend who also has fibro and his doctor gives him marijuana in pill form and he swears by it. I am going to have to find a doc that will prescribe this. My pain clinic will not…

  506. I have suffered with Fibro for 9 years. Living in Florida with high barometric pressure kept me in tears with my eyes, ears and jaws throbbing and my body always hurting all over. That is not happening now. I came across a product from a friend that is a nurse. It is called, “HCF”, meaning Happy Calm Focused. It is all natural combinations of vitamins and herbs….IT REALLY WORKS.

  507. This makes some sense but some grammatical errors and ads on this page make me highly doubt it’s credibility. Check out The Fibromyalgia Treatment Center and their website for info about Dr. St. Amand and his pioneering research and treatment. Dr. St. Amand is in his 80’s and has fibromyalgia himself.

  508. I’ve been suffering with FIBROMYALGIA for 28 years now and have seen many doctors and tried many drug and physical therapies all to no avail I’ve been prescribed everything from aspirin to morphine and none of it gave me relief, as I aged the symptoms increased and crippled me, doctors told me lie after lie about the so called cause of this disease including visits to the psychiatrists office, YES I too was told it was all in my head after 3 heart attacks and a stroke I had nothing left to lose I tried medical marijuana and for the first time I GOT RELIEF from the agony with out the side effects of all the various pills they had me on, for most of the FIBRO sufferers out there all I can say is if you are at your wits end and you have access give it a shot I pray it helps you like it has me, and we all can continue to pray for a cure. MY VERY BEST TO YOU ALL, and have a less painfull day

  509. I recently asked my Endo if she thought the swelling of the blood vessels in my hands, that inevitably end up being stiff and painful, have anything to do with my Fibromyalgia or Sjogrens, she confidently said no. I half believed her, because I live it, and know that when this starts to happen, I can expect the rest of my body to start hurting more. I minimize my salt intake to help avoid additional swelling, keep gloves on when it gets cold, even in the house, other than that, nothing much else helps, unless you want to be partially comatose :/ So at least we have a start!

  510. I really don’t care what anyone thinks about my lifestyle..I have Fibro, spinal stenosis, myofascial pain, chronic fatigue symdrome and arthritis. I take narcotics and muscle relaxers to help me get thru the day. I hate having to take drugs but its far better than suicide which I’ve thought of many times when the pain gets so debilitating that I can’t walk 50 feet. Some people have a lighter effect of Fibro, others don’t. There are days I cry out to God to just take me because I can’t take it anymore. He gets me to another day, hoping the horrible flares will end. I’m older than most and for years my doctors did numerous tests and then continually told me to see a Psychiatrist. At times i thougtht I was crazy or thought I had cancer throughout my body..Its been a hard road especially when most of my loved ones do not believe the pain could be as bad as it is….Anyone who judges another person with this disease and they have it themselves should be ashamed of themselves. My lifestyle chance has turned mostly into isolation.

    1. I agree Joanne. I tell friends and family to spend just five minutes in my body, I wouldn’t wish them to suffer any longer than that.. And yes, we do have differing degrees of it, but still pain is pain and they even those giving birth are offered pain relief! How about being in pain that never ends? I think others with this should be more sympathetic unless they don’t really have it in the first place!

    2. I can totally understand. I got my SS disability on the first try, thank God, but my family still do not believe me about the pain. I get to talk to my grandsons but rarely see them. I have looked for a support group but have yet to find one. Friends and Family do have their own lives to live and when you have to cancel something that has plan due to a flare, well you sort of come off the invite list.

    3. i hear you about what you are going though i am doing the same thing thank the good lord my hubby and kids understand about fibro and my other health i am 54 just find out about 6 years ago that i have fibro and i have good days a d bad days and people does nit understand how we ae feeling because wgen they look at us we look fine they just dont see the pain we go though each day

  511. What a bunch of BS! I was diagnosed with Fibromyalgia in 1993. In the hands? Lol. Right.

  512. “Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressant” YIKES!!!!!
    Sounds to me more BS about selling us yet more drugs feeding the fat cats. As Ariana pointed out, our diets need to change, processed foods cause many illnesses, drugs is not the answer….diet may not cure us but it does alleviate my symptoms….

  513. Lifestyle changes are not going to cure FM if it actually is ” overabundance of blood vessels in the hands”. However, exercise, diet, rest,,,all these contribute to help your body deal with the pain easier. Vegetarian food have their benefits…as does eating some meats. However, it is a cycle..you can slep, because you are in pain…then the pain gets worse because you cant sleep…depression sets in over long term pain..and around you go

  514. What’s a cure- a pill, a surgery? It’s called lifestyle change- I know people who have cured or improved many diseases by ultimizing their body with nutrition ( juicing,cleansing, no processed foods) Our American diet is horrible! People need to take action! Doctors are not going to advocate because they were not taught about the truth.

    1. Yes, juicing and no processed foods and anyone wishing to make a change, should stop eating sugar..it’s top of the list for causing inflammation and pain. I am making my own tomato juice, beef and chicken broths, and gelatin, just as my mother did when I was growing up in the 50’s. I asked the butcher today why we don’t get beef with bones it it anymore and he told me the sharp edges cut the packaging causing spoilage. If that’s true, then what’s wrong with round and knuckle bones? The marrow and gelatin in these is loaded with collagen. So, luckily way at the back of the meat shelf, there were a few beef shanks with bones for just two or three dollars. I grabbed them. LOL

    2. You really believe a lifestyle change will solve Fibromyalgia? I live with Fibromyalgia, I am also gluten intolerant so I can not eat processed foods, breads, and such. I am borderline Vegetarian, tried juicing ( until it screwed up my digestive tract in combination with my meds). Blame it on what ever makes you feel better but truthfully you need to know diets are not miracle cures that fix everything. I have argued my doctor at every turn to keep me off of the narcotic meds…I simply hate them and their effects. I went to a dietician and my diet is healthier than most people, that was when doctors were first grasping at straws trying to ” cure” fibromyalgia patients with yet another fad medical belief. Doctors have pretty much stopped advocating for everyone not just Fibromyalgia patients…I have other chronic pain conditions they can see with x rays and MRI, not that it’s gotten me better help from doctors. Truth is many doctors hands are tied from helping patients because of new rules about meds and they have doctors scared to try to help anyone. Now throw in the kickbacks they get from insurance companies for helping keep costs low and we are setting up for a healthcare disaster.

      1. It may not cure us, (There can’t be a cure until we find out what caused it) but eating healthy non inflammatory foods is good for the body regardless. As for the Vegetarian diet, been there done that, no thanks.

    3. As person with fibromyalgia, I have incorporated numerous lifestyle changes in combination with drug therapies into my treatment plan. While I feel better than I used to, every day is still a struggle with pain and fatigue. I find statements such as Ariana’s very frustrating and narrow-minded.

  515. Does anyone have experience of the over consumption of Dr. Pepper for extended periods, like I mean years to show any effects with their Fibromyalgia. I believe this is what is causing most of my older sisters health problems.

    1. The tannic acid in brown sodas is extremely hard on digestive system, which affects all systems because you don’t get the nutrients you need. Add them chemicals added if drinking the diet versions and you might as well drink poison.

  516. Hmmmm. As a physical therapist, I’ve treated fibromyalgia for over 30yrs. Show me the literature, outcomes, etc. I’m not buying this at all.

  517. Laurie is 100% correct on that one would be nice if could be so.e thing else but I am firm be leaver that it co.especially from a dramatic life experiences that scar your brain and that transpondes to the nerve endings

  518. I’m not convinced that this article reveals the answers. The common denominator with every person that I know, including myself who have had fibromyalgia is that they have had an emotional trauma and physical trauma that they have suffered. The nervous system translates this trauma to pain with an overdose of cortisol on the muscles that won’t let go. The nervous system is over-taxed and this causes a domino affect on other areas of a person’s health, including sleep, mobility, moods and perception of life overall. I wrote a book about my personal story… perhaps not what everyone experiences, but this is my story. I was diagnosed with Fybro, Chronic Fatigue and Depression in 2001 and suffered for 13 years before I was actually diagnosed. I’ve was miraculously cleared from the condition shortly after I was diagnosed..

    1. Given my personal experience I still think FM, while apparently proven to exist, is still symptomatic of something deeper. My medical trail goes back to in-utero CMV.

  519. Some of us believe that Fibromyalgia, like some of what is diagnoses as MS, ALS, Parkinson’s, etc. is actually Lyme and the co-infections the ticks were injected with at Lab 257. You can see the annual maps with cases spreading from that location. It did not used to exist.

    If you are careful to take breaks, pure opiates Ilike Codeine Sulphate (without toxic acetaminophen or Ibuprofen) can really help with all aspects, including mood and sleep. There are no serious side effects. I’ve been sick since 1981.

  520. 12 yrs with fm, was told i was to young to have it at 28 now 41. The hardest thing is not having anyone who understands but the good news is I have my life back thanx to a very special doctor who injects me with novocain shots. I could care less what the long term effects are ‘cuz without them I would have killed myself. I am not on any medication now and can exercise, socialize and be a mother without neglect. I believe my fm started from an injury on my back but my mother has it as well. Good luck to you all!

    1. HI KAREN I AM A KAREN TOO 🙂 ISN’T IT AMAZING MILLIONS OF DOCTORS AND NO ONE KNOWS ANYTHING. I HAVE NEVER EVER HEARD OF NOVACAIN SHOTS IF U R NUMB HOW CAN U DO THINGS? SCARY IS WHAT I SAY AND MORE PAINFULLLLL THAN ANYONE CAN IMAGINE. XXOOKK

      1. Novocain shots? Those cause rapid heartbeats in some people (me) and my older sister with RA and fibro stopped breathing during dental treatment with novocain. Not knocking it, just saying it wouldn’t work for me.

        1. Re: novacaine– it’s usually NOT the novocaine that causes the problem, it’s the epinephrine mixed in it to extend the effects. You can get novocaine without the epinephrine, but you need to ask, and get the dentist/dr to note it on your charts. However… it may not last through the dental work procedure, if it is a long one, so you’ll have a choice of toughing it out, or asking the dentist for another dose.

  521. I have severe Fibromyalgia. ..and it sucks. I was diagnosed at the Mayo Clinic in Rochester9 years ago. Pain started in my feet..felt like I had stoned bruised all over my feet then quickly progreased to the rest of my body. I had never hea Rd of Fibromyalgia until dxd at Mayo. Besides the pain, the fatigue and not being able to think and reason out work was the stress of the lack of understanding I got from everyone because they could not physically see an injury…except the pained look on my face. Depression set in but the Mayo doctors helped get me on an antidepressant too which helps but I still feel worthless during an attack which puts me in bed for 2-3 days. I continue to try things that might help…I have for the most part deleted caffeine from my diet and removed as much stress as possible from my life. I am lucky to hAve found a very understanding man who treats me like a Queen and doesn’t call me a lazy fat a___! Believe me that makes a world of difference! Good luck and better health my Fibromyalgia comrades.

  522. i went to a arthritis spell wrong doctor i am on meds but i am tired of taking meds everyone says it starts in your hands that is not true with me mine started all over my body

  523. I too have FM. Have had it for years; and, was told it was basically all in my head. That was until I went to the Orthopedic Center of Southern CA in Los Angeles. I had been through all kinds of tests. I mean everything you could imagine until then. This one doctor saved my life. I also have Osteoarthrithrits, sciatica, bulging disc; and, a few other ailments. So Yes, I’m in pain 24/7; and, yes I still have spasms that roll up and down my back. At least I know that it’s NOT in my head. Stress will cause a big time flare up as will the weather. Yes, I’m on meds; but, I refuse to take any pain medication that is addictive. I’ll take my Advil which helps the arthritis. I do take meds for the spasms; but, it doesn’t always help. I don’t have pain in my hands though. Just in the past year I’ve developed tremors in my left hand that only happen occasionally. Doctors are not sure yet what is causing that. I have hope; but, as for these recent findings, well . . . I’m not so sure it’s so cut and dry. I think there is more to it. I will say though, even with all the pain I am grateful to be alive. I know there are those that are worse off than me and to them I offer my prayers.

  524. DEAR TIRED –
    I know that the pain and fatigue and be overwhelming. Please do not give up. It sounds like you are depressed or hopeless, which is understandable. Please seek out a therapist or doctor who works with chronic pain patients. There are pain centers in most most cities. Reach out to anyone who might boost your spirits. If you are suicidal, please call 911 or your local suicide prevention crisis line.
    Wishing you the best.

  525. How do I get someone to listen to me…. I am constantly in pain. I have had some people tell me that it is FM but the doctors won’t even look at it that way. Some times I feel like I am going crazy. Who do I go to. I NEED HELP PLEASE.

    1. Leigh, keep trying until you get the right doc. My present doc is eastern/western. I also see a NP who has specialized in fibro for decades. In addition to the tests above, there is a blood test (which I wasn’t given; just the history and my body brought the diagnosis. They should be treating your symptoms but also finding causes as much as possible. Check for parasites. Check for candida and other things that can cause this conglomeration we call fibromyalgia. It took me decades to get the right docs, tests, and diagnoses that were at least helpful. Use what you need to feel good at the same time, but get to those causes. Good luck!

    2. I know what you’re going through Leigh, after countless doctors and tests some physicians tried to convince me that its all in my head and there’s nothing wrong with me. I know its hard, but you mustn’t give up! in spite of the fatigue and the mind numbing pain, you must be strong, and eventually you’ll find the doctor that believes you and then you’ll finally be able to get the treatment you deserve so much. Godspeed!

  526. I can’t live with this illness much longer, everyday there is another new pain or it has moved to another area, or I have another ailment continuosly, the meds are killng my liver so I’m sure I wn’t be around to be cured, I don’t see being able to hang on much longer anyway, the depression from the fatigue is probably going to kill me first anyway

    1. I know that the pain and fatigue and be overwhelming. Please do not give up. It sounds like you are depressed or hopeless, which is understandable. Please seek out a therapist or doctor who works with chronic pain patients. There are pain centers in most cities. Reach out to anyone who might boost your spirits. If you are suicidal, please call 911 or your local suicide prevention crisis line.
      Wishing you the best.

    2. Hey tired, I’ve been hit with what I called “fibromyalgia squared”. Was lucky to get 2 hours sleep a night for months on end. Hands would burn like on a hot stove if I opened a jar that was stubborn or did much more than lift small objects. Could not be on my feet for more than 5-10 minutes or even sit for that long (another injury, ischial tuberosity) – even or lay down only on my stomach (couldn’t lay down on back or sides). When I did dream, had some dreams of being stranded in the desert burning up in the sun on a hot metal conveyor or sinking in mud.

      Felt like I was treading deep water doing the “doggy paddle” most of the day. NOTHING worked- any pain meds were bad for my gastritis (NSAIDS). Over time I eventually healed – did wish there was a pool or hot tub to make gravity mostly go away, that would’ve helped. Did go to physical therapy but then RLS (restless leg syndrome) kicked in big time. But the therapy did let me sit for longer periods at least.

      Over time, maybe a year or so eventually got better, slowly but surely. Turnaround also started when roommate’s cat had some kittens, maybe by coincidence not sure but it was a distraction. Proper diet and exercise and TIME (over a year for me) – actually in better shape now than most of the population! 🙂 Just saying, don’t give up!

  527. I started drinking Shakeology ( 70+ superfoods veg and fruit) and after a week I noticed decease in pain. I also soak in epsom salts and a package of aches away bath which helps with the inflammation and swelling

  528. I had fibromyalgia for 5 years, 2 weeks on fresh fruit and veg juice and all symptoms had gone. Fibromyalgia may be caused initially by trauma, but it is exacerbated by poor lifestyle choices. Watch Jason Vale’s Super Juice Me video and see how many other of these so called diseases correct nutrition can cure. And the best thing is you can start juicing immediately, no need to wait for anyone else to develop anything.

  529. I was told my FM was brought on by trauma. Hopefully now we can get a cure and everyone with this horrible disease can get their life back to normality.

  530. Lactic Acid over load. That’s what I have always thought. A cure would mean many things could change in my life. I hope this happens in my lifetime.

      1. Really? Is there research to back that up? I always kinda thought I had good muscle tone because my muscles are constantly tensed from being in pain…

        1. http://www.wellnessresources.com/health_topics/detoxification/lactic_acid.php “Any healthy person will make too much lactic acid at some point of physical exertion. Long distance runners call it hitting the wall. You can only run as fast as you can for a short period before you make lactic acid in excess and come to a stop. Excess lactic acid makes your muscles hurt. Someone with fibromyalgia already has such a high baseline of excess lactic acid around muscle cells that walking across the room can be the same as a 400 yard dash for someone else.”

  531. I suffered for 10 years before being diagnosed. My doctor doesn’t understand me and doesn’t give me support. I had to give up work and most of my life as I’m too ill and it’s very lonely. I am intrigued to hear more about this finding. I heard it before and I’m glad to see it’s getting more research. We need a proper cause and a cure!! I set up a support group for anyone who needs support , comfort, friendship and a place to talk. https://www.facebook.com/groups/Chronicpainandfatiguesupport/

    1. Lyndsey, find another doctor that understands fibro. My rheumatologist and pcp both know that it is real. There is no reason to stay with an ignorant doctor.

  532. This is good to know I have only been diagnosed but been in pain a long time …I use to say to docs that am sure my blood is wrong …it overheats etc …could this be why ??

  533. My doctor ‘doesn’t believe in’ Fibro – I actually got ‘The Hand’ – he dismissed me like a recalcitrant child! Net result – ill for about 6/7 years but no treatment and no benefits – just because my doctor is a prat. I’m now of pernsionable age, but have had to get a job to pay of my mortgage arrears. Doesn’t pay to work all your life.

  534. I’ve had fibromyalgia sine I have been 12 years old never once have any doctor implied it is not a “real illness” such quotes and thoughts were attached to ME however (which is also wrong) I’ve now had the illness for 20years life is very different for me then if I hadn’t had it everyday is a day of pain, I can’t sleep more then three hours at a time or I am sick from being lead down through the pain, I have disks in neck issues ,meneries disease, and have suffered two TIA’s and a stroke in the last three years fibro is a really horrible painful disease..

  535. I was diagnosed about 30 years ago. Nothing helps. One of my doctors said the only way it’s in my head is that my brain is in my head and the pain registers in the brain. People that don’t have the pain have no idea.

  536. MY goodness. Im in the Uk & I have So many Symptoms that I feel like Im going Insane @ times.from Skin attacks that feel like burns. Muscle pain, eXtreme Muscle aches / Pain’ also tiredness, So tired all the time that I could Permamently stay In bed.
    My limbs feel like l am carrying Sacks Of Potatoes & Permanent Neck & Shoulder Pain & Painful Tingley hands with drawing Pains that shoot up & down my arm .

    Tried so many different medications with no relief at all.
    This article lntrests Me greatly.
    heres hoping that there is light at the end of a very long tunnel.

    love & respect.

    Dawn. Derby. Uk
    .

  537. Have had FM for years but it got worse when I had surgery for breast cancer. (of course, later the chemo and radiation did not help it any). When I awoke from the surgery I had no feelings in my extremities what so ever and when the feeling did come back it was excruciating if I even slightly moved in the legs especially. I felt like I was on fire. My Neurologist diagnosed fibromyalia and prescribed gabapentin(1200 mg a day now) and a antidepressant. He has raised the medication since then. I have to be extremely careful with my balance. I recently fell and broke a rib and other injuries. Would love to see a cure for everyone who has dealt with this horrible pain especially when the majority of the medical society thought just thought we had pain. I also would like to know if being put to sleep would have anything to do with it since it takes an excessive amount for me to be completely anesthetized – I am also allergic to anything that ends in “caine” for numbing of for pain.

    1. Same here. I’ve had surgery in the past and it did take a lot to anesthetize me. Most of us have problems with staying asleep anyway, and that may be why it’s difficult to anesthetize us for surgery. On the other hand, I was prescribed flexeril and it helps tremendously with the taut muscle pain of fibro, but I’m quite sensitive to them and can only take a half of a 10mg. It knocks me out, makes it difficult to hold down a job, and makes me groggy for days. But, it really works!

  538. This article Is interesting. I was diagnosed 29 years ago. But before that had finger pain that disappeared with a hysterectomy. I truly believe fibro is hormonal related as well as blood vessel.

  539. Who are the scientists involved? I am looking for a name I can trust and unless he is involved I will remain very skeptical.

    1. what a great question! i want to know too. except no one ever answers from this site that helped set it up 🙁 xxookaren

  540. It could sound promising, although combined with other health problems the cure for that may not be the quite the miracle that it I being led up to be. I am however, so glad that people are finally realizing it is NOT psychosymatic, it is a very real and very painful and exhausting illness. You lose a part of yourself in it as well as friends and most definitely even family members.

    1. If a theory fails to explain the pain and the exhaustion, then it is incomplete or wrong. The most interesting feature of fibromyalgia for me is its symmetry. Right now the balls of BOTH thumbs ache and the bottom of BOTH heels. I’ve seen my GP, a neurologist and a rheumatologist, none of whom seemed interested in this feature

    1. DEAR KELSEY – ME TOO NO ONE HAS IT AND I HAVE OVER 32 COUSING AND 2ND COUSINS. IT’S THE MAGICAL MYSTERY TOUR AS FAR AS I AM CONCERNED. NOBODY KNOWS. DRUGS ARE GIVE TO SHUT US UP! 🙁

  541. I dont know if I believe this on not it sounds similar to one about M.S. a few years ago.Hope to hear more about it. I have Fibromyalgia and also pain in my hands as well as my back.

    1. O+ here. Both my 50 year old daughter and I have O/A and Fibromyalgia as well as other auto immune issues, and internal problems that go with Fibro. I’m skeptical, about the cause being found, but really hope they’re on to something finally. It kills me to see my daughter’s life controlled by this. If I could only take it for her!

  542. My Fibro started when I was put on 80mg of simvastatin. I haven’t taken statins for 7 years but permanent damage seems to be possible (see Duane Graveline’s book “The Statin Damage Crisis”)

  543. Has anyone else been tested for the mutation of the MTHFR gene? Apparently if you inherit the mutated gene from both your parents then you end up not being able to form the enzyme that breaks down homocysteine in your body. And too much homocysteine can cause all kinds of problems, including (but not limited to) EVERY SINGLE SYMPTOM OF FIBROMYALGIA. This gene mutation was brought to my attention by an integrative medical specialist and there’s a blood test for it. The treatment is fairly simple too. If your body can’t produce the enzyme to break down the homocysteine it can use folic acid, B6 and B12 instead. So all you have to do is load up on those! And make sure they’re in a form your body can absorb and use of course. An integrative medical specialist should probably help oversee the process. But hey, it can’t hurt to ask for one more blood test, right? Cos fibro being a genetically inherited condition and high levels of homocysteine messing with every system in our bodies makes way more sense to me than “we have more pain receptors in our hands and feet”…

      1. HI PAULA- NO ONE HAS/HAD THIS EVER AND I HAVE 32 COUSINS. MY FOLKS NEVER HAD THIS KIND OF PAIN. I HAVE R/A TOO NO ONE ELSE DID/DOES. I THINK IT IS STRESS RELATED AND EXPOSURE TO SOMETHING WE MIGHT ALL HAVE IN COMMON INCLUDING MEDS. ALSO LIKE R/A FIBROMYALGIA IS WORSE WITH A DROP IN BAROMETRIC PRESSURE, HIGH HUMIDITY AND DEW POINT. IF YOU NOTE NO ONE IS REALLY DOING EXTENSIVE RESEARCH ON EITHER FIBRO OR R/A. 24/7 PAIN IS JUST TOOOOOOOOO MUCH SOMETIMES. ALSO DOES ANYONE HAVE A ABSORBTION PROBLEM OR MISSING INTRINSIC FACTOR. IF U DONT KNOW FIND OUT. XXOOK

        1. I agree. It definitely could be environmental and I noticed quite a few of us have had trauma such as car accidents, rape, flu viruses, or physical abuse as children.

          1. This!
            Most if not all people I know that have it. Through the span of my career have had trauma as a common denominator.
            Caffeine of some sort and high levels of sugars are the other. Lastly on a broad scale, they have all had some form of depression and have taken pretty stout pain meds for 4 or more months in a continuous manner.

    1. AMEN= PERSILEEN PLEASE READ MY OTHER POST. INS. DOES NOT ALWAYS PAY FOR BLOOD WORK THAT THE PATIENT REQUESTS. XXOO

  544. I asked this before on here but I am doing my own research to see how many of us with Fibromyalgia, are RH Negative blood types. So to everyone reading this… Would you tell me what blood types you are? If your not comfortable telling the letter ( O, B, A, AB ) thats ok, (though I guess it would also be interesting to see if any of the letters are more often seen too) but at least if your positive or negative. Four out of the five on my previous comment (including myself) said they were negative! It made me really, really curious, so I want to ask as many Fibro sufferers as I can… !!!

    1. That’s a very interesting hypothesis, actually. My mother was rh-negative and I was positive so when she was pregnant with me she had to have a special injection to keep her body from rejecting the fetus. Could that have had an affect, do you think?

        1. HI AGAIN PAULA- BET UR DOC DOESNT THINK ITS SEVERE THEY NEVER DO ANYONE TAKE PLAQUNIL sp? anti MALARIA DRUG. SCARY STUFF!

        2. QUICK FIX? I HAVE HAD THIS 20 YEARS. ALSO U HAVE TO SAY TO THE DOCTOR I WANT A COMPLETE THYROID PANEL. DID U KNOW THAT DIFFERENT LABS GIVE DIFFERENT READINGS? GUESS IF WE WERE RICH WE WOULDNT SUFFER AT MUCH. I HAVE NEVER HEARD OF A CELEBRITY HAVING THIS! XXOO

          1. Morgan Freeman has it– proving that it isn’t “just for women”. Apparently, it was caused by a car accident, in his case.

    2. I’m A positive. I always wonder about if there are any prescription drugs that we all might have taken in the past.

      1. YOU ARE SMART KATHY! BLOOD PRESSURE, B12INJECT-ARE VERY GOOD 4 US SUFFERING! SYNTHROID. THATS ONE I HAVE ALWAYS QUESTIONED AND LIPATOR! ALSO ANYONE HAVE ANY TYPE OF ANEMIA? PLEASE ANSWER U GUYS ITS IMPORTANT IF THE DOCTORS DONT KNOW IM GLAD IM NOT THE ONLY ONE DOING RESEARCH. XXOO

    3. I am O Positive, and don’t think blood groups have a lot to do with it to be honest. Since going to an integrative practitioner, and having even more tests, I am of the belief that Fibromyalgia is a bucket term for lots of symptoms, the main being pain, but many people just take anti depressants for pain and so on. It was found that my Adrenal s were very low indeed, and I am taking Cortisol for this. This would explain my lack of energy with no stamina. Also, my T3 levels – main thyroid hormone) are critically low, which also would account for not having any energy. Most Doctors will test for T4 and TSH only unless you ask them. The T4 converts to the important T3 in various organs of the body. It is not much use just telling you that you have Fibromyalgia, and not knowing why your body is reacting in this way. I guess people with Fibro like myself take up too much of a Doctors time, and there is no quick fix!

      1. “, I am of the belief that Fibromyalgia is a bucket term for lots of symptoms, the main being pain,”
        I agree– and that’s why it’s so difficult to find a cause or cure. Because it isn’t a “disease”– it’s a syndrome. When it’s finally sorted out, it’ll probably be 3 or more different “diseases” with similar symptoms, and possibly seen as an early stage of MS, RA, etc..
        My version seems to be mostly thyroid related– my “screening tests” are “normal” (so Kaiser won’t do the other thyroid testing…), but I have 90+% of the signs and symptoms of hypothyroidism. Even WITH thyroid medication (Armour, currently). However, the dr doesn’t want to increase the dosage because it has elevated my blood pressure… so it’s a balancing act. For me, it (also?) may be due to adrenal insufficiency– this the opinion of a holistic health practitioner and an acupuncturist. This was somewhat supported by an “out of range” kidney function test (which is why I no longer am supposed to take NSAIDs), and an herbal “adrenal” formula helps when I can afford it (Gaia “Stress Response”).

    4. I’ve got a cadre of docs. I love that they don’t label my fibro diagnosis, but test rigorously for causes while treating symptoms too. One test revealed an overabundance of yeast in my system (dead yeast in my poop) and they are treating me for Candida.

      I wrote this in my fibromyalgia blog:

      According to MindBodyGreen, the signs of Candida are:

      Skin and nail fungal infections (such as athlete’s foot or toenail fungus)
      Feeling tired and worn down or suffering from chronic fatigue or fibromyalgia
      Digestive issues such as bloating, constipation, or diarrhea
      Autoimmune disease such as Hashimoto’s thyroiditis, Rheumatoid arthritis, Ulcerative colitis, Lupus, Psoriasis
      Scleroderma or Multiple sclerosis
      Difficulty concentrating, poor memory, lack of focus, ADD, ADHD and brain fog HELLOOOOOOOOOOOO. YOU’RE ON YOUR OWN FOR THE NEXT TWO.>
      Skin issues such as eczema, psoriasis, hives, and rashes
      Irritability, mood swings, anxiety, or depression
      Vaginal infections , urinary tract infections, rectal itching or vaginal itching
      Severe seasonal allergies or itchy ears

      I have other tests underway for parasites.

      If anyone is interested, I’m maintaining a blog that is part info, part journal sharing, part whimsy.

      http://rerekukasuhohpage.wordpress.com

  545. Sounds kind of like having way more pain receptors on my tongue than, say, my husband. So eating hot spicy food is more of a challenge for me. Not exactly the same, but that’s what I thought of.

    I just added the link to this article to my Fibromyalgia blog. I just started it, and all are welcome to view/participate.

    http://rerekukasuhohpage.wordpress.com/

  546. There is no way FM can be fake or in your head. I have it and now my daughter and my sister. Our lifestyles play a huge roll in pain reduction. The average person feels better wgen they exercise, so do i, my muscle recovery time is 4-6 days. Everything ii try to do is double the work and double recovery. Hence depression, comfort food. Weight gain. The words my 5 year old spoke today “Mommy do you love your pills” I dont take narcotics, however, i take nerve blocks and blood pressure pills. Total about $390 per month. So i explained how i got sick and the medication helped me gwt out of bed and be active.

  547. I had a doctor tell me to simply drink more gatorade as this would help with the muscle cramps. Same doctor after repeat regarding the pain tell me he just didn’t know but that his best advice would be to stop eating cake and move more. yes of course because when you are over weight all problems are because of that.I indicated that I thought it was fibro and he said he didn’t believe in it. Wasn’t until I got medical advice 10 hours away, saw 5 specialists and confirmed it was fibro and waiting the test for lupus as well.

  548. I had one Dr. tell me that every time she saw me, I was always complaining about being in pain, and why didn’t I get my head straight or basically get another doctor. I hope she never was in the same amount of pain I was in. I honestly don’t think she could have handled it. Fortunately I have a very high pain tolerance, and these many years later, I’m still in a terrible amount of pain, but not so much from fibromyalgia as from additional other stuff. Getting older isn’t for sissies, that’s for sure!

  549. Hi what good news lets hope a treatment can be found so that world wide sufferers will all benefit I bet sufferers are fed up taking meds that don’t take all the pain away Morphine is about the only med that helps me

  550. I had fibromyalgi for 30 years! For 2 years ago I went gluten- and milk-FREE. WOW I got a new life! I had to make some more test for food intolerance and today I have my energy back and do not take any medications at all! Only a lot of organic vitamin/minerals and probiotic together with Lifewave products. I follow the paleo diet and my brain is clear, bloodpressure/pulz is normal, pain reduced with 85% and I have lots of energy! I did’t know the food had so much to say!

  551. I’ll rejoice much more when they figure how to cure or at least manage it well, hopefully without drug intervention. I have been dealing with this life-quality robber for 39 years.
    I’m wondering now who I might talk to to find out more about this discovery??

  552. I just want this darn disease or whatever you want to call it to be recognized by all doctors. Too many of my fellow suffers have been turned away cause doctors don’t believe on fibro. I’m tired all the time normal house work like doing dishes makes me hurt the rest of the day. Find something that can help me get back to living my life!

  553. Raynauld’s turns your hands completely white and is very painful. A feeling that you can’t even explain. This is great!! Maybe finally some relief. Please keep me updated. Thank you.

  554. Raynaud’s Syndrome is a lovely litlle side effect that some Fibro sufferers deal with…your hands and feet become sensitive to cold…feels like they have been frozen in snow and then like they are thawing out complete with colors red white and blue and pain and heat sensations. I have dealt with this for years…just try to keep hands and feet warm

    1. Ive got Fibro, & about a year ago my hands suddenly would be over sensitive to even lukewarm water or any kind of warmth… It would cause them to feel a searing burning sensation. This kept up for approx. three & a half months, then went away. I don’t recall if it stopped suddenly or if it lessened first ( You’d think I’d remember). When I told my Dr. about the pain, she just shrugged & had nothing to say about it. Aggravating! I wasn’t sure if it was my fibro or some other issue.

  555. If you thinks it’s a fake disease you obviously don’t have it. Spend a day in my shoes!!

  556. I’m sorry you’re desperate. If I were in your place, I would find the nearest ACAM doctor I could get ahold of, and request a toxicology report, especially looking at mercury. Then get it out! It may be too late to reverse all of the damage, but things certainly won’t get any better with that poison still in the body. I know of a good doctor in Washington I could recommend, but there are ACAM doctors in many places now, and a look at the following website will be a good way of finding one.

    www dot acam dot org/?page=PhysicianLink

    The one in Washington nearly cured a woman of advanced dystonia who had gone to Mayo and found no solution–by having her remove all of her “silver” (mercury/amalgam) fillings and then doing chelation treatments on her for nearly a year. Her story is here: www dot toxicmetals dot info/case_laurie.htm

    (Hopefully this one will post.)

  557. How can one find a cure for something that doesn’t exist? If anything, these doctors are just peddling bogus research for a disease that medical science tends to refuse to acknowledge.

    “Fibromyalgia” generally turns out to be something serious, like lymes disease. People with real diseases are getting diagnosed with this fake disease and it puts people at real risk.

    1. i am thinking you need to work on your research skills. fibromyalgia does exist, there are many people who deal with this.

    2. Right. It’s not a diagnosis but a description of the symptoms. I’ve heard there’s a blood test for FB. Otherwise it’s a “diagnosis”
      by exclusion and one never knows if they’ve excluded enough

    3. Red palms are also a sign of alcoholism caused by a damaged liver. What’s R/A?

        1. nope no alcohol ever. red palms do mean prenicous anemina sp? i can see so many folks like me go to the MAYO SITE. NO ANSWERS THERE EITHER. 🙁

    1. DEAR CHERIE: VERY COMMON TO HAVE PRENICIOUS ANEMIA WITH FIBRO/AND/OR R/A. RED PALMS OF THE HAND ARE USUALLY A SIGN OF ANEMIA. WILL UR DOCTOR TEST U 4 IT? NOT UNLESS U ASK & QUESTION THE COLOR OF YOUR HANDS. 🙁 ALL THIS TIME I HAVE TAKEN STUFF FOR R/A AND REALLY THE PAIN IS FROM FIBRO. SAD.

  558. I have suffered from lyme disease for years now, it turned into fibromyalgia, am S, neuropathy, arthritis through every part of my body, and out of all of the medicines that I have been on through the years I have found that Marijuana works the best for pain and it also allows me to get a decent nights rest I just think that it is sad that you have to move to a state where it is legal to be able to use something that was given to us by God to help us feel better my grandmother used roots and herbs her whole life but now with everything being so regulated it is impossible I just wish that the lawmakers would understand how much good that it does to people like us I am not a drug dealer or a drug pusher by any means but I believe if you find something that can help you then you should be able to use it without the government getting involved

  559. I’m sorry you’re desperate. If I were in your place, I would find the nearest ACAM doctor I could get ahold of, and request a toxicology report, especially looking at mercury. Then get it out! It may be too late to reverse all of the damage, but things certainly won’t get any better with that poison still in the body. I know of a good doctor in Washington I could recommend, but there are ACAM doctors in many places now, and a look at the following website will be a good way of finding one.

    http://www.acam.org/?page=PhysicianLink

    The one in Washington nearly cured a woman of advanced dystonia who had gone to Mayo and found no solution–by having her remove all of her “silver” (mercury/amalgam) fillings and then doing chelation treatments on her for nearly a year. Her story is here: http://www.toxicmetals.info/case_laurie.htm

    May God bless as you seek solutions for your health.

  560. nice that someone is finally listing to us the sufferersand we might find a cure soon hopefully in my lifetifei was diognosed 15 years ago

    1. I know how desperate we are for a “cure” or just SOME relief, but for your sake, dont get your hopes up here. For one thing, the big pharmaceuticals don’t want to allow a “real” cure to be allowed to become legal & mainstream because they make a killing off of all the nasty drugs we all are forced to live on (or can’t get off of!). They will pay huge amounts of money to keep a cure off the market. I hate to sound so pessimistic, but its true.
      I am curious though… How many of you with fibromyalgia have an RH negative blood type? I recently stubbled onto some interesting info about this. Apparently a very large amount of sufferers are RH negative. I would like to know how accurate this info is.

        1. Wow! Maybe there IS something to the negative factor! (I understand RH positive also get this BUT even just the larger amount of negatives posting HERE is pretty extensive!) anyone else?!!!

  561. I have read somewhere that some have a predisposition to this. It is also said that it is your bodies inability to deal with adrenaline correctly which then builds up in the muscles causing the pain.
    However, I feel it’s a bit like random cancers; nobody REALLY knows what the cause is

    1. That figures Mary. I’m always awash with adrenaline as I have Generalised Anxiety Disorder

        1. we need to undergo amygdala re-programming – it’s a walnut sized “organ” in the right side of the brain and has something to do with adrenaline and its on/off switch. I really don’t understand too much about it if I’m honest!

  562. I have suffered from fibromyalgia for 24 years and was not diagnosed until 7 years ago – after 17 years of suffering. Since one of the symptoms of the condition is interrupted sleep and lack/absence of the deep restorative cycle, it is just not possible to get sufficient sleep. Until this is resolved, there will be extreme fatigue and “fibro fog” characteristic in many cases in this condition.

  563. I have been saying that for years. It’s about time someone really studied it. If it’s not cancer then no one wants to study it… it’s not ‘breakthrough’ enough. You said Michele though, it’s ridiculous how people with this have suffered and just ignored the pain as myself and my mother had. As far as I’m concerned it’s cured by sufficient water and sleep. I have found that since I have been doing that, it has lessened. I’m currently making a list of foods that I can’t eat because of it. It would be nice to be tested properly however. Just anything else, we’re still in the stone age when it comes to medicine and the study of the human body.

    1. i drink about 4 to 6 2 litre, half a gallon, jugs of ice water in a day. i occasionally drink soda or other sugar drinks. as for sleep, i sleep until my body says ive slept enough, i take naps if needed. have been doin this for years now and there has been no relief in the pain levels, in fact pain levels have increased by a lot. so it may work for you but it doesnt work for everyone.

      1. Melissa- I’m so sorry that your feeling this way. I’m sorry everyone is feeling this way. You all have tried everything. I’ve use to have his for years… But now I’m great!! U said u drink a lot of sugar drinks, like soda or fruit drinks and it gets worse. Try this. Since this won’t hurt u to try. Eat fruits and vegs. Wash well. Eat meats with no added flavor/added vegetable broth. Natural no added hormones. Just use natural salt & pepper. Don’t eat dressing with it. Go all natural from the earth. For 2 weeks. No gum, no candy, no junk food, no spices , no tic tacks, no ketchup, mustard, or other condiments and bread. No Fruit juice Either. If it’s not from the ground don’t eat it. It can’t hurt to try this. I one day just couldn’t do it anymore and stopped eating everything. I have a list of food that is heathy to eat. Try this and tell me how u feel? If u can do it for 3 weeks it’s better. Then write how u have felt. After u do this then ( really do it no cheating but don’t right) eat how u use to. U will see the difference in how u feel. Promise.. This is extreme but will work. Then I can help u feel 100% with no more pain. Please try. U have tried everything else.

        1. ok,i will tell you the same thing that i have told every person who have been “cured” by their diets, if you change your diet and you no longer have any pain then you were misdiagnosed in the first place. my thoughts on how you were able to “cure” yourself is that you most likely have a sensitivity to something that you were eating. and once you removed it the problems went away.

          this is what is sad, there are still doctors out there who for some reason decide that their patients have fibromyalgia. only because they dont want to do their work and find out what is actually wrong with their patients. and its these doctors that make it really difficult for those who do actually have fibro.

          1. I couldn’t have said it better Melissa. Changing one’s diet does not cure fibromyalgia. A lot of doctors hand out that diagnoses when they don’t know what’s wrong with you.

        2. ok, umm where did i say i drink a lot of sugar drinks? how does occasionally turn into a lot? as for fruit juices i read my labels closely i wont purchase or drink any fruit juice that has added sugar. i drink maybe one can of pop a week. so how is that a lot?

          1. Sorry I was texting on my cell phone and couldn’t reread what I was writing. I didn’t mean you were drinking it all the time. Not trying to be mean at all. Just trying to help someone out. But drinking just a little will take your body to recover from the outcome of drinking it a while. You don’t have to try it but what is it going to hurt to try? But I know this article isn’t saying much of anything. If it was going to give a cure they would have it in the news and your Dr will be calling you to come in and give it a try. I have study this for a long time through my own pain and suffering and found that this is the way to change it. You don’t have to take it from me. But the ones who have done it have there lives back. You can keep doing what your doing. Good luck and I hope that you start to feel better soon.

  564. I have been suffering with fibromyalgia for years and so does a lot of my friends, since I find it easier to be friends with other fibro sufferers so we can actually understand each others pain and we don’t have to try to get each other to believe us, we know this is REAL we live with it every day along with the ones close to us, They need to invent a machine where they could actually plug in to us somehow and feel what we feel and guaranteed they would figure out something pretty darn fast, it is not our imagination, and we don;t need a therapist except to learn how to deal with people always saying it’s all in your head. I have other health issues also, but fibro seems to be the only one I have trouble getting treatment for that doesn’t consist of more pills, I exercise daily and it doesn’t help the pain or the depression.

  565. I just wanted to add that Celebrex gave me complete Kidney Failure. Depakote lowered my white blood count to dangerous levels and Lyrica caused me to gain 55 lbs. I was never overweight – now I’m obese. Plus the increase in weight caused uncontrolled High Blood pressue. What next? To the Medical community – stop doing go much research on erectile dysfuntion and try to help the Fibro community find answers to why we have pain daily. Chronic pain ruins the quality of families.

  566. I’ve had hypothroidism for at least 10 -15 years before I developed Fibro. I’ve also had severe Migraine problems since I was 19 yrs old. Brent McGillis, your point is well taken. Were did this new study come from?

  567. Finally—you guys know how I feel!!! Sorry for anyone who suffers with this. I would like to know, have any of you fibro people had parathyroid problems? High calcium levels? I have GOT to find something to help me. I get worse everyday. Most of my family thinks I am crazy and this damn fibromyalgia is going to cause a divorce. My spouse tries to understand but I am not the person I once was. I wouldn’t want to be married to me either.

    1. J.L- I can’t tell you how your life is paralleling mine! My life is falling apart as my Fibro gets a stronger hold every day. My children’s lives suffer & I can’t help but feel anxiety & depression through it all. I’ve been fighting this for 30 years…I’m loosing the battle… No matter what I try. And let me tell you… I have tried EVERYTHING!

      1. And I wish I could feel some kind of “hope” about this..but as most of you have also experienced… The lesson on NOT getting your hopes up… It always leaves us in despair.

  568. Really, and which particular center for Higher learning like a University or large medical facility like the Mayo Clinic in Rochester, Minnesota did this study emerge from? Huh? Anybody?

  569. I understand that some of these treatments are or can be dangerous but after years of suffering with this debilitating condition, watching your life go on without you as you sit bye in pain and misery, will pretty much cause a person to throw caution to the wind in desperation of relief & hope of a “real” life that one can participate in. Call me a sucker… But what else can you do?!! This is no life. I often feel that if I let my dog suffer like I do, I would go to jail for neglect &/or animal cruelty, & they would demand I put my dog down out of mercy. Then there is the burden that I constantly put on my family due to my inability to function. I have six beautiful children & a grandaughter & I’m missing out on more than my heart can take. Im at the end of my rope… Desperate.

  570. Anyone who has to take drugs for relief is lucky since I find drugs useless. I would LOVE to take a drug that works. Has anyone noticed the symmetry of the pain? Has anyone linked it to statin drugs?

  571. I just hope this is true and cure is available . As iv had it most of my life , I cannot remember not being in pain since I was a child and im over 50 now .

  572. Fibromyalgia is a deliberating condition that can change your life completely and other than taking a cocktail of meds, there is nothing we can except live with the pain, insomnia, memory problems, and many more symptoms.
    The worst part of being a fibro is that an invisable condition is it is invisable. More media coverage, need to highlight this growing illness . Only a Fibro sufferer knows how life changing and dificult it is to live with this condition.

  573. I have had Fibro way back since the time that they said it was all in my head! I STILL A M ASHAMEDTO SAY THAT I HAVE IT. THE DEPRESSION WITH IT IS INSURMOUNTABLE AT SOME TIMES, AS IT KEEPS ME FROM BEING THE MULTI TASKER THAT I ONCE WAS. DR. SAYS NO CURE, JUST KEEP TAKING YOUR 60 PLUS PILLSA DAY AND TRY NOT TO GET ANY WORSE. AT A TIME WHEN I HAVE MONEY TO TRAVEL AND THE YEN TO DO SO,ALL I CAN DO IS READ THE TRAVEL BOOKS. IF SOMEONE IN MY POSITION SAID THEY WERENT DEPRESSED, I WOULD WORRY ABOUT THEIR MENTAL CONDITION DO YOU HAVE ANY IDEAS OTHER THAN LOOKING FOR SOMEONE WHO TOOK OVER DR FADORKIANS JOB????

  574. yes , i agree with you jan . i too have many pain problems , fibro is just one of them . i have tried allot of drugs since my accident in 2001. i take tramadol 300 mg a day . those drugs i tried are worse than the problem i have . but my pain is very bad , and i need 24 hr, pain meds . so even though tramadol dose not take away all my pain , it knocks it down to where i can at least function some.

  575. i was in a car accident in 2001 . was left with chronic pain , myofacial pain post concussional syndrome ,constant headaches and migraine headaches . then about 3 yrs later developed over all pain , finally in 2010 i wentto a reumatologyst , and was diagnosed with osteoarthritis and fibromyalgia . even though my hands do hurt alot . my pain did not start there. over time pain did end up there. so i doubt id the doc’s findings is the total gospel of fibro . every case can be a little different, and alot of cases have similar type pain , but can vary in how they started .

  576. Really?? I am really sceptical about that! There are still stupid doctors that thinks it’s in your head?? I feel sorry for you guys… There is more than one cause for fibromyalgia i have the desease for over 20 years and i did a lot of research! It is a nervous system imbalance, bad blood and lymph circulation and a serotonine, noradrenaline and dopamine imbalance, it is also an hormonal imbalance, and so many other causes besides this one!! And the worst part is to try to find what is the cause of your fibromyalgian because it can also be gluten intolerence, candida albican over growt and more the list goes on and on… My pain is much more on my feet and legs and lower back, all over my body!! Problems with the intestines, bladders, insomnia, memory lost, extream fatigue, painfull period and depression is just the proof that there is more than one cause to this desease!! No it’s not just in your hands… Sorry!!

  577. I’m a long standing sufferer who are in constant pain, with chronic fatigue. I cannot stand up for too long before I need to sit down again.
    Up until now, its been told the pain is all in my head. That the fatigue is due to not enough exercise. I’m holding down 2 jobs plus running a household.
    I’m always exhausted and in pain. Its a great break through that this disease is finally understood.

  578. Just diagnosed with fibro and this sounds about right. My hands sometimes feel like they don’t work correctly and my feet are always a problem. I see a chiropractor twice a month and keep busy as I was told, but I am so tired all the time. I hope they find something soon!

  579. Have had Fibro for years, Worst of it in hands, feet and total bodily skin sensitivity. So bad could not wear shoes or clothes at times. Hair sensitive to touch also. Their is a laser (low level light laser) treatment if you are lucky enough to find someone who knows about fibro and the tender points that are needed to be treated. Really need to have at least 3 treatments a week to be able to navigate and feel anywhere near human. I have had these treatments since 2006(off and on). Med side effects worse than the disease, I think. The doctors and others want you to believe its all in your head, sorry, not so and we are not nuts either.

  580. I sleep 8 to 10 hours and exercise 5 days a week including swimming. I still suffer every day with medication. I have also had several rounds of physical therapy. The does not ever go away completely and have just learned to live with pain. It has also caused me to stop working.

  581. I am no medic, but I feel it is very unlikely that this solves the rather prevalent, disabling modern problem of fibromyalgia.

    1. I’m a medic and I can tell you that while the cure won’t be instantaneous, and living in America I can’t so much say there will be a cure for us at all. I can say that knowing the location of where the problems origin gives medical professional several avenues of approach for treatment.

  582. A little pretentious much? One study does not a definitive answer make. More research, I remain unconvinced this is the “end all, save all” answer to the mystery that is Fibromyalgia.

  583. Very interesting. My cousin has introduced me to Plexus but I am a bit skeptical. Maybe I should give it a try.

  584. My husband suffered for years, took narcotic pain meds, Lyrica and still had debilitiating flare ups. He started taking Plexus slim, Boost and xfactor in Jan of this year and has been, pain, flare up free since then. He is ecstatic, does yard work and exercises now.

    1. Tarisa… I am at the end of my rope. This Fibromyalgia has and still is ruining my life. What is Plexis, where can I get it and how does it work?!!! Im desperate!
      Michele

  585. My fibomyalgia symptoms started as aching legs and coincided with the short time I was taking statins. Looking at how statin drugs work by blocking the fist step in the mevalonate metabolic pathway, they would have to cause mitochondial damage, in particular by decreasing the amount of available coenzyme Q10. Has anyone else noticed a correlation between the taking of statin dugs and fibromyalgia?

    1. Don’t know if/how it relates to FM, but my aunt was permanently crippled by Lipitor. Lipitor/other statins remove the sheath around the nerves– and yes, first her feet, then legs, were affected the most. She was told she was imagining it– keep taking the Lipitor, and here’s some Prozac….

  586. I’ve been let down so many times by various doctors that have told me that they could relieve my pain. Chiroprators, Acupunture, Nerologists, Rheumatolgists, Pychologists. My quality of life “sucks”. I hope there is something to these new findings!!

  587. there is a large university in New York that discovered this last year!
    They also found that they can take a sample from the Palm of your hand to prove, yrs, I said PROVE that you do in fact have fibromyalgia!
    but they had not discovered that there were extra nerve endings, blood vessels..
    They DID discover that the acid was in fact the culprit!
    and that the shunts in OUR palms don’t open and shut properly!
    THUS the freezing!
    I wake up at night FREEZING, a few nights per month my temp drops to 94° my doctor acted like this was no big deal!! I HAVE to jump in a,scalding hot shower because I’m shivering so badly and this causes the WORSTpain that I EVERfeel!
    also, my palms DON’T SWEAT! I don’t know if anyone else had this issue but it has a name that I can’t recall:-)

  588. Love the exercise cure, can’t move every joint and tissue hurts don’t feel like getting up but should be able to exercise, ~~slapping my head~~ (that hurts too)

  589. I wish they would contact me I am using narcs and not crazy about it and a lot oh headachs also

  590. Praise God and hurry with the cure. The hardest thing for me is no one knows in my family anything about this and don’t understand there answer is to eat right and get more exercise.

  591. What a relief to know that I am not “”crazy” I think that if the doubters had fibro for as little I week then maybe we would be taken more serious !!!

  592. This so fits with my experiences my hands and feet ache so bad. But there’s no reason for them to.. My kidneys are failing because of blood, but there is no reason for this.. I have ever FMS symptom and many of the secondary. Plus a thyroid ate up with nodules for no reason. According to all the tests I am healthy as a horse except I have inflammation in my body of unknown origin since 1991.

  593. when I talk to my rheumatogist about this information and see his reaction….then I will comment. but right now all the meds that have been given to me to treat fibro have given me more medical conditions than the one I started with!!!!!!! i’ll believe this when I see it (I mean no disrespect but I’ve heard this song too many times)

  594. If actually true,,,,,, this may explain why my hands are constantly ” burning and tingling” ( more a buzzing feeling) and hot, I’ve had people jerk their hands away when shaking hands ,,, and oh the pain and fatigue,,,, , a cure (ha!) would be a Gods send!

  595. I have suffered for many years… The pain, the sadness of nobody understanding why I couldn’t do the things that others can…The anxiety…. I have missed out on a normal life … The frustration of trying many different medications …always in hopes that each one would be the answer as so many of us have done.
    We all just want to wake up without having to crawl out of bed…be able to make plans and keep them, be able to smile and feel it on the inside. To us… The lottery is feeling good again! Until then… all of us stand beside one another and so many of us support one another praying for the day that we all have a cure… God Bless those who are working hard to give us all a better life.

  596. I have had fibro for 10 years I hurt constantly some days or worst and they are at least 10 family members also have it. I have took every drug you could think of, hopeful they have solved the problem , but how long will it before we get start feeling better with this answer?

  597. I just want to say sorry to all of u who have Fibro. I had been dealing with the pain for so long. I didn’t think there was an end. Well I’m now happy to say I’ve been pain free for almost a year. My feet hurt, hands swelled, belly bloated, couldn’t lose weight, stressed, hot flashes, all over body pain, tiered, heart palpitations, headaches and many more. But going to the Dr I got it’s all in your head. I kept saying no tins not. Please just tell me why this is happening. They didn’t have an answer. Well I can tell u what I’ve done and maybe it can help u too. I eat fruits, vegs, and prepare all my meals from scratch. But the most important thing I did was, I stopped buying anything that says natural flavors, monosodium Glutamate, made by concentrate. And many more added ingredients that isn’t good for u. So I started out slow, I stopped eating bread & chewing gum. I started to feel a little better until after dinner and the next day I felt really bad. So I figured out that I was making my (I thought good meal) dinner meals from monosodium glutamate which I found out makes me swell and become agitated. So I looked at all my cans and found that I needed to find something else to use. Which I did. It took my body about 3 weeks to feel a 100% better. My family couldn’t believe it. I look great and feel awesome. I haven’t exercised once and I’m now losing so much weight with doing anything but eat health. If u want to know more I’m so happy to help u. I’ve already helped many people stop hurting and they feel great!! The reason why I’m telling u this is because I want u to live a full like and start feeling like u again. 🙂

  598. Now how do I explain to my doctor in the UK that I am suffer with blood cell over flow and what can he/she do to help me. Pills ‘no’. Blood transfusion ‘no’….. What is the solution to this then to cure me?

    1. Chriss I suppose the answer might be to take something or inject something to convert lactic acid to something harmless. If there’s a cure for cramp it might give a clue, since cramp is caused by a build up of lactic acid
      Fred

  599. Apologies for another post, but just to be clear on my previous comment, I felt my first pain at 7 years old and it took me almost 21 years to get an answer, so excuse me if I’m not jumping up for joy!

  600. Honestly??? I understand how this “findng” can give hope to the families who live with people who suffer from fibro, but I’m definitely not getting up any hope, seeing as though by the time they actually find this “apparent” cure, I’ll probably be dead. These scientists should go tell their 7 year old children why they have pain and then give this false hope that maybe one day they will feel better! Whatever! Give me an injection that takes just 1% of my pain away then we’ll talk!!!!!

  601. Strange that my fibromyalgia started after I decided to have all my silver fillings removed and replaced with white ones

    1. I wonder, Rainer if you had your fillings removed by a specialist dentist, who used all the safety measures to take them out, with special catchment plates to catch the mercury, and oxygen etc. It costs a lot more to go to these places, but an ordinary dentist is not equipped to do this properly. Sometimes, you can have what they call a tattoo in your gum which is mercury which has gotten into your gum. It is possible that you have swallowed some of the poisonous mercury and it has got into your stomach and bodily tissues. Perhaps you need some chelating therapy to get it out of your bones. I really need my many mercury fillings out, but so far haven’t been well enough to go through it all. I really would like false teeth, so I can be sure all of it is out, but I expect they come with drawbacks.

      1. There is no such thing as a “specialized dentist”that removes amalgam(silver filings) that places catchment plates to catch all the mercury and oxygen.. first of all the level of mercury in the amalgam is very low, you get more mercury in eating a tuna sandwich. What oxygen is the dentist trying to catch? And trying to prevent you from swallowing? The”catchment plate” your referring to isn’t a plate, it’s a piece of rubber, mostly used for root canals. It’s used to isolate the tooth so no bacteria can get in the tooth.some dentists use them for fillings, but I have worked with over 50 different dentists, and maybe saw 2 use them for fillings. The tattoo your referring to, isn’t caused by removing amalgam fillings, it’s caused by placing them, when a little piece of amalgam gets inbetween the gum and tooth and isn’t removed before the filling sets, or is caused when you have an amalgam filling placed at the gum line. If you do by chance swallow some amalgam pieces, it’s not going to get into your bones, and stay in your stomach/tissue for the rest of your life, unless you have it removed. If it was that harmful to humans the FDA would not approve it, and it would not have been around for hundreds of years!! If you don’t have decay(cavities) under your amalgam fillings, there is no reason to remove them. If there is a dentist that is pushing to remove them, they are just after money.

        I am NOT trying to start a fight, or attack you, just letting you know, before you scare someone, PLEASE HAVE YOUR FACTS STRAIGHT! None of which you stated was accurate. I know this because I have been a CDA for well over 10 years…I went to school for a long time for it and have a degree. So PLEASE before you post things your friends told you, or you read of some site, get the facts right, because you could really scare someone into thinking something that is completely untrue.

        1. Here is a link you might be interested in. I have already replied at length to you, but perhaps my replies are too long to print as they do not show..

          iaomt.org/safe-removal-amalgam-fillings/

          Now to address your points. I am neither impressed by your degree, your job or your fifty dentists. Most dentists will deny Mercury fillings are dangerous. For several reasons. They might get a law suit bought against them for those they have carried out, or they don’t want the danger of removing them, or the Government or Medical council tell them to deny everything. England’s NHS does not give Mercury fillings to children or to pregnant mothers, why? Why no more mercury thermometers. Because it is poisonous. I have been to twenty doctors with degrees and they no so little about Fibromyalgia and chronic fatigue. One soon finds this out. I know more than they do, as I have been studying for the last fourteen years.

          Your strange comment about oxygen! When a dentist drills into a tooth, tiny particles come off and the vapour can endanger breathing, so oxygen can be given when necessary. There are two special dentists in Cape Town that deal with this.

          There are so many precautions needed for safety and health removing Mercury, and why would anybody go to that trouble if they were not dangerous. Nobody should have Mercury put in their mouth, no matter what you say. .

  602. There is no mystery solved, it is an observation as the abnormality was identified in normal controls as well. I read the original study from 2013 and it is compelling but far from a game changer.

  603. Again, it is helpful to understand the probable cause of fibro: mercury. Mercury, being fat soluble, lodges in the fatty tissues and nerves. It causes nerve dysfunction, by destroying the nerve cells. Goto YouTube and look for “Calgary mercury” to see a video by the University of Calgary showing the harmful effect of mercury upon nerve tissues.

    Mercury can enter the body many ways, including from vaccines and tooth fillings. Fluorescent lights all have mercury. High-fructose corn syrup has some mercury. Fish and seafoods are high in mercury. Once in, it stays. Because mercury is not water soluble, it does not exit the body easily. To remove it requires chelation treatments.

    Mercury can cause so many problems that most doctors fail to recognize it as the cause. It can damage the eyesight, cause tics and muscle spasms, impact the memory, the nerves, the joints, and the bones–weakening the latter. Things like tinnitus, sudden rages, and impaired balance/dizziness can all be caused by the mercury in the nerves.

  604. Yes. Get tested for Lyme. But tests are sometimes always negative. But if you remember being bit by a tick and had a Bull’s Eye Rash. All joints are inflamed and swollen.

  605. Can someone provide the actual study that was done to solve the cause of fibromyalgia?

  606. Well the pain is always there no matter what you take. The fatigue takes it toll on a person and most people don’t understand why you can’t work full time and why you have to go to bed early and stay home all the time. The meds I take help part time, the pain is still there. The cold and the humidity is bad as well. There is no relief no matter what you do are take. It has been years and it’s not getting better. You have to learn to live with the pain.

    1. So true Celine and yet totally unacceptable. Nobody should ever have to live with pain. That’s not living, it’s existing. I’ve gone without pain for three to four hours at a time thanks to my Vicodin, but even that will eventually affect my liver..not as soon as the meds prescribed specifically for fibromyalgia and RA though! I have tried the dew drops with CBD and Henna and even though it works to help me sleep, the pain is still there. It’s always there. I know how hard it is to leave the house or even walk across the room when in chronic pain, but if we could, swimming in warm water really does help. It’s on my list. X

  607. I was fortunate that the Dr who diagnosed me had fibromyalgia. However of you don’t look sick people think you area hypochondriac. This disease had robbed me of so much in the past 21 years. I push myself to do things with my family and try to keep up then suffer in silence the next few days which leads to depression and anxiety. I pray there is some legitimacy to this new finding.

  608. With what is being done to our food supply, gmo’s, white table salt that is bleached and bled of any mineral value, preservatives….it’s no wonder people are getting these crazy dis-eases. I have gone gmo free, organic and use pink himalayan salt and also I have cut out almost all gluten. My life is so much better. I was diagnosed with psoriasis and when I changed the food I ate, it went away. I refused the “steroid” meds the doctors wanted to give me and just changed the food I ate. Good luck to all of you.

  609. I’m currently being tested to see if I have this as I’ve been poked and prodded for a few years now with many different docs and specialists telling me different things.they chuck medication at me that only slightly dulls the pain and I’m tired constantly. My feet are the current problem to the point I can barely walk some days.if my blood work comes bk positive for it then I hope for everyone’s sake who suffers with it can be helped x

  610. Truthfully, I get so aggravated; have been diagnosed with Fibro for ten years; have been on Lyrica, Fentanyl Patch, and Oxycodone in various doses and arrangements the whole time (except when things were hopped up with a bit more excitement for awhile . . .I was diagnosed with Non-Lymphoma. Now I AM sick and tired of being sick and tired! Now I will tell you, had I not had a big sore lump in my left armpit, I would have thought this cancer was only another fibro flare. The symptoms MIRRORED each other- and believe me, chemo & steroids, disasterous fatigue is ROUGH. it’some my body took sides against me all the way around. Sure would be great if at least one of these scrappy trolls were eliminated!

  611. The autism issue is way off topic…but did y’all know that autism is genetic? Yes, it is true that you can have your autistic child tested for the gene now. It’s scientific fact and if you suspect your child is autistic you should have the blood test done to confirm it. All this speculation and there’s already an answer to the “what causes autism” question. I have Fibro, and until a doctor here can verify that blood vessels or nerve tissue is the cause, I will continue being skeptical. I’m personally tired of being someone’s guinea pig.

  612. Zoey, can I ask what medication helped u? I agree with ghostgrandma yes, partially about the vaccines….yes we needed the plague one and other ones like polio. I think if they didn’t start with all the chemicals and fake food, and kept things the way it was before that, things would be better….but yes natural is the best way, if it works! I try, but it doesn’t for me, but the more natural the better…I have to rely on man made meds which after awhile are toxic!!!! So it would really help me to know what has helped u! I may have even tried it already…..I find also more than not, that if something does work, it only works the first time I take it, so always trying to find something that that might not be the case 🙁 thanks 🙂

  613. ghostgrandma – vaccinations do not cause autism. There is no medical evidence to suggest this. The journal article publshed in the Lancet has been proven false and even the journal has refuted its own story. Spreading this sort of false infomation is extremely dangerous.

  614. Don’t listen to ghostgrandma; the accusation of vaccinations causing autism has been proven to be a fabrication (Two minutes on Google and half a brain will show you this). Not only that, but people who refuse to vaccinate because of this are basically saying they’d rather have a dead child than an autistic one, and not to mention they’re putting other people at risk for their stupidity. There are numerous people who cannot get vaccinations due to medical reasons, and are thus vulnerable to these diseases that can easily be eliminated with vaccinations. Don’t like vaccinations? Then go try having the black plague. You know, that disease that nearly destroyed our species but was successfully eliminated 100% with the use of vaccinations.

    It angers ME when people are so stupid that they put baseless religious opinions above common sense and overwhelming scientific proof. Our society has certainly made bad habits and harmful products (and it’s important to research on your own to find these), but we’ve also made huge breakthroughs and made plenty of good things too. If we didn’t, we’d all still have an average lifespan of 35 years back before modern medicine started to take hold.

    In relation to the article, I was an absolute wreck for YEARS with my fibro until I found the one medication that calmed my pain. I now have a nearly normal life, where before I was practically bedridden. So yeah, I’ll take that man-made medication that’s vastly improved the quality of my life, thank you. Not all “unnatural” things are evil.

    1. There’s no plague vaccine. Plague was “eliminated” by getting rid of rats, and their fleas, and by the bacterium mutating to a less virulent form. However, it is still endemic in many wilderness areas.Current treatment is antibiotics.

      SMALLPOX was all but eliminated by vaccinations (using live cowpox virus)– however, it’s unlikely that you can get a smallpox vaccine anymore. The disease only exists in laboratory cultures, and barring biological warfare, only those working with the cultures are likely to be exposed.

  615. To be honest I’m not sure what to believe I have had FM for many years but it was only found and noticed properly by a physiotherapist when I went for a knee xray and it was diagnosed then , for a very long e I had various ailments I was treated for arthritis long time, and I kept going to my doctor with al these thing it made me feel like an hypochondriac I kept saying that their must be one core to it all. but no. yet when I took the letter to my doctor from the physio and he looked back through my records e admitted that it was fybro and I felt better knowing I was belived they said it could have been triggered’ from some trauma that I had.
    Also I do get worse when its cold [and damp] but until I see medical PROOF then I am out on this one.

  616. I have to disagree with the person that said people died earlier growing their own food and eating God made things of herbs. The deaths may have been rare at young age. But many people lived healthier lives and lived much longer before the poisons in the chemicals of food, flouride in water and aspartame now call amino sweets were put in our food and drinks. Vaccinations have been proven to cause autism in children and there are people out there into eugenic program ith billions to alter these things with money to meet their goals of depopulation. It angers me to see how stupid people are to put man made crap ahead of God made nature for God in my opinion wins hands down.

    1. Actually, people did not ALL live short lives “back in the day.” The statistics are skewed, because outliers are not removed. Truly, people had long and healthy lives back then, eating a traditional diet that included meat, veg, healthy animal fats.

  617. my thouhts about fibromyalgia and it sucks what they say here it is not all true,, when the wheather is cold and wet out then my hips and lower back and shoulders hurt the most and then i need my heating pad,it helps with the pain.and your ALWAYS in pain it never really goes away ever and even the pain med’s don’t really help much either anymore.so i guess i will have to live with it for the rest of my life and pray i don’t get any worse.thanks for taking the time to read.treas

  618. What a load of utter nonsense! The claim that we FM patients all over the world are ‘rejoicing’ is an insult & sould be retracted. This isn’t ‘research’, it’s a theory, unproven & nonsensical. The theory that FM starts in the brain makes far more sense & definitely explains my FM as mine was triggered by an accident where that part of my brain was damaged.
    PLEASE don’t publish irresponsible & outdated theories such as this without providing details of the research, the number of people in the study, etc.

  619. who is behind this info? I call BS. it sounds like another attempt to label fibro as nerve pain instead of infection to sell drugs. compare a chart of fibro trigger points to a lymph node chart. its the same. its something ive been trying to tell my doc for years. when I got a tooth badly absessed on the one side recently, all those spots that have been called ‘fibro’ flared up badly on the side with the bad tooth in a cascade from there, and became swollen and hard. imo they are still trying to deny fibro is chronic infection because they dont want to admit that things like chronic Lyme Disease and other rampant diseases that are being ignored! See ILADS.org , LDA.org, the movie Under Our Skin and the book, Lab 257 also see Dr Horowitz and pathologist Alan McDonalds work on Lyme.

  620. https://guardianlv.com/2013/06/fibromyalgia-mystery-finally-solved/

    Guaifenesin is helpful for both Fibromyalgia and Chronic Fatigue Syndrome. It will give the feeling of more energy. Not like caffeine, but stamina and calm energy. It is not a cure. Anything a person has to take every day, is NOT A CURE! I do hope someday they find both what caused these diseases, what is the culprit areas of symptoms, and true cures!!!

  621. IF this were true, the 10,000+ people Dr. R. Paul St. Amand has treated with guaifenesin in the last 20 years wouldn’t have reversed their fibro symptoms. The guaifenesin protocol is not a cure but, when followed correctly, it DOES reverse the built up phosphates that Dr. St. Amand believes causes them.

    Within 9 months of following his protocol exactly, I was so improved I knew I would never stop following it even if I didn’t get any better than I was right then!! I help run a support group of over 700 people to help them follow it correctly and get their lives back like I did!!

    You can learn more about it and find the link to our group at http://www.facebook.com/myfibro … the page is called Fibro(my)algia. His book is “What Your Doctor May Not Tell You About Fibromyalgia”.

    Don’t believe all those hater stories you find on the internet. Much of what is said is not true! Check out the real and correct information and decide for yourself if this protocol is something you want to try!! Guaifenesin has no side effects … you can get off of all those dangerous pain killers eventually as well!!!

  622. I’d just like to point out that “back in the day” when people grew their own herbs and food and chemicals weren’t rampant, people died much earlier; in some “civilized” parts of the world infant mortality was at 50% and the chances of reaching your third birthday were quite slim.

    Right now, there are entire cultures dying out because of parasites and bacteria-infected drinking water, lack of food, lack of sterilizing agents, lack of medicine and lack of vaccinations (all 100% Mother Nature made issues). In short, they’re dying much younger than we are in Western society, and those people have no contact with chemicals.

  623. There is one thing that is certain and that is that Fibro like the other types of CFS is not a mental condition although there are mental health issues caused by it such as depression, which mask the true condition.

  624. Our bodies are natural healers,,if we gave our bodies enough time to heal these problems wouldn’t exist,,,too many chemicals in the food and air,, people are effected in different ways and some are more tolerant of it,,,grow your own food and go back to herbs and natural. Give it 6months to a year,,then see if it helps,,don’t give me I tried it and it didn’t work after only doing it for a week,,FFS !! It took longer for your body to build up all that damage,,, xo

  625. As an old nurse who spent 25 years working with patients in the ER, I can tell you that there definitely is a unique personality / poorly coping picture to many people with fibromyalgia. It is a true body/mind disorder, and I don’t believe the answer to it’s cause is simple. It is as much mental as physical, and this must be addressed to treat it.

    1. Being in unending pain will impact a person’s attitude! It sucks to be unable to enjoy the same thing our healthy peers do. It sucks to not be able to get a decent amount of sleep. I’m certain that you lose your sunny disposition when you haven’t slept well for a week. Now live like that for years! I have very good coping skills. It isn’t a mental illness, but being made to feel hopeless by the medical community adds to the frustration of our illness and contributes to feeling hopeless and depressed. I was a nursing student when I was diagnosed with fibromyalgia. I did all the things that the doctors told me would make me able to function well. Guess what? It nearly killed me, literally. I developed serotonin syndrome from all the drugs that were supposed to manage the symptoms.
      That was when I decided that there had to be someone beating this monster. I spent hours reading everything that I could find. I even joined every fibromyalgia support group on Facebook. I found one where there were people talking about how they got better. It wasn’t a cure, but a treatment. The theory behind why it works lined up with how I had described my symptoms. 13 months after starting the treatment, I’m not cured, but I’m well enough to go back to nursing school and finish my BSN and will be working on my master’s degree next.
      If someone is interested in learning about the treatment I follow, it is in the book What Your Doctor May Not Tell You About Fibromyalgia, by Dr. St. Amand. There is hope!

  626. Well, this article is pretty interesting. In reading the comments from Vera and Ashley; along with the article and as one who has been diagnosed with fibro, an RN (and on the healthier side) here is my observation. . .Take it for what it’s worth. I agree with Ashley that we are all different and what works for one may not work for another. I, personally, do find relief in taking Wellbutrin (and at times Tramadol). I also find when I drink more water, exercise regularly, lower sugar intake, minimize wheat and dairy that I do better. BETTER. Not, healed. I do try and eat organic (when budget will allow) and minimally processed foods, along with good super foods. I will, though, enjoy adult beverages and eat out sometimes. I am not dead and believe in moderation. With that, I do pretty good. I do have crappy days though. Even when I had all my ducks in a row and did everything right. I am also in the process of cleansing my lymphatic system with “therapeutic drops”. Worth a shot. But, soooo disgusting that I do them once a day instead of the recommended 3 and have skipped days here and there. I also intake different nutrients, vitamins, and treat symptoms (sometimes) with therapeutic oils.

    My point in all that is that I’ve seen benefits of limiting chemicals and crap from diet. (Garbage in, garbage out). I have seen benefits in proper water intake and exercise. With all that, though, there is this thing called fate. I believe we can do our best to make the best out of our situation. To keep fighting for the best we can be, but we may still not eliminate the battle. This battle though can create a greater reliance on God and help mold us. Whether it be to be a more empathetic individual or to see our need for Him, etc. All we can do is the best we can do and like Ashley said, insults, patronizing, and arrogance are not welcome. They do nothing to help anyone.

  627. This is all crap…..someone told me it was an allergy to all the chemicals in milk, chemicals like the fertilizer, weedkiller, bugkiller, mold killer, in the cow’s feed, the antibiotics given the cows to prevent disease spreading in the dairy barns, same goes for beef actually, and there add steroids and who knows what…..I got off the milk and oh this hurts, cheese, too, and my pain is almost non-existent, except I love cheese and do eat some and pay for it………

  628. Guus fibromyalgia is a neurological disease. .. this can explain some issues but is definitely not at all sensible to think its the source for EVERY SINGLE SYMPTOMS WE HAVE thats just not adfing up anyone who has stufied the disease and medicine would kbow tgis is for sure not soley responsible..I have shunting in nmy blood vessels but I dont at all think its responsible for everything I go through. . Guys dont bash one another also PEOPLE REALLY NEED TO REALIZE THAT IT IS IN THE AUTOIMMUNE SYNDROME FIELD OF DISEASE and everyone will experience this differently some get well from different treatment that doesn’t work for others at all but telling someone they are crazy because they share what did help for their own body is really irrational and ignorant. If u know how diseases and syndromes work you would know we are all very different also some can have it chronically while some may have it mildly in comparison to what the chronic sufferers feell like myself. ..
    PLEASE STOP HATING ON EACH other. .solves nothing

  629. I have had FM for 25 years. It started after a series of traumas, emotional, at age 42. For me it is a constant management issue that is not on my head. CYMBALTA ,has been approved by the FDA to treat FM. I have found it quite helpful as a ‘pain wash’…..I also require a 2 hour nap each day in the afternoon. Walking is my best exercise in or out of water. I live a relatively full life since I have adapted to this syndrome . I am a self employed artist, and while doing my art I am pain free….mostly. It is a complex scenario …..proper diet is important as well….no dairy or red meat for sure . I feel everyone has to find their own CURE…. Any kind of surgery does me in because of the rehab so I focus on wellness , stretching , mindfulness meditation and acceptance . Of course at times I feel really discouraged but I continue to manage my life as it is given to me. My faith helps me a lot, and the understanding of my husband is a blessing. FOR WHAT ITS WORTH!

  630. Linda Yonna Angel this is such bull$hit, I have had this disease since my teen years, and it has done nothing but progress, progress, progress. Now things are freakin horrible and the pain has spread to my face. Dr. Murphree is a specialist in fibro field, and studied this disease many, many years… there is NO CURE only treatment. They might have found other related symptoms, so please don’t get your hopes up they they can cure you cause it’s crap!

  631. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy.” If you don’t like doctors, don’t go to them.

  632. Rosemary, thank you for posting your success. I am interested in knowing where this trainer is located and more specifics of what he has zeroed in on with his treatment. I need both knees replaced. I have participated in a fibro study from University of Michigan with internationally renown fibro specialist, Dr. Daniel Clawu. His lectures are free and you can see the hour long video on YouTube. Here’s the link to one of them: http://www.youtube.com/watch?v=pgCfkA9RLrM He has learned which drugs work best depending on the individual’s hormonal response to their pain pathway. For instance, my body produces a lot of cortisol in turn over produces epinephrin so a regimen of taking epinephrin would be overkill and put me in even more pain. What he’s leaned takes away a lot of trial and error of which pain medication works and which doesn’t work.
    I learned that even after the joint replacements often times the pain does not go away as it’s the pain pathways from the brain that need to be changed; however the joint surgeries can result in greater mobility and with the knee eliminate risk of falling from knee buckling. I am convinced also that addressing vitamin deficiencies is helpful. Hope this is helpful and please send me information as to specific protocol your trainer uses.
    Edie

  633. I have been suffering with this dreadful ( not life threatening ) problem for the past 8 years.I am a young 73 year old lady who 4 years ago had a knee replacement and have needed to use a crutch since then. With the pain of FM and the new knee I could not get the physio done as I should have so the knee did not heal well at all.
    In pain with FB and not able to walk properly I became almost bed ridden.
    Three months ago I had to have a hip replacement in the opposite side of the bad knee.
    I realized that if I did not get up in my pain and put in a much greater effort to heal the hip, I would most probably be bed ridden for life.
    This scared me sh…less so made a promise too myself, but could not do it on my own and I became very scared.
    Fortunately for me, a man who was a trainer, walked into my restaurant one day and was telling me that he managed to get an 86 year old gentleman to walk again after he had been bed ridden for 4 months and was giving up on life. This man after 7 months of training every day was now walking two km a day with the trainer. I asked him to help me and he has been here 6 days a week for the past three weeks and I am doing great.
    I still need both crutches for support but my legs are definitely improving a great deal.
    Point I am actually trying to make is that my FM has improved a staggering amount.
    He is focusing on my neck, head movements, shoulders, arms, and these are the areas where my body has been seizing up and I could hardly move these areas.
    My pain is still there but am not taking any pain killers at all. I am starting to move my arms, neck had, from side to side an can get out of a chair without much effort, Hardly am aware of the pain which drove me demented, although it is still there when I touch the areas. All these excercise have been done sitting on a chair.
    Even marching while sitting on the chair. I cannot believe that I am saved from what was, and what I was allowing to happen to me.

    Rosemary

  634. Iv had fibromyalgia for 7 yrs now. Im 36 and hav 5 boys. Not long ago I read another article stating that it had found what causes fm and cfs. I got all excited thinking how I cld hav my life back and get out the damn wheelchair once and for all. Well, it was all a load of rubbish and im sorry, but, until I hav full proof evidence of a cure in front of me then I wont and can’t believe these articles. If anything they make it worse, as I get upset tht im stuck with this THING even longer

    1. Teresa, I was diagnosed 6 years ago and the meds they gave me did nothing! Luckily I discovered essential oils. I know they sound crazy but they really do work and I have gotten my life back. I can even play with my son without feeling like I’m going to die! Check out my Facebook page if you’re interested. http://Www.facebook.com/naturessolutionoils
      I hope you find the relief you are looking for!

  635. I have Juvenile Fibromyalgia, and I’m not sure how that works because why would the amount of shunts I have reduce?

    I was given the option for anti-depressants but I refused because I thought that was crazy. But my doctor just suggested to take paracetamol every day, which is also crazy.

    This was late 2013 also, so the details were there. *sigh*

    I was 16 y/o when I was diagnosed, I hope a cure is found soon.

  636. This is great news, the news I have been waiting for a long time to hear. I feel very happy that there may be future cure for Fibromyalgia.

    I am now 65 years old grand mother and ten years ago I was diagnosed with Fibromyalgia. For a long time I was thinking the pain I experience daily, is from my injured back, and neck, lack of sleep etc, from which I have suffered for many years.

    In my early twenties I have incurred injury to my back and doctors, each time I was admitted to stay in the hospital, have suggested an operation on my lower back, which I have refused. Our family GP would prescribe some drugs for the pain when I am in a really bad way, which I didn’t want to take very often. Eventually our 3 children got married, by then I was in my mid forties and I had more time to rest but the pain has been on an increase and all over my body.

    However, 10 years ago, I was with my husband in the hospital waiting room, waiting to hear the results about our family members who were that day in the car accident. I had this pain, which was just below the shoulder, at the front, it has alerted a nurse who was watching me for a while pressing on and rubbing the painful spot.

    The nurse has asked me about the pain, to which I replied it’s OK, I’ll be fine, but they have done very quickly the ECG recording, which even though I keep saying to them I don’t think this pain was anything to do with my blood vessels of my heart, if it had, I think, I would have been dead by now, since I have suffered from this pain off and on, every week for few years, I think it may be from my bad neck. ECG was ok, but they didn’t stop there, another doctor came to see me. He started with some questions, if and where else I feel the pain?

    For the first time I thought I will tell the Dr. exactly what I feel, even if he would not believe me. So I described how I feel dreadful pain all over my body, even being touched on my skin, I could count everyone of my ribs, on the back and front when I lay in bed, I experience daily sharp shooting nerve pain that is occurring spontaneously, several times a day and night, just about anywhere on my body and my limbs. I said, if this is all in my head, then he can suggest and give me a referral to a good psychiatrist. I have had enough of pain, and I am sure my family was sick of me being sick and tired. I have hardly ever had but a few hours of sleep or none at all sometimes for few days, I have started doubting that the pain can be some physical sickness, caused by my back or neck injuries and diagnosed osteoarthritis, because it got so wide spread on my body, yet all my blood tests and other results are fine, so I thought, it may be all in my head, (mental illness) I have seriously started to doubt my mental state.

    The good new was, when Hospital Doctor said that I am not mentally ill, there is actually a name for this mystery pain that I am experiencing, it is called, Fibromyalgia. It was all news to me, I have never heard of this sickness before, but in a way I was relieved to hear that I have the physical sickness with a name, rather then, that wide spread pain stems from my imagination. At that time, there was nothing Doctors could do but to prescribe some strong pain relief, it was type of steroid medication. Taking this medication, I have had some side effects, so doctor has agreed, to stop the medication after two month, after I have had some pain relief.

    Upon learning of my Fibromyalgia the same day I have started to search the net for any information I can find and found that the diet and exercise can help, but there is no cure. Now, years later, there is so much more information on Internet and anyone can find something they can try to do, to get some relief from Fibromyalgia instead of using drugs, until the cure is available.

  637. The date of this article states June 2013 so where was the “breaking news” story on this. I tend to feel like the poster “Kerry” that I’m calling BS on this as well. My Chronic Pain doctor has not mentioned a thing to me about this finding. I have pretty severe FMS/CFS which was brought on immediately after having Viral Meningitis. Spent 5 days in the hospital, when I was released my body was never the same.

  638. The Headline should read, “Scientist has a Theory, Big Pharma to follow up with an overpriced treatment, since there is no possible cure.”

  639. I don’t think I’ll believe this as in a lot of cases Fibromyalgia can be brought on or exacerbated by a sudden injury such as a car accident. I don’t see at that would have to do with the blood vessels in one’s hand. Yep… I think I’ll be calling BS on this one!!!

  640. Well this might explain why Rhuematoid Arthritis Anti-Inflammtories have worked amazingly on me within the past week or so…I dont want to jinx myself….but I havent had sharp shooting chronic nervepain within the last few days…..they might be onto something!!! I PRAY!

  641. Forget about the medical people who did not know how to help – mine knew there was something drastically wrong when I could not get out of the bed any more and I was frozen stiff with cold in the middle of the hottest part of summer!!!! I am 65 so not ready to be over the hill! He gave me some heavy doses of multivitamin injections which helped enormously ( until the next bout), I am going to mail this to the various doctors who knew about fibromyalgia and tried their best to make life easier for me! Congratulations to the people responsible for the breakthrough – I cannot wait to experience the new treatment. By-the-way, I also took note of the things that could bring on a worsening situation such as to not put my hands into cold water, keep my hands and feet from cold breezes and to stay far away from diet products with aspartame. Everybody should read up about this stuff!! – its bad bad bad!! I stopped drinking diet products with it in and found a huge difference but then I thought lets just have one (turned into 2) and boy did I immediately suffer I have also had very good results from daily drinking Sutherlandia Frutescence (commonly know as Cancer Bush). We now grow our own on our farm and grind it into a powder which I put on my tongue and swig it down with water. Its very bitter but when something works, you soon get used to it, I must say that with the various meds etc that I take for the condition, I manage well – keeping in mind how bad it can be. So good luck to everybody who is working on a perfect solution – I love them all! Susan

  642. The doctor sent me to a specialist who sent me to a specialist and on and on and on. They the medical aid didn’t pay these as I should have gone back to the doctor beween each specialist. I was marked positive eventually by a neurologist and then he left, so I stick to my GP who understands. Nobody else does. You get the look – really did you read about it???

  643. Well Mike it’s just so frustrating when the dr’s keep saying well we just don’t can’t find anything wrong with you!!! How many women have had unnecessary surgeries because these men just didn’t take the time to really put any work into finding out what was going on with us. Doctors sure have become very heartless through the years. And yes I hope they all get indigestion from eating crow also.

    1. Wat vir my die meeste irriteer aan n dr. Is die simpel skalse glimlag wat om hul monde speel wanneer mens die woord ” fibromyalgia” noem. So asof hul dink dat mens in een of ander inrigting plaas hoort.
      Ek sal bitter graag…. Net vir een dag… My pynpakkie aan hulle wil porhandi. Net vir een dag. Sodat hul definitief kan weet dat dit real is.
      Hope you guys and girls understand Afrikaans. I will repeat it in English is you like?

      1. I can understand Afrikaans surprisingly well, as it is very much related to Dutch. But I doubt this community have a lot of those, so I think it would’ve been better to write it in english.

      2. Ja, ek verstaan en praat Afrikaans vlot want ek het in Pretoria Suid-Afrika groot geword!! Ek is baie opgewonde oor die uitvindsel! Ek ly al 12 jaar aan die gemors en kan nie wag om van hierdie helse pyn verlig te word nie!! Good luck vir jou my SA vriendin!

    2. All these years Iv’e been told by my female doctor it was in my head, even though I was a extremely man before

  644. Ladies, I know the medical profession has always taken the problems that effect you more than men and spend way less on research to find a cure. They are also more likely to say it is all in your head than with a problem that effect men. Since I have a disease related to Fibromyalgia if not Fibro itself the treatment I have received and comments made to me by some Doctors have been beyond rude. I do hope this information spreads quickly through the Medical Profession. Moreover, I hope that some of those Doctors get indigestion from eating crow.

  645. I have had arthritis pains for over 20 years now, but 6 years ago I had surgery on my right hand for carpal tunnel, after the surgery the pain became constant, 24-7, the burning is unbearable, sometimes I feel like my whole body is on fire, I feel it most when it is damp and sometimes when it is going to rain, living in Canada where the winters are long and hard makes it worse, I am originally from the Caribbean but have spent most of my life here, moving back there would mean adjusting all over again. I tried taking one medication my doctor said would help, it almost killed me, I suffer most of the time, on
    occasion I take Tylenol arthritis, that helps for a few hours.

  646. Interesting reading on the subject: See:
    High Fructose Corn Syrup and the Fibromyalgia Connection: Fibromyalgia Recovery Handbook by Janice Lorigan (Dec 17, 2007)
    (2) See Amazon.com for the book.

  647. I take lyrica does anyone else? It helps me at least be functionible but I depend on them now.. I’m in constant pain throughout my body daily.

    1. Iam suppose to take lyrica, cymbalta and amitripaline. It was all too much for me. Ive been suffering threw each day. Different things will help different people tho.

      1. The one med I take that is the cheapest with the least side effects, and is also the only one that helps me function as a normal person is 10/325 Hydrocodone 4 X daily. I have been taking this same dose for more than four years. I took Oxycontin for a month once and only had to take it twice a day, but it’s very expensive and at the time, my insurance wouldn’t cover it.

        1. You are obviously taking this for pain Paula, but it can become addictive. It is mostly used in the U.S.A. In fact 99% of it is used there. Personally, I don’t have that much pain, though am taking an anti depressant for it, and Trepiline which helps with pain and a good sleep at night. I just thought I should copy on here, the side effects, which are many with your medication, and a lot of people might be getting a lot of these side effects on here. I get a lack of balance and lack of co-ordination, and sometimes foggyness of the brain at times. Also light headedness and constipation. So people on here, be careful.
          See below:

          Adverse effects of Hydrocodone

          Common side effects of hydrocodone are nausea, vomiting, constipation, drowsiness, dizziness, light-headedness, fuzzy thinking, anxiety, abnormally happy or sad mood, dry throat, difficulty urinating, rash, itching, and narrowing of the pupils. Serious side effects include slowed or irregular breathing and chest tightness.[9]

          Several cases of progressive bilateral hearing loss unresponsive to steroid therapy have been described as an infrequent adverse reaction to hydrocodone/paracetamol misuse. This adverse effect has been considered due to the ototoxicity of hydrocodone.[10][11] Researchers have suggested that paracetamol is the primary agent responsible for the ototoxicity.[12][13]

          I still continue to struggle with Fibro, in fact over the years seem to get worse, but am going to have all my Amalgam fillings out and replaced with white fillings, and then go on Chelation therapy. Lots of people have got so much better after doing this, but go to the right dentist and do the Chelation.

          1. I don’t get sleepy on hydrocodone, in contrast, I become wide awake and pain free for at least a few hours at a time. I’m not addicted and statistically speaking, nobody with chronic pain conditions such as fibro or RA become addicted.If you check their dosages, they remain the same for years with no increases. Additionally, I have only one of the side effects and that’s constipation, but eating extra fiber and drinking plenty of water takes care of that issue. My fibro and arthritis are so severe, I couldn’t work the two days a week I work currently without my medication. I’d be bedridden and writhing in pain. Hydrocodone has made me a productive member of society again. Finally, One should never paint everybody with one brush. We’re all biologically different in our responses to specific medications. Hydrocodone is what works for me.

          2. I HAVE A MALABSORTION PROBLEM SO MEDS DO THAT TO ME TOO 🙁 THE ONLY WAY TO FIND OUT IF YOU HAVE MALABSORTION IS FOR YOUR DOC TO GIVE U AN ORANGE BOTTLE THAT U PEEEEE IN FOR A WEEK. NO BLOOD TEST CAN GIVE U THE INFO. WHATTA WORLD. WE NEED DOCTORS WHO GIVE A U KNOW WHAT AND DEVOTE RESEARCH TO FIBRO AND R/A SOOOOOOOOO WHO R THEY???? AN R/A DOC AT A CLINIC OR KAISER JUST DOESNT CUT IT!

  648. Johnieuno, you hit the nail on the head. Everything you describe I feel. The barometric pressure is the worst and when I tell anyone how it bothers me they think I am nuts. Glad to know I am not the only one to feel this.

  649. I received my diagnosis about 10 years ago. I have had injections into my facet joints (for back pain), anti-inflammatories, anti-depressants, anti-seizure drugs, lithium carbonate and Parkinson Meds and that is only a short list, I have bad pain in my hand and strangest thing of all is my continuous splinter haemorrhage’s under my nails ( these can be excruciatingly painful, after reading this article I’m now wondering if these are related to my Fibromyalgia. Just a thought, Lets hope there is a cure in the near future.

  650. I have suffered with this condition for many years – I would say from childhood – however, was given a diagnosis about eight years ago. I have had epidurals, anti-inflammatories, anti-depressants, anti-seizure drugs, thyroxin, to name but a few. don’t be in a rush to just take medication – one medication I was given I was told it was a new miracle wonder drug. I was started on it. one of my symptoms of fibromyalgia is sleep deprivation – I was told this new wonder drug would make me sleep and remove my pain. I took it – I didn’t sleep a wink for days or nights, I got to the stage where I wanted to rip my heart out and was on the verge of suicide – when my care giver contacted my consultant who prescribed the medication and told him how I was feeling the consultants response was “oh yes, sometimes it makes people have suicidal thoughts”.
    please do not just accept everything you are told – my pain management consultant told me that you will hear of all wonder cures for this ailment but he advised me not to waste my money buying these so called wonder drugs and supplements or equipment. I have stuck to that advice.
    I would be wonderful to find a cure for this ailment – but I am sure that fibromyalgia is caused by either or both physical or emotional trauma – and just because it might be emotional trauma which can cause people to end up under psychiatric care, please don’t be ashamed of it. we are body, soul, heart, mind and spirit – and it isn’t just the body needs healing but the whole person.

    1. I too have suffered from FM for 20 years. That first morning I woke up sick, I had no idea my life was about to change. As I’ve gotten older, it has become more difficult to tolerate the symptoms. I’ve seen many doctors through the years and tried many medications to no avail. I believe I have the true definition of this illness: pain from head to toe, chronic fatigue, sleep deprivation, cold sensitivity and very sensitive to the barometric pressure changes in the atmosphere. I had to move from N.Y. to the desert of Arizona. Drafts are my number one enemy, which triggers a flare up. When I go to sleep, I have to shut the AC off. When I woke up this morning it was 92 degrees in my house. I continue to search for something that will help. Good luck to all FM sufferers.

    2. Alice I know exactly what you mean. I have multiple sclerosis as well as fibromyalgia which for years and years plagued me & still does. Docs don’t know & I’m convinced that its a memory bank of unseen pain from generations ago that gotten into our developing cells as a baby. I tell you for why.
      I believe that famine going back further than our grandparents may be key. Here’s what I think! This btw was a point mentioned on my local television & completely made sense from all the Bull that we’re told.
      When the times were hard & food was scarce, nutrients were hard to find. Then the industrial revolution came (oh my)! What a Calamity & still is. Yep you’ve. Guessed it CHEMICALS!
      We are sensitive to chemicals with this affliction that trying to trace the problem is not available in any book you read.
      I could go on but hope you get the drift in what I speak.
      I trust herbs completely as they are my friends mother nature’s Lil helpers.
      I use herbs all the time and takes time but believe me they do work, you just gotta experiment, not to be afraid as they won’t hurt you.
      Good place to start would be to use essential oils anyway you see fit & go from there.
      Hope this makes sense & helps
      Alexi

  651. Maybe I’m misreading the article, but it’s interesting that researchers have now found that the main source of pain had something to do with nerves.
    About 6 years ago I was sent by my doctor to a rheumatologist due to the pain, I wasn’t getting good sleep because of the pain and had trouble doing things. The rheumatologist discovered the pain was at distinct tender points. I was tired and somewhat depressed because I wasn’t getting good sleep. I never had pain in my hands or neck. I was diagnosed with fibromyalgia and she said it had to do with the nerve system. Neither my doctor nor the rheumatologist ever insinuated it was ‘in my head’. I wish I could remember the treatment I had.

  652. Fibromyalgia can be treated in the same way that adult onset anencephaly can. This is due to similarities in the supratentoral properties in sufferers neuroplasticity

  653. Please mention the new drugs name. So we can start using it and see if it works.

  654. I have been told that I have Fibromyalgia, was told it is the pain I get in my muscles can anything help ? I’m under the hospital doing excersise ~ Luv Pamx.

  655. I have no pain in my hands…my wrists I do, as well as other pain points. I get the numbness but that’s because I also have DDD.

  656. I would like to try whatever treatment that is available. THEN I will be able to tell if either one works. I’m game if you are!!

  657. i have alot of pain in my hands , i work 8 hours a day and my hands are good , but when i stop working them i cant stand the pain , dr thought i had arthri , but further test showed not too be , in warm weather like during hot summer i have no pain , sleep is better too, on my days off work i just cant move , i take lyrica every day and it keeps it semi undercontrol , and i sleep,i have local pain in my back neck and hands , but very soar to touch any were eles , if one thing i learned is o keep moving , walk work and doing any thing out side in the sun , i wont give in ,

    1. Pain pain pain everywhere. Till in my tooth!
      What is the liryka medisine they are talking about? Please can someone tells me?!

  658. It doesn’t make sense to me! I have no pain in my hands and no loss of sensation in them either.

    1. Same here.. I truely think they make a medical mistake with that statement.
      Please search again and come up with something more worthy.

      1. There is another theory, which is being used to treat patients all over the country: Meningeal Space Deficit (MSD). MSD is caused by the Atlas vertebra malaligning, causing traction on the meninges at the base of the skull, and results in irritation of the spinal cord. Because the ENTIRE cord is there, and the meninges are tractioned up and down the spine, symptoms of pain are varied and cannot be traced to a specific point of origin. As a chiropractor who has unsuccessfully treated FMS patients for 24 years, learning this method of treatment was a revelation to me (and my patients) 2 years ago. People with chronic pain, fatigue, depression, strange radiating sensations, have responded beautifully to this new treatment for FMS patients.

  659. I have dealt with this most of my life. My paramedic husband at the time told family and friends that I was a hypochondriac. No wonder no one ever believed me. I have finally come to terms with it but there are times (especially when the barometer makes a big change). My heart goes out to anyone who deals with this or any other “silent” disease that people can’t “see”.

  660. Wow! This is a fantastic break through for all such sufferers, and I am wondering if it could also relate to R.S.I Sufferers pain, too! I will pray for a cure every day. Wow

  661. I was diagnosed by 3 different doctors in 2002 but a further 2 doctors insisted it was ‘in my head’. No pain medication works and I’ve been on so many. Sleep deprivation is literally, a waking nightmare and adds to the sense of helplessness. Depression is understandable when you are exhausted, in constant pain and then no-one seems to believe you. ‘Pull yourself together and get on with life’ seems to be the default therapy from the majority of doctors even after all these years.

  662. This doesn’t speak to a fundamental cause. Chronic vitamin D (cholecalciferol) deficiency is an extremely likely cause. It is over-the-counter as D3, which is cheaper than bottled water and safer than water, yet the vast majority of people are profoundly deficient. Fix your deficiency, get your 25(OH)D blood level to at least 50 ng/ml for a month, and THEN decide what to do. That’s the “mother-nature” blood level, and it may take 5,000 to 10,000iu per day to get there.

  663. My dr has sent me to the Gym twice week,best thing for cronic fatigue /fibromlitis he says, 100 per no,feel racked,32 week course,its killing me,truly is..

  664. I need help I have fibromyalgia I hurt every where and yes my head??what can I do?? 480-203-6613

  665. Wow – I thought it was something else. This now makes sense as to how much pain I am in even the fact I hate going to the hairdresser as my head is always sore..

  666. Anna you can now get a vaccine for shingles ..I no longer get mine ..you can still get it even if you have had a out break

  667. But will gp except it I was diagnosed in 2008 and was sent for physio which was sit on a chair will nurse pull face and tells you see don’t know what I want from her and my gp just ruled it out and said it’s in my head there is no pain so since then I struggled on with no medication or help at all

  668. I hope the NHS in the uk will have this info. I had a neck injury 3yrs ago which brought on Fibromyalgia and the pain at time is so bad I have to go bed to try anf relax.

  669. Same as Shingles and other illness sometimes it does not show itself until advanced years. I suffer from Gout. Never had it till I was in my late 50’s. It too is an acid caused illness, causing pain. Great pain. I believe I have had gout all my life but it never manifested itself because my immune system fought it successfully. Now that I am older my body does not have the vigor to fight it. It is not rocket science. Our ability to fight infections/disease becomes less with age. It’s the body telling you, you are no longer Superman/woman

  670. I´AM SO HAPPY WITH THIS ARTICLE ! I HOPE THAT THE CURE WOULD BE FOUND SOON !

  671. I sincerely hope this is true and leads to a cure but one question nags me. Presumably those affected would have had this excess of blood vessels all their life, yet of those I know who suffer (luckily I’m not one, and pray I never will be) the majority have been fine until later in life (my next door neighbour, though having osteoporosis since her 50s, didn’t develop fibromyalgia until her 70s). So why haven’t they always suffered from it?

  672. Just so relieved that there is now proof it’s not all in my head. Fighting prejudice whilst struggling with a chronic illness has in itself been unbelievably difficult (understatement)!

  673. The article says nothing about a CURE. It states they have discovered what they Believe to be the reason for Fibromyalgia— and the Hope for an eventual cure. I wouldn’t celebrate just yet. There’s been a cure for cancer for years— Do you see anyone using it? Not in America!!!

  674. I have a step mom who has this, and the doctors thought it was in her mind and she was crazy. Reading this!!! Makes the smile on my face so large. To know that she will have a cure and some form of pain relief is amazing!!!

  675. This explains y every fibro bout begins with pain in my hands and they r theblastbbit to feelbbetter too yaaayb

  676. I am so happy they have found a cure. I am 20 and I am tired of going through this. I would really like to know the cure.

  677. Just another article with tidbits of maybes getting our hopes up again. Maybe they r closer to a better treatment, maybe closer to a cure, maybe they could give us more info since they seem to have more. Don’t get me wrong please. I’m grateful for whatever I can learn but I’ve been down the many paths of maybe many times & to me this feels like another.
    I pray for us all that we can hold on, find our way to a better life of better health so we can enjoy our families & enjoy working, social events, hobbies & etc.
    Peace

  678. So where do we go to get this help this cure? Who do we call? This only reads they found what they believe that causes fibro. But no proof of who to call what shall we call this cure????

  679. i have been hoping for the last 20 years that they can find some sort of help to ease the pain of F,M.S its not getting any easier with age ,the self help eases it for a few hours but comes back with more pain and an empty pocket .their is so many different things ,it can bring on .walking is a pains aching problem at the mo .i do get down but always somebody out their ,who has bigger problems .so keep your chin up boys and girls love to you allx

  680. “bringing relief to as many as 5 million Americans thought to have the disease.”
    Any reason why the rest of the world don’t deserve any treatment?

  681. My symptoms were caused by stress and a wheat intolerance. I started taking digestive plant enzymes containing cellulace, lactase, amylase and protaese and my symptoms are gone.

  682. Paula J. Countryman, you hit the nail on the head. I do believe it does stem from childhood trauma, and the fight or flight reflex. We may be predisposed to it genetically, but the trauma brings it to a head.

    1. Linda Marie Jones, I endured emotional and physical abuse from a parent, was raped by a stranger, had the Hong Kong flu, a severe case of shingles, and a car accident..all of before the age of 20. So I truly think that we with fibro all share a common thread of PTSD.

      1. @Elizabeth Biggs: questions about these plant enzymes:

        1. After how many weeks you felt better?
        2. How much do you take a day?

  683. It’s interesting to me how the article makes it sound like we were born with this abundance of cells because I was always taught that fibro sufferers were mostly trauma sufferers who had childhood trauma or ptsd, rape, drug addiction, car accident ext. . And for every person I know with it that’s true. But maybe u also need to br predisposed with the cells?

    1. If going vegan was the answer don’t you think everyone in the world would be vegan?

  684. OMG I pray that they find at the very least something to help control the pain BESIDES narcotics!!!! I’m tired of being in physical pain all day every day.

  685. Well, all I know to tell you, “Anothername” is walk with us in our shoes. Some of us don’t even take the drugs. Some do the self help thing. While you’re at it, have some heavy periods, have some babies, and get you some ruptured discs, then tell us, “it’s a self proclamation. Karma gets around sweetie. Hope that you have someone on your side when you finally fall. Thank you for your “concern.” Can’t imagine why your in this forum commenting anyway.

  686. Also fibro can be a co disease. It often goes right along with Parkinsons, RA, and many other diseases.

  687. I’ve never been treated as if it’s all in my head. As a matter of fact, my regular doctor told me he thought that’s what I had and sent me to a rheumatologist. I’m not well by any means, but these 2 doctors have done so much for me after all the time others were trying to figure it out. I had neck surgery and have back problems, so I thought it all was coming from that. I hurt and felt so bad, that I felt it HAD to be that. Six out of seven discs in my neck were shot. Pretty serious stuff. So, I had hurt for years, tired for years, stomach issues for years. Thought taking care of that neck problem would “fix me”. Nope. And then I got married, got better insurance, had to switch doctors, and boom, right off the bat my regular doctor said it. I hate the fact that many of us with fibromyalgia get treated like we’re crazy. It shouldn’t be that way. I was blessed. Still feel like crap 99% of the time, but at least I know.

  688. So you say the mystery is solved then what can be done for fibromyalgia patients to be cured? Nothing is “solved” until we can be cured or that there is something that can be done to heal our pain.

    1. It’s not saying they found a cure, only that they found the cause. Stay calm and patient, positive thoughts help too. I’m hoping they find a cure SOON, as should u. Tender hugs ur way hoping ur pain is minimal.

  689. It isn’t saying the av shunt IS the nerve fibre it is referring to nerve fibres around the Av shunt

  690. AV shunts are not a nerve fiber !!
    AV shunts means there is an abnormal connection between the arterial and venous system of blood flow – not nervous tissue at all
    please provide a link to the real scientific literature findings

  691. I am a sufferer since 1994 – that is when I was, at last, diagnosed as a fibromyalgia sufferer.
    Belittled since then by docters,family and friends. tired of drugs!!!! don’t want it anymore. Going to see a naturopath who is also a general practisioner now

  692. What if “they” declared that general overall aches and pains were called, “plastocenesis myalgia” starting TODAY?

    Tomorrow, we would have literally THOUSANDS of patients declaring that they have a made-up disease.

    It’s been proven in the past.

    It’s called “fibromyalgia.”

  693. If ever they need fibromyalgia patients to test a drug for the sickness. I will gladly respond. I am a sufferer for about 19 years now. I will NOT give up!! Somewhere, someday there have to be a solution for this situation. You own this sickness…. The fibromyalgia does not own you!

  694. What a bunch of morons perpetuation the myth of “fibro.”
    “Lymes.”
    “Spirolina.”
    Hell, ya’ may as well boil leeches and chug em’ down. And make sure you’re facing Mecca when you do it.
    Fools.

    1. The “Myth of Fibro”? Ive suffered with this Syndrome for 10 years, this is no myth

  695. I tested positive for lymes and still think my fibromyalgia is a co -disease to the lymes, tired of the drugs !!!

    1. If fibromyalgia/chronic fatigue is caused by build up of lactic acid, all we need to do is find a cure for cramp. Salt prevents cramp, that is the contraction of a muscle, so perhaps drinking salt solution might help with the pain. Any comments?

      1. Drinking water and saturating your muscles with water prevents cramps. Salt would help retain the water. It sounds like chugging water after salty popcorn may be our cure!

          1. No, it’s not. There is no answer, which is why they theorize. But, most of us have had some type of trauma or ptsd, which plays a huge role. Living with the flight or fight response in full mode during childhood or the teen years is common in many with Fibro.

  696. I can’t take exercise because of FM. So that seems to be advice based on ignorance. I’m not overweight either. Lately my hands have started hurting, especially the balls of the thumbs. How does the number of A/V shunts in the hands translate to overall body aching? Is this lactic acid? Has anyone noticed the symmetrical nature of the body aches? If my left buttock aches, then so does my right buttock and in exactly the same way and to the same extent. This hand A/V lactic acid build up theory would explain this

  697. So you are rejoicing that “patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved”. I hope you say the same of Cancer, AIDS and Muscular Dystrophy patients etc…

  698. My son has Fibro i am so glad there has been a break through .All the sufferers can look forward to a better life now.

  699. Who can explain why the greater majority of FIBRO SUFFERERS are females .The theory given above re “excess blood and its nerves endings” does not really compute to me.

    1. why not? women also have a higher inclination to anemia.. they get a regular period.. so many things that connect to blood vessels..

  700. God bless each and every one of you suffering out there. I do not have fibro and there fore can’t imagine what it must be like to be in constant pain. My niece has it though. My problem is that my body shakes, sometimes quite badly that I jump with it. Nothing can be found to explain this condition. I too have had comments such as you could find a job. Doing what? Even clearing tables if I started the shakes could have problems (imagine a tray of pots bouncing up and down lol) Linked with this is depression, tiredness, loss of memory about things that have happened a short time ago. Keep strong and take care of each other

    1. Elizabeth, I never reply to any message but had to reply to yours. Please please do not go only to western medicine for results. consult a chinese medicine therapist and I promise you wont be disappointed. I gain nothing from this except the hope that you might find some help. Second thing is if there is overweight involved do your best to treat that as well

      1. Go ahead and have Fibro. It’s great entertainment. You can’t be called “wrong” as there is no proof of having it or not having it.

        It sells drugs.
        If gets you drugs.
        It gets you time off.
        It causes arguments.
        It stops arguments.
        It makes you special.
        And you want to be special.

        But it does NOT make you responsible and that’s what you really want most of all, isn’t it?

        Fat, female, 40, fibro. Gimme’ some lortabs and FMLA!

  701. People, I have suffered from fibrmialgia as well for several years!!! BUT LISTEN TO ME!!! Fibromialgia is caused by demonic entities!!! Surrender yourself to Jesus as I did and you guys will be cured! Go to church as for somebody to perform an exorcism on you adn surrender to the teachings of Jesus! Believe me, I went through fibromialgia, going from doctor to doctor, years of pain, but what healed me was an exorcism….I recomend checking out brother carlos exorcist you tube videos….

    1. Thank you Gabriel. I would like to add though that you make sure you pay your exorcist enough, or you will get repossessed.

  702. Those that think its down to being over weight and people not exercising enough have no idea if that’s the case why has my eight year old daughter got it, she’s not over weight and we keep her moving all the time.

    1. Again, it’s a “disease” of proclamation. I have it. I just told you I did. And that’s all it takes.
      You can’t prove I don’t have it.
      No one can prove that I don’t have it.
      Got it?

  703. Excuse me but I am not even fat….. And i am even active. I push myself to the point of tears. You can ask my family. I am and have always been a strong and independent women until this pain took over my body. It really takes over like right now when a LONG COLD winter has been around. But I still move around as much as I came. Walking lifting. I have a very active job. So for you to say such a thing is wrong. And oh by the way I am almost 40. So to be some what polite I won’t use the word I want to use towards you right now because obviously you do not suffer such pain. Last night I couldn’t even sleep I was crying nothing wood help my body relax. So I would gladly give you mine and take yours any day of the week….

    1. Tammy, You do not need to defend yourself to a mysogynistic troll who is not educated enough on neurological disorders to even guess that it isn’t just fatigue we suffer. I guess scoliosis and sleep apnea are all in our heads too, as they often go hand in hand with fibro. Let this troll get erectile dysfunction and watch how fast he runs to the doctor to perk things up again. LOL

    2. you go girl let that man walk in our shoes for about 3 day and let him have a bad day then he cant say we are faking it thank the god lord hubby and kids are up to date about firbo

  704. “Fib-ro” is not a disease. It’s a statement. You can’t be diagnosed, you can be declared. It’s a “disease” of self-proclamation. Sorry you girls, (and the rare guys.)
    Lose weight
    Get some exercise.
    It’s absolutely preposterous that the women of the 1940’s and 50′ and 60’s all NEVER HAD THIS until it became popular.
    It was the same with low back pain.
    You had to take a mental exam before qualifying for surgery. Doesn’t that tell you something? The MMPI. Look it up.

    Rise above. It’s in your head. Yeah, you can come up with “trigger points,” “tender points,” a convenient 9 point scale system, whatever, but it’s like medical marijuana. It’s a dodge.

    They’re actually having more vehicle crashes right now because of people with a “prescription” smoking pot and driving. Giving you a phony diagnosis will only do you damage.

    “Fibro” fosters dependence.
    Fat, female, over 40, fibro. A reason for disability and pain meds and stories to tell on the web for days on end.

    Rise above. You don’t have it. You’ve got occasional fatigue like everyone else in the world that has to work for a living. You’re shirking responsibilities.

    You’re all disgusting when you congratulate yourselves on your pain treatments and suggestions.

    <>
    <<Name is required February 22, 2014 at 8:36 pm

    What a MONEY MAKER, huh? Women with PAIN that they can completely MAKE UP to get out of WORK and get disability and pain medication for. THIS is fantastic! Hell, I may even get a sex change so that I too can benefit from fibromyalgia. And I better do it quick before they actually come up with an ICD 10 code and make it REAL! But all of the articles written about it will have to be changed, either way. And it will NEVER be called fake, because WOMEN are involved and we MUST cater to their “way out” of the work force that they struggled so long and hard to enter.
    Baby, I can’t work no more, I got fibro! Hug Me Drug Me, Gimme a check!

    1. Wow, really? I’m so glad you told us this. I feel all better now and go back to my job in construction. My doctor says I shouldn’t, but I am sure that if I just think possitive it will all go away. Thank you.

  705. Wow. This is an amazing breakthrough. I was diagnosed with Fibromyalgia about 9 months ago but have suffered in silence for over 10 years now. I have widespread pain throughout my body on a 24/7 basis some days good some days bad. I also have chronic bursitis in both hips and chronic back issues so battling with pain is a daily struggle for me but i soldier through it and try to ignore it as much as i can, but sometimes it does get the better of me. I constantly feel fatigued & have trouble concentrating like i used to and i have a lot of ‘fibro fog’ so to speak. No amount of pain killers help, they don’t even take the edge off the pain and it angers me sometimes that we have to live with this and our quality of life suffers.

  706. I think this is inaccurate. I personally know people who have brought their symptoms under control with Dr. St. Amand’s protocol, and turned their lives completely around. The protocol is working for me too.

  707. I couldn’t finish typing what I was trying to say. But what I was trying to say is you never know how someone TRUELY feels til you jab walked in their shoes. So your now walking in those shoes as it should give you empathy for others now.

  708. Right now I am in severe pain. I am constantly fatigued, and when I wake up in the morning I feel as though I have been hit by a mack truck. I have trouble concentrating. I am stiff, and sore all over. My elbows, shoulders, and knees are aching and it hurts to do things around the house. But I know people think it is all a crock of sh*t or something, even my husband does not really believe in fibromyalgia. By the way, I am a doctor. I was actually kind of taught it was a psychological problem, too. But I was also taught that morning sickness was a myth, and that menopause has only one or two legitimate symptoms. Live and learn, I guess. I suppose I might also be an arrogant azzhole who self righteously claimed that people were lazy whiners…if I didn’t experience it myself.

    1. I hate to hear you are hurting. Dr. Phil had Fibromyalgia on his show today and I am seeing more and more people starting to believe in the disease. I appreciate you coming out this way, it will help me when I hear those negative statements know that it is not all in my head. Thank you.

    2. Sounds like done karma. You treated patients bad and thought they were lazy whiners and didn’t believe in them now your in their shoes and

      1. That’s a spiteful thing to say. It’s not Karma, it’s a life lesson on empathy. None of us are perfect and who of us hasn’t been wrong on many occasions?

        1. Wasn’t trying to be spiteful. I have Fibro myself and if I had a dr that treated me like I was faking or crazy I would have wanted her or him to know what I go trough so then they would understand. So regardless of if you call it karma life lesson etc the fact remains the people you made feel bad you know can go back and say sorry to. You should make it right. Imagine now if your dr didn’t believe you.

          1. Christina, I didn’t mean to insult you. Anyone with fibro is my sister, so I’m so sorry. I hurt like hell 24/7 and it isn’t just pain, it’s muscle stiffness, fevers, aches and I also have degeneration of my spine, scoliosis, hiatal hernia, hypothyroidism, I could go on and on, but you know because you have your own pain story, As for not being believed, I not only wasn’t believed by my doctor, my family called me lazy and asked how I could mow the lawn, but not go with them to the store or wherever. I tried so much to explain, we ration our good days, because we pay those back with three bad days. Finally, I went to a rheumatologist that treated me as if I was made of porcelain and he gave the diagnosis. Gentle hugs to you! X

          2. Why do some doctors think the pressure points are the only way to diagnose Fibro? I have it then a Neroaligist try telling me I didn’t and I was off my rockers. That is why when we have long cold winters it is harder for me. When I have a hard long week at work I am in pretty much tears for the next 2 or 3 days. My hands feel like they are frost bit all the time. But the doctors think I am crazy. I feel like when I go up a flight of stairs every day I am doing it for the first time. I hurt that bad. I wish there was a way to take away.

          3. I know Tammy 🙁 I’ve tried everything, but for me, nothing kills the pain like Hydrocodone does (Vicodin) It doesn’t make me sleepy like it does some people, it makes me forget I have fibro and gives me back my life.BTW, My hands and fingers are cold too, which is most likely due to raynauds http://www.webmd.com/arthritis/tc/raynauds-phenomenon-topic-overview I also cannot regulate my body temperature. I can be freezing and perspiring at the same time.

  709. *Could* be. *Could* contribute. Other articles use the word “may” do this and that. Having suffered from fibro since 1992 and hearing about one new finding after another but never a cure, I won´t believe any of it until it says “Can” and “Will”.

    Besides, why are there no links to the original research that was done? Where was this research done and by whom (just one name is mentioned)? I would like to see more evidence. Without it, this article, to me, “could be” pure fabrication.

  710. No comment Moneymaker. Must be nice to sit and judge and have nothing to back your stupidity. Next time get the facts before opening that ignorant mouth of yours. I truly hope this is a cure. Bless you all for your patients love and hope

  711. I suffer with fibro I am a full time mother I own my own childcare I am a full time college student and I am lazy? Kiss my fibro a$$ I am certainly not looking for a hand out I have two children with Autism I’m guessing that’s fake too? You walk one day in my shoes pal I dare you…with the pain I feel you wouldn’t make it I suffer 14 hrs in deep tissue pain daily because I don’t take meds when children are present…keep your check and “hand out” find me a cure ill run circles around you!!!

  712. Unbelievable… this article , is complete and utter tosh! I wish you FMS/CFS/ME, my hope for you, to suffer in silence as we do!

  713. Moneymaker…you really are an ignorant hateful person. You obviously know nothing about fibromyalgia or you would think twice about your comments. Just an FYI I live in Canada where fibromyalgia does not qualify for disability, therefore I get up everyday and go to work to support my family……if I was only looking for a handout I would have certainly picked a condition that qualifies for disability. You my friend know nothing, so I suggest you think before you speak

  714. @
    Name is required
    February 22, 2014 at 8:36 pm
    What an utter cock-end you are!! I have suffered Fibro for years and have still managed to maintain a full time job! As is happens mine started after a man broke my hand!! My ex to be exact! You sound to be a bit of a woman hater yourself?! You complaining about it, coz your woman suffers with the disease after she’s taken a beating from you??

  715. I have no tolerance of bigots that purport to know more than anyone else and choose to stand in judgment of people they could never in a million years understand. We do not expect this .?????????. February 22, 2014,…8.36pm… to even remotely comprehend the pain levels that sufferers have on an average day, let alone on a bad day. I have suffered excessive pain on a daily basis, in various parts of my body, and I might add in varying degrees, for the most part of my adult life. I had a car accident @ age 14 – mild to serious – degree of injury. Over the following years I had further accidents, incest, rape and violence, depression, and numerous other conditions. As a result I ended up suffering Post Traumatic Stress Disorder. I am now 66 years old. It’s pricks like this un-named author that has kept me strong when others may have given up the struggle. I know people that have done that! I have for many years been of the belief that if Fibro-myalgia is indeed psycho-somatic then when a trigger was or could be finally discovered then maybe we could exorcise the bloody cause. Maybe we could be pain free. You must have a pretty sad existence if you find the need to ridicule people in difficult situations. Oh, and by the way MEN are afflicted as well. If it were women only then we could cry fowl and say …’well in your case anyway’… that it was caused by man to keep women sub-servant to man, and forever indebted to him for her existence’. Oh what a damn shame. You are not and we are not. Guess what if you are such an arrogant soul I wish you well because you would become nothing more than plebe on society and if you needed a hand ‘out’ I am sure many could oblige. Invalid or not.

  716. mine started with my legs and back and severe mental trauma in my life something i was going through set it off very aggressively and got very severe all through my body …nice to think there could be a cause found but the pain i am in daily i know is not just from my hands i agree with michelle burns

  717. Years ago on holidays I put my hand accidently on a sea urchin. I ended up with about 20 spikes in my hand, had nerve damage and it took weeks for them all to dissolve, as they cannot be pulled out. A few months later I noticed a pain in my upper arm. Came from nowhere….I was not sick or depressed or anxious or anything life was good and I was happy. That was the beginning of Fibro for me.I still think it was caused by this sea urchin, always thought it was some sort if infection but maybe nerve damage (which I did have). Interesting article.

  718. Other studies indicate other causes. Most leaders in research on this condition acknowledge that there is no on cause and that fibromyalgia may be an umbrella for a number of different but similar conditions, each with their own cause. Further review of this study indicates this action of the valves in the micro vessels mentioned in this study may in fact be a symptom and not a cause.

  719. What a MONEY MAKER, huh? Women with PAIN that they can completely MAKE UP to get out of WORK and get disability and pain medication for. THIS is fantastic! Hell, I may even get a sex change so that I too can benefit from fibromyalgia. And I better do it quick before they actually come up with an ICD 10 code and make it REAL! But all of the articles written about it will have to be changed, either way. And it will NEVER be called fake, because WOMEN are involved and we MUST cater to their “way out” of the work force that they struggled so long and hard to enter.
    Baby, I can’t work no more, I got fibro! Hug Me Drug Me, Gimme a check!

    1. you must not know no one with firbo because if you did you would know what they go though with it i have other health problems and i cant work but let me tell you i am not on disabilty the people that has it they dont look sick i would love for you to walk in our shoes for one week then tell ne we are faking it

      1. Not even a week, how cruel! After a moment with this pain and this person will be crying for his mommy.

      2. AMEN Debra!!! I was told many many years ago by a sister in-law at the time that she thought I had it. I disagree’d with her. Said I was just getting old( me at 30ish then) Speed up to the age of 48 and I’m told by a neurologist that I have fybromyalgia. For what should have been a sad day for me was the happiest I’ve had in a long time..because FINALLY I know its not all in my head . As for “name is required…. I sure hope Karma over looks your remark, because I sure dont want to be in your shoes when she pays u back for that statement you made.

    2. I, for one, am looking for the miracle of a cure for Fibromyalgia and for treatments that will allow those of us who live in constant pain….for an illness which most often leads to chronic depression and a host of other symptoms as one’s life spirals out of the control. I went to work at 15 and worked for almost 37-years before I lost my job due to my inability to maintain my work adequately to stay employed. It took me a week to get out of bed and quit crying due to my horror that my health was preventing me from being able to function like I had all those many years previously.

      Moneymaker (above) I must say men have not escaped this illness. So don’t rush out to get that sex change operation you mentioned. I have 3 brothers and they all have been diagnosed with fibro in the past two years. There is obviously also a genetic component as my mother has it (she is 72 was diagnosed in Alaska, unbeknownst to the family), I have it (diagnosed in 1996, in Oregon, and I’m currently 57), my daughter has it (she has dealt with it for more than half her life though they didn’t figure out what it was until about 15-years-ago and she lived in Washington had no idea her grandmother and mother had been diagnosed the past two months in two other states), and now, just recently two of my granddaughters (my daughter’s girls) were diagnosed (they are soon to be 18 and 21). What are YOU whining about? Perhaps you would be a happier person if you focused on how fortunate you are to be healthy. Just about anyone in my family would be happy to change placed with you. Unfortunately, we don’t have a choice on the obstacles or challenges that God has given each of us.

      Moneymaker you’re angry because people who have fibromyalgia MIGHT receive disability. Well there are many new illnesses that might cause someone to be in need of disability. Are you aware that many addicts and alcoholics receive disability due to their inability to function and work? How does that make you feel? Do you drink or use drugs? Just another option that might get you where you THINK you might want to go. How many people do you think fall in this category of receiving disability? Are you so sure everyone you know does NOT receive disability? The money I receive in the form of disability, I worked for since I went to work at the age of 15. Did you know that someone who draws low-income disability receives MediCAID – medical coverage – immediately once approved for disability, which did pay at 100 percent of their medical? Someone who works and pays into the system and draws on money they and their employers invested, so-to-speak, have to wait two-full-years for MediCARE coverage which is paid at 80 percent or less. And since most people in America can’t afford to pay for the extended medical benefits from a previous job, they end up racking up thousands of dollars in medical bills they can’t pay for two-full years. Most likely, by then, no matter what kind of disability one receives, most can only scrape by on the amount one receives from Disability – and they can’t afford to pay the additional 20% once they do have MediCARE. Believe me, my 20%, above and beyond what my MediCARE pays continues to ‘cha-ching’ in the form of windowed envelopes that I receive in the mail. I speak as someone who has been living with our American Medical “SYSTEM.”

      I hope this information enlightens MoneyMaker, and those that feel as he does, as it’s not as easy or pretty as it looks from your side of the realm. Remember to take a walk in those proverbial moccasins and you have an opportunity to be happy and thrilled that you weren’t given the same challenges as someone else.

      ~PeaceEarthling~

      1. I would love to give my fibromyalgia to this man.If you don’t have fibro how can you say what anyone is going through.i agree there is probably some people who fake it but so many of us don’t.I would not wish this on my worse enemy.
        Ll

    3. What a narrow minded idiot. Men get fibro aswell. You know what i would love to go out to work, but instead i am career to my mum who also has fibro. I do charity work because i can do it in my own time, as one day is not the same as another. I wish fibro wasn’t real i really do. There are days my son asks me to go to the park and you know what i can’t because i can barely move, and it is heartbreaking. You obviously know nobody who is suffering like this. Just because it is an illness you cannot see how can you say it is not real??? I have endometriosis and other health problems too which probably do not help my fibro. I am not on disability, A day with this pain and you would understand. And i have always been ambitious, did the college, uni thing even have a masters. Always did voluntary work, a paid job, raised my child, and always loved to be out and about. This illness has made me so i can barely do one thing at a time let alone many. I cannot even think straight most of the days. Do you know how that feels moron! i guess not! That instead of YOU being in control of how your day goes, it is how your body feels, how much pain you are in, You have made me so annoyed you narrow minded sexist pig.

  720. A lot of time, doctors give a fibromyalgia diagnosis to people with complex symptoms they can’t figure out. MRI studies are showing more problems with the brain and spinal canal related to Chiari Malformation and Syringomyelia. Connective tissue disease is becoming more common as well. EDS and scoliosis are indicators.

  721. Tried meds..nothing worked. Meds gave me other health issues. Go to the right chiropractor and her adjustments. Upper cervical mainly. Dr. Sooley has studied on this and has special treatments for Fibro patients. Not cured but can get around now without all the pills.

  722. I always wondered about it. I have it. At least I did. It’s much better since I gave up meat! I am pain free of it. I do have osteo. But I am working on it.

  723. Amazing breakthrough & very enlightening article thank you.Hopefully will increase our understanding.

  724. There is always another CURE for fybro. Lets wait and see about this one!!!!!!!!!!!! Everyone has different symptoms, not one person is the same.

  725. Fibromyalgia is a kidney problem, the body cannot remove phosphates! google fibromyagila marina del rey there is a protocol that brings relief eventually, it helped me.

    1. Anthony, you are right on. All these so-called “scientific discoveries” and horrific drugs on the market to treat fibromyalgia are useless. Dr. St. Amand (“What Your Doctor May Not Tell You About Fibromyalgia”) seems to be closest to hitting the nail on the head. His inexpensive and relatively easy protocol worked for me too. When I stopped it, the symptoms came back. When I started up again, the fibro was reversed.

  726. So much of the commentary and issues around Fibro are women-centered because it affects so many. However, where does a man who has these same symptoms and debilitating issues go to explain to a Doctor (that won’t just go with so many other M.D.’s explaining that it’s in our head) and try to get an honest eval if he really has this disease. So much of the testing seems subjective…I want my life back..

  727. What a shoddy, irresponsible piece of journalism. The author obviously has a very poor understanding of even the most basic human anatomy: AV shunts are NOT, as she claims, “nerve fibers”. Shame on you for publishing such an ill-informed article when there are millions of people suffering daily from fibromyalgia. For those who want a good explanation of the important discovery, read this:

    http://www.redorbit.com/news/health/1112877149/fibromyalgia-tissue-pain-hands-feet-fatigue-061813/

  728. I have an aunt who was diagnosed with Fibro several years ago. Even with prescription medications, she was constantly in pain and had to use all of her PTO and FMLA time for her flare ups. About a year ago, she began taking the supplements through the ItWorks program (also known as “those crazy wraps.”) and within a few months she was able to take herself off of all medications. She eats well, exercises regularly, and with these supplements, she rarely has a flare up. Perhaps it may have something to do with these excess blood vessels, or maybe there is a link to all of the preservatives and unnatural food products we consume.

  729. I have had Fibromyalgia since 2002, probably before that but that’s when a doctor told me I had it. My pain is extreme, I hurt every where, I can’t even sit down sometimes because my butt hurts so bad. I get a burning feeling under my skin that is horrible. I don’t sleep, the person who takes trazodone and can sleep, your blessed. I am always getting sick due to my immune system not fighting things off. I have had doctors take me off medication that helped me because they said I couldn’t take it the rest of my life. Without something to help me with my pain and all the other things that come with fibromyalgia I don’t have a life! This has stolen my life, it has caused me not to be able to see and play with my grandchildren, that kills me. There has to be a positive remedy to this, but the people researching FB don’t have it, so how would they know what helps or not. I want to know why they don’t do a clinical study on this, there are plenty of people who would participate. Is anyone really going to read this? I find it hard to believe, you hear promises but see no results. NO ONE SHOULD HAVE TO LIVE WITH THIS!

    1. I understand about the grandchildren and that is hard to explain to some people. If there is a hug it can bring tears to your eyes because of the pain but you want that hug so bad. My older grandchild knows the pain it causes and now will barely touch me which is good in less pain but hurtful in knowing that he has to treat you like a delicate piece of china.

      I am with also on the drugs. The drug that has helped me the most is Prednisone but the doctors said no more because it is a medication you can not take for life. Other disease take it for life but he will not give me a prescription for it so I cannot get it. I would take the medicine in a heartbeat even with knowing the possible side effects.

    2. You’re right on all counts. There are thousands upon thousands of us that are in horrible pain every day and have had our lives stolen from us. We have learned that a person doesn’t have to stop breathing to lose their life. We somehow need to make the general population understand what we are going through so that funds can be raised for more/better research. That’s hard when half the medical community is still in the dark ages as far all this illness is concerned. We need someone to be the face of Fibromyalgia the same way Micheal J. Fox is for Parkinsons. The problem is that we are all too exhausted and in too much constant pain to fight the battle. What we can all do is prayer for ourselves and each other. May God bless us all who are living (and I use that term loosely) with this horrible illness.

  730. “WomeWomen with Fibromyalgia Have A Real Pathology Among Nerve Endings to Blood Vessels in the Skin.
    A rational biological source of pain in the skin of patients with fibromyalgia

    http://www.intidyn.com/Newsroom/Fibromyalgia%20Pathology%20for%20lay%20people%202013-06-24.pdf

    This link is to the initial research group’s explanation of the research: Women with Fibromyalgia Have A Real Pathology Among Nerve Endings to Blood Vessels in the Skin.
    A rational biological source of pain in the skin of patients with fibromyalgia

    The published medical research is linked at the end. It is a PDF file, so not all devices will be able to open it. It explains the how the AV shunts effect the body as a whole in detail. This article is rather vague about the process and leads me to believe the author may not have understood it or failed to be able to condense it well enough. Though the allegory that the researchers use is pretty clear.

  731. Hello to all of the other sufferers! Reading your comments have made me feel better just knowing that I am not alone in my sufferings. I hope they find a cure for us, damn it, we deserve it!
    I will give an abbreviated version of my story. I was diagnosed officially with Fibro 4 years ago when I was 20 years old, I too shared the same quest bouncing from one specialist to the next in search of answers, of a name for my condition. I believe that I have had the condition for more like 6-8 yrs. I absolutely can not pinpoint some exact time when it all started. I have been asked by doctors about accidents, trauma, etc but, nothing seems to have directly lead to the fibro. I can say that as a small child I was an insomniac (still am of course) and had severe anxiety which lead to an overactive bladder, as well as headaches + allergy to adhesive. As I grew older, I became depressed, had dizzy spells and got more migraines in addition to the anxiety and insomnia. By high school, I had issues with muscle spasms, pinched a nerve, TMJ, and still had the other issues. College is when all hell broke lose! Currently, to summarize it all, I have IBS, issues with chronic constipation, anxiety, depression, dizzy spells, migraines & headaches, I’ve always had SAD (seasonal affective disorder), dizzy spells, an odd allergy or something when my skin reacts to the cold, muscle aches and spasms, PAIN including chest pain, a lot of sharp pain, trigger points, tender points, and many other just odd things like my gumby (as many docs, phys therapists, n chiropractors have called it) like tissue causing bones to move too much & slip out of place.
    Allergies: lactose intolerant, allergic to adhesive, and bad reactions to any vicodin & tradmadol, I can’t have caffeine either it = migraine. Currently taking: high dosages of Lyrica & Effexor for pain/anxiety/depression- have not had any bad side effects to them; Trazadone for sleep- I swear by this med! I absolutely LOVE it; on BC, and I take a probiotic- Probzyme which really has helped my digestive system so much! I’m not going to list any of the new scripts I’m trying. Supplement wise- B-complex, B2, Biotin, Fish Oil, and high dose of magnesium. I won’t bother listing the countless drugs & supplements I have tried. I have a lot of PAIN in my HANDS & NO RELIEF or ANSWERS, my shoulders & shoulder blades are knotted, have sharp pain throughout, and are just bad all around, my neck, face, and head are constantly an issue w/pain, knots, spasms, MIGRAINES w/NO HELP ( I have tried many many meds and injections)- these are typically my biggest complaints.
    What helps: Trigger point work, ice & heat, getting enough sleep, a SAD light, hiking, walks, getting out and seeing the sunlight, pop sickles for my mouth pain/spams in my mouth, sometimes eating a lot of protein seems to help with the dizziness or headaches. Just as a note: I am a Pescatarian (No meat but I eat fish and some seafood), I have a very healthy balanced diet, lactose intolerant. I would LOVE to hear of about any suggestions, ideas, thoughts, and feelings you all have! THANKS!!! Good luck on your search!

  732. I was diagnosed with Fibromyalgia 2 years ago. I also have pain in my knees & feet, neck, shoulders and back. I have tried to stay off medications but do use Advil 400 and Ativan from time to time to help me sleep. However, I find as sore as I am the best medicine of all is exercise which I do EVERY day regardless of how sore I am. It’s hard to get yourself motivated to get out there and swim, snowshoe & walk when your feet are killing you or when you are dog tired but it helps – it truly does!

  733. Thank you very much., You are a good writer.
    In addition to art that will give you good
    I congratulate you

  734. It’s not “mismanaged blood flow” I mean, what the hell is that? It’s mercury poisoning folks. Proven by several Phd’s who dare to speak out. Your dental fillings, vaccines and fish are poisoning you. I got my fillings out and am on a “low thiol” diet to help with the pain. It’s working.

    1. I have no metal filings and I don’t eat any fish of any kind. So I greatly disagree with this theory.

    2. I have 6 metal fillings (took bad care of my teeth as a teen) and eat sushi on a regular basis and don’t have fibromyalgia.

  735. I have suffered with chronic back, neck, shoulder pains as well as disabling headaches for more than 15 years. I just dealt with the pain everyday chalking it up to playing sports hard when I was younger and the physical work I did. I was finally diagnosed with Fibro about 4 months ago. What finally sent me to my doctor though was a sudden case of obnoxious swelling in both my feet. Once the swelling went away, I dealt with bilateral numbness, tingling, aching, a “toes on fire” sensation and shooting pain into my toe nails every night. The first question, am I diabetic? No. This led to blood testing. I was immediately send to a specialist for possible Rheumatoid Arthritis. After 2 more rounds of blood test, nerve testing, and a Lupas scare, I was diagnosed with Fibro. Ok, so now I have a name to go with what I’ve been dealing with. But here’s my question…..Does anyone else have these same bilateral foot issues as I do because of Fibro? I have also seen a foot specialist for the numbness and pain. He believes it to be a nerve issue, but my nerve testing was negative. He believes in Fibro as a serious condition, so he prescribed me Lyrica to try to help control the numbness, tingling and pain in my feet. This article talks about numbness and pain in the hands (which I do have pain in my hands), but what about in the feet?? I’m on Norco 10, Flexeril, Lyrica , and Ambien to just flat out knock me out when the pain is to bad. I can’t find any other answers for the symptoms I’m having in my feet, besides bilateral neorpathy, but I’m not diabetic. Can someone please offer me some possible answers…

    1. It has to do with vitamins and minerals and nutrients. If you are depleted in any of these areas you are prone to diseases. A renowned physician, Dr. Joel D. Wallach, discovered what could be the answers to your problems. He is on the net and has videos on youtube for what to do. There are several on fibro. Good luck.

    2. I too suffer from foot pain. numbness, tingling and sometimes severe shooting pain. I thought it was from my job as a cook seeing as I was on my feet constantly. couldn’t sleep at night because of the pain. I still have problems when I am on my feet too long. I cannot work now and I am disabled because of FB. I take vicodin and gabapentin for the pain. I cannot take lyrica because of the ingredients in it. I also found out some foods make the pain worse. (nightshade syndrome). additives in foods too. (high fructose corn syrup, modified food starch to name a few) I am doing an all organic, gluten free diet. I am also lactose intolerant. ( this being a problem before I was diagnosed with FB) luck on finding out how to deal with the pain. it is not easy

    3. I do not have answers but I have had fibro for 13 yrs and on my worse days my hands and feet hurt really bad , and can’t get any relief it just gets worse. mentally and physically wears you down being in pain day in and day out

  736. I Think they need to figure out for sure what is going on and stop fooling around.! Just saying! My mom has it and she has more symptoms of Fibromyalgia than what these people are telling in the paragraph!@

  737. i get a funny tingle in the left side of my throat when i gently stroke the spaces between the knuckles of my left hand. definitely weird. also, in winter, i get random intense localized pain in specific locations on the same left hand. often some unusual intense pain in foot or scalp. i thought it might be some residual chicken pox viruss acting up. it goes away eventually, so i dont take any meds for it.

  738. I was diagnosed with fibromyalgia back in 98. and then in 2004 I had worse in pain couldn’t move and was told my fibromyalgia was not really Fibromyalgia it was MS. and believe it or not there’s a lot of ignorance out there about MS as well people don’t understand it & think you’re faking it

  739. I have had fibro and related problems for a few years and a friend showed me an article in her news paper about not eating foods high in oxyalates. I did not see how this would work but gave it a go by cutting out the basics in my diet such as potatoes and any root vegetables, I really did not think it would help but it really did help me. Everyones different but I cant tell you the relief not all pain went but a great deal.

  740. This is completely irresponsible journalism. The article’s screaming headline that “Fibromyalgia Mystery Finally Solved!” is hyperbolic and reeks of sensationalism. Since when is a statement uttered by neuroscientist Dr. Rice which remarks:

    “This mismanaged blood flow COULD be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

    become an absolute certainty in the mind of this author! While the information is interesting, and I guess the author’s purpose being realized, as I was drawn to the article by it’s title though with well-founded skepticism, please tone down the exaggeration as it’s misleading and most obviously self-serving. If it’s impossible for the author to do this, I suggest the author to cover more appropriate topics like Justin Bieber’s new man-crush or some such nonsense as that.

    This is no joke for people suffering from such a debilitating life-altering illness!

    1. I couldn’t agree more with Mark’s evaluation of this article. It is fiction with a literay hook to entice us to read. Truly irresponsible of the author. Always check the source of information for bias, reliability, and most important authenticity.

  741. Has anyone tried a holistic juicing/vegan diet just to see if symptoms clear up after about 6 weeks? What about moderate walking every day?

  742. I think that they will someday find that there are a number of things that contribute to developing fibromyalgia. For one thing, there is a genetic link, which was denied longly, as well as MS genetic link. My favorite theory is it develops in the gut…since 70% of your immune system resides in your gut and this seems to have some auto immune components, including gut troubles. After years of playing with different drug regiments, less is more as far as meds go… vitamins mess up my gut. change the diet. Try not having extra weight on you as that is just going to cause more pain. Do things thastimulate your mind if you can’t move as much as you like. All those things you wanted to learn but never had time? Free classes on cable stations like Oprahs life classes. Im staying busy and keeping my mind busy. It takes years to learn how to best deal with it in your body. we are all different. There are lots of treatments and some help some people more than others. Just do the best you can. Read and learn about FIBRO.

    Lately I have found myself telling people I blew my back out being a nurse…which is partially the truth as that is my worse pain area. I am 47 and disabled for 5 yrs now. The reaction I get to saying it’s a back injury as opposed to FM is amazing… try it and see how people dont change the subject as soon as possible like they do if you mention fibromyalgia… Have a page of FB if anyone wants to Join…Friends and Family with Fibromyalgia and other chronic pain illnesses…it’s support and exchange of info welcome anyone!

  743. I HAVE HAD FIRBO FOR OVER 15 – 20 YRS & I AGREE THE LONGER YOU HAVE IT THE WORSE IT GET’S, A LONG WITH ALL THE OTHER PROBLEM’S THAT COME WITH IT… I ALSO HAVE RA, OA, RLS, IBS, BRAIN FOG, MIGRAIN HEADACKES, BOTH MY HIP’S & KNEE’S ARE GOING OUT ON ME, & DEGENERATIVE DISC, BULGING DISC,… ECT … WELL I COULD KEEP ON GOING BUT I THINK YOU GET THE PICTURE LOL, THE PAIN IS SO BAD I CAN’T EVEN GET OUT OF THE BED MORE THAN HALF OF THE TIME AND I TAKE MORPHINE TWO KIND’S, A LONG WITH FLEXERIL,FOR CRAMPING, ALPRAZOLAM, LIDOCAINE TO RUB ON MY HIP’S & KNEE’S ..SO WISH THEY WOULD OR COULD FIND A CURE OR SOMETHING THAT WILL HELP ME GET BACK AT LESS HALF OF MY LIFE, CAUSE I DON’T HAVE ANY ENEGERY TO DO TO MUCH OF ANYTHING 🙁 I AM MISSING OUT ON GETTING TO SEE MY 4 GRANDKID’S GROWING UP AND I DON’T EVEN GET TO SEE THEM MUCH AT ALL.. ALL OF THIS HAS TAKEN SO MUCH AWAY FROM ME, MY KID’S , MY GRANDKID’S, MY BOY FRIEND, & MY FRIEND’S & FAMILY I JUST SIT AND CRY WHEN I THINK ABOUT ALL THE THING’S I USE TO BE ABLE TO DO & THE TIME I GOT TO SPEND WITH FAMILY & FRIEND’S BEFORE.. I PRAY EVER NIGHT THAT THING’S FOR ME START TO GET BETTER,& FOR ALL THE PEOPLE OUT THEIR THAT HAVE FIBRO & ALL THE OTHER THING’S THAT COME A LONG WITH IT THAT WE WILL ALL HAVE BETTER DAY’S TO COME !!!!! 🙁 🙂 GOD BLESS ALL & PRAY !! 🙁 🙂

  744. I’d start by having your homes tested for toxic mold. My fibromyalgia/CFS symptoms have almost completely disappeared since leaving my mold infested home.

  745. I am so glad they have found more on Fibromyalgia. mystery.
    I would like to know what the cause wast in the first place, after dealing with it for 25 years

  746. I was diagnosed with Fibro six years ago. I think the hardest thing for me was when my friends didn’t believe it was a “real” disease. I had one friend tell me, if you won the lottery, you could travel the world and buy anything you wanted, I bet you’d feel better. So much ignorance out there about this illness.

    I have had joint issues in both knees and hips and now the dr.’s believe it could have been caused by the fibro. I had a total knee replacement on my right knee with a revision done 18 months later due to the fact the dr. put in an implant that was too big, it was an old version and full of nickel to which I am highly allergic. Due to the nickel in the implant, it had literally eaten away at the bone. I had a partial knee replacement in the left knee and due to a different doctors negligence, I have more problems than what I started off with. It seems to be a never ending round of joint problems.

    I go from not being able to sleep more than an hour or two a day to having days where I just can’t stay awake. I have little energy, can not tolerate the cold or the heat, weakness in my joints including my ankles for which I have taken several bad falls due to my ankles giving way, can not tolerate loud noises or bright lights and the list goes on.

    I take 5000 units of Vitiman D a day but it does not help. I have tried all the meds previously listed with no help at all. The dr. does not give me any pain meds because it just mask the pain, the body will build up a tolerance to it and it will quit working anyway. So I suffer every day and continue to try and have some sort of life. I don’t complain because it doesn’t solve anything, I try to do some form of exercise every day and the one I find that I can do without causing me pain is a video by Greer Childress. All you do is very deep breathing, hold the breath while holding a certain exercise pose. It helps the joints without stressing them and amazingly enough, you lose inches doing this simple breathing exercise.

    Like everyone else, I am waiting until they find something that helps ease the pain of fibro but until then, I will live my life as well as I can because I don’t want to miss a thing this world has to offer before I am no longer a part of it.

    1. I hate to hear your doctor will not give you pain medicine. I see a pain management specialist and I am on morphine and Percocet, along with gabapentin, nortriptyline, Vitamin D, B12, Naproxen, and the list goes on. I do not know what I would do without my pain medication. When the Lyrica stopped working and Savella did nothing I was in so much pain that the morphine was the only thing that would touch it. We have not increase it since the beginning opting to increase other medications. I just have to say I LOVE my pain management specialist.

      1. I have pain management too, but only one percocet a day and weak 5-325’s I can’t stand it, cant open milk for my three yr old can not poor things lift a cup wipe shower sleep everything so painful

      2. Wow, you sound like an addict. Those drugs are degrading your central nervous system and weakening your bones. I have three friends that have died from some of the drugs you are taking.

        1. How can she sound like an addict when she goes to a pain specialist? The law makes sure that schedule II and III drugs are monitored quite closely and statistically, those of us with severe chronic pain don’t become addicted, our dosages stay the same for a very long time and we often ration our meds very carefully.

          1. Yes I have a severe form as well as osteoarthritis and other issues. In order to function we have to have pain relief. Plain and simple and whatever works for each of us is a true blessing. Amazingly, I take Vicodin and it gives me the energy to do what others take for granted, I also take Naproxin as needed, and muscle relaxants to use at bedtime when the muscle tightness becomes too much. For my anxiety, I take escitalopram (Lexapro) .I’m on SSDI and I work two days a week, which without the narcotics, I would not be able to do.

        2. Joseph all I can say is that you must have a mild case or just diagnosis with Fibromyalgia. I have had it for 20+ year and worked all but the last three. Retiring on disability was not my first choice at that time it was my only choice. I was approved for my SS disability on my 1st try. My medications are coordinated by three (3) doctors. I get up every morning and do any and everything I can. The best I can hope for is that you never truly know the pain that comes with Fibromyalgia.

        3. You sound like a jerk who has no concept of the amount of pain that those with fibromyalgia have to tolerate daily. Quit judging!

          1. That comment was directed at the gentleman who stated someone sounded like an addict.

          2. I will admit, I do sound like a jerk. I do understand the amount of pain caused by fibromyalgia , as my mom and step mom are constantly suffering. My step mom was prescribed oxy-contin for her pain. She takes them twice a day , every day. Oxy-contin is synthetic heroin. She is high on heroin on a daily basis. She is so high that she broke her foot and could not tell. She also goes to work high on heroin. Its my opinion that this is a bad thing and I believe doctors should look for a way to treat cause not the symptom. I know personally that her diet is awful. Fast food, cigarettes , canned food , sugary junk food , 10-20 cans of soda a week. She also does not drink water. She has not stretched or exercised in 30 years. She also will not eat fresh vegetables. I think a doctor should have advised her to clean up her health instead of get her hooked on heroin. My mom has been prescribed roxy’s, another type of powerful painkiller. She has the same or even worse diet. These drugs will make the problem worse as they will break down your central nervous system. They are both just like addicts. When they are on the meds , they are extremely difficult to deal with. Just like a crack addict. If they try to stop taking the meds , they will go through withdrawal symptoms worse than you can imagine. What good can come of this way treating the problem? How many other people may just need to fix their diet? It may not fix the problem but I bet it can help more than becoming a heroin addict.

          3. Joseph, Don’t you understand there is no cure? Only pain relief? Hasn’t anyone ever described the pain to you? It’s like running in a marathon, but never letting the muscles relax..they remain taut and that is very painful..it’s like having the flu with the fever, aches and pains and an all over bruising like you’ve been kicked by a horse. It’s not being able to open a simple tab from a can, nor a jar..it’s wanting a hug so bad, but knowing it will hurt like hell if we get one. It’s frustration and depression because the simplest daily tasks we used to do, we can no longer do. Yes, normal people have those days, but for us it’s every day, all day and then when we should rest at night, we do reach REM, but we don’t get to stay there..so we’re fatigued all the damn time. Just so you know, Not everyone who takes pain meds eats unhealthy foods, nor do they refuse to exercise, nor do we not feel pain if we get injured! The pain medication whether it be oxycontin or vicodin takes off just enough of the throbbing, radiating pain to allow us a few hours to be normal.. like you. I have said a hundred times, I would not wish for you or anyone else to walk in my shoes for any longer than a minute. I could never be so cruel as to wish it were longer.

          4. “My step mom was prescribed oxy-contin for her pain. … She is high on heroin on a daily basis. She is so high that she broke her foot and could not tell.”

            I can understand your frustration, but “being high on heroin” isn’t necessarily the reason she didn’t know she had a broken foot. It may well be just that she is accustomed to high pain levels.

            I broke my wrist… it was 3 weeks before I went in for it, and found out that it was more than “just a sprain”. Ended up in a cast for 6 weeks. I wasn’t taking any “pain meds”, other than occasional Motrin (tried both Oxycontin and Vicodin– they “zombiefied” me, so I refused to take them after the first half doses I tried). Why did I wait so long for treatment?? Because it didn’t hurt THAT much more than my base level.

          5. Yes. You did sound like a jerk of the worst kind. Myself and many others that now have this insidious illness were people that ate well, exercised, had wonderful careers and were full of life before our lives were taken from us. I’m well educated, I belonged to two kayak clubs, two hiking clubs, watched my diet, and had a great job in special education. I held onto my job for three years while the rest of my life slowly disappeared. Literally all my energy went toward holding onto my job until I finally crashed and ended up in the hospital for the pain. Even though my doctor had been advising me to apply for disability, I didn’t want to give up. After months of not being able to return to work, I finally had no choice but to fill out the paperwork to collect a check. There have been many tears shed because I can no longer do the work that meant so much to me. You mother-in-law didn’t know her foot was broken because its so hard to tell if pain is coming from another source or if it is the fibromyalgia. I know that there are people out there that take advantage of the systems that are set up to help those in need. That’s wrong. I want you to know now that for the majority of us, we just want our lives back. We all wish that the medical community could do something more than to just give us prescriptions to cover up our symptoms, but so far they haven’t. That’s a painful reality that we have to deal with every day. I hope that you are more educated now and that instead of judging us, you can be thankful that you don’t have to live in our shoes.

    2. Me too Dawn. I was asked by a ” friend” two yrs ago if it is in my head. Knucklehead! When someone tells me they are sick, I always believe them. Why would I doubt someone. Social idiots.

    3. Dawn you sounded like you are describing me, including the joints failing knees ankels giving out and falling elbows shoulders bursitis etc the list goes on and on and too have been the victim of oh you are a hypochondriac. This disease is very real and completely debilitating
      for me most days

  747. What is the treatment? I have read so many different reports on what researchers NOW say is the cause of FMS. What good is any of it without a treatment? If the problem stems from our hands then what? How can that be treated? I am so sick of this pain and everything that has changed in my life due to it, I have tried so many things but nothing works nothing really helps now drs don’t believe in giving pain meds, again. I know it just masks the pain but until the cure is found,if there ever is one, or a medication,that actually works, pain meds are the only thing that can get me through the day. No I do not want to be drugged just have the pain cut enough where I can function, I am not addicted I just have unrelenting pain!! Why can’t the medical profession understand this why make us feel like we are drug addicts. I have never been hooked on anything, I don’t smoke or drink or do drugs, I just want pain relief is that asking for so much?

      1. Fibromyalgia cN suck it. I’ve had this life force sucking crAp for 9 years and in still trying to find sonething that helps a lot. So far no luck. Only prayer and faith are getting me through each day.

  748. I struggled with it until friend told me about Blue-Green algae – it worked as well as healed several more issues my body was struggling with after an accident.
    I’d heard about it years ago but thought it was merely a fad… until I tried it out of desperation –

    It nourishes/stimulates our own stem cells to multiply and rebuild our bones – muscles – organs to REBUILD!

    Our bodies were meant to heal themselves – we simply have to give them the right tools so they can do it!

    I promise :o)

  749. My recent comment _ sorry I hit the wrong key The website is RS4supplements.com. NOT RS$ – extremely sorry

  750. I have been suffering terribly…in the bed most days….I have recently started taking 1200mg of Mucinex twice a day….google Fibromyalgia/Mucinex…..it flushes phosphates out of your body….so far….much better! Read about it, the try it!

    1. Doris, I belonged to a forum that pushed this treatment. However, it will not completely work as it should unless you stop using everything on your body that has chemicals in it. You must use all natural soaps, mouthwashes, even tooth paste. No hairspray. No shampoos that aren’t completely natural. The whole idea is that the Mucinex cleanses your body of the toxins BUT you can’t put anymore in your body or it would defeat the purpose. You also have to take the Mucinex at very high doses. All these things I was not willing to do because it showed to be very expensive to do.

  751. Heather Marshall
    January 31st 2014 at 0030am

    All I want to say is that I have suffered this horrible illness for 9 years and want to THANK GOD for proving it is real …….

    1. I feel the same! The “doctors” who presumed people were hypochondriacs and/or drug seekers should have to write letters of apology to every one of these patients.

  752. BS total and utter horsecrap. Nerve fibers in the veins of my hands does NOT explain the all over pain with tingling, fatigue and insomnia or other hallmarks of Fibromyalgia. >insert sarcasm> Oh, there’s a blood vessel problem in the hand so that explains the pain in your legs < said no rational person ever

    1. I am with you there. Though, I am completely thankful that they seem to be uncovering more information and developments, to say that they have “FOUND THE CURE!!” and solved the complete mystery is in my opinion..untrue until completely proven otherwise, and very unfair to be misleading to those of us that are afflicted with it.

  753. But at least they are starting to do studies .
    I went thru the same bad treatment from age14 to 20 w/ Endometriosis with doctors being arrogant and Ignorant and telling me it was in my head until they discovered what it really was , Now it’s not even a question

  754. Ridiculous this is only one symptom ( maybe nothing to do with Fibro, notice they said 1 non Fibro patient compared w/ ? Fibro patient ) That they want to make new meds for ! FMS has so many other problems that this doesn’t even begin to address!

  755. please please please people before you try any medications for fibromyalgia or depression try just to simply take vitamin D. A vitamin D deficiency can cause depression and depression can cuase physical pain then after you have tried that you will be able to determine if your fibromyalgia is really there or if it was really depression all along. My pain was so severe 5 years ago I couldn’t even get out of bed sometimes but I started taking vitamin D and iodine supplement to help with my anxiety and realized the pain started to ease up a lot. No it hasn’t gone completely away but now I know how much of the pain was fibromyalgia and how much was related to anxiety and depression. Also when I run out of either for a couple weeks till I can get to the store. The pain returns not to the levels it used to be but I can tell the difference when I don’t take it and my anxiety returns. please try this method before taking prescribed medications that can create more problems. At least this way doesn’t create other problems for the doctors to prescribe more drugs to treat the problems they created.

    1. Kari, Do you take Liquid Vit D3? How much and How often? How much iodine? I’ve tried different things thru the years; including these, maybe I need to try them together again. Not functioning…like living in a coma… “living” being operative!!!

    2. WELL KARI I DID WHAT YOU DID AND IT DIDNT MHELP SO I DID WHAT THE DOXCTORS SAID AND TOOK THE MEDS AND THEY DONT HELP. IM NOW DEPRESSED BECAUSE OF THE PAIN HARD TO LIVE WITH EVERY DAY AND NOT GET DOWN CAUSE OF THE THINGS IT STOPS YOU FROM DOING.

  756. I was told I had F .My Dr.thinks it all in my head. My sickness ,tiredness and pain is real. I want to be me again . I had a rough time yesterday. I pray to GOD that some one comes up with help for all of us who suffer with f. thank you all for believing in us.

    1. Shame on your Dr. for telling you it’s in your head. If I was you I would find a competent doctor.

    2. my doctor’s nurse told me — well honey we are all tired — your old get over it — I looked at her and said — YOU may be old but I am in my 40’s — not my doctor anymore

  757. I’m 18. I’m usually not depresses but I do get depressed when my pain is at its worst. Im also being told its all just depression. I’ve taken multipul antidepressants and they literally make me crazy like i want to hurt people and i get more depressed. I’m now at the point where I refuse to take them. It didn’t help my pain or my depression… the last doctor I seen still says its depression after I told him how I get on them. He says I have to find the right one for me.. but I’ve been on about 10 different depression pills and they all do the same. So when I started to get a crazy one them I called him and gave him my two cents. Not to mention the pills didn’t help my language and hostility. But now aparently my problems have over stepped his profession and I need to see someone else… he’s was a rhumatologist. So I’m not really sure where else to go…

    1. Please seek out a holistic practioner or a Naturopath. You need to heal your mind, body and soul….they are all connected. Taking drugs do nothing to “heal” they simply mask the problems. I pray you find the help you need – you are too young to start down the path of drugs and “specialists” who will only look at the symptoms NOT the interconnections.

    2. Deja, you cannot ever take antidepressants, not even a tiny bit. I am surprised that your doctors don’t recognize Serotonin Syndrome. I have it. Whenever I take antidepressants It makes me want to kill myself. I don’t recognize where I am, I am in extreme pain in my limbs and I talk crazy. This is a very dangerous condition. Please do not ever take them again and mention this to your doctors. You need to wear a medical bracelet. If you have taken that many drugs and the same thing happens then you have the condition. If I am right, the reaction lasts for about 4 hours. I tried Lexapro at it’s lowest dose and I wanted to jump through windows. Even hospitals don’t know enough about it. Do not take anything that alters your serotonin levels. Serotonin is your feel good hormone but some people cannot take it being altered. Not even pot. Don’t drink alcohol either. Don’t take over the counter hormone drugs like St. Johns Wort. All of those alter your serotonin. I just had to let you know because you are not dealing with doctors who know about this. It is a rare condition.

    3. I found that a daily dose of iodine (as long as you are not allergic) supplement for anxiety and a daily dose of vitamin D helps a lot but it has to build up in your system and you have to maintain taking on daily basis.

  758. Sorry, but this doesn’t explain the depression, anxiety, IBS, and all the other stuff that comes with FMS. People, mainly scientists, tend to only focus on the pain of fibro. Personally, the pain is the least of my problems.

  759. I was diagnosed with FM 3 years ago but I do as well think I’ve had it since I was younger it hurts so bad I’m on medical card so I can’t find the right docs to help me Immy docs all think its in my head so I am on gabapentin

  760. My doctor wont admit its fibromyalgia that I have. She puts all my symptoms down to my depression so I have no hope of getting proper treatment at all. Its all in my head 🙁

    1. If your doctor is not believing you and won’t let you even attempt what there is available to see if it will work for you, then it is time to find a new doctor.

    2. My doctor wanted to just send me to a psychologist. It couldn’t be cured anyway, so what was the point of getting diagnosed. I asked for a second opinion with another GP and she díd send me to a specialist. I had the specialist send the diagnosis to the first GP, just to prove I wasn’t insane. Get that second opinion and third if you must..

  761. I don’t believe this at all, I think someone is grabbing at straws! I have had fibro for 30+ years and also participated in a fibro study at Georgetown University. It showed that there is a break from the brain to our bodies–when we get hurt our body sends a message to the brain to release our natural pain killer and it does nothing. Our nerves and muscles have coverings on them and as we move or stretch they tear. In a healthy person, it heals itself,in us,they don’t which leaves the coverings looking like Swiss cheese. That leaves the muscles and nerves raw and unprotected causing the pain that we deal with.

    As far as I’m concerned,there hasn’t been enough research done yet because I believe it’s not being taken seriously enough to warrant it. I pray every day for a cure and unti that day comes, I stand firm in my faith!!

  762. Okay, so what about all of the other symptoms that come with fibromyalgia? I am not buying this at all. Plus, why would it affect me one day, out of nowhere, but it never bothered me in previous years.

    1. Angela, They are not sure what causes Fibromyalgia. It could be a medical problem or even from PTSD. I have a friend who develop Fibro after a bad car accident

  763. Lyrica didn’t do a darn thing for me, so after two months of trying I gave it up. Cymbalta has been a Godsend as it has reduced the need for narcotics. I have the SLE form of lupus as well, so narcotics will always be a part of my medication regimen, but at least I’m not on 32 mg of Dilaudid and a 100 mcg fentanyl patch any longer.

  764. Nope. Aspartame/other artificial sweeteners are not “THE” cause. Nor is soda, in general. I’ve never been much of a soda drinker at all, nor do I use artificial sweeteners for/in anything else. Maybe they will make sx worse, and cutting soda out will help your overall health, but avoiding/”quitting” soda (diet or not) will neither prevent nor cure FM.

  765. I don’t see what the resolve will be. I have had fibro since 1998 and been on methadone and Norco for the last 6 years and at least it lets me get out of bed every day. Savella didn’t work on me and yes had all the weight gain from all the other drugs and steriods they tried to put me on which didn’t work. Let me know if anything comes from this article, I don’t see where they are telling us what to do to get rid of it??????

  766. Pamela Margalis — Aspartame is not the ONLY cause. Yes, for some people it has caused problems BUT not for everyone. I stopped diet soda a month ago & am still experiencing nerve flare ups & muscle spasms. Lack of Vitamin D with cause problems as well as eating certain foods

  767. male; 63; diag. in 92, but ill since 85…no need to go over all that everyone already knows…went on morphine about 20 yrs ago after much research and trials of other meds;was able to stop sleep med (mylan-zopiclone) 6yrs ago; sleep still problematic, but glad to be on one drug less…over my “many” years with this condition I have tried any&everything that sounded reasonable, including most drugs mentioned on these posts…the only FMCFS specific med. I am now on is the morphine, and my DIET which is just as important…Im vegeterian & take supplements most Fibros are familiar with; had hoped by now someone would have found a “cure”; did not want to die with this…………so far I prefer my existance to death……….so far.

  768. I was diagnosed with fm.a.little over a year ago..have had symptoms for about 4 years..i am off and on with medication because i have no insurance so when i can afford the meds i take them..they help some..i hate having fm and would not wish it on anybody ..i stay depressed and hardly get sleep and its driving me crazy..hopefully one day things will get better

  769. I don’t believe that for one second. I got my so called fibromyalgia from leviqin antibiotic. Also known as permanent nerve damage.

  770. Effexor is an earlier version of Lyrica and Cymbalta. I take the Cymbalta and have had good results. FM is not curable, At least not yet. All I have come to expect is relief from time to time. My first memories of symptoms dates back to early childhood. I would scream in pain, my body burning in pain. Doctors said it was GROWING PAINS, there’s no such thing. I am now 47 and this disease progresses just like any other. It’s just not visible to the naked eye. I have come to believe it is congenital, an my family has suffered with the same symptoms

  771. Fibromyalgia is a symptom of something larger. Look into Lyme disease and seek an alternative medical route if you want to get better and not just mask the symptoms with drugs.

    1. As you are correct in Fibro being a symptom of something larger BUT it is not linked to Lyme disease AND some people are helped with medication. I suggest you research Fibromyalgia & other forms of Neuropathy before you make these types of suggestions. As someone who suffers from Fibro & CMT(Charcot Marie Tooth disease) I have to tolerate 2 forms of neuropathy attacking my body on a daily basis. I am diligently working & researching to find ways to ease not only my own aches & pains but those of others

    2. Fibromyalgia is considered to be another ‘auto-immune’ disorder. Nothing at all to do with Lyme disease. A friend of mine has Lyme, and it’s not pretty…. and it is in the blood. Sometimes, if caught early enough, Lyme can be cured with specific antibiotic use while the patient is under careful observation.

      Auto-immune disorders come in a lot of colors from Multiple Sclerosis, Rheumatoid Arthritis, Psoriasis… and a friend of mine has problems with his hearing that is cause by auto immune disorder. I have never met anyone with an auto immune disorder that didn’t suffer serious fatigue as their number one symptom and usually hand in hand with pain.

      As a sufferer of Rheumatoid Arthritis, and having worked extensively with MS patients… what I notice the most is that no two patients will present with the same symptoms. Our immune systems attack us in unique ways.

      Lyme disease is caused by being bitten by an infected tick.
      Auto immune disorders are our own bodies attacking us from within.

      1. Apparently… my version of FM is NOT auto-immune; tested negative for auto-antibodies. Diagnosis was based on “tender point” evaluation, plus fatigue, sleep disturbances, etc. Also have about 90% of the hypothyroid signs and symptoms– treatment with thyroid hormone has helped, but not “cured”, a lot of the problems.

        Have no idea if it is due to Lymes. I live in an endemic area, but since I don’t recall having the diagnostic “target”, Kaiser won’t do the testing. Sx’s started at least 20 years ago… possibly 30+, so if it is Lyme disease, it’s well entrenched.

    3. Unfortunately, Lyme Disease may not be the reason for everyone. I read an article about the link between the two and had my doctor test me for Lyme Disease. The test came back negative and I have had Fibromyalgia since I was 16. I am now 45 and it seems to get progressively worse as I age.

      1. As I have aged , it has become more difficult to tolerate fm symptoms. The symptoms are the same, my age is not. Fm is not a progressive illness ( disease ), it is considered a syndrome.

  772. I have been suffering for 10 years, but I believe now I have had it since my teen years. I couldn’t couldn’t get help until 6 years ago and my M.D. put me on methadone. I have better days now. And when I have flare ups from the weather, Tylenol or Ibprophen helps in between. The way methadone works is totally different from pain pills. It works by admin. one large does, then spreading veryvery small does afterwards. pain pills you wait 20 min. and the relief is temporary. Methadone works as it builds up in your system by each small does and then it just builds up from there and keeps pain in check even if you miss a dose. And if your having a good day you can cut your dosage for the day in 1/2 and still allow it to build in your system for pain control. Another benefit is when you quit the pain pills your on now , there is 0 withdrawl symptoms when you start the program. The program is with your personal M.D. and a yearly signed contract between the two of you. Don’t get me wrong…I still have my BBD’s(bad bed days), but I caN TAKE A BREATH in the morning like no other since I was diagnose-because I took that evening dose . I also take Seroquel for the depression that comes from pain, and triazalom for sleep-since pain disrupts your sleep. It took 10 years to get where I am at in life now-HAPPY. And so to show thanks for things in my life and -PAY IT FORWARD- I want to help and guide any other living soul who are living with FIBRO and DIABETES. I am on FB-Melissa Jefferson-Murray 1/29/2014

    1. Does anyone know if Raynaud’s has a cure or what can be done to make the symptoms not so bad…they tell me I have it…my hands get so cold and look like someone that has died they are hard, very cold like they are in a freezer…they turn red. purple, white when they start hurting you know they are white and very cold without looking at them…I could cry with the pain. It feels like if you touched them they would snap off easy…I am going to a Oncolgist having to have iron infusion every 2 weeks they can’t get my iron up to 100 only to about 40, they can’t figure out why they can’t get the iron to go up and stay there and this has been going on for 2 years and also with my blood it won’t stay up either.

  773. I was diagnosed with FM 4 years but i am not sure if it is FM. Bi only hurt and feel like i have the flu 24hours after exercise. The symptons last for about a week then i slowley improve if i rest. It happens everytime. If i tske it easy and dont excercise i am relatively well. Is this FM?

  774. I have had Fibro since I was in my 20’s, and went from dr to dr . It was a world renowned Rheumatologist in Los Angeles who finally told me what I had…but he said no one really knows how to treat it. That was in 1984. It’s now 2014..20 years later. I have worse symptoms, and constant fatigue. I cant get out of bed until almost noon, and my muscles ache all day. I have brain fog and memory problems and IBS. I am now in my 50’s. Have tried lots of things, no luck. In the past 4 years I have gained 35 lbs, and it’s because I cant exercise…I am exhausted. I tried Cymbalta last year after 17 years on Effexor…and I was suicidal on Cymbalta after taking it for a couple of months! It’s a similar drug to Effexor, but only Effexor helped. My feet and hands swell terribly and I cannot stand cold or hot weather. I am thinking about trying Lyrica, but kind of afraid of the side effects.

    1. Savella helps if you can get past the nausea, which I couldn’t as it is the number one most common side effect. I know Vicodin (hyrocodone) gets a bad rap, but it’s what gave me back my life..a life normal people take for granted. It does not make a person want to sleep all day, by contrast it takes away the pain so thoroughly you have the energy of the person you used to be. And Vicodin are not addictive to those with chronic pain disorders. I am on the same dose I was four years ago, in fact some days I cut my pills in half as I don’t need the full dose. So don’t believe the hype..drug addicts and sellers have given this simple effective pain killer with the least side effects of all the others a bad name.

      1. Paula J Countryman — I have never had any problems on Savella. Not saying people do not have side effects, just that I have never had any myself

        1. You’re lucky Emily 🙂 I loved it, got me through my father and my elderly dog’s deaths..just the nausea was so hard for me. Could be why one doesn’t gain weight..Kidding! LOL! Maybe I could try it again and see if it’s better now. I was taking Lexapro and it helped some, then my doctor put me on Prozac for anxiety and said it doesn’t cause weight gain, so we’ll see.

          1. Paula I’m with you Savella caused me to vomit daily. I had to stop it . I am on pain meds now after exhausting every other alternatives, I do however add supplements. Magnesium and DHEA and a probiotic. This combo has had the best results for me thus far.

      2. Savella really helped me. I was diagnosed over 25 years ago when they were calling it fibrosytis syndrome. I am able to block out the pain so much that when I went on the Savella and the pain stopped, I couldn’t believe how much better I felt. The knee pain that I thought was a cartiledge issue even went away. It was tough getting through the first 2 weeks of bad tastes and nausea, but so worth it. UNTIL the heart erythmia started. At first it was tollerable, but then I ended up with full cardiac testing. The doctors say that it does not cause the erythmia or the high blood pressure but will bring out an already underlying issue. I would still recommend Savella to anyone. I wish I could still take it

      3. I just started savella several months ago, it helped a little so my Dr doubled the dose, and it made me nauseous , called my Dr and told him about the nausea, he said break it in half, half in the afternoon and half at bedtime, cured the nausea 100% 🙂 Hope this helps

    2. Caryn Hirsch, I know your pains myself. I am in my 50s as well Cymbalta also attributed to your weight gain. I was on it for 3 months & gained 20 pounds. I was on Lyrica until 2008 when I started have severe of swelling of my feet & hands — All thanks to Lyrica. I have never heard of Effexor but I will be looking into it. Currently I am taking Savella — I researched it & there wer ZERO instances of weight gain. Good luck to you

    3. I can understand I also have gain so much weight and with the swelling of the hands and feet it feels like they are going to bust open. If you have not tried Lyrica by all means do. Lyrica helped me for 10 years, I was able to live a normal life until the last few when I had to sleep all weekend to be able to work the next week.

      1. Charlotte Richardson — Are you aware that Lyrica not only will cause you to gain weight BUT it causes extreme swelling of hands & feet? I tossed Lyrica because of those problems. Weight gain & feet swelling so bad I could not even put on sandals that closed with velcro was not a option for me

    4. that sounds exactly like me. I don’t think I can take much more of this. It’s no way to live. People who don’t have fibro will never understand…..it looks like laziness to them.

      1. Barbara, I know how you feel and it makes me hurt for you. There are so many ways to treat fibro but there is no cure..just pain relief. I know that eating a high carb diet causes inflammation in the body, and inflammation causes pain, so a low carb, gluten free lifestyle will give you energy like you never had before. I’ve never tried it, but some swear by medical marijuana. I take Vicodin and it is a miracle drug, it’s non addictive to those of us with chronic pain conditions and it gave me back my life!

    5. Caryn, my story is almost exactly like yours, except for the Effexor, no swelling, I gained weight on Lyrica and lots of weight on Cymbalta, had F since my 20’s told it was all in my head worse now,ache all day constant pain in all the pressure points age 57 and degenerative disc to go along, hope things get better for us…

    6. A lot of people in these comments have complained of terrible side effects from Lyrica. My own experience has been of relief with relatively few side effects. Weight gain? Maybe 5 pounds–not a big deal in relation to the really excellent response in terms of pain relief. I’m not pain-free, but the daily background pain decreased from 4-5 on the ever-popular scale to more like 2. This, to me, makes it more than worth it. (And, because we have to be able to laugh at ourselves to make chronic pain bearable, consult http://hyperboleandahalf.blogspot.com/2010/02/boyfriend-doesnt-have-ebola-probably.html for a far better pain scale)

  775. I have FM. When my doctor tells me about this study, then I’ll believe the claims. I do however feel better on a gluten free diet. I also have bouts with IBS and the SCD diet keeps me healthy . The diet comes from the book: Breaking the Vicious Cycle. It’s basically gluten free, sugar free and lactose free….no processed foods. Get the book on Amazon.

  776. I was diagnosed with FM 13 years ago. Having a hard time with the above article. This is what has helped me. I never really new about inflammation until about three years ago. I started drinking Monavie which is a juice full of amazing fruits & freeze dried Acai in its most powerful form. Its basically a powerful bottle of antioxidants. The first week, I noticed I was able to enter into a deep sleep. ( first time in YEARS). I then noticed my feet pain started to go away. The second week, I lost my sweet tooth, my energy was starting to increase. By the third week, my 10 year deep tissue shoulder pain was GONE! I would rub it out of habit & then realize there was no pain. Why did this all happen? Because my body was so inflamed & the Monavie juice kicked it right out. It really is an amazing bottle of antioxidants. Is drinking Monavie the only way? Of course not- it’s pretty expensive at $140 a month. It’s convenient. But not everyone can afford it. I can’t afford not to drink it personally.
    However you can get as many antioxidants into your body will surely help! The chia seeds are a good form of antioxidants too! It’s worth a try if you haven’t been conscious about putting antioxidants in your body yet. It truly gave me a new lease on life.

  777. I had FM for a number of years and the only thing that helped was a low dose of pain medication every 2-4 hrs. day and night. I tried some of the other popular drugs and they made me feel worse. I tried power walking and that made me feel stiffer and not better. Then, about a year and a half ago I started eating mostly organic foods and after several months I began noticing that I wasn’t needing to take the pain med as often, and I kept feeling steadily better. I began working with a nutritionist last Spring and she put me on organic vitamins and supplements, (Garden of Life brand). Large amounts at first so my body would continue to heal. I make a lot of juices and smoothies, all organic, of course, and I feel great! I no longer have FM symptoms unless I do not eat organic. Inflammation and pain begins to occur even after just a few meals of non-organic food. Yes, organic is more expensive, but being in pain and feeling tired all the time is pretty expensive, too. I have my life back. I hope you will give organic a try.

  778. I have had FM for 18 years and I am slowly getting worse. I am totally miserable and I cant even be trusted to look after my Granddaughter on my own. I understand why but it hurts and when I do things with the kids I pay big time for it in the following days. I am now on a disability pension and I hate my life. People dont have a clue what your going through and I just feel hurt and frustrated most of the time. I hope there is a cure and soon so I may get some quality of life before I die. My biggest concern is my memory it is so bad I am going for an MRI soon, and more ultasounds on shoulders and neck. I pray for a miricle

    1. Teena, I am so sorry and we all can relate. But have you considered trying pain meds? They literally meant the difference from lying in my bed and moaning in pain all day or getting a job working two days a week. I’m also on SSDI and I try to stretch every morning against the kitchen sink. Your calf muscles have got to be stretched because fibro feels like we ran a marathon. Our muscles remain taut and that’s just one of the reasons we hurt.

  779. I Have been diagnosed with both Fibro & CMT(a form of perhiperal neuropathy). I have found that most of the medicines mentioned in previous posts ALSO cause weight gain. I was on Cymbalta recently & gained 20 pounds in 3 months. No longer on it. Lyrica caused EXTREME swelling of hands & feet as well as weight gain.
    **** MY question is: If this study was done in June 2013 why is this just coming out?? Why dont my Neurological specialists know about this????
    This stuff that seems to be unproven in my eyes is the reason why I started a private group on FB for my friends & family who suffer from ALL for of Neuropathy as well as other related illnesses

    1. Can others look at/join your group? My DD has dysautonomia, which is related to those illnesses.

  780. i started with back pain now its in hips neck an shoulders an i dont know what to do when i go to peel pototoes or deal with cold water my hands hurt so bad i want to cry scared to go back to dr becuz he just wants to keep injecting my back with stuff an it dont work hate going to bed becuz it does hurt im just tired of hurting all the time i can barely move half the time an now sometimes when im standing i lose my balance i hear the dr say its all in ur head i feel when i see him he thinks im making it up i walk in leaning to my right side this is a pain clinic dr

    1. I recommend you get a new doctor. I changed ALL my doctors 3 years ago & am happy

  781. One more thing, If these findings are true maybe a cure is around the corner! I’m going to think positive Guys. Don’t know how gluten and blood vessels can be related but who knows? Maybe.

  782. I was diagnosed with FM about 7 years ago and Chronic Fatique. None of the drugs were for me. Cymbalta didn’t do a thing and Lyrica side affects were horrible. I was told to try a gluten free diet for 2 weeks and see if it helped. I took the challenge. I didn’t think it ws doing anything but on day 13 I was amazed that I wasn’t in constant pain and my extreme daily fatique was gone. All I know is it worked for me just like it did for the lady who recomemded it to me. You couldn’t pay me enough to tempt me to take a bite of anything with gluten in it. I’ve been gluten free for 2 years It has been like the difference between night and day for me. I’m going to make the same challenge to you, cut all gluten from your diet for two weeks. If it helps you will be forever grateful that you did. If it does’t help, nothing lost. Just be aware that gluten is in foods you would never even imagine it might be. So you need to be serious about it if you do it. You can get an ap on your phone to check any food for it.

    1. When I was gluten free, my pain was minimized greatly. ALL of it. Back on gluten … BAM … Pain is back. 🙁

  783. Personally, I think the fibromyalgia mystery isn’t solved if doctors or scientists think the problem was just nerves or excess blood vessels in the hand. Think about it. There were no symptoms of fibromyalgia in early years. Remember this: Chlorine and Flouride are poisons not approved, but ignored by the FDA. When the US started requiring all drinking water sold to have chlorine to prevent e-coli bacteria then fibromyalgia patients started showing up everywhere. Chlorine is not dispelled from body organs quickly and will cause a form of hardening them. This will cause pain everywhere. All the 14 or so points in a persons body that point to fibromyalgia will hurt in everyone if pressed properly. It is a physicians way of saying they don’t know the cause, like them saying one has a virus. People on well or artesian water, that don’t work or shop in areas that have chlorinated water or who don’t drink tea or coffee made with chlorinated water rarely have the disease or rather the symptoms….

  784. So… If Cymbalta is the answer now for some people. Why not give a try? If we have just this life now.

    1. Treating anomalous symptoms with antidepressants without a working knowledge of why or how it works is worse than a placebo.

      It is no more active treatment than a shaman blowing bloody chicken feathers in your face. It is worse, in fact, because the antidepressant has negative side effects that may make the patient worse.

      1. I agree! I have first hand knowledge that none of the antidepressants I was prescribed not only did not work but some had horrible side affects. One caused me to spiral into such a dark and deep depression I had an active plan to take my own life. It was only one half hour til I would be alone, to stop the soundtrack in my mind. I sat alone, tickling down the minutes. Only luck, divine intervention or some little voice inside me said “Something’s wrong. Don’t wait for your family to leave for the day. Tell your husband.”

        After 29 hours, ALL if the feelings of depression, sadness and despair left me, like a fog being burnt away by the sun. I have never again taken an antidepressant and have NEVER felt that way again.

        1. It is very common to feel that way Cristy, when one first starts taking them. That is why on the leaflets found inside, there is that warning, especially for younger persons.

          However, for all that, they are still prescribed symptomatically by G.P’s for the simple reason that long term, they help with pain. They have in my case. You just can’t take Asprin, Paracetemol, or Ilbuprufin long term, after a short while, they won’t work.

          The thing is, there is very little else for the Doctor to give you. I take pur bloka as well, which is a Beta blocka. I have perfect blood pressure of 120/80 and it takes it down to 117/76.
          I also take calcium for my bones, an Omega 3 tablet, Anti-oxidents, a special Fibro pack including Malic Acid, Magnesium at night for sleep, (which is ultra important with Fibro, Alpha sleep.) You can use Amitryptoline in small doses to be sure, or 5HTP from a Homeopath.

          Fibro can be compared to being a faulty traffic light, in that the brain sends out signals, but they can get confused on the way down, causing all sorts of problems. Pur-blocka slows your signals down, and is calming, as are the anti depressants.

          Not that I think Anti-depressants are the perfect answer at all – I take Molipaxin which is good for sleep, but you can get a bit drowsy in the morning. Rheumatologists suggest Cymbalta, but for me, it caused constipation. The problem is, once you start and are on them for a while, they are pretty hard to get off them, and it has to be done very gradually over several months. With the pills that is easy, with a pill cutter, each week cutting off a quarter or a half, but with a see-thru bomb, you have to leave them off every three days, and then one off every two days and so on over several months.

          I stopped once, and found that I had more pain, but I did see an improvement in my walking and standing, as the anti-depressant seemed to effect that. However, if you are at all anxious, things can go wrong radically if something really throws you. I was off mine for a year, and then there was a big upset, and suddenly I had panic attacks.

          I am now disheartened by G.P’s and specialists, because they always go with the conclusion that you have got what they deal with. I was sent to a Neurologist, who was convinced I had Parkinsons, four years later, he told me no, I didn’t and he didn’t have a clue, but wanted me to have another MRI on the brain. I refused.

          These days I am thinking that Chinese Medicine could well be the answer and to come off all my tablets and try it with a registered Chinese Medical Practioner or go to an Integrative Medical practioner who is open minded about things one can try – one of the two. I also believe in going to a chiropractor – it helped me, as I have a Scoliosis of the back. As well, Acupuncture.

          The thing is, we don’t want to cover up symptoms and have them for life, and spend a fotune on pills. We want to improve our daily quality of life and get to the root of the problem. It can only start with a really good diagnosis, and I am not convinced I got that with the Rheumatologist I went to. He pressed the strategic spots, but I didn’t shout or scream, it just felt a bit more painful that’s all, though I did have all of the symptoms.

  785. There to many of us with this disease it no joke I pop pills all day and I still don’t get better my jg re ad is so foggy I have forget easily, I hope one day for a cure, I tried all thy above meds, nothing help for long till it stop having an affect but the withdraws are worse. .

  786. Have a pain in the back of my head on the right side. Had a cat scan and shown nothing. Could I have fm?

    1. I have it in my neck and shoulder on my right side. I would suggest going to a rhumetologist to see if you have fm. you will have to go through a lot of testing to rule out other syndromes. there is no one test for fm.

      1. If you only have “it” in your neck and one shoulder… that’s not FM. To get a FM diagnosis, you must have tender points on both sides of the body, and both above and below the waist.

        That’s NOT saying you don’t have a problem– just that, if those are the only tender point areas, then it is not FM. Although, from Morgan Freeman’s experience, problems in a limited area can start a cascade of problems that develop into FM, so it’s worth getting treated no matter what your current diagnosis “really” is.

      2. Go to a Rheumatologist. He can diagnose you within minutes if it’s fibro. If you don’t have the tender points for fibro, then you may need other tests. So yes in short, there is just one test for fibromyalgia diagnosis.

  787. I was diagnosed with FMS in 1972. At that time they called it Fibrocitis, an inflammation of the membrane that covers the muscles. It was rarely diagnosed in those days. I am taking 200mg of Celebrrx, 60mg of Cymbalta, Melatonin and Flexeril at night. When I was on Lyrics, zI gained 50lbs. I really hate taking all of this medicine, but with FMS and severe arthritis in my back I really don’t have a choice. I pray they find an answer for those that follow me.

  788. I have suffered since getting hurt at work at 23yrs old ,now 51 ,I haven’t tried lyrica or cymbalta . I have chronic pain in my shoulder neck and left arm but after yrs it has now taking over most of me. I can’t walk good and hurt 24/7 hope u find something .i have problems with medicines so can’t take just anything.
    I hope u all find releif .God be with u all

    1. Debbie, look into Chiropractic and myofascial therapy. I have this done along with the narcotics I take. I also do acupuncture for my hands. (which are the worst) I have had a lot of relief in my hands from this. I can handle the pain now. and I do yoga. to help stretch my muscles for some relief. I too walk with a limp and I walk slow. My insurance does cover the chiropractic and therapies. most insurance don’t. see if yours does. good luck

  789. My name is debbie p. I was diagnosed 20 years ago. I tried lyrica.
    , neurontin, Mobic, savella & all kinds of pain meds mothing works pain scale is 9 every day

  790. I have FMS and it hurts I’m not gonna lie but all these peeps with inflammation you are wrong. FMS is NOT an inflammatory condition. Your muscles, ligaments etc don’t swell. Arthritis does though.

    1. The majority of fibromyalgia sufferers have a low grade fever in the evenings. Additionally, we have a other pain conditions as well; arthritis, scoliosis, hypothyroid disease, sleep apnea, and heart conditions..so of course there’s inflammation.

  791. I’m a physician and I can say this article is bogus. It apparently was written by a 5th grader, given the complete lack of familiarity with anatomy and physiology. Actually, that’s insulting to 5th graders. Many 5th graders are brighter than this.

    1. Dr JKH, How can you say the article is bogus and not offer any alternative advice? Any Clues to this debilitating disease is a step in the right direction. The article sites an overview of a research study for us to read more detail. In 1994 I dropped from debilitating fatigue and low BP; and slept for 2 YEARS, then the pain came (Fibromyalgia). I have tried everything !!! Eating gluten free does help me to not hurt as much; but gluten is EVERYWHERE and it’s hard to stay on it. There is evidence that environmental factors cause or at least contribute to the pain/fatigue/fibro-fog; like chlorine, fluoride, and tons of other chemicals. Along with Rx Rx meds to increase my BP, Cardiologists have advised me to eat more salt. That works out fine, because I crave it. When my fatigue is at my worst my lob BP usually coincides, and I eat salt. (I increase water intake considerably also) So, for 10 years I keep salt at my side…I JUST learned CYANIDE is in my Sea Salt….to prevent caking….. WHY is figuring this out so hard? All we have is each other experiences of what works, and RESEARCH to read and share which is what this article does. .
      .

  792. Karen Lenore Gilreath. January 26,2014. Awake and achy so I’ve decided to tell my story. Many years ago, I was in so much pain and every doctors visit, I would scream out in pain as he examined me and he couldn’t figure me out after testing me 3 times over a period of 15 yrs. for Lupus and every time it came back negative; he then told me that he thought it was all in my head and gave up on me………..It was his nurse practitioner that done some research on the internet, etc. and finally convinced him that I had FM(Fibromyalgia) I couldn’t take the Lyrica but quite by accident; found that Cymbalta 60 mg helps me ease the pain. I was taking it for depression for 6 months while my mother was dying of kidney failure. Then my medical insurance declined to pay for Cymbalta and I was without it for 3 months until I got in so much pain and was losing my mobility again and felt suicidal and my doctors communicated my great need for it and they consented to supply it and my symptoms began to get better again. That’s when we knew that Cymbalta was working to help ease my FM pain. I have stomach ulcers so I CAN NOT TAKE PAIN MEDS……I only take over the counter advil gel caps when I absolutely must get out of the house for dr. appts. etc. I’ve become a shut-in because to do otherwise is so painful. I had my husband to read this InFo on FM and I think it opened his eyes a lot, because of all the symptoms shared that he KNOWS I’VE EXPERIENCED for over 10 years now…….like the extreme cold I feel and how it makes my pain unbearable, not being able to sleep and even less when in bed, losing my mobility, back pain so bad that I’ve become all bent over to the right side. Surprisingly, my doctor had noticed that my spine was curving to the right 15 years ago; and my inflammation was much too high all the time……but HE could not figure out why. My husband has teased me severely about being TOO SENSITIVE to touch, smell, light, sound, etc. I PRAY THAT GOD WILL HELP THE MEDICAL FIELD FIND A CURE FOR ALL FM SUFFERS for THE FM PAIN IS REAL!!!!

    1. This really makes me wonder if sensory processing disorder could be related to FM! My 10 yr old son has SPD and I’m wondering if later on it could manifest into FM as my MIL was JUST diagnosed with FM. Could you please contact me at my gmail account? smile4532

  793. Try using a Float Tank/Sensory Deprivation Tank in your local area, You will be surprised what you may find and how it will help you. I have a friend that his pain went away. Try it out for yourself.

  794. Have had fibro for at least 30 yrs, but only diagnosed 8 yrs ago. My mom also had it. I have tried the cymbalta and lyrica and couldn’t take either one. Dr put me on Neuroton and it helps so much more and no side effects for me.

  795. I was very active as well. I did notice a drop in estrogen seemed to intensify my fibro and sugars and starchy foods. I have tried many medications all with horrendous side effects, but have settled on Lexapro for my anxiety and Hydrocodone for the pain. It has the least side effects and keeps me from hurting for three to four hours at a time.

  796. I have had fibro for 12 years now. It is a very painful disease. I am on Cymbalta 60mg. and Lyrica twice a day. I also use hydromorphone 4mg. 4 times a day. It gives me some relief,but not enoughto be able to work. I am in constant pain,and spend most of my nights sleeping on a lazy boy chair. I can not get comfortable in a bed. I just toss and turn. Hopefully someday they will find a cure,or at least a better medicine.

  797. DLKirkwood- I totally believe I have this syndrome from eating a lot of something growing up. My mother served us veggies out of a can and processed meats. Always cooked with an aluminum pot.very rarely did we eat anything homemade. I have switched to organic and doing most things from scratch. I am reading food labels a lot. takes me 4 hours to do grocery shopping. I know certain ingredients set me off with such pain to the point I am crying. Started shopping at Whole Food’s, Trader Joe’s and the Fresh Market which are 30 – 40 minutes away from where I live. Food bill has tripled since I started eating this way. I am also trying Green smoothies. incorporating more raw foods and local foods. This has helped some. Winter is hard to get out because of the freezing cold. I do do yoga and try to walk around my neighborhood. Cannot wait till my husband can retire so we can move to a warmer climate. got 11 years to go.

  798. I was finally diagnosed in Oct. of 2008. I can no longer work because of pain. I am disabled now. I am taking 300 mg of Gabepentin and Vicadin 5 times a day. Take 30 mg of Amrix at night to get my muscles to relax. Started doing chiropractic, acupuncture on my hands and myofascial therapy. (therapists works my muscles to get them to move) 4 years ago. this works pretty good. started doing yoga to help move the muscles. nighttime is when I feel the pain in my hands the most. Cold hurts really bad. I don’t mind the humidity. Got really depressed when doctors couldn’t find out what was wrong with me. Tried Lyrica but found out one of the ingredients is a lactose base. I am lactose intolerant.
    I have changed my diet. going all organic. no processed food. everything from scratch. No GMO’s. I get my meats from Whole Food’s or Trader Joe’s.have to be careful of ingredients in yogurts. only eat Stonyfield or Chobani. High Frutose Corn Syrup and Modified Food Starch make my body hurt worse. These are found in Cambell’s soups too.
    I am trying Gluten Free now. See if this will help with the pain too. Any info is great.

    1. I can relate. I am lactose and gluten intollerant, also have to keep away from high sugar or high carb foods. I found out that I can’t have any stone fuits or melon or pumpkin. That includes certain tomatos that have been geneticly modified using plum DNA to make their skin toughter. Spinach and brocolli cause severe cramps. I am not allergic to any of these foods though. Eating glutenfree is the most difficult and expensive one of my eating habits, but totally worth it (for me at least)
      I have found that spreading my meals differently improves my sleep. I try to have most of my calories in the morning and at noon, I only eat a very light meal in the evening. Hope this helps a bit.

  799. Have had Fibromyalgia for 10 yrs now, but only diagnosed about 5 yrs . I have tried Cymbalta, now Lyrica and not much change. I can’ t sleep and have had to stop working because my job was too physical. The cold makes it so much worse. Also humidity. So many ther issues as well. Would like a more natural route. These meds have alot of side effects. Acupuncture and chiropractic care is helping. We need more research done on natural treatments. I feel it is an Auto immune disease.

  800. I have known I have FM for a little over a year. The Dr. who diagnosed me put me on gabapentin and tramadol. Both made me feel horrible mentally, down, depressed worn out. Next I went to a pain clinic that was new in town. The Dr. there put me on Metanx which is B vitamins. What a difference!!! I’m free from the down feeling and really helps with the pain! Now my insurance won’t pay for it so have that hurdle to get over, it is pricey…

    1. i take the same med you take i took 300mg 4 times a day plus morphine 30mg twice a day and one oxyc at noon it helps with the pain but when its cold and it gets hot i still have problems getting out of bed i have good days and bad days with the meds i take i still can do stuff all the other meds everyone talks about they did nothing for me i have a good arthitis doctor that find out i had fibro 3 years ago

  801. Hi, have not been on for awhile. I check in every once in a while to remind my self that I am Not alone in this pain.I read all of you comments and it helps me THANKS:)
    I hope you All can find some peace,I have NOT.
    I was`reading someones post about going to BED!!! For me, I am terrifide of going to sleep every night!!! if I keep moving Im ok( as ok as it gets)But when I relax!!! well you all know what I am taling about.
    good lck to you all

    1. Drafts are my enemy. It took me some time to figure that out. All plug outlets in my room are sealed. I keep the window closed. My bed is not up against an outside wall. My dryer vent is sealed when not in use. Dryer vents are notorious for back drafts when not in use. I removed all ceiling vents through out the whole house and sealed where the ceiling meets the AC pipe. If these are not sealed properly, air leaks from the attic. I also had to move to a warm climate, Arizona which helps a great deal. You get the point.

      1. Can you elaborate on that? Because it’s cool air? I can never get warm, just the cycling of the HVAC system cutting on and off feels like artic air to me. It is constantly coming on and off, circulating the air.

  802. i am now on 3rd drug , prednisone gave me shortness of breath head ache and raised blood pressure to 195 over 145 .
    Cymbalta gave me splitting headaches and tremors , chills and shakes , and lapses of memory .
    now on lyrica , seems to be easing some of hip pain , but I am only starting 2 per day .
    for a mystery pain it sure is hard to make people believe or understand how painfull it is every day

  803. After having surgery after surgery my doctor said I had fybromyalgia. I went for second and third opinions and they all said the same thing. I tried Cymbalta and that didn’t work for me. I use Savella and Lyrica along with Vicodin to make it through my day. I an no longer work the pain is so bad.

  804. also tried accupunture.no other Med work. or or prescription. just the tramadol helps a lot!! had this for over ten yrs. thanx so much to my doc rheumatologist first visit took 20 seconds to dia. I could finally put a name to the pain. cymbalta didn’t work for me. if it does for someone that’s great. just nothing else works. for me.

  805. lyrics made me spacey (weird) 2 yrs lot of weight gain. didn’t help pain. went off it n 30 lbs off in 1 month. didn’t help pain. tramadol iworks. I don’t go to bed cuz wake up too much pain. can’t walk. worked out, very active. now nothing. it’s not just in ur head.

  806. I have had Fibromyalgia for 26 years and was only diagnosed last year. The Pain has been markedly worse since last june. My hands feel like i am breaking every bone in them first thing in the morning and my whole left hand side is in agony. I take morphine (m.s.t.) and Oromorph and it does not ease the pain. I am desperate for help.

  807. In 1987 I was diagnosed with LUPUS (similar in symptoms) to FM. HOWEVER, when I stopped eating processed foods the “disease” miraculously went away.

    Much of use are ingesting plastic that has leached into food from the container, and artificial chemicals, and Genetically Modified Foods that we get very little REAL food.
    Stop eating processed foods for a month and then see how you feel. Then get a list of who is fighting the labeling of GMO foods and buy other company’s instead (less likely to be GMO) or Organic if you can. If not eat locale at least – and see how much better you feel over that.

    Corporations are poisoning us. If you do not believe me, ask your doctor if it is healthier to fresh meats, fruits and veggies over processed foods.

    When you think about which is really more expensive? Organic food, or medical premiums and bills when you do get ill ?

  808. I take lyrica I have tried several different meds and combinations. Mine started in my feet. Was diagnosed in 2000. The pain is there every day, some days are worse than others. Hope they find a more effective drug soon.

  809. The source of the inflammation needs to be addressed. VERY OFTEN it is the foods we eat! I used a test called the Mediator Release Test to find out how reactive I was to 150 different foods and food chemicals, and then tailored my diet to avoid those foods. It was much simpler than an elimination diet, which took forever. Simply avoiding the reactive foods which were contributing to my FM made a huge difference! When I do slip and eat one of the foods, I pay for it with pain and fatigue again. It’s worth it to me to avoid those foods, one of which is cow’s milk.

  810. By accident I met a doctor 2.5 years ago and she changed my life. I have suffered from fibro over 20 yrs and tried everything. She put me on cymbalta 30 mg and that did nothing. She increased me to 60mg a day and I have my life back. I still have intermittent pain but no flare ups where I couldn’t get out of bed since the day I started it. It’s very expensive and cost me 230.00 a month but it’s worth it. They just cam out with a generic , thank goodness, but doctor said it will take a year before the price goes down on the generic. Right now the cost is about the same. cymbalta for me and -0- side effects so 8 recommend anybody to try it before. Lyrica. Good luck

  811. I was a very active person, played sports which included lots of running. Enjoyed camping fishing, snowmobiling, swimming, baseball, walking, knitting, painting. Had three children by the time I was 23 so I was not sedentary by any means. Running after 3 children having two in diapers at a time you don’t have time to think let alone sit around all day. Then comes all the school and after school activities driving here and there and coaching and clubs etc. But the pain is there all the time. My hands started to hurt so I had to get help with simple things like peeling potatoes or mixing up batters of cookies, then hanging up cloths and folding them. Before you know your whole body is in pain and the pain is unbearable and no one will listen to you, I even tried to continue working for years until the pain just keeps getting worse and worse and nothing helps except pain meds All the doctors say its in your head, get more exercise and think you are a hypochondriac, . I have tried several doctors, chiropractors, acupuncture, needleing on top of numerous medical tests. For someone to say it is all because I had a sedentary life makes me so angry. I had to slow down because of the pain, not the other way around. The final straw for me was a hysterectomy in 1997., that is what made everything flare up to the point that I was going nuts with the pain. In 2000 I finally got to see a Doctor at a pain clinic that gave me the diagnoses of Fibromyalgia and Myafacia pain syndrome; she actually believed my pain was real and not just in my head. I was part of a Medical study she was doing. She tried numerous treatments and came to the conclusion she couldn’t help me but could give me a quality of life with pain medication. I have been doing good with this but would love not to have to use narcotics for the rest of my life. I look forward to a better treatment or a cure for this disease (but I am not willing to take meds that can cause cancer, my hair fall out, make crazy things happen to my body that are scary!!) I would rather use the pain medicine! I hope that this break through gets us suffers the help we need without having to make scary trade offs.

  812. I don’t know what to do – I am in constant pain – does losing weight help? I am almost immobile and hate going to bed??

    1. I so identify with Carolynn.
      I hated going to bed for many years because that’s when the flare ups occur.

    2. Me and my mother (almost on accident) discovered that excluding ALL carbohydrates and sugar other than those from green and none-starchy vegetables, worked wonders. I put her on a ketogenic diet to help her lose weight (which she did) but she noticed that the symptoms of FM were greatly reduced. So much that she went from spending 18-20 hours a day in bed to an almost normal sleeping cycle of 8 hours overnight. Also, she could hold a conversation and focus and described it to me as the brain fog had been lifted quite a bit. When I then read this article it does make sense, carbs and sugar affect your vascular system (among other things) in a terrible way so that they now are saying that this is in fact a nerve/cardiovascular issue, makes perfect sense to me. You can believe me or not, I thought I would give back by sharing our incidental discovery and possibly offer someone a solution that does not involve destroying one’s liver for the profit of big pharma. I truly hope you look into it. Again, ketogenic diet, research it please and no it is not dangerous, the people who say that are the same that told you (if you went through the same thing as my mother) that it was all in your head, and we know they can’t be trusted.

  813. Fibromialgia and my host of other mysterious nerve diseases are caused by poison artificial sweeteners which turn into methanol and formaldehyde neurotoxins.

  814. I’ve been on cymbal tag for about 3 years the pain specialist told me it would help with the pain. It has relieved it a little but still need my tramadol.

  815. As a chiropractor i firmly believe that there is a mechanical link to fibromyalgia. We are simply not designed for our sedentary lifestyles and sitting down is extremely bad for the back sitting puts excess stress on the pelvis which can result in the pelvis twisting. The pelvis is the pivot point for our entire body, when its twisted the entire body has to adapt in order to keep us standing straight and keeping our eye lines level. Thus adaption will naturally cause compensatory tightness in the muscles of the legs, back, shoulders and neck. This eventually will lead to pain in all of these areas.

    unfortunately the more pain we are in, the less able we are to get out and about and so we tend to sit more, thereby exacerbating the problem.

    1. I’m sure there is truth in what Dr Paul Zalick says, but I was an extremely active person when I was struck down with fibromyalgia, I was a youth worker running 12 youth clubs per week, not at all sedentary! So it is a complex situation, not just one answer

    2. While it is true that sedentary lifestyles are the culprit for many people’s pain, it cannot be the root cause of fibromyalgia. As one commenter already said, she was very active. I, too, was an active child and developed fibromyalgia around the age of 9 or 10. I continued to be active in order to keep up with my school and extracurricular activities, but i struggled immensely. I was diagnosed at age 21 after two years of worsening symptoms. A doctor told me I had it because I was overweight. However I had only become overweight in the 6 months prior! I had been quite slim with strong, toned muscles my whole life up until that year. Gaining weight came as a result of the worsening fibromyalgia symptoms, not the other way around. Also, fibromyalgia is not something with an easy fix and thereby an easy explanation. If it were, then how would it be possible for skinny, active people who go to the chiropractor, eat correctly, and exercise regularly to still develop fibromyalgia?

  816. I was diagnosed with fibromyalgia 8 years ago after I has surgery to have my spleen removed…the nurse gave me 100mg of undiluted demerol thru the IV in my left hand. It caused the IV to shoot out of my hand and shut down my entire peripheral circulatory system all the way up to my shoulder. I am a nurse myself but now I am completely disabled because of the severity of my fibromyalgia, rsd, flaring rheumatoid arthritis and debilitating fatigue. I’m so glad that someone took the time to study this!

  817. I suffered with chronic pain and inflammation for years…..I could not stand up and begin walking without a limp and no one knew why. I rose from bed in the morning by falling to the floor on all fours and crawling up to my knees and eventually my feet. I then read a book called Dangerous Grains which suggested that gluten insensitivity was a potential cause for chronic pain and inflammation. I went off gluten and after about a month, the nerve pain and chronic inflammation subsided. In addition the absence of pain, I no longer need medication for acid reflux. It can’t hurt to try it….it will not complicate any treatment plans but may help them be more effective. There are so many more gluten free options than when I started 10 years ago. it changed my life…..I have been told that I appear to be aging backwards and frankly I have to agree. I feel younger than I did 10 years ago.

      1. Hi Julie, in my experience I didn’t do well with either. My history of 25 plus years with Fibro; then I find Laminine it’s available on this website http://stemcellrepair.info/Lisa.
        I am a distributor of this because it has changed my life and my family’s lives. I no longer have any symptoms of Fibro. My contact info is on the above website. This website will also educate you about what Laminine is and how it works.

      2. I have been on Lyrica for 4 hears, couldn’t function without it. Take one at 7 pm and one just before bed – don’t take during the day as they make me sleepy. I personally have no bad side affects butknow someone else who can’t take it. Told my dr about Lyrica and he put other patients on it with great success

  818. Christian nurse put me on Cymbalta 4 years ago, instant relief and a huge difference…good luck all.

  819. I was Diagnosed when i was 14-15 years old! It started about 2 1/2 years before, I started doing really bad in school because i was hurting all the time and had to go home. Finally i went to Primary Childrens Hospital and The Utah University Hospital, I had lots of testing done. I found out i have Fibromyalgia, chronic fatigue, and Arthritis! I did not want to get on any of the drugs they were saying i should take. I do take Baclofen and Hydrocodone when the pain gets too bad, otherwise i just push through it! I take lots of vitamin B which helps some. Bananas for muscle cramps and Ibuprofen (very seldomly) I have had it for almost 6 years now!!! One thing that really helps me is getting sun, It really has helped with my skin being so sensitive!!!

  820. its about time that the looked into fybro more as I recently went to see a doctor (which I use the term loosely) and he told me that I was causing myself pain as that was what fybro was a mental illness and that because of things that had happened in my past I made myself think that I was in pain to cover up the things that had happened to me years ago as a child I came out of the appointment crying my eyes out and my husband was also very angry and told the doctor how he sees me every day in so much pain and there is no way that what I go threw was in my head and all he said was that there is no reports about fybro only that it was a brain condition of making yourself suffer x please find a medication asap to stop all us suffers any more pain as I have had it now 20+ years and I would love to be pain free from it I would give anything to have a day with out pain from this and my other illnesses thank you so much for proving that we are not all mad .
    Debbie x

  821. I am a sufferer or fibro too. I was diagnosed 2 years ago but was in denial until I just couldn’t deny it any longer. I told my daughter who always seemed to have problems. We researched it and we believe she has had it since she was born!! I didn’t even know it was possible to be born with it. Now I feel badly for all the times she complained and I ignored it. We just never know sometimes. I really hope they come up with a cure soon. We’ve suffered far too long.

  822. I suffer from fibromyalgia it has taken over my life I have been on different medicines, I feel all I do is hit walls, I have so many other health issues now. im very depressed the pain is getting horrible & I try keeping it from people cause I get judged because they don’t understand it & im only 42. I wish I could find a dr. that could help me & a group that u can share with feeling alone is hard. I cant sleep much, have problems with my kidneys, bowels & migraines all the time & other issues. so if anyone solves this mystery please let me know.

  823. My rheumatologist prescribed Low Dose Naltrexone , 4.5 mg at bed time, I take tons of melatonin , slow release, to sleep, and Savella, 50 mg at bedtime, after 25 yrs of hearing I needed therapy, I feel much better. These stories make me realize how much better I feel. I remember all too well the wondering if life was even worth all the pain…

  824. I have suffered for over 10 yrs, but was actually diagnosed 2 yrs ago. Since then, as you all know, it has been one horrible carnival ride! So many treatments that work for some and not others. Lyrica and other medications helped for awhile, then stopped when reaching maximum doasage. Currently on Gabapentan. Immovene and Effexor. I also suffer from IBS and now take Resortan as I tend to be constopated most of the time. Mt private health care benefits ended from work(3yrs from date of LTD) and must now pay and then submit to a plan I pay for monthly that has a dollar cap on Rx. I am trying to get by with minimal meds, I now see a naturopath, had a food sensitivity test done($300 in Ontario) and found severe sensitivity to wheat(any other grain is fine), ANY dairy, egg whites, 2 types of nuts, red kidney beans and oranges. 17 out of 125 foods tested. Eliminating wheat and dairy has helped with the IBS but not with pain. I find during the really bad days, the veins on the underside of my breasts are so enlarged, puffy and blue that it looks scary(like a varicose vein). I have been active all my life and now have to schedule my day so I don’t over do it. Napping is incorporated, mornings are my most active time of day, but also am finding that this winter my joints are hyper-sensitive, I bruise even in my sleep. Weather changes signify another painful flare-up, my feet become so painful it’s hard to walk. I have 2 young grandchildren and I struggle to not let them see my pain. No one likes a whinner, so forums and support groups are the only safe place to let it out(as well as my therapist). This article follows some of the other research studies I’ve read. Let’s get going and find a treatment that works and doesn’t cost the moon, and then, FIND a cure!

  825. I have not officially been diagnosed with FM but my doctor said I have some of the tender points and symptoms, I know everyone’s symptoms are different but I have a long list of them . Does anyone else suffer from anxiety with FM? I have had anxiety since i was a child but it got progressively worse almost seven years ago with the onset of more symptoms I became sensitive to caffeine, medication, alcohol every time I would drink beer I would be incapacitated with anxiety and panic attacks for two days ,afterwards I have vibrating sensations as I fall asleep that feel like they are being turned off and on at the flip of a switch, I have pain every where every day but I think the debilitating fatigue is the worst of all, in the last few years I have been diagnosed with carpal tunnel, orthostatic hypotension, depression and anxiety, arthritis in middle and lower back and hip with degenerative disc disease, I had to quit my job of ten years due to the over whelming fatigue there are days it comes on suddenly and I have to lay down immediately I never sleep well I wake all hours of the night I just turned 39 and I feel like I’m 89 ,the doctors want me to try all the meds that have serious side effects that I’m not willing to gamble with , I do take paxil if not I would not be able to leave the house,I was pretty much house bound until I started taking paxil its not a fix all med but it does help with the anxiety a little and if I take the 800 mg ibuprofen like I’m suppose to it helps with the pain and stiffness, I was prescribed gabbapentin but I’m too scared to take it has anyone took this before and does it help? I’m glad to see there are other people out there that understand how dibilating this is cause most doctors and even family don’t know what’s it like to feel this way.

    1. I take gabapentin. Have for about a year now. My dose has been raised slowly ove rhtis time. I am now at 200 mg four times a day. I have seen a huge difference when I take 8t. I feel more “normal”. Still cant work but at least I can finally get up out of bed. My only complaint is is can cause sleepiness. I have a problem with sleep thw socs cant figure out yet so thia one bothers me. But other than that it’s good. Good luck and gentle hugs.

      1. i am on the same med as you but i took 300mg four times a day plus morphine 30mg 2 times a day and a oyco one time a day in between the morphine for pain i have other health problems on top of fibro i have bad days and good days i just try to push though everything but its hard

  826. I was diagnosed with Fibro over 25 years ago. I have suffered like everyone else who has this “incurable” disease; to the point of leaving my nursing career of over 20 years. Last January, one of my sisters was told of a supplement for her family, she immediately called me to tell me all about it. I was skeptical, after all, I had tried everything, standard western medicine, fibro specialists, nutritional supplements and so on. The cost was a factor, but when I found out how low it was I said I would try it. I no longer have pain, fatigue, poor sleep, depression. I exercise one hour daily. Before January of 2013, I was on narcotics for pain control; which I only took if I couldn’t tolerate the pain, very rarely did I resort to this for pain control, because of the side effects. I couldn’t clean my house, do grocery shopping without help. I took meds and herbs to help me sleep. Anyway most of you know what I am talking about. I started taking Laminine one year ago. Today it is as if I never had this disease. I don’t need to plan my life around my disease. My family uses this supplement also; for fibromyalgia, depression, anxiety, bi-polar. I spend my spare time now, not on my couch, not in my bed, but sharing this highly beneficial and what is
    to me a miracle for my life and my entire family. Here is the website to go to, if you want to
    change your health this year. http://stemcellrepair.info/lisa

    1. Lisa, how long did it take for you to get some real relief using the Laminine? Cos I tried it for a couple months and it did seem to help a little but not a huge difference. And it was so expensive especially cos of all the other meds and supplements I’m on, so I had to quit taking it. But if it worked this well for you I might give it another chance! I’d do almost anything to lessen the pain even just a little bit. So can you tell me how much you take and how long it took to start working, please? I’d appreciate it!

  827. This article is rubbish he has said nothing how or why, and i see no evidence that he has tree the right meds 50% of FM patients who tae lrica get very ill not quiet a wonder drug.

  828. I have had Fibro for about 20 years– have had both hips replaced, and my neck fused. What I found helps and this sounds simplistic but it works reasonably well for me (and is VERY inexpensive) – I take 2- 500mg (extra strength) buffered aspirin every morning and if I have pain or have exercised a lot during the day- I take 1 at night before I go to bed– also helps to take an antacid and food with the aspirin (to protect your stomach)– has almost no side effects and can actually have some benefits. I also take an antidepressant but that is due to some emotional changes in my life that having fibro made even worse — I also see a therapist –it is very helpful having someone who listens and is understanding, nonjudgmental and believes that there is such a disease!
    When not laid out flat keeping busy helps– also I have a memory foam, adjustable bed– really helps with sleeping– if you are on Medicare and your Dr. prescribes it they will pay for part of the cost.– it was the best investment I ever made– especially good if you have back problems.

  829. I have had FM for 22 yrs and take anti depressants to sleep and 6 Tylenol daily for Arthritis. I also have Hypothyroid disease which I take Synthyroid I have an extremely hard time getting my thyroid regulated since 1992 I have had many changes to my prescriptions . I have an appointment with and endocrinologist on the 28th of January. My body makes feel like a body wreck. There are so many days I just drag myself out of bed. As I have read in the comments everything sounds similar in each person. I have a terrible time with weight control I feel like giving up. People that are lucky enough not to have it can’t possibly understand how we feel. I have had 2 carpel tunnel surgeries on my hands and a procedure done on my right thumb for arthritis which worked for me. Please someone find a cure.
    I live in a place called Nova Scotia, Canada our weather is sometimes very damp especially this winter. I’m cold all the time. We are very coastal here in NS partially surrounded by the ocean. So often damp weather seems to linger here and you know what this can do to your body. Our province is extremely beautiful.

  830. This is not “finally solved” when the doctors who keep up with research have been describing this exact same pain mechanism to explain Fibromyalgia for years.

    Also, about 80% of the fibromyalgia kids who go through Amplified Musculoskeletal Pain programs (like at CHOP, TCI, Boston Children’s, etc) finish pain-free. So there are treatments that bring relief to the majority of patients when it comes to children and teens–this article should clarify that.

  831. I don’t know if this information is true or not. Will need to research this more. But I appreciate the posts here and believe the same thing–no one knows unless you feel it. I have a great rheumatologist and she helps me so much but knows she is limited in helping me. I tend to just suck up the pain from fibro and so many other conditions I have. But I wanted to share these messages
    I get in email. It has helped me a lot. I too pray and put my trust in God to get me through, especially through so many hospital stays and medical procedures.

    http://restministries.com/devotionals/read-it/?awt_l=Et5K2&awt_m=3lxTvW4.VKUFVDd

    Rest Ministries is an excellent group who acknowledge and honor those with chronic conditions and pain and also share uplifting and spiritual advice and experiences. Hope this helps some of you.

  832. To those of you that were prescribed Lyrica,but don’t have insurance. The Pfizer corporation that produces Lyrica has a program called Connection to Care which pays for all or part of your Lyrica prescription. The information phone number is: 1-877-5367.

    1. This is so cool, cause I can’t afford the Lyrica I will have to call thanks so much for the info

    2. There is also a generic form of Lyrica available which is much cheaper. It is one of the generic forms that works as well as the original.

  833. Mary 2014 10pm

    I was diagnosed with FMS 26 yrs ago ,suffering pain, insomnia ,and dibilitating fatigue
    Last year,I visited a lady who practised regenerative healing .I had 3 sessions with her ,each lasting 1 hour .She does hands on therapy.
    I never used to believe in miracles ,but to me, this was one..I have now been 4 months pain free ,and believe me ,I can handle the insomnia and fatigue
    This lady with the magic hands lives in Vancouver ,while I live on Vancouver Island
    This lady lives in Vancouver Since then ,I have no pain ,but still suffer from insomnia and fatigue

    1. Mary from Vancouver Island…please send me the name of the lady in Vancouver with the magic hands that provided you so much relief.

  834. I have a solution and it involves good vitamins that have clove essential oil that is 1000 times stronger than a Acia berries. Diet will also change your life with the awesome essential oils I use! They have changed my life!

  835. Please please continue on with the research!! We need to find a cure. I am only 26 years old and have been suffering with this since I was 19. This is the time of my life that I’m supposed to be living it up, but instead, I have isolated myself from the rest of the world. I spend a lot of my days crying because if all hurts so much. It has literally ruined my life and I don’t feel it is worth living anymore. SO many of us need some serious relief. We need our lives back!!! Keep searching!!!

  836. I have had Fibro now since 2004. Mine started with carpal tunnel. I have had multiple surgeries on both wrists….(7 to be exact)….only after I fell outside and broke each wrist did I finally improve. I had plates and pins which repaired both wrist. I also know that getting my Vitamin D level checked has been an important factor as well. (mine was 12)….I now take vitamins and supplements and do other things which has allowed me to *control my FM pain*…I have found that using heating pad also helps. I can no longer sleep in a bed. I have slept in a recliner due to the back pain. I sleep on pillows in my recliner. After having so many surgeries my pain has indeed improved, although I am not pain free. I hope perhaps these doctors have found something that will help improve how FMers feel. Perhaps they can figure out just how to treat us for this ugly and mean illness. I hope for something to help with the chronic fatigue that also goes along with it.

  837. I am 76 years old. Was diagnosed with fybromyalgia 21 years ago. I also have osteoarthritis..spinal stenosis..gouty arthritis. I have lived in pain for so many years I have forgotten how it feel to be free of it. When I read they think there is a link to the blood vessels my hair stood on end. For the past several years I have noticed like lumps in the vessels on my arms when I am having a flair. Also in my legs both of which are extremely painful. Have wondered if it was painful varicose veins but haven’t talked to anyone about it. Other sufferers will understand why. Have also noticed a corellation to pain and milk products. I can identify with every comment made here. I have always been a hardworking country woman and love to work hard and a stay busy and this disease has stolen so much from me. Don’t tell me I am lazy and its all in my head. Before this hit me I could work circles around you naysayers. I didn’t just talk about how hard I worked…I DID it. I pray to God above that if they HAVE found a cure they will get on it and generously and fevorously work to free all who have suffered for so long. God bless you all who suffer and God bless all who are working for a cure for our suffering.

    1. Hello Jeanne: I so relate to your story. So much of it is the same as my own path. I am 63 and been miserable with Fibro for years. the osteo arthritis, spinal stenosis, gouty arthritis, bursitis (just found this one last week). The pain is a constant companion I try so hard to ignore . We know how that works! :-(( . I was diagnosed about 18 yrs ago , after the dragging around to doctors who had no idea what to do with me. The stigma those doctors left on my doorstep is still with me, I am not just lazy, just uncapable to help you, do for you all this time! I developed a family that still believes if i just get up and walk I would be okay or that I am just making up excuses why I am the way I am. My last hospital stay showed them that I am falling apart and nagging me is not the glue to put me back together again! But that’s not the answer to curing this syndrome and/or the other cluster-diseases that are wearing down my life! Blessings Be to all of us who drag thru life with this syndrome blessings to all who are trying to find a cure, and Blessings Be to all those Loved ones who have yet found the patients to deal with Fibromyalgia.

  838. I hate it when surveys ask questions like this. They want to know if we want to do away with capital punishment entirely or go for the firing squad. Like those two things are the only options here? I thought it was just inexperienced college students who wrote survey questions like that.

  839. Fibromyalgia is NOT a mental problem! A lot of people suffering from fibromyalgia have depression due to the constant pain. I have had it for 15 years. Mine was triggered after I was rearended at a red light. It is a daily torture that few understand.

    1. Thank you Laurel! I forgot of the doctor who diagnosed me and told me that it is hard to know where the fibor start and the depression comes in it is to me like a snake devouring it’s own tail running together/ destroying each other!

  840. Check out Max International Global page. They have a article about Fibro and other items of health.

  841. I have neuropathy in my feet but am not diabetic. I also have extreme fatigue. Since it is similar to fibromyalgia , I wonder if the new findings will apply to my problem at all? I hate raking all the meds which have side effects that are sometimes as bad as the pain.

  842. Thank God for this breakthrouhg.ihave fibro since m’y brest cancer in 1995Would
    it be possible to have a french translation .it may help me very much with my doctor.

    1. Gee Mary, it’s uneducated people like you who remind us that life is too short to give stupidity an argument. So you go ahead and continue to dismiss what you know nothing about. We understand. You have a mental problem.

      1. It isn’t like having a broken arm or leg ,, the pain is invisible to others, there are nights it feels like there are 3inch nails being driven into my arms and legs, my skin buns like its on fire ,, and to be in the very cold weather, my body shakes uncontrollably,,, so if ths is all because of DEPRESSION,,,, all I have to say is .. you need to listen to us ,,Drs have always fluffed us off as depressed, when I was younger , we never head the word depression,, wake up

    2. First of all, it’s spelled SOMATIC, not “samatic”, and second of all if you’d bothered to read any of the hundreds of comments on here you would’ve realized how wrong that is. Don’t criticize something you obviously know nothing about.

    3. Oh my goodness! A seriously block-headed dinosaur. It is people like this that drive a stake thru my heart, their blatant ignorance is what hurts so many of us.

    4. To all those naysayers out there; be careful what you say because you will reap what you sow. I have always been blessed with a caring heart. Too much pain and life experiences not to feel for others. I have had 10 surgeries ,lost count of how many procedures .My doctor has pretty much given up on doing anything but maintaining.But I know there are others out there who suffer worse than me.I would not wish this on my worst enemy. God Bless all who care, relieve the pain of those who suffer; and to those who are striving for answers , God bless your work and give you His eyes to See.

    1. Yes, marijuana helps, but it has to be the medical grade.
      The cheap stuff only aggravates it and possibly causes more pain, especially the headaches. It only takes a couple of puffs to be able to finish the dishes or mop the floor. I’m not the one with Fibro, but I see it every day in someone very close to me.

    2. seriously, marijuana is so very helpful in giving me the relaxation to fall asleep and enjoy some very needed relaxation

    3. Absolutely!! One of my most annoying fm symptoms is lack of apetite. Ive lost almost 40 pounds and am rarely hungry. Ive noticed that not only does my pain decrease, Im also able to eat!Theyve proven marijuana helps multiple issues..check out NORML!

    4. I live in Mich and have had a MMM card for 3+ years and I have been controlling my sever back pain. It has helped me tremendously to sleep, work with pain ,relax and recharge. About a year ago I discovered even better benefits by eating the raw clean leaves and a pinch of good buds pureed in a fruit/yogurt smoothie. Several YouTube videos will explain that when NOT heated the plant cannabinoids have almost no psychotropic effects, but they do turn down the pain, A win win . I also started loosing weight gradually and my intestinal problems seem to vanish. I raise my own to make sure it is clean and pure and for about the same cost as my wife’s 3months prescriptions I set up a system and can grow ALL I need legally. I smoke in the evenings to go to sleep and forget the pain, and smoothie in the morning for long lasting pain relief without the buzz. Cannabis has been good medicine for 5000+ years ( It’s documented if you look) but We currently suffers from corrupt self-serving business monopolies. It might help those that have replied here if they research it and try it . I wish you all the best .
      Jim

  843. I was diagnosed with Fibro about a year and half ago… And they put me on lyrica… However… I don’t have insurance so I have been living in pain which has gotten exponentially worse the past year… So I hope more physicians and others will become more aware of the disease.. It sucks being diagnosed with two things that Doctors believe are make belief… DID and Fibro.. And I have been working in healthcare for 10 years… It sucks that doctors are so close minded and think they know everything there is to know about the body and mind.

    1. Shawn Ashley, I’m currently without insurance as well and I’m on a prescription muscle relaxer which helps at least take the edge off my intense pain. It’s called Baclofen and because it’s such an old med it’s not very expensive even without insurance. It’s about $30 without instead of a $5 copay with. Hope this helps

  844. I agree with every remark that has been made above. Mine started 9 yrs. ago, started with awful fatigue. Then all 18 triigger points, that swelled, were sore, burned and ached.Had Drs look at me and say, they don’t believe in Fibro. That I am vey depressed and should go on all the antidepessed. Been treated so rude in all my life and I worked 30 years medical, Dental health, and this ruined my life .I had wonderful positions to teach at a top medical University on tissue transplants for the end of my retirement.
    Severe muscel spasms in neck and back and in lower lubmar, legs hurts. I’ve made sunbeam rich with all the heating pads I have gone through. The deep burning stabbing pain in the core of my body, migranes. Worse on the right side than the left. Also have ostio arthritis than became worse as Fibro. got worse. Never out of pain, Constant pain in right sholder and neck, stabs, burns, goes in spams. A pain that could never really put it down in right words the suffering, the hell, the tears. crying out in shear disppare to God to stop the pain, It has left me wondering how I still have a soul or spirit. I know one thing for sure that God has been right here with me, the more I say scripture I feel He gives me strength, I pray each time a Dr. visit they can give me something else to control the pain. I have taken every pain killer, brain blocker, antidepressent. The first two years my legs were so weak and hurt so bad, I spend my days in bed. There are days the Lord has given me a time out and I am so grateful. I believe in his miricles and I pray for all of us that have this disease and that he will heal us. I look to his word everyday. I have more faith in Gods healing than I do the reasearch.. Now we will have to pray that God leads these minds and hands to a healing and free us from this bondage. God be with all.
    This does not even cover the nightmeres with the problems the drug cause and how they destroy your gut and how it affects our marriages..

    1. I am so sorry Carol. I know the pain that never goes away. It is a constant unwanted companion. I too put a lot of my faith in healing this disease. I may not be entirely healed with my prayers and meditations but that helps me decrease the size of that companion making him just a little bit smaller and less irritating. I am not healed but I am comforted in the belief that there is a God, a faith, a force more powerful than me that covers me in a blanket of faith and healing..

    2. Dear Carol, God bless you, your story is exactly mine to the “T”. I’m headed for divorce right now because people don’t understand this disease and believe its in your head. Antidepressant’s make it worse, I had to stop taking those all together. I think less of suicide now, everyday is hard to wake up and just live that day. No one will ever understand the pain we are all going through unless they live it themselves, they don’t feel our debilitating pain. I wish I could take a Tylenol and be just fine but what they don’t get is that headache is still there, the pain in our spine’s make it nearly impossible just to walk down a grocery store isle, or bend over and pick up the countless things we keep dropping all day. They may never will but we do and they will figure this out and fix us, hopefully sooner than later for a lot of us. They would see those of us they think are lazy or it’s just in their heads or even making it up become normal again, they way we were before all this. I really hope this is true because I really want my life back and for everyone else and those I know with this too. God bless everyone, don’t give up.

  845. I was diagnosed with Fibro in the ’90’s and it’s been hell. I believe it started when I was just a child. I have excruciating pain in so much of my body, acute burning sensations, mind fog, debilitating fatigue, My extremities go pure white in the cold & when swimming, & blood red when it’s hot and it’s very painful. I was diagnosed with Raynaud’s Phenomenon. I also have Hypothyroidism for which I take medication. I suffer from long term depression for which I also take medication. But Fibro is the worse fate of all. It’s a punishing disease. I wouldn’t wish it on my worse enemy, although do I love the thought of Patricia Lynn’s idea of giving it to our worse critics for a long enough time that they would GET IT, especially the doctors who dare insinuate or worse directly say to us ‘it was all in our heads’! SHAME on them.

  846. I have suffered from severe Fibromyalgia as young as 6 years old. My parents were awesome! They believed me when I complained of pain and took me to a variety of Drs. The consensus at that time was “growing pains”. As I went into puberty the Drs said the same thing. As an adult I have tried to find answers. I was told by drs that I was “fat and crazy.” My siblings let me know that I was doing this for attention. Just within the last two years one of my siblings actually referred to me as “a fat, lazy, *itch.” My husband believes me when I tell him I hurt, I finally found an awesome set of Drs. Things have been explained to me and I trust them 100%. I pray everyday that a cure will be found in my lifetime.

  847. I had doctors do surgeries on my wrists, elbows and shoulders, before discovering that I have fibromyalgia. I still have carpal tunnel and lunar neuropathy, and the nerve damage is probably permanent now. I refuse any more surgeries! I was even told by a few doctors that we all have aches and pains as we get older (I was 35).

  848. One time I went to dr for a Migrain and he was like take this. I went home and looked it up, it was an antidepressant. I was like I don’t think so the side affects was worse then my migraine. I never did take those pills.
    I have almost all the symptoms of fibromyalgia when I told the doc this they was like what ever so I just suffer from it and take a lot of goody powders

  849. Oh my gosh…im not crazy!!! When I tell someone my skin burns,I get ‘the look’. Its so frustrating. When i was (FINALLY) diagnosed with FM i was so relieved. It gets so bad at times it hurts to walk etc. Also when im having a flare-up taking a shower can feel like torture!!! Along with all this i have osteoarthritis in my knees and hands. I have no ‘quality of life”. I just turned 58 but feel more like 108. The depression that stems from this is equally painful. So PLEASE PLEASE find a way to lessen the pain-physical and emotional. Ive had to cancel babysitting one of my grandkids. Shes 10yrs old…shes an awesome kid..i just cannot let her see me writhing and crying in pain.
    If you need someone to test i’d GLADLY volunteer.
    Thank you for digging into the cause-it can make a person toy with the idea if suicide. That in itself is a red flag. I take 10/325 Norcos but it barely takes the pain away. I want to thank my sister for researching this for me. To ALL of you that suffer or knows someone who is experiencing this hellish disease I will keep you in my prayers.

    1. How long does it take to feel results? I have spent untold amounts of money on things that work for some and not others. Do you know a lot of people this has helped?

  850. I hope this leads to a cure but have little faith it will. About 2 years ago they said our brain scans were different and this would lead to a cure but nothing and now its in our hands. I have also heard it’s in every part of our skin!

  851. What about the original idea of testing us all for Lyme Disease first? Same symptoms! We all could have a longstanding infection that we are not allowed to discuss anywhere (well we are mostly women and therefore we are either ‘hysterical’ or if over 40 we are all ‘mad’ due to menopause). We need to ensure this isnt some drug company push. Find the original publication. Note this:Dr. Rice founded the research company Integrated Tissue Dynamics LLC (INTiDYN) in 2008 where he is currently President, CEO, and Chief Scientist. http://intidyn.com/

  852. I also am on thyroid meds and just recently been told I am in the diabetic range. My hands really hurt a lot and when they are cold some of my fingers go pure white. I am on cipralex due to stress. Sounds like a lot of same symtons.

  853. I was diagnoed 15 years ago. I had fallen and broken both arms and my nose.At first it was the pain and fatigue. Then my depression worsened.I have good doctors but because the illiness is so misunderstood, they could only perscribe antidepressants. Recently, I have been diagnosed with low thyroid and Diabetes. I feel the best when I am gardening. …interesting because using my hand feels so good. It is also mentally good for me because I can see something I have accomplished. I spend a lot of time in bed. I always thought if I lived long enough they might find a cure.

    1. My Rheumatologist is sympathetic to this illness and believes me. Dr. Mona Amin. I am very lucky yo have found her.

  854. I don’t know how so many people have found the strength and will to live with this horrible illness. Nobody knows how bad it can feel, unless they have it. I do not have physical signs… yet, i feel as though I’ve been hit by a truck and am pinned under it, with it beginning about 5 years ago. What more can I say. Why doesn’t my identical twin have the condition too? I’m ANGRY. Excercise more, it’s all in your head…. i can barely walk. 2 doctors of mine have me marked down as a drug seeker, for ” invisible pain.”. After taking extreme action, people began to listen…. i wish I could give this pain to others who think it’s nothing. just for maybe 3 days… or a month, if they’re extra good at being jerks. I cut all my hair off, to make my head lighter on my neck and back….. anything to make it easier. And debilitating fatigue. Its very very bad. Sleep problems too, hypothyroidism too… i guess we sufferers have some stuff in common, but a lot of differences. I don’t think this new idea is going to go anywhere…. ALL WE CAN DO IS HOPE and pray. Cut ties with those who don’t believe…..

    1. Read up on hypothyroidism research by Dr Lowe; he found that a lot of people with normal lab results, and diagnosed with fibromyalgia, were helped with low doses of thyroid hormone.

      I got improvement in the fatigue within a few weeks– not a cure, mind you, but noticeable improvement. The “trick” is finding a dr who will prescribe the thyroid, when your “labs are normal”, even if you show signs and symptoms of hypothryroidism.

      1. You might consider going to a endocrinologist for the thyroid medication. I do not have fibromyalgia but had another issue, I found a great endocrinologist and though my labs were never “out of range” I was diagnosed by my symptoms and he looked at what my thyroid levels should be for my body size. So getting someone to look at the whole picture is important. If anyone is in TN close to Cookville, I saw Dr Tokaruk. He’s slow and you will wait a long time to see him, but he is brilliant and is worth the wait. After my diagnosis from him I ended up having my thyroid removed because is was growing inward instead of your typical outward protruding goiter. Once it was out it was found to have a small cancerous tumor. This guy saved my life!!

        1. Choosing who to see is not always possible. HMOs generally require that you go through a primary care provider, and don’t exactly encourage primary care drs to write consults to expensive specialists. And when you do get a consult, you get who you get, usually with a long wait for the appointment.

          Here (Southern Calif Kaiser), I had to see a rheumatologist for the fibro diagnosis. I didn’t meet the criteria to see an endocrinologist– because my “labs were normal”. It was a PC dr who started me on the thyroid meds– based on signs and symptoms; she no longer works there, though.

  855. I have had fibro since I was around 5 or 6 years old, and was just diagnosed a couple years ago. I am going to be 29 this year. Its progressively gotten worse and worse each year of my life. I barely have any sort of grip left in my hands to do much of anything. I hurt all the time. Its exhausting just mentally fighting yourself to not let the pain defeat you, or get you down. I am a stay at home mother of a 2 year old and a 4 year old, and would like to have another, but I have a hard time wanting to give into the desire to have another, because will it be fair to my kids…. as I already am weak, in pain, and drained all of the time. I also suffer from severe clinical insomnia, I don’t fall asleep and I am unable to stay asleep. I don’t know how to feel about this article, if its true, I have mixed feelings about them finding a cure. So many people have so many different symptoms… I don’t know how they will cure it. I am so debilitated from this disease I am actually trying for disability. I can’t sit or stand for more than a short period at a time. I know I am in for a fight, but I have literally exhausted all other avenues of dealing with this pain. 29 years old and trying for disability, not exactly ones life goal. Its severely depressing. I am tired of being in pain, tired of being tired, tired of the fight to live each day in pain to do anything at all.

    1. Oh you poor girl! Do you have help with your little ones? You are so young to have to deal with this – my heart goes out to you – to not be able to enjoy your growing family. I admire your strength. I am a distributor of a new, natural product that’s proving to be extremely effective for those suffering with chronic pain – though not specifically fibro, I do have people using it who have chronic fatigue and fibro and many are getting noticeable results. Depending on where you are from I would love to mail you a few samples to try – if you got even SOME relief and some sleep it would be a blessing 🙂 I’ll keep you in my thoughts and pray for you.

  856. I have Fibro and one of my friend told me she add it bad and start to go glutin free, she cut her mild and her soy. Many fruits and vegetales she cant handled eather.
    She has too eat comical free and 2 months after she seen a big difference in her fibro.
    She is now back to work and I will try this diet for sure. You can use rice milk or almond milk and glutan free products. I will leave an other comment in 2 months to see if this diet help me

  857. My GP (who is now retired) told me FIBRO is not a diagnosis but simply the name that is given when a doctor does not know what is wrong.Very confusing for myself so needless to say that has left a lasting impression with me.So now I simply focus on the best quality of life for myself no longer feeling guilty because I Cannot do something I used to but rather how much I can still do.I am very Thankful.As well I now have 2 very helpful specialists.So grateful for them.Being heard is so important.

  858. It’s all a money racket I have been diagnosed with it since 1994 please tell me the cure .you learn to live with it don’t give up..keep going..that’s the answer

    1. i have had fibro for about 3y i have a very good arthrtis doctir i am on kinds of meds for firbo plus i am on 2 kind of pain meds plus,depression med for other health problems getting in the pool 3 times a day it helps for the fibro i have good days and bad days thank the good lord hubby and kids are up to date on reading about fibro

  859. too simplistic…. really…???How does it explain un-identified white spots on the brain…multiple other problems like hypothyroid, other neurological deficiences MS, ALS, etc…it may be partially true…but lymes spirochetes have been active in interstitial areas ..organs, and n.s. system and brain of fibro patients…as well as other pathogenic organisms..why do women get this 90% of the time… vs. men??? Hormonal??? etc… I hate any pronouncement ..we have the singular cure!!!

  860. Understanding the theory, but how can the details about the hand cause pain over the entire body? That’s the part I don’t understand.

  861. I have MS and the Neurologist treat us the same. They thought I had CF for a long time until my legs weakened, went numb and couldn’t walk anymore. I was diagnosed with MS in 2000. We have pain too and some Dr.s think we are out shopping for pain meds. also. MSers have recently found an herbal supplement that some of us have started taking instead of all the meds. we inject that make us sicker, but slows down the progression. If you are interested you can go to http://www.Protandim.com It has helped me so much and no side effects! I recommended it to a friend with Fibro and CF she’s been on it a month and is already getting out more, less pain and has energy. Not trying to make money of it, just trying to help. Good luck!

  862. The trouble with all these websites about diagnosis and treatments and “cures” for FM is that everyone’s experience with FM is totally different. Some get pain and sensitivity all over, some don’t. Some people have completely different symptoms than others. “Proper” diet and exercise helps some, some it doesn’t. Magnesium supplements help some, and not others, some drugs/narcotics/antidepressants help some people and not others…I hope this new finding of the “source” of FM will help with diagnosis, but don’t bet on a cure.
    My sister and I both have FM, hers is much more severe than mine, she actually had to use a wheelchair for several years. Diet and exercise work for her at controlling symptoms and pain, but the very same diet and exercises don’t work for me. Neither of us take pain medications (she took herself off of the narcotics her doctors had her on) unless the pain is too much to handle (and then it’s Advil, not morphine). I have a much higher pain tolerance than she does, even with everyday bumps and papercuts (not to mention I have several tattoos and she found it very difficult to sit through her one and only tattoo).
    It’s different for everyone and it’s not in our heads.

    1. Totally agree. Except for me, I used Motrin. Note the past tense…. Last physical showed kidney insufficiency, and I got a call from the dr. telling me no more NSAIDs.
      That ability to ignore pain isn’t always a good thing, though– I went around with a broken wrist for 3 weeks because it didn’t hurt “enough” to recognize it as being broken. I went in to ask for a splint, because I kept “spraining” it, and got an over the elbow cast, instead..

  863. Hi everyone,
    I really think that after reading so many of the comments that I have had FM since I was in Junior High School. It started out as mild pain to moderate pain. I was told that it was growing pains.
    I was finally diagnosed with FM 10 years ago. I am always in so much pain that I think that I am near pulling all my hair out. At one point I did think about suicide. My Grandmother, Aunt, Sister and I all have it. My sister is dealing with it and still working.
    Daily, I have numbness and tingling in my hands and feet. My arms and hands feel so heavy that my walker and canes do no good. My legs feel like wet cooked spaghetti noodles look like, with all the twitching and burning. My back is in a constant and extreme pain with twitching, spasms and burning. About a month ago I started having headaches again. I hope that the migrains don’t come back. All I want is just a little bit of relief, if only for a little while.
    I have tried natural remedies, pills, pills, and more pills. Just hang on everyone, we’re in this together. I tried and was successfull in eliminating some of the pills and then they said that I needed these pills. They’ll work better. HA! Just hang on everyone, we’re in this together. I wish all of you just a little relief.
    Deborah

    1. I Relate to you so completely. I was also told the extreme pain in my legs was growing pain, I was a child, only 6. I would cry my eyes out at night. But the child does not know best. Now I am in my 20’s and trying very hard to control my symptoms to a level I can tolerate on a daily basis. I believe I will get there, but I also know it takes time. I have no remedies and I have had pills. I also suffer with the chronic fatigue, restless legs syndrome and ibs. I find it’s hard for anyone to understand unless they are in the same situation. Doctors tend to imply I’m a hypochondriac which not only hurts but is humiliating. I will continue to fight my battle to get better. And I hope everyone manages to find a balance for them. Kayleigh. 25 United Kingdom xx

  864. I have suffered with FM since 1973 and agree with most of the comments here. It has been very debilitating throughout the years. Before drugs became available for it (and I don’t take them) my doctor told me to take 14-16 aspirin daily (until my ears rang) in order to function at all. Finally after 15 or so years I quit “cold turkey” because of suspected ulcer pain (it was not) which I have to this day. When it was finally recognized by the Arthritis Foundation in 1990 or so, it finally began to be recognized by the medical profession – but still does not get much respect. I have tried many of the drugs with no relief so just try to live with it but it certainly interferes with my life. I hope this research will lead to a cure in some way.

  865. Unfortunately, a lot of nuts use the FM excuse to seek drugs.. I think there are more patients who are full of bull compared to legit FM sufferers…… Now about those Restless Leg Syndrome folks LOL

    1. Yeah, too bad yours is a typical unsympathic, no nothing response to those who have worked in vain to try to figure out why they were living a perfectly normal life and then experienced this pain out of nowhere. Some are able to work and be productive through the pain each and every day, some are not. I wish that this never falls upon you, because you could likely never handle it! Sad for the ignorance!

    2. This is the general ignorance that sufferers like me have met with for years. I have suffered with generalized pain since I was in high school. I had 4 children and the pain continued. Every doctor I saw had the same answer. Reduce stress and get more rest. Right? Did I say four children? I am in my 60’s now and have finally been diagnosed with fibromyalgia. The treatment I am getting does not help the pain, and it does not include narcotics. Some nights I lay in bad in so much pain I can’t even stand the blankets on my body. Want to talk restless leg? How would you like to lay in bed trying to fall asleep and every time you start to fall asleep you legs twitch. Some times just a little twitch and sometimes a convulsive twitch which sets off the burning pain in you back. I don’t wish this on you, but don’t be so quick to think this is all a scam.

      1. I have suffered with the symptoms of FM for 18 years but wasn’t diagnosed until two years ago, I have been told countless times before that the sometimes excrutiating pain and constant underlying pain and exhaustion are all in my head.
        I have never been one for filling up with pills, I have real trouble swallowing tablets but as with other sufferers I have been prescribed a whole plethora of different tablets most of which appear not to help.
        As for restless leg syndrome……..?, in answer to that I think my ex (couldn’t cope with the constant lack of rest) will lay testament to the existence of that, he has had countless bruises, sleepless nights and eventual nights on the sofa due to my legs twitching and kicking out.

        1. Walk a day in the shoes of a fibro sufferer pal! As for the restless legs they are caused by the anti depressants they put you on to up the pain tolerance! The narcotics do not work so there! The pain is that excruciating! Most people with this disease do want or commit suicide. I just lost a friend in November to it. Don’t judge cause people honestly there is only one judge!

          I really hope this article holds true and they find a cure! My hands are very painful!

  866. i have had RA since i was 13 and was diagnosed with FM in 05. no one could touch me at times, for the slightest touch would be so painful, and i would sleep for hours. now i’m on a combo that seems to be helping but i still feel like i’m trapped in a 90 yr old body. a cure would be absolutely wonderful.

  867. I dealt with the symptoms of FM for more than10 years before I was diagnosed with it in 1998. It cost me my marriage because the doctors insisted nothing was wrong, that it was ‘in my head.’ I couldn’t have my 1yr old son lay his head on my chest or shoulder because of the pain, and it continued after his brother was born. It finally took my hands turning blue, with a 15 degree temperature change between left and right hand IN THE DOCTORS OFFICE before anyone listened. FM is a horrible thing to live with, the pain never goes away, its just masked by narcotics, antidepressants and other meds. And, unfortunately, most of those don’t work. Now I’ve been dealing with the symptoms of FM for 27+ years, officially diagnosed for 16 years and am hoping that they will find the cause of FM, and maybe even a decent treatment for it before I die. As slow as the medical community is, unfortunately I know they won’t have a cure before then.

  868. I have had it for 12 years it first showed up in my left hand if I hit my hand on something the pain was horrible I would scream out in pain I was tested several times for Tarpal Tunnel and I do not have that when my hand is hurtig I have the muscle pain and I wan tto sleep alot I have taken pain meds and flexeril.It has been so bad at times I thought about ending my life it has turned me to being a recluse it’s been so very hard and the dr’s have no answers I hope they find the cure soon.Whe I was married my husband just didn’t get it.

    1. I’ve had fM for 24 years. It was an immediate life changer. I’ve seen many doctors and tried a lot of medications to no avail. It has reaked havoc in every area of my life. I had to stop working. The older I’ve gotten the harder it is to tolerate the symptoms. But there is hope

  869. I go to Bowen Therapy and that has really helped. I highly recommend it for anyone who suffers with Fibro.

  870. So sorry to read of all the pain. I’ve used a product for over 17 years that has kept me from any kind of pain. I’m very grateful. I’ve shared it with so many over the years & even been asked to speak, 3 times, about natural pain relief by a large regional hospital here in southern CA. I knew the product worked but is only with more advanced research that I now understand more about how it works & I see 2 issues here that make me think it can help you, too. It keeps the blood vessel growth under control (like a trimming of blood vessels naturally) and it reduces the build-up of lactic acid. The controlling of blood vessel growth is, also, shown to prevent the growth of blood vessels which feed cancer cells & tumors. For 17 years I’ve had a wholesale acct with this company & I share that wholesale price with EVERYONE ALWAYS! Please let me know if you’d like to try my God-send! Be well, Friends! [email protected]

  871. I see agruements and hope here. My question is where and if you are doing clinical trails? I would try it. Desperate for relief.

  872. Hi everyone!
    I’ve been diagnosed since March 2013 with FM, though I had symptoms since I had 17. For several years I was diagnosed with depression and had medication for that until I said to myself, it’s impossible to be depressed, and what about the fatigue, the pain in my legs and arms? And, more importantly, I don’t feel depressed! And that was the trigger to look for a rheuma, where after several blood test, clinical history and tender point analisys, the rheuma finally diagnosed me with FM. Now, after some non pharmacotherapeutic therapy and with paroxetine (and I no longer need the pill to put me asleep), I can have a “normal” live, adapted to what I can do, I can have a full time job, take care of my kids, and with the precious help of my husband do the housekeeping. Of course, that I know, if I feel tired, I immediately need to sleep in order to prevent pain and to be exhausted, I have to go to bed at night lately at 22:00, and so on….And I try not to think much about the condition itself, but the so much life has to bring me, and the so many things I still have to do … Be positive.
    I’d like to share with you this website http://www.progeriaresearch.org/ . Sam Berns also touched my heart.
    Blessed be!
    Teresa (From Portugal)

  873. Alot of people have found relief taking magnesium with malic acid and also using Celadrin…a non -toxic drug free pain reliever.

  874. This is my three time with Fibromyalgia I’m 56 years old it hit the first time in my leg then my arms now my back I shall get read myself of it one more time to be free of this pain.

  875. I was diagnosed with fibro, over 25 hers ago, everyday is a battle for me, I don’t think age or weight has anything to do with it, I’m 62 and weigh about 112 lbs. I take Vito D once a week 5,000mg plus tramadol and lyrical everyday, and get Vitamin B shots monthly. I try to get through the days with all of that, but still in chronic pain everyday.
    We moved from Pa. To Az because of cold weather which has helped some.

    1. Whatever you came do, get off the tramadol! See you doctor before you,stop, don’t stop cold turkey.i’m on day 13 of quoting cold turkey & have a terrible 2 weeks of severe withdrawals. Make sure your doctor weens yu off it!
      Good luck!

      1. Tramadol is also not good for your kidneys! My Dr. took me off of it and I take a low dose of Lortab.

  876. Reading threw the comments.i was diagnose with fibromiaga about 6 its ago it gets worse.just wondering does anyone get pins,needless and burning sensations from it

    1. I was getting painful whatever it’s called in my shins in the middle of the night that would keep me awake. This would happen only in the winter.
      After some research I discovered it was because of a lack of magnesium. I take magnesium supplements every day which has helped dramatically .

      1. John, I find my fibro pain gets worse if my magnesium levels are low. Oddly enough I have craved red meat all my life and have since learned it is one of the foods with the highest source of magnesium. The magnesium correlation is worth exploring.

    2. Look into magnesium supplements. This has helped me with similar feelings in my shins in the middle of the night effecting my sleep.

    3. Check with an encdocrinologist to make sure you don’t have low thyroid. Low thyroid will intensify any underlying inflammation, causing a burning sensation and sensitivity to touch.
      Rhoda

    4. Lisa, I often get the pins and needle pain in my toes. I know some believe it is neuropathy from diabetes causing the nerve endings to die, but my pain is only occasionally and not all my toes or even the same toes. I’m trying now to track the occurrence to see if there is any correlation to low magnesium or calcium levels as I suspect.

    5. Yes from time to time I get these symptoms as do others in our local FM Group! They are yet another symptom of the condition 🙁

  877. I used pure bleach to clean my bathroom without wearing gloves. Later that night both of my hands were in excruciating pain. Six months later I got fibromyalgia. I have often wondered if that was the cause of getting FB.

  878. I remember from a very young age being extremely sensitive to touch and experience pain if someone tickled me or playfully poked me. I could not play wrestle with my sister etc, I am still this way and was diagnosed with fibromyalgia a few years ago . now the pain is always with me. is there a connection with that early sensitivity?

    1. I was the same way, Betty. My skin has always been super-sensitive for as long as I can remember. Wearing a watch was painful to me, even if it wasn’t tight on my wrist. When I was married, I complained if my husband breathed on me at night. The sensation was awful. I was diagnosed with fibromyalgia a couple of years ago.

  879. I feel so bad for the woman that is allergic to all pain meds. My heart hurts for you. My friends husband is allergic too but he does not have Fibro. I am tired of being told I’m drug seeking. Ppl who have no real problems are given pain meds. These ppl sell them on black market. I am given weak stuff that won’t help a gnat. I am made to feel like a drug addict. I have had fibro since age 14. I am 53 now. It is a hard journey.Bless you.

  880. Nancy
    January 12,2014
    Hi I am 37 years old I was diagnose with fibro in 2006 after many years of suffering. To help me get through my days of work as I am a personal support worker which means taking care of elderly patients I half to take Cymbalta, leurika, celebrex, morphin, and if a bad day I add tramadol. I also have sleeping pills and muscles relaxants as needed. As u can see this is a lot od meds that I wish I did not have to take. What am I gonna do in 10 years, 20 years…..scary. Stay fit think positive is what they say not easy when you have children who will say” I know mom that u are to sore to do this with me” when other parents are playing or doing an activity around us…Breaks my heart..Well I will do my best and take 1 day at a time this is all I can do..

  881. I have had amazing results with proper diet and supplements ..I do not take any pain meds 🙂 Been frre of them for over 2 years now …

  882. diagnosed about 13 years ago, don’t really like pain meds, but take otc when needed. The biggest thing that helps me is exercise, but for the past couple of night I took 3mg of melatonin and I slept like a baby. Little bit of pain when I woke, but no big deal. As long as I keep moving and keep a positive attitude (not letting this get me) I’ll be ok

    1. Noreen I love your positive attitude! For many it’s a struggle to find anything to be positive for but if you can, that can change things however slightly, it still helps.

  883. Judy you are so right! I take offence too when it is mentioned about only Americans instead of the obvious world wide suffering going on from this horrible condition.
    I was formerly diagnosed in 2005 but it took many years to diagnose me properly.
    I cannot take anything for the pain as I am allergic to all pain meds I have tried to this date. Every day I wake up in horrible pain and fight through it just to get out of bed.
    I get absolutely no relief from the pain, I just do my best every day to get done what needs to be done. A cure for Fibromyalgia would sure be a miracle!
    I believe that this condition cost me my marriage, my friends and any hopes of ever having a good life. Especially since I cannot take pain meds.
    It really doesn’t help to know there are so many others suffering with it either, because it just makes me feel that much more sad to know others are suffering too.
    I really wish with all my heart that there really is a cure for this so maybe we can ALL (Not just Americans) finally get some relief from this horrid condition.
    By the way, I am a 51 year old female who lives alone except for my 2 dogs and would like to think that I can still have a good life. Right now I spend 96% of my time alone, and that’s just not healthy either.
    Thank you for allowing me to have my say 🙂

    1. Sorry Debbi, that you have to be alone while in pain. If you missed an earlier post, someone mentioned an herbal med patch that helped with pain. You might not be allergic to that. If you missed it, I can resend the info. LMK

  884. I have fibro and raynauds, sounds like there might be a correlation between them. We had a huge ice storm here in Ontario, Canada followed by severe cold weather and I had to miss two days of work, my entire skeleton and muscles were aching and I slept like I was in a coma. I hope they find a cure. I wish the naysayers could experience it for a week. It’s debilitating.

  885. It would be nice if we could find something concrete. Nothing shows up in any tests or scans I ave had. I have suffered for 6 years now and it is getting worse. Pain all over all of the time and always tired. Saskatchewan winters don’t help either!

    1. And u am only 35. Doctors say it won’t kill us but it never goes away! So that is a lot of time left feeling horrible. I just want to be able to do more with my 3 children!

      1. It might not make us stop breathing, but it sure does steal our lives. When I see a doctor on TV and they say it can be “managed”, I want to scream.

    2. At least you were able to have children. Not all females with it can. Wish I could. I’ve had it since birth and I’m 31. Only diagnosed just over 10 years ago after various guesses. No partner seems to be interested in women who can’t have kids no matter what they say. You’re doing better than many Mel. I know that doesn’t help on the bad days but enjoy your kids and where you do do better than others. (Hope that came across the way I meant it.) x

    3. Mel I’m from Saskatchewan too so I know what you mean about the winters! -50C is hard to take especially when you’re already dealing with pain. That cold just makes you seize up. Have you tried infrared saunas at all? That deep heat is very beneficial. And, yes, I’m the PowerStrip lady ha, ha…..and the Strips have far infrared technology in them along with the other natural ingredients. I talk to a lot of people and can’t believe the number who suffer with chronic pain. It’s very gratifying when I can help someone regain their quality of life. Pain is insidious and affects every part of your life from your relationships, your jobs, even your personality. And when there is no diagnosis it’s even more frustrating!! Take care and let’s hope this winter will be a short one – it’s been too long already!

  886. I need to know more about this. I’m not joyful because there’s no hint of cure yet and I can’t believe this is true yet. But recently I was doing alright till my hernia put me in hospital with cannulas in my hands. One vein went hard. Next thing BAM my fibromyalgia floored me big time! I even overdosed on my morphine I was so desperate and I’m on a HIGH dose anyway. On 13 to 15 types of meds per day at the moment for fibromyalgia. A cure is what I need.
    I will ask my doctor but I bet he says this is rubbish.

    1. Cha, I do not believe it either. I have had it over 15 years and I know people have been so rude and mean. I do not ask them to prove to me that they have a disease and why should they treat fibro like they do. Just because they cannot figure it out does not mean it is in our heads. I have been told by 3 different specialist I do have it but they do not know what to do. I have a doctor that listens and works with me. All of us have to find out what works for each one. now with all the reading and searching, I believe it is AR in muscles which effects the WHOLE body, all these commercials are so misleading with non-fibro people. I am up now with dealing with pain all over. it does help to watch your diet and exercise(and that puts you down) the tiredness it terrible, I know doctors, nurses, children, men, women that are dealing each day with this. Non-fibo say just pretend you do not have it. That is when, I would like to wiggle my nose and let them feel it for awhile. Sorry for going on. but when you hurt, you hurt and it wears a person out dealing with this and THOSE people…

      1. Jo, what you say is very true. I know it’s not in my head; unless it’s a physical problem found in the brain of course.
        I have wanted to share my pain to “prove” what it’s like but realised that doesn’t work not long ago. My mother suffered certain infections, including flu, and she told me (feeling like death for weeks) she knew how it felt to be me. Three months after her recovery I asked if she remembered the pain and fatigue she’d been in then as we were discussing FMS and I wanted to draw a parallel. She couldn’t remember saying it and not a bit of feeling it. The brain is programmed to forget pain. All someone would remember is that they got through it. They can’t imagine it unless they have it and know it’s without end. So… l don’t know.
        I can’t help feeling this article is far too glib. It makes it sound that wearing good, warm gloves and boots are a cure! l read the citation links but they were only articles without source too. l don’t hold much hope yet.
        one thing – you’re 100% right about diet. Feeding yourself properly when sick and alone is the tricky bit. In a poorer country, and in certain circumstances, FMS is fatal because of being too weak to get food. I had to starve and become dehydrated for over a week last time before I was allowed to go to hospital. Until something solid changes I don’t believe we’ll convince anyone without chronic pain and fatigue what the realities are.
        I don’t know what commercials you’re referring to I’m afraid. I’m in Britain though.
        Here’s hoping today is a good day. x

  887. I have had FM for 24 years. Recently an osteopathic doctor suggested 800 mg of magnesium oxide every night plus to do gluten-free diet. It has helped a lot! Melatonin at night to help with sleeping and walk on tread mill in the afternoon instead of napping. Now I really only hurt when it is going to storm, but that’s better than it was.

    1. this is very good and true advice. also cranial therapy to take pressure off the various lobes that control pain and muscle tone. the osteopath can do that too.

      1. Magnesium helps me with the leg cramps that wake me up in the middle of the night. Having said that, it does nothing for fm flare ups.

  888. This sounds intriguing. I was diagnosed with fibromyalgia around 2003
    and polymyalgia in 2006. I am on so much medication it can’t be good for me. I am 67. I would consider some solution to the pain and fatigue an answer to prayer. Carolyn Rottman

  889. My heart goes out to anyone who suffers with chronic pain. Many, many people I know with fibromyalgia and other chronic pain issues are finding amazing relief from an all-natural “strip” called a PowerStrip. Infused with natural herbs, elemental germanium, minerals and marine phytoplankton this strip is applied to your body (water soluble adhesive) and worn daily. No side effects, safe for all ages and it sure seems to be working for a LOT of people! Other reported benefits for some are much improved sleep, calmness, more energy. You’re welcome to explore it further here: http://seawellness.fgxpress.com/product/ To have someone tell me they have their LIFE back is amazing!

  890. I was diagnosed in 1998 with FM. This is information I have never seen, it does seem as though it could have some merit for at least some of the symptoms but I believe there is still more to the overall condition. It is always good to hear something concrete besides the it is all in your head’ reports. The brain chemical roles are in your head. I have only seen a few books that actually contain that information; one of which I found at the library of the Glenrose Hospital.

  891. Have had FM/CF 19 years. Discovered Lyrica a few years ago and has made a huge difference re: pain. Only take it at night as makes me sleepy (yeah!!!). Wish I could find an answer for fatigue – also symptoms much worse in winter ( live in Western Canada)

  892. For all of you who suffer from FM, please know that it can be a symptom of Lyme Disease. Lyme is very difficult to diagnose and treat, but if you can find a Lyme-literate MD (LLMD) I would highly suggest doing everything you can to rule it out. Many doctors will tell Lyme patients it is all in their head as well, so I understand the frustration. My concern is that Lyme becomes more debilitating over time, and can result in death. If you have been diagnosed with Fibromyalgia or Chronic Fatigue Syndrome, even if you don’t remember being bit by a tick, please seek out a LLMD who can rule out the possibility, or get you treatment!

  893. Thank God for this breakthrough Have had fibro since 1991 and it is getting so now the pain in my nerve endings in my fingertips just burn and itch onlky relief is antisimines an antiinflammatories IS THERE ANYTHING ELSE I COULD USE RIGHT NOW

  894. Issue raised is one of the biggest challenges today. Shall see how far this has gone. Experts agree a lot with this issue.

  895. I live in Canada as well and in pain everyday, every hour, but it’s just in my left leg, I waked up crying, not knowing that I have tears running down my face…I have CT scans and it shows nothing….only I know it’s pain….I sleep maybe 3-4 hrs a day with the use of sleeping pills….I feel terrible for all you folks who have pain all over…I hope they can find some sort diagnosis to help us all….

  896. Wow if this is true it could change my life I suffer so bad that I just don’t understand the point to keep going on in life this has ruined my life I use to be so active and loved life now it’s a chour and a battle just to try and convince myseft to get up and use the bathroom because it hurts so bad to get up and now I find myself sleeping my life away and can’t help it I’m always so tired so plz god let there even be something out there that can just make life a little easyer I’ll pray please help me

  897. I have suffered with fibromyalgia for many years. This article has at least explained my ridiculous sleep habits to me. With the aid of sleep medication I am able to get 4-6 hours of sleep, most nights. But wake up and end up napping 3-4 hours during the day. I’ve been told that chronic fatigue syndrome goes along with fibromyalgia. A cure would be wonderful! I honestly don’t know what it would be like to have a day without pain!

  898. Most doctors ( and people that don’t know what its like) still have their judgements about this illness. This is a new opinion on it so why condemn it or not — at least be open minded about it, better then the theory that its “just all in the head”..

  899. Hi i have had this condition for 14 years..and I am a canadian, not american, so a lot of people here in Canada are also suffering from this..

  900. It’s amazing that only “Americans” are afflicted with this, I’ve never met a more arrogant people in all my life.

      1. Debi T, my lawyer takes medical cannabis for her anxiety and depression and she gets it distilled into drops, sort of like an essential oil, instead of smoking it. Maybe you could try that?

  901. i also am stricken with fibro and not been easy to adjust my life around the fibro… but one thing that helps me to releive some of those aches is taking a coffee bath… So put one cup of grinded coffee in water enough so the grinds is wet then with a cloth take the wet grinds in the cloth and then wipe it on the parts of your body that is sore in a circle and keep putting water on your cloth …by the way you are in your filled bath tub and standing in it so you keep rubbing the grinds over the achy parts and rub in circles it actually feels good like exfolliation too so when your done the water that it left over in container of coffee put it in tub and soak in it make sure the water is hot soak for 15min…..then let the water run out and shower as usual yes this may take long but wowsy what a releif that gives…so best to do 3 hrs before bedtime…yes best if caffeinated coffee… it will give you a lttle boost after you take the bath but when your ready for bed…… well you tell me how it worked out for you

  902. I have suffered since age 17 I am now in my 30’s and have not been officially diagnosed by a dr. a nurse who did one of many ultra sounds told me I had this it was a relief after years of health problems! Only to be told my all my dr’s it was not there. Some thing is making me very ill for years and this explains all my symptoms! Each and every dr tells me its in my head basically. After years of health taking your life it does become a mental issue and controls all of your life. I have no choice but to work from home as one of my symptoms is excessive bleeding. As well as joint pain and dizzy spells. I have been told I was mentally unstable many times yet know I am not. I am just another person who needed help and was treated like I was crazy. I have given up on all dr ‘s but am still looking for answers as it hurts my life as well as my family’s. any advice on a natural remedy?

  903. ABSOLUTELY TRASH AND WRONG INFO!!!!
    PLEASE DO NOT PUBLISH SUCH “LIES”…… Also, none of your sources point to the INFO YOU MENTIONED……!! So, YOU ARE ONLY TRYING TO MAKE MONEY and NOTHING.. BTW I am a doctor by profession….

    1. Yes, you sound like a doctor. Definitely an educated and well thought out response.

      Incidentally, did you try clicking on the links at the end of the article? I did. I found information on the research mentioned in the article.

      You really must try harder

  904. I was diagnosed with fibrositis in 1991, now called fibromyalgia.After years of meds & stretching exercises it was pretty much in remission, then this summer I had a bad fall and the fibromyalgia is back big time. I am now on Nortriptyline which does help but does not elimanate the pain. A friend gave me Infla-Guard (which is made by Douglas labratories) and consists of Boswellia 375 mg.,Tumeric root 375 mg,& Devils Claw root 50mg. I find that this helps a lot, so much so that I am going to start slowly reducing the persciption meds. I also find that low impact exercise is also very helpful.MY goal is to get it back into remission.

  905. Fibromyalgia, diagnosed in 2005/6 was a relief to know what was happening, coupled with arthritis,and further complicated by Hashimotos Thyroiditis, results in a pretty disabled lifestyle for a lady of 72 yrs! My mother visited in early 2001 she was in her early eighties, I in my early sixties, she could go up and down the stairs in my home at a energetic pace, I was slow and one step at a time always in pain and exhausted. That visit was an eye-opener, I was more infirm than my Mother, she insisted I went to my doctor for tests…..same response….’oh it is depression from your recent bereavement etc. I knew that I was ill! It took a long time to get a diagnosis for those mentioned ailments, under-active thyroid diagnosed in 1995/6 arthritis and fibromyalgia in 2005/6 even now I have very little to do with my Doctor, except for ‘lose weight’. I eat little as it is, the weight gain was from 1994 to 5 as I went further and further into a cycle of inflammation, pain and complete exhaustion, depressing hopelessness ,no-one could help! I was five years off work, eventually getting back into my profession of teacher and retired at 67 yrs old……soon be needing a motorised scooter for shopping!

    1. I’m 24 and I’m already using a mobility scooter for shopping! I get so self-conscious about it as I have put on weight since I became less mobile with the extreme pain fibromyalgia causes. I worry that people will think I’m just using it because of that as the pain and difficulties are invisible. I came up with a scenario that if someone said (unlikely but amusing) “If you didn’t use that so much and walked more you wouldn’t be so overweight.” I’d reply “If you didn’t talk so much and thought more you wouldn’t be such an arsehat.” Some people are just so quick to judge. But the scooter means I can get out more relatively pain free so I take up that opportunity with open arms.

      1. Sarah Williams, I love your comeback reply:) I’ll have to remember that one!

  906. I have fibro for 10 years now and the only thing helping me is natural remedies. If interested in hearing or trying please let me know. Is love to help and give info [email protected]

    1. Was diagnosed 5 years ago and the pain at times is stupid. I was on med but all I could do was sleep. I would love to have a natural remedy for my depression and weight gain. I know I have had fibro for atleast 15 yeas and was told my symptoms were in my head. Has anyone else had the weight battle, I gained 110 lbs in the last 15 years.

  907. I have had Fibro for 35 years. I am now 58, and had back surgery when I was 19. Fortunately I had a great doctor who diagnosed me with Fibrositis, (a name they had for Fibro before they knew what it was). Very thorough and was sent to rheumatologists as well to eliminate other illnesses. Before this point I thought I was going crazy; all these symptoms and no REAL diagnosis. I have pain in every required pressure point and more! Sleeplessness, constipation, periodic muscle spasms, Fibro fog as they call it now, even my eyesight worsens with increased pain, both hands and feet are usually cold, I wake up exhausted. I take amitriptiline which helps me to get into stage three sleep, sometimes. I find that by having an organized life it is easier to deal with things. Diet is important. Routine is important. If you are tired rest. But also I find a non-stressful activity such as walking very helpful. I also take calcium as it helps with sleeping, and halibut oil every day as it seems to help with the immune system. God has blessed me with a husband who has been amazing and very helpful and understanding, as much as someone who does not have this debilitating illness can understand. Your whole life revolves around it and it does take a toll mentally. Depression can be a real danger. I try to keep as busy as I can doing the things I enjoy. I work 20 hours a week at our church as secretary/bookkeeper. It is an ideal job for me because if I really don’t feel well I can stay home or just work for an hour or two. It gives me something to focus on. My faith in a God has also sustained me. A very hot bath every morning loosens my muscles and sometimes I can do some stretching. My doctor tells me that I do very well considering that I have fibromyalgia. I will not let it define me as a person.

  908. Has anyone had success with using DMSO and MSM? I am getting ready to try those. I have had Fibro for about 20 years, and it is wrecking my life.

  909. I have FMS (Fibromyalgia) for years (diagnosed about 2002) I am off all my meds and have been for the last 8 years. I go to a Chiropractic/ Acupuncture doctor that specialize in people like me. Yes I have had a few flareups but not like I use to. I even power walked the OKC Memorial Marathon (yes the whole 26.2 miles in a little over 6 hours. I thank God a supporting husband and kids and most of all I thank God for Dr Daniel Rowe. I do exercise twice a week (even when i dont feel good because I always feel better when I do).

  910. This all sounds great but, I also have vertigo, don’t sleep (I’m coming off a 55 hours with a few cat naps). I try everything to sleep, went to sleep study that put me on the machine. I exercise some (I have to use a walker because of the vertigo) I do some housework, but I get real tired. I’m 51 now, have it since 2008. I can’t drive because of vertigo. So I just walk around our neighborhood. I will so much to have my life back.

    1. I started having sleep issues as a child, and so many other symptoms, which really makes most of us wonder just how long have we had fibro?. As a non sleeper myself, I have tried many medications over the years, including many anti depressants they insist on plying us with, in an effort to sleep. There is only one medication that works for me, and that is Zoplicone. I am in Canada, and I know in the States it goes under a different name. Google that medicine and you should be able to find the name. It is a powerful drug, and you can never take extra if you are especially tired. If you have no drug interactions, ask your doctor if you can try it. It works excellent. I know how awful it is to not sleep. My fibro was diagnosed in ’91. Good luck.

  911. this is hard to believe..but i hope it is simple to treat..I was diagnosed back in 2000.and if i exercise too much i get so tired i have to lay down….Exercise does help but

  912. WOW. Wonder if they will do the same for all the Autism, MS, ALS, Lupus, Parkinson’s, Diabetes, Arthritis’, and hundreds more suffering from multiple gene sharing stealth infections in the neurons

  913. I was diagnosed over 20 years ago with fibromyalgia and there wasn’t much information then. After several doctors and several medications I came into contact with a physical therapist that advised me to bump up my exercise by adding weights! That was life changing!!!! I did and still do and am here to tell you that it has and does work for me. I do have a script for pain but seldom take it (half a pill when I do)~if I wake up hurting or it gets worse during the day ~ I start walking, marching in place, anything to get my heart rate up and soon it is all better! Just give it a honest try ~ it could change your life too.

    1. ” I start …anything to get my heart rate up and soon it is all better! Just give it a honest try….”

      Doesn’t work when one of your main symptoms is exercise intolerance. Per dr’s advice, I followed the Curves program 3 times/week for 3 months– did the circuit, got my heartrate up per instructions, etc. The only thing I got out of it was total exhaustion, each and every time. No improvement of pain, fatigue, sleep… nor even weight loss.

      1. Kaytee, I have done the same just in a different form… I tried working daily in the summer on a garden, I bought a 27′ pool, problems are the same as yours. I am hurting everywhere, if the water is the slightest bit cool (even on a hot hot day, the cool water send shrieking pain my body. My good dr retired and I feel like my new dr thinks its in my head. Just awful! I have a dr appt in Feb. with a new Rheumatoid dr. 3 month waiting list.

  914. I have been recently diagnosed with Fibro and honestly I’ve herd that some doctors say thats what it is when They are stuck and dont know whats wrong with You Im in pain alot but I dont have all of the same hurting spots as fibo patents do Im not saying I dont have it Im just saying I might not the doctors here get lazy and They dont want to see Youand God forbid They help with pain meds I dont take anything because I Breastfeed My Son so I suffer with whatever I have its annoying I need help and answers and frankly I need a Doctor who cares

    1. i thank god every day that i find a good arthritis doctor spell wrong and hubby and kids are up to date on reading about firbo i have good days and bad days my bad days i am in bed

  915. Its “all in your head” when you are a woman. When you are a man, there is a different response.

    1. Not always, my husband has had fibromyalgia for over ten years now and they still say it is mostly in his head.

      1. its not in his head before i find i had firbo peopole and family said i was lazy and just didnt want to do anything thank the god my hubby and kids are up to date reading about firbo i gave gad it about 3 years get a good arthritus doctor spelled wrong and i am so glad i find a good doctor i have some goood days and bad days my bad days i am in bed hope your hubby gets some help tell him from a firbo person that has it to have faith

    2. I am a man, I’ve had FMS for almost 10 years now. It’s not supposed to happen in males according to all the doctors I have seen. It was all in my head. After seeing a MS specialist who refered me to a specialist from a pain clinic, I was finally diagnosed. It’s not a gender illness, it’s an illness that most doctors are afraid to admit actually exsists. Once they overcome this, then and only then will they take this illness serious enough that a cure or at least a way to live normally with FMS will actually be found!

  916. I have fibro and bechets as well has other illnesses, I first started with symtoms in 1997 and after suffering and having every test imaginable has I had polymorphic light eruption too (all linked however nobody new it) I suffered dvt in my leg in June 2005 and than in October 2005 I fell very ill with cerabral thrombosis and nearly lost my life several times this was when they eventually diagnosed me with bechets.
    Now in 2013 I suffer every minute of eveyday and night has I don’t sleep.
    They’re 90 yr olds that move about better than me.
    I can tell that has each day goes by my pain gets worse and their are new areas of pain in my body.
    I have lost all faith in doctors and consultants and so called professor’s, once they know what you have and that most of their medication ideas are not working they give up on you because afterall they have newer patients to repeat the same thing too.
    I just wish their was something to help with the pain.
    Thanks for reading it is my first ever time of writing about it.c

  917. I have suffered from Degeneritive discs disease, spinal stenosis, servere sciatica and the latest fibromyalgia since i was 25. I am now 28 and still suffer from the pain and fatigue every day. I am heavily addicted to pain meds because that seems to be the only thing that can get me out of bed and off to work. I have been on the lyrica and gabapentin and suffered every side effect their was to have. I wake up 5 to 6 times a night with the most extreme leg cramps you can imagine my doctor says it’s caused by a lactic acid which makes sense after reading this article. I always no when im about to have a flair up because my anxiety levels get very high and I get cramps in my hands and I become very stiff.my flare up seem to happen on my back and my legs,i can smash my finger and feel pain shoot up my leg or spine. I wish their was a cure for all my ailments but i will settle for the fibro at this point.

    1. Hi stryker I don’t know if you’re looking for a way to get unaddicted to pain meds or not but high doses of Naltrexone can help break the addiction. LDN or Low Dose Naltrexone is effective for some patients for their fibro but I know for sure that the high doses of it help get people off prescription pain meds. At least, it helped me! Just fyi:)

      1. I am looking to get off my pain meds. Tried it alone, wasn’t able to stand withdrawals with the pain, too. Looking for neurologist to help with that, as well as fibro. Do not want Pain Management Dr, as they tend to just increasing pain meds. Glad to read this report. Hopefully, it will get to des soon so we can get the help we need.

  918. Wow! I started getting these same symptoms 2-3 yrs. ago. my PA says it’s arthritis, & since I already take meds for depression and anxiety, my life is almost livable .I will push to be tested so I don’t feel like such a loser. I still have my mind but hate being so weak. It’s not age; @60, I could lift couches, do windows, scrub floors, etc. I will read the other links & Google some of the other regimens.

  919. For all of you suffering from Fibromyalgia I urge you to read “What Your Doctor May NOT Tell You About Fibromyalgia” by Dr. Paul St. Amand. He has been studying Fibro for over 40 years, has it himself, and has found that guaifenesin (the active Ingredient inMucinex) reverses symptoms. I was diagnosed I. 2008 and suffered for years with terrible flares. After following Dr. Amand’s “guaifenesin protocol” for one month I was able to stop taking Lyrica and now after 3 months I have my life back. No more fog, less anxiety, pain, and no more flares with weather changes. I am even sleeping normally! The hardest part is following the “no salicylates EVER” rule, as it means switching to body products that do not contain salicylates, which are in all plant matter, and block the action of guiafenesin. I also follow a hypoglycemia diet as its been found that many fibromyalgics also suffer from hypoglycemia, and I am one of those people. If this info helps even one person find relief it will be worth it. I was beyond skeptical until I tried it and it worked. Good luck to all of you in your search for wellness and managing this mysterious syndrome.

    1. I take guaifenesin all the time anyway for allergy/sinus problems, my fibro has not improved. I will look into the actual protocol requirements though.

  920. I feel very emotional, I’m very close to tears. I was treated very badly by my doctors, work and people who just cannot understand. There has been more research done in Norway too, google it and read about the link to disturbed sleep… I’m in Spain now and much better, though very poor. I stopped taking all the medication I was prescribed in the UK two years ago, and I have lost about two stones in weight, have my sanity back. The drugs they put me on actually made me much worse and didn’t really do anything for the pain. Good luck everyone, and lets pray for a cure!.

  921. Oh my goodness, I could cry. After being made to feel like a hypochondriac all these years, this article is great news! I lie when people say “how are you” because you can’t keep telling them, “I feel tired, I’m in pain, I ache all over”. I have recently been diagnosed with Carpal Tunnel as my hands and wrists are so painful. Could this also be the Fybro!? Winter in the UK is making my symptoms so much worse. I have no energy, I’m so, so tired, I don’t recognise myself anymore. I’m thrilled I’m not alone. Fingers crossed for a cure, this is not how I want to live my life 🙁

    1. I can understand how you feel, Lisa, hearing that there are so many of us out there, and you are not alone. I was so happy when I was diagnosed at last with Fibromyalgia! At last, there was a name to it, so therefore, it could be treated. However, though I did get advise to go on anti-depressants for the pain, which actually wasn’t that bad, also Pur blocker to slow the system down, as the Fibro is like being a faulty traffic light I was told, where the messages are not getting to and from the brain. I also had Bevispas for the disturbed sleep.

      All these things are cover ups and not cures. I have heard of the odd person being cured by diet – cold foods such as organic veggies and fruit, and also by pressure point work. The last, being the most recent – yesterday. I am going to try this in the new year, as the lady who does it had Fibro for many years, and says it is blocked areas in the body that need to be cleared. Next year is also the year when I go to an Integrative doctor who covers all the different parts of making one well. A GP is pretty hopeless, and the Rheumatologist only prescribed the things I have mentioned. We are right out of Medical aid here, so it has to wait until the New Year.

      Bear in mind that all medication has side effects. I think that the Anti-depressants are very bad long term and can cause other chronic illnesses such as Parkinsons. In the meantime, it is my belief that they are making my walking worse, and standing. I am exhausted just doing one job in my house, even a light one. The pur blocker probably also has the same effect, slowing ones system down.

      It is like being in a maze, and getting so far, and then finding a barrier, I have been down so many roads for thirteen precious years of my life! I am not giving up, but with this article, I wonder just how much is being put into the research. It has been on here for several months at least, and nothing more is said, so other than what people are writing, a dead site.

      I know how much the cold must be affecting you right now, as in S, Africa, we have just been through a very cold and wet winter in the Cape. It has gone on for a very long time. It is now quite hot, but I have Bronchitis on top of the Fibro. Maybe I don’t have much pain because of the anti- depressants, and I no longer have panic attacks, but have to use a wheelchair at age 65, around the shops, and wonder what it will be like when I give up the pills. Last time I did, I was good for a year, and then a bad event made me go right down again.

      Keep as warm as you can, and keep hopeful, all of you…

    2. I have was diagnosed with CFS & Fybro 20 plus years ago. I am now 60 and have tryed all the meds etc thats supposed to help to no avail!! Have used many different pain meds which makes life tolerable but does nothing to get rid of disease! I too was called a lazy, hypocondriac, etc especially since i am a male! Will b great if these breakthroughs lead to a cure!!!

  922. I’ve had fybro for. 33yrs so this is fab news for all of us . Thanks for your the work you put into this. The fatuge for me is the worst, I was sleeping 19hrs aday. I’m still only able to do so much at a time then I’m worn out . Good luck for the future.

  923. I was diagnosed with Fibromyalgia a few months back & disk disease for about 10 years so I suffer so much pain constantly. I hope they find a cure because all this pain is un and spend more time in bed. I have no live because of it.. Cure please!l

  924. Just please help. Was diagnosed in 1980. Kind of given up hope on any help. Still apprehensive about this news I really do try to stay positive ,,but it’s not easy….

  925. I have had fibro since my last year of high school and I’m 26 now. While all my friends went to college, got married and had babies, I had to stay living at my parents house, going to doctors, and basically sitting on the couch watching my life go by. Even some of my friends who don’t understand my illness think I’m lazy and enjoy doing nothing. But since I’m a total go-getter, hard worker, and multi-tasker, that really hurts. Some days not being able to get anything productive done is almost worst than my extremely bad pain and fatigue. This illness has taught me alot of positive things like endurance, humility, love, accepting love, sympathy, empathy and more. But I would so love to feel better and try to start a normal life! So whoever is looking for this cure, please find it soon! We’ve all waited long enough:)

    1. I’m so sorry you have had to deal with this at such a young age. I was 46 when it hit me. Now it’s 8 years later. People that knew me before know that I am not lazy. Just the opposite. Because our illness is invisible, we are easily judged and discriminated against. Keep your head up. Do the best you can each day, and pray that there is an effective treatment soon.
      May God bless you

  926. I found that reflexology really helped me! The best was when one doctor said I wasn’t crazy and told me what I had.

  927. I have taken Magnesium MALATE and COQ10 which has relieved me from most of my pain and discomfort- energy levels returned. I also found homeopathy very helpful but on a daily basis it is the above I take- note it is Magnesium in Malate form….I believe it is a break down in the single cell mechanism (Mitochondria if I remember) Mag Malate is what is required for energy production in each and every cell. Hope this helps someone

    1. moria, thanks for the info. I have been taking magnesium oxide,seems to give some relief, I will look up the difference of these two formulas.

  928. Well, I have had fibro for more than 20 years and I’ve never had problems with pain in my hands — it’s everywhere else that’s the problem. So I am very skeptical of this.

  929. Honestly, their days I want die form the pain in my hands and neck, and people look at like you like u r crazy, I am so sick of being sick, I,d try any thing………

  930. Sounds plausible to me. I don’t think that it is in the brain there is too much manifestation of the illness in soft tissues. I am one of the few men who have this as well as osteo. I had to take disability because of all of it.

  931. I have FMS, but found the problem to be Lyme Disease, with food allergies and sensitivities, especially gluten. Do the research and know that testing for these problems are very difficult, but if you are persistent, you will piece it together.

    1. In 2006 I was bit on the back of the neck while weed-whacking our 2 acre lot. In 2008 I was bit on my inner thigh and discovered a bullseye. I have been diagnosed with Myotonia Congenita (autosomal dominant), Fibromyalgia, Chronic Fatigue Syndrome, arthritis, chronic depression, etc. I begged for Lyme testing and the doctor reluctantly ordered the test. It came back negative! Aside from the Myotonia I have always been a healthy, productive, high energy individual…until 2008. Now I am in constant pain and the fatigue is killing me!! I can barely keep up with my 8yr old and I feel so guilty. Being a Mom is a gift to me (miscarried twice) and the hardest part is that I know my child also suffers because of my ailments. I feel like a failure!! Julie, is there more than one way to test for Lyme? I did research and my symptoms are spot on! Any insight you could provide would be greatly appreciated!

      1. I had something similar. Went on holiday feeling fine, on way back got raging sore throat/fever that did NOT end up in nasal/chest congestion. Just after that, a funny mark appeared near my ankle; my boss said it looked like a bite. Less than a year later I had the most violent stomach bug ever, followed by chest pain so bad I was sure I was having a heart attack (I was a slim 39 yr old female.) My stomach was refluxing acid, burning my esophagus and my stomach lining was inflamed. Then I started getting other symptoms–my collarbone ached/burned for 6 weeks, then the big muscle in my thigh for 3. Smaller aches were in my lower legs, and one rib often throbbed. Despite meds, the chest pain broke out again. I got globus hystericus. Lastly I partly lost my vision, the only time I was really taken seriously–they thought I had a brain tumour or MS. Tests negative. I begged for a Lyme test but they seemed really reluctant. I started to recover enough to partly function, but had facial pain, more collarbone/thoigh pain, dizziness/vertigo, stiffness and fatigue…and now my liver enzymes are up the spout and my eyes don’t produce oil! As I have no diagnosis I must conrinue working and cannot even really tell my bosses because what will I tell them when I have no diagnosis?

        1. If you still didn’t get the Lyme test done, insist on it. Take someone with you to the doctor’s office that can act as an advocate for you and back you up. If they still won’t give you the test, go to another doctor. Be aware though, that if you do have Lyme, the test may still give you a negative result. That’s not uncommon.
          Good luck and best wishes to you.

  932. Thank you Lord Jesus. Let us stay up to date on this. My FMS was diagnosed in 1996 and I’ve been disabled since October 2001. I am thrilled to learn help is on the way. I am thrill ed to know that others may not have to suffer as long as I have. Praise God!!! Thank you Great Physician!!! I would so love to live my elder years pain free and brain sharp. I have hope now!

  933. I wonder if this is linked to Ramsay’s Disease where intermittently some blood cells don’t roll up small enough to go down the finest capillaries. The resulting lack of oxygen and nutrients is said to be a possible cause of our fatigue. For some fish oil seems to make a big difference.. I have this on Kindle which currently is the cheapest way to read this.
    Ramsay’s Disease – Myalgic Encephalomyelitis (ME) and the Unfortunate Creation of ‘CFS’ by Leslie O. Simpson PhD and Nancy Blake BA CQSW (28 May 2012)

  934. Ok so Where’s the cure for this??? That’s what I want to know!!!Blah! Blah! Blah! It’s all good they found this but dont give me just part of of it! Not even a mention of a cure (in the works) Yes they did the research & got paid to do their research… Who funds the cure??? And is there anyone working on one???

  935. Indeed interesting research, I have had this illness (fibromyagia) for over 8 years, prescribed a lot of medication from my Doctor, In my opinion its a Try and see if this helps syndrome……Doctors really don’t know and its easy for them to say it’s in your head. I would never wish this illness on anyone…….. I live in hope that one day they will find a cure so I could function as a human again….

  936. I have had fibromyalgia since the early1970’s &doctors made me feel like it was all in my head for Many years, so I decided dr. were not doing me any good only trying to make me think I was crazy, so I quit mentioning it & just lived with it, UNTIL 2000 I had a doctor tell me that my symtoms sounded like I had fibromyalgia, that is the first time I had head anything about fibromyalgia, they said there is no test to determine it but you have presure points & if you had so many of those presure points you had it & I had 13 out of 18 pressure points, I was so relieved to be able to give it a name, I got a second opinion & they put me on medication & it helped BUT I found over time exercise & diet had a lots to do with my problem..It is awesome that they are still researching to find a cure..

  937. I’ve had it for the past 8-10 years. Constant pain, and like the diagrams of the body show, in the neck both back and front. My hands are always hurting and I thought that was caused by arthritis… I have not been given medicine that really helps, so have spend many dollars “self medicating” on NSAIDs over the years. Nice to know someone actually found a “real” problem. Hope to find out what will be the potential “fix” now.

    1. Huh Barbara, i have it for sure. Sill trying to find a practical solution. I been using muscle relaxers but there are side effects like upset stomach, blurred thoughts etc

  938. Where is the citation for the study? Putting “source” and listing an entire website is not a citation.

  939. Check out this product that has proven clinical studies showing a 40% reduction of inflammation in the markers in the blood. Check out my website and click on products then science and look at published study. http://www.sozostl.com

  940. I have had fibro for years, kept a detailed journal of eating , activity & reactions to each.I found that exposure to chemicals, acidic foods and any activity which is repetitive aggravated it & caused symptoms.I have eliminated whatever causes inflammation , thus able to control my symptoms.Wearing or being near woolen fabrics or anything which irritates my hands…cleaning products, latex gloves, and many other specific things, triggers the pain.I eat as organic, as possible, lots of veggies.Natural fabrics, detergents etc are best.Keeping serotonin levels high, naturally…light , accomplishments each day…help keep my mood up…less pain.Exercise is somewhat like yoga/pilates…My win routine @ my own pace at home in the evening.de

  941. ive been told so many things I have had fibro for over 20 years and just to get my husband to believe me is feat in it’s own right people see you and think your ok but the pain is so bad some times you take pain killers knowing they are not going to work I live in hope

  942. With this finding, is there anything practical that fibro patients can do right now? Because does it not usualy take like manny manny manny years untill a finding like this produces anything recommended? People with fibro dont want to wait another 10-20 years for something practical they can do right now.

  943. My daughter developed fibro and at age 25 I took her to a fibro clinic. After 2 months there she continues to be symptom free. It was a miracle. We saw people come in in wheel chairs and walking within 10 days. It was not in the hands. It was in the C1 that had gotten off balance. This occurs from injuries to the head and neck, surgical procedures…the Dr lays you in the wrong position for too long causing your C1 to shift. My girlfriend developed her fibro from a hysterectomy. She was in a wheelchair and her medical Dr said she would always be in it. Within 10 days she was walking. She is still doing well! My daughter returned to riding and showing horses and is now showing Chinese crested dogs nationwide. The Dr gave her back her life. It was all done by a chiropractor. Just google fibromyalgia clinics of southern California. It was am awesome experience.

  944. I have been saying much of this “cause” for years, I believe stress is involved and of course it is nerve-ending related. All the adrenalin produced during a stressful life and constantly being “up-tight”. I also believe mine was exacerbated a lot by statins as it became worse after taking them. I hope now they can find a cure as nothing available works at the moment.

  945. First, if you have a dx of Fibro, I would hope that your doctors have ruled out beginning diabetes and Rh Arthritis. Second, get TESTED/bloodwork for MTHFR. It could save your life. It is a genetic blood disorder that actually can cause a stroke. Get the bloodwork done asap it could save your life. Especially if you have ever suffered from Polycystic Ovarian Disease or had Preeclamptic pregnancy. Kudos to those that the natural food thing has worked for them. I have not tried it. I can say that I have not been officially dx with Fibro and I used to work as a disability claims agent and they literally had us close these cases as quick as possible and would say things like it is not real, it is psychological. I agreed at the time. Not sure what “Sam” said, but I was a non believer as well. The company I worked for have me believing that…. I am now 44 and a stroke/heartattack survivor. I have horrible neuropathy in my feet, leg and sometimes in my hands. I have NEVER felt pain like this… I have a great dr. and he has had all the tests done on my nerves to make sure there is not a condition with them. I take no med for the neuropathy. But, with the MTHFR, this finding seems very plausible. I hope that we see more research. This is absolutely horrific to live with, I cry myself to sleep it hurts so bad. I don’t want people to know how much pain it is, I have a very high pain tolerance, and dont want people to thing I am just wanting attention….. I am pleading a begging for some kind of hope and cure.

    1. What is ” MTHFR”??
      I had a pre-eclamptic pregnancy (1st one), but do not have RA nor other auto-immune disorder. Nor diabetes/pre-diabetes.

    2. My mom and I both have fibromyalgia AND “MTHFR”!!! I can’t believe I’m seeing ANYONE connect the two, because practically NO ONE knows about MTHFR. You tell most doctors you have it and they have to go look it up! It can be frustrating. I’ve also developed Reynaud’s disease and it affects mostly my fingers and toes. I’m on Nifedapine for it. It’s a blood pressure medication that also helps with the Reynaud’s symptoms. My hands hurt so often, I keep telling my doctor that I think I have RA and she’s tested me several times and it’s always negative. So if Fibro is stemming from the nerves in my hands, it makes sense as to why they hurt so badly. Wish they could find a cure or even a treatment, out of this discovery. But realistically, it will be years down the road.

  946. I am hoping that this is going to finally be the answer. I have suffered from this and neuropathy in my feet for over 10 years. Sam keep your mouth shut if you can’t say anything good don’t say anything at all. If you don’t walk in our shoes how can you comment.

  947. I have had FM ever since I had a hysterectomy at age 27. I’m not 48.. I went the medication route for years and that nearly killed me. What finally helped me was to get off all those rotten drugs. Then got off of sugar, white flour and got moving! You fight through the pain. Go organic. Get all the chemicals and foods that cause inflamation out of your diet. It has changed my life. Yes, I get minor flair ups, but they don’t last for days , months or years. Heat instead of ice works. Eating real food and nothing with preservatives. It’s a lot of work, but oh so worth not being in pain. I don’t buy into this theory about the hands. Nope, just doesn’t sound correct to me in the least. Don’t give up, don’t sit still….get moving! When sugar is present in my diet…the pain starts up again. It’s not worth it. Try some stevia instead.

  948. I see that a lot of people mention hand numbness and tingling. I am diabetic and I have neuropathy in my feet. Same symptoms as above. It occurs most often in hands and feet. I wonder if part of FM could be neuropathy.

  949. Cannibus and Tramadol, with light exercise and losing 55 pounds have helped me. Cannibus not easy to purchase though. I understand that we are all hurting but it would be better for all of us to be more positive than negative. Rhumatoligist diagnosed me, daughter has juvenile, uncle died of lupas, mother has Fibro. There has to be something there.

    1. I also use cannabis, it helps me relax which in turn helps the pain. I have lignocaine infusions and acupuncture too which enables me to keep smiling on the bad days. I cannot however get anything more than paracetamol/dihydrocodeine for the pain. Can anyone give me any more ideas?

  950. I got diagnosed with fibromyalgia almost 10 years ago. I was working at the time at Wal-Mart as a cashier. It was a very demanding job. I was hurting and always tired all the time. Later on I got referred to a rheumatologist and found out I had rheumatoid arthritis. I’m on disability and have to take each day one at a time. It’s hard to be hurting all the time and always exhausted.

  951. It’s people like Sam that annoy me. I am not lazy or sponging off the government, so get your facts right. Ignorant comment.

  952. Sam, what makes you so damned sure of yourself? Are you a doctor? A nurse? Anything at all in the health care field? No? Have any type of education at all; where critical thinking skills are taught? No? Then shut up. Having an educated opinion is one thing, but flapping your yap, calling things “rubbish” when you have absolutely no understanding at all about what you’re talking about is exactly what you claim Fibroymyalgia to be: RUBBISH.

    1. sam, this is exactly what people said about m.e. or chronic fatigue syndrome, as if people enjoy sleeping all day. Grow up and give thanks that you don’t suffer with this terrible disease, maybe a 24hr sample of it would change your very small mind!

    2. Oh dear Sam – that really is very unpleasant and indeed offensive to the millions of sufferers of this condition. I only hope you never experience it.

    3. Just wondering why you have actually read this report Sam. Are you ill? Do you have someone close who is ill? If not, then please refrain from such negative comments that demean people who suffer this condition.

    4. Sam I pray you or your children never experience this because you will have to eat a lot of crow! I went three years with an undiagnosed rip in my shoulder muscle that doctors also thought was just in my head….Please don’t stereotype. You may find yourself on the outside looking in.

    5. Well Sam, you sure got the attention you were after, didn’t you? Hope your mean little comment doesn’t come back to haunt you.

  953. This doesn’t really make sense . What about those of us who suddenly started having symptoms and have not had it all our life? Did I suddenly grow these blood vessels? No. I would have had to always have the extra vessels and therefore the problem would have always existed. After 19 years of life, the vessels wouldn’t all of a sudden be a problem….

    1. Yeah, ’cause certainly there are no other diseases that people develop over time which are caused by our normal body chemistry and makeup. Keep in mind that the article doesn’t claim they know WHY it is caused by these nerve endings, just that these nerve endings are where the source of the pain comes from. Further research will find out why it happens, and will determine why it presents for some people earlier than others.

    2. Mary, im haven’t had it all my life either. O maybe we all did but sonething triggered it. Who knows. The fact that they are actually TRYING to find the cause and a cure is amazing, especially since no one believed it in the begining.

    3. When someone does something to increase muscle strength and size, the body creates more blood vessels to help feed the muscles. The body is an amazing thing Mary.

  954. Ron:
    Wow I have lived with this PAIN in my lower back ,legs, hands, neck, and stomach Had test after test making me feel like im crazy, Test like blood work, cat scan MRI and ex-rays. My doctor say’s I have Chronic nerve pain. He has me on 36 pill a day . After reading this article I feel like banning my head. I’m now 56 years old and very fraustrated with our medical field. I hope they help me with my pain?

  955. I have something. Nobody knows what it is. I’ve been tested for lyme disease, arthritis, cancer, aids, MS, Lou Gherig’s… i’m not kidding. Everything. I work. I live a normal life. I have found certain types of activities help (which makes sense. They are all designed to regulate blood flow as well as provide decent physical activity) But unless i keep this up, it just comes right back. The pain is everywhere. Including numbness. My right thumb is often numb.

    All tests I have taken? Negative. And Inconclusive. And because nobody knows what it is, I often think I might be dying. If it’s something this simple, I’d be very happy. That would be the best gift anybody could give me. Because then it might be OVER. I’m really young, far too young for pain like this. I am in no risk categories whatsoever. I want my life back the way it used to be.

    1. Ella, don’t know if it will work for you, yet i also had numbness in my fingers and toes. It was suggested to me to begin taking a B-Complex every day. I still have lots of aches and pains but the numbness is gone. Also, when i quit eating grains and milk products, my pain became half what it was. The more i fine tune my diet, the better everything feels. Hope it helps.

  956. i have fibromyalgia and suffer everyday but I keep going. people that don’t have it don’t completely understand the effect it has on the person that does. but I do thank the lord its not worse than it is because we could all be bed ridden or even worse so think about that before you critic the lord…

  957. Hello, I am 50 year old female who has been suffering for many years, I have had several blocks and been on every medication out there. I am hyper sensitive to everything they tried on me, Which in turn put me in a very dark place. Wanted to end my life a few times, Thank god for my Grand baby, I put my focus on him when I went to that dark place.I have Fibromyalgia ,3 deteriorated discs the list can go on.I was in pain 24/7. I decided to take a different approach, I talked with someone about the holistic way to go, So I started taking a supplement called Curcumin and cell food. I felt relief right away,I thought it’s a supplement no way. It’s been a few weeks and it’s still working, Curcumin is a supplement they gave to soldiers in high doses it speeds up the healing in the body read about it!!I am also taking drops for Lymes, I was told in 04 I had it, then I was told I did not have it, So again called the holistic professional and he brought up Lymes without knowing anything about me, So I am now taking Samento and Citracital drops twice a day He said give it 3 weeks to start working, I would love to meet this person who has helped me by talking to me on the phone.His business is in Indiana , Northern Nutrition . IF this can help one person that is great, If it helps more even better, God bless you all and good luck to finding what will work for you..

    1. Hi Francie,
      I am where you have been. I can identify with all that you said. Could you please tell me what brand of Curcumin you take? Even if it helps only a little, I would be forever grateful.

      Thanks,
      Kathy

  958. Do you know of anyone having hep c and fibromyalgia and did it help them with their pain of both disease

    1. Michelle hey there email me and I can give you information on what can help with Fibro [email protected] and Erica this is not spam I am reaching out to help people that needs an answer.

  959. I was diagnosed when I was 45 and for 2 years I ignored that and kept working. As a baker I used my hands a tremendous amount. I slowly became so debilitated that my daughter was doing almost all my care including cutting my food as I was unable to hold utensils strong enough. Holding a brush was difficult. Having a shower was the worst. Painful and tiring. I ended up going to Toronto to specialist and over the course of 18 months tried all the meds out there…with no relief. I was in so much pain I was going to get nerve blocks, but with that came many issues I was not ready to try…so onto pain relievers. Now on Percocets anti inflammatory and muscle relaxants…I have a life. I can do for me but all in moderation. So maybe now this explains whythe palm of my hands are red all the time…gunna go back to specialist and have a new conversation about this new find!!

    1. I am partnered with a company that has amazing products that has helped people with Fibro and ms and many other illness’ s now I can’t state it is a cure but I do have many stories of people that live a pain free life taking our products. Any product you try is 60 days with a money back guarantee !! Contact me if you wanna know more.. [email protected]. Have a blessed day!

  960. Hi
    There are so many of us that suffer this horrible condition, for 5 years i had a doctor that kept telling me it was arthritis i couldn’t get out of bed the pain was horrendous, I couldn’t lift my head of the pillow, I needed help getting to the toilet, help washing etc and I couldn’t sleep properly, 3 times I tried to end my life if that’s what you can call it because it certainly wasn’t a life..!!! Then I found my new doctor wow she’s great she listens to me properly and she has swapped and changed my medication several times till I get to a point where I can just about cope but it only lasts at the most a month then she has to swap and change again but at least she helps me try and get some quality of life, at the moment I’m on lots of different medication but the main one that frightens me is the morphine I started on 5mg twice a day and now I’m on 100mg twice a day and still suffering in one way or another.. the thing most NON suffers don’t realise is its NOT just pain… it causes all sorts of different problems fatigue, depression etc. I had a great career loved the people I worked with even worked myself up to head dental nurse all for FM to take it all away from me. I could go on forever but my son’s had enough he’s typing this for me because my hands don’t work…I so hope the UK doctors have read this article and maybe I could be cured..!!!!!!!

    1. Jane your story sounds similar to mine. It started in 2006. I was very young. I had always had sore hips and knees but everyone thought it was sports, dance, general wear and tear. But in 2006, it all hit the fan. Couldn’t get out of bed. Couldn’t tie my shoes. Couldn’t sit up, read, sleep… luckily my partner at the time was a prince about it. This would last for months at a time.

      Tai chi made it a LOT better. It is designed to have internal as well as external benefits and it has kept me mobile and feeling much better. But i still have pain. And I’m still young and really don’t want this to be my life. I want to return to dancing. I want to be able to go hiking without having to lie about how easy it is. I push myself far beyond what i feel my limits are. And i worry that that makes it worse.

  961. I read that fibromyalgia was related to Lyme disease. It is supposed to be a fairly recent theory. The article said that Lyme disease is difficult to diagnose, so it seems that if they’re correct it’s just one more thing the doctors can miss.

    1. Lesions on the brain can also be cause by lyme disease and other diseases that mimic ms… so, since Fibro has been linked in some people to lyme disease, this could be the cause of the lesions.

  962. My name is Christopher and I am partnered with a green company and our products has helped fibro and ms people There is a women that has taken our products and she runs marathons now There is another women that now lives a better pain free life now, now keep in mind this does not cure the disease but can help you live a better life without pain.. If you want more info Contact me asap so that we can help with your situation.. And these products are available in the USA and 13 different countries including CANADA. I work with the USA and CANADA area but if you live in another country I can look into helping you there as well.. My goal is to touch as many lives as possible and to help them live a longer vibrant life. please contact me for more info at [email protected] and in that email state your contact info including a phone number and your state or if you live in Canada your province Thank you and god bless!

    Christopher

        1. You are an ignorant troll, taking advantage of people. People with Fibro rarely are in a position to work, and as such don’t have spare cash to fling towards the likes of you. If your ‘product’ was worth its salt, I am certain everyone who has Fibro would now about it already. Idiot.

  963. When will they come out with something to cure Fibro, Is there a medicine that is in the makiing since they found a cause of fibro. If so when will that be?

  964. thank the good lord my hubby and kids reads and understand firbo i am the same way some days are good and some day are really bad

  965. I have been suffering with FM for a lot of yrs so I know how we all feel pain no it is not good for us it makes us tired all the time I get up in the morning and take my pills and I still suffer nothing seems to really help but I plug a long but I am so tired all the time and have no energy. I go to bed at night and I feel sorry for my husband because I have no sexual feelings at all. So I sleep and drag myself off the couch and make supper when he comes home from work, but I know deep down he doesn’t understand my disease.

  966. My Mother was diagnosed with FM in 2002. She was finally bed ridden for the last 3 years of life. She died in 2007. The pain she had was horrible. What I remember most was she wouldn’t let us hug her or hold her hand! She was a diabetic, heart patient, and congestive heart failiar . She was told it was in her head! Hat’s off to a cure! Morphine didn’t help at the end! Nor seizure meds! God bless you guys!

  967. My Identical twin and I suffer with this. I have a lot of problems with my joints, have always been shy, sensitive, motion sickness, and yes I have incredibly inflamed and sore hands! I wonder if this inflammation could lead to Carpal tunnel? … as I have numbness and tingling in my hands…. Raynaud’s disease …. slow reflexes, fatigue, weight gain (not from diet), but lack of movement! and LOTS of Migraines!! Degenerative disk disease neck and back …. prone to endocrine disorders, she now is diabetic, I had grave’s disease …. Also in family,polycystic ovary disease, … lots of diabetics – type2 and autoimmune with adult onset type1 …..
    She had this way before me, age 22. I was first born and bigger at birth than she. In puberty I had horrible depression, … she stopped growing …. suffered from anxiety, depression, post partum depression. Could never take too much excitement, ever! No rides at fair, barf, vertigo, her and I would vomit on a car trip more than 15 miles! Don’t know if this is all related but, sure looks like a clearer picture! Easily over stimulated, by noise, smells, and visually. We were healthy wimpy kids!. Perfectionists and artistic. over thinkers, and high IQs. Sorry for the way this is spuming out of me, but my brain is going faster than I can type! I have trouble holding on to my thoughts, once gone, very difficult to connect again! Lots of tender areas, knotting muscles, food sensitivities, allergies.
    I was better off, as I was the healthier twin, I ate more and slept more as a teen. I exercised regularly as a Mom and beyond, was able to be a stay at home Mom, while she had to work. I am convinced that the diet and exercise helped me to maintain. I’ve never been as physically strong or coordinated as my peers. There is a lot more, but my better judgment is telling me to stop! lol!

      1. hi Doris, I am a christian and believe & follow Jesus, my search for my health challenges has been a good 12yrs, I hope you also get directed, as that is what our Heavenly Father does thru the right medical people & alternative natural support. I have been lead to Neways products and have become a Distributor, I have been very impressed with the knowledge of the importance of our gut health with the right probiotic, then our health will improve..I am more than happy to share with you how to get started…God Bless, best of my wishes to you Doris & your family 🙂 Jill.

    1. Laurie, I think that they found excessive blood vessels (with nerve fiber) in the hand not that it is only in the hand.

  968. Saying have a cure what is the cure ? It doesn’t say and they been researching this since maybe 2010 and haven’t come up with anything ? Probably be more pills ugh !

  969. I thought they had determined that FM is related to arthritis? Pisses me off that anyone can post their off the wall ideas as gospel and we are susceptible enough to believe it!

    1. @Delores– I don’t think there was any proven relationship of FM to arthritis, although many FM patients do have arthritis. I have joint pains/inflammation, which “technically” can be called “arthritis” since that’s what the Latin means, but they aren’t osteoarthritis, rheumatoid arthritis nor infections, so not “arthritis” as modern medicine defines it.
      What’s annoying me, is all the “try this miracle cure you can buy from me” posts that have deluged the thread.

      1. I replied to this before but im not sure it posted. I am one of the people who responded here on this forum with something I thought might help. Im sorry if it bothers you what is posted on this public forum but really thats what it is. Public. Free to post what you will. Just like you got to post you were annoyed.

        Im sorry you dont like to see the posts. At no time did i ever say this was a miracle cure, I dont believe in that. All I was saying is it worked wonders for me. I feel blessed every single day of my life now that i found something that helped. It wont help everyone but it WILL help some. I have a hard time reaching out. I am a very reclusive shy person, but I hate to see suffering, especially when I know some of it is unnecessary. What would you do if you were reading posts of how poeple were in so much pain and hurting and you knew of something that might turn their lives around? Do I just read and let them be? or do i reach out with the fear that people will think its stupid, i reached out. i want to help. i dont care if people buy from me or anyone else. i just want people to get their lives back. i hate to see so much suffering.

        So i chose to post something. Its the first time ive ever done it and it wont be the last. Im going to reach out to many people, and I hope to change some lives. I want that hope to become a reality for them like it did for me.

        1. Thanks Holly,
          If you got something that may help us in pain victims, go a head & tell us>> there are some who want to try new things to help with the pain!! We do NOT need negativity>> it only hurts worse!! Say Positive things! God Bless All who suffers from Fibromyalgia!!

          Sincerely, Sheila

          1. Thank you so much for the nice words! I try very hard to stay positive. I really just want to help. Its so hard to watch people suffer with this. I remember thinking everyday that I wished someone had any kind of help. I didnt like being in pain medication. Im so happy that I feel somewhat normal and I hope that eveyonr finds something that works for them. Im not pushing my answer. Just offering. Much positivity to ypu! Your attitude is refreshing and so so so appreciated.

  970. As much as I am excited that they have hopefully found the cause of the pain and they will research further to find a way to “cure” this horrid disease, as winter approaches and a really painfull season is coming. I am sad because of how long it will take for the medical community to accept this new find and treatment. I am screaming FINALLY, that someone actually believes us now, but with all of the heath care changes coming will any of us really be able to afford a new treatment as I am sure it will only be availble at and very exclusive list of Doctors, which will also make it super expensive. It is terrible to feel happy and almost hopeless at the same time, at least there is hope for the people in the future that may have this. on that note I will gladly be a guinea pig to help others.. but I really don’t know that I will ever see a treatment in my lifetime.. Thank you sooooo much for posting this story.. and to all of you suffering out there.. remember you are not alone .. keep your heads up one day it WILL get better.

  971. As a fibro sufferer who is spending her 60 th birthday in bed with her heating pad, I add my prayers to others that some relief will soon be available so we can have our lives back

  972. i have fibro my algia and all i was offered wasy lyrica nothing else i do not like the side effects plus it causes dry mouth and i also have sjorens so its a bad choice for dr to even want me on so i just grin n bare the pain

    1. Dear Deloris, I’ve had fibro for over 30 years. I’ve gone the route of natural remedies, and when nothing helped, I turned to the medical field. I have been on an outrageous amount of meds and nothing has ever completely taken my pain and other symptoms away. About three years ago I asked my dr. to Rx Cymbalta for me. That changed my life! I had tried Lyrica too and the side effects were horrible. Maybe you could ask your dr. for Cymbalta if you haven’t tried it yet? Also, I have recently been diagnosed with Sjogren’s Syndrome too. Many medications will cause the same symptoms so you have to weed stuff out to make sure. I was on a sleeping pill for 5 years (the name of which is escaping my fibro-fogged brain), which caused me to gain around 45 lbs! After stopping it, the weight melted off me, literally, like 45 lbs in around 30 days! Anyway, I just wanted to mention to you the Cymbalta scenario, and I hope you get some relief soon!

  973. BEEN DEALING WITH THIS FOR YEARS. I HOPE PEOPLE HAVE SUPPORT FROM THEIR FAMILY.THAT HELPS.,THEM TO UDERSTAND.IF FAMILY DONT CAREE IT HARD FOR THE PERSON TO DEAL WITH BY THEM SELF. AND YES MED ARE TO COSTLEY TO DEAL WITH.MY HEART GOES TO FELLOW SUFFERS.THE PAIN CAN BE UNBEARABLE.

  974. Anyone had any success treating the brain fog that goes along with FM? I was taking Mobic 15 mg that really helped, but lost my insurance 3/01/13 & income. Who can afford the nearly $400.00 a month? This drug also kept me from turning into a rusted tin woman, barely able to move. Any ideas would be appreciated. Thanks

    1. The best thing ive ever found is a product called Thrive. There are countless people who have been helped by it including myself. I was basically on tye couch 20 hours of tue day. It works so well for me that evem though I super reclusive by nature I decided to rep it. My link is http://www.hdonnell.le-vel.com. (if the link doesnt work its hdonnell dot le-vel dot com) but if you have any questions you can email me at hollygofightly at gmail. I can tell you my whole story and answer any questions. Also Thrive is nongmo, all plant based, naturopathic grade ingredients. There isnt anything remotely like it anywhere else

    2. Have to say that the best thing I ever did for my pain was to go gluten free. I honestly didn’t realize just how bad my pain and fatigue were until after i went gluten free and things cleared up. I still have some pain, esp in winter (I’m in Alaska and was in a car accident a few years ago that messed up my lower back and hip as well) but I no longer have the constant head to toe pain, the brain fog has mostly lifted, I’m not as tired as I once was. I really do recommend giving it a trial. It’s a lot of work reading labels and getting all the gluten free stuff sorted out, but it is so worth it to be rid of the pain and all the other issues I had before.

    3. Check yout thyroid..I am walking 2 miles twice a day outside even if the weather is too hot or cold… Oxygen in the brain ,yoga is good too. probiotics and hot tub outside in the cold… I am taking only drugs for thyroid and ibubrofen and probiotics and my fog fibro is gone since

    4. Mobic is now available as a generic–I filled it yesterday for $3.50 at Walgreen’s. Please feel better, Cindy!

    5. If you are poor and need a specific med, Look for the maker of the drug, type the name in your search engine and pull up their sight. The company may have a program that will give you the meds for free. I am on Cymbalta and the company sends it to my Drs office 3 months at a time. I have to re-apply every 12 months. The Cymbalta doesn’t help me a lot but it does help enough that I want to continue to take it. I also take percoset and muscle relaxers. I was diagnosed about 15 yrs ago.

    1. Cannabis is a promising treatment for Fibromyalgia. I would definitely Google it if interested in seeking evidence based research, and maybe even try a little if possible to see if it works for the individual. I have heard that there has been peer reviewed research in this area showing positive results. There are many ways to consume it and plenty of ways to avoid “the high” for those who wish to do so. Dosing is fairly accurate and consistent if you live in a regulated area, and if you do not, ( I would not recommend breaking local laws, but this is how we know that those who we already know are doing it have been doing it successfully for thousands of years.) Usually you just consume a little at a time until you feel better. The worst to happen if you get too much is you may want to take a nap, eat something, or become slightly paranoid (just don’t consume too much and you don’t have to worry since the paranoia is temporary, and stops completely with experience). None of the symptoms should be that concerning since they are usually pretty mild unless you go way overboard.

  975. Please refer me to the article that justifies this piece. Quoting one doctor in the article gives me nothing to refer my doctor too, so we can pursue the new forms of treatment that may be forthcoming.

    1. I wondered that too Steph!
      Here’s the link to the website of the group that conducted the research. Look on the right hand side under “Newsroom”–they have several different articles about it there. Apparently it was published in the journal Pain.
      http://www.intidyn.com/

  976. I have Fiber….its soo painful .you cant do anything …and I wouldn’t wish this on anyone……….and no its no all in my head like a lot of Dr have said…so glad I have a Dr now who understands fiber and helps me with it……….hope for a cure soon………….keep your head up…….

  977. Paul, perhaps the research has been done by a private group and not the closed minded medical profession. Do you have to go dashing our hopes?!

  978. I have had fibromyalgia for about 18 years, At the beginning I suffered a lot. Had lots of fatigue and pain. I was told to go to Hazan ND to a chiropractor there, Dr Swanson who told me my adrenal glands were depleated. He then brought in a few different bottles of vitamins and did a reflexology test with each, where I would hold the vit. in my hand and he would put his one hand on my shoulder and the other on the wrist that was holding the vit. the one that I was able to hold my arm up the strongest with was the one he made me try which was called DSF Formula, made by Nutri -west. Within a week my fatigue was so much better and the pain is very slight. Cannot say enough good things about this experience. Good Luck everyone I hope you all find something that helps soon because I don’t wish this disease on anyone.

  979. This is a hoax. “Researchers” from where? The UK research does not support this article and Google has shut down articles like this..

    Irresponsible,guys.As a psychotherapist, I know better than to fall for this.

  980. This is quite interesting and exciting to have this much new science regarding an old disease. I have been living with Fibromyalgia for several years, however, I refused to allow my internist to “diagnose” me with such for about 2 years due to the misunderstandings of others and the stigma placed on such a diagnosis. Once I conceded to having my medical records reflect my condition, I was referred to a specialist who worked with me to discover which of the three FDA approved medications for Fibromyalgia was right for me. Although many family members and friends discredit my condition I have found that my medications help on a day to day basis. These do not eliminate all of the pain and fatigue and I do have “Fibro flare-ups”. I am much encouraged from this article information and so tired of dealing with this alone.

  981. I have had Fibromyalgia for quite a few years now and I have done every thing from aquatic therapy to accupunture ,chriopractic and every med. there is…..nothing has really helped compleatly.I have just learned to live with the pain because I have no choice.This informatation at least gives me hope…

  982. It is about time to know,What i Already was aware of.If you dont live in our Body,you have knowing this pain many nights i pray and cry for something just to get to the hospital,because the meds i take daily,do not help

    1. Teresa, I was FINALLY diagnosed with Fibromyalgia in May, and my Dr. put me on Savella…within about 10 days, my pain was GONE. I don’t know if your Dr. has tried you on this or not, but, I cannot stand to hear about others suffering, too. So, I thought I would share this info with you. Good luck, and I hope they can find something that will bring you some relief.

  983. i am from England and i do not think we have research like this going on A very WELL DONE to all those doing research I hope and pray one day there will be a cure x

  984. I am in tears just reading this, I have been ridiculed, shamed and left with no answers! After reading most of the comments I understand more and more that I’m not the only person suffering with this pain and fatigue and confusion. My prayers are, that a real cure will be found and that those that don’t have it never get it or anyone that they love!

  985. I was told That I had MS so for 2 weeks I was given a life sentence to be in a wheel chair. Then I was told I had Fibromyalgia this was in 2004 . I felt like a ton of lead had been lifted off my shoulders . Then I have gotten worse over time ! I am on 2 different antidepressants & pain medicines . I work full time as a baker in a store bakery , most days I just grin and bear it ! Then there are days it is all I can do to get out of bed BUT I DO !!! So with this break though I am hoping for a better future …. Yes I to was called a sissy / wusey/ cry baby/ all my life. And even after the diagnois it was in my head . We all can be mad about the past !!! But as for me I will praise the Lord for he is the reason these scientist have found the reason.. So a big thank you , & may GOD greatly bless you all ….

  986. Talk about a fire storm on a topic. I am sure that each person I treat is an individual, treat them as such and you may have a positive effect on their lives.

  987. So how do they know the source is only in the hand, if all they tested were hands? Perhaps the problem with blood vessels is throughout the body. I was diagnosed with fibromyalgia when a back problem from a car accident would not heal, after trying everything. Looking back, I remember the beginnings of varicose veins and broken blood vessels at a very early age, and I was not overweight, certainly not pregnant, and very active, so I wonder if there is a connection? I also have psoriatic arthritis and spondylitis, and blood sugar issues and hypertension. Not overweight, continue to work, and not on disability, just for the meaner people here, before they get started on my case as just a whiner. These other things are measured and tested by medical tests, and I am not a malingerer. The fibromyalgia did seem to improve with steroid shots every 6 weeks, which I no longer get, plus I know what to do to relieve the electrical pain and back spasms so that most people do not know there is anything going on.

  988. After years off pain iv finally been diagnosed with fm.im now 28 and im worrying what my future will be like.I have 4 children ages 10, 5, 3 and 2 and im struggling with simple daily chores.

    1. i think i have had fibro for more then 10y or more years but i just find out about 3 years ago i keep after my arthrtis doctor and he is the one that find i had it i have try diff meds and the one that helps me is gabapentin 300mg 4 times a day plus on top of that i have the arthirtis bad i have good days and bad days my bad days i just lay in bed crying because i hurt so bad the weather has to do alot with my pain to my kids are 32y 23y 15y i home school my 15y i thank god every day that my kids and hubby understands my health problems i have alot of health problem.too

  989. I have had Fibromyalgia since the year 2000, an it was first thought of as Parkinsons, then after four years, the speciaist told me no, and couldn’t help after that. Then I went on Azam which helped me intially with my balance so that I was able to stand for longer and do things in the garden. I also went on Tripoline at the same time, which has always helped me to sleep, and therefore have less pain.

    After leaving the Alzam off, as one shouldn’t take it for long, I got many panic attacks, I then went on SSRI’s which really helped me walk well for a while, but it got less helful as time went on.

    Recently, I went on 5HTP before bedtime and it helped my mood and anxiety. I was also, in the morning, taking Molipaxin, which I tolerate better for some reason. I did try Cimbalta but couldn’t get along with it. This was at the time I went to a Rheumatologists, and he told me I had Fibromyalgia.

    Through living through a really long, cold and wet winter here in Cape Town, I got so low on this regime, that I went on to two Molipaxin. I am happier and less anxious, but the other thing that brought the anxiety back was my recent very bad cough. I left it two weeks before going to the doctor, and then took antibiotics. I also took Pro-biotics, but even so, this is what brought me right down.

    I still get exhausted very quickly, and at the ripe old age of 65 am back to crawling around floors very often, especially later in the day when I am more tired. I dread getting older.

    It is not the pain so much with me as the exhaustion and the inability to stand for long. I think exercising on the beach is very helpful, but missed out on that through this bad winter. To be honest, there is little time in my day after doing what I have to, and that is minimal with my husband helping out.

    I have had four thousand rands worth of Mercury sensitivity testing. I don’t know how good it is as it was through blood, and in America, they say that only Fecal testing is any good. To have all my fillings removed will cost a lot, R1,600 a filling. It will leave little tooth left. I have also had numerous Thyroid tests, which all say normal, but I have just heard about Wilsons syndrome, which talks about how the final T3 may not be getting into your cells.

    You take your temperature three times a day at three hour intervals, starting three hours after you wake up with a metal thermometer. Make a not of these three temperatures every day, add them up, divide by three, and then you get an average. If you are regularly under par, you could have this. I did it for a week, and my temperatures were always under what they should be, hovering around 35.5 centigrade on average, but sometimes as high as 36 and other times as low as 35.1.

    Eventually, when I have more money again in the new year onmy Medical aid, andmore time, I will go to a Integrative specialist who deals with this.

  990. I have treated Fibro for about 4 years now with RIFE. In 90% of the cases the pain is totally gone in 3 days and does not come back. So much suffering for nothing!

      1. Rife is an alternative ultrasound treatment of questionable scientific basis. Seach google for rife treatment and read the information posted on Quackwatch, Andrew Weil’s site, and Wikipedia. Save your money for something based on real science rather than wishful thinking.

  991. I have Arnold Chiari Malformation and have been told the pain in my
    head is like Fybromyalgia pain! Its when the bottom of the skull is squeezed
    into top of spine and brain fluid cant flow properly round the head. It can
    be operated on but not in the UK and the procedure can paralyse you and
    even kill so there is no option but to grin and bear it! Does anyone on this site
    know anything about this condition?

    Dorothy McMillan
    52 The Glebe
    Dunoon Pa 23 8dn
    Scotland.
    UK

  992. I found out about my fibro at 26 yrs old i had been taking pain meds since i was 10 . My dad would have to sign forms to take the really heavy meds. But when it got to the point when i could not walk , lift my arms , and under gone every test imagainable , I had a doctore tell me that i had fibro. On way to that appionment i kept telling myself worse case it was some nerve thing, I was so wrong ,I am now 38 disabled on biepolar meds that help with my fibro as well. But i have to watch what i eat , stay as active as i can and wear layers in the winter any temp under 65 degrees i hurt. And it is not in my head if it was then my shrink would have told me. Just remember that no matter what you can always find away to live life around the pain, and try not to stress out your body it makes the fibro worse. everyone is differnt not one persons body is the same. I know that the pain killers do not work they to soon will where off.

  993. This is a lot of disinformation and, in my opinion, meant to keep people going in the wrong direction so that the medical community can still reap financial rewards on a condition that is easily treated without profitable pharmaceuticals. The medical community has known for a while what causes fibromyalgia and chronic fatigue, and it IN DEED dwells in the central nervous system as increased cytokine levels. The central nervous symptoms are due to inflammation that comes about from a ‘trigger’. Remove the trigger, inflammation decreases. I know, I was on Oxycontin just to be able to move. Now I am pain free and living again. I share my story and what I did at http://www.mystery-illness.com, over 80 pages and multiple medical sources.

    1. Sandy, this article, like every other I’ve read on this site, is poorly written and, in some places, inaccurate, but this new research into fibromyalgia is very credible. While I can understand your need to stay where you are so you can continue to make money from your approach to fibromyalgia, it is sad that you would find it necessary to comment here in an attempt to keep money coming your way.

  994. I’m almost in tears! Been living with this for so long and it’s tearing me apart slowly but surely. Never know when you want to just leave it all behind, but stay positive for a future…. which hopefully is here soon!

  995. A cure! This has lifted my spirits please
    Please god help them find it ASAP I want my life back please! I’d sell my home for a cure and live in a card board box in exchange that’s how bad fibro is it is evil but we will WIN this battle everyone WEWILL

  996. Ps . . . doctor told my stepson that we do not have Lyme disease in Australia, so that sort of cruels that theory 🙁

  997. Also, closely related and often misdiagnosed as Fibro is Ehlers Danlos Syndrome. If you are hypermobile (flexible) make sure you get checked out for EDS

  998. FM is a disease that effects very few, with a bunch of winey people jumping on the bandwagon of a disease they can claim they have. These same people suffered from Lyme disease, chronic fatigue syndrome and are soon moving on to Gluten intolerance. Here’s a solution- get up off your couch, stop eating cheetos, and stop making attention to your problems the main part of your life! Funny how how Fibromyalgia doesn’t occur in worn torn Iraq, or poverty stricken Detroit.

    1. Alan, No offense, but you are a true bonehead who has no inhibitions towards speaking his mind. Thank you for you well thoughout contibution

    2. I attended an International Conference with 16 countries represented and the incidence of FMS (2-5%)
      is the same across the board. How do you know that no one has FMS in Detroit or Iraq…or could it be that it is just not diagnosed there? I am sad that you are such an angry, bitter and uneducated person…. I would not wish this disease on anyone not even you.

    3. You do not have the disease so do not judge. If you had it you would know what it is like to wake up and have tears in your eyes as soon as you move. Diet and exercise are helpful but other factors are involved making it flare up. I would rather have the flu then F M when it is bad.

    4. And you received your medical degree where, exactly? I feel sorry for anyone close to you if they happen to get diagnosed. Be sure to share with them your expertise on the scientific evidence that it’s not really real, based on your higher education on the subject. Sheesh!

    5. FYI I have worked since leaving school and I don’t eat Cheetos, So how come I have been diagnosed with Fibro? Considering that I am the opposite of what you have described and I still have the diagnosis! I would love to see the proof that Fibro doesn’t occur in Iraq and Detroit! Do you have a link that you can provide of where the research into both of these areas have been researched???? Are you a qualified medical practitioner???? or are you just another “thinks he knows it all” so called human being, who probably does not have an ounce of emotional empathy and who is generally unable to connect appropriately with other adults and who is possibly very unsatisfied with their own life and feels the need to pick on others who are medically vulnerable, compared to you??? Please feel free to supply any evidence you can to back up your statements. I look forward to reading anything that you can provide. I really hope that you never have to suffer Fibro or anything like it, cos I doubt you would be able to cope. BTW I think ur surname suits you…Berk!

    6. Alan you much not hurt like this before i do have Fibromyalgia my skin even hurt at times . my nerves will feel as something is crawling under my skin . my nerves will stink as a bee or a hot poker stinking me . if you just hurt one day like i do you would see what i am talking about..

    7. First off Alan, do you know everyone in Detroit? Or Iraq for that matter. And further more some people in those areas could have fibromyalgia in the above mentioned locations and not be diagnosed. I was working full-time in a very lucrative profession…until I was suddenly out of work and stuck in the bed for 2 months. And not sitting on the couch eattig cheetos as you so ignorantly suggested. You obviously have no heart…or such comments would not have been stated. Until you have walked a mile In the shoes of just one of us who suffer, it would be greatly appreciated if you would keep both your ignorance and heartless comments to yourself.

  999. This is an auto immune disease like Lupas,Rheumatoid Arthritis,etc. I do not believe that it has anything to do with my hands! This disease is not in my head.It is real and debilitating! The only thing that helps me is to take four ibuprofen and one asprin when I start to feel like I am coming down with the flu. I also take baclofin,a muscle relaxer,and Savella,it’s like an antidepressant.If the muscles in my neck get really bad ,causing a

    head ache and nausea I’ll take an extra baclofen.Only if necessary though. My mother has Rheumatoid Arthritis and Fibromyalgia. My great Aunt had RA also both got it at the age of 38. I am 41 and have been suffering for almost four years.What a coincidence…..I keep telling myself I’m fine …but my muscles/body make me unable to do things I want to do.Dealing with fatigue..when it is really bad.. I have found that four Pseudoephedrine can help for a few hours.But do not take if you have a heart condition! Myself ,I think this is something I was born with.

  1000. I hope those who have written and feel isolated and depressed will find (or start!) a support group for people with FM and related illnesses. I can’t tell you how wonderful it feels to talk to others who truly understand you pain and grief and frustration.

  1001. I have fibromyalgia and Sjögren’s syndrome. I mostly struggle to make it through each day. I take Advil when it gets so bad I can’t stand it. Hot bath and get into bed under my heating blanket which I leave on my bed year round. I listen to my iPod which has soft piano music. That helps to relax some. I don’t know of any medication that really helps.
    Sleep deprivation doesn’t help and the weather can be evil to those of us who suffer. I just figure that any day I can stand up and move Is a good day. Try to keep a positive attitude and accomplish as much as you can to help you feel better about yourself. Just keep moving the best you can. I do know it’s no in your head! Math one day they will find the rally cause and a cure. We can only hope.

  1002. Consider this -The nervous system signals originate in the brain travel down the spinal cord branching out to the rest of the body. Disruption (whether mild or severe) anywhere along the route will have an effect. If that disruption occurs in the spinal cord due to mild compression, symptoms of Fibromyalgia may occur. Where they occur depends on which
    nerve root(s) are effected. The vertebral discs maintain the space for for the nerves. The discs take on water and nutrients with movement. Sitting without movement causes compression on the nerves and they lose water. This is the cycle. It is distortions of this cycle that cause problems. If you are sitting and experiencing discomfort you will shift your position, your discomfort might also shift. Since we as Americans spend a lot of time sitting (watching TV, driving) is this not worthy of consideration? What is the solution?
    Movement. Any movement – walking, getting out of your seat when watching TV are simple easy actions that help. I am sure that people who practice yoga have a minute occurrence of fibro. Too simple? Not when you consider that no one will make any money from this. My advice: Get up, sit down. Walk. If you are in pain take it easy. Repeat frequently. Read labels and look up what you see. if you can’t take a deep breath as you stand, improve your posture.

    1. Bill, you can consider a lot of things and still not understand what you are talking about. It only takes a few exceptions to undermine your perspective and my daughter is just such an exception. She was the most active person you would know, Taught dance in many forms, personal trainer, not an ounce overweight, Definitely diagnosed with fibro… Your advice was similar to what the doctors presented, However, they do make money off this problem and they do not help outside of pain medication. (Which by and large only reduces the pain to a more tolerable level.)

  1003. The above article is rediculous. Excess blood vessels in the hands will not cause all of the crazy symptoms of fibro. Everyone with Fibro needs to get tested for mold illness. You may have Chronic Inflammatory Response Syndrome caused by mold in the body or some other biotoxin. Lyme can cause it too. If you do one thing only try the Guaifenesin Protocol. This pulls the acid out of the body that causes the pain and muscle cramping. It also helps with circulation. Calcium and magnesium glyconate help as well. Also B6 and molybdenum. All sugar and carbs need to be stopped at once. Stop all fungus feeding foods. Get to a Dr that specializes in mold and or Lyme and Chronic inflammation.

    When the body is in an inflamed state blood flow in the small capillaries shuts down. Your body is unable to break down sugar for fuel and as a result lactic acid and pyruvic acid build up in the body causing pain, cramping, and fatigue. Fungal toxins can also build up in tissues causing pain and inflammation. Look into Dr Ritchie Shoemaker’s mold treatment protocols. Get to a specialist.

    1. M Covey, you state to get to a doctor that specializes in mold and Lyme and Chronic inflammation. Lyme doctors in my area are elusive at best, and generally either refuse insurance or are not helpful. What type of doctor specializes in mold?

  1004. I dont care what anyone came up with. My fibro is caused from my lyme disease . I have doctors to prove it. Lyme causes so many different diseases.If you have fibro please get checked for lyme western blott the proper test

  1005. Its four years of pure torture; pain( the big p) every day is hell why ! fibromyalgia having it & living it & excepting it is not easy especially when you live with someone your children having understanding is hard & your wife has cancer coping gets complicated. having to lose your home & finances all because you cannot cope, the pain takes over every time.Having taken just every form of medication nothing works & then your doctors tells you its in your head &every kind of test possible to find nothing until someone comes up with fibromyagia its you against the medicial profession when the pain gets so bad i cut my skin with a knife to take the pain away just for short time & then its back when will it end

  1006. I have been living with Fibromyalgia for years, and one day when I got very sick and collapsed I was brought to the emergency, the doctor there told me…you are just depressed you need some help.
    So I came home with depression pills.
    Then after a few days the headaches were so bad that I couldn’t function anymore.
    Again I was told it is because I am depressed, I am doing this to myself…I was told to change my attitude.
    One doctor thought it might be Lupus, so I was put on steroids.
    For the first time in 20 years I went through days without any pain!
    I could jump up from my couch and walk, pick things up from the ground…life was just great.
    Until I spoke to a specialist.
    She told me not to take the steroids anymore.
    Because I don’t have lupus, I have firbomyalgia.
    And my question to her was, but isn’t that just in my head?
    And she smiled and said, no dear…but what we will do is make sure your life will get a little better.
    Your pain has a name and you can learn to live with it and manage it.
    So I have Fibro, and had it for many years.
    It has a name now, and it isn’t in my head.
    I am not depressed or doing this to myself.
    I am happy now believe it or not, happy that I know I am not the one to blame.
    That I am not doing this to get any ones attention or have them feel sorry for me.
    This is real.
    Who would have thought that this pain I had for all these years was called Fibromyalgia.
    My story is the same as many others, lot of us don’t know what it is…and suffer for years .
    Giving it a name doesn’t make it all better, but at least now we know, and knowing is power.
    Now we can go on and try to live with it and work with it and hopefully some day we don’t have to live with it anymore.
    Just hang in there everyone, we are not alone.

    1. Dear S
      Your tale touched me as I am getting very sad at doctors and specialists not helping and being blamed for the pain I suffer. I am hoping for something positive, but ive been hoping for ages. Living in the Uk the govt doesnt want to help OR to understand. Its like a postcode lottery whether you get help at all. Tired but relentlessly fighting to live.
      I am so glad you eventually found a medical person who would lift the bad feelings that others push heavy into our subconcious minds. Thank you for taking the time to post your experiences.
      🙂

  1007. I had major hip repair in June. now my hip feels fine. I don’t know it is there most of the time. I had had fibro since the late 70’s. It went into a very mild state around 2000. Well the shock of surgery woke up a very cranky sleeping bear. It came back. Hands hurting neck popping, sleepless nights etc. I saw a back spine specialist. Everything is blamed on fibro flare-up. I was put on gabapentin, a nerve pain drug. I am going to work up to 3 times a day. I am getting some relief. It sounds like some of you have not had success with the nerve pain drugs. I am also taking melatonin B complex, D3 Juice Plus, SAMe, daily vitamin, & Aleve. That combo worked before and didn’t work now.

  1008. The article demonstrates some of the symptoms that people encounter, but there seems, as some posters here have noted, to be a lack of demonstrated causality. Many people are unaware of the culpability of one simple toxin in situations like this: mercury (Hg). Mercury destroys the nerves, and is attracted to fatty tissues. Because of this, it doesn’t spend much time in the water-based bloodstream.

    A look under the microscope at what mercury does to nerve tissues can be seen via online video, courtesy of the University of Calgary. Just visit YouTube and look for “mercury Calgary.” After knowing what mercury can do to one’s nervous system, the next step is to understand how one can be exposed to it. “Silver amalgam” fillings, more than 50% mercury by weight, are one common source, thimerosol in vaccines is another, and there are many products like fluorescent lights which contain mercury.

    Is there anyone here with fibromyalgia who does not have a mercury filling?

    1. Yes, I did have mercury fillings when very young, all done at around 10 years of age. A few years ago i decided to have them all removed and replaced with non-mercury ones, just in case, and it did seem to help for awhile but unfortunately the symptoms then returned. Who knows though… perhaps i would feel much worse if i’d not had them removed.

    2. Yes, I have had it for 20 years. I am lucky and that I have good teeth and no fillings. That does not mean I have not come in touch with Mercury? Thanks for another thing to check. My metal test did showed high lead.

    3. Erik, my daughter has had fibro for about five years and has never had a filling. Her teeth have always been perfect. She is 36 this year.

  1009. Finally!! Something I can read and relate to….I so relate to Kaytee Sumida…..and many others here.
    For 20 plus yrs…I have been through it all with “doctors”, psychiatrist’s, neurologist’s” etc….been on every med under the sun…..nothing helps…..had similar diagnoses to Kaytee…when these docs said …”it was all in my head”…or bi-polar….borderline personality disorder etc…..So far from the truth, but these were specialists, so how could I defy them at that age and time?!
    Had so many suicidal thoughts, believing they must be right, after all…they are specialists ??!! RIGHT !… The last straw for me was “seraquil” ( an anti-psychotic med)
    for 5 years, that made me a total zombie…..Five years of hell on that drug….It’s taken me a year and 3 months ( I quit it cold turkey) but all these meds stay in your “fatty tissue”, so to speak …..( btw—-I’m 125 lbs and 5’8) but you still go through withdrawals…..it’s sporadic….and seems to be on 3 to, 6-, 9 month level….but FINALLY have clarity again.. My family can totally see the difference in me, without these meds ( oh yes, and lithium…omg..prior to that….another story in itself !! ) They see I still live in constant pain, but are so happy to have “ME” back, without all these horrifying prescription meds….that were not meant for my body or my brain. Hopefully one day we will and can find something that can truly determine the actual mystery ( as this article it seems, somewhat contradictory) and a medication that will truly help…..Thanks all for listening….good luck in finding a “cure” for yourself, and if anyone does follow up with this so called “mystery unveiled to F.M, ” please post for us still trying to find our own solutions…..It would be so appreciated and I thank any of you in advance, that may have suggestions for me.
    Much Peace,
    To All !!
    Suzanne

  1010. I read the abstract but did not interpret that a cause-effect relationship was found, but rather that the differences exist. It’s a big stretch to determine causality from these findings.

  1011. Has anybody tried nutrition therapy? I went to a rheumatologist knowledgeable in fibro. after my new PCP wanted me to see a psychologist. I was asking him to continue prescribing Lorazepam, the only med that has really helped me sleep without any side efffects. For 16 years I tried every medication that was supposed to ease the pain.

    It wasn’t until a blood test revealed that I was vitamin D deficient, and had the RA factor in my blood. The doctor suggested the diet treatment. I started to eliminate gluten and all processed store bought food. I’m also lactose intolerant. I went to GNC and found a supplement called Luminite. In about one month my fibro pain had decreased from a scale of one to ten, to about 5. I’m trying to buy as much Organic food as I can possibly can afford.

    I’m not 100% pain free, but I keep reading all the research that’s going on and I have to a conclusion that our food supply is the culprit to most of the ailments we’re suffering.

    Here are some websites that have helped me:

    http://www.lef.org/protocols/immune_connective_joint/fibromyalgia_01.htm

    http://www.glutenfreesociety

    http://articles.mercola.com/

    This last site by a Dr Mercola has a wealth of information

    Hope this help somebody!

    1. Good for you for exploring dietary improvements/changes! So many “modern” diseases do have a direct link to our “modern” diets…..glad to hear you are seeing some results and supporting your body through better dietary choices 🙂

  1012. I have been living with Fibro for 50 plus years and it took me years to find help for the migraines that are often a part of it. My migraines were caused by low serotonin levels.
    I found a way to stop them by taking 5-HTP which can be purchased online or in any healthful food store. 5-HTP raises the serotonin level in the brain and comes in different strengths. I take it at bedtime as it does relax you. Hope this helps anyone else!

  1013. This is interesting to me as when I first developed FMS, I felt my skin hurt all over. Running a fine-tooth comb over my body greatly lessened the pain-whatever sense that makes, or doesn’t. Still helps though my pain is less.

  1014. I was told -when I was 30 and 3 months pregnant with twins- that I was a pre-menopausal hysterical female who didn’t accept the normal aging process. It took 22 years to get a referral to a decent rheumatologist and get a diagnosis of rheumatoid arthritis, ankylosing spondylitis, and fibromyalgia. Still can’t get anyone -outside my rheumatologist- to understand why I can’t work and get a disability pension. They just can’t conceive the exhaustion caused by the constant pain.

    1. Myriam, these 3 debilitating diseases qualify you for disability through SSDI; but if you are young, they tend not to approve you. I went to several doctors for confirmation before I decided to file. The more data you can present them with, the better chance you have. As you age, and develop more conditions, the more compelling the case. Phone a Social Security attorney or a firm that will represent you, such as Allsup.com; and see if they think you have a shot at it. They won’t accept you as a client if they think you will be turned down, and they will tell you why. They are wonderful to work with. I was 61 when I applied, after 20 years of working full time with this disease, and I got approved. Best to you!

      1. Do you have any advice for a 54 year old man that was diagnosed with CFS and Fibromyalgia over 25 year ago I lost 2 houses snd a 5 million dollar business but I have not worked since 2004. I applied for ODSP in the summer of 2011 after my company went bankrupt. They responded this year telling me I didn’t qualify, I had an internal review and lost now I have a tribunal coming up on February 5 , 2014. My lawyer says I need more proof than my doctor who knows I can’t work anymore. Please if you know how I can even get something to prove scientists have found the cause would help because up here in Canada the doctors never heard of this discovery.

  1015. It would seem that the author of this article either did not read the original research paper from which this information was taken or didn’t understand the science therein. Foremost, the original research article states that the difference in fibro patients was not the number of AV shunts in the hands, but rather that the AV shunts in the hands of fibro patients have more of a particular type of nerve connection than those of a non fibro-afflicted patient. It is still a problem with nerves, NOT with the circulatory system. Also, this study was small, including data from only 24 fibro patients, so to say that this is the definite cause of fibromyalgia is an incredibly premature statement. The research is promising, but by no means conclusive. For those asking about treatment options, the authors of the research study still suggest SNRIs for the time being. I’m a molecular biologist who’s life has been torn apart by fibro for the past decade.

  1016. Have any of you tried Medical Marijuana? I am currently experimenting with different strains in smokable, edible and topical Marijuana. I live in WA state, so it is now legal.
    The side effects I experienced from traditional meds were horrible. Lyrica had me retain so much fluid, I gained 50 pounds. I diet and diet and every couple of days I am up another 4 or 5 pounds. Unable to excercise sufficiently, I can only rely on diet to lose weightt. While on weight watchers I gained 12 pounds in 3 days! I have a Pain Dr. who had me on methedone, cyclobenzeprine and hydracodone. I am trying to reduce my meds while searching for the right MM type that will work for me. Does anyone have a strain, or a type that works for them? I have found the Sativas make my head pound and the pain is excrutiating beginning at the base of my spine and then creeping through the rest of my body.. Any ideas and suggestions would be so helpful. Obviously because I hurt this bad for so long I would take snake oil if it would help.

  1017. To sufferers of this debilitating condition,I’ve had fibro and Chronic fatigue for 35 yrs. I was the worst case my doctor had. He called it M.E. I live 24/7 with constant pain and fatigue. I wont take a lot of the meds doctors prescribe as the side effects are worse than the condition. The cold makes it worse so gloves are a must. I get about one hours sleep per night with out waking with restless legs. I take 1&1/2 diazepam at midnight to relax me and try to get some sleep. I take either Pethidine or Tramadol for the pain. Don’t take together, but with a little food to stop nausea. I try to separate them to stop addiction of one. I got Serratonin poisoning taking Tramadol with Amitriptyline, nearly killed me. I don’t take Amitriptyline anymore only my diazepam as it helps stop the tears when the pain is to bad.You need to read what meds clash, nothing really helps, there are different degrees of this condition, some you can live with more severe makes you almost bed ridden. All medications have side effects but may help some folk.Type in the drugs you take and read the side effects that your kidneys and liver have to filter out. I have diabetes type 1 caused through stress, i’m on Insulin did gain weight but i’m not much over weight. I take a high dose of magnesium to stop muscle cramps, 3 evening primrose for inflammation plus cod liver oil.
    I read everything on this condition and hope there is a cure to get some quality of life back.
    I really feel for sufferers of this debilitating condition .All I can say is try to keep you chin up, don’t feel guilty, lay down when ever you can. Jeannie

  1018. These proposed medications weren’t as far off as you think. The tricyclic antidepressants have been the first suggested medication for many years, and they do help many people. Among other things, they help regulate the sleep cycle which can in turn help reduce some of the pain. Prozac likewise has been used successfully by some. Cymbalta is a more recent SSRI antidepressant that is apparently effective for many people with fibro. If any of them made it worse for you, then obviously they weren’t the correct medication for you. This doesn’t make them wrong for everyone. I’ll admit that some doctors seem to have a bad attitude toward working with people with fibro, but that doesn’t make all doctors, or all the medications wrong for everyone. It’s a matter of finding one you can work with, and unfortunately it’s still somewhat a matter of medication roulette in figuring which meds work for you.

    1. You are right Joe ! Cymbalta helped me so much. Starting with 3x 30mg . In combination wit hormon DHEAS 1x30mg. With DHEAS i’m not tired anymore ! Now I try to bring Cymbalta back to once a day 30mg ( on my way with 1x 45mg). I’m very happy with both medicins after being 14 years in pain

  1019. So after reading the article what exactly is the treatment now that they are able to pin point it to the hands ! Fibromyalgia sufferer 20 years….

  1020. “When are they ever going to figure out that things are never “all in your head?”

    There are indeed diseases for which the cure is not pills but psychotherapy: http://bit.ly/1dWfDCa

    “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy.”

    I’ve never heard an example of this happening than except for “a friend of a friend of an Internet friend of mine.”

    Also try not to put complete faith in this particular cause. It may or may not be as they seem to think, there’s still a long way to go before any actual medical help will come of this.

    1. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy.”

      I’ve never heard an example of this happening than except for “a friend of a friend of an Internet friend of mine.”

      Well, I have personal experience with this. The first “solution” for my fibro symptoms was Prozac. When that made things worse, I was given Zoloft. Then was offered a tri-cyclic antidepressant. Then a sleeping pill…. Oh, and because I objected to getting yet another script for psychiatric meds– and dared to argue with the dr about their suitability– I got a diagnosis of “personality disorder” from him.

      1. Sorry–this ended up posted in the wrong place. Posting here so it will make sense.

        These proposed medications weren’t as far off as you think. The tricyclic antidepressants have been the first suggested medication for many years, and they do help many people. Among other things, they help regulate the sleep cycle which can in turn help reduce some of the pain. Prozac likewise has been used successfully by some. Cymbalta is a more recent SSRI antidepressant that is apparently effective for many people with fibro. If any of them made it worse for you, then obviously they weren’t the correct medication for you. This doesn’t make them wrong for everyone. I’ll admit that some doctors seem to have a bad attitude toward working with people with fibro, but that doesn’t make all doctors, or all the medications wrong for everyone. It’s a matter of finding one you can work with, and unfortunately it’s still somewhat a matter of medication roulette in figuring which meds work for you.

        1. I never said they are wrong for everyone– however, neither are they RIGHT for everyone, and the prevailing “expert opinion” seems to be that they are a one-size, fits all panacea… the first choice for treatment, even before a definitive diagnosis. And still the first choice treatment even after the first three or so “trials” don’t help and cause additional problems. My particular form of fibromyalgia has nearly a 1:1 correlation with hypothyroidism, except the lab tests said my levels were in normal range (and I have the “tender points”). But “no way in hell” was Dr. “I’m the Expert” going to “allow” a trial of thyroid meds… despite signs and symptoms and family history.

          By the way… SSRIs don’t work for those of us with very low levels of serotonin…. And thyroid meds DO help relieve those signs/sx of hypothyroidism, even when “the lab” says the levels are “normal” prior to treatment.

          1. Many “thyroid tests” done don’t test the right thing, they often look at a marker which is not the be-all end-all of whether you have a thyroid problem, but it sure makes it easy to not help you. We all know folks who are more or less sensitive to chemicals, so one “normal range” for the entire population isn’t valid, either.

          2. “Many “thyroid tests” done don’t test the right thing, they often look at a marker which is not the be-all end-all of whether you have a thyroid problem, ”

            When you have Kaiser (a HMO) as your healthcare provider, they do a TSH test. Period. If that is “normal”, they won’t do any of the other tests, even if ordered by your PCP. And, when I went to a private lab, to try to get the other testing done, I was told that I couldn’t “self refer”– that I needed a doctor’s order to get the testing done and that the results had to be sent to the ordering dr. Annnnd… Kaiser won’t “accept” test results from “outside providers”, unless the tests were ordered by Kaiser from those providers (contract work for low volume tests).

            Now that I’m taking thyroid meds, they do T3/T4 in addition to the TSH– however, one of the hormone levels is a calculated level, based on the results of the TSH and the other hormone level… they only do the other tests if the those tests are outside the normal range. Maybe. If the stars and planets are aligned correctly and the dr filled out the test request properly and whoever was in charge of record keeping flagged the result…. At my last check-up, my TSH was nearly double what it “should” be, and outside the stated “normal range”, but I only found that out when I was checking for other test results. When I called about it, the nurse said that if my dr thought it was a problem, she would have called me.

  1021. Het zou prachtig zijn mocht dit nu eindelijk de realiteit zijn. Het zou onszelf een nieuw leven geven en andere bevooroordeelde mensen eens doen nadenken over hun reactie’s.

  1022. I have read most of your comments. It is too bad that some people don’t accept fibro as a disease. hang in there people.

  1023. Hi everyone, I live in Australia and have been suffering with Fibro for many years. I live a very healthy lifestyle and eat mainly raw veges and only a little lean meat. When younger i was extremely athletic and super slim, but now the Fibro makes exercise almost impossible. I like to try and do some most days but find that if i do more than just a very little i suffer for it for many days afterward. Although previously used to training and fitness regimes, i now find that nothing i do, no matter how slowly or for how little time, actually helps in building up my stamina. On a ‘good’ day – pretty rare really – i can walk for hours on my treadmill or out by the beach, but then i’m always bedridden two days later, feeling as if i’m going to die. It’s so frustrating as i have always enjoyed seeing myself as a very fit, healthy looking person – becoming much harder now to ‘keep up appearances’ even though i am well schooled in planting that smile on my face and looking as good as i can. The article, of which i read a full version on another site, explains that the extra av shunts in the hands cause widespread pain throughout the entire body, and not just in the hands, because of the ischaemia, or lack of adequate blood flow, that occurs deep in and around the muscle cells. This is exactly how it feels inside my body – as if my muscles are being squeezed from the inside out, into a cramp like situation, and that this is causing poison or toxins to be released as a result, which of course if the case as the inadequate blood flow is preventing adequate exchange of cellular chemicals. It’s getting harder to cope with, and i’m running out of ideas… but i know i’ll keep trying as there’s simply no alternative. Right now i’m focusing on losing weight, as i’ve gained 15 kilos since this disease really took hold some years ago. Slowly, i’m seeing my ‘old’ body emerge, which is so much more appealing to me than my Fibro one 🙂 Keep smiling guys, as you don’t want to miss out when they do find a cure! Make sure you’re in the best possible shape when it comes. Love & blessings to all, Robyn.

    1. I hear you on the godd days you do stuff but then comes the bad days to after you have the good days been living with firbo for about 5 y but I think I have had it longer and the doctors didnt know what it was good luck

      1. Hi Debra,
        Great to hear from you, but sorry to find that there is yet another ‘fibro victim’. It does seem almost impossible that such an innocent little word like fibro can mean such devastation, isn’t it? I’ve often wondered if i have something more sinister, as the fibro feels so bad at times, but unfortunately that’s how it is. I hope and pray that you will have only a mild course of the illness and that you will learn what works for you, so that you can keep it in the ‘annoying’ basket rather than have it on the mirror in front of you.
        Kind regards,
        Robyn.

  1024. EVERYONE has “fibromyalgia” every once in a while. It’s a disease of self-proclamation awaiting and waiting and waiting for the scientific minds to come up with a way to give it some credence. Then they can satisfy the excuses that we all come up with, every now and then. When you hurt all over, you have fibro. When you hurt every day, you need to rest. You don’t need to medicalize a transient “condition” which may or may not be prolonged with a proper label. Get over it.

    1. You obviously have no idea how it affects a fellow sufferer to make this comment. Don’t judge how people feel cos if you read previous comments everyone has similar or some of the same effects that is caused by fibro. It’s people like you that wind us up in the lack of understanding. I along with other sufferers await a cure & recognition for this illness. None of us want it we just developed it.

  1025. okay I’m back so now I have tested positive for SMALL FIBER NEUROPATHY along with my fibro so now what ????????

  1026. hello my name is Debbie I am 56 and I do beleive that I have had Fibro for most my life I also have Rynards an Sjogrens I’m sure the spelling is incorrect but anyway I was finally disgnosed about 7 years ago I have been to numerous Physcs cause they are sure it’s all depression and I take so many anti-depressants anti-convolsunt and so on God forbid they give me a flippen pain pill do deal with the PAIN anyway I have been going to the University of Washington for about 2 months now and they are testing me for this very thing right now…..but what I want to know is now from what I understand a cure is not likely for all and what has caused this how do they intend to help us and what about all of the other 100’s of illnes’s that go along with fibro I mean don’t get me wrong yeah they are finally doing some research and really looking at Fibro but we are still in the sasme place ???????

  1027. I have access to a site with many testimonies of what others are doing to help with this condition. Here is one testimony but you can search for others here
    http://www.oil-testimonials.com‘985902

    Fibromyalgia Symptoms Going Away

    My youngest daughter, 26, has been suffering with severe soreness in her chest, back, hips, knees, shoulders, and neck for several years. Six different doctors have called it six different things. I suggested she not give it any power and not call it anything but symptoms. We have tried oils and supplements with some success but not enough.

    Then in February, I started her on Ningxia Red because by that time, it had progressed to her jaw, head and ears and doctors were going to add more medicines to her regimine. She was taking the juice three times a day at first and could eliminate the first medication after 4 days.

    She continues on the juice, now using it twice a day and is on only one medication at the lowest dosage. Her plan is to get off of all meds and only take the juice indefinitely. She has no pain, is sleeping so much better and has stopped grinding her teeth which was causing the jaw and ear pain.

  1028. Hey Guys, Like someone further up said, our bodies all react differently! I do appreciate all of the suggestions though.
    Thank-you

  1029. To D.G.
    I had pains shooting down my legs and of course the other fibro pains along the way.
    Accidentally I got on some Armour Thyroid medication and had a lot of improvement.
    In doing research, the symptoms of low thyroid mirror fibromyalgia. Now the big
    gotcha in thyroid treatment – most likely your tests that doctors routinely run will show
    you “in range”. You need to find a doctor that does not worship the Holy Grail lab test
    of TSH, but looks at your symptoms of low thyroid as a whole person. Mainstream medicine in the US has a really backward approach when it comes to thyroid problems
    in fibro patients. Another source for information is Dr. Kent Holtorf. You should google
    him.
    A really good book is “Stop the Thyroid Madness” on Amazon.com and should help
    you find a doctor to work with you. I would also try to find a pain management doctor
    to work with you to at least get the pain in a manageable level. Most have a cash
    payment schedule – this is really important for your quality of life.
    I wish better days ahead for you!

  1030. needed comprehensive research on pulse system in body as there are more than 17000000 puses in the body, their centre heart ,life lies in pulses only,one having mastered Yog can withdraw life from any given pulse and enabling himself to feel no pain in that part of body.I from Bharat[india] eat 2-3 grammes of paste of bhaang leaves[sister of marijuana]to relieve from mental tension and also for concentration of mind,extra dose causes intoxication.

  1031. I was diagnosed with Fibro Dec. 28th 2010, but I truly believe this is what I had long before then! I also have chronic insomnia. Which I’ve had since the age of 16. I’m 23, going on 24, but I honestly feel like i’m older! Fibro w/ the insomnia has took a tremendous toll on my life and with a family who isn’t very understanding has only made it worse! I’ve struggled with accepting the fact that unexpectedly these were the cards I was dealt, because I was perfectly healthy! My education, as well as my work life has suffered! I’ve only had one job, my whole life. Which I was at only a year and couldn’t handle it any longer! I’ve tried so hard to not let this condition defeat me, but it’s winning! I’m not looking for pity or trying to make excuses. This is just how I feel! Luckily, I have a partner that I’ve been with for two years and she truly is my rock! Without her I would be lost and dumbfounded. I dream of the day where I wake up in my old body, painless and free!

    1. Luckily, I, like you, have a partner that understands. I would hope that this “cure” is as simple as they make it sound, However, I don’t think it will be. I have the insomnia as well along with the Fibro, hypothyroidism, pernicious anemia and migraines. I am not looking for sympathy either, I am just sick and tired of being sick and tired. A cure would be a wonderful thing!!! We can only hope that this is legit and not wishful thinking!!!

      1. This will be I think the 4th or 5th time I have posted here:
        The fact is that the ONLY true ‘cure’ for all disease is a properly balanced diet of ONLY naturally existing foods. PERIOD!

        Dr. Gerson, Hoxsey, Reams, and many others have proven this, and I offer all of Gersons publications for FREE, here: freeornottobe.org

        The reason why this is a fact is our cells have evolved over 3.4 Billion years (since the start of life on Earth, and several hundred thousand years since our current form began).

        Because of that process the ONLY way to ‘cure’ your self is to bring your body to its ‘natural state’, which can ONLY be done with ‘natural’ means.

        That means food, extracts, juices, exercise, good mental state, etc..

        IT IS THAT SIMPLE! But unfortunately, this is not ‘easy’, because (for example) all foods in some markets like my local Frys and Safeway are ALL Genetically Modified.

        The reason why GMOs cause cancer and disease is because the DNA is modified, and cloned, preventing the genes from stabilizing via the natural process of sexual recombination. ‘Heritage’ seeds are produced by ‘hybridization’ which utilizes this natural process (designed by God billions or years ago or more, which I also can explain, if given the incentive, as my time is precious). This is why these are the only foods you should eat.

        My local Food City has NO GMOs. I shop there. (Ask your produce managers to be sure).

        PLEASE SHARE THIS, AND MAKE SURE THAT EVERYONE WHO READS THIS ARTICLE READS THIS. Gemma Cliff has posted similar info which you all should read, much earlier on this page.

        For more go to: freeornottobe.org

        1. I hate to burst your bubble, but this is utter nonsense. GMOs don’t cause cancer and disease. While their DNA is modified, so is the DNA of every other plant that has ever been hybridized by any means whatsoever, including natural cross-pollination. Some diseases are certainly helped or even cured by eating a balanced diet. Some have no dietary component whatsoever. It doesn’t matter how many times you post this. It won’t make any more or less true (which is to say, barely there) than it was the first time.

  1032. I have had fibromyalgia for so many years.. long before they had any idea of what to call it… it has been over 20 yrs for me and my fibromyalgia is better now than it ever was in the past…. I am very sure that it is caused by toxins, not anything else.. and our world is full of them…. start by stopping all artificial sweeteners, no diet soda of any kind (ever) and no artificial sweeteners in your hot drinks either… and start using as much organic foods as possible… and stop using anything with salicilates in it, stop using aloe vera, unless it is taken by mouth (read labels, it is most dangerous in hair and skin products). These are toxins, or strong medicine and should only be used internally or on burns, not for everyday use. MSM is very useful to help with connective tissues, and use vitamin D, magnesium and coral calcium………… these will all help with fibromyalgia and will stop most arthritis pain in it’s tracks………… good luck… it is working for me… try to stay away from pharmacudicals…. natural is always better, but please use sparingly…

    1. then again, I also believe that fibromyalgia is a ‘syndrome’ with many possible causes (just like a headache is a syndrome with many causes)… the above is just from my personal opinion of what is happening in my own experience.. I just think that each person needs to monitor their own body and see what works for them. Above all, I am hoping that by giving and telling of my own experience, it might help someone else out there….

    2. So its that easy is it? Your advice is not only erroneous as to the cause of fibro, but dangerous! As a nurse for many years and a sufferer of fibro for many years as well, telling people not to make use of a certain form of medicine is so wrong and as far as I’m concerned criminal. Stop the snake oil sales pitch, please. Altering of lifestyle to include much of what you suggest is a good thing, just not to the exclusion of traditional medicine.

      1. good one rhijulbec…i was diagnosed with fibro in the late 80’s but have had it since my teens..i am now 60 and yes everyone should know their bodies and as far as it’s in our hands…that is a bunch of sh….crap!

        1. Amen Cheri. I’ve never heard of the pain theory and it sounds crazy! If its THE answer, why aren’t we all cured, have an exact treatment, and its not ALL OVER the news. BS!

          1. Because this article misrepresents the research. It’s preliminary research, needs to be done with a much larger sample, needs to be replicated, etc. etc. etc. The original publication doesn’t report finding a cure, or even propose one.

  1033. I think I might be the only man commenting on this entire forum about this. But like someone commented earlier, Men do indeed suffer from this, although it is obviously less likely than a woman getting it. I am only 21 years old, and i already feel like im about 80, I have been to Doctors and physicians, neurologists and rheumatologists since i was about 6 or so for most of my waking (and not waking) life. I have been on literally about every type of antidepressant, SSRI, skeletal muscle relaxer, vitamin and supplement there currently is in the world right now, i have tried everything there is to try short of narcotics. Sometime i feel just so ungodly crappy and fatigued, a good way to put it is i feel like i just ran about 60 miles after having not done any hard physical activity for months.Even as im typing this, my right calf is throbbing like i just tore a ligament.My entire body hurts, and there is no real way to describe it unless the person your talking to suffers from it as well. Ive tried explaining it to my girlfriend, and she sort of understands. She understands in a way that, she knows im in pain. But thats as far as she gets it, because you just can not accurately show someone else who does not suffer from it what it feels like to just live day by day in the body you have. This terrible curse has been afflicting me for the better part of my life. I hardly had a childhood because i hurt all the time, the doctors and my parents and myself, all thought it was just growing pains. So i went on with my life, with a permanent frown on my face, my friends always asking me what was wrong, why i always looked so depressed. And after a while, you get to where you just dont tell people anymore about it, because they diddnt understand, and because i got tired of the looks people would give me when i told them i had FM. So ive been living my life in a perpetual state of agony and depression, with hardly anyone to lean on other than my immediate family. I was going to see psychologists when i was just a little kid suffering from depression. How sad is that that a child not even in his teens yet is suffering from severe forms of depression? For the longest time all of my Doctors thought the pain was caused by the depression, so they kept shoving antidepressants down my throat for years, every possible kind you can think of, you name it, ive taken it for a few months at least. It wasnt until just recently, within the last couple years that ive come to realize that all this depression was actually caused by the pain, not vice versa. Ths isnt just minor aches and pains, I layed hardwood, carpet and tile/vinyl floors for 5 years, i know what aches and pains are. This is in a category all of its own, Widespread full body pain, with spots of acute pain i guess you would call it, usually localized in my legs, shoulders and neck, sometimes absolutely debilitating, so much so that it almost compares to a severe toothache or being stabbed, which ive had both happen to me, which is why im using these a comparison. I dont have any money or insurance, so i had an abscesed tooth for almost 3 years so i know what excruciating pain is. On a scale of 1-10, the tooth probably being a 8 or 9, when i get to really feeling crappy i would rate the body pain at about a 7 or 8, those numbers have been climbing everyday for years now. Everday it gets worse, somedays its all i can do to just not curl up into a ball on the floor and cry, Yes, i am a grown man, and i cry, not necsisarily because the pain hurts so bad, but because i know that the next day will be the same, and the day after that, and the week after that, and year after that. And im not really sure how im going to make it to 30, or 40. There is no way in the world that i would ever harm myself. But at the same time, i have so little options left anymore, realisticaly i have no vision for my future. Most people have some sort of idea of what they want to do in a year, or where they want to be in 10. But i have no vision, no idea of where im going to be in the future. I just simply cannot imagine it without me being a drained used up husk of a person. Ive been walking down to the nearby lake everyday for months, hoping that a little excercise and freshair and sun would help, since i used to love going outside and hiking and being in the sun. Just going outside and seeing the sun, helps me cope a little bit, sort of like a giant beacon of hope off into the distance. Unfortunately i have yet to get any closer to this beacon, Even after months of trying to psyche myself into doing things, power my way through work and trying to live a normal life, i still find myself curling up into a ball when no ones home, and trying to get some severely needed sleep, as you can imagine when you feel crappy, its kind of hard to sleep. As of right now im running on about 3 hours of sleep for the last 3 or 4 days. Ive been writing this for about the last few hours, because after every few minutes i loose my concentration and kind of loose myself in trying not to focus on my legs. If a Doctor told me there was a new experimental procedure to remove the pain from my legs caused by fibromyalgia, but there was a catch. The catch being that the procedure was to literally cut off my legs, I would take that deal so fast id have the papers signed before you could even offer me a pen. I would cut off my own legs, if i thought it would make the pain go away, how sad is that……..If there is some sort of cure developed in the future, i hope it is done soon. I would never wish this condition upon anybody, ever. Not even my worst enemy, or the most evil person you can think of. I am sorry this post was so long, ive just never really written about it as i dont have a facebook or anything like that, and being anonymous helps as well. Still though, if there was something i could do to help someone else with this terrible condition, i would do it in a heartbeat. At least then one person would be free from it, that one person could live their life like a normal person, not having to worry about when you are going to have your next flare up, or how your going to get to sleep tonight. Please, if someone reads this who has the power to potentially make an impact on the research and maybe possible cure of FM, dont just forget about it. If not for me, or anyone else on this thread, do it for the person that you know who suffers from it. If we can make even one persons life better, then maybe we can make the people who suffer in silence, believe in that beacon of hope, or even just believe that tomorrow might be just a little bit better.

    1. D.G… please go to youtube and look up “Weed”, A Dr. Sanjay Gupta Special – CNN documentary.. they are using hemp oil with low thc high tbd to treat nerve related illness… I’ve been wondering if this could help fibromyalgia…. heck with all those drugs they want us to take… good luck trying to convince your doctors….

      1. Hi ALL, I haven’t been on in a while so, I thought I would drop in…
        I was reading some of your post. I just want to say, When I am having a real bad day. I come here and read. It helps me remember ‘I am NOT ALONE’ as you all know that’s ‘BIG’
        We do not all have to agree on everything, But WE DO ALL need to respect that No ONE knows your BODY that you do yourself. I have tried many of the things that some of you say have helped you. And that’s Great! as for me I have found No treatment or vitamin that has taken my daily pain away. I just have my semi good days ,’that’s when I can walk befor noon’ and my Bad days ‘when Im not sure I want to live anymore’ it seems as I get older I feel worse.
        anyway, love to here all of you ..
        I respect you all and I DO UNDERSTAND that your PAIN is REAL!!! YOU ARE NOT ALONE!
        Tambra

    2. Hi D.G.
      I’m sorry you are having to live with excruciating pain at such a young age. I feel bad for anyone at any age, really, who has to endure that kind of pain. I, too, have daily pain and MANY sleepless nights. Or I should say, HAD!! I found a product that has helped tremendously with pain, I’m able to sleep better at night and have more energy than I have ever had before!! This product I’m talking about is 100% natural and has literally given me, and countless others, a chance at a normal life again. I would love to share more information with you and anyone else who reads this. If you’re interested, please email me at [email protected]. I’m not claiming that this product is in any way a cure but, it has helped relieve daily excruciating pain from arthritis, MS, severe sciatica and daily migraines. Until there is a cure, I’ve found an alternative to medications that cause bad side effects and sometimes don’t even work at all. I look forward to hearing from you soon.

    3. What a moving history….sorry I m from Sweden so my English isn’t that good. I have hte same but it only started like 2 years ago….so I really feel pain for you and your history….hope that help will be found soon. take care

    4. Hi, D.G.,

      You’re not the only man on here! Fibro is generally diagnosed more readily in women, but men most certainly get it, and every bit as bad. One thing that helped me tremendously when I was at a very low point (pain so bad it felt like my back would break if anyone touched it) was going through a pain management program at a local physical rehab center. They provided a lot of different options–medication, physical therapy, working with a clinical psychologist, biofeedback, nutrition–basically throwing a lot of different treatment modalities at me all at once. Some worked for me, some didn’t. I don’t think visually, so meditations involving visualizing anything were a complete bust. Breathing and walking meditations helped, as did some of the p.t. (especially Feldenkrais) and medication. I understand you don’t have insurance, but I urge you to see if any treatment program like this is available in your area. I still have fibro, and I still have pain, but I’m so much better at coping, and at helping myself feel better, in part as a result of this program.

      Wishing you some relief.

  1034. This article makes it sound like these nerve fibers are only in the hands. Why not throughout the body? And what factor is creating these fibers? A deficiency in magnesium, vitamin D , calcium or folate?

  1035. Sorry to uproot your breakthrough bubble, but the cause of fibromyalgia is trauma. The trauma creates emotional toxins in the body, which fills the cells. Cells filled with toxins will not produce good health, and so the fibromyalgia ball starts. For more info go to RelieveFibromyalgiaPain.com Or email [email protected]
    Your pain free life is guaranteed.

  1036. A diet of organic, alkaline and fresh food helps too – avoid processed and acidic. Also helps hugely with arthritis.

  1037. I have taken 5000mg of Vit. D & Calcium & Magnesium every day for 3 yrs now & I have notice that I haven’t had any colds or flu. I would suffer from Bronchitis every winter & haven’t since I started. As far as the leg pain goes I still have it if I’m not careful with what I’m doing.

    1. Heather, do you take 5000 mg of each, the Vit D and Calcium & Magnesium? or, 5000 mg total?

  1038. I found large doses of magnesium helped tremendously. I took the CLinicians range, prescribed by my dr. Expensive tho at $70 a month for 1000 mg a day, so I didnt keep it up

  1039. I need to take vitamin D & magnesium but when I do it makes my cramp even more severe. Any idea’s anyone??

  1040. I had all the symptoms of fibro, but after three years of pain, I found relief with just three weeks of vitamin D and magnesium supplementation. It doesn’t work for everyone, but it sure did for me. Does calcium make your pain worse? If so, you might have a magnesium deficiency caused by a vitamin D deficiency. Calcium and magnesium use the same receptor sites, and with many foods being fortified with calcium today, magnesium deficiency is becoming more common. Use a form that is easily absorbed. I hope this helps someone.

  1041. I just started my Aunt on USANA vitamins 🙂 she has noticed a HUGE difference 🙂 if anyone is interested in me emailing u any info. I would be happy too 🙂
    [email protected]

  1042. I agree with the one who commented on this “new cure” (Trish on Aug 7,2013) about solving the mystery of fibromyalgia and saying due to skin of certain nerve fibers in hands. Ask, can it be repeated, does it prove their hypothesis or just show a correlation, were there controls set in place for the study–i.e. possibility other influencing factors and interpretations. I do believe it’s a nerve related condition.. I too, like the one who commented on certain vitamin treatments (“Pingback” on Aug 3,2013) have had helpful success using Vit.D3 (2000 iu) and B-complex vitamins. In addition, I have been using those newer gummy vitamins because I think my system absorbs them faster since you chew 1st then swallow.(Anything sub-lingual, under the tongue gets absorbed by the system faster). And of course, water,water,water—–
    but not tap water. My theory is that the chlorine or whatever substance (chemical) they use to kill bacteria in the water, is in turn hard on anyone with a health condition. I think it goes straight to the muscle tissue and plays royal havoc, robbing good nutrients, etc. Whenever I flush my system with bottled water (preferring spring water), I get relief from pain. Consider the Brita pitcher if budget and funds are low—-buying bottled water can add up. Stretching specific muscles used throughout the day also makes a difference in my level of pain the next day. Just recently I decided to try melatonin at night for rest instead of a full muscle relaxor so as to not be dopey on the following day. I think it is helping——but no controlled study, could be placebo effect. Lastly, what most already know, try to cut out caffeine and heavy sugar loads, which both also play havoc on muscles. I will agree with those who acknowledged that there is a wide range of types of symptoms with fibromyalgia and each person’s body unique in what it responds to. I never signed up for a site because I am curbing my budget (funds low) but check out http://www.fibromyalgianetwork.com, The fee might be nominal. There is always hope because we have a mighty Creator of this complex universe. God Bless.

    1. I agree the with TK his treatment is the closest to what I practise I also try to use fresh unprocessed food my symptoms are less severe than most other sufferers, I do have severe fatique at times I walk everyday and on my good days I cycle, on my initial diagnoses 15 years ago I was told by the immunologist to take 5mg of Zoloft I have tried to wean myself off this a few times without success it seems that the seretonin in the antidepressant takes the edge off my symptoms I also have an underactive thyroid treated with Thyrozine. We are very complex and have only touched the fringes of knowledge God promised a permanent cure in the near future.

  1043. I think Fibromyalgia maybe from what you are eating and its eating you It could be controlled by diet maybe not ,??? Just a thought …..

  1044. For years I had been going to doctors with this pain and that pain……until t fatigue and pai ot so bad and ended up on dissabity for couple of years, eveyone thinkng it was all psychomatic, this is real good news.

  1045. I wonder if they took samples from other parts of the body of fibro patients, if it’d show the same results that they found in the hands. I have always felt that there was something wrong w/ my blood flow – like there was too much, too fast? idk if I can explain it. I am glad that they are at least trying to find answers. Praying for a cure.

  1046. Personally, I would like to read the study that lead to this “discovery” and may possibly lead to quacky “cures”. As a scientist and doctor of psychology, as well as a sufferer of FM myself, and done a lot of research, I can say that there may be a correlation between the whole hand idea and FM sufferers, but I do not believe this is the source of the condition. SHOW ME THE STUDY! Is it valid, is it repeatable, does it PROVE your hypothesis or merely show a correlation. If it is just a correlation then all kinds of things can be correlated. I have worked with several neurologists and FM specialists about my FM and have tried a myriad of “cures” and symptom relievers. What I believe is that everyone experiences FM differently and has other co-morbid conditions going on. But through doing my own informal study I have found a common element is the inflammatory process. Whatever the cause of a person’s inflammation, it seems to be more highly correlated with FM than this “hand” correlation. And, while everyone responds differently to different treatments, I am finding that a good SSRI at the right dose, and sometimes in combination with other SSRIs is the most helpful because the SSRI keeps your serotonin levels up where they need to be to relieve the pain. However, having said that, it is best for the FM sufferer and his/her doctor (yes, men get it too) to find the right treatment. One day, hopefully, science will come across the right CAUSE, but for now, this article has more holes in it than Swiss cheese. It’s not a well written document and offers no proof. Beware of people who say they KNOW the cause for FM and have a definitive cure. Until then, to my fellow FM sufferers, I hope you find what works for you! God Bless you in your journey.

    1. “What I believe is that everyone experiences FM differently and has other co-morbid conditions going on. But through doing my own informal study I have found a common element is the inflammatory process.”

      Definitely! My personal opinion, is that “fibromyalgia” is several different diseases/conditions, all being lumped together, because of a set of common signs/symptoms. Like, inflammation, fatigue, non-specific pain, etc.

      I do get some relief if I take ibuprofen (Motrin), but not with acetaminophen (Tylenol). SSRIs (Prozac, Zoloft) don’t seem to help either, and caused other symptoms to get worse. After my last check-up, I got a call from my dr’s office telling me to stop taking the Motrin– the lab tests showed my kidneys were being affected (renal impairment).

      1. Absolutely.. As myself a multiple sclerosis sufferer, i won’t bang on about that one.
        I Truely know in my heart that this is a co existing problem & that it showed it’s ugly face in time of extreme stress & 6yrs after a kidney operation. 6yrs later onset of Multiple Sclerosis. Point being
        1; It’s an in_between disease in every shape
        2; It goes hand in hand with other health problems

        It’s also a memory bank of pain due to past or present trauma of the body possibly the nervous system even though FM pain is outside of the nervous system.
        I have never came across anyone who has Fibromyalgia that has never had some kind of trauma to the body or who hasn’t got a pre existing condition.

        I like to call Fibromyalgia an invisible parasite that feeds on other diseases.
        And not always a monster
        On the upside it can bloody save one’s life & serves as one pain in the backside but a good friend in giving a set of instructions & orders we too must not take forgranted..

    2. could you please contact me on facebook Sylvia Simpson Willcox as I have some interesting information that has helped other Fibro. sufferers. Thanks!

      1. I am interested in anything new about Fibermyalgia as I suffer frm it, i can barely cope with the exhaustion & pain.

  1047. Finally but I had a feeling it was not the nerves. I have a pool and my daughter and husband think I am crazy when I need the pool to be at least 85 degrees before I can go in because the cold hurt my skin. It wasn’t nerves it was my actual skin that hurt and they just kept thinking mom is crazy. Just like when I had sharp pain in my left breast for a year I kept telling my doctor something is wrong. He kept saying you need to lose weight and exercise. I had my mammo and bam it was a tumor hiding behind a cyst I had and the tumor had grown larger then the cyst. It was then they discovered the tumor. Doctors need to understand that a woman knows her body better then they do so they need to listen and listening is hearing with a purpose to understand. Get it doctors.

  1048. I am a 70 years old woman with a lot of strange deseases in my past. I was in my twenties when I understood that I can not rely on doctors only on my own research when you have severe symptoms but all the tests are normal. In such cases the doctors will not help and there is a danger that things get worse. So far I could solve all my problems by myself by doing diligent search and research. Now with the internet at our disposal it is much-much easier! One of my recent problems was a group of symptoms (mainly very strong pain in different muscles and joints) which did not resemble to any rheumatic deseases whose descriptions I could find. I am a Hungarian and in my country this FM is almost unknown as a diagnose. After some search on English websites I found this Fibromyalgia which seemed to agree with my complains. After further searching I found a therapy whose name is trigger point therapy. I ordered the Trigger Point Therapy Workbook (your self treatment guide for pain relief) and indeed I found a lot of very painfull trigger points always near to the actual pain. The therapy is very simple: one has to press the most sensitive points up to the pain tolerance. Later I realized that there is no need to seek the so called trigger points, it is enough to find the most sensitive tender points. It should terribly hurt when you press them. Press-release each such point 8-10 times. It is advisable to use something hard to press. In case of hip pain these points are maybe on the buttock muscles. You can lay on a tennis ball to be able to press those places. But you can search yourself. Believe me it helps. I could stop the worsening of this deasease. If a pain emerges somewhere (which became very rare) I enmediatally apply the pressing and in 2 minutes the pain vanishes. Search and try this therapy. There is no risk and it is free!

  1049. I also have a long sordid story of fibro for about thirty years (cant believe I’m writing that number). Not a day or moment off from pain. I do not have the energy to write a lot about it right now…but need to get the word out too…I have finally figured out in the past several years that a big chunk of the worst of it came from an undiagnosed thyroid problem and then the thyroid not being treated properly (or taken too seriously either). PLease look up M. shomon website for info. Ignore all the ads she has now on site… the info is good!!! Many people especially women are told they are “normal” if their thyroid levels are somewhere in the middle of normal range- but in actuality- like myself it is not sufficient. Being prescribed T3 saved my life… and now being kept at tsh under 1 seems to be best. Also after all the years of every type of medical doctor and alternative treatments no one ever thought to look at Vit D. Low and behold I was below scale ( my husband too). There is a new book out recommending much higher amounts then the fda recommendations….you don’t want to overdose either…but I needed 50,000 units a week to bearly put my numbers ion normal range! All I can say is that it IS helping the energy going to the muscles….I can stand longer…and even can complete making a meal (on good day) without sitting every two minutes. I have had very painful leg cramps since I am a kid after a few weeks/a month on the Vit D they have virtually disappeared- get a few threats here and there but I am SURE its the D helping. (At my worst stage b vitamins especially b12 shots were also helpful). All I want to emphasize is that you don’t want to miss other factors contributing or worsening the fibromyalgia symptoms and I know there are many patients who are really thyroid patients diagnosed with fibro…I’ve seen them.
    Obviously everyone’s case is different- but all should check out these factors if they have been missed. I am no longer bedridden and housebound as I was for about five years…but I still struggle through pain and getting through a day like you all. I have not had kids because of this though I really wanted to be a mom. I no longer have my science career (took about ten years to mentally accept that)- I battled long and hard for years to stay working but I finally got beaten. However, I know how bad it can be and was, and I now have a life even if limited and in pain…I am so happy to not be totally bedridden and I finally accepted i need to use tools- like seated walker and motorized scooter. But with the new revelation of the vit d I am hoping to regain back more…there seems to be some glimmer of light ahead of more progress I hope. And it amazes me to finally see them doing some serious research on fibro- and seeing commercials -hey, they are finally figuring out it is REAL!
    GOOD LUCK TO YOU ALL- be gentle with yourselves and hang in there (easy to say hard to do I know)!!! and please check your thyroids and Vit d levels— PLEASE!

  1050. It is difficult when medics are sceptical about fibro. I will not repeat comments that have already been made The head physio in our area has the affliction. Whilst I feel for her, she knows it is real and shares positive advice on management. My children are grown up so I only have to look after me, and try to manage so I have a couple of easy days before I am going to a function. Does not always work, but worth a try. Since I have been prescribed pregabalin pain is a little easier. Simple way of explaining it is that it does not stop pain, but stops the nerve receptacles in the brain from transmitting the pain. No doubt someone will correct me but that is my explanation. I find it is a case of doing what I can, when I can. Some days pain in hand so bad I cannot even read but I so feel for the person who prays to die- I would pray for someone understanding to come into my life if I were her. Life is still good. I could not hold my youngest Grandchild unsupervised in case I dropped him, but he has grown into a delightful young boy, and I am grateful for our lovely relationship. I pray that the other lady’s life quality will improve.

  1051. As a sufferer of Multiple Sclerosis and Fibromyalgia I totally understand the frustrations of pain and the worry of trying to get to the bottom of each symptom. Doctors before and after diagnosis are not of much help in my opinion. However in view of this awful mysterious condition ‘Holistic’ when all else fails is the only way to deal with symptomatic systems of the body. Let’s not forget the mind which is the Control Panel to the body which doctors are not trained in doing.
    As a person with a double diagnosis, panic attacks affect me and also ravish my husbands body (who looks after me) as I have to say no matter what the problem is no doc or pill will not help resolve the issues at the time of having these awful problems.
    Positive people with understanding the unknown will help with no side effects!
    I may be off key in topic but I have an open mind & why I post this is to try or hope make a positive difference even when we’re feeling like $#it all of the time and no one else gets it!
    Bless all.
    Alexi

  1052. I too understand,

    I was first diagnosed with MS 20 yrs ago .I complained of pain amongst other things, at the time the Neurologist said MS does not cause pain. Then the diagnosis was FB as well as MS i have been on all kind of meds over the yrs and even took myself off them all for some time. I,m still not sure whIch are MS symptoms or FB symptoms but i live every day as to what my body can handle . I garden, do house work Yes i do get very tired and am in pain all the time weather i am active or not , so my motto is . I might as well earn the pain and fatigue cause its their any way .

    Because people cant see any thing like a broken arm ect they dont under stand even my husband of 50 yrs so i shut my mouth and get on with it

  1053. This blog/study/resource is full of sh!t. I have sufferd with fibromyalgia for years, probably my entire life. It started worsening after I suffered a major infection of my female organs, which started from my appendix leaking (what the ob-gyn/surgeon stated) and being in and out of the hospital for a year and a half. It worsened even more after the birth of my son back in 1992. And, even more so after people and doctors kept telling me it was all in my head, it was fantom pains (all in my head), and I was just lazy!!!!!!!!!!! At one time, I could not function daily, and was diagnosed with PTSD! I have come a very long ways in the last ten years, but I still have days I cannot function! Literally, mentally and physically! It has nothing to do with my hands!

    1. The fibers they found in the hands are also in the entire body. Not sure why this is so confusing to people.

  1054. I am the same i have what i call jerky legs, but so many other symptoms pain like you have never felt before all day every day, memory loss also i forget words i can be in a conversation and i keep forgetting the word i want to use or i stop then its all gone the whole conversation i don’t remember what i was going to say, the feeling that my hands and feet are swollen and pins and needles in them, the list goes on and i drink water, i am on morphine patches, plus lots of other pills but nothing works it may work for a little while but nothing ever takes the pain away completely, I always thought i had a high pain threshold but i struggle with the pain everyday, and the depression i go to bed praying to that i don’t wake up as i can’t take the pain any more, I have IBS and Bladder problems also i have hot and cold sensitivity, I am either freezing cold or sweating so bad, i have a racing heart that feels like its gonna go so fast it will explode, fatigue where i feel like i haven’t slept for weeks, I have had dry nose for about a year now which is horrible as it is so dry it just cracks inside and gets really sore and bleeds i use cream to try to keep it moist, Dizziness and Chest pain which was scary as i lost my dad due to heart disease and 8 members of his family also died of the same thing so i thought it was a heart attack but it is apparently another symptom of fibromyalgia i hate my life as it is just constant pain all the time

  1055. I haven’t been diagnosed yet, but a doctor thinks I could have fibro. My muscles swell and feel like they are going to explode, I have pins and needles in my lower leg. On a bad day I struggle to walk or use my arms. My immune system is stuffed up with high count of white cells. With all this I still go to work in pain standing all day to keep up with the bills. Just because I don’t show the pain and keep working because I have to doesn’t mean there is nothing wrong with me. The worst is not knowing what it officially is, so people think it is all in my head also. Well it ain’t its real.

  1056. Maybe that A-Hole Rheumatologist that I saw 15 years ago will now understand that Fibromyalgia IS real! He wouldn’t give me a referral to a Chiropractor because he didn’t believe it was a real disease!

  1057. To me it looks like an auto-immune disease.the attack on Na,K,-channels is very prevalent in most cases.

  1058. according to research a vegan-greens based diet significantly reduces fibro symptoms. check out nutritionfacts.org a non-for profit research site and punch in fibromyalgia.

  1059. I’m a single mother of 3 girls, and have been dissabled because of Fibro since i was 20, im 38 now, my mom and i have talked about it and we think that i started having signs of having fibro since i was about 12,, I have so wished for some ppl to be able to walk in my shoes for 5 min, specialy the doctors that told me it was all in my head, but would perscribe narcotic pain meds for the pain, that is so called in my head. I also feel alot of guilt for having my girls, i know it offects women more then men, and i know that fibro runs in families, my mom and my grandma were both diagnosed within a week of my own diagnosis, in 3 different states. No one can tell me it does not run in families, we think also that my great grandmother had it as well. My mom was able to work untill about 6 or 7 years ago before she became dissabled and could no longer work. I know that i would have never had children had i known that i had it. I would not wish my worst enemy to have what i have. and id wish no one to walk more then 5 min in my shoes, maybe 2 min when im at my worst. Ive read alot of the fibro books, and tried alot of the different cures, or things that ppl thought would help, including mind over matter, ptaying, meditation, i can’t spell it but the guefanesson treatment, Narcotic pain meds, i was on tylenol 3 with codine for several years, then found out that i have a non alcoholic fatty liver and have been on morphine 30 mg long acting 2 times a day and 15 mg short acting for when the 30 mg is not enough. My house has gotten to big for me to clean, and the yard that took me 2 hours to mowe a few years ago, would probably take 2 weeks for me to do now, i have to sit down every 5 min, or less, cus my hips hurt so bad. My kids don’t understand even though they are now in thier teens, well 15, 18 and 20, they don’t understand my need for sleep, or rest, and why im not up to playing basket ball with them, or being more active with my kids, I hate that more then the pain, stress and fatigue i have 24/7. I would be a ginni pig if one was needed and aproched me with the opertunity to try and help my fellow fibro sufferers.

  1060. I have a dear friend who suffered with fibro for 19 years. There is an answer. She has no pain now and is very active. I myself suffered from degenerative disc, spinal stenosis with exacerbation from nerve root involvement. I didn’t think there was any hope to ever be out of pain. But I am!! And all we have done is drink water.

    1. PLEASE Patricia!!! Don’t make fun of sick peoble 🙁
      I drink a lot of Water but I still have pain and fatigue.
      It’s comments like yours that make people believe it’s just imagination.
      Sorry…..It just made me angry.

      1. I hate when people says stuff about people with fibro because they dont live in our shoes 24/7 thank the good lord my hubby and kids are up to date about fibro and they know when i am down in bed they are alway helpful and check on me i have had it the last 5 years but i am pretty sure i have had it longer but finely my arthitis doctor is the ine that find out i had it

        1. I was diagnosed about 5 years ago and my family is TIRED of hearing about it. I try not to talk about the pain any longer or how the muscle cramps are happening more often. Try to hide the overbearing fatigue. I have not worked in 5 years either and that does not help my self-esteem. I used to be a very outgoing person, but I honestly don’t have the energy to be anymore. I also suffer with depression, social anxiety (I live in small community which does not help when everyone thought I was just losing my mind) and IBS. All of which gets worse with a bad flare up.
          Count your blessings Debra that your family understands. I had printed some articles out for my husband when first diagnosed but since then he will not read any of it and says if there is anything he really needs to know I can just tell him, he doesn’t need to read it.

          1. I had thought I had very good and friendly relationship with my husband, until CFS appeared in my life. My husband would listen to me, understand my problems, but all his attitude could be described as: I hope you’ll be better, let me know when it happens. It makes me feel I am alone in this and it is bitterly disappointing.

      2. I’m sorry but she said nothing that indicates she’s making fun of anyone.. And chances are there ARE people out there who this has worked for. But the simple fact remains, we are all very different when it comes to they way we react to medications, diets and yes, even our thoughts. The placebo affect is also a very real thing and by that I mean there are people out there with strong enough minds to cure nearly any disease.

        That being said it is still a disease and the vast majority of people don’t know how to do this so we need to work on a cure. And no Pia, you made yourself angry by dwelling on a comment that could have easily been taken the wrong way in the first place. You’re on the internet dear, it’s impossible to read the hearts and souls of others and you can’t type your tone of voice into a sentence. In fact it is very possible she was talking about fasting as that has been known to cure or relieve many diseases. But again, this works with SOME people NOT all.. Regardless, it would have been a lot better to ask Patricia to elaborate on what she meant. Some of you talk about being belittled by those who think it isn’t a real disease?.. I honestly don’t think belittling someone else who thinks there could be a simple cure is much better.

    2. I drink plenty of water every day. I exercise as much as my body will let me. I cook I clean etc on a dail basis. I worked my whole life up until 99 when I was diagnosed with FM and have had it my whole life. It’s not easy to see someone post something like this because your not me and Im not you. I have several other health problems as well and I get no medication any longer. Its very hard when you have a doctor that tells you your not sick and you just need to rest and the last thing I can do is rest. When I do lay down and try to sleep, I fall asleep fast but it lasts maybe an hour at the longest. Then I am up because my legs wont rest. I have been on tons of medication in the past, have had procedures done to my back, had a hysterectomy among other things. Nothing has helped ease my pain. I pretend nothing is bothering me so that everyone will leave me alone in my life because when I am having a bad day, they think that it’s all in my head. Or im just lazy. It’s sad. If you have been in pain and suffered then you know what the pain is about and how bad it can be for those of us who still suffer on a daily basis. Im happy that you get to enjoy life just by drinking water. Awesome miracle cure for you. WTG! but for others it’s not that simple. Im glad you are ok but for many of us we are not. And remember I dont take medications, so my pain is legit. Just wish there was something I could do to help with my pain. 🙁

      1. I feel the same as you…. I do daily chores and activities required when caring for two small children…. And until recently, I did those things while being in daily pain….. For the past two months, since finding an AMAZING product, I no longer have all that pain, I actually get quality sleep at night and I have more energy than ever before…. I would love to share this product with anyone who is interested….. You can email me at [email protected] and I will explain more….

  1061. This article claims “researchers” have found the cause but refers to no study, no research, no peer-reviewed published papers, nor any reputable university or lab doing this research, and only refers to one Dr by name, and does not specify that Dr. Rice was at all involved in the stated research. Until there is confirmed published research that has been at all peer-reviewed, I would take this information with a large grain of salt.

    1. Here’s the citation, courtesy of PubMed.

      Albrecht PJ, Hou Q, Argoff CE, Storey JR, Wymer JP, Rice FL., “Excessive Peptidergic Sensory Innervation of Cutaneous Arteriole-Venule Shunts (AVS) in the Palmar Glabrous Skin of Fibromyalgia Patients: Implications for Widespread Deep Tissue Pain and Fatigue,” Pain Med. 2013 Jun;14(6):895-915. doi: 10.1111/pme.12139. Epub 2013 May 20.

      From the abstract:
      CONCLUSIONS:
      The excessive sensory innervation to the glabrous skin AVS is a likely source of severe pain and tenderness in the hands of FM patients. Importantly, glabrous AVS regulate blood flow to the skin in humans for thermoregulation and to other tissues such as skeletal muscle during periods of increased metabolic demand. Therefore, blood flow dysregulation as a result of excessive innervation to AVS would likely contribute to the widespread deep pain and fatigue of FM. SNRI compounds may provide partial therapeutic benefit by enhancing the impact of sympathetically mediated inhibitory modulation of the excess sensory innervation.

      The article overstates their findings rather significantly.

  1062. this is all a load of rubbish. fibromyalgia is a tension myoneural condition, just like back pain and most commom bowel illnesses. it is caused by repressed emotion in the brain. if you suffer from any of these conditions please research dr john sarno. he has the best track record of healing people from chronic pain disorders. please, just google his name, listen to howard stern talk about him and your life will be changed forever, just like mine was (and thousands of overs).

  1063. I will believe it when they come up with a CURE. Not fibro is this, fibro is that. We’ve heard enough of that from “researchers” who work for drug companies who are trying to find a drug so they can mask our symptoms, not cure us, and make millions. I’m a bit skeptical as you can tell. Most of us with this disease become that way after being not treated by the “Doctors” we go to. I do have a wonderful dr now who is treating me with charcoal capsules and it helps, so what does that have to do with blood vessels?

    1. In Previous comments, Gemma Cliff and myself have explained how a balanced, natural diet (with special attention to raising the Ph into alkaline, above 7.0), IS the CURE for ALL disease, including fibro.
      There are two categories for the causes of all disease:
      1) Nutritional imbalance, and 2) Toxins…
      Too much or too little of certain essential nutrients in your diet causes disease.
      All the toxins from processed, preserved, and genetically modified foods (GMOs) cause disease, as do the Aluminum in chemtrails and many skin or other products and cooking utensils, Fluoride in Tap water, mercury in vaccinations, excrement from parasites/bacterias/viruses, and so on. Also, stress produces toxins, and certain forms of radiation damages molecules, producing toxins (UV and higher frequency ‘ionizing’ light/radiation, chaotic radiation from the power grid, etc.).

      THE CURE for all disease therefore is to eat ONLY naturally existing foods, in the proper balance, and to use these natural means to detoxify your body chemistry, while balancing you nutrition and raising you Ph above 7.0.

      It is that easy!
      NOTE: GMOs are one of those ‘abominations’ the Bible speaks of, and if you want to learn how ALL CAPS names are the tool used to deceive and sell us all as property as the Bible also predicted, go to freeornottobe.org for this and much more, or message me:
      harleyborgais at gmail and facebook.

      You can also see at dnb.com how all the courts and police are businesses, and I can prove that they have no lawful authority, and you can sue for everything they have ever done to you!

      If you want to contribute to this effort ‘to improve the quality of life on Earth’, then there is a PayPal donation button on freeornottobe.org.
      Thank you, and you’re welcome.

      1. Chemtrails are fiction, not fact, there hasn’t been mercury in vaccines in at least a decade (not to mention that the amount in question was inconsequential), the fluoride in tap water is what keeps you from having a mouth full of dental caries (cavities). Your liver and kidneys will detoxify your body with no problems unless you have other diseases. Further, the courts and police most certainly do have lawful authority, though you can certainly sue if you believe you have been wrongfully arrested.

        In short you, sir, are a quack and charlatan for pushing the belief system you do.

        1. “…, there hasn’t been mercury in vaccines in at least a decade”…

          I’m afraid you are wrong about that– there STILL is mercury in vaccines today. Including the “flu” vaccine being pushed. Every multi-dose bottle of any vaccine contains a preservative, thimasol, which is a mercury compound.

          As far as your body detoxifying “with no problem”– that kinda depends on how well your body is working before getting hit with more toxins. So, even those “inconsequential” amounts of Hg and F can seriously harm some people.

  1064. I once mentioned to a dr. that I’d been diagnosed with fibromyalgia and his comment was, “That’s not a real disease because it only occurs in women.” Good grief!

    1. I get the response of “oh, the diagnosis they give when they can’t figure out what’s wrong with you?”.

  1065. I am a 34yr old widowed mom and was given diagnosis of FB years ago. Everytime I am rushed to the local ER I have left amazed @ how ignorant local doctors achre, with some going as far as advising me to see a mental health professional! Really…that doesn’t encourage suffers to seek help,anymore I accept that my life is never gonna be the same and I suffer in agony as do my kids when the can hear me screaming fr the intensity from pain! I have been judged to be lazy a liar. And my favorite as nothing more then a junkie looking for my next fix:( Not everyone is the samethere isn’t always a simple one treatment fixes all when you suffer from FB as with other diseases! Glad someone has found some clues and maybe they can find a cure in my lifetime!

    1. Cindy, have you tried Tramadol? I experienced similar treatment as you did, as I too was rushed to ER. I found my own pain pill, (left over from previous illness) .

  1066. As with many other chronic illnesses, fibro cannot be cured at this time, only controlled. I would try any and all suggestions above to discover things that work for yur body.

  1067. I am a 66 year old woman, and I’ve been suffering with fibromyalgia since 1963. Along with that I also have spinal stenosis and osteoarthritis. I take Ibuprofen 600 mg. 3 X a day, but all I can take for pain is Tylenol, 2 tablets 3X a day. I am not able to take many pain medications due to allergic reactions, and other arthritis meds cause similar problems, as well. Is there a medicine for fibromyalgia that doesn’t have too many side-effects?

    1. Hi Elaine,
      I have MS and severe arthritis in my spine. I also have sciatic nerve damage in both hips, debilitating migraines since the age of 12, and have anxiety/depression disorder and bipolar disorder. Like you, I have had trouble with most meds either due to allergic reactions or bad side effects. Well, about 2 months ago a very dear friend of mine introduced me to a product that has helped tremendously with ALL of the pain and the psychological disorders. I would love to tell you more about it. If you are interested, please feel free to email me at [email protected]. What I have been taking has literally given me my life back!! It’s 100% natural with no bad side effects like expensive medications can have. This could possibly the answer you have been looking for.

    2. Elaine. I can’t really suggest a medication but I use over the counter pain patches called Salonpas. There are about 40 in a box and they are not expensive. I also cut them in half 🙂 They do take the edge off of the really sharp pains on the tender points. The most important thing is never to lay on a heating pad with the patch on. If you need a heating pad take the patch off and thoroughly wash the are. I hope that can help you at least a little. I am not sure where you are but I find them in United States at drugstores like Walgreens and stores like Walmart.

      1. It’s not surprising that Salonpas might help, as they contain methyl salicylate, a compound related to aspirin. Instead of spending all that money on these patches, you could try aspercreme or just take aspirin. Several versions of them also contain menthol and/or camphor, while another contains capsaicin. The first therefore have a cooling component, while the latter are warming. Again, both effects are achievable by readily available creams in tubes. If you want the patches, they’re available online through Amazon and CVS as well as Walgreens and Walmart.

  1068. hi! I was diagnoised with fibro after shoulder surgery in late 2008. I have a wonderful Rhemotologist who works with me closely. even though I am on meds for the fibro I live in pain daily. I went from a very active, productive person to a person who struggles with pain on a regular basis. I do experience pain in the angle, and hands, shoulder etc. I do have visible signs of purple veins in my hand, not sure if that’s what there referring to when they say nerve fibers. rain, humid weather along with stress, and lack of sleep definity effect my fibro. I am looking for a fibro support group in the Cincinnati area if any one knows of one. I pray that one day soon they will find a cure. prayers are with everyone that suffers from this horrible condition.

    1. This is EXACTLY what gives me flare ups: humidity, rainy weather, stress and lack of sleep/overdoing it! I believe this article as I have noticed a very slight swelling in the veins of my hands before when I’ve had flare ups, along with a bit of swelling in the cephalic vein in my arm just up from the wrist. (I looked up the name of the vein…) A lot of times when I have pain, this vein is slightly swollen. It is the vein that runs along the top left side of my arm.

  1069. For me this is not really surprizing as many good Natropaths have stipulated including the one who told me during my back therapy after a bruised coxyx bone, that I carried way to much lactic acid in the spinal area. It gets into the muscles..sound familiar? Yes that’s where Fibro hits us, its all muscular. The trick is to find means to thin the blood without using warfin, or other anti coagulants..natural is the wayto go!! Boswellia or as it was known, Frankincense does the job too, though if your already on Thinners, be careful and ask treating GP. Ginger, excellent for keeping the blood moving, magnetic products tho expensive not only internally help the body to heal but keep circulation going. Till the wonder drug that everyone is waiting for comes available, try looking into natural therapies, not Quackery, but down to earth herbal remedies that have been around for 1000s yrs. This is marvellous that this information has been released, tho I suspect that it has come at a time when Benzodiazapines and SSRI’s are getting such a bum rap, that Govs have to curtail the doling out, hence the sudden revelations, that those in the know, have been trying to tell the populous for decades. Many made money on nonsense, true, many were and are honest..but no funding for them as it dosent go in the back pockets of the AMA’s et al.. Connective tissue, muscle, feeds on certain elements to keep in good health, deficiencies cause the body to fail, and muck up..These can occur in early childhood, as we don’t get half of the RDA of the precious elements in our bodies daily, our food is so denaturised its criminal. Half the reason for 99.9 percent of illness in the world, but death is still a profit, and Im a terrible skeptic. Don’t wait for the expensive unnatural concoction of the medico’s..search for yourselves, coz like everything, only the rich will be able to afford it!! Im just happy that I can thumb my nose now at anyone who thinks Im a hypochondriac or a nutjob!! That much am eternally thankful for, society sucks that way, if you cant see it, or understand it, a person is .Tweet tweet tweet..Cricles around the ear, rolling eyes…

  1070. I work f/t and have fibro but am fortunate in that I work from home. Don’t know if I could handle a commute and office. Have had fibro for about 9, 10 years–car accident was the cause. All my energy goes into work. All I want to do after work is sleep. So hard on my family. I struggle to deal with my teen daughters active schedule.

    1. I have fibro, ADHD, Bipolar disorder, Endometriosis, and PCOS. I had to quit my corporate career because the brain fog and fatigue alone were too much. I hope this leads to a better quality of life for you, and all of us.

  1071. I have suffered fibro for far too long. The diagnosis took a long time coming. I have tried many different drugs & treatments to no avail. It’s hard work trying to explain to anyone other than to a fellow sufferer how you feel. Many believe it’s made up or an excuse but when coupled with other illnesses it’s hard to work or go about daily routines. It is time it was recognised as an illness & a disability. I wasn’t born this way so find it very difficult mentally to accept how my life has had to change since getting this. A consultant told me just to accept I am disabled & get on with it. This is very difficult if you’ve had an able body previously. I welcome anything to try to make life less painful & a possible cure as that will be one less illness to contend with. My sanity may be restored that its no longer considered to be all in your head. I don’t wish fibro on anyone to understand what its like to suffer from it just empathy from non sufferers.

  1072. I have leaved with Fibro since 1998, been there, done that, taken all kind of meds, pain killers, anti depression, etc. nothing really helps. I was diagnosed when I reseached the internet and found information on fibro then brought to my doctor, his comment and I quote “You know I was thinking that maybe fibro is what you have” and by the way this was doctor number 5, including reumatologist & neurologist. So now I have high blood pressure, high blood sugar and the pain is still there. I do not take any pain pills and try to walk 30 minutes every day to keep up.
    Do not let go, keep moving, keep busy, is my only way of dealing with it.
    Until they find a cure. God Bless

  1073. HI’ve had fibromyalgia for 10 years and none of my doctors have believed me. Even got accused of being an addict and drug seeking. Taken lots of psyche meds. Cymbalta helps the most. Current fiance thinks I’m exaggerating. Quit drinking for 6 years, but don’t know why now. I force myself to work full time. I pray it was me who would have gotten Cancer insteaodof my ex and pray to God to let me die. I’m now 41. My mom was diagnosed with fibro by UCLA in the 1980’s, but she had silicone implants removed in case they were the cause. My fiance wants a baby but I’m scared to death I may get worseif I get pregnant. I don’t want to be selfish and kill myself. Maybe some day something will at least reduceour physical/mental suffering.

    1. Before getting pregnant in 1979 I went to the Dr. to get some pre pregnancy advice. He told me pregnancy wouldbe OK. The extra hormones and steroids helped.The problem was that as soon as I stopped breastfeeding I got hit with arthritis. That is before I was diagnosed with fibro. My experience is that the pregnancy will be good. Arthritis flared after baby born.Being a mother to newborn was a challenge. I am happy to have had that baby. She is a wonder.

  1074. It has been very hard living with Fibromyalgia I miss a lot of work and my employers do not seem to understand people at work make dumb comments like we work on Mondays and Tuesdays here. I have struggled to keep my job but now everything is really bad so now I’m trying to get on SSI and they’re taking me through the wringer. That’s no surprise. the worst part is when you go to the doctor and he make a dumb suggestion like get more exercise like you could. With fibromyalgia you’re very achey and fatigue if you could do more exercise you would but more movement makes you more achey you could be in bed or down for days and your already sluggish on a daily basis so being down for days is not a good feeling a day with movement is awesome. It hurts when people think you are lazy or faking I used to have a lot of energy and ran around all the time to see my family and stayed out late but now I barely even the house i used to be a good house keeper but now I look at a mess and I’m too fatigue to even get up to clean it. on top of that the meds that the doctor gives me makes me even more sleepy and sluggish. So as you can see my energetic life has gone down the tubes so I greatly look forward to the day that fibromyalgia is cured.

  1075. I have known a lot of people who had the onset of FIbromyalgia due to a trauma of one kind or another (Physical or emotional). That doesn’t explain what the blood vessels in the hand have to do with it lol. But if they start with blood vessels and go from there and maybe find a cause and/or cure, then I’m all for them researching more!

    1. @ Luisa,
      Yes I have found out the same thing. People with FB had a very tough time before they got FB and….often there is Rheumatoïd arthritis in the familiy tree.

  1076. A note to Peggy A you may have polymyalgia acts like fibromyalgia but responses to meds diff.

  1077. It is my understanding that fibromyalgia can be caused by a couple of different things- on thing being head trauma- it sounds like perhaps there is a link between the new evidence showing a genetic marker… And the way some individuals brains function after experiencing head trauma-…. For those who have not experienced head trauma, perhaps it is simply a brain chemistry issue that was just waiting to manifest- either way, we all have wound up paddling in the same painful boat.
    Keep Yourself Well & Present in Love, Light, & Gratitude..

    1. Cary, do you have any research links? I was born with a spontaneous subdural hematoma, and I have been curious about the long term effects. (35 now)

  1078. Lyrica does absolutely nothing to help the pain of fibromyalgia and it is not a fictitious disease. The FDA is bought by drug companies marketing drugs that do nothing to help fibromyalgia pain. Only pain meds help not lyrica or depression meds.

    1. For me the combination of CYMBALTA with the hormon DHEAS was a very good one!
      My life is so much better, more energy en less pain!!

    2. I was already taking cymbalta as an antidepressant when my symptoms began. *shrug*

  1079. Well during my research, I have linked this to mold. 9 years research ! started out as a woman’s disease, my theory is weman ..most generally do 90% of house hold cleaning. most cleaning bathrooms , around washers, and the in they tend to be spending more time in the home .directly cleaning up mold unprotected. now stating yes all homes have some kind of mold, but only certain mold make this happen causing this malfunction and 80% of weman and people in general , causing low blood pressure, leading to the collapse of nerv endings. meaning when you rob anybody part of blood and or lack of full potentialability, causes yr body to reach with wrong chemicals that inturn causes toxic overload. another side affect is hyper sensitivity.also side affect is restless leg syndrome,having dificalties sleeping ,or waking up between 2:00 and 3:00 middle of the night.sleeping better during daylight hours. stiff neck ,tender feet. blured vision.. and depending on your body dna , if you don’t have L/H Gene your body harbors the myotoxins that disrupt nuro transmiters that signal the brains blood pressure and directly involves the thyroid. then it starts fooling the bodys chemical imbalance ,in turn causes so many problems in the body. so much knowledge not enough time. find me Bill Anderson , the guy dying from toxic mold.

  1080. Fibromyalgia is a fictitious disease created by Pfizer to get their drug Lyrica on the market, claiming it treats a disease they actually made up. While people might be in pain, Fibromyalgia is code for a doctor not knowing what is wrong with a person and why they feel the way they do so they call it fibromyalgia, prescribe the phony drug which causes side effects which can be cured by another Pfizer drug. I have two members of my family with Fictitious disorder and they both now claim they have fibromyalgia. If someone you know claims to have it, convince them to stop using Lyrica….I guarantee they will get better……Pfizer is no more than a bunch of scammers taking advantage of hypochondriacs

    1. While some of your comments regarding Pfizer are true, the rest is just BS. Lyrica does help some, but not all patients and all drug companies are in it for the money.
      That being said the pain and problems are real, not fictitious. There are tons of people out there with fibromyalgia. Your claim is they are all hypochondriacs? That’s very short-sighted. Instead of criticizing your family member perhaps you should educate yourself and try to help and support them.

      1. I agree with Carrie. George Smith…do more research on Fibromyalgia and support your family members please.

        1. I’ve never taken Lyrica to cure my fictitious disease as you call it in order to get a cure drug Mr Uneducated Closed Minded Smith. I’d love to see you live just one week in my shoes. I bet I’d find you rolled up in the fetal position crying like a baby.

    2. If fibromyalgia was created by a drug company to promote their drugs, then how do you explain all the people that were diagnosed long before Lyrica and the other “approved” meds were even invented? I wouldn’t wish fibro on anyone but I wish people like you could have it for a week so you can see what we deal with. You have no clue. I love when people that know nothing about a subject decide to make themselves “experts” and tell the rest of us how screwed up we are. You have more serious issues than we do! Get a life!!!

    3. George YOU ARE SUCH A FOOL AND YOU SURE DO NOT KNOW WHAT THE HELL YOU ARE TALKING ABOUT! SO WHAT I AM SAYING IS LEAVE YOUR COMMENTS TO SOMETHING YOU KNOW SOMETHING ABOUT LIKE MAYBE STUPID PEOPLE!

    4. I cannot believe that any individual can possibly make such ignorant comments. I’ve done papers, and speeches based on information from Johns Hopkins as well as the Arthritis Foundation. How dare you call people that suffer from this disease hypochondriacs. There is a history of this disease going back as far as the 1800S. It used to be called fibrocitis. It is a form of arthritis that attacks the soft tissues. And, just like regular arthritis it is affected by weather changes. So, anyone with common sense should be able to figure that out. I do agree that drug companies want people to take meds that are bad for them to keep making money; however, lyrica was NOT created for Fibromyalgia, it is a anti-seizure medication that had an interesting side-effect that has helped a small amount of people. Get your facts straight. The only doctors that try to say it’s all in you head are the ones who choose not to do the work. I pitty your family members that have to put up with your uneducated opinions. I find it amazing that over 10 million people in the country alone, in your words, are all Hypochocondriacs. Seriously? People with Fibromyalgia are not depressed, crazy, or trying to get attention. You mister Smith are a heartless, selfish, ignorant individual. And, if you want to comment on a disease; then know what you are talking about. You Mr. Smith are a narsacistic know-it-all who knows absolutely nothing…

      1. Thank you for such a well written rebuttal, Barbara. I found myself so angry that the only response I had was nasty name-calling. You said what I could not to that pooypants.

  1081. the real question is: what causes the excessive and inflamed nerve fibers? I suspect stress plays a huge part, which affects the autonomic nervous system. Do biofeedback, neurofeedback, meditate daily, cut back on stressful activities, and learn to breathe more slowly and deeply.

  1082. Does anyone know of a published medical study related to these findings? I find it suspicious that this article doesn’t mention a study, and it doesn’t identify the researchers or organizations involved. Seems to me this is just irresponsible, manipulative, and cruel reporting. The title of the article says it all: exaggerated, unfounded, and designed to toy with the emotions of people who have suffered for years, even lifetimes, with a serious condition.

  1083. #1 I truly hope this could lead to a cure.
    #2 IF it does lead to a cure, what makes us think it will be allow into the world? The drug Companies would lose a lot of money if Fibromyalgia gets cured (just like cancer, they will do anything to stop the cure). They will make the truth look like hoax.
    #3 I believe there are cures out there, but the FDA or some people/companies/gov will prevent the cure(s) from getting out.
    #4 Go back and read #2 again.

  1084. They did not say it was all in the hands . They discovered in the hands the AV fiber’s true
    purpose which includes pain sensory. The fibers are all over
    your body. Who knows if they are correct but I hope
    so. BTW, the Mayo Clinic knows nothing about Fibro.
    My mom has had Fibro 50 years and I have had it 25.

  1085. I have fibro my daughter has it and my 8 year old grant daughter. I hope this is true for them at least I’ve had it all my life!!!

  1086. I have suffered with this for over 15 years…I really have a Hard time believing that its all in my Hands…Sorry but it sounds like B.S. science to me I.bet the Insurance companies will Love this news & the Medications that are available will soon Not be covered.

  1087. So you are saying that the. Body trauma to the upper ribs in my chest and the genes for RA have nothing to do with my FIBRO/CFS? Caused from a head on car colison? Then Mayo Clinic has given out wrong diagnosis! I have soreness in all the 18 tender spots bc of the body bruising. The fibro didn’t appear until 10 yrs later during menopause . I do have basil joint arthritis in my thumb probably from hand spearing sheep. I. Also have easy veins to find on my fingers and arm. I also have autonomic dysfunction of my 7 involuntary nerves —-all caused from the car accident. I have neuropathy so my feet hurt. PLEASE EXPLAIN HOW MY BLOOD VESSELS IN MY HAND CAUSE THIS???? So when will the muscles under my shoulders stop hurting. Using my hands and fingers does cause pain in my arms and chest. But not my hands. It will be interesting to see if you answer me! I am a text book case. Thank you! I had a head trauma too and that is the only time I am told something is caused by my head. For 20 yrs.I have had great drs and my treated my ailments. Have you interviewed a patient like me. When will my drs know about this new information about THE CAUSE OF FIBROMYALGIA ? Pls find a cure for my CFS! Thank you and I hope to hear from you!

    1. This is not the first time I have posted here:
      The cure or all disease is this easy:
      A NATURAL, balanced diet, of ONLY naturally existing foods, with special attention to Ph (Less acid, more alkaline foods, like sea foods, calcium, etc.), AND, special extracts, juices, and other NATURAL methods for detoxifying the body, and giving it what it needs.

      The cause of all disease is processed, preserved, and Gene modified foods, as well as chemtrails in the air (aluminum oxide, aluminum cooking utensils too), fluoride in the tap water, etc..

      “Healthy”, “Homeostasis”, and “In Natural State”, all mean the same thing. When you body is in its natural state, which can be done ONLY By natural means, it will be healthy, and “Cured” of ALL disease.

      Find more on my facebook notes and at freeornottobe.org:
      harleyborgais at gmail, facebook, and freeornottobe.org

      (I have proof of all this, and FAR, FAR more valuable info there too)

  1088. I Have found that if you use the following Candida diet, there is a strong chance that your fibromyalgia symptoms will disappear. Yeast overgrowth (caused by the use of antibiotics and birth control pills) is the precursor to many diseases such as fibromyalgia, leaky gut,
    diabetes and cancer. See: “The Body Ecology Diet” by Donna Gates.

  1089. Doctors said I had fibromyalgia back in the summer of 2000, but that was a misdiagnosis. I have LYME and based on the symptoms listed by all the comments, betting many of you have a tick borne illness as well. Demand to be checked using the iGeneX test only, as this is the most accurate testing lab available. Best wishes,

    1. “Demand to be checked using the iGeneX test only, as this is the most accurate testing lab available. ”

      Ha, ha. That’s funny…. Good luck with “demanding” a non-standard test if you have Kaiser coverage. Ha, ha, ha…. And, I was told by a private lab (when I tried to get some testing done on my own), that by law, they couldn’t do any testing without a dr’s order, and all test results had to be sent to the dr. (I’m in Calif.)

  1090. I have had Fibro for 14 years. I had a period of remission for about 3 years or so for some reason. After a major stress in my life, it kicked back up and I suffer almost daily. Omega 3 fatty acids have helped and calcium citrate with magnesium and vita D. Also a sleep aid to help get six to eight hours of sleep has saved my life. Mild exercise every day helps a lot! especially swimming and walking.

  1091. Be careful with Methadone as it is cardio toxic.I am on 480mg of Oxycontin and it does zero for pain.The side effects have given me cyclic vomiting.I wish it was true but highly doubt this story.

    1. I started on low dose naltrexone. .7 ml taken between 9 pm and midnight. It took two years for me to start on this because I was not sure. Finally I said I have nothing to loose and it works. Took about 2 months to kick in.

      1. There is a web site regarding low dose naltrexone. It does help people with MS Fibro and other auto immune diseases. Anyone else on this medication? I take many other medications for diabetes, thyroid, joint pain. I was taking narcotics off and on and they do not help as much as this. I have occasional episodes of random body pain but nothing like it was.

  1092. I sufffer with this horrible diease as well .I have been on every stupid Narocotic imaginable They Do NOT Work ..Only get You Totally Addicted that is all. Now My Dr has me on Methadone Imagine For the pain they say.. Another addictive Drug.and No Relief Pharmsuiticals making millions on us who suffer greatly… I;am so totally!Fed Up.. So Make This Cure happen …Will ya Please!!I I Have been on Vits. All food Vits Magnesium you name it..OMega Xl .Which did help the most Mainly Fish oil from New Zealand costing more every mth than a regular pay check today.. I believe much is to do with the crappy foods they shove in our faces today. Chemicals etc We were not created for that constant garbage in our bodies.No wonder people are so sick with this cancer and many other serious dieases We never had in yrs long past.. Time to Stop this Medical nightmare..And Get To go back to the natural simplicity of how life use to be.. We were not sick like this.. Eat Healthy Organic Food is the name they use for the Natural Good Ground Growing food Not pumped with toxic chemicals… But!! To purchase these organic foods one has to keep down two Jobs, just to keep food on the table that is considered healthy.. So Open your Eyes Governmental institutions as well as Medical & Pharmceutical companies.. Time to see that Greed will not be tolerated much longer.. Our Trutful one and only Great King of all Kings & The True!!Government of this world will then run it as it should have always been. ..Jesus Christ is coming back soon. So prepare to meet your maker in Great Wrath and Anger.. I hope then you will all have the ability be able to speak in truth when our Lord Jesus Christ asks Why??? At The Horrible Cost Of greed ..Enough is Enough.. Reap what they shall sow..Soon!.,
    Landryj.. A Servant in our Lord & Savior for Truth..

  1093. I have fibro and lupus and have been in near constant pain for more than five years. I’m on Cymbalta and Lyrica currently and have been on other common meds since being diagnosed. Interestingly, I moved to VT a year ago and my health has improved dramatically. A friend told me, she had moved here because a doctor had said it might help her son who had juv. RA and it did. I don’t know why it would but I’m sure glad it has helped me and her son! Now if they find a cure that would be incredible!

    1. Try Sierra sil it takes about 2 weeks before u can feel it but it does work u ca

      n buy it @ the health food store

  1094. I was diagnosed by 3 independent drs with having FMS starting 20 years ago. Come to find out that I am allergic to gluten, MSG, artificial sweetener. I changed my diet and my symptoms are gone. If I get cross contaminated I get my symptoms back for a day. If I unknowingly eat gluten, I have FMS symptoms for 3 days. It took a week for remarkable difference and 6 months to feel really good. Please don’t under estimate the power of the food we put in our bodies.

  1095. I was recently diagnosed with Sjogrens syndrome and Fibro after I had caught mono. I have been in so much pain at times I have just wanted to die. I am on Synthroid as I am hypothyroid as well,l I am currently on Gabapentin, Cymbalta and Relafin. I think I have RA but am not showing it in my blood, it is in my family as clinical diagnosis. Relafin was perscribed just days ago and I have to say I feel 80% better. I think that they will determine I have RA in the end. Praying for peace and pain free days for all of you 🙂

  1096. I have fibro to and my doctor is treating it and degenative disc deasease with lyrica, and 2 pain med’s vitiman D and magniseam . Sorry about the spelling. She said stress is one thing that triggers the symptoms. Med’s make me sick at my stomach but no pain. I wish there was a better treatment for this condition cause all my joints inflame as well and I know it got to be linked to the fibro somehow.

  1097. I sure wish they would share with the relief with the rest of us because I’ve been in severe pain since 1991 and I’m very suicidal at times with no hope of ever being without pain please somebody help us I can’t continue to live in such pain

  1098. I’ve had fibro. for 21 yrs. and it is a killer for sure. Med. Marij. will help. I’d have to move to Calif. to get it. Not moving. I know about the extreme fatigue. Fibro. has now moved downward into my lower back and I can’t stand for more than 10 minutes at a time. The weather plays a bad game when it comes to fibro. Like today raining around our city and i’m in burning pain in my back muscles. My body knows 3 days ahead of time when it’s going to rain because the barometric pressure is changing. Sometimes I don’t even feel a storm coming in. That’s God’s miracle for me. I take 6 kinds of meds. just to get around. My dear husband is my caretaker and he’s not well also. We work together and get most things done. My husband is a God sent.

  1099. Take your son to a nutritionist Carole one that’s educated to degree level. I had chronic fatigue syndrome and fibromyalgia for 5years following a viral infection They worked wonders with me 🙂 the diet and supplement regime was pretty tough but so worth it. Pretty much all my symptoms had gone within about 5 months. Feel free to email me at [email protected] 🙂

  1100. My son has suffered with chronic fatigue/fibromyalgia for almost 10 years. What can be done to take care of this problem if it’s in the hands?

    1. so strange.. i have left 3 comments here.. and all of them disappered… i take dheas
      a human nature hormon and my energie is back!! it’s amazing! only one blood exemple to test.. ask your dr .!! with one pill a day i have so much more fun and less pain!!

      1. Can you tell me what hormone the blood test revealed was needed? I will ask my Doctor but need a little more info.

  1101. I have had Fibro since the late 70s. It was bad til 1999. For some reason it went really mild and I didn’t consider it a problem. I took Aleve at night. I might have found the right combo of supplements. Drugs didn’t help. I had a major hip repair June 6th. Fibro is back with a vengeance. I am off post op drugs and back to 50+ vitamins, D, B complex, Curamin, SAMe, and melatonin. DISCLAIMER (Supplements may have some interference with any prescription drugs. Talk to your doctor, pharmacist, and do your research)

  1102. Question i have Polmyalga Rhymatica the pain is so severe @ times that my right hand i can’t open or close so i get cortizone shots in my shoulder that is he only thing that helps the pain,is there something that i can take, i have taken Predisone that is a terrible pill to take, my eye site was getting blured, i felt bloted, if you can help me i would greatly ppreciated

    1. I have Polymyalgia also Elaine. Unfortunately not related to fibromyalgia at all. There is a facebook site under Polymyalgia rhuematica– check that out.

  1103. I wouldn’t say they have the mystery is solved, because they haven’t explained what is causing it…

  1104. Those with fibromyalgia can check out the benefits of benfotiamine, which is a form of vitamin B1. One place to look is benfotiamine.org. I’ve been taking benfotiamine for maybe a year now and it has helped my muscular pain tremendously. I told a friend, and she was able to get off most of her meds. This site has many testimonies regarding a variety of benefits. You can web-search for other info on benfotiamine.

  1105. i have had it 6 years and my hands and feet are the most painful. im afraid to even pick up my grandchildren for frae i will drop them. my hands ache day and nite with no refief. lyrica and cymbalta im alergic too so what do u do.i find that the waxing machine of hot wax and wrap my hands than in towls gives me some relief but the pain it horrid

    1. All I can say is that I have severe numbness of my hands when I awake, if I hold the phone to long or MA Orly in cold weather and wind, which doesn’t seem to affect others I am with.
      What accounts for all the other touch points that are ‘truly so painful’ on my body? Gosh, if I knew,
      I would share it w/ the world of sufferers–and ya wouldn’t have to pay me……

  1106. It is interesting that they think they have found something different to look at and especially that they have come up with something that “proves” that people with fibromyalgia are not making it up. In my personal opinion, I call the disorder “toxic body syndrome”. Too many toxins from so many possible sources such as: stress of many shapes and sizes, pesticides and other chemicals at “acceptable levels” in our food, poor nutrition in our overly processed fast food society, too many prescription drugs and a wide variety of “safe” chemicals used in so many households and work places in cleaning products and fragrances, etc, etc, etc. They won’t look for WHY those blood vessels are that way, they will only look for a new “miracle” drug to mask the symptoms and make it appear as though the disease is cured. I got some relief when I changed several things to remove some of the toxic overload in my body: I stopped using antiperspirants because of the aluminum (I use the crystal deodorant and it works better than any other product I have ever used), stopped using toothpaste with fluoride (fluoride is toxic), started using fragrance free products for laundry and everything else where I can find fragrance free products, eat a greater percentage of raw unprocessed vegetables and fruits, reduce or eliminate wheat and gluten, use some kind of sauna to “sweat out” some of the toxins that can’t be eliminated any other way. That is only a portion of my experience since 1997. One of the best things I did was to stay away from most medical doctors and their prescriptions. I have used a variety of alternative health care sources with varying success and a lot of expense. Some excellent, some not so good. Eventually I was able to retire from my lab job at age 55 where I worked in an environment of “within safe limits” levels of many kinds of solvents and other chemicals. I am better, but not “cured”.

    1. I agree with you! They only found another symptom but not the “WHY”, so there will be a new drug for this finding wich will “cure” the symptom. Of course with its respective side effects.
      Besides all detox process and avoiding toxins exposure, some researchs have found lack of certain aminoacids in fybromialgia patients. This seems to be because of protein deficiency, for wich some doctors have recommended to their patients ingesting more protein food.

      This would seem logical, BUT aminoacids deficiency doesn’t only depends on consuming protein meals or protein supplements. Digestion and absortion need to be addressed in this cases, something some doctors dont check for, then things may get worse when only taking the get-some-protein advice.

      1. I was very tired to, now i take DHEAS en i’m feeling so much better now..
        What Is DHEA?” read this :

        DHEA (dehydroepiandrosterone) is a hormone produced by your body’s adrenal glands. These are glands just above your kidneys.woman holding supplements

        DHEA supplements can be made from wild yam or soy.

        Scientists don’t know everything DHEA does. But they do know that it functions as a precursor to male and female sex hormones, including testosterone and estrogen. Precursors are substances that are converted by the body into a hormone.

        DHEA production peaks in your mid-20s. In most people production gradually declines with age.

        Testosterone and estrogen production also generally declines with age. DHEA supplements can increase the level of these hormones. That’s why a number of claims have been made about their potential health benefits.

        Those claims range from benefits such as:
        Building up the adrenal gland
        Strengthening the immune system
        Slowing natural changes in the body that come with age
        Providing more energy
        Improving mood and memory
        Building up muscle strength

  1107. I left a longer remark earlier but somewhere in these long mes. someone mentioned (along the toxicity line, which normal upsets me greatly as i was diagnosed w what they used to call Fibro back in 1975 & I was eating very well etc. & I came to resent people saying if you eat or don’t eat this or do, my Fibro has remained very consistantly whether i’m this or that. I think some people think they have it but don’t. Anyway he mentioned X Rays & I had X- Ray treatments on my head in late 1950’s the kind they would never do later. I’ve always suspected that my body was fighting off cancer or something from toddler age til now @ 56 but doctors say no.

  1108. They will not CURE anything, period … they may come up with an expensive drug to treat you, but never ever will they cure anything, not Fibro, not cancer, not heart disease nothing ever … no profit.

  1109. The problem with articles like this is that they are a sensationalization of the research and, worse, they perpetuate the disaster that mars modern medical research, the brain-body split. As a pain specialist and someone who has dedicated my life to understanding and integrating current research into treatment, the only issue with fibromyalgia is that of unifying brain and body and coming up with treatment approaches that reverse this insidious, life-destroying condition. The commonality of all persistent pain disorders is alteration in the constant loop between body and brain. Changes in one are reflected as changes in the other. This research helps push our understanding of one aspect of this condition, but the conclusions being drawn do not answer the questions of whether this increase in arteriovenous blood flow is a fundamental cause or response. It does say what we have known for a long time clinically. All persistent pain disorders alter autonomic nervous system function. Here now is clear peripheral evidence of this. The article does a disservice to the research by boldly declaring “Mystery Solved,” then declaring that the condition is not in the brain, hence “not all in your head.” The condition is a cause of the normally helpful neuroplastic process between peripheral input and central adaptation, gone wrong. The resolution of fibromyalgia and every other persistent pain problem will be in solving the puzzle of what has gone wrong and how things came to this situation. Only then will we be able to reverse those processes by provoking body and brain to break the aberrant loop and restore normal brain-body dynamics.

    1. Michael,
      You are exactly right. That’s the reason infrared, like the NanoBeam 940, which releases Nitric Oxide, a powerful Parasympathetic component, and a neurofeedback called Neuro-Gen, can help. They actually reverse the Sympathetic dominance (inflammation) that triggers these symptoms, both peripherally and in the brain. Sometimes they are palliative, but frequently they can “unlatch” the condition.

    2. Thank you so much for this comment. In short, coincidence doesn’t indicate causality. I’m glad that researchers are looking at aspects of the disease besides the pain per se, but nothing covered here indicates proof that the AV shunts _cause_ fibro.

    3. Thanks Michael, so why are we allowing so much BS and usually treating symtoms, and adding TO the cause making the situation worse and worse. If there are people like you who comprehend the brain body connection, and how functionally operational it is, why are we allowing crooked thieves and billionares to rape us. I retract all this if your just selling some other BS (as often happens) other than making money off the truth (instead of another lie). My brain is informed of all painfull repair and damage and soreness issues daily, I wouldnt have it any other way.

  1110. There is a pervasive attitude within the medical system that if something can’t be tested for, and can’t be cured, that it doesn’t exist. This is just not true. I am so pleased to hear that many who are suffering from Fibromyalgia will be able to be tested for a physical abnormality that is the cause of their pain! Maybe now their doctors will recognize and treat the pain, because it is seen as real (and it is very real). Unfortunately, there will still be a lot of people who suffer from debilitating pain who do not have excess blood vessels in their hands. Their pain and suffering will continue to be ignored and this is a tragedy.

    I suffered from pain, debilitating fatigue, anxiety, damage to my connective tissues that led me to be unable to walk for a few months, loss of memory and concentration and many other symptoms after taking Cipro, a fluorouqinolone antibiotic. Toxicity caused by fluoroquinolone antibiotics is unacknowledged because it does not show up on tests, it is uncurable and it is directly caused by the medical system (their beloved pharmaceuticals). My story can be found at http://www.floxiehope.com.

    Both fibromyalgia and fluoroquinolone toxicity have both physical and mental aspects. With diseases that effect the brain, I get intensely bothered by the “it’s all in your head” attitude. What’s in your head is REALLY IMPORTANT! Loss of memory, pain, anxiety, depression, etc. are all very significant symptoms and it is important that they be regarded as symptoms, not choices that the patient is making.

  1111. Stress is my trigger. I suffer for anxiety attacks all the time. My father and mother with the help of my younger sister have caused them to cut me off from being their daughter. They abused me physically and mentally most of my life. I’m 54 now and figured this out when working on my stress only 6 months ago. My pain was almost gone! Then my family started to ridicule me, put me down, turned on me. I’m alone with my husband and 3 kids. It’s only now I stood up to not be around stressful people and lowering my Rx drug intake. Success when I stopped take 4 drugs! But now I lost my family, because I don’t live my life like they expect me to. Obama being President is my fault too. I wish I was so powerful…I’d make them be nice and love me unconditionally. Friends? What friends? What’s the use of feeling better? I know not everyone is cold. I’m hoeing out for you….

    1. You said it BEST!!!! you explained ME! STRESS!!!! I take it one day at a time. and that works. xoxo

  1112. Had the same thyroid results as Kaytee. Was prescribed thryoid meds on a couple of occasions, only to have it taken away by the next doctor I saw. Fibromyalgia symptoms showed several years ago. Deep muscle ache all over my body. Doctor said it was a matter of elimination. If it wasn’t all these other things it left fibromyalgia. At least he didn’t say it was all in my head as many heard. Perscribed an anti-depressant. Works for me most of the time. Have to learn to accept the trade off–long sleep hours and dull feeling in the morning for a few hours. But, the pain is gonew.

  1113. my advise to you all is to get yourself on the paleo diet and seriously work on your stress levels. i was bed bound with fibromyalgia and with a lot of hard work and support of a fabulous nutritionist i happily say i’ve been FMS free for 5 years now 🙂 good luck!!

  1114. Plans, please go to thyroid sexy and check it out. They’re many doctor reports on there that backs up what I’m saying. Your thyroid test does not always come back accurate. Even if you take a t4 thyroid medicine it may not be converting to a t3 in your body(which it needs to do). And YES it does cause numerological problems. It can cause headaches,pins and needles,brain fog, vision problems,pain, weight gain or loss,hair loss,fatigue,bloating and swelling,baggs under eyes,puffy eyelids,depression,rage,dry skin,skin infections, acne,high blood pressure,heart problems and so on..One of the main symptoms is cold intolerance!! I have been reading a lot about this because I have all of this and it is hereditary. I just found out it runs in my family. A woman’s children can be ADHD. All 3 of my kids are ADHD. Please check out thyroid sexy. Please don’t treat me like most of our Doctors do. Keep an open mind and consider the possibility. Their is a certain kind of medicine that is helping people, if you can find the right Doctor. (one who doesn’t treat them like ours does us)

    1. I’m a bit confused. When you say that “it” does cause numerological problems. Are you talking about thyroid disease or fibromyalgia? And, do you mean neurological (brain) problems or numerous (more than one) problems? And then, also I do not understand your reference to ADHD. Are you saying that a woman with fibromyalgia will have ADHD children? Or are you saying that a woman with thyroid problems will have ADHD children? Or are you inferring that ADHD is a component of fibromyalgia or thyroid disease? Sorry, you’ve lost me on this one.

      1. Carol– the signs and symptoms for hypothyroidism and fibromyalgia overlap significantly. And, according to preliminary research (by Dr Lowe, deceased prior to finishing the project), at least some fibromyalgia patients with “normal” thyroid levels have significant improvement when treated with low doses of thyroid hormone. It just takes more time and effort to differentiate the two than most drs are willing/able to take– and in any case, co-morbidity does exist.

        Possibly there is some link between ADD/ADHD and low thyroid and/or fibromyalgia. “Fibro fog” and hypothyroid fatigue put you in a “sleepy” mode… ADD/ADHD patients are helped by stimulants because their mind tends to “fall asleep” if they are not sufficiently stimulated one way or another. It’s a tentative link, but may be a worthwhile research project to see if the recent surge of “ADHD” is some sort of early warning sign and/or a misdiagnosis.

  1115. The above artice “Fibromyalgia Mystery Finally Solved!” is a misrepresentation of the actual research which has been completed. One piece of the puzzle has been discovered, but much more research is needed. Nothing about Fibromyalgia has been SOLVED. Unfortunately everyone is so desparate for an answer and a solution that the first article that sensationalized new research spreads on the internet like wildfire. Here is the actual post-research article. http://americannewsreport.com/nationalpainreport/researchers-claim-breakthrough-in-fibromyalgia-study-8820525.html

    1. If you know any research doctors, please ask them to check the possibility of a connection between Hypothyroidism and FM/CFS. they are just about identical! Check out the page on fb called THYROID SEXY founded by one of the actresses from BAYWATCH.

      1. Angie, they are nothing like identical. Many people with CFS (M.E.) have hypothyroidism too, and yes, hypothyroidism symptoms are found in people with CFS (M.E.), but CFS and M.E. have a lot of other symptoms too, which hypothyroidism does not have. Hypothyroidism has no neurological symptoms, for example. Taking thyroid levels is one of the first things doctors do when someone presents with fatigue symptoms.

        1. “Taking thyroid levels is one of the first things doctors do when someone presents with fatigue symptoms.”

          Ummm… no, not necessarily. They *may* (but don’t always) run a TSH along with basic tests for anemia (CBC, hct/hgb), may possibly check B12/folate and iron (TIBC) levels. Then tell you you need to exercise and get more sleep. Oh, and here’s a ‘script for Prozac.

          My thyroid lab results were “normal” for years, despite clear signs and symptoms of hypothyroidism. Of course, “normal range” for TSH was .5 to 10.0 at the time (mine was around 6, as I recall). Since the TSH was “normal”, no other thyroid testing was done.

    2. Thank you for the link Teresa. I’m trying to find the actual paper to give to my GP, but it’s proving to be very difficult!

    3. I read both articles and they both seem very similar so i am not sure why you think it’s misrepresentation. I am very happy with what seems to be another step to an answer for all those who suffer with Fibromyalgia. It’s a great break-through..i was first dx in the 90’s no one knew what fibro was.

      1. I agree, I have only had it a couple years and it feels like forever. Any hope at all is better than none. I know one thing for sure none of these drugs help.

  1116. How many of you also have Hypothyroidism, or think you might? It doesn’t always show up on test. The symptoms are are almost exactly alike and some drs are thinking now that they are linked. Low thyroid can cause everything in your body to go haywire.

  1117. @Rhonda: Implying that depression is not at all serious because “99% of the world is depressed” and that depression is not worthy of absence from work or special care is 100% ignorant.

  1118. Had it for over 20 years. Was told by doctors in Knoxville, TN.that nothing was wrong with me. Went to Mayo Clinic in Florida and was diagnosed the first day and confirmed 5 days later after lots of tests to rule out other things. Am not out of pain fully, but have some better days. My doctor prescribed Savella. It has helped more than anything else but not a cure. I had polio and Rheumatic Fever as a child. Drs don’t think it had anything to do with it. I believe those diseases did have a part in it since the pain is so similar.

    Rev. Joe

  1119. I was diagnosed 6 years ago. Recently a friend mentioned that I should read articles on foods that cause inflammation which is basically 85% or more of what I was eating. I changed my diet and started the Herbalife weight loss program substituting 2 meals a day and let me tell you that I feel 85% better. I have not taken a pain pill in 6 weeks. I guess that most of the foods I was eating was causing inflammation and increasing my pain. Please try and let me know how you feel.

  1120. i have had pain for many years starting from the age of 12 with knee problems, then at 19 a back injury nursing. over the years the pain has been getting worse, at first i was told it was because i was overweight and i still am i( i find it very hard to loose weight) but after loosing 45lb the pain increased. i have been dealing with this for 29 years with increasing pain year after year then finally one day i broke down to a friend and said ” i can’t deal with this pain anymore “. Before all this happen i had a partial knee replacement, but now dealing with chronic pain in the other knee. i have has cortisone shots to help with pain but nothing works, somedays i can cope with the pain others days all i want to do is cry. After the break down and talking with my Dr he came to the conclusion i have Fibro, as i have the migraines, fatigue, sleepless nights, low grade fevers, hands sometimes dont work and to be touched you may as well be stabbing me. I am very grateful to have understanding friends and family and if its a bad day they all help me. i make the most of the good days because when i am good i always injure myself to make things worse. Ive been told to slow down and delegate, which i find very hard to do. i will not be ruled by pain and will continue to do what i can when i can, the pain is continuously there but take 3 different meds to help and something for the pain through the night to sleep. it never totally goes but its enough to get me through the day.
    it is nice to read other people experiences with this condition and hope to find out more about it

    1. I have been reading your comments. My heart goes out to all of you. There was a day in 1984 I did not want to see another day.. I had pain and unknown arthritis. God works in strange ways. The next day I heard of a pain center and got diagnosed. That doesn’ t mean I found the magic pill and got better. In the 90s I was almost eating NSAIDs and not sleeping well. I may have found the right combination of supplements. For the last 13 I have not had many symptoms. I recently had major hip repair. Going off supplements set me up for a big flare up. I am back on the supplements and hope they still work. God has a back shoulder. He will take a yelling. When you get done with the rant He may have encouring and helpful words.

  1121. for one, only an rheumatoligist Dr can diagnois Fibro & CFS. It all makes sense..I too am stubborn. I am still working,but take FMLA(family medical leave) on WED. without pay. I refuse to loose the shirt off my back. I can not afford to retire right now and make to much money to apply for SSDI. I knoww many people on disability and not a damn thing wrong w/them. oh,maybe a bad back, depression. for christ sake 99% of the world is depressed. I have a wonderful supportive family. I try not to complain, but they know i don’t feel well. so i bide my time untill i can retire in 2017. half the time my legs hurt so bad I can hardly walk, but damn it i go to work. then there are days that i have the low grade fevers, nausea, bad headaches, etc., so those days i stay home. I loved all that was written, and saw myself in your words. My grandmother always told me, if u think u have it bad,just look around the corner, because there is always someone out there worse off then yourself.
    Take care and God Bless.

  1122. Mine is so bad that it upsets me just to talk about it. Today is a very bad day. I’m so tired of this and I’m just messing up everyone else’s lives too. I don’t believe they will find a cure. If they do it will take years before they are through testing any medecine and get approval for it. That’s too long. I don’t want to live like this any longer. I’m just ruining my kids lives. They and my husband deserve a lot better. But what do I know, according to my doc and the meds he gives me, I’m a basket case anyway.

    1. Hi Angie,
      I know exactly how you feel. There have been many times I thought my friends and family would be better off without me. Always having to rely on them to do simple things around the house, the constant depression, and the looks on their faces when I would hurt so bad and they just didn’t know what to do. Well, it’s been six weeks since I was introduced to an AMAZING product that has stopped the pain, given me so much more energy, and made me a much happier person to be around. I would really like to share this product with you and anyone else who might be interested. If you want to know more, email me at [email protected] and I’ll send you the information. I truly have a new lease on life and you can, too. Hope to hear from you soon. 🙂

    2. Cherly, it makes me sad to hear what you are saying , the same words have come out of my mouth more than once. And I have thought them many more times than I would like to admit. I don’t know if it helps you at all…But you are NOT ALONE in the way you feel. Some how I feel better knowing, I”m NOT CRAZY!!! I look into my family’s eyes and I know they still need me.. Even like this? I hope you have a GOOD DAY

    3. For me the combi of Cymbalta and DHEAS is a good one. I tried everything that possible was.
      Now i have a better life after suffering for 15 years.
      DHEAS is something like testosteron and every woman has a little of it, But sometimes
      not enough. For me it was amazing to see that only 30mg a day give me so much more energy! I’m not tired anymore!! They take a little of your blood. Normal is in between 2 and 9. I had 2,9 ! Go and see your dr. en ask for it. Don’t give up!

    4. You’re not alone Angie, and you’re not a basket case. FM can make you a basket case sometimes. Just remember that God (Jesus) loves you. Don’t believe the lies people tell you, or that you tell yourself. You are wanted and loved. Please take your rest and believe you are loved. You’re not a burden, you’re just hurting. Scream out to Jesus to help you, and He will fill you with a peace and love that goes beyond you’re thinking. Bless you! Don’t give up! You’re loved…

  1123. I truly hope they find some type of relief for all of us who suffer with this horrible disease! I have been living with FM for well over 15 years and I am 47 now. There are so many individuals in the medical field that just say it is just depression or that it is all in your head. This stuff is very REAL! I cringe when I am told that I just need to toughen up and there is nothing going on to cause the pain and the injuries that I feel.

    The cold is so painful! Not only on the hands but on every place that it touches me. The knots in the muscles, the swelling, the vision changes, brain fog, severe exhaustion and pain are a daily part of all of us.

    I can’t remember how many tests, doctors and physcial therapists I have gone to over the years. I was finally lucky that a couple of years ago that I found a wonderful doctor who will work with me to try to find me some relief even though we have found nothing so far that takes care of everything 100%, but I will take whatever little relief that I can get.

    I am so blessed or stubborn that I still am able to maintain my job, but the days are becoming more frequent that it is almost impossible to function or to even roll out of bed. I have only a few more years before I am fully vested in my retirement. So I will keep going.

    I have a husband who is very supportive and grown children who are more than willing to do what they can to may my days easier. Unfortunately, there are many other family and friends that cannot comprehend what I am suffering so they get set off when I am not able to keep up with them. It is very hard for people to accept when they cannot see it.

    The best relief so far is knowing that I am not the only person who suffers with FM and I pray that some day there will be relief for all us so we can go through life pain free!

  1124. I’ve had Fibromyalgia/ ME/ CFS for 12 years. Being vegan, I eventually looked into B12 and B12 deficiency. While these findings are interesting, I think looking at the role B12 plays in this situation would be even more interesting. Myself and others have seen clear links between these issues and B12 deficiency and I believe I have cured myself of these conditions through supplementing… http://b12forvegans.wordpress.com/1-2/cfs/

  1125. Thank goodness for research. Diagnosed 15 years ago, GP good but dfs not good, also friends and family don’t understand. Have shared this on Facebook Hopi g people will read.

  1126. I was recently diagnesed fibromialgia, and i dont know nothing about it, so very grateful for all coments and the text above, majda

  1127. I have had fibromyalgia for many years, and I also thank God for giving me such an understanding and patient husband. My shoulders, lower back, hands, and neck are so painful. I fall asleep with a heating pad ( it has a timer on it) to try to reduce some of this pain.) Please keep me informed. Thank you

  1128. I was diagnosed with Fibromyalgia over 20 years ago…back then all Dr.s except those that were discovering the disease, thought it was all in your head…I’m lucky that I have a husband that was very understanding….Haven’t been able to work for over ten years, and would love to be able to go back….Hoping they really get to the bottom of this horrible disease…Feel so bad for everyone that lost everything because of this…Praying for all Fibro people out there!!!!

    1. I am so glad hubby and kids read about it if not they would have put me in a nut house i hate people saying you look fine and i turn around and tell them you dont live in my body 24/7 tell you do dont say nothing about it when i have my bad days only thing i can do is sleep and take my pain meds

  1129. Hi – I, too, have fibromyalgia and find cold especially painful. My hands and feet tingle, and I have sore tight areas around my body. I get bad migraines, cramp, vision disturbance, nausea and do not sleep well. I do feel at my wits end with this terrible life limiting condition – I have lost my job, home, relationships with husband (now ex), grown-up children, my brother and sister and the rest of my relatives, and am so exhausted all the time. Even talking can be impossible! I had no idea what was wrong with me at one time, having been healthy most of my life – this came on in my late 40’s. I have even been homeless – living in a field!!!! (Yes – in the UK) Sometimes I feel better off dead. However the pain I feel constantly reminds me I am still alive. Please can someone come up with a treatment for this – I am so glad at least this condition is now recognised and is being investigated – I had never heard of it until I saw a new doctor at the doctors practice I go to and she diagonised it straightaway – my usual doctor didn’t

  1130. I have been told that “I will get better” for 6 years, but no attempt other than unsuccessfull drugs been made to help me. Having lost my home, relationship, job, dignity and self esteem and living in constant pain since being diagnosed with fibro, then subsequently forced to give up a wellness plan that worked by a “specialist” who thought he knew best in preparation for a court battle against an insurer, I contracted shingles in 2011. I have been bed bound often since then, in need of care, without income, and left to fight it out on my own in the benefit system and in life. My neurological system appears to have gone into meltdown and through it all just one thing would have helped…… a GP who didn’t claim “it was all in my head”. The lack of help and treatment is bad enough but the guilt that the authorities place on you for being ill is unbearable. Understanding goes a long way. I am going to print off this article and give it to my current GP who is at least empathic unlike all those before her over last 5 years. Thank you for publishing it and allowing us to easily share on facebook to help knock out the ignorance.

  1131. I’m astounded…this is EXACTLY what has been happening to me for years! I have had Reynaud’s symptoms from just walking through the frozen food aisle in the grocery store, and my hands have always been so sensitive, many days I can’t stand to wear my ring.

    I’ll be so interested to see what they find out as to what might be done for us.

  1132. I pray they have figured this out. What they say about the hands is true. I never had temperature sensitivity but that was one issue that struck me weird. Why does my hands hurt in the cold when they never did before. It hurts to hold anything cold or hot. It’s awful. I too try to function daily. I have some good days but then when I take advantage and do more than usual I end up suffering for days later. So I try to keep an even medium and to be taken of these medications would be awesome. They don’t work 100% but enough for me to get at least 4 hours of sleep. After that I am awake then during the day require a nap just to get through the rest of the day. I so pray this is true, they found the problem and they can now find a cure. I have prayed for this day!

  1133. I never thought much of the all over pain I had. It seemed tolerable at the time no big deal. (Everyone’s pain is individual) I thought I was getting a lot of colds with all over pain that were becoming more frequent. I would mention it at check ups with my doctor. Evidently there are traditional pain points that they use to diagnose. I don’t fit into that group. With the rain starting in April of 2013 in MN and hasn’t stopped yet the pain has increased exponentially. I think that may be Fibromayalgia.

  1134. My favorite pain reliever is homemade wine – any type of fruit. My husband makes it, and I call it “Old Pain Reliever.” Other stuff like hydrocodone don’t deal with the pain. They just make you quit thinking about it so much.

  1135. Just wonder if anyone has tried eating more protein for relief. I’m mean like 2/3 of the diet being protein, which is what I’ve learned helps me like nothing else has. I felt some pain from FB in my wrist this morning. It’s been 105+ here in Sacramento this week and the heat seems to make FB much worse. I realized I had only eaten a chicken salad sandwich – my only protein source last night. It wasn’t enough. So for breakfast, I had all protein – 2 eggs and 1 pork chop with coconut milk to wash down the motrin and vitamins. It will take half a day to work but consistently eating a lot of protein does seems to work like nothing else has. I don’t know why though.

    1. Doesn’t help me. Tried everthing you can possible try for over 20 years.

      1. That has to be frustrating, Rachelle. Not to mention, painful. I’m sorry you seem to have FB quite badly. Even a little of it is very uncomfortable. I continue to experiment. I also take Black Cherry concentrate (cheap at Vitacost) when the symptoms appear which helps within the hour. I also don’t eat much sugar. I never have any aspartame or anything “diet” and no sodas. Red wine at night helps (kill the pain most likely – ha!) I was tested for RA and don’t have it. Nice to rule that one out.

        1. That’s funny Tara, yesterday I ordered Black cherry juice at iHerb. My blood is being testend as we speak to rule out some things, like RA. I only use raw honey (for sweetness). Never use aspartame. Try to use the good fats, raw milk, fishoil.

          Thanks for your reply (sorry if my english is bad, I’m from the Netherlands) 🙂

          1. My father who was on Glucosomine just for general aches and pains (he’s 82) started taking the Black Cherry juice and says it works better than Glucosomine which he then quit taking. He doesn’t have FB though. It seems the Black Cherry juice is a good overall tonic. I’d be interested to see if it helps you, too, Rachelle.

    2. Rachel, I started on Whey Protein shakes 3 weeks ago, each one gets 2 scoops (120 grams protein) mixed with 1 cup Soymilk. Start off with a handful of crushed ice and it’s like a milkshake. 🙂
      Don’t know if that’s why I’m having more “feeling better” days or not, but I figure if I have a disease in the muscles, protein sure couldn’t hurt!

  1136. I’m not sure what to make of this article. IS the mystery of the cause of fibromyalgia finally solved? And does it mean they can cure us? My pain started off in my hands and I do get swollen hands (not imagined contrary to what GPs sometimes think). But it sounds weird that this causes the ALL over body pain: neck, shoulders, mid back, lower back, hips, knees and jaw and headaches. Can it really be? I want to know!

  1137. My mom has fibro and has been suffering with it for years. It kills me to see her in that much pain all the time and all over. She has a hard time doing anything. Sometimes even getting out of bed is hard cause her body hurts so much that she cant move. All that she wants is to be able to live a normal life where doing anything isn’t almost impossible for her. I really do hope that this is article is a sign of hope for everyone thats suffers with fibro and that there will soon be a cure.

  1138. Doctors have been so smug looking at those of us in great pain and suggesting psychological care. One Doctor cut off my pain meds. But I do not believe that this is the only source because for me I have muscle knots growing every day. Bumps all over my body. If I move for a few hours the next day I swell up. But it is a start and if stupid doctors can learn this truth maybe thew will not be so condescending with patients.

    1. Have you looked at Dercum,s Disease or Adiposis Dolorosa? Most of us with this disease were diagnosed or have Fibromyalgia with lumps everywhere – Cynthia x

    2. I couldn’t have said it better Doug. It really sucks – my daughter has it and I feel her pain every day and it just makes me horribly sad. I feel for all of you. So sorry.

  1139. I hope for the patiënts this is the real course finally. i am not convinced it does not make sense with all symptoms especially when thet have CFS/ME and FM. Do not get me wrong both are real!!!

  1140. Every year there is an answer, but there’s never a cure. Every researcher has another diagnose, but its never the real one. So I’m sorry, I don’t believe this. A few years ago they could see it in youre brains. But still no cure, still no answers. It’s all in our heads, between our ears, stress etc.

  1141. Well if this is a cure for fibro then when does it that we all have access to it?

    1. Mark, I agree. My daughter has had it for about 8 years now. She’s 41 and has three teenage daughters. All this talk about curing FB – so when are the doctors gonna get on board and help you guys. It’s sad and I can understand where the hopelessness comes from. I pray for some doctors to try to help the FB people – it’s hell to be in constant pain. My prayers are still going out!

  1142. Interesting article thank you – and food for thought – had arthritus for 25 years and only told me last yeat it had been mis-diagnosed and was actually ‘fibromyalgia/Me’ and of course all the meds no longer work because they been poisoning my system for so many years that now Nothing works – not even asprin or paracetomol – they all make me sick and give me eczema! It’s crazy that I’ve beein in pain like FOREVER! – It’s just a thought but if it stems from the hands do you think it is caused by the computer generation and too much keyboard/ mouse .. maybe we just all need to kick the chemicals and go back to living more natural lives – cleaner food and more exercise like yoga etc ! ??? x

  1143. I have had fibro for over 12 years .I really don’t no what to think..just tired of being in pain 24/7 yes all the time ..some times real bad ….have pain in all points of boby …med do not help…I use pain pills when real bad ..I am at the end of my rope …I get very little sleep ..even if my sheets on my bed are no just right I have pain ..I was like that all my life ..think I my of had trouble as a kid with pain …my spill to find a dr to really help me …not just my home dr .he said no need to see another dr .they will give you the things I give you …oh and yes I do have a lot of touuble with my hands to…I am now 55 .stop working 2 years ago just can’t handle it no more …I hope this is the answer you have on the go now …keep testing

  1144. 15 years ago, I was diagnosed with Fibromyalgia. Shortly after, I had read that eating more protein would help the symptoms. I’ll try anything… so I stepped up my protein intake, eating more chicken, meat, fish. The symptoms completely went away. The symptoms kick up a bit now and then when I haven’t had much protein in my diet. Even a cheeseburger helps.

  1145. Diagnosed in ‘1991, I’ve have shot down by so many Drs. not believing the pain truly exists. Finally found a Dr. that helped me with pain management.
    Took my disability papers, neurology report, 2 rhumetologist report and my husband to the apt., something that angered me, but swallowed my words was when he said “these are just different peoples opinions and everyone has one.. After having blood work, x-rays,
    mri’s, cat scans, it’s evident my body has suffered trauma from different things. But FMS was the one continuos thread that kept returning on tests.

    I’d like to know if anyone with fibromyalgia suffer the symtoms provided in the above article. They give a tiny bit of hope but not enough to convince me.

  1146. Monthly B 12 injections help me, otherwise my butt drags home from work everyday.

    1. I’ve heard B-12 injections help one feel better overall. Thought I’d ask my Dr. tomorrow when I see him.

  1147. I have had FMS for nearly 30 years, using homeopathic remedies and meditation as my main pain relievers. I stopped giving blood in the first year because it took 7-8 times longer for the blood to be drawn than for others. Changing my attitudes and beliefs about life have been very helpful, such as learning to see myself as valuable regardless of being able to do things to help others, or whether my house is untidy while I snooze during the day. I also take time to sit and rest between every small activity, such as between eating a meal and washing the dishes, and I choose easily prepared meals.

  1148. I am 68, and I have had FMS all my life, I remember all the trigger point pain when I was just a kid. I was finally diagnosed by a Doc. when I was 30 something. Every trigger point that can hurt ,does, and I do have hand pain also. Interesting to note, Phlebotomists hate to do blood draws because they maintain I’m to fiberous, hmm. I agree about the diet alterations. Ido no gluton, do my best to avoid all forms of sugar, and eat wholesome natural foods. I have had amazing results taking Wobenzym N by Garden of Life.

  1149. This is a legitimate article. I looked it up. It is in the June 2013 edition of the academic journal Pain Medicine. Volume 14, Issue 6, pages 895–915. I can read the abstract, but I do not have access to the full article. This is new science but encouraging to me. I’m 73 and have suffered for thirty years or so with fibromyalgia.

  1150. I was diagnosed in 98, after a wrist injury and neck injury, have tried everything for pain, i have found the Turmeric Currium , Vit D3, and staying on a regular schedule has helped me, yes there are still bad days, but at least there are some good days too!

  1151. I am 62 and have had fibromyalgia since my late twenties. I have tried every NSAID and some antidepressants. I got it to a very mild state with vitamins, melatonin and SAMe. It is true that we need to stay away from some of the processed stuff. I was diagnosed with a hip labral tear and had 06/06/13, I went off SAMe in May thinking I didn’t need it. Had to go off supplements for surgery. My hands feel like I just defrosted the freezer and have been picking up ice. I have some renal insufficency because I have used too many NSAIDs. The diagnosis puts me in a box and doctors won’t step out of that box. I have had hip problems since I was a teenager, therefore I thought the hip was setting off the over reaction of nerve pain. It is nice to know that there might be a cause. Now what is the cure or the proper treatment. Too many of us have gone to supplements and have stopped seeing the doctors for fibromyalgia.

  1152. Karen
    I have M E and was diagnosed with also having Fibromyalgia after a long hospital visit. There are times when you are talking to a doctor speaking about your health issues for the first time, and their eyes practically glaze over on most occasions. It really hurts! In different pages every day. Are we finally getting to the point of this very debilitating condition??

  1153. I was diagnosed with FM, but don’t have hand PAIN.

    Swelling, yes. Numbness & tingling fairly often, but not really “pain”. The closest pains are in my wrists– sort of an “achy” pain. I have the “tender points”, and plenty of other achy spots, as well as t he sleep problems, “fibro fog”, etc.

  1154. They Always say they have a break though, a cure,take this it works,I don”t believe anything til I see it and feel it, for my own. I’ve had Fibro ALL my Life, even when it was unheard of, My Mother never understood my pains and aches, and neither did I, We Thought it was all made up. Try to Grow up like that, When You’re Parents think You’re just acting.

  1155. Even tho I suffer from Mental Illness, I take an antip-psychotic med called Seroquel, 25 mg, for sleep. It calms my racing mind, but also the side effect, helps make me sleepy and I can sleep the whole night, even while in severe pain most nites. I have Fibromyalgia since early 30s, and now almost 60 yrs. I still wake up in severe pain everywhere but at least I get my sleep. I still take all my anti-depressants prescribed.
    However I also suffer from osteo-arthritis,(degenerative joint disease).in my neck, back, wrists, and hands. and I even work 5 days a wk but in pain. I wear a back support brace as well as 2 wrists supports daily.
    What I’d like to know, is this news in the medical journals? and major news media? News like this should be a major release instead of a small release in a sidebar of internet page. Is this a hoax? . .A lot of them are fake advertisements so be careful what you read. I’ve heard of a lot of fake cures or health aids for FM over the years as well.
    kathy

  1156. Its all about diet folks. Cut out.dangerous gmos, processsd foods(one in the same) and heal your gut(probiotics, etc) Its not about pills, its about the way we eat. Simple.

    1. If it’s not in our head, it’s in our stomach. Anything other than a real illness!

      1. And the fact it’s secondary to life threatening illnesses for some of us is by the by?

    2. Couldn’t agree more renee. Excess toxins, malnutrition and leaky gut syndrome. Sorting out these issues is what fixed my fibromyalgia 🙂

  1157. OMG, I surely hope that there will be a cure. The one thing I don’t understand is why does it affect so much of my body including the brain. BRAIN FOG. My hands do hurt. That is one part of my body I keep complaining about to my doctor. I just pray for a cure now. Also why does my meds not work when I am emotional. Like crying about something usually sets me off in so much pain. My medication does not feel like it is no longer working. The pain makes me so tired, but yet I can’t seem to sleep because of the pain.

  1158. I was 20 when I had pain that I realized was not going away. It took me 19 years of going to many doctors before I found an article about fibromyalgia, and my doctor finally confirmed that is what he was thinking I have. I have learned as much as possible, do what I can–including working full-time and trying to keep up a house. Unfortunately, the doctors don’t really realize what the pain is like. I wish they could live with this kind of pain for many months before judging that a person doesn’t need pain meds to get through a day. I do wish a cure could be found. I’d love to live a relatively pain-free life again. I have lived with this for 38 years now!

    1. Hi Margie…. I just read your comment and I wanted to let know about a product that I have been taking that has helped me live a pain-free life after 15 years of daily pain. I don’t have fibromyalgia (or so the doctors say) but, I do have severe sciatica in both hips, degenerative arthritis in my spine and MS. I have other medical issues but those three things I listed have been the main cause of my pain for many years. I no longer have the pain, my migraines are gone, and I have more energy than I’ve had in years. I would love to tell you more about how I began living pain-free. If you’re interested, email me at [email protected] and I’ll tell you how you, too, can be pain-free!!

      If anyone else who reads this comment would like to know more, please feel free to email and I’ll send you info, as well!! I want to help as many people as I can to feel as GREAT as I do!! 🙂

  1159. I have fibromyalgia and migraines. I take medication to manage both. Some days are worse than others. I also walk an hour or more almost everyday. But I have to say, I have a Service Dog for my fibromyalgia who helps me with balance, picking up items that I may have dropped and help me off of the floor after I have done some stretching. He also will lay on top of me when my pain is so bad and his body warmth and pressure helps me feel better. I dislike having the pain from fibromyalgia and migraines but if I have to live with this I am so thankful I have my service dog to get me through those tough days.

  1160. It started when I was in my mid forties and now I’m sixty-four. I had several events happening, such as whiplash car wreck injury. I was exposed to toxic chemicals. I had neck surgery do to the whiplash injury. I have been to many doctors, and taken many different medications. I now take Lyrica, which has helped me a lot, but I still suffer with many symptoms which cause so much pain and brain fog. I can’t wait for the real cure. Typed by: Alexis Perfect White

  1161. This is nice, but it doesn’t mention the cause. I have spoken to many people over the past 10 years or so with fibromyalgia. It seems that many have had exposure to toxic chemicals….whether it be aspartame or mercury dental work or petro chemicals. I have found that taking B complex, probiotics, magnesium malate helps quite a bit! Also adding a green supplement such as spirulina and sodium alginate may help cleanse the blood stream. Many find that omitting GM foods and eating a predominantly organic wheat and corn free diet does the trick. Please reduce sugar and “foods” that cause inflammation. And stay away from aspartame.

  1162. I had fibromyalgia for a long time I was only in my 40 ,s know I,m 65 year old and I;m always in pain try as many different pills for pain but don,t help. so it sure would be nice if they found a cure I;m sore every where.

  1163. Linda
    June 29, 2013
    I was diagnosed with fibromyalgia by a rheumatologist using “tender point” identifications and blood work…it was thought it could be MS, Lupus, or Fibromyalgia. I had a recent ruptured disc surgery in my neck and was fine for several months, then started having all over body aches and pain, trouble sleeping, IBS, etc… I have trouble standing and walking for any length of time, balance issues, pain, and fatigue. It keeps you from doing what you used to do, want to do, and frustrated beyond belief because you can’t. I have had this for 12 years….medications, very light exercise, lifting no more than 10 pounds, no pulling or straining, no heavy housework,etc. and getting off my feet and into bed for two hours each afternoon helps…..but still have trouble getting more than 5 hours of sleep. I was taking three hot baths a day to help with pain levels. Even though medication helps, you wonder what effects those will have on you in the years to come. Hopefully, one day there will be a real cure, but just hang in there and do your best….understand it is NOT in your head…it’s all over your body!!!

  1164. I have been diagnosed with this for the last five years and I can honestly say I haven’t had a proper nights sleep since due to the pain my whole body feels whilst lying down. I feel so tired some morning I literally have to force myself out of bed.Was thinking of going to the doctor to give me something for the pain but have managed to thole this but now its really getting worse so need something NOW.wondering if its worth putting this off for a wee while longer in the hope that they come up with something fantastic to help it.

  1165. I am holding on to the belief that, up to now, we’ve been on all the wrong medication, so, a lot of side effects from medication we didn’t need. Am I being naiive? or just hopeful with this breakthrough? we might get the right treatment at last.

  1166. I am wondering what the remedy will be? Tried almost everything. The side effects makes it worse. I feel pain in my entire body so then I can’t sleep at night, can’t do all the things I used to do, so then I feel depressed. IBS caused from pills and diet, so cut out sugar, wheat and buying more organic. I wish they had a magic pill to resolve FM!

  1167. Another explanation could be depression, a very real illness.

    Searching for a physical cause for fibromyalgia can leave sufferers further from help and the start of a recovery.

    If nothing else has worked, and the tests are all negative why not try calling your fatigue and pain depression? Counselling, healthy diet, good sleep routine, exercise and other changes may help.

  1168. At last doctors are believing their patients when they say WE ARE IN PAIN, It took years for me to find out what I had and I am still trying to explain my pain to the uneducated.

  1169. I was diagnosed with Fibromyalgia in 1990. I have had health issues since 1988 when my appendix ruptured. Then in 2000 I was diagnosed with Nueropathy which progressed quickly. Was treated in Ann Arbor Michigan at the big neuro center after suffering a charcot foot. Now am told am in the final stages of progressive idiopathic neuropathy. I have horrible pain in hands, feet , legs, neck and R. Jaw. Wierd, huh? I want to know if the neuropathy is related to the fibromyalgia. I really feel it is and I also feel this all started after my appendix ruptured. I feel the poison and infection fro my appendix set all this in motion. However, cannot prove it

  1170. Since there are so many people commenting here, the best of them is not visible unless you click ‘Older Comments’. “Gemma Cliff” and I (Harley Borgais) have posted the answers you seek, and the proof. Look for those posts.
    freeornottobe.org
    (Free or not to be, which do you chose? Guaranteed the MOST important info you will EVER read, FREE, and not even any ads)

  1171. After going to the ER 7 times in one year and countless specialist I was finally diagnosed back in 2006. The pain on some days is unbearable and am not able to get out of bed, not to mention the anxiety attacks, migraines, IBS, severe muscle aches and pains, sleepless nights, Cystitis, etc. I pray this is truly the cause of all our fibro problems. It would truly be a blessing from God.

  1172. I think this new discovery is wonderful!!! The only thing I am wondering is will it eventually help with all the other symptoms of fibro; brain fog, charley horses, irritable bowel syndrom etc

  1173. I too have terrible hands! I had carpal tunnel surgery and both thumbs locked out straight in place, I was totally unable to move or use them….so surgery n both thumbs as well. My hands and feet continue to ache , throb and burn. Of course, this is in addition to the dozens of other symptoms. I am so ready for something that truly helps!

  1174. Well, I hope I don’t start an argument but I see it coming. For those of us who have seen every doctor, specicalist, therapist under the sun. For those of us who can’t take Cybalta or Savella or Lyrica or have tried all kinds of crazy diets, vitamins, changing your food, etc…. PAIN HURTS!!!! Sometime you do the very best you can. Non of us asked for this disease. Especially at the age of 24 when I was diagnosed. Then to find out later I also suffered from an antibody problem that was greater than anyone ever knew. I am a single mom. In pain every second of every day…. Do not condemn those who may choose not to go down anymore paths and settle for pain management. We should all come together and not judge one another.

  1175. I am a 40yr old female who was finally diagnosed by at least 5 specialist back in 2000.. It was around age 31 that I requested my family Doctor please send me to an immunologist to do a full blood work up… I then found out I have no IgA antibodies in my system and further testing in Birmingham etc has shown many many many low levels and problems with contant underlying infection of a bacterial nature. Low grade fever everyday… etc.. I know all of theses things are linked. I am so proud someone has actually posted something about it…

  1176. One of the first symptoms I ever felt was pain and stiffness in my hands. I also suffer from M.E./CFS, so I got a double dose of being seriously mistreated by medical “professionals.” It turns out the M.E./CFS was caused by a chronic infection of enteroviruses–they now know these can burrow into tissue in the brain, heart, stomach, intestines, and muscles. They don’t stay in the blood, which is why blood tests were useless. Mine was diagnosed by stomach biopsies analyzed by Dr. John Chia at EVMed Research. The M.E./CFS sufferers he tests are positive for enteroviruses. Anyone interested in having the test done can look up instructions at evmedresearch (dot) com under “Diagnostics.” (You have the biopsies done at a hospital near you and have them sent to his labs.)

    1. Michele of June 29, you don’t say if the infection of enteroviruses which you were told was the cause of your ME/FM symptoms was treatable and with what. This would be useful to know. Is this just another theory for the cause of FM or have you found a treatment that works too. Would love to know. We all feel as if we have been attacked by something and a virus sounds as plausible as blood vessels in the hands. Best wishes.
      Joyce

  1177. I think this is still a symptom of adrenal fatigue- I’m not convinced that this is the breakthrough they think it is

  1178. Absolutly fasinating…..One of the very first real symptoms I remember is waking up witth pain in my hands every morning. I would say “oh this can’t be good”. I thought it was arthritis. I also have a lot of pain in my feet…If in the hands why not the feet? Interesting? I really want to find out more about this research.

  1179. I feel I can now accept my diagnoses as it has been so frustrating when all the research I was doing suggested it was all in my head and psycological, the pain I experience and the vein popping spasms now make sense bring on the cure so life can have some normality for all sufferers.

  1180. Who can we see to get whatever treatment they figured out to help with this aweful pain??

  1181. For all those who have suffered so much pain and made to feel that the pain was somehow their fault ” all in the mind ” as a reason for all their pain has been found, now there is hope that it won’t be too long before a cure will be found.

  1182. After 20 years of being made to feel as if the awful pain I have was ” all in the mind ” and I should stop thinking so much about my health and find a job! I had to leave the profession I was in which I loved and try and cope as best I could. Eventually Iwas sent to see a far seeing Psychiatrist who treated the depression caused by the amount of pain I was it. It was such a relief to know I wasn’t going out of my mind and having a name for what was causing all the pain I was in. Unfortunately there was no cure as, up to then no one knew what caused the condition, I was given a cocktail of drugs to try and mask the pain to make me more mobile. Unfortunately this was a when the treatment seemed no better than the disease so I have been trying all sorts of remedies said to help but nothing seemed to help! So to see that research has been done and a reason for this condition has been discovered is like having a very large shot of hope that there will eventually be a cure!!!

  1183. I can’t imagine what the treatment will be. I have had fibromyalgia for sixteen years and have been through all the so called treatments. I hope this research has some validity to it and not just one more theory.

  1184. I don’t take any of these meds everyday only as needed. I have a very good nutritional program-green drinks-fruits-fish (no meat). I do have a compromised immune system so I have always been careful about foods and my health. I replied on this site because I found the relation to sore hands due to a particular type of nerve fiber called arteriole-venule (AV) shunts very interesting.

    1. I agree with Patti. The hand pain blew me away, as I have been trying to discern a certain pain I get in the back of my hands from time to time. I could swear it is from the veins in my hand, higher blood pressure when i lower my hands… Hadn’t figured out the reasoning yet, but fairly certain the pain was in my veins. Thus information is very intriguing.

      1. get the same pain in my hands. But, also I get A lot of pain in the ball of my thumb..Im glad to have found you All. I have been having a Real bad few days. Its been helping me to read your stories… thanks

  1185. @Gemma Cliff…. where in the united states can you find one of these nutritional therapists??? I live in Maine. would love to know more about this .

  1186. A point I must make though: This article is inaccurately titled, because this new discover is still not the ’cause’. As Gemma Cliff and I am proving here, the cause is toxins (like ALL the drugs you may be taking, as well as processed, preserved, and GMO foods), and poor nutrition.
    The most important factor in curing disease is raising the Ph to over 7.0 (Alkaline) as acidity hardens tissues because ‘acid’ means less electrons than protons, and its the electrons that create the bonding forces which allow the flexibility in our cells that make our tissues. Sea foods like kelp and algae are some of the best foods for this.
    At my site: freeornottobe.org you can find all the works of Dr. Gerson who is one of the best examples of doctors that have successfully cured many diseases with diet.
    Other examples include Dr. Hoxsey, Reams, and Burzynski (who actually uses drugs, but the right way: By profiling you DNA first, then figuring out the chemistry imbalance, and the proper chemicals needed to right your body chemistry).
    The real solution to curing disease is eating, exercising, and living right.
    Easy as 1+2=3 really. You live unhealthy, you become unhealthy.
    GMOs mutate your DNA and alter your organs, causing all sorts of cancerous growths because they are cloned and never allowed to sexually reproduce which is the natural process that balances DNA. Cloned GMOs have unstable DNA which is why they mutate yours.
    http://articles.mercola.com/sites/articles/archive/2010/03/25/doctors-warn-avoid-genetically-modified-food.aspx
    Heritage seeds are ‘genetically modified’ via ‘hybridization’, which is the natural and healthy process that improves our genes (hence: evolution).
    harleyborgais at gmail, facebook, and freeornottobe.org

  1187. The product of 13 years of hard study is available at freeornottobe.org and will prove:
    The cause of all disease is ‘free radicals’ which are produced by stress, harmful radiation, toxins (how parasites cause disease, btw), and poor nutrition.
    The cure for all disease is to minimize the stress and bad radiation (UV & chaotic radiation), to detoxify the body with natural means, and to eat a natural diet with the proper nutritional balance. ALL drugs cause harm because they leave free radicals because they are different from the 44 (or more) ‘essential nutrients’ our cells have evolved to use without producing harmful left overs (free radicals).
    Its as simple as 1+2=3.
    THAT IS WHY EVERYONE SHOULD LISTEN TO Gemma Cliff (above).
    Also, doctors are not taught the causes of disease because the medical institutions have been corrupted on purpose (mainly by the Rockefeller foundation, est. 1913) to increase the multi-trillion dollar/year profits of the drug industry.
    Doctors are in federal prison for actually prescribing natural cures (which are the ONLY actual “Cures” because they are the only way to bring you body to its natural, healthy state: homeostasis), because the corrupt legal system punishes them for prescribing non-FDA approved treatments/cures, and no company will pay for FDA trials and approval if they cannot patent it, and you cannot patent anything natural, so the FDA can never approve ANY actual “cure”.
    The amount of info available on the link above will BLOW YOUR MIND, guaranteed!

  1188. I have had Fibromyalgia for about 18 years and I have also been on SSRIs for depression even longer, so I have not had the intense suffering that so many people have. But I can honestly tell you that I have practically rid myself of the pain with a very simple and very ancient remedy. I make myself a hot tea everyday with 1/2 tsp of turmeric, 1/2 tsp of ginger and a sweetener (stevia for me). All research has shown that those spices are great anti-inflammatories. And we know that FM causes inflammation. I have also reduced my headaches by 90%, with this awesome remedy. After all, headaches are inflammation. I was a chronic sufferer of headaches and migraines, but not anymore!!! It took about 6 weeks before I started to really feel the difference. Give it a try. I even add unsweetened almond milk to my tea.
    God bless you all! 🙂

  1189. in my country, Spain, doctors will not read this interesting
    article. No one from the Ministry of Health will read it. only
    ill read it, and thanks sa such research someday I can mitigate a disease that took 35 years.
    Thank you very much for your newspaper

  1190. I’m not convinced the the term Fibromyalgia means the same thing to everyone, or that the same approach will be successful for everyone. Some approaches to research: 1) Guaifenesen (ala Paul St. Amand), 2) gluten/gliaden sensitivity, and diet in general, 3) certain types of neurofeedback that utilize Ultra Low Power signals, like Neuro-Gen, 4) infra-red light therapy, like the Nano-Beam 940 or Photonic Stimulator or SOTA LightWorks, and 5) methylation (Note: items 1 and 4 may cause temporary increase in pain as symptoms resolve, 3 and 4 are related to the ANS response cited in the article).

  1191. My friend suffers terribly with fibromyalgia – aches all over and gets what she describes as fibro-fog and is often totally wiped out. She has found she gets better sleep and less achey muscles by drinking cherry juice. She gets it from Holland & Barrett and its called Cherry Active or something like that. Apparently, its been shown in proper medical trials to help sleep and muscle recovery. England rugby are said to use it after matches to help their muscles recover, not that they have fibromyalgia, but their muscles must ache like hell after a good bashing. Hope that helps. Graham

    1. Montmerency cherry, great anti-inflammatory graham 🙂 i’m not talking about managing the condition but actually reversing it completely….. i had RA and FM and have had no issues at all for 5yrs now…. supplements are only half the battle and cherry in itself is not adequate to fix the issue, only manage it…. get your friend to go onto http://www.bant.org.uk to find a qualifed local Nutritional Therapist… They will will give her all the necessary tools for her to find a solution to reverse the condition and not just pain management.

  1192. i have RA and Fibromyalgis my legs hurt me so bad sometimes it seem like i can’t take it any longer. They ake, they thob,they burn my flesh is sore and my bones are sore and i also have restless legs therefore they jump and cramp.I have taken all kinds of med’s but nothing seems to work.sometimes i think the Dr thinks that i am crazy every time i go i just try another med. some days i can’t even walk they hurt so bad. please help me if you can.

    Thank You

    1. Hi Sylvia, go and find a nutritional therapist that is experienced in dealing in FM. I had sequelss leg syndrome with painful muscle cramps and spasms. Turned out I was getting them due to excess toxicity levels and a magnesium and zinc efficiency. There is not a single symptom that you that not fixable. I had all of these symptoms and now don’t. If you give your body the correct tools it will fix itself! It’s not easy to diet your lifestyle habits. It’s far easier to pop pills. But pills can not fix this, giving your body what it needs will. Good luck 🙂

    2. Describes it to a T. I used to have restless leg and it drove me crazy-I no longer have restless but I now have restless feet! They tingle, burn, feel like I can imagine frost bite would feel-my toes sometimes I feel they are not there they get so numb & stiff feeling. I use voltaren. & kenzen medicated cool spray I feel it temporarily gives my feet some relief. I take Gabapenten-Flexerill & Aleve or Advil for overall. This article is interesting to me because I just finished a thorough nerve conduction exam & discovered I has severe carpal tunnel in both my wrists. I kid you not I have never felt any pain in my wrists & was so shocked-apparently I have had it for years. Maybe because I have so much pain all over (my fibro roams & it is mainly all down my right side) It’s all a great mystery. I never used the title fibromyalgia when I worked because everyone joked that fibromyalgia was all in your head. I say I have joint & muscular arthritis. Actually I was referred to the Arthritis Society by my specialist.

  1193. Anyone actually thought about seeing a nutritional therapist??? I HAD FM for 3yrs (i spent most of that time in bed) and decided to see one and after 5 months of cutting out sugar, dairy and gluten being put on supplements to heal my leaky gut syndome and all my symptoms had completely gone…. check out paleo diet….

    FM patients in general have digestive issues, malnourishment and an inflammatory process occuring, blood sugar levels imbalanced and adrenal fatigue…. all of these can be addresses with diet and supplements… when will people realise medication is not the answer for a lifestyle related disease?!?! listen to your body and make a change! It was 7 yrs ago since i was diagnosed and have no issues at all infact i feel better than i have ever felt. educate not medicate

    1. With you 100%!!! Thats is my experience exactly! When will people start taking responsibility for their health, rather than reaching for a pill to become numb. And the good news is that the diet and lifestyle changes you need to make to manage FMS are also awesome for every other aspect of your health! Its a win win…..

      1. Ahhh Prana, you speak music to my ears 🙂 well done you for thinking outside the box!!! My favourite is the support groups for fibromyalgia where everyone sits there moaning at how ill they feel with a cup of tea and cookies!?!

    2. Gemma, I live in Maine and I have never heard of one of these nutritional therapists, where do I find one???

  1194. Hi i have approched fm from a lot of different angels. I do not react well to medication it sends my moods chaotic, cursing and feeling really low. amytryptaline , fluxotine , dysopromide , heart, beta blockers diclofenac, tramadol, gabapentin , all collectively nearly put me in the nut house or worse, i decided to go natural and experiment with cannabis and got remarkable results, i was able to sleep , and relax. magnificent so far. The downside was i did not get much done, i learned to make cannabis butter wich i cook with, this levels out the headchange (high ) i hardly know i am on anything. it is not a cure all but a huge help to me. i work on diet cutting out sugar and carbs again with positive results. i have gave up on doctors as they simply do not understand FM. i would say i am 40%better generally allthough i still get a flare up and have to adjust, i am able to medicate with canna -cake and just relax, i am quite useless , i dont achieve a lot , but i can manage the pain the aches the fatigue then whenever it abates i am able to go about my life. I have ruptured discs in my back and this causes a lot of pain no pain relief works at all, fact, I dont know how cannabis works but it seems to allow my brain to disasociate from the pain if that makes sense. Just for the record i was a drug support worker witha lot of skills and know how to get the information i need and make an adult decisionon how to heal myself. There was a point pre cannabis that i had lost the will to live.

    1. Hey Paul, I too am a fm sufferer. I found cannabis is my medication as the only pain killer I can take is paracetamol. At the moment I having quite a couple of bad days…very painful bad days. I’ve also got a cracked vertebrae and it’s pushed inwards so the nerves are constantly pinched…so constant pain…all I can do 4 that is exercise every day. Cannabis is my relaxation @ the end of my working day. Been a single mum for 17 years. I work and at the end of the day I don’t drink alcohol which is bad for you, or take prescription drugs that can kill you if you are in excruciating pain and can’t take

  1195. This is an interesting article but I would need more detail about how the study was conducted. I have had FMS all of my life (diagnosed 15 years ago, or so after a flare-up) and, interestingly, I am a guy…6’2″ and 200# and 64 years old. Talk about surprised…my internist was so apologetic…I had had nerve conduction studies and the like….he said I just didn’t fit the mold of the typical FMS patient (female, obese and sedentary) but I had the tender points etc. unique to FMS. How to treat was the issue and I tried several meds till I struck on a low dose of generic amitriptyline. Coupled with regular moderate exercise I got my life back though it’s not perfect I can deal with the numbness, pain and other symptoms common to FMS. I KNOW it hurts but the long term benefits of getting up and moving will almost surely change your life. You just have to do it..

  1196. I can relate to Rebeca ,plus when i do fall asleep,which is very seldome,my armss,legs ,back,ribs,feet,toes,all through my boby pain wicked after one and half to two hrs.,that wakes me ,living on 3 hrs. sleep a 48 hrs.,one and a half hrs. at a time.Been having headackes every night for last 2 yrs.,never had headackes in my life untill 2 yrs. ago.I would do anything to get 5 or 6 hrs of sleep straight ahead in 48 hrs. ,just not possible.I,ve tryed al meds. includind antidressants 6 or 8 kinds,sleep pills,narcotics,even went so low as to try cannnabiss couple times ,did get 3 straight hrs that night ,but paid for it for the longer i stay asleep the worse i am when i wake.Drs. have gave up on me and mental drs. as well. that why i decided to try cannabis,Been suffering for yers ,sometimes i wish i,d go to slep and not wake,it ets that bad by times…..Given up ,anyone peronally or dr. i would be willing to try or do anyhing for relief.Sure hope someone fially got at least help for it.Sometimes Drs,.,just DON,T LISTEN to their patients,after all who would know how you feel ,better than yourself,if anyone have a suggestion i would REALY appritiata it ,thank you .,must go paining wicked all through my body!!!!!!!!!!!!!!!!!!1

    1. Hi Earl,
      I have suffered with excruciating pain and MANY sleepless nights for years, just like you and so many others here. I’ve had migraines since I was about 12 years old but in the past couple years they have gotten real bad. So bad that I was having severe migraines 2-3 times a week and the thought of going on just seem to be not worth it anymore. I also have degenerative arthritis in my spine, severe sciatic nerve damage in both hips, anxiety/depression disorder, and MS. Well, a little over a month ago, a friend of mine introduced me to a product that is 100% natural and has made going on SO much easier and very much worth it. I don’t have migraines anymore, the pain in my back, hips, and legs is all but gone, and the best thing is, I now remember what it feels like to sleep 5 or 6 hours straight through and wake up without pain and actually have energy to face life again!! I would really love to share this information with you and anyone else who reads this. If you’re interested, email me at [email protected] and I’ll tell you how you can start to live again, too. Hope to hear from you soon!! 🙂

  1197. For most people with Fibromyalgia, I’d highly recommend seeking out a Floatation Tank / Floatation Center near where you live, and getting into discussion with them about floating as a way to help with Fibro 🙂 There’s been significant amounts of research done about the benefits of floating in a float tank (which contains over 900 lbs of Epsom Salt, dissolved into 10 inches of body temp water) on Fibro symptoms. I’d recommend checking out http://fibromyalgiaflotationproject.com/ and doing some more research on it 🙂

    If you’d like to speak about Float Therapy for Fibro, feel free to email me – wefloatyou at gmail dot com . Cheers!

  1198. I have been suffering with Fibromyalgia since 2006. I have been on several different medications. Finally I’m almost pain free and losing weight due to previous medications. I have found taking Savella 100mg twice daily, Plaquenil twice daily, Fluoxetine 40mg, Clonazepam 1mg twice daily and Amitriptyline 100mg at bedtime, Vitamin D 1000mg, Fish oil, try to avoid cow dairy products, Hydrocodone 5/325mg-2 tabs twice daily. I have changed jobs from a desk to being on my feet 8 hrs daily. I was previously on Cymbalta and Oxycontin changed to the Fluoxetine and Hydrocodone and added Plaquenil. I can’t say for sure if I’m feeling better due to the Plaquenil only been on that for 2 1/2 months. So maybe it’s the med or just being more active? I have lost 20 lbs in the last 3-4 months? Again not sure why. Anyways one Dr told me if I wasn’t dreaming then I wasn’t getting the right kind of sleep. I use to sleep at times for a whole weekend, very painful hands and feet. Life is finally getting better! See Dr again tomorrow to see if we will continue with the Savella (I’m really not wanting to stop it) as I got the most relief from it.

  1199. I could actually can relate to all of your pain symptoms because I myself did suffered from it in tormenting pain night and day. Over 20 years later, I am pain free, I have my life back greater than my old life. I thank God for delivering me and he could do the same for you as well. I went to my doctors who thougtht that I was crazy, and the condition was just in my head. Referral to other doctors only left me hopeless. The only thing that seemed to work for me was going to the pain clinic for relief on a weekly basic to take shot injections to break the pain cycle. Weight gain and depression were a constant reminder to me that there was no cure unti I seeked God to heal my body, and that was exactly what he did. I am telling you not to give up, but to seek God first and foremost and He has the power to restore your health according to his word. By the strips of Jesus you can be healed too.

  1200. This makes sense. I have had dental work, and one very GREAT dentist realized I was still having pain even after my shot of Novocaine. He told me there are some people where the nerve endings on one side of the mouth are also on the other side. When he works on me now, he gives me Novocaine on both sides, and for the first time in my life, I FINALLY don’t have pain when having dental work done- as I used to be white knuckle still feeling pain when I was told it was impossible to have any after the shot. Sounds like extra nerve endings or blood vessels cause more than one issue!

  1201. I was thrown into fms world when I went to the doctor for flu like aches in my legs that were minimum but back then was horrible bad…everything I went in for from then on out, the doctor would say oh it’s just your fibromyalgia…I requested to see a rheumatologist she denied me because she knew what fms was and she clearly was right and didn’t need a second opinion…so I switched doctors…they sent me to the rhumotologist who ruled out fibromyalgia and recommended lower back issues or muscle biopsy of my legs…I’ve lost muscle tone for unknown reasons…did biopsy everything checked out ok now doctor thinks its psychosomatic….all in my head….same with all I go in for only because I’ve had a lot of grief in my life and they want to put me on antidepressants for circumstantial depression, I’m ready to change doctors again but that would only label me pill seeker and I want cure over norco, naproxen, gabapentin, and Valium….my pain in my legs are to the point I feel if they were cut off I would be better off…it’s that bad and cold does make it worse now we are in summer I’m doing a little better instead of every 8 hours take my meds I can go longer but if I walk a lot or bend over a lot it aggravates it and I may need the norco every 6 hours for awhile just to function…I’m tired but can’t sleep then I sleep when I shouldn’t (not driving thank God and not mid sentence, just when I don’t want to sleep) anyways…since its my legs only effected, they say no to fibromyalgia, but now my shoulder and arms are losing muscle tone and I have bursitis in my right shoulder, anyway…this article makes me ok with fms diagnosis now because this means they have to acknowledge me as human who is suffering physically not mentally…thank you for not giving up on us and kept looking for a cause…so thankful it’s not in my head…now to find a fix…my legs hurt…but I can’t feel hot and I got drawn blood both elbow creases, and in each hand I didn’t cringe….I can’t take the aching in my legs I’m ready for amputation…the flue is in my lower back and hips and radiates down my legs with occasional stabling cramp in my back of my calves sometimes inner thighs…I’m ready to see House or mystery diagnosis show figure me out…had a episode of stroke like symptoms awhile back my whole right side felt heavy…tests denied that but I had braces on when they did the ct of my brain…anyway….I’m a basket case according to my doctor…help me please there is more but that’s enough well I will add I’m allergic to a lot of foods swelling tongue and lips never throat closed knock on wood had tmjd anyways I’m a mess…help me!

    1. To Rabeka Jo Drew. I was wondering if any of your doctors have looked for a disease called Charcot-Marie-Tooth? It’s in the M.D. category and is sometimes hard to diagnose. I have it in my family line and I am starting to wonder if its what I have.

      Good Luck Girl

  1202. I am an older gal. It seems that a genetic “thing” has kicked in that is comprising the blood flow in my legs from the knee to the toes in both legs. I have to tell you that it looked to be very damaging but, to be honest, I am a BodyTalk practitioner and because it effectively addresses genetic issues, I seem to be okay, not going down that slippery slope. I also highly suggest that you investigate this energy modality.

  1203. My girl friend has it and its just like you describe so what will be the cure.

  1204. I’ve been diagnosed with Fibro since the early ’80’s.. I’ve noticed over the years, that I could not drink more than 1 cup of coffee and a coke in one day, or I was pretty much crippled the next day.. I began to think it was the acid in those drinks, plus, I’m also now off sugar so I drink diet soda.. But my Fibro only acts up when I go over my limit.. So I’m convinced its the acid. Too much activity also fatigue will make it act up.

    1. Karen,
      Please consider that the diet soda could also be contributing in some way. Aspartame is a very potentially dangerous chemical.

    2. Yes Karen – Please be careful with the diet soda and do some research about the dangers of aspartame! Diet soda is far more dangerous than regular soda (although the sugar in regular soda is for sure a recipe for FMS pain) ! I am a Health Councillor with FMS, which I am able to manage through diet and lifestyle and I rarely get any pain these days, so I have experience in this area.
      It’s also the caffeine in these drinks that makes the FMS symptoms flare up and go crazy!
      Congratulations for going off sugar!!! That is one of the best things you can do for your FMS!!!!!

  1205. I have lived with this disease since I was first diagnosed in Summer of ’97. I have all the extras that go with the disease from Chronic Fatigue, Chronic Migraines, Restless Leg, Muscle craps, Muscle spasms, Chronic Pain, etc… all this on top of the issues of a closed head injury that I got at the same time as the accident that I never recovered from that lead to my diagnosis. Forgive me for being skeptical, but I don’t understand how a type A personality, that had always been very active and athletic. Can get into an accident and you say that my diagnosis was caused from excess fibers/blood vessels in my hands!?! It would be amazing if it were true that there is a cure around the corner. But all the drugs that have come out haven’t helped me at all. The commercials make me want to break the television because they are maybe helpful for someone with a titch of FM. Why haven’t they come up with a scale for FM? I have people that work and bike and go out at night…. tell me, “Oh, I have that too!” I can’t do any of that stuff. I have to use a cane. I am trying to get ready to move and am in so much pain. I’m sorry that I am being so negative, but I gotta see it to believe it.
    CJ

  1206. I have been diagnosed with fibromyalgia, ankylosingspondylosis arthritis, and manic depression, PTSD, the doctors have me on so many medications, pain meds, antidepressants and sedatives. I have lost all interest in everyday activities. I have tried to take Cymbalta for the pain with no results. I have wonderful doctors who seem to understand what I am going through, unfortunantly my friends and family don’t understand and they think I am making everything up, especially my children. I have been able to get disability,thanks to a great attorney. I now have to use a walker and scooter to get around or I fall down a lot. still do sometimes. when I go out shopping with my husband I get dirty looks when I am using my scooter or park in a disabled parking spot. I know that eventually a doctor will find a way to help those of us that really need it. but for now life for me has gotten very hard and I wonder if it is all worth it, sometimes I feel there is only one way to make it all end. please to all of those out there don’t give up. you are not alone and we just need to keep fighting. we will make it!!!

  1207. Exercise, gentle strengthening and low impact aerobics, is the only thing that beats back the pain, soreness, stiffness, and depression. Get up out of bed, take a hot shower, and go for a long walk in a beautiful place. This is the only treatment that has ever worked for me. I have battled Fibro for more than 15 years, and only when I am fit am I functional. Love yourself enough to get up and move. I promise you will feel better after making those spasming muscles fatigued.

    1. I have had fibro for 20 years now. As an RN, I have lead support groups and done much frequent and on-going research, along with utilizing both allopathic and naturopathic methods to help. It appears no one has the same story or the same symptoms, other than the trigger points. There even is ambiguity about whether or not they are unique to fibromites.
      This is the first I have heard of this hypothesis. I would like to see the research on this and the size and length of the study. This is a prudent question for anyone to ask before indulging in wishful thinking. I have been there many times. Keep interested in life and keep moving. Try to focus on the positive; after all, you do have a choice–i.e. having a bad day? Don’t let your attitude follow and turn it into “bad life” if you can. Stay around positive people. Be on the lookout for what is helpful for you and try everything you can to help your body help itself.
      Good luck to all my fellow sufferers, world-wide. May a Nobel Prize winner be working on a cure for all of us right now. I want my life back too but some of my friends have already lost that battle and I am not ready to throw in the towel quite yet!

  1208. i was digonosed with fibro a year ago at first they thought it was cronic fatigue syndrome from getting galangula fever!! i used to hate it as doctors seem to put it down to depresion and physoclogical issues which i have none of either so i refused the anti depresants they were trying to give me i find im stiff and sore most days but just grim and bare it so im no putting drugs into my body that arent needed which this article now may prove you dont need the antidepresants to deal with fibro

  1209. I got severe whiplash also and that’s when all the problems started. I’ve also been telling the doctors for yrs now that I think there’s something wrong with my nervous system !! Wow! I find out I’m right….! Omg! Please find the cure! I’ve been suffering for years!
    I want my life back!

    1. I started suffering fibro and CFS after a car accident which cause side-to-side whiplash. It’s ruined my life!

  1210. I heard that some people have been cured by stopping the consumpsion of diet cola.

    1. I do not drink diet drinks of any kind and I never have. First off, I am allergic to aspartame but even if I weren’t, I wouldn’t put that poison in my body. So this would not be the case for me having Fibromyalgia. I also tried a gluten free diet for almost a year to no avail. I think it’s great that some people have stopped drinking diet drinks for whatever reason they did so, but I do not believe it has anything to do with Fibromyalgia. My mother and sister also have it snd neither of them drink diet either.

  1211. I am 49 yr’s old & I have Fibromyalgia, Osteoarthritis, Bursitis, COPD, & High Blood Preasure, Generated Disc Decease. I was wondering do any else have trouble sitting or laying down still very long ? Very where ache or out right hurt, I am tired all the time, Can’t think straight at times, I have lost interest in things I would love to do or just to tired or hurting to much do bother.At times when I can go for a walk, my hands swell & hurt, My lower back is so painful I am not sure I will make it home again, every step can be torcher. What hurts the most is the way people look at you like your nut’s or make excuse’s for not doing thing’s, They even say pop a couple pain kill’s and get things done or just ignore it do what needs to be done. Get out & excerise more HA HA !!!.That’s easier said than done. I am living on limited funds, well below limited, My doctor says it would to hard to get on disability, That’s when I can get to see a my doctor as I don’t have a car & can’t afford to pay someone that’s when I can find someone who’s willing to take me. Ok That’s enough of my Venting, I just want to let other’s they are not alone in this struggle. Take care & God Bless

  1212. I stopped all narcotic meds abut two years ago, while taking the pain away for the most part I did not like the side effects. My doctor then started me on Cymbalta and it has provided me with so much relief – almost pain free.

    1. I became ill at 17 yrs old after having a baby in ’91 and never touched drugs or alcohol. And still don’t but after surgery in ’97 I couldn’t walk, was confined to a wheelchair, my life stopped while everybody’s moved on including my child. So my physical therapist said I had to take some type of pain Meds to do the therapy so I have been on narcotics since ’98 and other than constipation( i have IBS, too) i thought i didnt have any side effects till now i know different and this feb I weaned myself down but I was on a high dosage narcotic and I did it on my own but didn’t have lower doses of the Meds and so I had to go on another drug to get me off of this drug. It still makes no sense to me but I want another child and can’t be on anything so I have prayed and tried to quit cold turkey but the pain was so bad that the drs said I was doing more harm than good to my body so it’s been about a wk off the narcotic and now on a non narcotic. The pain is starting to come back in places that I thought were ok but I’m determined so I was wondering really how you weaned off the narcotics and do you feel any different on the cymbalta and any side effects. If you could email me that would be great I’d like to hear your prospective. Thanks Tiffany

  1213. This brand new hypothesis needs a LOT more testing before you can say the mystery is “finally solved”. But this is the Guardian so I’m not surprised at the hyperbole. The hypothesis is interesting though.

  1214. I have fibro and deal with enormous amounts of pain every single day of my life. I am stubborn enough to continue to do gardening and weaving cedar bark baskets and to do that I need to harvest the cedar from the tree in the forests in the mountains around near where we live. This is truly hard work! I have a very understanding doctor who is at this time treating me with morphine sulfate twice a day and codeine during the day when it gets too bad. This is not a long term treatment but just enough to get me going and continuing to move which in of itself is a big help! If I just lay in bed the pain takes over, granted that when I need to I rest, for the whole day if that is what I need, but then I take myself up and get moving even though it hurts at first. Sufferers need to find a focal point of interest to encourage themselves to get up and moving even though it HURTS at first. My husband is a huge supporter and encourages me back into life when things seem dark. We both love to garden and weave and also both deal with LOTS of pain daily, so he has a genuine understanding of my off days and helps where he can to relieve the pain and sadness that I can’t do what I want to that day. I can take a lot of will power to get up when your brain screams that it hurts too much but that is what you need to do but also be understanding of the days when you need to take a break. Plus you need to find a doctor and pain management care givers that can help guide you to gentle exercises to loosen up stiffened joints and muscles before moving and, well, doing anything. I have found this to be the most effective when I need to get moving after resting a day to two after very hard work or even on cold rainy days. I have had many small injuries that for most people mean nothing later in life but for me it has made the points of pain even more sensitive so I have to have a better understanding of my own limitations and go from there. Thank you for letting me share my story here and am very hopeful that this new information on fibromyalgia! Take care and Take Heart that you can do it! Will power is essential to my getting up and doing what I love to do!

    1. Do a reseach about Bodytalk System!!!! I am cured from RA, CD, MS and years of suffering with almost 3x very close to death, actually one death to be more precise!!! Good luck and dont trust medicine they dont know nothing. Medicine still a Cartesian way to see things, the bodyt is a lot more complex that they can see!!!! Good luck.
      Dra Samara Vanini S2

    2. What is your diet like? there is sooooo much you can do with diet to relieve the symptoms of FMS – I only took meds for 7 months, and hated the way they made me feel, so I slowly weaned myself off them and focused on slow diet and lifestyle changes. And now I hardly ever have pain, and I have been able to re-build my strength (slowly) to get to a stage where I can go jogging, do aerobics and kickboxing workouts etc….don’t lose hope! There are so many things you can do!!!

  1215. My Dr. told me, “I’d tell you you have Fibromyalgia but I don’t believe in it.” Then I tried Isagenix and learned to drink lots of water, cut sugar, no diet drinks, and most of my symptoms vanished. That was almost 15 years ago. I’ve gone off and on with the sugar and “know” it is a terrible fibro trigger. Right now I’m “off” (mostly) sugar and am seeing a difference. Good luck everyone!

  1216. I was diagnosed with fibro three years ago, and in the last year and a half I have been on 17 different pain meds and various anti depressants.
    I had gone to the emergency room for a debilating headache that had lasted about three days, at which time they admitted me and I had a team of Dr.s give me ever test possible. After a month of being hospitalized, I was released with 17 different diagnoses. Since that time I have not been able to work or do any physical exersion what so ever. The meds that the Dr.s are giving me are not working, which contributes to my depression of not being able to function as I once did! Every other symptom that I had has been resolved except the one that I went to the hospital for in the first place. No one, including my family and friends seems to understand why, they think I am making it up or faking. All I want is to live a life of some normalcy.

    1. Do a research about Bodytalk System!!!! I am cured from RA, CD, MS and years of suffering with almost 3x very close to death, actually one death to be more precise!!! Good luck and dont trust in the Medicine, they know nothing. Medicine still a Cartesian way to see things, the body is a lot more complex that they can see!!!! Good luck.
      Dra Samara Vanini S2

    2. I am exactly where you are but need to go in hospital, just can’t afford it. Lost my insurance when I wasn’t able to function! And lost my job. Thank you for sharing, it means a lot to know I’m not alone. Now if I can find a way to afford the doctors I might get on the right medicines, what I do take isn’t enough!!! All I want is family & friends to know I’m NOT making it up & have a little life. I’m getting to the point of “if this is it… Then what’s the point?”

      1. Hi Laradee, I just read your remarks and Believe me I know how you feel! There isn’t a day goes by that I am NOT in pain but, and this is a Big but.. we are still here and they (who ever THEY might be) are going to come up with something that will help! I have read some comments tonight that have given me some different idea’s or possible solutions, that I am going to be discussing with my Dr.s. If things are not working for you, let your Dr. know. Ask questions, read medical reports…try something new…But…DON’T GIVE UP!

  1217. This is very interesting. I have had fibromyalgia for 20 some years. Recently I was in the hospital for osteomyelitis (bone infection). I was told that decreased blood flow from venous occlusive disease which resulted from small blood vessels lead to neuropathy. Decreased sensation from the neuropathy allowed for the osteomyelitis to go to the bone undetected by me until I could see that my toe was becoming infected. By the time I went to a podiatrist, it was too late to save my toe. The toe had to be amputated!

    1. Do a research about Bodytalk System!!!! I am cured from RA, CD, MS and years of suffering with almost 3x very close to death, actually one death to be more precise!!! Good luck and dont trust in the Medicine, they know nothing. Medicine still a Cartesian way to see things, the body is a lot more complex that they can see!!!! Good luck.
      Dra Samara Vanini S2

  1218. Most of the people that I have met with fibromyalgia have all had a rear-end car collision resulting in sever whiplash. Do not know why that is true?

    1. Suite à une intervention chirurgicale , mais j’ai aussi eu le coup du lapin ..
      Je souhaite de tout cœur et de tout corps que toutes ses douleurs soient enfin comprissent et soulagées …

    2. I had a roll over car accident then three months later a head on one both not my fault but my body hurts still 22 yrs later

  1219. I have watched my 40 year old daughter suffer with fibro now for about 9 years and it rips out my heart. When people think it’s all in her head, I could just scream. I watched her lose her life to her bed and now to severe depression. NOTHING helps and she has tried her fair share of treatments. The doctors in most cases, don’t know what causes it, they offer certain remedies and when they don’t work, they become frustrated and actually reject the patient and treat them like they were crazy. It’s a mean, cruel disease and folks IT IS A REAL DISEASE. I’ve prayed that God take it from her and give it to me because I can’t bare to watch her suffer day in and day out. She gets very infrequent respite, which is very short lived. She has three beautiful daughters who think she is just lazy and only wants to sleep. It’s so very sad. There HAS to be someone in this US who can focus on this disease and find out how to treat it. There is something wrong inside these bodies, someone HAS to find out what it is. It’s a robber of life, jobs, and marriages. It strips away at your confidence, your ability to think on your own and make decisions, and takes away every morsel of hope. Please, someone, help her and all the others who are suffering so badly.

    1. Do a research about Bodytalk System!!!! I am cured from RA, CD, MS and years of suffering with almost 3x very close to death, actually one death to be more precise!!! Good luck and dont trust in the Medicine, they know nothing. Medicine still a Cartesian way to see things, the body is a lot more complex that they can see!!!! Good luck.
      Dra Samara Vanini S2

    2. there is a book by Dr. Elrod that helps people with fibomiagia get their life back. It is a very good program that worked for me. I believe you can find and buy the book online or have a book store order it in for you.

  1220. Quite interesting. Practitioners using “The BodyTalk System” have had lots of success with Fibromyalgia. My experience with it is that it is highly tied to and individuals memory. That memory can be both physical and energetic. Go to the bodytalksystem.com website if you are interested in finding a practitioner in your area.

  1221. Who are these sources? What institution funded this study, and when was it peer reviewed?

  1222. Magnetic therapy has worked for thousands of year without the Doctors approval. FDA and all that other nonsense is just about making profits in the pill form.

    1. I to use magnetic therapy, Nikken, it really helps. And I take 250mg. of Curcumin every day and sometimes I take it 2x. The magnets I use daily and in my shoes and around my neck, a necklace and bracelets and some sometimes I wear the bracelets around my ankles.

  1223. Any breakthrough in treatment and understanding would be heaven sent. I am currently being treated with acupuncture for fibromyalgia together with an antidepressant and pain meds and this is the best I have felt in years. I also suffer from polymyalgia which complicates things even more but I think the acupuncture it the thing which is helping the most. He targets the nervous system so I think he is on the right track.

    1. I also just started accupuncture and it has been helping more than all the drugs over the years.

  1224. I would welcome any new discoveries and it is great that there is so much new researches on fibro, it could be a combination of things going on or just one root cause affecting everything but it will take a while before they can actually prove one specific theory – d treatment to their theory would have to work for them to be correct. I personally think its either stemming from bad blood(deoxygenated)not regenerating muscles n cells or severed spinal cord resulting in consistant malfunctioning of the muscles, nerves and blood so any little thing shinks us to quivelling shrinking violets on the inside.

  1225. This article doesn’t give me any answers…only more questions. Where was this discovery made, how many were in the study? What is the next step? Is this just another BS from the insurance companies?

  1226. Perhaps this will open a peep hole into how autoimmune diseases occur, many people suffer multiple autoimmune symptoms that are treated in the same manner as fibromyalgia. Here’s hoping!

  1227. Sonja, First, prayers & positive thoughts to you. If you are on Lyrica or similar anti-seizure meds, one of the side effects is shakiness/termors. I didn’t realize it, nor did my GP, but when I compared notes with my BIL who was on it, his doc told him up front it was a known side effect.

  1228. My seventeen year old daughter has taken to her bed for past three years she suffers so much pain and is so tired depressed I have had her to so many drs so many test now they are saying they think she has manic and have tried to put her on bipolar medications she sees a dr next week who apparently will diagnose firo or chronic fatigue she has also suffered to bouts of glandular fevor please can anyone help me I lost my marriage and friends and family over this as they think she is just putting this on!!! mothers know best it doest go on this long thankyou julie

    1. l have found a treatment that takes my pain away at least 80%. Yes, I am Not joking.
      This treatment is called ; SOQI BED & CHI machine. The bed { like a chiropractor’s treatment bed } cerate’s an infrared heat that is absorbed in the skin. A person lies down on this bed and three “domes” are brought down over you. This heat is a dry, gentle and not too hot. People with arthritis can use these SOQI BEDS because they do not cause inflammation caused by extreme heat.
      If One is interested please go online and check out these treatment beds.
      You do not sleep on them, they are used as a treatment.

      This SOQI BED & CHI machine changed my life.
      I only wish more people know about them instead of having to take pain meds. & suffer as I have had to until someone suggested I try a treatment.
      The experience is amazingly pleasant. One feels the beautiful warm and gentle heat while listening to soft music and that’s it. feeling of wellbeing begins…. it’s that simple.
      For me, it is simply a MIRACLE !

      After all with all that pain: we have nothing to loose in trying such an easy and pleasant “experience”.

      Wishing you all a SOQI BED day.
      LJLG

    2. My daughter was diagnosed at sixteen, which everyone said was young for fibromyalgia. My health provider had absolutely nothing for treatment of pain for minors until another mother and I spoke up about this in the parents’ of chemically dependent teenagers group meeting — yes, the pain led her into addiction. When I was talking about my own stress to my doctor, she expressed skepticism about the diagnosis for my daughter, so I know that even people who should know better aren’t always supportive. My daughter also has anxiety and depression issues, so don’t discount there are other things going on besides fibro. The good news is that my daughter at 22 is clean, self-supporting and happy on anti-anxiety meds and a small dose of the opiate-blocker Suboxon (closely monitored by a doctor). She still has issues with appetite (none) and maintaining weight.

      No 14-year-old girl takes to her bed for three years without there being a serious problem, whatever it is. Good luck with this. They say you’re meant to learn from everything life hands you, but sometimes you just want it to be summer vacation! Stay strong; take care of yourself, too.

    3. Julie, I feel so sorry for you, as caretaker, and your daughter, as the patient. I am 71 yrs. old and was diagnosed when I was 23 yrs. old. My husband of lea than three yrs. had died the year before leaving me with a 3mo.old and 17 mo. old baby. My body began falling apart. GI tract, female organs, migraine headaches, arthritis symptoms, aching between joints, you name it and it happened. My MD called it “fibrositis”, said there was no cure, and I would have to put up with it. Of course they treated each individual symptom. My MD said the trauma of my husbands death caused my body to turn on itself thus causing the fibromyalgia. I wish I could offer you some HOPE, but my life has been a parade to MDs. offices, hospitals for various surgeries or treatments, a 35 year history of migraines with hosp. adm. for dehydration, etc. I know this is not an encouraging message, but I did raise my dgtrs. and help raise my grandchildren, worked 25 yrs. in Family Practice Offices (a very stressful job). Basically, I’ve lived “around” the fibro. Good days, I lived–bad days I hibernated. I hope they come up with something to relieve the pain before I die. God Bless You All!!!!!!!!!! I hope I haven’t brought you down but, rather, showed that, with determination and a support system, the “DEMON” can be lived with.

  1229. Many commentators mentioned that there’s proof that there’s different brain activity in people with FM, so they are quick to conclude that it’s from the brain and dismiss this article. I honestly believe that it’s the other way around. There is different brain activity – simply because the brain reacts to the pain of the body. The brain activity is a consequence, not the reason for the pain.
    I’ve been to different doctors and what I’ve heard is – less stress, more sleep, more physical activity. Well… I can’t have any physical activity – because it hurts. I sleep a lot. No – A LOT (I don’t work 9-5, and I have no problem sleeping till noon if I feel like it). I have very little (or no) stress in my life. And the pain is real and not imaginary.

  1230. This is a load of crap.

    Treatments like CBT combined with Physio really do work – CBT works on the mind and as this has worked for millions its definitely not just caused by skin.

    Fibro sufferers have many things wrong with them such as Vitamin B12 / D deficiency, lack of serotonin production – this list is exhaustive so this new ‘research’ if you can call it that is potentially just another thing to add to this list.

  1231. I was only diagnosed with it in November 2012 and to be honest my GP’s try but they really haven’t got a clue at all. I went for some hydrotherapy but that was only for 12 minutes every week for 6 weeks. They do center around it being all in your mind and over stressed, but I sometimes wonder whether they really know at all. What I do know is I hurt and would love to have my life back. No one understands just how tired it makes you feel. Its an invisible illness that no one knows about. 🙁 sad and extremely frustrated.

  1232. Has the fibromyalgia mystery really been solved? This writer sounds a little too naive. The tone of the article definitely is too triumphant. In the end, this “news” probably is too good to be true…

  1233. Check out “MindBodyGreen”…..eating healthy is what this site is all about. I need to look into this method for myself as well. I just came across it by checking out what “whole food plant based diet” meant…..so this is my first time reading it too.

  1234. My fibromyalgia is caused from an overload of stress. I have dealt with stress for 15 years and i can tell you if i get stressed I hurt.

  1235. Me and my husband have this, I always thought it was due to stress, We both had demanding and relentless jobs. And seemed we was always stressed ver bill’s -kids- mortgages- I am praying for relief. I hope they can fix this after 5 million people have it we can’t all be nuts or it’s all in our heads…..Please. Find a cure…

  1236. I have suffered from Fibro Myalgia for over 10yrs and like the comments above, have not responded to treatment when others I know have and their “Fibro” symptoms have subsided or even disappeared, which makes it even more frustrating for me. I have also read extensively on the research done on this crippling and depilating condition, and diagnostic MRI have been carried out on “Fibro” sufferers and shown certain brain activity peculiar to Fibro Myalgia & ME patients, clearly proving that the Brian and Nervous System is indeed a factor in the cause of this condition, so when I read articles like this it seams to contradict all the finding recherché so far, so whom are we really truly to believe. I would be first in line of this were a cure, I would love my life back.

  1237. I love to think that there is a new breakthrough in the cause of Fibromyalgia in people. It would be nice to think that they know what causes some people to have it, and others to be ok. It would be even nicer to know why medications that seem to work for one sufferer have little to no effect on another. If we all have the same problem that results in the same pain, surely the same medication or treatment would work for all of us.
    I am sure that they have made progress in the determination of what causes Fibro, however I do not believe that a one size fits all approach is the answer, when it is clearly not the solution to treatment.

  1238. Also check out Idiopathy Inflammatory Myopathy. There are actually different terms that one might find here… I am FI & LI, in the US the worse foods are those coated in HFCS, Yellow #5 & #6 for most of us. The levels used in the US(HFCS) is actually banned in nearly every other country. In Singapore 15yrs in prison even….
    I learned from a Dr many years ago, Its Your Body, You need to care for it, Even in researching your illness. Because many Dr’s are paid by food companies in the US to stay quiet on HFCS. This also provides more $$$ flow into the health care. Why American has the highest health care debt among the people than you will find anywhere else even combining other countries, being the US is much bigger/populations, wise!!!
    He told me this after having surgery(on my foot, over a different issue), 2 Dr’s later in 3 yrs, i’d come to realize i was going to lose my foot. So requested Mayo clinic for answers, which i got, BUT nowhere near to what i thought! I was 24 hrs from losing my leg, ugh!!!!
    Now i research, tell DR’s what i have found, disagree with them(ive been wrong & so have they-but that don’t matter-the issue at hand is still Taking control to find solving the problem.) Many expect Dr’s to know everything, they too are learning as we are, yet they may have some better ways of checking, more information(If that is their field), etc….. But it still comes down on us to care for ourselves…. If Surgery don’t sound right, Don’t do it!!!! Don’t do it because a person With GP in-front of his name means more…Listen to your senses!!!!!

  1239. it would be great to think that this is a ‘breakthrough’ and there will be a ‘cure’, but all of us that have fibro know that even if this ‘new’ its not ‘new’…its just another way of describing one of the issues we face…..so it is hard to get excited about this ‘new evidence’….would love to have the grant money they got to rewrite what we feel…i think the best thing that can come out of this is that more people will believe that those of us with fibro are not crazy…it is not ‘all in our heads’….but you know, its not all in our hands either, literally or figuratively!

  1240. This is all so hard to read and believe…I have had migraines since I was 9yrs old am now 42. Was told at 22yrs that I had Fibro on top of the migraines, Shermans nodules on my spine, endometriosis, the list just goes on. I’m now pretty much an empty shell from all the surgeries and each time the pain just increases. I’m no longer employed because of the pain, I don’t sleep for days at a time, my brain does not slow down at all. I get so excited everytime I read these things…then my heart breaks thinking its all BS… I have sat here and read every comment and I can honestly say I have all the pain, signs symptoms that go with the Fibro..I’m on a handful of pain meds 3x a day, I now have tremors in my arms and hands, the Dr.s now believe it is caused from the level of pain my body is having. Have done all the testing for diabetes..thank God I don’t have it.. GUESS I will be living with the tremors, I have the most beautiful 2yr old granddaughter that I watch, so I REFUSE to up my pain meds to what the Dr.s think it should be. Being here for her is more important to me than being pain free. I wish there was a magic cure all, that all of us could be totally pain free but I’m neither nieve or stupid. I really try my best to eat healthy and exercise, I would give anything to be able to afford the Nutri-bullet, I do believe that it could help, our bodies do need the nutrients from the complete fruits and veggies..not from more pills that say vitamins on the bottle.

  1241. Has anybody tried whole food plant based diet and if so how did it work?

  1242. I also was told I had fibromyalgia after a car accident. I am in constant pain and have insomnia. I have been on many kinds of pain meds all of which just made things worse since I quickly become tolerant to them. I also have several tumors in my endrocrin system which may be malignant or may not be. I don’t want to have any more surgery since I never seem to heal and only end up in more pain.I have a family history of all kinds of cancer so most likely that is the case. I really distrust doctors after after many bad experiences! I have read so many different things about the cause of fibro and that I don’t think anyone really knows. It just gets more confusing.. At this point in my life I am on mild pain and sleep meds which I only take at night . of cause some days are worse than others and stress always makes the pain worse but no one can avoid stress in this world. I just try not to dwell on it and hope the next day will be better. I wish there was a better solution.

    1. You could very well have fibromyalgia from being involved in a car accident. That is what I have. I am much better since I did a particular cleanse and ate clean foods. But you have to keep up the clean foods or it creeps back. You could also be affected by surgeries.. Any type of major trauma to your body can cause the fibro or chronic fatigue.

  1243. @ Sophia,
    Yes, it can be triggered by any kind of trauma. I know lots of FM sufferers who have been in car accidents. If you are on FB there are a lot of support groups for FM/CFS/ ME on there.

  1244. Hi All I’ve had ME and fibromyalgia for a few years now and have started taking aloe vera and have gone gluten and dairy free. It seems to be helping.

    1. I’ve been gluten free and dairy free for 2 years and it definately helps me. Also, adding ginger to my diet has helped with the inflamation.

  1245. I was diagnosed with fibromyalgia for many years and was dismissed by doctors as it being ‘all in my head’ until one competent and thorough specialist decided to take it one step further and discover the real cause for my pain. After a MRI it was discovered that it was ‘all in my head’, my brain had herniated and caused severe damage to my spinal cord causing every nerve in my body to react adversely. After surgery, I am still in pain but my muscles have been prevented from deteriorating any further. There are causes of pain in people that need to be uncovered and not dismissed .. it is a serious, debilitating and baffling condition … but undoubtedly there is a root cause yet to be accounted for.

  1246. GERANIUM………Dr’s and nurses are NOT God! Just because they are Dr’s or nurses does NOT mean they know EVERYTHING. Fungus plays a huge role in ANY yes I say ANY disease. Before you go spouting off your ignorance……I have been DX with SLE ( Lupus ) since I was 17 and am now 50. I have had every treatment imaginable under the sun including nasty chemo…and the ONLY thing that got me off of those nasty drugs was nutrition, Killing off fungus, killing off parasites ( yes we all have them ) getting the mercury out of my teeth and seeing a chiropractor and staying away from ALL chemicals as much as possible.I am drug free for the past 15 years. I wished I could have done this earlier before those nasty drugs destroyed my kidneys. The ALMIGHTY Dr’s are BAFFLED as to HOW I got off of the drugs and am healthy now?!?!?! DUH!!! It’s called research in the RIGHT direction giving the body what it NEEDS and getting rid of things that destroy the body……and DRUGS are just ONE of the things that destroy the body! Oh and by the way, Lupus is supposed to have NO CURE either!

    1. Maybe doctors need to stop acting like Gods then. I’ve had several of my friends tell me their doctors (male) have told them that their issue was in their head. Only later to find their “issue” was diagnosed by a more competent doctor.

      1. Julie can you please email me at [email protected] I would love to learn more about what you have done to get yourself off the meds. I have gone off the oxycodeine’s, methadone, morphine, amitriptyline, carbamazepine, and a swag of other drugs, and am now only taking lyrica and Cymbalta. The lyrica is 900mg a day which is 300mg a day higher than Australian trials recommend. I am already caffeine and lactose free. I would love to know more.

        1. Hi George, that is a pretty high dose.. though it will not hurt you per what my Drs say.. if you are taking any Opiods, Benzodiazipenes, canabis, or flooding your brain with other neurotransmitters, until you are off of them 100% your subconscious is going to mimic the pain like a “Hunger” symptom. Getting off of Narcotics especially Benzo’s (Lorazepam) could take as much as 6mo to a year or more to get the brain to reprogram to not send out a pain signal to refill the lack of Benzodiazepine in your system, the last 1/2mg is the hardest. You have to find a psychiatrist that specializes in it to wean your self off with the proper counter benzos. Gabalin, Pre-Gabalin, Cymbalta are neurotransmitter inhibitors (blockers), and do not cause the brain reprogramming like the narcotics do. Your enemy is inflammation, that is caused from things like this study shows, anxiety, chemical/hormonal, anxiety/pain/depression. The Hurt from the pain can be controlled and helps reduce the inflammation response. Things like CBT, Meditation, Tai-Chi, Yoga, Exercise, Bio-Feedback, Mindfulness training, and whatever helps you relax will make a big difference. Chronic pain also have problems like Agoraphobia, Social Phobia from being isolated from being drugged up, lack of money, and just don’t feel like doing anything.. Those things can really drive up the hurt. If you can get your anxiety under control you can control how much the pain is hurting you, think Monks, people that can do Extreme pain feats. it is all going into a relaxed state.

    2. I sure would like to hear from Julie as to where she got her information….Julie you are so right. We get so puzzled that we tend to ‘give up’….and the nutritionist that I was seeing didn’t know any more about nutrition than I do, was not of any encouragement at all. It;s good to know ‘why’ certain foods are bad for us, not just saying don’t eat them. I was rushed through my appointment, left more confused. Julie if you have a website you would share it would be appreciated so much. I’m so glad that you are doing better….

      1. because some of our symptoms mimic other diseases, disabilities and chronic illness, I recommend check ing Nourishinghope.com for nutritional ideas and recipes.

  1247. This article by Rebecca Savastio is full of hype and totally misleading. However, if you want to read the ACTUAL STUDY behind her hype, go to the website of “Integrated Tissue Dynamics” and click on “News Releases” at the top of the page http://www.intidyn.com/Newsroom/News_Releases.html . There you’ll finde 3 news releases describing the research. They make no claims about “solving the fibro mystery”. They just have some new findings about abnormalities in the skin of fibro patients hands. Too bad Rebecca felt she needed to lie to get attention.

    1. I agree Laguna Ray. Research can’t stop here — at the hand!! Chronic fibro sufferers now believe a cure is around the block. Very misleading article.

  1248. I have to tell you all that I have had fibromyalgia for nearly 20 years. I was told that I would have it for life. The doctors wanted me to take medicines, but I opted for reflexology. I was exhausted, in soooo much pain, and didn’t know how I was going to get through my days. I have to tell you all, that I started juicing organic fruits and veg in February this year, and in 3 weeks, yes I said 3 weeks, the pain disappeared. I ate clean, gave up sugar, caffeine, junk foods and processed foods, along with milk. After the 4th week, I joined a fit body boot camp with intensive workouts, and I could do them. I can now run, I can exercise, I have energy, and the pain is no more.

    1. This is indeed the key. I used a particular cleanse and ate clean foods and it worked amazing. The only thing is you have to keep eating the cleansing foods. They are foods that are everyday foods like chicken and beef, no pork. There is a recommended side and not recommended side. 80% is complex carbs and 20 % protein. You do feel amazing.

  1249. I belong/subscribe to a fibromyalgia support line and net-chat with people all over the world on a continuous basis. Some are Dr.’s, Nurses, & people who have spent countless hours researching this dreadful condition..ALL HAVE FIBROMYALGIA and there has yet to be found any cure…so WHY would you publish such nonsense in the feeble hope of giving ‘US’ a reprieve from this horrid condition. That is just so cruel and you should be MORE than ashamed for setting up such a bogus site. I will leave my email address and particulars JUST so I can report this site & get it taken off the internet. I KNOW how to do that.

    1. I agree with Geranium this is a crock!!! I’m 61 and was diagnosed correctly in 1997. Of course that was after many visits to different specialist where I received a different diagnoses and a change of meds from each one. I never stop looking for new info concerning Fibro and am a member of several support groups. Each patient has their own history of when they first experienced the “PAIN” and ideas of why. Some were in accidents or very ill with something else first. Some were healthy and ran marathons. As of today I believe many began to suffer from a trauma, either emotional, physical, or both. Mine was both, plus continuing emotional abuse that I still have to deal with when it can’t be avoided.

  1250. I have never been diagnosed with fibromyalgia, but I am wondering if that is what I am experiencing, ever since I got rear ended in 2006, I just can’t seem to get answers and it is very frustrating because something is wrong with my body and it sure aint in my f##n head either!! I had no pain before the car accident, but since the car accident, I ‘ve been in constant pain, neck, shoulders, back, hips, even my joints ache at times, and I also have trouble walking-I have to use a cane and my pain is worse in the wintertime!!! My pain also increases the more that I do!!! Has anyone else experienced this after a car accident!!

    1. No offense Sophia, but Fibro occurs “out of the blue”. I have never had any accident. Came upon me slowly, one body part at a time… Just thought I was getting old until it began to hurt just way to Dam much!

      1. My pain started after I fell down the stairs. I was ok at first but gradually got worse I’ve been reliant on crutches for 5 years, almost exactly 3 years from my fall. I was diagnosed after worrying myself I had a PE in pregnancy, about 2 years ago.

      2. Robin it is caused by major trauma to your body. I does not have to be a car accident. Some women are suffering following the birth of a baby. It can be from having surgery.

      3. I got up cant walk again, like most days. I just want a normal life……I read all of our posts ,it makes me so sad. WE all sound mad well just pissed off at the world!! I feel like that everyday…the thought that Im never getting better makes me feel MAD! my DR .didn’t tell me I need a new appointment for refills on meds. I ran out. And I haven’t gone back. I am NOT a Druggie I HATE the PILLS.. I hate that they make me feel like I am!!!!!!I just want to play with my Grandbaby with out feeling that I will POP from pain.
        anyone want to talk. [email protected]

    2. Sophia … in a word … yes. 2 rear end accidents in a matter of weeks, a number of trauma injuries in the 10 years following, however once diagnosed going back through my life I have had symptoms for over 25 years … long before the car accidents. The car accidents and the trauma injuries followed by years (10) of high level stress and burning the candle at both ends resulted in my body collapsing and I have FMS and CFS as well as the damage in my back. Surgery has been ruled out and I have to live with the pain as well as know that I will some day be in a wheel chair.

  1251. I am 52 yrs old. Began experiencing hip pain about 4 yrs ago and told my DR (to no avail). It began getting worse such that I only got 2-4 hrs sleep per night. I worked from home so I could deal with it. Let me mention I ride motorcycles and my buddies noticed that I kept “dropping” my left arm. My arm would “fall asleep” and then my fingertips would hurt and tingle. I blew it off for a while thinking I had a pinched nerve. Now it is to the point that my left elbow and hand burn every night and I cannot sleep. When I do, it is during “off hours” when then pain happens to subside with 2 Alieves…I sleep all day and cannot get outta bed. This is new to me, so all of this conversation is very informational. I currently have no insurance and don’t really believe in taking pain or sleep meds other than herbal (Melatonin, St.John Wort, Valerian, Uni-Som). Is there anything else I can do until I get Insurance? Don’t even know if any of those script meds would help anyway, based on the comments… I can’t get outta bed to take them anyway!

  1252. It’s pretty hard to believe I’ve had fibromyalgia and chronic fatigue for 25 years and the last 12 have been extremely bad. I must be in denial because I still don’t believe this I’ve been told there is no cure and I would always correct my Dr. who is a specialist when it comes to fibro and fatigue. I better read this over and over again. I do not remember reading about a cure only that scientists discovers the mystery and that it has to do with the nerves in our hands. How does this explain the sleep disorders the pain all over the body legs knees everything I have wrong with me the Dr. tells me this is from fibro that is from fibroaanymore I just say is this from fibro. I would love to learn more so I could start putting my life back in order. How soon for a cure ? How can I stay updated on this.

  1253. WOW WOW WOW I canot believe this and all these comments number one DR.PEPPER OMG IT IS NO WONDER THIS LADY NOW HAS diabitis , I WAS SUFFERING FOR ALL MY LIFE AND I AM 52 YEARS OLD i AM Happy to say i know longer have fibro it is the worst pain imaginable and i wish every doctor that says it is in the head can feel it for one day omg so redox signaling molicules is the answer to every single inllness out there, now for one most fibro paitients i will say will probably get cancer why because inflamation causes cancer, and also please everyoner get a check for candida PLEEEEEESE do it because candida also causes cancer why it is inflamation but please seeeek natural remedies for killing this candida the pills the doctors give you will kill your liver, please private message me , I have been taking a product for 1.5 years it is full of redox signaling molicules this is what our bodies need to feed our broken down cells ,so our cells can comunicate with the brain YES I SAID IT IT IS IN OUR HEADS but not like doctors will say our Brain needs to comunicate with the cells pleeeeese pleeeeese believe me when i tell you this it is in our heads our brains our foggy because they need redox signalling molicules and any scientis will tell you this my email is [email protected]. PLEEEEEESE i suffered all my life and we all know stress will bring on fibro so will lack of sleep which all goes hand in hand I was on the worst narcotics possible 32 pills a day i now maybe maybe take about 3 ibproven once a month when i have lacked sleep and i feel pain only . pleeeeese listen to me IM not a doctor im living prooof .

  1254. I have had migraines all my life. You just never know where or when they are going to be your lot for the day, or several days until the pain subsides. I was diagnoses with Diabetes about 10 years ago, loss of weight and loss of energy, along with extra frequent headaches and muscle aches as well. I got the diabetes under control and now my Dr says I don’t have it. However, I have been feeling the same symptoms again lately and in checking my blood sugar level (which I hadn’t done in a year or more), I discovered it was high. Very high in fact. So, I am going back to eating more protein and less of doing without good food just because I am not hungry. 🙂 I think probably I have Fibromyalgia, but have never been diagnosed with it. If I don’t improve soon (lack of sleep/pain all night and upon waking in the morning/muscle spasms/etc), then I am going to look up some alternate medications for this tired, old feeling 75 year old. 🙂
    Thanks for reading,
    flo

    1. Hi Flo, Please check-out Ehlers Danlos Syndrome & poss SIBBO (SBBO) & candida. Hope you find help soon.

  1255. I would simply love to have the many doctors I’ve been to for some explanation of this all over body ache & fatigue I’ve had for as long as I can remember read this article about fibromyalgia! By the time I was a teenager I had learned that two aspirin taken with a cold Dr Pepper allowed me to feel almost pain free. It was difficult not being able to get Dr Pepper during school hours (no vending machines then!!) but it was the first thing I reached for when I got home so I could take two more aspirin. I sneaked aspirin in school & learned to chew them up & swallow them without anyone noticing me. I’m glad there is recognition of fibromyalgia being real & that researchers believe they have found the cause. Now for an effective treatment plan…………meanwhile, two aspirin & unsweet tea (now I’m diabetic).

  1256. Marie, I know the problem of just tipping over all of a sudden…happened frequently. One day I woke up and the whole world was spinning. I had to crawl from the couch to my chair. After googling, found out it was vertigo. The cure was to sit up straight on the couch or bed, then lean over to the left side with my left ear down. Stay that way for a count of 30, sit up then flop over to the right side, right ear down for a count of 30. Repeat a few times and do this exercise every hour or so. It took a week before the vertigo was gone and now I don’t tip over so often as before.

    1. I have found that young living is the best. look up Shana Evans cornerstone Health. I have used do terra but the quality of the YLO is better in my opinion.

  1257. I could write a books worth of comments here…instead I will just say after 56 1/4 years I will remember the pain of my family rejecting me & denying my illness & My husband who lucky for me threw me a life raft. After either having to leave people & jobs because I was sick or people leaving me. We have survived if we have, living on the margins of society. I’m so happy & grateful to have lived in torturous pain to see the day this article was written. Thank the Lord I soldiered on..I probably will not live to see a cure but the thought of Reincarnation was so harsh. My life has been so about wanting to get myself to a place where death might be a relief & fearful that i would have to bear reincarnation. God Bless all of you who have been suffering pain with me.

  1258. I think it is so awesome that they have finally found a cause for fibromyalgia. Although, a cure, or even better treatment methods, are probably going to take quite some time. But at least they are heading in the right direction. Until the cure can be discovered, I know of a product that has helped MANY fibro sufferers lead healthier and more pain-free days. All of the products we offer are 100% natural and have been approved by many doctors for their patients. If anyone would like to know more, email me at [email protected]. I have been taking several of the products for a little over a month now and I can honestly say that the everyday pain from MS and severe, almost daily, migraines is gone. And I personally know several people with fibromyalgia who have experienced pain-free days since starting on this product. It is not a cure but, it DOES help to control the pain and give you your life back!! I would love to share this with as many people as I can so email me for more info!!

  1259. What are essential oils and where do you get them? How much do you need to take?

    1. There is Young Living Essential Oils. They can treat many things. Some you take internally and some you put on diff. parts of your body for different problems. I use them and my daughter can give you more info if interested.

  1260. Ann June 25, 2013 When I read the article I couldn’t beleive it, what I’m not going to have to feel like this I’m going to have treatment. I found out in 2004 that I had fibromyalgia and at times I wouldn’t want to get out of bed but I would have to make myself do it and yes I do there is some days that are worse than otheurs. Yes we help to be able to continue leading a normal life.

  1261. I have suffered from this disease for many, many years. Long before they could put a name to it. I was told by many doctors that it was all in my head that there wasn’t anything wrong with me. When one doctor finally told me I had fibromyalgia, I asked if that was another name for telling me they didn’t know what was wrong and he said basically that’s it. We don’t know what is wrong. I feel like every nerve ending in my body is on the surface of my skin. I also have been diagnosed with Lupus so between the two I am constantly in pain. Now doing chemo treatment for Lupus but nothing ever kills the pain. Sleepless nights are a given. I worked in the Education system for 33 years and suffered through20 of those years. I can relate to all your comments. I just hope that there is a cure or treatment found sooner rather than later. It may not help me a whole lot but it will help those that will be diagnosed in the future.

  1262. Kelly Sparke, would you be willing to share what Essential Oils you are using and how you are using them. I and many others, I’m sure, would love to try this out. I too have serious digestive problems as well as fibro.

  1263. i would like to know what is meant by Essential oils, I have so much pain I rarely go out and have tried over 12 things to try to fight pain. Please help me. i am a 62 yr. old woman.

  1264. Also, lack of sleep will make me sick all over, and hurt. It is like getting cold chills, hurting all over like with the flu. All I could do was sleep it off but that was not always an option. Then after 3 or 4 days, I could feel the relief beginning in my head and slowly coming down my body. All I know is it hurts horribly.

    1. I have exactly the same thing happening. Really hate to take sick days to sleep, but it is just the only thing that helps!

  1265. I have been told many different causes of Fibromyalgia, Viral, lack of calcium, all in your head, what is stressing me out, what is depressing you now. I do know that extreme physical exertion, emotional upset, and anything that stresses me out will result in severe pain. I am anxious to find out more about this and how to treat it.

  1266. I have suffered with fibromyalgia since the late eighties. You never know how you will wake up. I now have a high tolerance for pain but I am lucky to have a doctor that recognizes the disease. I have tried everything out there and have found proper sleep helps. The problem is it is hard to sleep. I am allergic to most pain relievers and nsaids, so any help will be welcome.

  1267. I would like to know if any of you feel like you have vertigo and when I am standing or just walking I feel like I am going to fall side ways,this happens to me a lot.thanks

    1. I was constantly dizzy, and doing the bob-and-weave, particularly after a bit of exertion. I found I had low blood pressure, probably as part of my hypothyroidism symptoms. Once I started getting thyroid treatment, and eating lots of unrefined salt (yes, thyroid treatment helped fight water retention, too!) the dizziness stopped. I don’t have to get up in the night as often, and my breathing is much easier, as a rule. My hands and feet are no longer cold all the time and I am much less sensitive to cold.

      My fibro symptoms have not totally subsided, but are much better with thyroid treatment (in my case Cytomel and Synthroid). I want to try NTH again (Erfa brand) and see if I can get more improvement.

      I can’t say often enough how frequently “fibromyalgia” symptoms (and yes, I believe it is real…I just don’t think the docs know enough about how to treat it) mimic hypothyroid symptoms. If your doctor is only testing your TSH, you may never know you are hypothyroid. I suggest looking at tiredthyroid.com and/or stopthethyroidmadness.com and/or Mary Shoman’s About.com page for more information. I”m not selling anything and I have no connection to either of those websites.

      The article we are currently reading may be giving us another method of diagnosing FM but doesn’t talk about how to treat it. What are they proposing?

  1268. I have had Fibromyalgia, Chronic Fatigue and terrible pain since age 12. I am now 58. In my 20’s I became chemically sensitive and pretty useless to my family. I ahve tried some of the meds from the Neurologist and can’t tolerate them. For myself, I’m not so hopeful with anything helping anymore. Oh yes…we spent over 150k out of pocket on alternative therapies. Now that I’m getting older, I’m having more heart issues, more fluid retention, more muscle spasms, brain fog, fatigue is worse. I really grieve for all the years that I suffered so terribly and labeled by doctors, who didn’t have a clue. I’m just one of many. If a cure comes along in the form of a drug, will those of us that are very ill be able to tolerate it? That is the question…..

  1269. I’ve had Fribro since 1998. I have never had more pain! I am a Host to 12 Autoimmune Disorders. I do take Cymbalta, and really have no opinion on it. I refuse to take Narcotics for pain. About 6 months ago, I was introduced to Essential Oils. These oils have changed my life! It has helped everything from pain, to Fibro fog, digestion problems,absorption problems! Essential Oils are the WAY to GO! Contact me and I’ll be happy to let you try before you buy!!!

    1. Kelly what are the oils that you are talking about? I would be interested because I am on my 3 different medicaton for my Fribro.

    2. OH PLEASE let me know what the oils are. I’ve tried lyrica, Cymbalta and a few others they either didn’t work or I had a reaction to them. its nice to know I’m not alone but like everyone else would sooner not be going through it. oh how nice would it be just to wake up after a GOOD night sleep and have energy. oh my goodness I can’t imagine.

      1. I take Pot put into a rice cooker, add lavender oil and almond oil cook it all night on low. right be for you strain add some alcohol. cool it in frig .I put it into my bath ,and when its really bad I just rub it everywhere. it helps.

    3. I am 53 yrs old and have been suffering from the same for so many years I can’t even remember when it’s onset was. My life has spiraled so far downhill at this point. Being and feeling no good for much of anything or anyone. There is no providing for my kids anymore. I spend more and more time in bed. I’m going to say I’m in bed now 5 out of 7. I’d like to know what the oils are and how to use them. You mention being able to try them prior to buying them.

      I’d do anything, at this point! I haven’t felt well in years. I’ve got all of the worse symptoms. Pretty severe. I’ve lost so much weight in just these past few months, as well as what was lost in the last year or so.

      I have severe upper back, neck and shoulder muscle spasms. If I could just relieve this, I would be so pleased! My hands are so stiff and achy 100 % of the time. I am no longer able to do my life’s love, which is make jewelry.

      I also, wish I could just be put out of my misery, but I’ve got kids that aren’t yet self reliant. I do wish I had only myself to deal with, but I don’t. So, I really hope you will reply to my email and give me this info. I so require to, at the very least, get myself out of bed on a daily basis.
      Thanks So Much!
      Loretta

      1. Hi Loretta,
        I work with a company that offers products to help relieve pain caused from many conditions, such as fibromyalgia. All of their products are 100% natural and safe. I personally know several people whose doctors have not only approved but, encouraged their patients to continue using the products we offer. I don’t have fibro but, I do have MS, degenerative arthritis in my spine, and have suffered from severe migraines since I was 12 years old. Energy was something I used to have fond memories of. Now, since starting this all natural alternative to strong medications that cause bad side effects and sometimes don’t even work, I have pain-free days, I FINALLY sleep through the night and wake the next morning with more energy than I’ve had in years. I would love to share this with you, and anyone else who reads this comment. Email me at [email protected] and maybe I can help you as well as many others to find relief from the pain and start to live life again.

  1270. My wife has suffered from fibro for 20+ years. We have finally found a Dr. who not only understands, but is a sufferer, or more accurately was a sufferer. Dr. St Amand and his Guaifenesin Protocol is the only thing that has made sense to us. Get his book and you will be amazed how it seems “it was written about me!” just Goggle his name.

  1271. God I hope they are close to something! I was diagnosed in 2002, but I know I had it as far back as 1970’s! I have always had “sensitive” hands, smell, feet, and of course arms and legs. Only since taking these chemicals for the pain and “depression” (fatigue) have I also started being sensitive on my chest area. I used to physically fit, now not so much. I hope they can find something that works for us, so I can get back into shape and so the younger generation who have been afflicted with this painful disease can find relief sooner rather than later!

  1272. It’s been my understanding that Fibromyalgia is an auto-immune disorder initiated by an activated pathogen in the body, i.e., some kind of “bug” that begins to attack the immune system….they call them “stealth pathogens”. Fibromyalgia can be eliminated through the de-activation of the pathogens. Two alternative therapies that can accomplish this are NeuroModulation Technique (NMT) and Jaffe-Mellor Technique. (JMT)

  1273. I was diagnosed in 1996 and had to go on LTD and leave a job I really loved. I am in pain every day, all the time. I have debilitating tiredness no matter how much I sleep. Some days I just hibernate at home as I can’t deal with the pain. I hope they come up with a cure or something that will ease some of these symptoms. Not sure what to think of this article but am encouraged that they are working on finding out some answers. So many of us have it and it changes your life dramatically.,,,

  1274. there is no cure per say. Lyrica works pretty good for me. takes the pain away somewhat..

  1275. Just fix me. I don’t care what it takes, I don’t care about the science behind it. I just want to have my family, my job, and my life back

  1276. I hope this is true, as a fibro sufferer I have tried to manage my condition with minimum drugs using diet/exercise and herbal supplements.it certainly manages the symptoms but is definitely not a cure. It would be wonderful to be pain free for life, but I have my doubts that will ever happen

  1277. All I want to know is if there is a cure, when are the y going to start using it?

  1278. Yes, i agree that the illness should be renamed…I could go on about my diagnosis but will only add that as in any other medical condition, healthier diet is a must…that can mean getting rid of wt flour/sugar as a start…Another must is to have only positive people around you at all time, no one should have to explain over & over why on many days you need extra sleep and tranquility around you,,,let’s not forget to add laughter in there also…

  1279. UGH!
    I don’t know what to think…but I will say,not to long after My fibro got really bad I woke up in the night and my thumb would not straighten. I went to many Dr. They called it trigger finger? I could straighten it .But it took me to my knees with pain.After about 5 months and trying Everything.I was going to get surgery .My mother-in-law gave me some suff..It went away.
    I still have Pain every day from Fribro I cant walk in the morning at all..the pain is well, as you all know its hard to explain . I hope we find something soon..

    1. I too have suffered from this since my twenties, and have had 10 hand surgeries! Trigger fingers, cysts removal, joint reconstruction – so much pain…and the arthritis is everywhere in my body… I have high hopes of relief soon….
      But I don’t count on anything working any better… Every thing that can hurt, does. I am always tired, I wake up in the middle of the night EVERY night… my shoulders are always in tightly constricted spasms. I am Celiac. I have migraines, TMJ, foggy memory problems… All the trigger points plus some ache and you can’t even touch me… it is awful to have the hot numbness in my feet and down the front of my legs, and having to grab a chair all the time. Personally, people don’t understand what it is like. *I am simply suppose to deal with it… lol
      Right.

      1. I cant tell you how much it means that ‘I know I am not the only one. Sometimes I Feel like I am crazy! its hard to get up everyday, knowing its never going to get any better.

  1280. What I don’t see is the source of this information. Where’s the study? Who did it? Is it credible? What was the sample size? Two? That’s all that is mentioned in the article. Please cite your source.

    1. It does look like the author of this article got a little carried away. It is still a very interesting finding, but it was not correctly caveated. In addition, the study does not appear to have been corroborated so we are a long way from a definitive solution.

      The conclusion from the abstract states:
      The excessive sensory innervation to the glabrous skin AVS is a likely source of severe pain and tenderness in the hands of FM patients. Importantly, glabrous AVS regulate blood flow to the skin in humans for thermoregulation and to other tissues such as skeletal muscle during periods of increased metabolic demand. Therefore, blood flow dysregulation as a result of excessive innervation to AVS would likely contribute to the widespread deep pain and fatigue of FM. SNRI compounds may provide partial therapeutic benefit by enhancing the impact of sympathetically mediated inhibitory modulation of the excess sensory innervation.

      The Yahoo news article on the study is a little better in its characterization of the study. http://news.yahoo.com/researchers-possible-biological-basis-fibromyalgia-204400241.html.

      Citation for the article publicizing the study’s results: Albrecht PJ, Hou Q, Argoff CE, Storey JR, Wymer JP, Rice FL (2013) Excessive peptidergic sensory innervation of cutaneous arteriole-venule shunts (avs) in the palmar glabrous skin of fibromyalgia patients: implications for widespread deep tissue pain and fatigue. Pain Med.

      Another link to an abstract on the original article. http://onlinelibrary.wiley.com/doi/10.1111/pme.12139/abstract;jsessionid=EC039B55C378028DB7C130C05B3A8EC8.d04t04?deniedAccessCustomisedMessage=&userIsAuthenticated=false

  1281. AV shunts are not nerve fibers.They are vascular structures,ie tiny blood vessels. However I pray that this finding opens the door to meaningful relief and dare I say cure for this debilitating condition

  1282. Ok, so if the cause of fibromyalgia has been pinpointed as “extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts”, what then causes that?

    If this awareness brings relief, great, but there’s always another layer deeper we can go. Until we accept that there is more to illness and healing than diagnosing and treating the physical body only, people will continue to suffer.

    Psychosomatic illnesses are very real; every thought we have and any reaction to any situation instantly creates chemical reactions. Enough chemical reactions create an altered physical state away from homeostasis. This is not to “blame victims” but rather “empower people!” I could go on and on, but some will see this and get defensive and fight back. I have no interest in fighting. My hope is that someone sees this and realizes they’re not insane, and that there is hope, and that all things have a cause, if only we look a little deeper for them…

  1283. IF THIS ENLIGHTENS EVERYONE TO THE SUFFERING OF MY TWO DAUGHTERS I AM ONE VERY HAPPY MOTHER!

  1284. When I hear “mismanaged blood flow in the hands” I’m thinking maybe blood thinners like Warfarin (Coumadin) are in order (pending INR blood tests of course).

  1285. idk how much i agree with this. i did have nerves that died due to an acute onset of gullain barre’ and also have carpel tunnel and neuropathy. i know my nerve endings died back then and I was told htey would never regrow back.

  1286. I don’t think people believe us about the pain an stiffness in our joints.I try to be upbeat every day but some days I just can’t fake it.I hate this, and I hate being on drugs everyday.I pray for a day when they say we have a real cure.But I guess we all just have to take each day and make it the best we can..It helps me to read all the comments ,just makes me feel like I am not alone. Thanks

  1287. There is no such thing as a magic bullet for any of these kinds of diseases.

    One has to take a holistic approach to resolving this condition: nutrition, healing medicine form nature, wanting to heal, hydration with pure distilled water, elimination of toxic foods and beverages, eating organically produced fruits, vegetables and meats, avoiding genetically modified foods, avoiding all pesticide laden fruits and vegetables, removing all possible sources of Fluoride ion exposure and consumption, reduction of all sugar/glucose/fructose containing processed foods to the barest of minimum, and, if you have a sweet tooth, using some stevia as substitute.

    It’s a tall order, but when it works, you’ll realize it’s worth the effort: if you are not convinced that you want to heal and that you will heal, it won’t happen because it drives everything else you do to heal or not heal.

    1. I have changed everything to what you have said and even started doing Kindilni yoga for healing the body and althou my nerves lighten up sometime I still have the front half of my feet always hot and numb and tingle and I am not diabetic. My doctors just say it is nerves and that is it no cure no drugs no nothing. They which I have went to three doctors all make me feel like it is in my head. So I am glad to hear this it is great news to me because even thou I have changed everything I do nothing helps.

  1288. I have suffered for 14 years… Cymbalta with another medicin called DHEAS was for me an excellent combination. I have less pain and more energy!!

  1289. I think this is a symptom, not the cause. MS was thought to be vascular in nature around 2009 but was quickly debunked. When the central nervous system is involved there is a body wide breakdown and the vascular system is thought to be effected. It may even cause pain but is not the cause of Fibromyalgia in of itself. We now know of course that MS is auto-immune and attacking the CNS. And they really need to rename this illness.

  1290. I’ve read another article concerning this discovery… I do belive the is some credence to it; however, it isn’t the cause, and they shouldn’t be saying that it is. Also, there are over 10 million people in the United States alone, not 5 million. It is good that they are finally acknowledging that it is a real condition, and not in our heads as well as the fact that it isn’t neurological. My neurologist even knows that, and I thank god every day for him…

  1291. I myself have been battling the fibromyaliga pain syndrome for over 20 years. My doctor put me on lyrica and I feel some relief and would advise others to speak to their doctor and give lyrica a try. It beats controled pain killers.

    1. When Lyrica came out it was heralded as being a wonder drug for FM. I was thrilled to try it…until the hallucinations came. Giant broccoli stalks waltzing with oversized Tinkerbells all around my bedroom…no, I’m not kidding one bit. Still, that reaction was better than the strong suicidal tendencies while on other anti-depression meds. Currently I’m on 1 to 2 Tylenol 3 with codeine tablets every 4 hours (side effect: King Konstipation), plus 2 to 3 buffered aspirin (side effect none, except heavy periods, so I don’t take aspirin during that week). Good old Prozac works OK for me…at least it gets me out of bed.

      1. If you are constipated, be sure you take magnesium supplements. It really helps. I use hydrocodone (a small dose/250 mg) when the pain is really bad as I don’t want to get dependent on it. Tried antidepressants and didn’t like how I felt. Voltaren helps with the inflammation as tylenol and ibuprofen did nothing. Most muscle relaxants didn’t help but 1/4 of a soma with the hydrocodone helps.

        1. Thanks, Leslie, I’ll try the magnesium. I’ve also had great results from iron supplements, but that makes the const. worse, so I rarely take them.

      2. Prozac contains a heavy amount of Fluoride as part of its makeup and is biologically destroying you internally without your ever knowing it, masked by whatever else you are doing to manage the pain.

        Look for natural pain relief from a health food store or naturopathic doctor…

        Anything else is killing you softly and will eventually be feeding suicidal tendencies to the ultimate.

        Been there, done that…

        I went natural and organic, eliminated all possible sources of fluoride and finally healed. My weight dropped from 230 pounds to 165 pounds in just over one year, waist size from size 44 to 32.

  1292. I swear with 99% of doctors if you’re not bleeding, having a heart attack or throwing up they GUESS at what is wrong with you. So many of us suffer because these doctors tell up it’s in our head-talk about being cruel !!

  1293. I have just recently had this diagnosis and it is good to finally have a name to the symptoms I have had for so long, the pain, numbness and tingling in the feet and hands for over a year now is what finally got me to the Doctors. I hated to go in with so many aches and pains for no apparent reason but am so glad I finally did, I have just started Cymbalta and am hopeful after reading some of these comments that it will help. I am sure some of my friends just thought I was a whiner. I used to blame the aches and stiffness to Rheimatroid Arthritis and now believe it adds to it, but is not the root cause. There is so much information on line about this illness and from my research I believe I am a text book case. I am going to reduce if not cut out wheat from my diet and keep using my nutrabullet blasting fruits, veggies, nuts and seeds, so delicious and easier for digestion. So glad to have found this link….

    1. Cymbalta is a very dangerous drug, highly addictive, as bad as morphine if not worse.

      I know… It made me ill when I tried to get off of Cymbalta, dizzy spells, disorientation, nauseous and more. I was also on 500 mg of morphine before quitting that one too after going natural, took 3 months. Fibro is very real and is multifactorial, but, if you live in an area that supplies fluoridated water, start using distilled water and go on a slow, mild detoxification for Fluoride (holy basil tea) and heavy metals, nothing sudden or harsh or you’ll regret it… Get off all junk foods, reduce all sugar intake from beverages, snacks, cakes, etc, save for what’s in vegetables and most fruits, and don’t eat at any fast food restaurants: preservatives, gluten, MSG and the like aggravate Fibro. Read labels and if you can’t read the name of the ingredient, don’t buy it: too many toxins in our foods and drinks does wonders to aggravate Fibro pain.

  1294. When I read the headlines for this story I got so excited… then I read the content. There’s no way it’s that simple!! No Way!! I was diagnosed 10 years after a bad car accident but I think I’ve had it since birth. I remember being in pain my entire life. Fibro is the worse thing that has happened to me. It has completely changed my life. I don’t think it’s as simple as they are making it seem. More research needs to be done…they’re grasping at straws and we’re still suffering.

  1295. I was diagnosed with Fibro December 23, 2000 the same day I found out that I was pregnant. I had been thru 2 months of painful and very frustrating testing and had been put on temp. disability with my job – which I ended up losing due to “cut backs” a few months later. I found that dealing with pregnancy with Fibro and lack of medication sucked. I have an internal morphine pump that I’ve had over 8 1/2 years now that keeps my Fibro pain under control. I have always had to use medication to help with break thru pain and even with the morphine pump, I still have Fibro attacks where my entire body is going thru muscle spasms. I’m now going thru pump reductions because of a problem with my catheter – that will be removed July 11th. I have to wait at least a month for everything to heal up properly before getting a new catheter placed and my pump back to working with medicine instead of just saline. Having these reductions have opened my body up to more pain and oral medicine is barely helping. I have to use a Fentanyl patch now along with oral medication and that seems to be helping more. The pain I’m having now is exactly what I went thru before I had the morphine pump put in and it’s the same pain I suffered thru when I was younger. I was told what everyone has been told who has Fibro – it’s all in your head, you’re a hypochondriac, you’re faking it, etc. I know now that it was Fibro and before I was officially diagnosed, that was the catch all for explaining away aches and pains.
    I’ve gone thru multiple procedures including radio frequency and nerve blocks. A LOT of procedures over the years – I am blessed to have a gifted set of doctors and surgeons that have many offices in my area. Regarding this discovery of the excess blood vessels, I’m going to show this article to my doctors. I’ve always thought my Fibro was caused by my nerves misfiring and making my muscles think there are problems, causing more spasms and more pain. I hope this is one of the causes of Fibro (or the only cause?) and I pray that people will realize that this pain is not all in our heads and it’s a real disease.

  1296. I am sorry, but the problem of fibromyalgia is broader then what is seen under the microscope. Most of us do not know that the brain of the fybromyalgic person contains per cm3 more celles than normal persons. Secondly many of them are more intelliigent then others, Cannot see other suffer !!, have sensitive senses due to a higher level of their HUNTING INSTINCT, Otherwise they feel their bones moving in their bodies which is party due to a SILICIUM deficiency in combination with a low VitD and usually a sensitivity to WHEAT.. The sensitivity to cold is due to a magnesium, Vit B3 , Vit D of phosphorus deficiency or they are “left in the cold ” by ohters
    They have an adaptaion problem of the Central Nervus System, they need more time to adapt themselfs to trauma, stress and the pain. They have sensitive bones ( can be measured and is called bonepressure paintreshhold ) As soon as the deficiencies are corrected, if possible (problem : malabsorption ), The paintreshhold rises and they feel normal again.

  1297. Don’t anyone jump on the non-existent bandwagon, please! I’ve suffered from Fibro for almost 20 years now…and I am no idiot to swallow every suggestion, quack remedy or quick fix anyone says is “the cure.” The entire article is filled with nothing but vague generalities…no specific Doctors or groups or medical center names…research centers, educational or medical authorities or peer journals. Just some mysterious “journalist” names Rebecca, writing for a rag we know nothing about, it’s affiliations, owners or agenda. Sorry, I don’t buy it.

  1298. If anyone is a domestic violent sufferer and needs dental work but can’t afford it. Please look up Give Back a Smile. They did $30.000 worth of dental work to me and now I can smile again! Follow the directions after filling out an application. It took me 8 months to finally see a dentist. Just thought this might help someone. Because I too was told that fibromyalgia was caused by my P.T.S.D.. For more info my e-mail is [email protected].

  1299. 22 yrs. now and still having regular symptoms and so many people still don’t believe in it. my brother tells me I don’t walk enough–I can hardly walk some days, have trouble standing for any length of time. have trouble sleeping, etc. but hanging in there. Have learned to obey my illness and rest when I can. this will be great if there is something that will truly help without putting one in a bigger fog than I’m already in! Please keep us updated!!

  1300. I too suffer from Fibro. I cannot take NSAID’s due to my ulcers. The other med’s I tried just blew me up like a balloon. Even “I” was beginning to think it was all in my head 🙁 I’m so thankful they have found out the real cause. When mine acts up, the first thing that happens is my hands get DEEP RED and SWELL and hurt like heck !!! The weather is the worst as I live in N.E. Ohio and winters here are awful.

    1. Also being in NE Ohio, there is one speciality group at the Cleveland Clinic that I think can Help, they are the worlds experts in this, and I mean people from around the world come to see Dr. Covington group. Search for Chronic Pain Rehabilitation Program at the clinics website. They help people with or without medications, they treat the entire person.

  1301. I too have fibro and I am in pain most of the time. It is a terrible disease. I have lost my short term memory and I have trouble concentrating. I refuse to start on narcotic drugs because I do not want to take the chance of getting addicted to them. I have enough health problems. I want want to add drug addict to the list. I will be glad when they start putting out medication that really works or find a cure.

  1302. I was diagnosed with fibro 15 years ago and I am 45 now. I have red blotchy palms and other skin problems, rosacea, and patches here and there of something that looks like psoriasis. I did have psoriasis on the tops of my hands, both, real bad. It did go away. Also my fibro goes into remission. I was told that is normal??? I still am not sure. Sometimes my teeth would hurt and other strange pains. Why don’t they put more into finding a cure. I think it is from the GMO foods, preservatives, even chem trails, the sweeteners in diet drinks, high fructose corn syrup and even the mercury fillings from our dentist. Fibromialgia is not even a real word according to spell check, what’s up with that? Oh dear God I wish they would find a cure. Be especially careful out there what meds your doc or specialist hooks you up with. They started me out on such horrible things that I couldn’t enjoy sex for many years, I became addicted, dependent on meds that didn’t even help me but if I stopped taking them I was in a WORLD OF HURT!!!
    I now have a Doctor that is understanding and helping me more. Even if the docs heart is in the right place, watch out for these drugs. I pray they find a cure!!! Let me know what you think if you want. My e-mail address is [email protected]. Write me if anyone has any ideas. I’m interested in how I could test my P.H. daily.
    Thank you for reading my post.

    1. Hi Dana. Here is what Denise replied to me, in case you missed it:

      I buy the pH tape at a Drug Store. I test my pH through my urine 3 times a day I was told it’s more accurate. You could also test it through your saliva, you put your tape under the tongue for few seconds and the tape turns into a colour, you check on your chart that your received with your pH tape the proper colour that matched your sample if it’s less than 7 it means that your system is acid, the lower the number is the more acid you have in your system.

      Presently I am not taking any medication for my acid I am going to see my doctor in July and I will ask her to prescribe me a pill to eliminate some acid in my body, I hope she will be able to help me.

      1. There are no pills that will cure fibromyalgia unless its multifunctional and looks after deficiencies instead of tweaking the pain sensors to make you feel less pain.

        Proper Nutrition, wanting to heal, some natural products may stop the pain, organic foods and beverages (juicing helps a lot), get rid of all toxic exposures from water, foods and beverages…

  1303. It looks like the source of Fibromyalgia is finally getting revealed. Many doctors think that most people with FM are making it up in their head. Who would want to go through the suffering like that if it wasn’t real? Now it’s time for them to look into non-invasive treatments that people can use to cure this problem.

  1304. I am 47 yrs old but look 10 yrs younger. I was in excellent shape in my 20’s and was always athletic and continued to be active until one day I woke up and felt like I was 65 yrs old with limited range of movement. When I was first diagnosed with Fibro by a Rheumatoid Arthritis Doctor 15 yrs ago, they told me it was caused by poor sleep and my body not properly rejuvenating within the connective tissues because of the lack of “deep sleep” I required. About 5 yrs ago, I was told it was caused by PTSD from abuse and two car accidents and the root of the problem was “over-active” pain receptors. Now we are being told a completely new theory without providing us with adequate study results! Yes, my hands always seem to be the worst but overall, every “joint area” is painful. And if one more person tells me I just need to exercise more, I’m going to go ballistic!! I can’t afford a doctor with no insurance, I can’t qualify for medicaide because apparently we aren’t starving enough, and I can’t get on disability because I don’t see a doctor regularly!! My husband gets VA and he shares his meds with me to help me but it’s complete B.S. that I can’t get the proper help with this illness and I look “so young and healthy” that nobody really thinks I need the help!! My own kids think I am a hypochondriac because I have a crazy mother who is that and then some. Problem with me is I look good on the outside but am in constant pain on a daily basis. My husband is supportive for the most part unless it is inconveniencing his sex life then I get the guilt trip for not being able to physically handle sex more than about once a week and that’s only because I feel obligated. Anyway, I’m rambling on but this illness sucks horribly and makes life suck horribly too!

    1. See if http://www.chronicallyawesome.org can help you. They often try and help people like this. Contact them. If you’d like to come to our support group tomorrow (it’s on g+ hangouts…just contact Julianna if you don’t know how….).

      I know them personally and they have greatly helped me cope. They’re not going to give you crap advice about exercise. It’s an amazing group that’s like family of all chronically ill people.

  1305. i just hope this really is a break through , as i’m in the uk , doctors and all medical professions , think it is all in my head , as my physio told me just last week , my pain is not real , if only that were true , my kids r the only thing keeping me on this earth , to suffer this pain deblitating disesae , that much i can promise , anyone that reads this ,
    thank for the infomation , it was interesting to read it ,
    kind regards sam from the uk

  1306. I have been suffering for 17 years. I am very impressed by the research and the comments of people. I will pray for the researches to find a cure.

  1307. If this indeed is to be true, what other solutions are there. I had been talking lyrics and found some relief but now my medical won’t cover the cost of the meds. I’m now on gabapentin and a maloxicam it helps a bit by taking the sender edge off but I find my self still in a great heal of pain
    If there is any good help other then expensive medication please let me no….

  1308. I am 49 years old and was just recently diagnosed with fibro. I was prescribed cymbalta and almost immediately the joint pain in my hips was gone. So far that seems to be the only pain it has helped with. 5$3 joints in my hands still hurt especially with cold. My fingertips sometimes turn whte and go numb. Reynauds syndrome. I also have restless legs syndrome and take klonipin for thiwhich completely controls it for me. I will sometimes take half of a norco just so I can get something done. My worst pain is my mid back. Sometimes I can’t stand it. Not sure about the hand thing. What would the cure be? Every once in awhile I have a day where I feel really good and have energy. These are very few and far between. My job requires me to give 100% I am an RN. Most of the time I force myself to get through the day and then go home and crash. I feel fatigued and exhausted most of the time. I admit I’m not the best exerciser but I have times where I try and it does help. I have to drag myself around. I’m sick of going to the doctor and being tested for everything else that causes these symptoms and everything being normal. I understand why they would think its all in our heads. I just want to feel good and have energy. I don’t want pain and fatigue. I’m not overweight I’m very careful with that because I don’t want things to be worse. I’m healthy in every other aspect. I hate fibromyalgia! I hope there’s a cure for it soon!!! Sorry for the typos the program is super dragging!

  1309. I have been a sufferer from many many syndromes since I was 15. I am now 60 years young. I have degenerative disc disease, RA, Fibro. Sogrens syndrome,osteo arthrits, kidney diesease, and inamatory bowel disease, and I am a typre 2 diabetic. Nothing helps, everything helps for about five days then off to another remedy. Sunburn hurts everything, lack of sun I have to take gynormus calcium tablet.

  1310. I was diagnosed 18+ years ago. Newsletter from a local support group was informative, as were seminars. They were more up-to-date than the University Medical Library at Ann Arbor, MI. One fact stood out: get healthy body cells which in turn help your immune system fight whatever is wrong with you. To accomplish that one needs to eat healthy and get a good night’s sleep. Today’s produce is picked too early and hasn’t had a chance to ripen & develop. The “Comparative Guide to Nutritional Supplements” lists over 1500 supplements to help you make an informed choice. Six weeks after taking the top one, my energy level was back and pain level significantly reduced. After 16 years I still recommend this approach. Natural vs prescription drugs. I wish insurance companies recognized this. Hope this helps someone.

  1311. I really, really hope & pray that they have finally found the cause and will soon find a cure. It is bad enough to have to live with the pain & fatigue, and then to have people just think your nuts or lazy is no fun. I was diagnosed about 6 yrs. ago but suffered a long time before that so I am ready for relief without all the drugs. God Bless All…

  1312. About time!! We’ve been trying to tell our docs this for years – we are NOT crazy, we are NOT drug-seekers – we just want relief from our REAL pain! Thank goodness for the “scientists at Integrated Tissue Dynamics LLC (Intidyn)” and Albany Medical College!!

  1313. I am 46 years old I have had fibromialgia for more than 20 years plus. My hands and feet do hurt all the time. I just woke up its 10 o’clock AM lol sometimes I don’t wake up till 2 pm sometimes I can’t get to sleep.my whole body is in pain hips bilateral. Hands, arms, feet, fingers, neck, back, shoulders, migraine s .I can keep goin but why. The chronic fatigue is terrible. Sleep and diet are the only things I have found to help relieve my worse pain. I have many different levels of my pain usually if u use the doctor scale normal pain is a 10. My unmanigable pain can go up to a 30. The chronic fatigue is very bad. Your body gets very run down from the chronic pain you crash… Every morning I wake up or try to go to sleep is a struggle. My hands and feet and whole they get very stiff especially in the morning. My hands r so stiff to the point I wake up and they are stuck in the open position. I have to gradually work on closing them. I have had everything under the moon done and checked medically to rule out any other causes. There is not except thyroid which I had before the Fibro. I hope there is somthing to this artical that will open other doors for a cure. Or a medication that works but dosnt destroy your insides or have so many side effects. I remain hopefull but again not holding my breath. It could help some now but on others it won’t work. If they can cure my hands and feet I would love u for that at least those wont hurt lol. Laughter is the best medicine. Love all of you bless you all and hoping for less pain or NO PAIN :)Kaprice

  1314. I was diagnosed with Fibro by three different doctors, I still don’t believe I have it…but, I do have pain, been through pain management, take meds…but only Maloxocam and Neurontin, after trying several and ending up worse off. I know I have degenerative disk disease and several bulging disks, osteoarthritis too and was seeing a chiropractor who suggested taking vitamin D-3 and being checked for an overgrowth of yeast. My feet burn, pins and needles in my legs, hands tingle and go numb…my hands swell when I walk…my fingers look like overstuffed sausages. I have been tested for diabetes, don’t have it. I use melatonin at night and take my Nuerontin at night because it makes me drowsy. If I take more than one my hands swell more. I am 54 years old. I moved to the country and started spending more time outside and the water is much softer out here, the only change in diet is eating home grown organic veggies. I wonder if more sunshine and softer water helped me…or maybe the activity or more alkaline water? I don’t know…but if I do have Fibro being away from the big city seems to agree with it.

  1315. I have been suffering for 33 years with fibromyalgia and couple years ago I went to see a microbiologist and she told me most of the disease are related to our pH (even cancer) and it make sense. I was put on a strict diet (lots of green) to make sure my pH was 8 and higher all the time. When I was following my diet 3/4 of my pain was gone, the burning sensation was all gone and my muscles were less stiff. I am wondering why scientist or doctors doesn’t test the pH on their patients (not only once they need to test it for a period of time) because they say fibromyalgia is different on everybody that’s why it is so hard to treat, it’s hard to treat because everyone has a different level in their pH. I test mine 3 times a day to guide me for the type of food I should be eating, mine most of the time is 5 which shows my system is very very acid that means that all my organs are always bathing in acid which is very hard on my organs that’s why I feel that burning sensation in my entire body it’s the acid that burns all my muscles, nerves and organs . Food and alkaline water makes a big difference if we have fibro or arthritis. If our system is very acid and it’s really hard to control with our food I think the doctors should give a pill to their patients to make sure their pH stays 8+ all the time. I am going to see my doctor in July and I will ask her to lower my acid with medication because I need a boost because recently it seems impossible to lower it with only food. I was told if you are a nervous person (which I am) your system produce acid because of your stress. What we have to do daily is to listen to our body and keep testing our pH!!!!!

    Lets our inner light guide us to the path that we will be all PAIN FREE.

    I wish you all lots of LOVE and PAIN FREE for 2013.

    Denise

    1. Denise. Thank you for your post. Apart from the Greens, could you tell how you test your pH 3 times a day? and what pill (from the doctor) reduces Acid(ic) levels

      1. I buy the pH tape at a Drug Store. I test my pH through my urine 3 times a day I was told it’s more accurate. You could also test it through your saliva, you put your tape under the tongue for few seconds and the tape turns into a colour, you check on your chart that your received with your pH tape the proper colour that matched your sample if it’s less than 7 it means that your system is acid, the lower the number is the more acid you have in your system.

        Presently I am not taking any medication for my acid I am going to see my doctor in July and I will ask her to prescribe me a pill to eliminate some acid in my body, I hope she will be able to help me.

  1316. I have had fibro since the early 90s. I have yet to fid a Rx pain med that helped. Motrin and Tylenol together work best for me, only if I am really hurting,However I have found I am intolerant to wheat (not all gluten, just wheat) Also I have read all I find about Q10. It is a natural enzyme we all have but decreases with age. It is now being said to be an anti-inflamatory and helps with inflammation in the blood vessels. I have not found it to help with being cold but I do have some good days and it should help with plague in the arteries as it lessens inflamation. Not eating wheat really helped me be able to get out of bed in the am. Pray they are finally on to help for so many o f us. God Bless and hang in and above all keep moving or you will not be able to

  1317. I was diagnosed with fibromyalgia after a car wreck when I was 18. But i’d been suffering the symptoms for years before that. Any prolonged exposure to an achy muscle or painful injury triggers a fibro episode, drainging me of all energy, making my entire body ache and causing high fevers. The episodes normally last 1-3 days and it takes me at least a week to regain a normal level of strength and energy. I have medication that helps to dull the pain, but it does not stop the episode from coming on. I would be so glad if they finally find a cure for fibro. I have two children, and am 6 wks pregnant. (i can’t take my meds while i’m pregnant.) And when I have an episode I cannot take care of my children. Fibro has been rough on my life, preventing me from holding down a job, because the constant activity added onto my home life triggers an episode, preventing me from being able to work for at least a week.

    I am very skeptical as to whether this blood vessel thing has anything to do with fibro, giving how my episodes are triggered. I do know it has something to do with the nervous system though, because when I am over worked, I am more likely to have an episode. But if this latest research leads to a permanent cure for Fibro…. so be it.

  1318. I have had Fibro since I was 15 years old. I will be 73 next mo.I have managed the pain by myself till 1994. Pain killers don’t help me So all my meds are just helping me to manage the Pain. The pain is everywhere.. Since they are now talking about the hands, i’m wondering if any one else has RED palms?I do believe That the nerves are on the right track though.. Since I will be 73 next month, I am hoping they do find the cause and workable treatment, so others will not have to go through what I have.

  1319. I have only recently been diagnosed with fibromyalgia and I don’t want to take pain meds or anything like that. My hands hurt a great deal and I have been seen at the Mayo Clinic recently where it was diagnosed. I can’t wait to show this article to my doctor. I applaud the researchers who have found a connection.

  1320. The jury is still out. They’ve said they’ve known the cause before….not just for this but other diseases…..I’ll believe it when I see an actual cure!

  1321. I’m 55 yrs old and had a hysterectomy at 45 with a yr long complication that has caused my fibromyalgia and also put me on SSDI for the fibro and PTSD and COPD all due to the stress of the surgeries! A cure for this “SYNDROME”, yeah I’ll believe it when I FEEL IT!!!!!

  1322. I’m thankful that my doctor never said that it was in my head. He immediately asked a couple questions which I do not recall and said “Sounds like you have Fibromyalgia,” and I had been suffering for years already.

    Progress, even slow progress is good. Thank you for the article.

  1323. I was just diagnosed last February and I’m ready to give it back to the doctor. Some days are unbearable, and I cant take much for pain as I also have stage 2 kidney disease. My kidney doctor just suggested I go on a vegiterian diet to not only help with my energy but to help my over all health. Hoping this helps with the fibro.

  1324. There is definitely a genetic component to it. My sister and I both have this and every woman in our family has hypothyroidism as well. We each have the kind that is autoimmune referred to as hashimotos. Fibro has always been categorized as an autoimmune disease as well. Celiacs is an autoimmune disease too which is why I just decided to stop eating gluten and also eat vegan in the last 4 months. It has helped. I did this mainly to help with fatigue bcuz I cant tolerate any thyroid medications. Tramadol helps with the fatigue but knowing my thyroid is still wacked out bothers me. I have tried all thyroid meds and get extreme headaches and cannot sleep even on the non synthetic ones. Fibro and hypothyroidism usually go hand in hand.

      1. yes I have tried armour..the thyroid hormone from pigs I believe…even started on a very low dose and Iit was just awful. I felt worse on the medication then I did without it. My twin sister on the other hand has no problem with it.

        1. Have you tried eating sweet potatoes? They have a chemical which imitates thyroid hormone and can help for some.

        2. Coconut oil and coconut manna (ground meal) have regulated my thyroid – body temp is now normal and also eye brows have grown out on bottom third plus feel better

    1. I was unaware of any correlation between Fibro and hypothyroidism. While my hormonal shift around 36 years of age has added some padding to me, I still weigh only about 115-120 at 5ft. So I’ve actually never heard that.

      1. Only the autoimmune version of hypothyroidism is. There are 2 kinds. Hashimotos version is autoimmune and so is fibro…my Dr explained to me that when u have one autoimmune disease its not uncommon to have others and a lot of people with fibro have hashimotos as well

  1325. I’m almost 28 and have been dealing with this since I was 12, one of the only juvenile cases that I know of personally. I have at least 2 family members in 2 older generations with it as well. Would be interesting to find out if they find a genetic component to it.

    1. Crystal- I’ve suffered most all of my life with pain. I can remember being in the 3rd/4th grade and crying because I hurt all over. Was told for years it was in my head, growing pains, arthritis, etc… Finally diagnosed in May 2011 with Fibro, had suspected it for a couple of years prior. Taking Cymbalta now and getting pretty decent results. I don’t have anyone else in my family that has had diagnosed fibro but I don’t have a good medical history for everyone. I would not be surprised if they did find a genetic link or predisposition. Good luck.

  1326. I believe they will also discover it’s also related to the blood’s ability to access iron stored as ferritin. I don’t think the ferritin is being released properly, as iron to bind to a molecules of oxygen and/or the iron binding capacities are not up to par- thus the body is not carrying adequate healing oxygen through the blood vessels. Without oxygen in blood vessels or reaching muscles and joints; there is fatigue, pain and inflammation.

    1. I totally agree with D.B. here. I was diagnosed with Fibromyalgia about 16 years ago. My complete blood profile shows a large store of ferritin but I am anemic!! For some reason, my red blood cells are not accessing the ferritin. I was put on iron supplementation in hopes that eventually something would kick in to cause absorption. No change. Finally, I was taken off. A gluten free diet seems to help with lessening some symptoms.

      1. I have the exact same problem, high ferritin, but anemic. Iron transferrin low. Iron isn’t being absorbed, not even iron shots, although B-12 shots helped some. Gave up wheat- with minimal changes. The body withholds iron when inflammation is present- as it perceives inflammation as accompanying a threat- such as cancer…which uses iron to grow. Problem is; doctors are only taught about this occurring in people on death’s doorstep with illness. I think the genetically modified foods have caused increased inflammation and illness in many people. I wish you happiness and healing!!

    2. Forgot to add to my previous comment: Considering the body withholds iron when it senses inflammation, believing a life threatening, or auto-immune illness, such as Lupus or Cancer -which uses oxygen to grow- is present and attacking the body…I wish researchers would focus on this. The lack of readily available iron and oxygen produces every fibromyalgia symptom there is…from brain fog to muscle fatigue and pain..

  1327. I have suffered with fibro for 13 yrs. I am happy that they have found out what was causing it. I hope the doctors will not label a person with fibro as nuts anymore. I have the pain from head to toe and I knew I was not crazy. What a relief for the people who suffer with fibro. Now for a cure and no more pain,I can’t wait. God Bless You All

  1328. I am very excited about this possibility and look forward to the next steps of developing tests for accurately diagnosing this condition and the opportunity for a better understanding so that others, including Dr.’s, will be able to grow to understand what is going on with fibro patients.

  1329. The dose of tramadol I take is 2 50mg pills (100mg dose) when I wake up and again at 4pm. My dr has prescribed enough for me to take another dose before bedtime just to keep it my system so I dont feel like a truck hit me when I wake up but I dont take that dose unless im really feeling bad. I do know of people trying it and feeling drowsy but for me and others its the exact opposite. Before I know it im vacuuming, doing the dishes and getting back to life. It also has improved my mood because of the effect on serotnin as well. I always hope that it helps someone else like it did me bcuz the pain and fatigue I used to be in made me almost suicidal. I had nothing to offer anyone and that killed me inside. I feel like a real person on this medication and have had no side effects

  1330. I have been suffering from Fibro for the past 22 years. The pain has gotten worse every year to the point that I am crippled up so bad that I cannot even manage any daily chores. Just walking to the store a half block away is too painful. I live alone, so I cannot even cook for myself or do housework. I am on so many pain medications and worry about their effects on my system. I would be so glad if they could find a cure or even something that could manage the pain. I am 73 years old and fear the coming years. Please find a cure so people who are not affected believe people like me who are so afflicted.

  1331. If only my mom could have just tried to stay with us for a few more years, she would have had hope. RIP Mom. I’m so sorry we couldn’t do more for you while you were here and you took your life as you could not handle the pain any longer. I will always wish that the doctors would have taken her more seriously and tried to understand. I wish I had done more. Please find a cure so no one else has to lose their mother, father, brother, sister, or friend.

  1332. The thought of a cure just makes me weepy! It would truly be a miracle…..the pain is unbearable and the hopelessness overwhelming at times! I pray a curr or at the least relief be found!

  1333. I agree with many of the comments here. I have suffered with this disease plus chronic fatigue syndrome and multiple chemical sensitivities for about 30 years. It is annoying when a “sensational” title is used. This article does not in any way indicate that anything has been solved. Perhaps some of us have more sensory nerve fibers; but even it that were a human body variation, it does not explain what has gone awry in the body causing pain. I do not experience most of my pain in my hands. Auto immune problems seem to be an issue and I have also had both Lupus and Rheumatoid Arthritis which could be causing the small amount of pain in my hands.
    The most effective treatment that I have had was IV nutrient therapy. The problem is that this is not covered by insurance. As many patients have noted, diet and nutrition are keys to helping us feel better.

    1. I wish that diet and nutrition were the key! It has been helpful to not eat gluten or cow’s milk but would someone please take the constant “sunburn that feels like you are bruised on top of it ” ache away????

  1334. Well my last comment seems to have disappeared into cyberspace! Maybe it will turn up later, lol. Anyhow, I have FMS, type 2 diabetes, MS. I have been ill for close to 30 years! It has been an up hill battle trying to get doctors to take me seriously. It wasn’t until I got into my 50’s that I was taken more seriously. Before that I was “too young” to be so sick! I think there is definitely a relationship to FMS and MS and autoimmune disease as a cause. This article while interesting is definitely just pointing to another symptom, which could be important in leading to the cause of this disease, but I’m not holding my breath.
    I hear others all talking about the exact same main complaints of PAIN, FATIGUE, and RESTLESS NIGHTS with the inability to get a good nights sleep! This is more interesting to me than the article itself. Maybe they need to do a widespread study on all of us to finally get to the bottom of what causes this. I do think diet and exercise is key to controlling both the symptoms of FMS and MS as well as my type 2 diabetes. They all can be improved by a diet like the “Paleo Diet” as well as Vegan, Vegetarian, and for some a combination of these diets. You have to find what works for YOU! Being a diabetic I have found that cutting out refined sugar altogether has helped. Also I am now discovering that the only sugar substitute I will include in my diet is stevia extract. I believe that NutraSweet, and Splenda are both toxic and will do more harm than good. I have cut out all soda and only drink water, tea, and almond milk. This has all helped with my FMS and MS as well as lowering my blood sugar too. I also was found to be B-12 deficient and do one injection of B-12 (1ml) per week. This has helped with the neuro pain, and numbness. I hope that they find a cure for all this it’s been hard to live like this for so long.

  1335. I have now started to suffer with loss of feelings in my left big toe and also slightly on some of my fingers .The most pain is located round my neck and shoulder areas which I use heat and pain killers to control .I also suffer with fatigue and sometimes have feelings of flu symptoms .I have never really been offered any help with managing this condition other than the usual medication ,and rest ! I do manage to work 4 days a week with a day off mid week as i won’t let this condition keep me a prisoner. I truly hope that there is some truth in this Article and that we can find a cure or some sort of relief from this invisible illness.

    1. Gail, you didn’t say how long you have been suffering from fibromyalgia, but make sure that you’re not on the edge of being a diabetic. That’s what happens to them when their fingers and toes start going numb and tingling. I’m having a lot of pain in my shoulders, neck, about all of my joints and especially my wrists and hands. I’ve always used my hands and it’s getting harder each week it seems. But I keep on pushing because I don’t want to give up. As far as staying warm, in the winter time, I use an electric blanket. I wear men’s flannel shirts under sweat shirts because they’re thicker and warmer. I also wear flannel pants under jogging pants with thick socks. It’s a lot safer than tanning beds and my Chihuahua loves the electric blanket. 🙂 But you don’t need to turn it up high to get real warm. You’ll be surprised how warm you’ll get under that blanket. I hope this information has helped some of you and I pray that all of us will get relief from this debilitating disease soon.

      1. Hi Sandra, I have been suffering for 18 years although was diagnosed about 15 years ago . I too thought I may be diabetic as I need to wee alot,get very thirsty also,but I had blood tests last year which have ruled this out and was told it was the Fibro .My hot water bottle is my best friend 🙂 and I also use a wheat wrap on my neck and shoulders .My husbands joggers and woolly jumpers come in very useful in the winter months to ! I think I naturally have quite a high pain threshold ( thankfully ) although some days are better than others ! The fatigue side of things are the hardest to deal with but I have a fantastic Husband who does most of the home stuff so I am able to rest and recover when needed to enable me to live as normal life as possible.

    2. Neck and shoulder pain, as well as pain in the hands and elsewhere can also be related to hypothyroidism.

  1336. bonjour…. I read it on the internet…. I would LOVE to have a cure… I have suffered so long… Why did this so rampantly appear in the 70s – 80s,.and progress of this is so, overtaking…. with so much of the population included now. I agree about the cold weather I can barely function in the cold. heres to a cure….!!!

  1337. I’m like Paul Wilks lets see more evidence first!! However having suffered silently for 30 yrs it would be wonderful for a cure to be found!!I long for a pain free day!!I’m 50 and worry about old age!!

  1338. Very interesting!! Have been suffering for years, unable to take any meds. due to other complications! Would love for them to find a cure that would alleviate some pain!!

  1339. I to suffer from Fribro and I hurt so bad in between my shoulders and across my shoulders and down my left leg sometimes down to my toes. I do pray that they do find a cure.

  1340. I think the key word in the Dr’s quotes is “could”. The experiments need to be replicated and thoroughly tested for validity. Perhaps “finally solved” is a little optimistic. It looks promising though.

  1341. I hurt so bad from my shoulders down to my feet, I am so tired I don’t want to do anything, I pray that they will fine a cure or something to relieve the pain, I have glaucoma so I cant take just any medicine,

  1342. I too feel the cold and hurt much more in the winter but my doctor insists it has nothing to do with the weather, I know they say tanning beds aren’t good for you but I find in the winter when I am really achy that if I go I feel so much better afterward.. lol I do believe this article has merit as I have lost sensory feeling on the sides of both hands and feet as well as along my shoulders and neck area. These are places where my fibromyalgia seems to bother me most. I hope they soon find a cure for this disease as most people cannot understand how much pain we feel on a daily basis.

  1343. Thank you ….. I work in the field of Education and have always know my Fibro issues are much, much worse in winter….. there are times where I can barely move and just can’t feel warm enough.

  1344. Really I don’t even know if I have “bad” pain in my hands since the rest of my body aches
    constantly and can bring me to tears from frustration and pain. I think my hands might be the last thing to stop functioning, their just on autodrive. I know for a fact diet, weather and stress are huge contributors for me for sure. Glad to see that they are taking this seriously. :0)

  1345. I truly believe some of this, I have been having soreness on the pads of my fingers and they get raw I was told it is your nerve endings that are inflamed, and use a tropicalcream on them, but do not understand how that affects my fatique and other body aches, it can’t be all arthritis… more help in this field.

  1346. I have been dealing with this issue for several years…I have been on so many medications that didn’t work some I have weaned myself off of because of how they made me feel…I often sit and wonder what my life in the future will hold because of pain everyday..nothing i have tried has taken any of the pain away…after reading this article…it sounds hopeful!! I am still asking for total healing from my Heavenly Father!! He is the only one that knows how desperately I would like to be normal again and active and PAIN FREE I want to be!!!!!

  1347. Diane McKay Cranbrook BC Canada I hope this is a good start at something to heip. Iquit taking my pills about a year ago and don’t want to go back to taking them. I have both fiber and MS. I manage the pain with mind over matter. It is cheaper then poisioning my body with pills

  1348. I have had fibro for 10 years that started after a car accident. The medicine that saved my life was Tramadol. Not only did it help with the pain and has had a cummulative effect on it to where I have gotten better and better but it also helped with the fatigue, which to me is harder to deal with. It does not work in the same way an opiate does, it works be effecting nor epinephrine and serotonin but is still considered a pain pill. The great thing about it though is I have been on the same dose for 10 years. You dont need more and more like narcotics. I also have never had fibro pain in my hands. Definitely circulation problems but my main pain was deep tissue in legs, shoulders, arms etc…also I have currently gone gluten free and vegan and has helped way more than I ever thought it could…and it really hasnt been that hard with all the new food products out there…good luck and health to us all

    1. Hi,I was just wondering on what dose you are currently on with Tramadol as I am thinking of asking my doctor to prescribe me this for my Fibromyalgia as nothing else has really helped .I do work so I am concerned about them making me feel drowsy as people have said this is a big side effect any info would be greatly appreciated .

  1349. I still think there are too many variables with this debilitating disease. I have a great doctor who works with me every step of the way and takes my suggestions under advisement and always listens to what I have to say and how I feel. He thinks FMS is the result of over active nerves … My nerves are telling me that there is a tremendous amount of pain when there is really only a little. I hope he has read this article. In addition to the exhaustion and pain, I also have migraines. I was supposed to be protected by deferral laws but my employers fired me anyway for missing too much work. My life is less than half of what it used to be. I pray this is the answer to the problem and the end is near for us all!!

  1350. Lyrica made me suicidal and I gained 30+ pounds. It’s a glorified steriod. Be careful! The best way I have managed is diet. No excess sugars or gluetin.

  1351. Glad to hear the research has come up with a place to start. I am hopeful that this will lead to a cure, or at the very least a way to better deal with the disease. I have had this since 1986 when I had a C-section to deliver my daughter. I have really had to feel my own body and be conscious of what I was eating, my activities and my stressors on a daily basis, to attempt to help myself with this frustrating disease. I listened to many Doctors and specialists whom mainly decided medication, exercise etc was the only solution. Exercise is definitely helpful, sleep is definitely helpful, but none of the meds work very well, they do however add frustration due to side effects. Lets hope we will soon hear that this latest discovery will give us better treatment to help deal or cure the problems. I think this is great news, but we need to be cautious, hopeful, but remember it may take years to move to a place where we feel human again.

  1352. I agree. While I am thrilled that some progress has been made and researchers actually have something to work with, I have never had fibro pain in my hands. So I hope that is not the ONLY research the medical community runs with. Have they ever examined why there are hot spots in the first place? Do those areas also have the extra blood vessels and special nerve endings? And how do those nerves and blood vessels tie into fibro fog and exhaustion? But, hey! At least they have noticed something!

  1353. iam from sweden, and very happy to read this, so there might stil be hope for us with this disease, maby get our Lifes back, al time ive said its something wrong in muscles, but in hospital they keep tell me its in my brain, i Think more then one docter need to retink about this disease , ive Heard from another persenwith firbomylagia , her doctor told her there is no disease like fibromy and that she was only depending on the medicin, the thing was that she dident hade ny medicin yet, well goo readin for me, thanks regards peter

  1354. I’ve had Fibromyalgia since I was in my late 30s,it’s been no picnic, Doctor look at you like you have 2 heads, or think that your faking, it’s not easy by no means, especially the chronic fatigue, and the restless night’s I was told to keep pushing myself, so I kept working at physical jobs .I now have a very hard time to manage steps ,I cant lay in a bath because I cant get back out of it. IT sure makes life hard for a person, I am now in my 50s, I have been on Celebrex for years, and still suffer. I would love to know what one day of no pain would be like.

  1355. SO HAPPY TO HEAR I COULD BE CURED FROM THIS HORRIBLE DISEASE AND MILLIONS OF OTHER SUFFERERS TO. I MIGHT BE ABLE TO FINALLY PICK UP AND PLAY WITH MY 3YR OLD SON. 🙂 X

  1356. LYRICA DOES NOT AGREE WITH ME SO HAD TO STOP==IN 1980 AFTER TESTS IN UK THEY TOLD ME ITS PROBABLY MS==AM STILL IN PAIN EVERY DAY ===SO GLAD THEY FOUND THE REASON

  1357. I am very skeptical that this is the cause of Fibromyalgia. I think researchers have stumbled on proof of a “symptom”. Everytime we tell our doctors what is happening to us, they run test and nothing shows up. I tell my doctor I can’t handle temperature fluctuations, but, he tells me it’s not my hormones because I am taking hormone pills, yet nothing else shows up in tests. Now, they think these shunts regulate the body’s temperature and they are more numerous in Fibro patients. To me that’s proof that we are affected by temperature….and not necessarily the cause of the condition.

  1358. How do they test for this, to know if this is what you have? I am in pain everyday and also so tired,

  1359. This is an interesting article, and might be true for some Fibro patients. However, I have never had Fibro pain in my hands. I DO have arthritis and poor circulation in my hands and feet, but that is a completely different type of pain. I agree with some of the other commenters- I would like to see the actual research- how many subjects were studied, what were the scientific steps taken to come to this conclusion, and how can they justify predicting a “cure” for something most of the medical community is still divided on? I already know what my Fibro triggers are: humidity, changes in barometric pressure, and stress. I use meds when I absolutely have to- but prefer to control my pain with a healthier diet, and low-impact exercise routines. Its no cure, but it certainly helps. Frankly, I think the author of this article makes a mistake by clumping Fibro patients into one lump sum— from my experience, knowing at least a dozen other Fibro patients, while we have MANY of the same symptoms- ALL our triggers vary. Still- I will keep watching to see what comes of this, ahem, “breakthrough.” 🙂

  1360. The wishful thinking expressed here only makes it worse for those who have tried everything for many years, exhausted all their resources, and have nothing to show for it but pain and misery. False hope is not better than no hope. Diabetic neuropathy is also getting attention in terms of these small nerve fibers, and some doctors are taking skin biopsies and experimenting with treatments based on the findings. Apparently, not everyone with that disorder has the same neurological/circulatory setup, and one can imagine that this will also prove to be the case for fibromyalgia. Until a cure is discovered, please cut out all the nonsense aimed at people who are suffering: we do not suffer because they haven’t tried the latest cure or exercised hard enough, etc. It is cruel to impose your opinions. It exacerbates suffering in those who are already doing the very best they can.

  1361. Blood vessels seems like it is more than that, but happy to see we are getting more answers than its in our heads. I actually had to diagnose myself back in the 80’s. I am surprised to see no one has mentions taking Guaifenesin. It has saved my life. I hardly even take pain meds any more. In the morning I don’t feel like a Mac truck ran over me. Maybe just a bike. Check out a book by Dr. Paul St. Amand, MD titled “What Your Doctor May Not Tell You About Fibromyalgia.” He has some very different theories, but the medication really works for me.

  1362. Ever since I was 13 I would get what they said was attacks that would drop me to the grown and take very shallow breaths as it felt like I had something crushing my ribs. I seem numerous specialist they did a ton of test no one knew what was wrong they gave up and so did I. I lived with it and when it would happen it was odd to the hospital to get a shot of heavy pain killers and take some home to get me threw the pain wish lasted 24 to 72 hours every time. Wasn’t tell I was 16 when we moved to red deer alberta that I had another one and my mom took me into a doctors office he did the pressure point test and after only a few he dropped me to the floor and I could hardly breath he them told me his hunch was right that I had fibromyalga. Never heard of it tell then but my family still says it’s in my head. I was told it was in all 4 parts of my body but my ribs and shoulders had it the worse. Over the years I have had less of this but the thing is I was very active when I was younger and I find that now that I am not as active I have less pain.

  1363. I too have had Fibro since getting out of the military. Of course, it wasn’t called that in ’78. I am now 65 and the VA takes care of me, but they need to be more informed as to this new information.

  1364. Well I’ve had this and crap load of over lapping conditions since I was 8, and the only time I felt close to normal was in my over active sex life in my teen years and when I whent threw my pregnancy’s( especially the boys).
    I honestly think there is a link with diet and hormonal balances to fibro.
    They got to look at the common denominator with the over lapping conditions.
    Question, has anyone else noticed mood disorders as an overlapping condition?
    I’ve come across a hand full of Bipolar, anxiety disorder and clinical depression.

  1365. Lyrica and exercise really help. But Lyrica is expensive and not covered well by insurance. It hurts to exercise but afterwards it makes you feel better. I had to stop the Lyrica due to vision changes while I was on it. A rare side effect that not everyone gets. Vision cleared up as soon as I stopped it. So sad. I felt so much better while I was taking it.

  1366. I have had Fibro for about 22 years. Of course it wasn’t called that then. My new doctor (about 15 years ago) believed I needed sleep first. He ordered cyclobenzaprine and gabapentin at night. I sleep well and don’t dream. I awake feeling rested. I used to nap 4 hours every day just because I couldn’t stay upright Naps did not help with the fatigued feeling. I rarely nap now. I still have body aches and pain but mostly when there is a temperature change of 20 plus degrees,usually in Spring and Fall. I also take Cymbalta and Paroxotine. I have had anxiety and depression well before I had other fibro symptoms. Two of my sisters have Fibro as well as my daughter. I believe my father also had it, but was never diagnosed with it. I don’t know if this research has found THE answer, but I’m very glad people are looking for those answers.

  1367. I have suffered from this for almost 5 years. My dr. has prescribed Vicodin & Robaxin. It does help but only works for about 3-4 hours. He does keep a watchfull eye on how much I take in a month.
    A cure would be awesome!

  1368. For those who say nothing has helped….. I was diagnosed around the mid to late 1990s as well. So many doctors did not want to help because they didn’t believe it was real. I knew it was real, no-one wakes in the morning when you are supposed to feel refreshed and ready for a new day in total and utter pain for no reason other then sleeping or trying to sleep, for example. I recommend YOGA, MEDITATION, EXERCISE (especially swimming), and EATING WELL. I also recommend LAUGHTER, SOME FORM OF LOVE AND SUPPORT (doesn’t matter from who), AND A POSITIVE OUTLOOK. Although not a cure, I have been able to manage my symptoms almost to the point of little to no regular pain because of these things in combination with each other!!!! No joke. It works.

  1369. Sorry .. I think the proof is in the pudding .. when they come up with tests and such to back up this ‘finding’ I’ll believe it .. I’ve seen too many ’causes’ and ‘cures’ that are no more than fads. No pain in my hands other than arthritis around the thumb on the right hand, yet I have Fibromyalgia. Amazing ..

  1370. I have suffered with FM for many years. Have been blessed with
    Kind doctors. But the pain and fatigue have gotten so much worse in the
    Past two years. My hands have recently gotten much worse . I take pain meds , fish oil w D3, multivitamins and
    Almased, and green tea hawaii. These supplements help or maybe they
    Give me hope. God bless you all w an understanding doctor and
    Family.

  1371. Hello everyone. My heart goes out to everyone with fibromyalgia. I have a SIL who has it and has been successful in controlling it and having her doctor lower her doses of medications everytime she goes to see him. She has been doing a protocol of essential oils and supplements. If anyone is interested, please email me at [email protected]. God bless you all!

  1372. it would be great if this was a true unlocking of the Mystery….I am in constant pain and nothing seems to help with the every day torture….One questions are the health care providers been provided this information that was presented in this article?

  1373. I am doing my own research also,and this is good info. But i am a believer that what you put in your body is very important . I believe God can help us though food. I take a great vitamin that has helped get me out of bed, and helped me sleep. Zeal , I take Turmeric a natural product for inflammation that works GREAT. I take extra vit B 1# to feed the nerves . and Vitamin D3 10000mg because our body can not get enough even if we stay our all summer in the sun. I have a 11 yr old very active boy, I have a very taxing job, (dog Groomer) lifting, pulling, pushing.8 to 13 dogs a day. if I did not do this, I would be bed fast also. an I can.nt.. I know when Mind set In I had my last son at 43. and the pain stared have that some good days, and I take advance of them. Oh yes and I try to eat very clean and gluten free. if anyone is interested in brands of vitamon you can contact me. I hope this has helped

    1. Hello Kathy, thanks for the info! I currently take quite a bunch of herbal meds to help fight the fatigue I get from Fibro…What dosage do you take of turmeric?

  1374. I am on Cymbalta 90mg.daily.Was on 120mg.but cut back…This medication is not helping..What can you suggest.

  1375. I was quite excited to read this article, but left to wonder how many doctors know about this discovery for fibromyalgia…I was told about 2 years ago I have this condition and they prescribed me medicine to help with it…However, I discontinued use of the medication because the side effects where too much for me…How new is this discovery and is there a procedure we can now have done to treat fibromyalgia? I would like to inform my doctor about this news if so, well, unless he already knows about it…

  1376. My chiropractor has a supply of Enzycore by Standard Process that I buy from him. Enzymes will take the excess lactic acid out of your system. You can look up Standard Process online found a store on Amazon. There is also one called Multizyme. But there is no reason to pay over $30 or so.

  1377. I was diagnosed in 1996, but I had suffered long before that. At that time I was in the military and spent a lot of time in Physical Therapy. Next I saw countless chiropractors. All kinds of different meds along the way including Lyrica. After two years of taking that I had to stop. I was experiencing memory lapses. Now I don’t take anything except acetaminophen. I’ve had to change my lifestyle. I try to avoid any “high stress” situations. Stress for me is a trigger along with the changing of the weather. I also pray a lot (meditation). I take a nap every day because I am so fatigued. I have many restless nights. I’m not so sure I am going to put all my faith in this article.

  1378. I find the concept interesting but don’t feel it addresses the issue of the onset of the disease in some which, in my case, was a car accident. I never had fibromyalgia before I was in a car accident but have had issues with it for years since.

  1379. I am so sick with this I just can’t do the every day things I am in pain 24 7 days a week nothing helps me

  1380. I believe if I took this article in to my rhumatologist he would laugh me out the door. My mind is open to this; it’s the world of Western medicine in the actual doctor’s office who has to be convinced.

  1381. In the early days of this illness I found that lack of sleep was a huge factor for me,When I didn’t sleep the pain was unbearable. Gentle yoga stretches were also essential. Just hard to push myself to do the yoga but was always thankful when I did it.

    In the last 5 years I have learned that magnesium helped to relieve muscle pain. No one thing works for everyone it seems but these are what has helped me.

    1. Suggestions always thankful….
      It’s bad when people think they know best, when each one of us knows….we all suffer but what’s my worst may not be yours….we share the same suffering

  1382. Shelley, laradee, added comment to yours, hope it might help?
    I’m feeling the same…this is no way to live, I don’t, what’s better, & can’t imagine it could get any worse?

  1383. My prayers go out for all who suffer and for this information to be true so that releif from pain will come to you all soon. God is sovereign and we can trust Him.

    1. This being the same God who (according to your beliefs) made people. So God made people *with* Fibromyalgia…

      (And no doubt someone will come up with some “ineffable” reason to justify why he did it, to which my response will be “Yeah, whatever.” You can believe what you want, I prefer facts.)

  1384. I found this very interesting and like laradee I too am a new patient, with in the past 2 yrs I feel like i have gone from 18 to 80. i get severe cramping in leggs, calves, lower back, shoulders, I am constantly fatigued and there are times when my limbs feel so heavy that i can not lift them, my eyes too. The only joints in my body that dont hurt are my elbows and head ie no head aches. I also go through stages that i vomit every morning. I am nautious all of the time as well. before i eat, after i eat doesnt seem to matter. I am a female who has worked in the construction industry for the past 12 yrs and prior to that i turned wrenches for a living. It is very difficult to perform my job duties unless its answering the phone but what good is answering the phone if your in too much pain to perform the service they are requesting. very frustrating. many days i think just dying would be much better than to suffer with this pain.

    1. Shelley, Laradee… I’m with you…. I did labor for 19 years and then I was a caretaker, who new I’d need one for myself!!! When aren’t we in pain & what work is there to do? Phones, yeah right, when would I be…just be, to do that work?
      I’m seeking support…Laradee527@yahoo….tho I’ve found a lot here knowing I’m not alone but need more, it needs to be like txtg, respond only when you can & want to “no more added stress” we have enough of that!!!

  1385. I am not sure how I feel about this. It seems like way too limited of a study to claim that the mystery is solved. It is not the first time researchers have claimed to have found the answer. If people decide to put all of their faith in this study other research into other causes could stop, which would be a real disservice to us sufferers. But then again I am an eternal pessimist lol.

    1. I agree – we can’t put all our eggs in this basket. But it’s nice to have a basket ….

  1386. I was diagnosed in 1983 pretty much put in the hospital 4to6 times a year they said it was all in My head I was necrotic. Has been a long battle and now have been diagnosed with rhomboid arthritis. 6 years ago. I can not take any anti inflammatory because I am allergic to ASA . So It has been difficult needless to say but there seems to be nothing that anyone can do…. So I will just try and keep my head up and stay positive.

  1387. OMG, if this is true it would be a miracle. I’m one who have had fibro for about 30 years, when I was told it was all in my head. I was diagnoissed in 1999 and just to have a name to this terrible pain was a blessing, at least I knew I wasn’t crazy. I went from a very active person who never took meds to a person who can hardly move with the pain and fatigue. These 2 symptoms are always with me. I’ve had to change my lifestyle completely, retire from work (mainly due to the fog), apply for disability and now use a wheelchair if I have to walk any distance. I am now divorced as my ex still believes this is all in my head and that I am “putting on”. He told me once that he knows other people who have FM and they are living a normal life. I would give anything to be able to live a normal life. I’m looking at this handfull of pills I’m taking FOR breakfast and praying that all FM patients will benefit from this research.

  1388. CAROL GRECH JUNE 25’2013 AT 2PM FROM MALTA I LIKE TO KNOW WHAT TYPE OF PILLS THER ARE TO TAKE I SUFFERED SO MUCH PAIN FOR SO LONG I AM 47 YEARS OLD AND I WISH AT LUST I CAN LEAD A NORMAL HEALTHY LIFE I NEVER SLEEP AT NIGHT AND ALWAYS WAKE UP SO TIRED AND BAD MOODS THIS CONDITION IS TAKING OVER MY LIFE PLS HELP

  1389. You know my pain started in my feet, when working my feet hurt so bad at the end of the day, and I wore nurses shoe’s to work in, good shoe’s, when I would go home I couldn’t wait to get my shoes off and get in a hot tub, but when I got up for work the next day and put my feet on the floor they were just the same as if I had work all day. then it went up into my legs, I lost the power in my leg’s, I went from one Dr, to the next, none could help me,then I started having real bad pain in my head my face down into my arm’s and into my hand’s, now it is even in my eye’s.I would be in the hospital because I couldn’t keep my food down and my head would hurt so bad , sharp pain’s and contest hurting, I had the pain block’s they put a long needle in the hole of your neck, and I would fell the pain drain out of my head and face and arm’s, but it would only last for a short time, But I was thankful for that time, and now I am suffering so bad with pain, it is hard for me to go anywhere, I can’t walk a long time,and I am so tired, I am on so many pill’s that I believe they well get me before anything else, but I pray every day for god’s help, as I become weaker by the day, please who ever you are, help us, I am a believer in God, If I ware not, I would have taken my life long ago, it is beyond the pain chart’s my pain. help us

    1. Wow! You said what I couldn’t in my comment! Your words mean so much, I no longer live….I suffer! For you, me & others I hope for something. The pills consume me & I’m noticing effects in my memory & vision, just getting worse, not sure there is any worse pain & I suffer from migraines also

  1390. I too hope there is a light at the end of this never-ending tunnel…I have known about my FM since ’95. I am unable to take any of the meds that are supposed to help due to my other health issues (hypothyroidism, Factor V Leiden, psoriasis, migraines, eczema, high BP). I have also had the CTR surgery, but here it is 4 years later and right back to square one. I cannot spend the time with my boys that I would like because of the pain, so I would be eternally grateful if this meant a cure (or major relief) is in the near future.

  1391. This information is so helpful! I am going to forward this to my physician. Thank you SO much for sharing this. It is interesting that it is believed to begin in the hands….I’ve had hand-pain for as long as I can remember! This is so helpful!

  1392. I’m still confused how hand issues cause wide spread, all through your body, debilitating pain?? If this really is the root to fibromyalgia…HALLELUJAH!! It is definitely a new exciting piece of information to follow up and research. It is hard to be immediately on board with this info after almost 20 years of being ‘sick’.

  1393. Im just looking for answers for the pain. Reading your posts are helpful. My pain started in 1996 in my wrists/hands, had CTR surgery and they wre better, then shoulder surgery, 1 got better the other didn’t. That pain is shoulder, neck and scapula area. Thru phys.therapy the shoulder area improved. 1 yr later it was back, and has been on and off since. Then my feet, first 1 then both. The Rheumatologist argued with me that it was Plantar Fasciitis. The pain was nothing similar to that. I had the symptoms of rheumatoid arthritis without the swelling, it was always pain in or near a joint then both, hands, shoulders, feet, elbows, back, hips. Many doctors, xrays, blood tests, physical therapy and drugs…I still have no diagnoses. MRI showed slight spinal stenosis in lower back. I still have diagnosis for everything else. Some of the pains have gone away now but when I lose one, I gain another. I am not fighting neck pain. Its maddening. I feel like a hypochondriac! Is this Fibromyalgia?

    1. Do you eat or drink anything with artificial sweeteners? I was having serious joint pain over the course of about two years. I read an article that stated people have been being misdiagnosed with all sorts of diseases including MS and fibromyalgia when in actuality it was caused by artificial sweeteners. I cut it from my diet, and in three days I was a new person. It is worth a try!

  1394. wow I hope this is true, i am so looking forward to getting my life back as fibro is taking over what i can do every day.

  1395. I certainly hope they are heading in the right direction. I’ve suffered since 1995 and am now watching my son begin to exhibit symptoms. I would love for him to be able to have a cure or medicine geared directly toward this unknown disease. Lyrica helped me, along with tramadol for the pain and baclofen for muscle spasms. It took me several years to come to terms with this. As someone else mentioned, I was a very active, go-getter until I had to face reality and slow down. I pay close attention to my body and get the 8-9 hours of sleep every night that I require. I dislike having to be so controlling and pray that some day very soon I can start living my life again.

  1396. This is interesting because my family has HHT. I have a Arteriovenous Malformation in my Liver and small ones on my skin. My brother had a AVM on his spinal cord in his neck. I hope if this is the cause of Fibro they can come up with some medication it help. I never thought about messed up blood vessels causing the pain and other problem that goes with the fibro.

  1397. Is there some light at the end of that tunnel? Have suffered with FM for years along with other medical problems. Constant pain 24/7 and with no relief even though I am on over 20 tablets a day! My doctor seems to tolerate me, but only just! I hope and pray that there will be some relief for the millions of sufferers of FM with this new discovery! Hang on in there!

  1398. I am 76, had fibro since i was 35, diagnosed at 59. Was so sick with pain and fatigue I was contemplating suicide. I had some sulfamethazole that was 20 years old that I had taken for kidney problems 20 years prior. I took one pill and woke up the next morning pain free. I took it for 10 days and was functioning well. When the pain and fatigue returned about 3 month later, I tried it again and it worked for me again. Thankfully my Doctor at the time prescribed them for me. Then my doctor moved to another state and I suffered for 2 more years until I found a doctor that had no problem giving them to me to take one tablet daily. I also take 10 mg. of imipramine {a very old phycotic med} that relaxes me so I go into a deep sleep at nite. Also, I have read where some patients are prescribed low doses of antibiotics that help. To all of you who suffer with this you must keep going and changing doctors until you find one to help you. The neurologist that prescribed the imipramine said the reason the other meds the doctors prescribed to me were started with high a dose and my body did not tole
    arate them. He started me with 10 mg. and I could have gone to 90, but I stopped at 50 mg. and worked my way down to 10 mg. at bedtime. If I have a lot of stress I take one in the a.m. also. If you can get a doctor to give you the Sulfamethazole try it and see if it works for you. I think fibro is partly caused by intense, highly active personalities who have a problem moving slowly and calmly through life. I also think allergies have a lot to do with it. Felt much better in Wyoming on vacation last year. Warm and no humidity. Back to Wisconsin and the pain starts again. I do not think constant pain meds are the answer.
    Every ones body is different, I hope you all can find what works for you as I have.
    My Mom had it, of course it was not diagnosed back then. She said her body hurt so bad no one could touch her. After 60 she did nothing but sit on a chair all day. She used to talk about her Aunt Vinny, who quexed around all her life running to doctors, so It may be inherited.

  1399. i really do hope they can find a cure for the millions of people out there suffering I take gabapentin of the highest dose 7 a day and until i started on these my life was hell they have made such a dif to me but i do believe i am addicted to them My doc has given me morphine but i find when i do not take the gab my head feels as if it will explode I wish them success i really do xxxx

  1400. Carrie Mason
    June 25th, 2013, 3:55 a.m.
    I have suffered since 1995 with excruciating foot pain and constant pain throughout my body generally 3-4 inches from each joint. I was not diagnosed until after lung surgery in 2004. Since then I have experimented with several pain meds; many made me feel disengaged, like Lyrica, which dulled my hearing and eyesight. Now I am on a PMP (pain-management-program) which requires one Gabapentin (Nerve-ends), one Tylenol x/str (For muscle pain) and it keeps the pain to a minimum (1/2 the dosage (to protect my liver).
    I am a writer and have just published the second book in a trilogy…it can be done! I also do my prescribed stretches every morn before I get out of bed, My hands are fairly good as log as I don’t try to open anything…my thumbs give me trouble; however, I do play my guitar every week, God bless you all I hope there is a cure!!!

  1401. Whether this turns out to be the cause, or one of the contributing factors, I only hope something can be done for all of us. I’ve had it for most of my adult life, but was diagnosed only about 20 years ago. I’m 62 now. It does NOT get better with age… People still don’t “get it,” either. Invisible handicap. Keeping as active and busy as possible does help, but it’s not easy. Hang in there, everybody.

  1402. thank you so much for this.I will be showing this to my daughter’s doctors.

  1403. I have suffered with fibromyalgia since 1994; I was not diagnosed until 2004. It was ignored by Doctors who prescribed unrelated pain meds I generally flushed…until Gabapentin which has changed my whole outlook on life; I am on a Pain Management program which requires one Gabapentin and one Tylenol; taken three times daily with Senecot along with a morning stretching regime before I get out of bed. I will be watching for a cure. Unlike Catherine, I play my guitar at least once a week and only have trouble with my thumbs. Good to hear from you all…God bless you, .Carrie Mason, 25 06 2013.

  1404. ya’ll need to google LDN……read up on this, my brother in law has fibro, and this has helped him tremendously, He got off all the med’s except muscle relaxer at night. Please read it, God Bless you and Heal you.

  1405. I would love some relief from this pain that is usually 24/7!! Hope we get help sooner than later!

  1406. i injured my knee on 24/3/10 and after that was in pain and still am, was diagnosed september 2012 with fibro so yes trauma is a factor and poor circulation, i dont suffer sore or swollen hands much its mainly my feet and knees that swell

  1407. Jeg har helt tilbage fra meget tidlig barndom været en usikker person , der gik med angst tanker om jeg nu var go nok,.det fulgte mig gennem mange år , levede mit liv efter andres behov og følte aldrig jeg var nok..det gav mig psykiske lidelser og som 19 årig blev det psykologer gennem mange år uden forbedring..altid var det negative tanker der styrede mit liv, ..Som 38 årig kom smerterne på ganske kort tid og blev så voldsomme jeg ikke kunne side samme stilling mere end 5 min og måtte skifte stol , det blev halvanden år gennem special læger for at finde et bud på smerterne. En sidste kommentar var, du har en meget sjælden muskel sygdom og fortsætter du arbejdet sidder du i kørestol som 50 årig.Det blev nogle lange år med endnu frustrationer som forværrede smerterne, en dag sagde en go veninde, prøv et selvudviklings år det vil du ha godt af..Det blev mit skridt til en ny verden med efter følgende Coach uddannele, et kursus i selvudvilking i Frankrig, et kursus i føelsesmæssig intiligens, De negative tanker blev til positive , min smerte er gået fra en skala på 10 til 2, så jo det psykiske har stor påvirkning. vi ved jo alle hvor hurtig vi kan få nakke smerter, hoved pine ved stres, eller bekymring, vi skal ind og mærke os selv, flytte fokus fra hjerne til hjerte,
    I dag holder jeg foredrag om tankernes kraft, og sikke forandring det giver folk..
    Kh HennyEssens-Coaching
    ,

  1408. I have a daughter that suffers with this and is on so many pain meds. This would be an answer to prayer for so many. I wonder if it might be linked to neuropathy and other nerve pains, which I have? I also have joint pain and hands that get sore and swell. I have had to take my wedding ring off these past few months because the pain of having them on has increased.

  1409. So why haven’t we heard of this main source of pain in Fibromyalgia patients on the news???

  1410. I have had this horrible disease for at least ten years, I have bi polar and epilepsy . And depression , sometimes the pain is unbearable, my moods are awful . My family suffer as well because of it . I can’t lay on one side because it increases the pain . A cure would be brilliant , but just a bit more relief would help

  1411. It’s great that you know why but what can help? I have been in dibilitating pain for years & I used to love writing, now its too painful.

    1. Hi Susan,

      I technically haven’t been diagnosed with Fibromyalgia, however do have floating bone in my neck from 2 whiplash injuries. Earlier this year the medication I was using to manage the pain (Duratram) a derivative of Tramil was taken of the local market; my Doctors recommended a new medication called “Lyrica” This is specifically for Neuropathic pain and also a new treatment for Fibromyalgia.

      I have found it very successful at the minimum dose (150mg) p/day and have increased it now to 225mg p/day, because as noted in this article, the Winter weather has an effect on my symptoms. Now as you can possibly tell by that, I am in Australia. So where you are the drug might have a different name. ??

      This is the drugs website: http://www.lyrica.com/

      I hope this may help and would be interested to know you experience. (I’m not a Doctor, but have struggled with the pain from this for the last 4 years and 3 years previously from the first injury).

      Regards,

      Stewart : )

  1412. I have suffered from chronic neuropathic pain for more than 8 years. But the more research I do the more it seems I may have fybromialgia, I have to see my consultant next month and will ask him to look at my condition again. I have so many of the symptoms that I cant believel this isnt what is wrong with me. I lost my job because my employer was unsympathetic to my illness, I even offered to work from home but was le go instead. I am currently on 15 pills a day for my pain and other problems, some related too the many side effects caused by the drugs themselves! I am in constant pain and would love to be able to work again so I am keepin my fingers crossed that one day very soon a cure can be found, or at least something to relieve our pain and suffering. a bit. I cant see how long I can continue on the huge amounts of morphine (400mg slow release) without developing other serious problems. So lets just hope something will breakthrough soon.

    Anita Leslie

  1413. i’d like to give over some more info on GUAI-AID. IT IS AVAILABLE OVER THE COUNTER’
    it’s known as guaifenesin…from the guaiacum tree……..there is a book that’s clear and a help by gregory k. penniston d.c…some contraindicators are aloe vera, salicylates etc.
    it really works….takes a month or so till you start to see results but it REALLY WORKS.

  1414. I was dianosed with fibro in 2000, my pain has steadily gotten worse and I have had a flare-up just today and I just noticed that my hands are red and inflamed. They hurt all the time but I thought it was just athritis in my hands till i just read this article. I hope they do find a cure because i am tired of hurting all the time. I still work and will continue to work till I can no longer work. I refuse to give up. I find that staying busy helps but I havealso noticed that when I get stressed my pain is much worse. So lets all pray that they find a cure so we can live pain-free for awhile..

  1415. I cannot say, nobody can that is the horror of this disease. Before 1989 I was extremely active. The labor I chose to do was very physical. Train conductor, commerical driver, heavy equipment operator. All these jobs required strong grasping of steering wheels, and other controls. Just wondering now, since they say the problem in is the hand; if maybe trauma to the hands could have exacerbated this condition. Anyone? Comments welcome.

  1416. Thank the lord! I hear people in hear fussing about 4 years, 2 years. I was diagnosed with the disease back in 1994! The first year it had a name. But I had suffered since 1991 when i first developed symptoms. I endured Pressure point injections, nerve pills, anti-depressants, celebrex, oxycontin, you name it they prescribed it. Numerous sessions of physical therapy. A cafeteria line of Doctor’s who believe I was crazy, or just making it up. Finally, a doctor who practiced Physical Medicine examined me and told me. “Your not crazy, you have fibromyalgia and Chronic fatigue syndrome. I don’t remember whether I was crying because at last, someone believed me or crying because their was no cure. So I am just grateful to those scientist for not giving up and finally pinpointed what causes this nasty disease.

  1417. Barry, I too have had it since before they knew what it was, and been through so many tests and GOD FORBID you have to move and redo all those tests again and again and again, making hospitals richer and us poorer.
    I even was a part of the research for fybromyalgia in the late 80s and we went from avoiding things like salicylic acids and such which you find in most facial products and lotions, to vitamin therapy to all types of homeopathic therapy, I was addicted to the pool, which was the only way to feel weightless, but still exercise. I have had so much damage to my nerves that now I am in the chair, and dont get out of bed much, but it has settled in my lumbar and my tail bone area. Everytime I would go to my doctor they would say arthritis when I turned 50, because of that usual label. |
    So, I gave up, and I just started doing what I could to occupy my mind and make me keep from going nuts.

    Now My question to most of you Fybro carriers. HOW MANY TIMES DID YOUR DOCTOR SEND YOU TO THE PSYCHIATRIST. OMG, its unbelievable how many times I heard that one, I went from bipolar, to depression to and nothing made me feel better, so I stopped them all, and tried to clean my body up of bad things to eat, still the only thing I DO GET SOME RELIEF from is Vitamin D3, which helps somewhat with energy, as it is always low, and my pain meds which are probably killing me to this day, I can only pray they come up with something. ITS DEBILITATING and nothing I asked for , that is for sure.

  1418. Hello, I suffered from Fybromyalgia for more than 4 years and they gave me 2 more years to end up in a wheelchair, no medication could help me. So I took a big risk and moved to the South of Crete where they have a microclimat (originally I used to life in Belgium) and now after one year I almost have no more pain and the Chronical Fatique comes for 1 day every 3 months. I take no more medication and every day I take a walk of 5km, as in Belgium I used to lie in the sofa or in my bed all day. My pain is about 95% gone.

  1419. I am on Savella as well and it has helped he too! I also have Sleep Apnea and start on my CPAP machine tomorrow. My Rheumatologist seems to think the combination of the two will help battle my Fibromyalgia.

  1420. I have had fibro and chronic fatigue syndrome for about 20 years. There are no pain medications that work for me. What does work is certain antidepressants and NSAIDS. Unfortunately, a blood test showed my kidney function to be borderline so I had to quit taking NSAIDS – I didn’t realize how much they helped the pain. I hurt so much and a couple of my doctors didn’t know what to do so I got referred to someone else who referred me to a program called Rehab Options – for people with chronic pain. You go from 8 am to 3 pm with no set ending date, but with your progress deciding the end date. It is an integrated program with a lot of exercise, biofeedback training, some aquatic exercise, core strengthening, relaxation training and breathing. It took quite an effort on my part to get up in the morning and attend the program. And I just couldn’t see how this was going to help as I was in so much pain, but it did work very slowly and carefully, it did work. When I left the program after 4 months, I was walking without my cane, I was standing straighter, the hump on the back of my neck/spine was lessened. I’m still in pain but I’ve learned to work around it and I’m stronger now. But I sure would like to have something that would take the pain away.
    In the last 20 years I have seen so many different reasons/solutions/research on fibromyalgia that I’ve gotten rather cynical about each one, so I’ll believe it when I see it

    1. Many of us that have suffered for years have probably looked in to almost everything! ANd because we are all different with our pain, etc it is hard to treat. Here is a website with answers & supplements that have helped me http://www.treatingandbeating.com

  1421. I like this article and wonder if it explains the fire redness that lights up in the palms of my hands. Its been I believe 6 years since they diagnosed me with this and really wondering if this holds that explanation in it. Im curious to fiind out. Glad to see they have at least pinpointed where its coming from this will bring some much greatly needed pain relief to so many. God bless all his children.

  1422. miracle of miracles…….about 2 months ago a fellow fibro sufferer introduced me to
    GUAI-AID she’d been using it and had astounding results. she was kind enough to give me FREE about a two month supply to try. well after about 10 years of doing every treatment and taking pain killers, acupuncture, cannabis………no relief my prof. of reumotology said my case was extremely severe………..I AM SO SO MUCH BETTER, THE PAIN IS ABOUT 75% GONE!!!!!!!!!! PLEASE go on line and get it. it’s given me back a quality of life; i couldn’t imagine how i’d live the rest of my life with this horror of an illness only getting worse and worse. believe me my future looked so very dismal. i know most people are sceptics but this natural product will give you your life back. blessings so all sufferers.gittl nadel-alpert

  1423. Well where do I start , they blame my fibro on having an early hysterectomy at 21, I’m 40 this year, iv had shingles every year covering my left side of my face, I lost my nan suddenly in 2007, I lost my youngest grandad to a brain cancer in 2007 then to find my husband to have terminal brain cancer and is living on borrowed time, my mum was diagnosed with breast cancer of jan this year and now my sister had been diagnosed with fibro, so to me I’m lost on where and how if got it but I do know if my brains upset then I tend to have major flare ups!! And the worry and stress of my mum becoming ill and also my sister loosing a close friend what she blames herself for not being there enough for her friend who sadly killed her self …. So my money’s on the brain!! And trulma people go through…… Every time I’m worrying , stressed , I flare big time, I don’t think I ever stop flaring with living with my dyeing husband ,every time I do his chemo from home , the anxiety and stress of doing it , I end up in bed for a week with fatigue and pain 🙁 most days I don’t want to live but I have a loving family and 3 beautiful boys and a granddaughter , so I must think of them xxxx

    1. So, what you are saying is…you are smarter than the doctors who may have found the beginning of a cure for you. The brain does have an amazing ability to kick up things in the body from stress and other things, but that doesn’t make it the source. You sound like more than 50% of the people who have Fibromyalgia that I have met. All you want is an excuse to complain for attention and be lazy. Your whole post was entirely about “me, me, me” and all of what you are going through…welcome to life.
      I hope this is the start of a cure so I can stop listening to all of you complain…then again, it’s in your nature, you’ll find something else to mensch about.
      To those who genuinely have this condition and suffer through it with otherwise productive lives and actually wish to see an end to this, your pain and fatigue, I hope this comes to a happy conclusion.

      1. Yes, we who hav suffered fybromyalgia get SO TIRED of feeling sick & tired! All I wanted to do was whine! Along with the pain, I had hair loss, constipation, tiredness and general debilitation. That’s why I posted earlier that a change in my thyroid medication helped me IMMENSELY! I feel “human” again & am able to function almost at normal.

      2. Wow, Ouch…I can only speak for myself, but I do more than 10 healthy people I know!!! I am strong and anything but lazy, most would say obsessive if anything…but man do I have pain…sometimes I can’t move my legs or arms and have taken a few real nasty falls as a result. Personally I hate the diagnosis…I wish it was something more “Acceptable” because I always feel people think I am lying if I do complain…so I don’t…problem is, I am a do-er and therefore, my family and friends normally need me for something…they never know how hard it is most, and I do mean MOST of the time. There is not a time without some amount of pain, and I guarantee it…no-one would ever guess that I am sick!!!!!!! I am the furthest thing from lazy I know, but I do know this pain is real!!!!! I Tested positive for lupus and then was told by a specialist my numbers are not high enough to have that be the problem…weird thing when you have this illness…I would have preferred Lupus, simply because people would believe me!!!!

      3. WOW, Your comment is so disturbing that I just had to tell you, GET A LIFE, if you have nothing better to do then to complain about something YOU OBVIOUSLY HAVE NO IDEA IS OR FEELS LIKE, then you need to just STFU and get a life that is more productive then to insult those who suffer a great deal. Myself, I was a compulsive exercising machine and still I had this debilitating disease that has me in a wheel chair, LAZY IS NOT IN MY BRAIN. YOUR AN IDIOT

      4. what an insenstitive creature you are. How sad you are missing one vital ingredient to being a wonderful human being….empathy.
        Claire was expresing emotionally how she feels, and has probably done her the world of good sharing it. you on the other hand are just whingeing.

      5. TiredofLazyPeopleClaimingThisDisease, with karma being what it is, you are sure to be cursed with a terribly debilitating disease that doesn’t show on the outside and doctors can’t figure out. You are the most uncaring of people and must have a terrible life.

    2. Dear Claire,
      Probably the most likely answer is a combination of both. I too get worse when stressed, to the point where I am sick and in bed for days also. But, maybe, just maybe, there is something that can help. What you are going through is impossible not to show up in your health. Stress is a killer and it definitely makes any illness worse. Bottom line…I wish you blessings and to find joy and hope again…focus on your family, it is our greatest strength always…and know, that others, even strangers have you in our prayers and understand your difficult struggles right now! I truly hope you find hope, health and strength at this time!
      ~Claire

  1424. Fibro is diet related.I’m Seeing a Naturopath- the only one in Canada who does a unique type of allergy testing. Major improvements in 2 weeks. Let me know if u want to learn more about him.

  1425. I’ve had fibro for over 20 years and serious allergies since I was a kid. Some things helped for a while but the fatigue and pain always came back. I work as hard as I can but with this bad economy lasting so long; I am sinking. And I just can’t force my body to do more than it already is. I hope they’re on to something here and that it will work for me. Course now I’m 59 – getting old is kicking in too. But if I could feel just a little bit better…

  1426. I have had Fibro for 2 years and getting in a jacuzzi is my savior. On a hot day I get into our heated pool @ 90* ! I have been to the very bottom and had to be hospitalized but, the Dr’s gave / blessed me with right meds to give me sleep and some relief of the pain. I have just completed 12 sessions of physical therapy and I was blown away at how much mucle tone I had lost. I am on 5-7 meds but at least I can get some sleep. I have lost some of my brain speed and being able to remember things / short term memory is also a challenge. The pain in my hands has gotten worse lately. Hang in there for a cure before our bodies give up !

  1427. Everything is so confusing. I just want to feel better. I wish I can sleep. This pain is terrible no matter what pill I drink the pain is still there .HELP

  1428. I hope this is a real discovery that springs forth healing for so many sufferers… including me..

  1429. I have fibro and Charcot Marie Tooth disease and have been put on so many drugs and nothing has helped my daily pain. I just want something that helps!!

  1430. My husband has suffered with Fibro for the last 10 or more years . It has effected both our social life, now nonexistent and our personal life.. He is terribly fatigued. Some days he sleeps the whole day. His hand are extremely painful so holding hands is out. He is also on oxygen 24/7 now. Any other ideas. He is a big guy and exercise is just to painful. This decease is stealing him from me.

  1431. I personally believe a lot of those diseases like fibromyalgia are caused by years of vitamin/mineral deficiencies. My thighs hurt to the touch a few months ago, like nerve damage…did my own research…I figured I was deficient in vitamin B…started taking liquid Vitamin B complex and it went away. Also, I was extremely fatigued, hoping it wasn’t chronic fatigue syndrome, where there is no explanation for it….come to find out I am severely allergic to dust…I had no sneezing, runny nose, cough, nothing…it just caused extreme fatigue, my arms even felt heavy to lift…first day I took allergy medication I felt normal again…clear head, energy, it was wonderful…I have to take it regularly and I feel normal. So, in case someone is experiencing fatigue with no obvious cause, try an allergy medication, it very well could be that alone.

    1. I have taken a vitamin B complex for years and it did nothing to reduce my pain. I’m glad it worked for you but I wasn’t so lucky.

  1432. i have had this since about 1980 after a spinal cord injury.Iwas given anti depressants because my Dr just didnt know,i changed Drs he said it was fybro and prescribed Savella for me and my pain is about 75% better now

  1433. Seems overly simplistic to me. If it’s a matter of too many whatever cells, why isn’t there onset at birth? Do people just develop extra cells after a stressful event? Why was Modolfsky able to induce fibromyalgia by depriving healthy college students of Stage 4 sleep? Why don’t ALL fibro patients have extra pain in their hands? Why aren’t all fibro patients feeling worse in the cold? Sorry, way too simplistic. Still, if it leads to another treatment, I’ll be very happy.

  1434. I have been taking forenergynow.com for my fibromyalgia. It is a herbal supplement and it really gives me a much better quality of life! Make sure you ask your doctor if it is ok if you are on medications. I choose not to take their drugs. All I take is the energy for now and it has been a life saver. I don’t sell this or make on penny but I do take it every day and would not be able to get out of bed if I did not take this.

  1435. I’ve lived with fibor and poly, along with Senile Osteoporosis and both Rheumatoid and Osteo-Arthritis. I can’t take pain medications at all – the one and only one I could take was Darvocet, which is no longer on the market thanks to the drug manufacturers that want people addicted to drugs. I wish I could take pain medications – but I’m deathly allergic to them. I hope and pray every night that they will come up with a cure, but I don’t feel good about this article.

  1436. My fibromyalgia improved when my thyroid medication was changed from “Synthroid” to “Thyroid”.

    1. Hi Ann, I had thyroid cancer when I was 30, had 2 operations,first partial…cancer revealed…waited 6 weeks and had total thyroidectomy. First dr refered me to a specialist at a different hospital. I’m 63 now, and feel my fibromyalgia, pain & fatigue worstened after the thyroid was removed and relying on the meds.
      I’ve often wondered if the thyroid caused me more problems as some years the dr just can’t get it right, it takes months to a year to get it normal. Since I’m hypothyroid, my fatigue is horrible some weeks. It takes me all day to dress and get anything done.
      I’ve been on Synthroid most years the last 33 years….went to an endocrinolgist 2 years ago. He has me take levothyroxine..which is the generic for Synthroid. It seems my fibro worsens each year.
      Can you explain to me what you mean by Synthroid to “Thyroid” medication?
      Thank You, I’d appreciate it!

      1. Mary Eads: I was on Synthroid & later a generic thyroid med that a pharmcist suggested and altho my bloodwork showed okay, I WAS NOT! Physically & mentally I was deteorating. My daughter’s doctor had put her on “Thyroid” & she felt so muiich better that I asked my doc (he diid not know it existed) if I cud go on it, too. My health has improved so much I can hardly believe it! “Thyroid” is just another “brand” of thyroid medication (that’s the bestway I can describe it). I believe it is the NATURAL hormone, I.e. Nothing synthetic about it.

  1437. They Treat Those of us that suffer with Multiple Chemical Sensitivities the Same Way. Like it is a Mental Made up Phycosis. They are Dead Wrong about that one too. Hope they start to look for a way to treat that also and find a Cure. Other than to Stop Poisoning at nearly every public place now. That would at least be a start in the right direction. The worst part is if they get a Medication to “Cure Whatever” the Medication has such Horrible Side Effects that they cure is worse by far than the thing you are suffering from. So What is the Point to try to get help at all.

  1438. It would be so wonderful to find a cure.I suffer constantly,even with all the meds,always feeling fatigue,I would love to feel normal again,And going to the dr. monthly and the price for the meds is ridiculous,but we have to, to tolerate it.I pray for everyone with Fibromyalgia and other diseases,hoping one day to feel whole again.

  1439. Aren’t fibromyalgia, Rheumatoid Arthritis and Lupus all related? Aren’t they all autoimmune disorders? My cousin has all three. She is in pain every minute of every day. Of course, some days are worse than others.

    1. Isn’t it something to do with low vitamin D levels? I’ve got that and I suffer with pain everyday of my life, drs tell me it’s all in my head but now they have found this I’m so happy! Xxxx

  1440. When you suffer from chronic pain you want to try almost anything to relieve it. You hope for a cure and try your best to cope. I really hope there is some truth to this theory but time will tell.

  1441. If there are excess blood vessels in the hand, Is it likely they are excessive throughout the body? If so this makes sense to me. A cure for this truly debilitating pain would be truly amazing.

  1442. There are helpful natural supplements for fibromyalgia, prescription drugs are not your best hope.

  1443. ouff i have had these dease for at least 30 yrs, and no these doe,s not make any sence to me at all …I agree with what Jo-Anne is saying ….I have been threw it all ..And was never told any such thing about these ..But hoping one day the pain nite and day ..May come to a end ..But i live with it ..I have no choice ……But Not easy to live with it beside,s staying positive ..And walk you have to move …Lie i was told by many of doctor,s …my point …And it ant no fun living with these Fibro ….I could go on for ever but i know the feeling as well as many many more …

  1444. Its about time, after working all my life and suffering this pain, they might finally be able to come up with a cure. Lets hope. Last I was told it was caused by a virus. I think the doctors just make things up when they don’t have the answers.

  1445. My Drs still keep saying we don’t know what is wrong with you. You don’t have this or that, but we don’t know, so just go home, take some of this or that over the counter pain med & come back in to see us in 6 months.

  1446. I agree with Susie. I did relate to the painful hands though. I have dropped my coffee many times because my hand strength failed. I do notice too that stress is a big factor. The more stress the more pain. True with lack of sleep too.

  1447. I can’t believe this is what is causing the pain I experience,if it is true,someone had better get their butt in gear and get this information out there to the experts to find a cure and stop the millions of people like me,who have been suffering with this disease since decades!!!!

    1. A research rhumetologist in Boston equated my fibro as having stemmed off of a strep infection I had when I was 10 yrs. old. He kept working back through my history to try to find when I actually started having symptoms. I am 65 now and have run the gamut of helps that are out there. I come to this conclusion …I must faithfully be working to build the immune system with good organic foods and try very hard to not be using prescription meds that have side effects to battle. Rest and deep sleep, which often is impossible because of the pain is a primary help and stress brings on total flareups. I know now it is not going away and I don’t want to be on drugs long term so, I supplement in raw food vitamins and supplements from Garden of Life. It would be so awesome if your researchers could fine even just a healthy way to rebuild what this disease destroys in our bodys without having to turn to drugs. I truly wish you every success and I will be waiting my turn in line…maybe.

  1448. I was diagnosed with Fibro around fifteen years ago, after many frustrating appointments with Dr’s and specialists, but have had it for a lot longer than that. .About the only thing that doesn’t hurt on me is my hands, that sounds more like arthritis to me. I would like to believe this article but I have read so many articles on Fibro and there are so many theories of what causes it that you just don’t know what to believe anymore. If they can come up with a treatment or a cure that helps, then I will believe.

  1449. I’ll have to reserve my judgment, as this doesn’t make sense to me. It would be great if it turns out to be true, though. Time will tell.

  1450. I have suffered for years and unless you have experienced this debilitating disease, you cannot understand how it can drive you crazy because it takes your life but doesn’t kill you and all you have to look forward to is the rest of your life with pain, fatigue, nausea and basically like the flu most of the time. I have had to resort to narcotic pain meds and that is not something I wanted but I am fortunate to have a doctor who is very supportive and has been the only MD that has taken me seriously and i have seen several. I have also suffered with breast cancer at 46 and although difficult, Fibromyalgia is much worse as it is lifelong. I pray for a breakthrough with this disease as that is my only hope.

  1451. My daughters both have fibromyalgia and so do I. we all have depression.Baby has diabetes,liver failure and kidney failure.The oldest has MS too.does this run in genes?

  1452. Would so love this 2 b true….I’ve had fm for nrly9yrs now & I’ve went to being the life & soul of the party to never being out anymore if I do manage a night out on a very rare occasion I’m in bed all wk….I’m either up all night or sleeping for 2 days I would just love 2 b able to go to bed at night go to sleep and wake up in morning like normal people…I really think I could cope with the pain much better if I could sleep….I’m sick filling my body with chemicals that don’t work but scared to stop taking them as I no the level of pain I’m in with them and worry about the pain level without them…plz god find a cure for this horrible disease and let me live normal again.

  1453. Debbi RN

    WHOM is this Rebecca Savastio, what are her credentials? Who are the ‘Researches’ referenced in the first sentence? There is not one valid reference in this article. It is filled with inconsistencies, and why if this is scientific, did this person not have the article spell checked and corrected for grammatical errors?

    I urge everyone reading this, to follow your Doctors instructions and medications.

  1454. This seems a bit hard to believe considering research on blood flow and the link between CSF flow have been done for years. Recently, a study published regarding CCSVI therapy and it being a possible cure for MS showed it to be ineffective. Although there are people who claim to have been helped by the therapy, the study showed that it was not clinically significant using MRI findings. If it was as simple as extra blood vessels and nerve endings, this would have been noticed in post mortem studies long ago. Studies show Immunoglobulins (specifically IGe) are indicated as a culprit in autoimmune diseases such as MS, GBS, Lupus,etc. And have been under investigation as a cause of Fibromyalgia. wonder what drug they are working on now…

  1455. so tired of being in pain! I would try anything anything just to feel normal again!!!!

  1456. I have suffered from it for years, took dr forever to finally say that was what I had, your right there are days I cry just to get out of bed and hubby has to help me get up. have heard it all from him to though if ya would eat right if ya would walk more and eat more protein, but yet sometimes just don’t think he understands what it is to hurt all though your body all the time, I have a high tolerance for pain but some days I feel like I just can’t go on it hurts so bad and just sit and cry. Vicodin pain killers doesn’t even help some days. well guess said enough needed to do some sharing I guess

  1457. I too suffer this terrible diease ..I really dont care what people thing anymore ..I have suffered that much and continue to do so ..That i honestly dont care about petty minded people..My children have also suffered this with me as they have had to endure so much growing up with a sick single mum..The few friends that I love ..have seen it and witnessed my pain..I dont have time trying to explain nor do i care anymore..about people who think they know it all…the pain is so cruel at times…

  1458. Finally some hope. I live in New Brunswick Canada and just today, i purchased a home in Florida. The reason, I could no longer endure the winter weather, the least bit of cold and my hands would ACHE so bad that I would have to immerse them in hot water to warm up and take the pain away. I have suffered from Fibro. for over 40 years and finally, hopefully someone may come up with a cure. The article above about hand pain makes a lot of sense to me.
    John Gay

  1459. Have fibromyalgia for four year. Changed Dr put on different drugs.
    Amitripline,Fluortine and Tramadol for pain.
    My pain was unbearable but now no pain at all.
    Interested in this new breakthrough as would like to think that in future I could come off all these drugs for good.

  1460. Well omg i hope they hurry up im 57 have been suffering for 15 yrs after a car accident it changed my life completly i lost my job my home and have been depressed and suicial ever since please hurry xo kim tanti nanaimo bc

  1461. Evidence is actually pointing to FM, CFS, ME, and MS being misdiagnosed Lyme Disease. I was misdiagnosed with FM for 24 years (being treated badly by doctors who didn’t believe anything was wrong, the whole time!) IV Antibiotics gave me tremendous relief- it’s just too bad I can’t be cured because it took so long for a correct diagnosis. I urge you all to find a Lyme literate doctor- but be warned there aren’t many!

  1462. I have been suffering for 15yrs my fingers arevery painful fingers are deformed,lot of pain most of the time.I cant do a lot of work.I have been on many pain pills,antidepressions,very little help,have night sweats I am off of antidepressants now no more sweats I am on artheristis drugs pain pills ,tired a lot I am glad to hear about other people so it is not all in my head.

    1. I have discovered many people that have the same symptoms as do I…I don’t know how many years I have had it over 25 I’m sure. What we have discovered it the we are in a experimental program that the government is doing to many, many people…this pain is not coming from inside your body it is coming from satellite’s and we have implants in our body put there either while in the hospital or while we were sleeping…the implants are like tiny little computer chips, most today can not even been seen…a signal is sent to this chips that can cause all kinds of thing to happen to your body…I have proven this to myself by stopping the signal with different kinds of shielding….this is not science fiction this is real, millions of people are being experimented on….

      1. WTF??!! Seriously? That would have to be the funniest thing I’ve read about fibromyalgia in a long time! Thanks for the morning giggle 🙂

  1463. I have had Fibromyalgia for six years, and my freaking rheumatologist, used to make me cry, every time I went to my appt, He was mean and constantly telling me it was all in my head, can you image the jerk!

  1464. Ho. Ly. Crap. You are kidding me. Peripheral biopsy work has been done for decades with no peripheral evidence of a pain generator in fibro, and some idiot finds ONE paper in a single journal that will publish almost anything and y’all make a big deal of it? Are y’all using cannabinoids to treat your pain, because delusions are a known side effect. It’s a CNS issue, fMRI and CSF studies pretty much confirm it. But we don’t know exactly what that CNS issue is.

    1. cerebeller ectopia congests the CSF flow out of the brain can lead to Fibro as well as a large list of neurodegnerative problems. See Rosa and Harshfield’s paper published in Brain Injury in 2011. An upright FONAR MRI taken properly shows it all.. and we know how to correct it too. This is the tip of the ice berg!!

  1465. Sherrilyne in UK

    I have M.E AND FIBRO. I’m having a bad do right now because hay fever got infected in my eyes and has triggered everything to flare up. With a a nice new virus too. I’m not sure I believe these new findings,. I first got told I had renauds in my teens. I’m 48 now and have suffered for more than ten years with life changing symptoms . Folk see an average woman and then scoff at the mobility scooter. I can walk a little bit then flake really badly.I want my old life back where I walked my Labrador every day and danced all night when I was out. Life is now a balancing act.too little and t you waste away,,,,,, too much and you’ll be in bed for days recovering.

  1466. Rhonda, I am incline to believe you about the mold illness. Reason, I stayed in my bedroom after the hurricane caused water damage to the roof, which led to black mold, which mom would use Clorox and water to brush away. Not using good judgment, I did not think the short time I slept in the room would have a negative effect on me. We remodeled the room, ridding it of the mold, but shortly after I was transported to the hospital in respiratory distress and dx with CHF. Later my Pulmonologist dx it as asthma, but I attributed it to the injections I was taking to treat my FM. Since I had a hx of back surgeries, I believed the research, which stated the disease started in the spine (thecal sac), Whatever reason I am suffering is irrelevant; I just want the cure.

  1467. I have had Fibro for many years. I refuse to be disabled by it. I eat as healthy as possible, avoiding processed foods and food additives. I also try to do some exercise regularly. During the summer water aerobics is great. Working with weights is also important. I have my bad days but they are few and far between unless I start eating junk food or overdo things physically. Eating foods that are anti-inflammatory such as turmeric, cayenne, cherries, pineapple, etc.

  1468. I’m so darn tired of living like this I can’t even process this supposed ‘truth’ about Fibro. I know my whole body is super sensitive as are my senses (smells, bright light, sounds) I want relief, I don’t give a hoot what it even is half the time anymore. The main interest in this story is that it’s finally proved ‘real’ which holds no interest for me, cause I’ve known it’s real for 50 long years. I know my hands are freakishly small and my pinkies are mal-formed, something no doctor ever thought was of interest (but DO they ever think is of interest other than take this anti-depressant and go away).

  1469. I was dianosed with fibro last winter, I have had pain in my hands for years as well as my shoulders. hips, legs, top of my feet,.. well pretty much everywhere at some time.. but after years of complaining about my hands.. a blue spot surfaced on my nail.. and was sent to a hand surgeon who removed a glumos tumor from my nail plate in april.. do you think that could be related??

  1470. Wow It is so nice to know that my pain is real!!!!! So many ppl think you are just making it up..I have been suffering with this FM for almost 3 years now. It really sucks and if ppl could just spend one day in my body they would not be so quick to judge. I have not been able to work a regular job in a number of years. I paint and do some crafts that help a little, not for the pain but for my quality of life. Thank you to all the ppl that have shared their stories as it is always nice to know you are understood by someone!!!!!!!!

  1471. I was “diagnosed” with fibromyalgia after my neurologist had treated me for everything else he could think of. Some of my bloodwork showed signs of Lyme disease so off I was sent to a nutcase infectious disease doctor. She wanted to hospitalize me, do spinal tap and install a shunt for my daughter to give me IV antibiotics for 30 days. When we questioned this and asked to see the bloodwork she got very nasty and practically ordered us out of her office. Back we went to neuro who arranged for spinal tap in our local hospital. It was negative for Lyme but had some “suspicious” cells….they tried to get a referral to an oncologist-she reviewed the tests and said nothing indicated any malignancy. After that, my neuro tried to put me on premarin for my “hot flashes” and night sweats — being 68 years old, I refused. I am currently taking Savella and Diclofenac and don’t have the debilitating pain all over that I did ……but still have many unexplainable symptoms. I am really getting discouraged. Arrangements are currently being made for a follow-up spinal puncture but I am rapidly becoming discouraged and actually doubting the need for another spinal tap. I have staggering and lightheadedness when walking but OK when sitting still. Just fee something is being missed.

    1. Sadah have you considered POTS? It is when you have a drop in blood pressure when getting up. Google POTS and blood pressure. It is a fairly easy test to diagnose.

  1472. Until the medical profession comes up with a CURE for FM, I think it’s incorrect to say that the mystery has finally been solved. I have lived with Fibro for decades, and have heard many, many things being touted as the cause of it over the years. Until medical science can give me something to make my symptoms go away, I take that pronouncement with a grain of salt.

  1473. I also have fibro and the pain sometimes is so bad that I cant walk it’s getting harder and harder for me to work I myself has just applied for ssi witch I hate I would rather work but intill they find a cure I guess I have to live with this and I don’t like it .

    1. I agree John, Fibromyalgia has not been cured or a miracle occurred. I am one that has fibromyalgia and do not let it ruin my life. I had become smart early about my illness. I don’t believe everything that is written as gold and do due diligence on study of fibromyalgia across many forums to get a balanced idea. If I am not mistaken your father: Harry was a brilliant Doctor, if in fact I have the right McFadden.

  1474. I have fibro for a couple years now and i have a lump in the back of my neck from it and that is causeing nerve problems in my body my hands and feet go num and its causeing the pain to travel from my head through my whole body to my feet the pain never goes away 24/7 i have pain i get very weak at times it is worse some days more then others i don’t sleep We’ll at all can’t sit long or stand long can’t walk a block my legs feel like they are gonna give out on me i feel so helpless at times it’s not something i would ever wish on anybody my life has changed i don’t go out like i use i even hate driving anymore i still work because i have to i have children that i need to take care of and a home i come from a family of 10 and im the only one that ended up with fibro i pray for everybody that deals with this pain. Hope for a real cure someday.

    1. Well this explains why nothing works. Still not a true believer in this statement. My hands, feet, hips, ribs all are killing me today. Will they come up with something that works before it is too late for me. When I was skinny it was because I was skinny and now that I’m fat it is because I’m fat. Thank you for not helping at all.

  1475. I have had horrific pain in my hands for months and all the doctors keep saying is ” oh your just getting older, it’s arthritis”. I’m only 44 years old!! This article will help PROVE that this extreme pain in my hands is real AND related/caused by the fibro!! thank you for this article!! 🙂

  1476. I have suffered for many years of fibromyalgia. I have a bladder disease IC that may be the reason for many medical issues. I haven’t been able to work for a couple years. I was a Social Work Psych student and had to pull out. I was denied for social security. I really want to have a decent life with a career I’ve dreamed about for so long. What my husband and I are dealing with is I am on a lot of medication that financially kills us. We can’t afford for me to take my Rx correctly and get to all the specialists I need. So what do we do. I need dental specialists for TMJ desperatel, vision. Is affected due to Rx and medical, need a C-Pap machine. I pray The Lord heals me or maybe some specialists hear my cry please help me so I can have a life and career helping others. God Bless!!!

    1. Roxanne Lyons
      June 24, 2013 at 3:35 pm
      Mrs Lyons, Many durable medical equipment places have reconditioned cpap machines and can accumulate supplies for you at a very reduced price if you have to pay for these items yourself. Sometimes you have to get on a list and wait for one to be available but it’s worth getting on the list. It will help you sleep ! I’m sorry I don’t have any other suggestions to offer but that is one good one !

  1477. I can buy this! My fibro started in my fingers. With 6 negative arthritis tests done, over a 10 year period, my once hyperflexible fingers can’t even cross anymore. My toes, yes, but not my fingers! They stay swollen, and hurt all the time. I lose feeling, and they go numb when I am sleeping, and my hand/arm is in an upright position. Feels like tingling, when feeling comes back, but multiplied by 1000.

  1478. Non of the experts have had to live with all the pain, confusion, fatigue and ” can’t be bothered ” or anything else that goes with FMS. I wish there was a way that the ” non believers ” including some medical professions, could actually live with it all and the upheaval it causes to life!!!!

  1479. Definitely more research needs to be done. I highly doubt the cause is too many blood vessels in the hand … this sounds more like another symptom to me. People will gain more bloods vessels in areas that are overstimulated or in areas of cancer. In fact, I, a person who had once suffered severely due to the pain of fibromyalgia (but am now much better and the symptoms are manageable due to lifestyle changes) once had my uterus removed because I had so very many blood vessels going from/to my uterus that the doctor was almost sure I had cancer. After removal, it was determined that there was no cancer. If there are too many blood vessels in a person’s hands, there may be too many vessels in other areas, secondary to the main issue which probably has not have been found by this hand blood vessel study. GOD, prayer, and change of attitude, foods, exercise, etc, etc, have turned my condition around tremendously. I believe GOD wants our bodies healed, and they have been, can, and will be healed as HE originally designed the bodies to heal if we remove the hindrances to the body’s normal healing processes. We all know our bodies’ heal from cuts and fractures, and we recover and heal from viruses and colds, etc. Our bodies were designed with the innate intelligence to heal. But, physical objects, psychological stress, chemicals, and environmental things can interfere with this normal healing process. Remove those hindrances, and the body can and will heal in most cases of disease and trauma. This includes fibromyalgia pain. I’ve not only seen this turn around in myself, but in several others … some of whom helped me to make some of these lifestyle changes. I believe that I will someday suffer no fibromyalgia symptoms, which is something that seems to be coming nearer and nearer more and more quickly.

    1. I am in complete agreement with you. I believe God wants us to be healthy as well. I wanted to ask your suggestion on eating, exercise, but most importantly sleeping (the area that I struggle with the most besides pain management). I also wanted to ask you how you changed your attitude from the hopelessness to that of hope, healing, and faith. I have only had fibromyalgia for 4 1/2 years now and am trying to still battle that hopelessness.

  1480. I have fibro for many years…I never had burning in my hands but just recently have pain on the top of my feet. It feels like pins !! Also, does anyone here suffer from AGORAPHOBIA?? If you do, I don’t have to tell you what it is…I would love more exposure from the medical field to recognize this disease as a mental health problem and address it instead of pushing it under the rug just like they have done w/Fibromyalgia all these years. thank u.

    1. I was suffering from Agoraphobia long before my diagnosis of Fibromyalgia. I agree that more needs to be done in the way of recognizing these issues rather than dismissing them. I am however very pleased that this article was written; as it demonstrates that Fibromyalgia IS being looked at and studied more closely. Do I think they hit the proverbial nail on the head? No, but it’s a start.

  1481. I was teaching kinder-gym and swim and had done so for many years when I realized I could not touch my toes any more. Everything started hurting and there was nothing I could do. I had to give up the swim lessons because of the leg and back cramps. The arthritis specialist knew immediately that it was FM. I still get in the water, float and swim but now I have a lifeguard.. Walking every day helps. Having one thing to do each day is a must as it makes you move whether you want to or not. Give up smoking and drinking. I will be 76 the end of the month and I have had this for almost 20 years. The hands and arms are the worst. My gate is not right and I walk drunk some of the time. The point is….keep moving…keep living….they will find something that helps if not in our lifetime, in our children’s.
    How does one donate their body to the research of FM?

  1482. Rhonda, I can understand, as some others of us do, that when you personally discover the reason why you suffered from what seemed like FMS, but was in fact mould or Lyme disease, you will presume that everyone’s situation is the same. If it was as easy as that, there wouldn’t be so many of us suffering and for such a long time. What has complicated the research of this condition is that we all have differing problems which change over time, ie, IBS, eczema, migraines, brain fog, weird eye problems, etc, as well as the pain which moves around and is worse one day and better the next, without any reason sometimes. Categorically stating mould or Lyme disease shows a certain lack of understanding for the many 1,000’s of us all over the world who’ve been through umpteen tests and procedures in different hospital departments to eventually diagnose FMS. We all have different ways of coping – some with meds and others with diet and except use, and others with other therapies. Each to there own, until a clear cause is found, and then a cure!

  1483. The problem is that fibromyalgia is a symptom, not a specific disease. So it is silly to talk about finding “the” cause. That is like finding “the” cause of headaches. I can get headaches because of stress, and allergic reaction, sinuses, too much sun, a whack on the head, brain tumors, etc. It is good if this turns out to be a major cause of fibromyalgia because many people will be helped. But don’t expect it to be the cause of every case of fibromyalgia. More research needs to be done.

  1484. OMG! This is a God-send! This really explains a lot! Especially since I had carpal tunnel surgery in both hands and they still hurt/ache! Lately my blood vessels have felt like they were being jabbed with needles. Thank you for printing this article and thanks to my friend Nancy for sharing it with me!

    1. my fibromyalgia started in my hands and I too have had carpel tunnel surgery on both hands and am still having hand pain as well as elsewhere, I hope this work continues!

    2. @ SJB, I have been diagnosed with carpal T. as well. Now what I have found is that if you have any kind of injury or surgery the fibro will attack that area. I was fortunate to have my Doctor stop me from getting the surgery done as I would have ended up in worse pain. Please try yoga for your hands as it does help as does frequent stretching. Yes it will hurt, but if you can tolerate the pain it’s worth it. One that works for me (and this is yoga) is placing your hand on the wall, shoulder height and stretching and spreading your hand for a 10 count and build from there. Good luck

  1485. OMG is this for real I’ve been suffering of Fibro for a least 10yrs of or more I can relate to alot of ye hands cramping at night time that it literally brings tears to my eyes it takes everything I have to try and open my hands and living with pain all through my body everyday some days worst then others and 3 yrs ago I got dignosed with Migraines which I have everyday some day worst than others that I can only get to the bed to the catch with the blinds closed it sad so what is others doing to help keep this under control.. Im willing to try anything thanks to whoever put this on computer….

  1486. I am not sure if I agree with this as being the only cause….been suffering for a number of years & have found supplements that do help me. Since every fibro patient is different it may not help, but is worth checking out – http://www.treatingand beating.com. As to Lymes & mold…mold has affected me, but have moved a number of times over the years (even countries) so the mold would have to follow me.

  1487. I’ve had fm for 15 teen year’s and haven’t found anything that helped,so glad their looking into it more..maybe they will beable to help other people.one doc told me it would get better when I turned 65, I told him I would be aching from old age by that time,but I’m 72 now and still aching..

  1488. everyone is saying how good the sun it for Fibro sufferers, well it aggravates my fibro and i end up worse and swelling up, the cooler weather suits me. thankgod i live in the UK!

  1489. I really hope this discovery leads to relief for the many sufferers of FM. While I don’t have it, I know someone who does and I’ve seen over the many years how it has made her a changed person. As someone who recently completed cancer treatments (3 years now), I fully understand the frustration with people who only truly accept side effects and symptoms they can see. They accept that it’s strange that my hair has come back so differently and so thin. They think how lucky I am that since chemo I still have almost no body hair except some thin stuff on my head. That I don’t have any eyebrows anymore strikes them as a small trade off. One way or another, at least, they acknowledge these side effects. But I talk about how I struggle with lingering fatigue, memory and cognitive function, painful joints, and mysterious aches and pains, so many people are very quick to tell me that it’s no different for them and that it’s really just a part of my getting older. I can’t tell you how this infuriates me and I rarely speak of how I really feel because this is so often the response I get, as shocking as it is to me. And these are people I have felt close to. That they will only acknowledge the side effects “they can see” without considering that perhaps there might be lingering internal side effects is stunning to me. And hurtful. I can only imagine how this must wear down people with fibromyalgia.

  1490. I had FB, did you notice i said “HAD”. without knowing, i had mold in roof and insulation. my ceiling collapsed and it was a horrific mess. everything from the drywall up to the sky had to be removed and replaced!! it was a gift from God that it happened, because once it was removed, my FB symptoms vanished. i can’t tell you enough how much you need to inspect your surroundingsl here’s hoping you’ll all find relief <3

    1. Maybe you didn’t actually have it, but just similar symptoms. I had someone once tell me “I had Fibrmyalgia, but then I just started drinking more water, and it’s gone!” If that’s all it took for him, he simply didn’t have it in the first place

      1. I agree I have tried everything I can think of. My best guess is it is different for every one why because we are all different something my work for one and not another just like every thing else in life.dont get me wrong i am truly happy for any one who gets relief. But it doesn’t mean it will work for every one

  1491. Rhonda – please go back to the crackpot sites. We don’t need your BS here

  1492. Wow! Very interesting! I thought the pain in my hands were caused by the osteopenia or the psoriatic arthritis! Who knew it was the fibromyalgia! Maybe they all contribute to mine anyways. This is good news though.

    @Rhonda…I always thought mold had to do with some of it too, but only in my case. However, the Lyme Disease, as it is similar, most fibromyalgia patients are tested for that first. Once it is ruled out, then they delve further for a diagnosis.

  1493. Omg please help us!! I’m going on Two years and don’t know how these people have gone 15 yrs?? I’ve become completely disabled, like one person stated a 360 degree change in my life. Hope this research is true!! Seeking support group in Tampa, Fl. I didn’t want to try for SSD, didn’t want to abuse the system but realized this is for real!!! I can’t bring in income and that makes it even worse, may loose my home. Today I can finger point with left hand so I can add to this discovery, I am right handed and it’s not functioning. I’m in so much pain tears flow and sometimes need to be carried to the bathroom. I go married 2 yrs ago and never thought my husband would end up my caretaker, didn’t want that for him. Thank you all and I thank the person who sent a genle hug, needed that!
    Please help us I can’t live this way

    1. If any of you have migraines???? It’s like that severe! I started getting them when I was 8yrs old and everyone one said “oh you just have a head ache”. Years later it was actually diagnosed and medicine created, thank God!
      Now here I am with fibro…..severe daily, nightly all over pain!!! I pray for relief.

      1. Laradee, can I put my name to your post? My migraines started when I was 8 and my fibro was dx’d about 15 yrs ago. The symptoms were there a good 20 years before.

  1494. I was diagnosed with Fibromyalgia , had every test done nothing showed up until I finally went to another doctor and had my B12 checked and it was 23 , well when I got the B12 shots I never had any of the symptoms again

  1495. The journalist doesn’t quite have the findings correct. FM patients don’t have an excessive number of blood vessels–we have an excessive number of nerve fibers that regulate the opening and closing of shunts connecting in the blood vessels. Think of it like an automatic door–its sensor detects your approach and causes it to open, then shut behind you. In FM sufferers our “sensors” are way out of whack. Maybe we have too many sensors with different levels of sensitivity, causing our “doors” to react wildly.

    Personally I have ALWAYS maintained that FM is a disease or dysfunction of the nervous system–not the muscle fibers, not low levels of seretonin, dopamine or Substance P, and certainly not imagined. It makes perfect sense; the nervous system doesn’t properly feed energy to our muscles, causing the muscle weakness and fatigue. The nerve endings are similarly dysfunctional, causing constant pain. I’ve had it for 13 years now; lost my job because the insurance doctor believed it was all imaginary, despite many other doctors testifying it was real.

    What puzzles me is that this is the first I’ve heard of painful hands and feet being a FM symptom. Mine are no better than the rest of my body, and I have all 18 screaming pressure points. These researchers need to look beyond the hands, because the nerve fiber dysfunction is EVERYWHERE in the body!

    Appleby101, get out in the sun every day, even if it’s just 5 minutes. Not only does the warmth feel great, it’s the best source of vit. D by far, and you’ll have several hours of energy. For instant relief get in a heated swimming pool and just float. The weight is off your body and the pain goes away. Walking and other mild exercise in the pool is so much better for our aching FM bodies than anything you can do outside the pool. Don’t be afraid to tell your doc that the meds aren’t working on you, and try, try, try again until you find the combination that does. Ask her for samples to try their effectiveness on you instead of paying for tons of prescriptions.

    1. Diane, I have been dealing with Fibromyalgia since Sept. 2010, onset due to a vehicle accident in 2009. It has been an uphill battle here in Canada, getting lawyers and the Canada Pension board to realize that this is a debilitating disorder and the pains are so severe at times that even trying to do a simple job is a struggle. How they expect you to work is another story, one they don’t seem to understand. The pains in the feet and hands, more specifically the feet has been an issue for the past 3-4 months. There are days that I am unable to walk on the balls of the foot, and other days it is the heel that is the problem. I wear ankle tensor supports and have to wear good support shoes while in the house, no more socks or bare feet on the floors. At night, I sleep with nocturnal hand splints on both hands, carpel tunnel and tendonitis issues. They say more exercise will help, but in reality, the more I move, the more tired I am, and the pains don’t decrease. Let’s hope this research is really true and not another fake story that gets all our hopes up only to come crashing down.

  1496. I have been dealing with Fibromyalgia for too many years. I am grateful there is serious ongoing research into this debilitating & frustrating disease. I realize the findings stated in the article leave big gaps in symptoms but at least we are past the days of “It’s all in your head”! Thank you to the doctors & researchers who believe it’s real.

  1497. I have been suffering for almost seven years.I wear a glove on my left hand since three years,everyone makes fun and says it is all in my head.I can’t sleep with the pain,to be able to sleep I take two ativan 2mg,one sertaline 50mg.,one nortriptyline 25mg.and two tylenol 500.Once my body relaxes after nearly two hours,I fall asleep.If no one beats on my door or calls me I can sleep almost nine hours.That is only in the day time.Nights I die,nothing helps me.I started smoking weed ,it was like a miracle but I can’t afford it plus it is not legal.Not one doctor even suggested it was fibromyalgia..I thought I was really dying until I read this.Some days I hurt so bad I just stay in bed.I think when I fall asleep and my body relaxes it is the only time there is no pain or it is the drugs I take .I can’t say ”no pain”there is always pain.

  1498. All of you people with Fibro diagnosis look into Lyme Disease and mold illness. There you will find your answers.

  1499. “Through our news stories, we aim to expose injustice and corruption, which can undermine the liberties and
    freedoms we cherish. Ultimately, The Guardian Express seeks to provide a safe platform from which to sound the
    diverse voices of our wonderful community, encouraged always by today’s successes and tomorrow’s possibilities. ”

    To all those that wonder why there is no answer on the site’s story on fibromyalgia look at the site’s blurb on themselves. It is a place to give people a place to say things that aren’t backed up by anything but their opinions, No science, or facts. I was almost surprised in wasn’t GLUTEN, Dairy or why chiro is the answer. It always is, right? Or vaccines, or Mr. Mercola’s theories.

    I don’t have broken veins, crushed vessels, etc . Have never been accused of being a drug addict or anything else mentioned by these people. The symptoms given by the readers are very diverse and other problems that could be indicative of other diseases or syndromes.I feel it is extremely sad that you, this site, would attempt to give people hope when they haven’t got any answers. Or at least no more than anyone else, not even a follow up article, interviews, studies that back up what you’ve said.

  1500. At last!
    I’m a 30 year old woman from Holland and was diagnosed with fibro 1,5 year ago.
    I’ve been suffering pain ever since I became a mother at 18.
    And they kept saying it was ‘all in my head’ to the point I had enough! I found myself a good doctor and finally all the pieces of the puzzle came together…..
    I’m taking pain medication and antidepressants, but still I have good as wel as bad days.
    I find it hard, because a lot of people think you’re exaggerating…..even some doctors…..

    I hope this will make that everyone will recognize it is a real dissease!

  1501. I have Fibromyalgia for many years, I believe it is a combination of things, such as the Central nervous system, overacting nerves and a hyperactive brain that cannot shut off the nerve signals to pain. The nerves are connect to the tissue, the tissue is connected to the muscles and muscles are connected to the bones.Now while all this is taking place in the body that is what leads to extreme fatigue. I really do not believe that it is all in the blood vessels. Blood Vessels are connected to the Blood arteries which transfers blood from one place to another in our bodies.( That might explain the fatigue but it does not explain the pain.) And last but least my hands are aboat the only part of my body that does not hurt. Hope fully some day doctors may figure it out and there is a real cure for Fibromyalgia.

  1502. I have been suffering for over 6 yrs. Tried Lyrica, and that didn’t work for me. Was on Cymbalta and that made me do crazy stuff. Then tried Sulindac and helped some. I have blood vessels break in my hands and on arm.Very tired after a few hrs of work. Starting to need a nap in pm.I do take a medication to sleep at night and it helps with pain of joints so I can rest. Blood pressure problems also.

  1503. I don’t even know which auto immune disease I have yet. I stopped looking for answers a long time ago. but I have lots of veins in my hands last time I had to get an IV they accused me of being on hard core drugs because of the difficulty they had in putting in the needle. they said my veins were hard and corosive. I can’t even take Ib profin because it thins my blood. I sure as hell don’t use heroin or meth. my legs have the most pain. I also have dequarveins tendosynovitis from the years I spent working at a chicken plant when I first started experiencing the difficulty walking because of pain and an inability to control my muscles in them. the flex when they want and don’t when they don’t want. its not me that has the say expecially in winter.

  1504. Brenda, I find out that if I need an antibiotic for an infection, my fibromyalgia does’t hurt very much. I looked on the internet about this and it said that there is a bacteria in the body that releases posions that makes fibro more painful. It also said that antibotics twice a year would help to keep this under control. My hands hurt some, but it is more my right side in the elbows, shoulders, knees, and hips. I also have the twin hot spots, and the little nodules that are very sore.

  1505. Well reading this is comforting and giddy at the same time. Finally research that fibromyalgia is really felt by thousands of people around the world. I’ve suffered from fibro for well over 15 yrs. The fatigue and trying to remember things are what I have most problems with now. The pain is under control with medications, many of them. It is working for me at the moment….. Please let the public know how and when this discovery will help all sufferers. Please inform us on how we can return to living a NORMAL LIFE…. Sufferer from Ontaro, Canada.

  1506. i wonder if this means that reflexology and accupressure particularly on the hands may be helpful for fibro sufferers.

  1507. I am 59 yrs. old and was told I had Fibromyalgia when I was 38. I suffered with it for yrs. before I was finally diagnosed with it. I ache everyday of my life “somewhere”, and never have one day when I do not. I do a bit of sweet baking for my niece in her Café during the summer months and that is it for work. My everyday house work a lot of the time gets put on the back burner.
    My hands as well do not ache a lot but I do have arthritis in them. I also tend to get “broken” blood vessels in them sometimes too.
    Most days I feel like I have been run over by a truck, and that is no joke, as I ache from head to toe some days. I have chronic fatigue with it and literally have to push myself to do stuff each day. I have lost 32 pounds which I thought would make me feel better (fibromyalgia wise) but it hasn’t. It did help my blood pressure though.
    I hope one day that some one will be able to give me something to “cure” mine as it is not a fun thing to have
    I hope there is a Part 2 to this article telling us suffers what the meds or the cure would be. Without it, this article is useless to us.

  1508. Is this for real? Why hasn’t this been on the news? Fibromyalgia is truly a debilitating disease. Stay strong to all those who suffer from this. I think that mine started during my childhood, always hurting all over and feeling very tired. I’m thankful to God for the strength to carry on and I’ve come to realize that most doctors want to prescribe antidepressants! I refuse for me personally to take them because I’m not depressed just because I suffer from pain and fatigue. Don’t let people that don’t understand your disease and make you feel inferior! Gods blessings to all..

  1509. I am surprised, sort of, by all of the negativity about this story/discovery. I was diagnosed at age 25 and I am 53. I have been up and down the block with this illness. They have finally made a clinical finding that makes sense to me and will likely lead to some targeted treatment. Have you given up? I haven’t. I can’t believe some of the comments here. I have met many many people with this illness over the years and we all have our own ways of coping. I do notice that when we have lived with this for long enough we start to treat the illness like a house pet, but it’s an ornery creature. I am afraid that many of us won’t know how to act once we get our lives back. We have spent so much time trying make others believe we are really sick that we may have trouble letting go of that script. Have hope. Make plans to have a life. Talk about that.

  1510. I don’t agree with the findings, and I also find the article incomplete, such what remedies do they suggest. My hands do not hurt, even with the arthritis in them. Other recent research indicates that the problem arises in an immune disorder and that research team employs a blood test to prove it. I don’t believe this is the end-all answer to the illness, but the findings may prove helpful to some.

  1511. This is really amazing, confusing, and curious. I have no pain in my hands, but I do in my feet. Actually, the rest of my body, just not my hands. I suspect it is a combination but really want to see more on this research. Is it possible this in not the root but a main area that can lead to the root cause? Please offer more information on this research?!

  1512. to appleby101 I am a believer in herbs and I have arthritis and fibromyalgia. Without having to take a lot of pain pills I take 500 mg Turmeric. It reduces swelling and pain. I am no physician therefore this is just a suggestion. You may want to talk with your own physician. Good luck 🙂

  1513. well intersting news.i have had fibro for 14 years..in hospital for pain management twice..am on a list of drugs and also a pain medication patch..does it help..well..somewhat..but in pain most of the time and fatigue..my life has also changed a full 360..i cannot work now…just survive i guess….and to read somthing on the internet, sorry but i dont get totally agree..but interesting to see what comes of this…..and i have all18 trigger points..gentle hugs to all<3

  1514. Tina Appleby,OMG finally get to read something that could turn out to be positive,ive suffered many years with unexplained severe pain,the problem is I also have Bypolar ssris often messed up my meds.Just recently my docter has found I have vitamin D deficiency whitch also causes pain,i am currently on morphine patches and a drug called Gabbapentin,but to be totally honest,i continue to suffer constant pain and fatigue.Please Help.

    1. Tina, I have had fibro for appr. 25 yrs. I have taken so many ant-depressants and pain meds. A couple of yrs. ago I was put on Gababentin, (Neurontin), It did wonders for me. The pain was not so severe and I actually was feeling pretty good. Then I went into a depression. Didn’t want husband home from work, didn’t care if I saw grandkids, definitely NOT ME!! Found out the gababentin had put me into the depression. Had to be weaned off and put on Cymbalta. Cymbalta is okay, not as good and costs $200 per month. But, better than nothing. All sleep meds do not make me sleep all night as they should. Wake up exhausted. I have learned to just deal with it and go on. I am not the type to let this illness win. They only time I give into it is when the pain is so severe I have nausea and throw up and cannot rest at all. I have had to learn my limitations and explain to people why I feel so bad and can’t do something when I look perfectly fine. My family always knows when it is a bad day because they say they can tell by looking into my eyes. Otherwise, I wouldn’t say anything because I have dealt with it for so long I am just tired of saying I hurt and am tired. I have said for yrs. if they offered surgery to get rid of my pain I would do it in a heartbeat. If they can come up with a cure, man, life would be sooo much different. Hang in there Fibro-sufferers.

  1515. Please tell me if there is ANY idea of how and what can be used for the treatment (almost 20 years!!!). Will it be a PRODUCT or TREATMENT and how soon???

    Always HOPEFUL!
    David

  1516. I am also a sufferer of fybro, but have not had a doctor do any thorough check up. I have had so much blood work done that my veins are basically shot to pieces. Never had any x-rays, except on my one knee due to extreme pain. i have had nerve conductivity tests (which i would not wish on my worst enemy), all came back normal, But now that i have lost significant loss of strength in my hands, i am supposed to have another one done. I have some type of headache or migraine just about every day. Very irregular womens cycles. Swelling of the hands feet knees, my lower back (hip area). But i have also had my feet turn purple about 3 yrs ago. About 3-4 times a year my chest feels like it is going to explode. I have had muscles tense up so bad that i have gotten food stuck in the lower part of my esophagus (that was no fun at all). I also get very dabilitating fatigue and muscle and or nerve spasms I can go to a hospital and tell them i have taken everything and done everything on my own to rid them, and they say (what would you like us to do), to which i respond with “make the damm pain go away so i can function”. But it does not help that i am allergic to anything with codeine it in. So there go my chances of getting immediate pain relief. It would be nice if somebody would take all my compilation of symtoms, including the loss of appetite with led to my 25lb weight loss, and tell me exactly what is going on and get me on the correct cocktail of medications. Oh, not to mention the sensitivity to hot and cold, making taking a shower, lets just say interesting, lol.

    1. You may be severely magnesium deficient. Read Dr Carolyn Dean, she’s an expert and has researched Mag in great depth. It’s cheap and easy to supplement. It has really helped me with headaches and joint pains like nothing else. It’s a smooth muscle relaxant.

      1. I also take a lot of magnesium daily and it helps with the muscle spasms I take 1200 mg per day plus Manitobia Hemp hearts which is filled with magnesium and magnesee

    2. Tammy,
      You are having a lot of the same symptoms that I have. My advice to you, is to see a real good neurologist. You are having many, many M.S. symptoms. M.S. is sometimes hard to diagnose, what they most likely would do is a brain mri with & w/out contrast. If that don’t show they will need to do a lumbar puncture. Not trying to scare you, just letting you know what you might expect. It is better to know, so they can get you on the correct meds. for the correct diagnosis. There is no cure for it, but great meds. for it that slows it down, and helps it to go remission. It can go into remission for days, weeks, months & even years. This depends on the type of M.S. it is. There are so many kinds. Your sensitivity to heat is a major concern, along with the chest & throat problems. Your feet turning purple. If you have it, the chest thing you are experiencing could be what’s called a “M.S. Hug”. I’m not a Dr. I have been through all of this and researched so many things over & over I could write a book. You might do a search on M.S. symptoms & see how it adds up. I don’t know, but your post hit home for me& My Dr.’s have ignored me forever, so many times Fibro is a misdiagnosis. If they don’t want to take the time to send you for the different tests, you could need to do some research, ask people in your area, what ever it takes & find a Dr. that cares & wants to help you. My problem for over 10 years was that the Dr’s thought as long as they give you meds. and sent you out the door, that was all they needed to do. Prayers for you and sending love, light & hope. Greg Hopkins 🙂

  1517. Yes. Me too!!! I am so excited about this and soooo tired of dealing with fibromyalgia while trying to still work and raise a teenage son on my own. I WANT to be part of the research. This is exciting new news…

  1518. I don’t think this hand nerve/blood vessel thing is the answer. People are preying on the weak and hopeless with remedies, cures, and anything they can make money off of. I have tried many meds, but with multiple chemical sensitivity, I can’t take anything. I did have 4 colonoscopies and biopsies, but do not have an allergy to gluten. I went on a 4 month gluten free diet to no avail. Everyone is different and is going to have to adjust to a new way of life when hit with these debilitating illnesses. Doctors will announce if there is a cure, not a journalist. This is far fetched and not believable.

    1. Actually this makes perfect sense. I have been having severe issues with my hands and feet swelling up now that it is hot out, and when in the winter, they turn not so pretty colors and makes it hard for me to leave my house. Yes it does affect everyone differently, but guess what, we all have the same dibilitating syptoms, that we would all love to just go away. Now they can begin creating new medications, or trying ones that they previously thought would not help us. And my fiance has been saying for i dont know how long that this seems to be a blood flow issue, and now this is published, its more than just a coincidence!!!

  1519. I have found for me,aspartame is involved in my demise …I was a big diet pop drinker drinker and when I stopped all aspartame,my pain levels dropped ALOT!! What works for me may not work for some….. Just a thought…And I now drink lemon water…

    1. I too stopped the diet soda for years but with no results my daughters were convinced it was part of the problem but with no success I had to go back to diet because of sugar problems but good for you I hope there are others out there that stoping aspartame will help thanks for the tip

  1520. I also have been diagnosed with Fibro. and no one around me really seems to understand how I feel so sometimes I feel all alone!! But after reading all your comments I feel there are others out there! Yes, I have been given more meds then I can list here!! Right now I am on about 20 different meds and still no relief!! You get so depressed as there seems to be no real relief!! I hate when your doctor ask if you are depressed…Hell yes I can’t do the things I want too and they want to put you on depress drugs NO NO NO find something to help me stop hurting then give me that drug!!!

    Sorry just so frustrated as no one understands. . .I HURT AND I WANT TO STOP HURTING!!!!!!

    1. Karen, I DO UNDERSTAND!! I went to at least 15 Dr.’s with most of them telling me it was all in my head or I was just depressed. Like you said, of course I’m depressed, I can’t do much without being in severe pain, and just can’t do so much of what I would like to do.I feel I have had this since I was a child, as my Dr. called me his problem child since he could never figure out what was bothering me. Always tired never felt good, just not a normal life. I am now a month away from 71 and some days are pure hell!! Life has been a real challenge, but I say I’m fine and do what I can. At least ( so far) my problems have not been life threatening, although I did have valve replaced in my heart 5 years ago. Even that was hard to get help with at first. I think the Dr. thought that was all in my head too till I found a really good cardiologist. He did a heart cath and wouldn’t let me leave the hospital till They could do the surgery. He said the valve was to bad.
      Today it is hot and humid and I ache all over. I get tired of feeling fogy in my head from pain pills, so most of the time I just try and deal with all the pain.
      I hope and pray that someday they will really find the cause and hopefully a cure.

    2. The worst is when you can’t even receive a hug without pain from your children. I’d love to believe this is true but… In my opinion I think the cure will vary for each individual, just as the symptoms do. But who am I to say, I’m not a doctor. I just try to live each day the best I can and do the best I can. Some days are not bad and others suck big time and it’s hard to get out of bed. The people who love me have stood by me, the ones that don’t understand or tell me “just get over it”, or ” it can’t be that bad” are slowly weeded out of my life, even family. As stated before I think only other FM and Chronic pain sufferers truly understand us.

  1521. I hope they find a cure fast I have it and I still your life cause my to stay week cant be touched in various places it’s a bummer I’m going to be fifty next month and have had it since my early thirty’s

  1522. I have found that the elimination of fluoride ( the culprit that causes the problem to begin with) helps to lesson the pain greatly. Fluoride is found even in bottled water because it originally comes from tap water. Google Hitler and fluoride and you will find that Hitler was the first to use fluoride in drinking water. The one company here in Georgia that filters out the fluoride is Crystal Springs. I have an over the counter filter [not wimpy Pur (that adds it even) or Brita that do not remove it] that removes chemicals including fluoride. Some medications are poisonous, Prozac is 90% fluoride.

  1523. I am sorry, but this article seems really ludicrous. I am in full flare-up. Diagnosed in 1990 after 10 excruciating years…I tried everything and read every “solved” “break-though” and “Cure” article on the subject and I can honestly say that for me, at least. They are all a crock.

  1524. I think there are many causes of fibromyalgia and it’s not likely that there will be one cure for everyone. The body is very complicated. Most people start having symptoms after some sort of trauma or illness. That does indicate it is affected by the nervous system.
    I have finally found I do not officially have fibro.
    I do have Ehlers Danlos Syndrome which is a connective tissue disorder (the ‘glue’ that holds me together is faulty so many things can go wrong. Loose joints is the first sign they look for with that) and I have Raynaud’s as well as dysautonomia (a dysfunctional autonomic nervous system – esp the sympathetic part of it) and POTS – postural orthostatic tachycardia syndrome which is a fancy way of saying my blood vessels don’t respond properly to a change of position. POTS and Raynaud’s are both sympathetic nervous system disorders. I had a CANS test for the ANS (autonomic nervous system) and it showed a dysfunctional ANS (Dysautonomia).
    They have also found I have autoimmune disease but it is not systemic.
    Dysautonomia can lead to a dysfunctional immune system as well and so my mast cells over react to different stimuli even without antibodies to set them off. There are no allergies but I react as if allergic to some things anyway, even heat and steam.
    It has gotten worse and we know part of it is due to a hypermobile neck and neck injuries so that signals are not getting through right. I have a straight neck, craniocervical instability and stretch myelopathy – damage to the myelin on the nerves in the spine which for me causes MS type symptoms.
    With the hyperactive mast cells, I find that I have symptoms similar to multiple chemicals sensitivity.
    I think this is a major cause of fibromyalgia. If a person could live in a bubble for a week, cutting out many foods, chemicals, smells and other triggers, they would find their pain level will go way down. They are not actually allergic to these things but they are quickly hitting the nervous system and causing malfunctions.
    I am looking to have my neck problems corrected and in the meantime I avoid the triggers that cause me to lay in the bed crying in pain and that cause me to have the MS symptoms.
    Here are some other signs that the immune system is being affected and that the mast cells are activating (degranulating) too easily: http://www.debdrake.com/images/Unstable_Mast_Cell_Symptoms_xmind.png

  1525. I know exactly how you feel and I’m sure a lot of people do….vent anytime…. I’ve had Fibro for years but only recently ‘officially’ diagnosed – on Cymbalta in the AM and Amitryptline in the PM – seemed to work in the begining but now not so much – if it isn’t pain that keeps me awake (or wakes me up) its the Restless Leg Syndrome 🙁 I’ve noticed that if it isn’t one thing – it’s another…. I’ve recent’y also been diagnosed with Fatty Liver Disease and a 5mm polyp on my gallbladder – the doctor swears it has nothing to do with the drugs but I’m not so sure when you read the list of side-affects. Anyway – stay strong everybody!

    1. Be really really careful with the Cymbalta! I went on it in January 2012 and was thrilled with how much better I felt physically…. then ended up in the hospital for a week in May due to it making me want to kill myself. It’s also miserable to stop taking. I had to open the capsules and go down by a couple of granules every few days and only JUST managed to get off it completely. My body hurts a lot more than when I was on the meds, but at least I don’t want to kill myself now.

  1526. My issue with Fibromyalgia has been “wheat” and “gluten” intollerance. Once I stopped eating them most of my pain syndrom went away! Food intollerances break down the immune system and keep our bodies from getting proper nutrient, ergo auto-immune disease. Try looking at the food you eat as well as all other suggestions.

  1527. Thank you, The Guardian Express, for this article which gives me the opportunity to point out they are still lying to fibro patients. This is not the cause, rather it is simply another symptom.

    Fibro is caused by microwave frequency radiation which is cooking us and drying out our muscles, like a piece of meat in a microwave oven, and that causes the blood flow to slow down and the inability to slough off the lactic acid build-up, pain and inflammation.

    Microwave frequencies are also causing the hyperactivity in the brain that this article mentions. It is my opinion this article is simply more fascist funded bullish&t to keep people confused.

    It is my opinion that fibro patients should stay away from any doctor or institution that is influenced or subscribes to anything even remotely whispering of the traditional school of “Rockerfeller” thought, history, funding etc. etc.

    1. I don’t trust what sounds to be crazy talk from an anonymous source on the internet when I have decades of scientific research and know how (including this article and peer reviewed sources) telling me things that are, frankly, much more plausible than “microwaves and fascists”.

  1528. hi..8 to 10 years ago the doc said I have fibro all pain in the rigt places ..tired no intereast in anything ,,now the past 2 years doc said I have rh arthitis so I was wondering do you swell alot and have alot of inflamation with Fibro ?? my hands feet shoulders knees and hip swell .

  1529. never been tested for bad knees. going for exrays on them (AT MY REQUEST) finally today. all I take is Tylenol 1s.about 20 per day.allergic to nysads.i sure hope something comes of this.also have osteo.tired all the time. hate this because I was always doing something.now I sit mostly and do my house work very slowly. Carmen

  1530. I have had severe symptoms since the age of three. Not labeled until I was 28 with many years of ; it’s this or that, and have you taken her to a shrink. I knew that my allergies to everything in the enviroment affected how I felt. This past year at the age of 50 after a complete adrenal shutdown I was sent to an enviromental clinic. I am on a strict diet which has changed my life. No wheat, corn , dairy ,eggs,caffeine or refined sugars, there are individual vegetables and fruits that I can’t eat without consequences. I already knew that I was deathly allergic to coconut and soy. I had been living by the adage if you can’t pronounce it don’t eat it as I knew that also made me very ill. At first glance it would seem that I can’t eat much and it is true that my options are limited. Having said that the quality of my life has changed SO dramatically I think that how I feel is what the lucky average person calls normal. Since I do not remember being normal I have been happily celebrating the positive changes versus the what I can’t have mentality. I have always been a very active person as I have a horse barn and had no choice to get out of bed. Now I get out of bed and can do what I have to do. I still struggle with energy which they tell me may take up to a year to level out. But again I celebrate the positive changes. I had a headache everyday of my life until 4 months ago I have had 3 since them. My joint pain is 90 percent gone my muscles are no longer hypertoned. My vision is so much clearer it’s like somebody turned the lights on. The black spots only show up once in a while and are only a couple vs the ten that were there all the time. I won’t bore you with the list of symptoms that I had but will say Every part of my body was affected by my food intolerances. I have had tumours that I had linked to caffeine before.

    I was diagnosed as having the fab five when I landed at the clinic.. Fibro, IBS, chemical sensitivities, food sensitivities and Chronic Fatigue. To say that i was at my wits end would be a slight understatement when he said I had chronic fatigue as well I figured I give up I just can’t fight this anymore. Then some of the nurses told me that it was partly my fault because I refused to accept my limitations. That fired me up again. After properly dressing them down and sharing my version of the facts of life I dusted myself off, told them I would only deal with certain people at the clinic (you are allowed to have input into your own treatment folks) and embraced the facets of treatments that were going to benefit me the most. I have above average drive and a typical A type personality. I never feel as if I accomplished enough today and I am working on enjoying the now. It is a skill I wish to perfect which in itself will also help me.
    To the people who are struggling for answers keep searching and researching and trying. KEEP TRYING is the key. Our lives are a constant puzzle and the pieces keep changing so keep adapting folks. I rarely share my story and tried to hide my conditions for years as I saw them as my dirty secret that no one needed to know about. I am much more open now that I see light at the end of my tunnel. It is a great relief to not have to convince myself to get up to walk, or work and low and behold I can ride my horses again. That was my goal was to be able to ride again. You see I missed the entire show season last year which was a first. People were use to me being “too busy ” by times to show my own horses but to not ride at all had never happened. By the time I had brushed and tacked up I couldn’t even get on. Looking after them is more important. But it was my driving goal. Everyone’s goal is different but find one and go after it. Once I was riding again it was to get back to the show ring. That was accomplished successfully this weekend. Now it’s to start back my big horse who allows no margin of error. Honestly he may wait a couple of more weeks yet but it will happen.
    I have been on diet since January and yes it was hard at first. It was a couple of weeks before I was identifying some differences. Now 6 months later everyone around me can give a list of differences to you. I have color in my face. Like real color which of course I have never had. My skin is much different, and sure my attitude is different I am not in agony all the time. My setbacks are minor and cheating has been quickly punished by my body so staying away from things is pretty easy. They say after a year I can start eating some of the foods etc but I have to say I doubt I will go that route. I will enjoy the “normalish” life as long as I can..

    1. Food, food, food!! I am sooo happy for you!!!! And our food chain sucks so bad any more! But yes, I am so glad you found the root!! Everything, everyone is describing is what gluten and or other foods causes…you just have to find out……corn, they are finding out, is another biggie….GMO most always….just eat real food….think about it….once you start feeling better you will think, wow, this is easy! I am so happy for you
      !!!

    2. Hi, Suzanne. It amazes me how many people are now learning about a gluten-free lifestyle and how it changes their bodies’ functions. I was Dx’d almost 20 years ago with celiac disease with gluten intolerance. It took about 2 years before I felt great. My concern is how many people are self diagnosing and removing wheat from their diet without avoiding the other glutens. Reading your comments makes me think you’re gluten free and I applaud you for this. I can’t stress enough for folks to understand how important it is to see a gastroenterologist (GI doctor) for a thorough examination; a life-time of ingesting gluten can develop intestinal polyps and cancer which must be treated.

    3. Thank you for sharing your story Suzanne. I can relate to it completely but you put it so clearly. I have been diagnosed with 4 of the ‘fab 5’ and have never heard that term before and have always seen them as completely separate conditions. I have stopped using deodorants and antiperspirants and try to use as pure products i can on my hair/skin now so i guess it has occured to me that i have chemical sensitivities also. I hope you get your energy back to full capacity in the very near future it sounds like you will. It takes so much mental strength and will power to do what you have done and i think its wonderful that you have that capacity. Im going to keep searching im very like you in that i wont give up. Good luck for the future!!

  1531. I have had fybro for 17 yrs.i have tried just about everything but snake oil! I have tried the new wonder drugs Sevilla lyraca. Pain meds. Muscle relaxants. Antidepressants. I have been told loose weight. I lost 30 pounds. Walk. Started walking 3 miles a day no matter how bad it hurt. Change your diet. Stopped caffeine, sugar, starches,pretty much any comfort food. Don’t sleep during the day you will sleep at night. NOT! I had family tell me I can’t feel sorry for you when you won’t do things to make yourself feel better. So I have done everything. Ask me how much it has changed how I feel. I have been to doctor after doctor had one tell me to try weight training. Really? Most just kind of glaze over it. It is very frustrating to leave a doctor and feel like they didn’t hear a word you said or worse take you seriously. Family and friends look at you and you look ok, but they don’t see what’s going on inside. If they only knew, you can’t think clearly make decisions, remember ANY thing (important or not), that some days it takes everything you have to just get out of bed, that every inch of you hurts, your so tired you want to cry. But they can’t. The ONLY people that can are other fibro sufferers. I have no idea if this new theory has anything to it or not. The only good thing is that fibro is just starting to be accepted as REAL! To any one who has found something that worked for you, I’m truly happy for you and my hope is each and every one that suffers from this finds something too, as for me, I’m a work in no progress yet. I know this is a downer post. Please forgive, just venting I guess, maybe there’s help out there yet, remember they cured the cold! No wait still working on that too!

    1. I totally understand you. When I was reading your history, it was like I was reading mine. And this news are awesome, it really have given me hope. Like you said ” The only good thing is that fibro is just starting to be accepted as REAL!”. That is just a huge step for us to not feel pain anymore, to have strength to keep on and live the day.

  1532. @ Cricket yes I know how a traumatic experience can be the cause of this disease. Our animal instinct kicks in and its fight or flight and in this case it’s fight. In 2005 I had surgery and then my husband was hit by a train while stuck on the tracks waiting for traffic to move. I had a nervous breakdown. After that I started having seizures and panic attacks and then all of the symptoms followed…IBS, Headaches, pain in my hands, knees, hips and feet and Depression due to inability to do the things I used to be able to do.

  1533. Check out Doctor Forester’s “Conquering Chronic Fatigue.” He has been treating fibromyalgia, lyme disease and similar ilnnesses for the last 10 years and has had much sucess in treating chronic fatigue patients.

  1534. I have treated numerous cases effectively, there is also a dysautonomic component to this and once the autonomic nervous system is addressed, patients are immediately better. SO it’s not just because they have more of these neurons, it’s also how the neurons are firing due to the dysautonomia and of course can be affected by things like weather and diet.

  1535. I did not know that stomach issues were a part of Fibro. I have been told by a couple of podiatrists that Fibro does not affect the feet as I have severe pain in my feet to go along with the Fibro and the Cronic Myofacial Pain that is attached and everything they give me for the Fibro pisses off the Cronic so I have stopped taking most of my pain meds and even the Lyrica they put me on is just to help me sleep. I have lower back pain 24/7 and was originally told it was all in my head until they could not find anything and an actual disability doctor diagnosed me with it when I was fighting for disability do to a car accident. I was told that’s how this disease can present itself was from severe trauma to the spine. I am so tired of being tired and now due to the inactivity I have developed type !! diabetes.

    1. I also developed type two diabetes. After years of taking antidepressants that I feel caused me to gain a lot of weight. I went on the Atkins diet and have lost over 30 pounds since feb. it hasn’t made me have less pain but has got the sugar under control I went from 200 to 80-100 depending on my carb intake. Not a cure for fybro but at least a help with the diabetes. Just a suggestion. At least it cuts out a lot of things we shouldn’t be eating anyway. Just meat fresh veg. And fruit. Good luck hope this helps in some small way.

  1536. @ pisani marie I know how you feel. I was diagnosed in 2008. I started gaining weight after having start medications from my 2005 hysterectomy and had problems with wide spread pain ever since. People acted like I was lazy, because I had to lay down so much I hurt so much in my joints and had sever headaches. I was tired all the time…what am I saying I am still going through all of this…anyway I hope what they are saying is true and we have hope of a cure. I am sick and tired of being sick and tired!!! lol 😉

  1537. This makes a lot of sense. I do have extreme pressure sensitivity in my hands. But also in my feet. Maybe there are similar patterns in feet too?

  1538. Has anyone tried gluten free?? I was also diagnosed with fibro, among other things…try it!… It’s just food…you have nothing to lose….go 100% for a few months to get the inflammation in the body down….you WILL get better! It’s easy to do once you get going and in the habit!! I no longer have pain, tiredness, gird & all the other crap…there is no magic PILL….just eating habits….Good Luck to all!!!

    1. Yes, Gluten is a big one. It can cause FMS. So can casein – in dairy. Other food sensitivities can also be the cause. Small intestinal bacterial overgrowth is also common. Lyme disease also – because the tests are not sensitive enough and there are lots of false negatives. ALCAT testing tells what foods one is sensitive to. I used to have FMS. Food elimination played a big role. I am a bodyworker and nutritionist who helps people with fibromyalgia, CFS and Lyme.

      1. Good for you! I try to tell family, but they do not want to give their food or beers up! LOL…..They feel sorry for me…..I feel sorry for THEM! All the mental issues too….Have you ever heard of Rodney Ford? He has some books out and believes gluten is a cause for most illnesses….Keep educating people about food allergies
        ….some might listen!! 🙂

    2. I too have gone gluten free. While I haven’t experience a reduction in pain, I do have a lot more energy, and all stomach issues (probably not Fibro related) are completely gone – as is the medication I too for over a decade!

  1539. It’s amazing how they can say it’s a neurological issue, when humidity, and cold are two of the main problems that aggravate the symptoms. It isn’t caused by our brains…

  1540. I suffered, and to an much lesser extent still do, all over chronic muscle and joint pain, muscle spasms, tightness and twitches, ‘raygun’ type shock pains to the head, chest and elsewhere, severe fatigue and decreased energy, waking up feeling hungover everyday, stiffness upon waking, difficulty remembering, concentrating, abdominal pain, bloating, nausea, and IBS, terrible headaches, jaw pain, facial tenderness, teeth grinding, hypersensitivity to one or more noise, bright lights, Numbness or tingling, needing to pee all the time.

    These all define ‘fibro’ BUT they are ALL symptoms of chronic anxiety disorders too – psychosomatic pain IS real pain but I’m sure I did better working on a relatively well understood condition (chronic anxiety) than pinning all my hopes of science curing my disputed ‘mystery illness’.

  1541. ??? I have suffered with fibromyalgia for over 35 years! I am male, and for the first 8 years all symptoms were mental, i.e., severe panic attacks, and fear of people to the point I walled myself away for years after a very traumatic divorce when I was only 22 years old. Then after horrible golf swing some 8 years later I developed new benign tumors in thoracic spine at T-7 & T-9, and at this exact same time had new pain in both legs, and especially in the bottom of both feet. The pain in the feet was so severe I screamed in pain while walking to bathroom each morning upon awakening. Now some 35 years later I also have pain running down both arms, hands, and fingers after a chiropractic adjustment to my neck in the 90’s. Still suffer from all of the mental issues along with pain throughout my body. Personally I have always felt the fibromyalgia all started in either my brain with the mental issues, and then later after physical trauma I developed the body wide pain. Or possibly started at base of brain, or in the first two cervical vertebrae being out of alignment to the point of causing strain on the covering around the brain/spinal cord. I pray this research is at least a new part of the answer we all desperately seek, but as others have noted we must all take this with a grain of salt. I’m sure many of you remember other recent research which also at least in the early stages promised us the answer only later to find out we were once again out in the cold. I must add the above comment from Andy Hickling is also very interesting, and I appreciate it along with many of the comments I have read thus far. In the end we really only have each other until real, and lasting answers are found for those of us who suffer each and every day year after year. God be with each of my hero’s fighting the good fight against the effects of fibromyalgia.

  1542. Its true you have to change your lifestyle! Ive changed my eating habits and niw excluded all meat and went gluten free , no aspartame and no carbonated drinks… I eat mostly fish, veg, gluten free products and i feel slightly better. However the fatigue is still horrible! Lets hope for a cure! Janice from malta!

  1543. I have been learning about cold laser procedure for knee problems, arthritis, bursitis, etc. etc…(which might help with some of the above mentioned problems)….BUT…I’m wondering IF it would help with this disease as well….something to think about…some chiropractors do the cold laser procedure in their office….it wouldn’t hurt to ask…

  1544. I have successfully gotten rid of fibromyalgia and have helped other to do the same. I treated myself for small intestinal bacterial overgrowth, food allergies and Lyme disease. I used herbs, food rotation, detox, supplements, bodywork and exercise. It took over a year but it worked. I biked 30 miles yesterday.

    1. Are you gluten free? I found that got ride of a lot of the crap the medical field wanted to label me with….

      1. yes and casein-free. Even if a person does not test positive for celiac disease they can be sensitive to gluten. Same with all foods. Most people who have FMS have gut issues and headaches. Most is caused by inflammation in the gut. Lyme disease is also a cause that goes misdiagnosed. I am finishing my masters degree right now studying nutrition and functional medicine. Regular doctors are not trained properly in how to treat chronic conditions like FMS.

        1. Excellent!! you go girl!! I agree……my sister is a perfect example….blood test came back negitive….but my mother and I have high numbers and are gluten free…..yet she keeps complaining of issues I know if she would go gluten free would go away….Oh well…..I can’t help!! Regular doctors for years never helped me just gave me tons of meds I did not want to take!! Cheers to you!!!

  1545. For years I suffered from all kinds of pain in my entire body … and all I got was after various tests that it was all in my mind!!! Sometimes the headaches lasted for weeks and I could only sleep for a couple of hours after my body couldn’t take it any more … Wow this is news as sometimes I felt that I was treated like a lunatic.

  1546. I have suffered from fibro for 15 years i am nw 30. I have tried every medication out there for he pain such as 300 mg of lyrica daily 700 mg palexia daily 100 mg amyitriptline daily valdoxan and zimmovane at night aswell as tramadol and difene throughout the day as needed. If any thing these only added to my troubles. I suffer with migrane,ibs, cronic fatigue,fibro fog basically you namr it i have trouble with it. I was basicly at the end of my tether i had no life pent all day in bed unable to anything fr myself. I had been to every doc out there and was even getting daily morphine injections for the pain. Eventually i saw a pain mamagement consultant and after 12 months of going round in circles we decided that something had to change.

    I changed my diet to almost gluten and dairy free and my ibs symptoms improved rapidly. I forced myself to walk 2 miles everyday on the fat no matter how sore and tired i was and no matter how long it took and slowly but surely my energy levels increased and my mobility got alot better. Now for the hard part i was admitted to hspital and went cold turkey. Off all my meds, now this was extremley hard and forabout 8 weeks after i came out after my week in hospital i had withdrawls nausea headaches but they did go away. Meanwhile my doctor started me on 3mg of methadone twice daily for the pain management i know to alot of people this will seem extreme but methadone was originally a pain med not a heroin replacement drug. I can honestly say if i had not gone down this road i would still be lying in my bed in cronic pain wishing my life was over as i dont know how long more i could have continued in the state i was in. It is the best thing i have ever done and has completly changed my life.

    But people need to remember that fibro cannot be cured just by drugs, you have to change your lifestyle and learn to avoid the things that make your symptoms worse. There is no easy answer to fibro it takes alot of contiuos hard work and a good support network to learn to live with this awful condition but if i can do it i believe anyone can.

  1547. I have Fibromyalgia. If what is said in the article is true, then I do hope scientist find better treatment options for all of us suffering. And hopefully a cure in the future! I have suffered my whole life and most days it’s hard to get out of bed. The fatigue factor is what a lot of people and Doctors don’t understand! I will hope for the best, but I’m not holding my breath. There has been too many scientists saying too many different things through the years. I hope they are right this time. -Karen Fields

  1548. My Oncologist (Stage 3 Lymphoma) said he didn’t believe in Fibro. My husband immediately grabbed on to his words and then tried to tell me all the pain was from the cancer. WRONG. The tumors shrunk, the pain is still there. Thankfully, I have a regular doctor who treats Fibro on a daily basis. He is wonderful with me. The Migraines are a part of the Fibro, and mine last for days, not hours, sometimes weeks. Now, because the pain in my abdomen has gotten worse, we are going thru testing to see what is wrong, but I have had the Irritable bowel thing all my life. I just call it spastic and go on. Is it possible that this is the cause of the abdominal pain (which is sometimes so severe all I can do is lay perfectly still for hours until it quits)? Is Sleep Apnea a part of it too, because I have had the Cpap for over 8 years now. This article is about as helpful as the Oncologist telling my husband he didn’t believe in Fibro, but the answers and comments I see here have been very informative. God bless us all and maybe they will find a cure, hopefully in our lifetimes.

    1. Re: migraines – check you looking into Jaw alignment ? I know two people personally that had surgery on their jaw and their migraines went away. But of cause there are many causes, I just find not many people know the link with the jaw.

  1549. Well all I take is Tylenol Arthritis Pain, Some time’s it help’s a lot some times a little, I look at the pain now as part of life like walking, & breathing..etc I have Fibromyalgia, high blood preasure, Osteoarthritis in my right knee, Burstis in the right hip, Arthritis in my hand’s which every joints hurt, My shoulder’s are stiff some day’s I can lift my arms, so washing walls are out some days, & the days I can lift them & I do what I can, I suffer for 4-5 days after with it, Sleeping is so hard with my elbow’s stiffing up 7 hurting it wakes me up. Plus I have COPD. I am only 49 but feel sometimes I am 94. With the ache’s & pains coming & going I thought for awhile i was imaging it all, some days i can dance around the floor, then some days I can barely make a step to walk. Grrrrr !!! My financial situation is very poor, I lost my car as I could not afford one any more, Now I have trouble getting to a doctor as i can’t afford to pay any one to take me. All the stress is not good I know, But what can I do, work is out I am stuck between a Rock & a hard Place, I refuse to let it get me down to much, As there are people out there worst than me & are keeping going. I pray some day there is a cure for all I suffer as that will help millions of other people in the world. God Bless you all.

    1. I read some where a few years ago the stress can effect & or make Fibromylagia worst, I find when music I like comes on It helps some stiff muscles to loosen up, some of the pain goes away or not so bad…I find up beat dancing music help with my tensed muscle’s, Please try to find or take notice what might help your tension ? It’s better than drugs detroying our bodies…Maybe watching & Listing to birds in a tree chirping a song..etc Try to find some thing to give yourself a little peace from pain even if it’s for a few minute’s it’s better not at all.

  1550. Seriously??? All this time I’ve been laughed at
    Or looked at like I’m crazy or it’s all in my head?
    Wow that makes me sad and angry! This pain
    Certainly is NOT all in my head and I hope that
    These findings are real and in Canada as well!
    Like I want to be in pain or tired all the time!

    1. Tammy your pain is real & I know what you mean about been laugh at & been looked at like we are crazy but we are not. ignore them

    2. FMS is not in your head, and this has been known for a while.

      These finding’s show very little, let alone if this is some sort of cause, its not like there is any mention of what to do about it

  1551. erm…..i researched this disease…i have this disease….1/the article STILL sticks the disease as ‘all in your head’..which has been wrong for years and proved wrong.2/the book ‘the fibromyalgia advocate’,which is the accepted medical evidence of the disease,shows and tells us what the disease is…in essence..’a neurochemical transmitter problem’…we basically have problems with the ‘growth hormone’ which is realised when we sleep to ‘repair’the body..ours is not due to the ‘type’of sleep we get,so our bodys don’t ‘repair’the damage caused during a normal day(micro tears in tissues etc)and the damage builds up..ie.’lumps,pain spots…,also our muscles don’t fully shut down while we sleep..so fatigue,both physical and mental….our body’s are CONSTANTLY running…this in turn increases the sensitivity to outside influence’s..which is translated to PAIN…this will cause a CHANGE in nerves..maybe even an increase in nerve structures.THEY still do NOT know the cause..to say its ‘in the hands’is bull…its just ‘part’of the disease.fibro is a FULL BODY DISEASE,we think it’s progressive but it’s not..its just we start using our other muscles more to cope with the 1’s that are hurting….what causes it???not what they are claiming…..just another money making scam mi thinks….they have to have a CAUSE before they can start to cure…thats why there are so many ‘magic pills’out there for us.claiming it’s ‘all in your head’..is sick when we physically all suffer the same symptoms.

  1552. I’ve been suffering with FIBRO for five years now. I have some good days, but unfortunately, more bad days exist for the better portion of my life. The pain is terrible for me, but probably is more complicated because I also have RSD in both of my legs, psoriatic arthritis, complex migraines, IBS, Chronic fatigue syndrome, and now seizures 🙁 If finding a cure for even one of these is in the works….I’m eternally grateful!! Keep up the research, please! It does seem plausible because my hands were one of the first places that were effected. they would swell like crazy (still do) and the pain in the cold weather makes them hard to even bend my fingers. We sufferers need hope for our future!! Thank you so very, very, much for caring and for listening to us!!

  1553. This headline is so inaccurate. Read the study. They had a VERY SMALL SAMPLE and the outcome did NOT indicate what this says. Shameful reporting. Inaccurate study results. What’s in it for this doctor who actually runs the business that did this study?

  1554. I am suspicious of the big hoopla about this. All of a sudden, voila, we’ve pinpointed the cause of a complex condition and a cure in sure to follow. I’ll believe it when I witness and am prescribed the cure.

  1555. There is nothing in this article that really says much. I see little ‘hope’. It doesn’t please me to hear someone think’s they have an answer because I remain too skeptical.

    I will go read all the linked sources and see. But this small article is a bit of a waste,

    I will continue to Pace life, eat well, rest, lesson stress and so on. All of these do me a world of good compared to meds. Because even if there is a cure, if I don’t have everything else balanced, then I will still suffer in other ways.

  1556. I am 53 and been diagnosed with fibro since I was 23.nothing seems to work.I am on lyrical but I can only afford 1 a day.my doctor thinks he knows more about fibro than I do.I have researched it and even bought a medical book on fibro. I can.t seem to get a Dr to fill out disability forms.I haven.t been able to hold down a job for 12 years now. They say you only have fibro. Nurse practitioner didn’t think to look at my problems before ordering a stress test.I had to stop pe in school in grade10.my legs collapse on me without warning and I have an uneven gate because of this.I have fallen so many times and hit my head bad and she wants me to do this she is nuts. My husband has a tread mill and it will not see me on it again.but the Wwii fit is good excersize and a can sit down really quick if need be.dre out there need to realize the people with fibro for decades knows more than your so called training

  1557. I pray there is a cure soon found for this dreadful disease that so many suffer with. Worse than a cure, I hope for ppl that do NOT have the disease to understand it. I read the above comments and know exactly what all these ppl are feeling. I myself have an extreme case of FibroMyalgia and IBS and worst of all Dystonia in my neck along with Rheumatoid Arthritis. I have had disc replacements and have digestive problems because our intestines are muscles and I have spasms alll the time in my GI system. They feel like heart attacks.I have tried several medications, none of which have had any lasting effects. I take Doxepin for GI spasms and at times I think it helps me to sleep along with my c-pap machine. I feel if they come up with a new drug that the side effects, as usual, will cause so many other problems for me that it doesn’t give me much hope at all. I’m quite thankful that the government has recognized FM as a debilitating disease. Im thankful for my doctor that understands what I’m going thru. There has to be something out there in a natural form that can help. I just haven’t found it yet.

  1558. I have found the medication “Lyrica” designed for this type of pain has helped my neck pain very effectively. It has been on our PBS list here in Australia since March ’13

  1559. I don’t get too excited when I read new articles about fibromyalgia, which I’ve had for 20 years. I’ve read numerous articles that say they found the cure only to find out it was a hoax. I do hold onto hope and I have Faith that one day they do find a cure. But I’ve had it so long, along with so many other health problems that they say they have found a cure for. But they haven’t. I am going to follow this article closely, but at the same time, I’m going to take it to my Neurologist. He has been wonderful taking care of me during this time. I wouldn’t trade him for anything. It’s very important to have a Dr. that you can trust. I pray that each and everyone of you, along with my daughter who has it now, will trust in God and will take one day at a time and try your best to get everything you can out of each day.

  1560. as i read this article, i began to shake. i immediately showed this to my husband, who has been dealing with my fibro for 12 years now. having fribromyalgia has changed both our lives! i pray this is something that will bring an end to the suffering.

  1561. Fibromyalgia is often misdiagnosed Ehlers Danlos or benign hypermobility syndrome. If you are double jointed even in the slightest, the trigger point pain occurs too. These conditions are hard to diagnose for similar reasons. Orthopedic docs don’t comprehend that that ligaments also have their own pain receptors. Loose ligaments cause joint pain. Even in normal people via old injury, new injury, or repetitive strain. PROLOTHERAPY GAVE ME MY LIFE BACK after 10 years of chronic pain.

  1562. I have Generalized Ostio Arthiritis , early stage of Fibromyalagia and now my doctor has added this “Generalized Hypersensitivity Syndrome”. I have been on every type of medication he can subscribe to me, but everything has given me bad side effects and no relief from pain! I have it just about every where in my body….from my feet right up to my neck. I have changed my diet to almost a full “Gluten Free” diet, hoping that would help and pain has not decreased any! There are some days that I give in and let it get the better of me and I become very depressed…but most days, I just keep on going! It’s very bad and I’m 54 years old and been on disability for 3 years now and unless there is a cure for this, I won’t be able to return to work again! Any answers out there?? Cures??

  1563. As soon as I read his article I started crying from relief. Is it really true this nightmare can have its end. I have so much pain 24 ours all over body. I feel as though i haven’t slept at all even after 10 ours sleep.Headaches every day,I cant lift my arms,and if someone touches me it hurts like hell. I could write so many pages with the different types of pain I get. Also I forget a lot and my hands shake whenever i get just a bit nervous. Even when I brush my hair i feel very tired. And sometimes where the pain is constant fro example on my legs they are also swollen. My shoulders and neck hurt and have a burn sensation all the time. I really pray to have my health back. I take Gabamox 300mg three times per day also muscle relaxant Norgezic three times a day also. But don’t seem to help.I have tried many medicines but none help. So tired of all this. I really wished do many times to not live anymore but I have two kids and just kept strong for them. I was diagnosed since I was 26 with fibromyalgia and now I am to turn soon 30. I really hope and look forward to a new cure.

    1. I used to be like that. I was diagnosed at age 27. doctors told me that I was crazy. I was on my own and figured out how to treat it. I eliminated gluten and dairy from my diet and took herbs to kill off bad bacteria in my gut. I found out what foods I had sensitivities to and I took specific supplements to help me to detox, build my immune system, reduce inflammation, and improve mitochondrial function.

  1564. I tend to distrust this article – they try to find a single simple solution. Fibromyalgia may be a sum total of a number of different causative factors. Take for instance fluoride. This article linked here is excellent and well worth a read.

    http://www.earthclinic.com/CAUSE_OF_FIBROMYALGIA.pdf

    It would give hope to many fybromyalgia sufferers – and it may have been the full story as far as the writer is concerned – but others are prossibly getting their poisons from other places.

  1565. Ironic, I’ve been seeing a pain management Dr. for 10 years, and we’re thinking RA, unknown, My father nsuffered daily.I’m also being simultaniously for improper “Blood” thickness,as I hhave had 3 mid-major Strokes leaving me Blind in rt. side and losing my right side strength 3 times and my left side once.alway’s blaming it on sleeping wrong.I can not wait to print this out and show both Doctor’s.This,to me is Epic news.(if it hold’s water)…I pray there’s a correlation.that could mean a lot.

  1566. I have suffered from this for almost 30 years , but I was diagnosed 16 years ago after many visits to many doctors. I have interstitial cystitis, IBS, severe constipation, abdominal muscle cramping, total heat intolerance, upper body fatigue, yet I can walk and run. Insomnia is one problem that i have fought for years. I am currently on an anti-depressant and Xanax for anxiety. My startle refex is hyper sensitive. I have severe muscle cramping in my shoulder blades. Am on 50mg of Lyrica which adds to my ADD and forgetfulness . Please tell me you can help me. I want so much to retyrn to my nursing job. I am left-handed and my left hand shakes and sometimes cramps so much it starts twisting into a horrible, painful position. I am 57. Thank you so much.

      1. All of the symptoms are like many other things. This does not mean and FMS suffer is jsut a Sibo one. I’m glad you got it sorted, but its not so great going around and telling FMS sufferer’s that they have SIBO and can be cured just because that’s what you had.

        SIBO also doesn’t really cover much of the sleep/insomnia/fatigue issues in the same way.

        Also how was your SIBO diagnosed ? A lot of the blood tests can show indications for this, which they don’t in FMs sufferers.

  1567. Having recently been diagnosed with this, I was at the doctors this morning trying to sort out my pain relief, ie biggest dose of naproxin and amytriptalin, saying it worked for a couple of weeks but seems to have gone back to as bad as ever…… the past fifteen years I have thought it was my arthritis that was getting worse and what prompted me was feeling even worse than usual and after test being diagnosed with fibromyalagia….. to be honest I thought I had ME or a brain tumour because I have days of feeling drained and headaches and my brain only being able to cope with one thing at a time or wrong words coming out of my mouth that arent meant to, let alone the pain in my feet when I walk, getting up in the morning is the worse time……… Anyway, I was saying to the doctor I just don’t understand fibromyalagia …. it just seems that so many things are wrong with me, I just wish I could understand how it all works and what to do about it???

    1. You said about the pain in your feet, do you get any bad swellen in your feet?

  1568. This may be a great breakthrough step! I hope more people who are suffering can find relief. I still wish more doctors and patients would look at the link between eating inflammatory foods and their effect on overall health and wellness. It is frustrating to me to see loved ones who constantly hurt and feel bad- yet because of lack of knowledge (or refusal to take pro active responsibility for their health) they continue to poison themselves every day with poor eating habits then doctors only offer more pills to mask symptoms rather than dealing with root issues.

    1. how dare you? first of all, MANY of us address this link…to little avail. and to claim that because we are still ill b/c of a “refusal to take proactive responsibility” over our health…do you have any idea just how much effort and struggle and pain is endured by FM sufferers to “help themselves?” and how would you know what helps and doesn’t help if you are not in a sufferer’s shoes. I find this posting hugely offensive and symbolic of the stigma attached to sufferers, when really blaming the patient is rarely helpful or accurate.

  1569. Well Wiell Well – another potential cure for Fibromyalagia -so what is the bottom line Pain / brain fog and a brick Wall u hit if u do not PACE – anyone who has this knows the symptoms – and I personally am tired of “potential” . I plan to live my life as best I can – and wait until a pill is offered to me that is a “cure” and I am not holding my breath – and I am awaiting the new pill for a cure

  1570. My daughter who is a nurse has sent me this article during a particularly bad morning such severe pain now for years. I could not stop crying when I read this article. Is there really some hope for us all I hope so. Unless you know the agony how can you not be pleased if someone thinks they may have the answer. It is good to have some hope. I do have a very good Doctor who understands the nightmare.

  1571. with me, getting rid of city (chlorinated) water helped me out tremendously!!! Don’t drink, swim, shower or bathe in chlorine..

  1572. I would like to get my hands on the clinical paper and read it myself. I suspect that the hand was the ‘control’ study area..and that these abnormal nerve endings are infact widespread. However, this does not answer two other factors…why does fibro develop after a trauma often due to whiplash in an RTA…and 2nd why do we improve if we go gluten free?

  1573. Tracy
    It is so nice to read all of these comments and to know you are not alone suffering with fibromyalgia, I have just had to have a pacemaker fitted due to it, as the fibro was stopping the messages getting to my heart telling it to beat. Now tell me that’s in my head, I had only been to the doctors the day before to say how ill I was feeling, he told me to go home and take a pain killer, the next day I almost died, if I hadn’t got to a phone that would have been it, I had a blood pressure of 78/32. I get so cross when people say you LOOK WELL they can’t see what’s going on, inside of you,
    or the pain you are in.

    1. That is what gets me is you look fine to me but like i tell them you dont live in my body24/7 if you did you wouldnt judge me thank the god lord my hubby and kids are up to date of fib because if not they would think I have went off the deep end I have good days and bad days bad days I am in bed cant move my arthitis doctor is the one told me I had fib before they did any tests on me

  1574. Okay, I can’t count the amount of times I’ve heard “just do some meditation”, “mind over matter”, “just psychosomatic”, “work on your anxiety”… kind of stuff.

    But the author of this article is incorrect about the use of SSRI’s for pain management. Antidepressants DO have pain relieving qualities. Doctors are not prescribing SSRI’s because they think the pain is all in your head.

    Getting the facts right might make the article more believable.

    As for the research, well if it’s valid, it’s great news for the future.

    Then again, I don’t just have fibro, I have a generalised chronic pain disorder too. So I don’t know. The only thing I have found so far is quitting my sugar intake.

    No sugar = < 90% pain

  1575. This might make more sense if it stated that the only skin that was tested was from the hand area, but that it is thought or shown that it’s the blood vessels through out the skin over the entire body as well… If someone thinks that all of the pains and symptoms I’ve experienced are all related because of my hands, well if have to say that this is a load of horse pie!

  1576. “The team analyzed the skin of one patient ”
    “The team used a unique microscopic technology to study small skin biopsies collected from the palms of fibromyalgia patients who were being diagnosed and treated.”

    No peer review that I could see and what looks like a tiny sample of subjects. No mention of whether they looked for the same in the hands of non-FMS sufferers & I’d love to know how they plan to explain the myriad other FMS symptoms – it’s not “just” surface skin pain. FMS causes a damned sight more than “tenderness in the hands and feet, fatigue, sleep disorders and cognitive decline” and I’d want to see them analyse the hands, feet & rest of body of more than a single FMS sufferer with their pet condition. How about analysing the same from “healthy” people, FMS sufferers without the nerve ending issue (you get FMS sufferers without a tender hands, just tender _everywhere_) & look for the same symptoms from people who have no FMS symptoms. You know, a proper review.

    Every time I see “a Cure/Explanation/Solution” for FMS, my heart sinks a little at the thought of how many “Oh! Have you read…? Have you tried…? You know it’s caused by…?” questions and comments that I will now have to field from well-meaning friends and family. False hope is a horrible, nasty, insidious thing and can ruin people’s lives.

    Got to love the comment in the RedOrbit piece from Amy P. “Wow crazy how spot on they were it has affected me cognitively as well as sleep issues! Mine is brought on by especially cold temperatures,” Cognitive issues (aka Fibro Fog) and insomnia have been known to be part for FMS for years. As has poor response to extremes of temperature (whether hot or cold – for example, temps above about 24Celsius totally wipe me out & increase my pain levels the hotter it gets). This study added nothing as far as describing the symptoms of FMS.

    And those people saying “Oh, thank goodness, it’s proven to not be all in the mind after all!” That was already proven by other studies, including functional MRI studies that showed how the brain “lights up” differently in repsonse to pain stimuli in FMS sufferers as opposed to “normal” people. Not to mention the same study demonstrating that FMS sufferers feel a severe pain response at only 1/10th the force that a non-FMS person feels it (pressure on the thumb while under the MRI scanner). Any GP that still says things like “some people don’t believe it exists” should be reported to the appropriate medical board for your country, as they are obviously in need of retraining, and a new one sought.

    TL;DR… badly reference article, sensational for the sake of it, “study” appears to be poorly done, all in all a total load of bollocks.

  1577. I have excess acid from gout to acid reflux to feeling very sick with bile acid gushing from both ends, i also have very red palms, and every fibro complaint you can name .Mine started when i was working in an animal shelter, hands on, i blamed the chemicals we used, Amitraz, or thought it may be something i caught from the animals.I go ballistic if a doctor tells me its in my mind. Stupid people, how dare they judge just because their knowledge is questionable. What they dont understand they put down to some form of mental illness, psychosomatic. I hate being disregarded, and wish we could all be taken seriously, i feel for anyone who suffers pain like this. Bless you all. x

  1578. This makes sense to me. A lot of my pain was in my skin, or vascular related- like almost constant migraine level headaches- my hands hurt so badly I thought I had damaged my body during my college track career and in my 30s I was doomed to a life of disability. But, I found my trigger- food allergies. I am now in *remission* due to my gluten, dairy, corn, soy free diet. Including personal care products.
    I danced onstage yesterday (competently) lol. Last year I ran in a 6K mud run at 8000′ and came in the top 10% overall.
    Fibro is personal, but the fact that found measurable differences in our physiology is exciting!! Maybe that will lead to an easier way for people to find their trigger/s and deal with them. And not just medicate symptoms.

  1579. I have had fibromyalgia 25 years. I was able to detect little sore lumps on muscle sheath right away. I have decided they are overgrowth of nerve endings caused by cat protozoa toxoplasma gondii, which do embed themselves in nerve endings, mostly in muscle sheath. This protozoa is disoriented in a human and migrates out of the stomach. Easy to catch from mowing dust, gardening and cleaning up after a pet cat. Any cat that finds loose dirt will go strive to poop in it. I think hands would be easy to prove the overgrowth of nerve endings being why it was found there. Dr. Torry Fuller is the main researcher of this protozoa in mental disorders it causes, because some travel up the nerve to the brain.

  1580. Emmy,

    I too have always thought that there must be an oxygen deprivation component to FMS. When I first experiences the most severe symptoms in the early 1990’s I wanted to know if oxygen ( Hyperbaric) chambers were ever used to help heal the pain, etc.

    So glad you mentioned that part…I would love research to look into that.

    Donna T.

  1581. I read this article and having had FMS. along with CFS/ME for 16 yrs., I find this a suspect
    “cause” of severe FMS. It makes absolutely no sense to me, unless the entire vascular system is involved due to the over abundance of blood vessels in the hand. This feels so wrong to me, a person who has battled these illnesses as much as I could these past 16 yrs. I do feel strongly that there has to be an oxygen depletion component to the cause, as in the mitochondria in the cells malfunctioning. That makes sense to me, but sorry to say,. I don’t give this so called “cause of Fibromyalgia” any credibility. I doubt that any of the researchers have FMS or CFS/ME, With the huge attack on the body and brain, the cause must involve more than just an overgrowth of blood vessels in the hands. That really trivializes all the chronic pain and all the difficult symptoms we live through every day. If it were something this simple, I think that this would’ve been observed before now.It sounds to me as though they’re just describing one aspect of Sjogren’s Disease, which does involve the hands and the feet.

    1. Emmie, I’m so glad I’m not the only one who thinks this “study” is crap, lol!

    2. I read the more complete study last night from the researchers press release. It in no way said the entire mystery of fibromyalgia was solved by their study. But this article is somewhat misleading, the study itself said that it was an abundance of small under the skin nerves in the hands and feet that regulate the blood flow to the body and that having this overabundance of these nerve endings actually depletes the oxygenated blood flow from reaching the trigger points and tissues of muscle groups throughout the entire body. Thus allowing for excessive acids to form around the trigger points of muscle groups and leading to oxygen depletion in the muscle tissue. Here is a link http://www.intidyn.com/Newsroom/article-0008.html

    3. I totally agree! I know on my worst episodes I do see blueness in my hands and feet along with my hands looking very shriveled up like you were in water for hrs. However, it doesn’t explain the whole body pain. My thought is why did they stop at the hands? Yes, it might have to do with the nerve fiber called arteriole-venule (AV) shunts as well as excess blood vessels however, to say its centered all in the hand and not full body I have a HARD time swallowing. My guess is if they took a through study of this nerve fiber throughout FMS sufferes as well as amounts of vessels they might just find that its widespred thought the body. The other question I have is they make it sound like we have excess blood flow from having extra vessels however, how many were really viable or is it they are thinner and not as functional as vessels in “normal” people due to the consticting of vessels due to the excess of nerve fibers?

    4. I have to agree actually, Emmie Gorrell! I was Dx with FMS in my early 40’s (66now). I have been told my doctors that I”lack blood vessels in the backs of my hands making my vascular system incomplete”. so this makes me think this is yet another ‘clutch at staws’ cause of Fibro!

    5. I agree Emmie. Have had the Epstein Barr V, CFIDS/FM for 18 years now. This just makes no sense to me. Savella, Turmeric & Bromelain have taken 99% of the pain away. But, the complete exhaustion is getting worse again. Brain fog and terrible memory problems. I can remember things from when I was 2 or 3, but don’t ask me what day it is. I have some vascular problems in my legs, but not caused by what this is talking about. Just think is another guess.

  1582. So Fibromyalgia has joined the ranks of allergies and arthritis. It’s about time. Both of those diseases were ones thought to be all in the patients’ minds, too, until a cause was found. This is great news for Fibromyalgia sufferers.

    1. BUT I HAVE KNOWN THIS TO BE TRUE FOR MANY YEARS NOW. I HAVE RA AND ALLERGIES AND CHRONIC FATIGUE, DEPRESSION MAJOR SPINE AND BACK PROBLEMS. WHY DIDN’T THEY JUST ASK ME?? IT WAS NEVER IN MY HEAD OR FAKED CAUSE I TRIED TO WORK AFTER BEING DIGINOSED 15YRS AGO.

  1583. bovus cause fibro effects more than just hands and feet and thjs article shows the guardian is a bogus website cause it mixes research from tbree sources and interlinks data that was not supported in any studies

  1584. I took a fall in ’98 and through circumstances the injury developed into Chronic Myofascial Pain Syndrome. Being so anchored, I strongly empathize with you all. While not body-wide or referred (it’s regional, my upper back/shoulders and neck), it lands me directly in the population of “You look fine” when I’m in constant pain and unable to work (something that grinds at me daily). Having found this article, I’m so glad that those suffering with Fibro finally have a concrete causal factor that thrusts the doors open for a real, fundamental and successful treatment.

  1585. Where are the stats? What research? Who did the research. Give us some references to back this up. Until then, it’s just heresay.

    1. Lynn Jenkinson,
      If you follow the sources, at the end of the article & under the writer’s name, you will see where she got her info from. From those sources, you can find much more detailed data on the study and their findings.
      The writer of this article, Rebecca Savastio, really didn’t give much detail. I found this article to be one of the better ones; http://www.medicalnewstoday.com/releases/262132.php

      Best wishes!

  1586. MSM with glucosamine + a vit C 1G with it, taken twice a day usually keeps my fibro at bay. There are times I have had such bad ‘attacks’ that every muscle in by body hurt. I DO blame generalized anxiety and stress for most attacks, even though I admit that at times I can’t credit that, either. No kind of OTC pain remedy has ever helped this condition.

    1. I too swear by MSM powder! I have been taking this for about two years now and keeps my fibromyalgia under fairly good control. I call it my miracle powder and recommended it to many fellow sufferers 🙂

  1587. Everything we experience at a conscious level is given to us by the brain – what we see and hear, what we think and feel (yes, emotions too) and the pain we feel, whether it’s a broken leg, a stubbed toe, or the agony of fibro or any other chronic pain.

    Journalists, medicos and so-called experts who think this translates as “you’re making it up” are missing the point, big time.

    I love this quote from pain researchers, Dr David S. Butler and Prof. G. Lorimer Moseley:

    “… anyone that tells you ‘it’ is all in your head, implying that therefore ‘it’ is not real – DOES NOT UNDERSTAND PHYSIOLOGY” [their emphasis]

  1588. Is there any treatment yet?,,,I’d been praying hardly for this,,I perfectly know that fibro is real cause I deal with it everyday,please send me any information regarded,,,,,

  1589. It doesn’t always make sense to me because I’m miserable in the cold rainy wheather and the same in the hot and humid, I just cant seem to win. When ever they come up with a new med to try it’s always so expensive u can’t afford it.

  1590. I’ve had bouts with Chronic Fatigue and Fibro since I was in my early 30’s. I’m going to be 59 yrs old soon. After all these years of taking care of my own pain without really knowing what was wrong with me , I finally got the diagnosis this year. I had 2 frozen shoulders and elbows, I’m Celiac Disease, I have tried Lyrica and I have gained weight and put up with mood changes. I will start a course in meditation in the fall to see if I can get some help from that instead of taking meds. I had to stop working and have a very hard time fighting for long term….very stressful which doesn’t help my immune system…….wish I could feel ok to work instead…….I feel for everyone that is afflicted with this ailment for it is not fun at all…….hugs

  1591. I have fibro and its hell evywaking hour is pain hot packs cold packs tens machine but i’m still on my butt and can’t deal no more. Id try anything to feel better and have a chance at a life again. Stress totally takes a toll on my body i just want hope.

    1. have you tried acupuncture? TCM (Traditional Chinese Medicine) has treated the disease for hundreds if not thousands of years. It will require you to change your diet some. But look for a community acupuncture clinic in your town and go through the treatment. Give it time, it will work. Good luck.

  1592. Iv just been diagnoseih this plus living with this plus living with degenerates discs. disease for 15 years now
    today has been my day from hell all nite through like some grabbing ever inch of skin on my body from tip of my head to tip of toe & doing Chinese take burns movement all over then add the jitters like pin & needles all over ever inch of skin head to toe
    my brain is like frying in my head my eye r jumping jelly bean
    my heart is beating so hard fast out my chest
    am shattered haven’t. closed my eyes in 72hours
    my body is so broke
    so how to i get help from this
    i take high dose morphine & high dose lyrica for my back
    trying the steroids. which they said it worked like hioron just making high
    doc just said nothing more i can do for u have u just have to learn to life with this
    if this is my to come am done…

  1593. I hope they find a cure or a remedy soon..it would be so nice to be pain free or just have little pain..maybe I can actually function again..

  1594. Then why do meds for nerve pain work? I still think it is a neurological disorder. I don’t have pain in my hands.

    1. Because the nerves in your hand are what’s causing the pain. The nerve medication works by calming these nerves down. You could indeed still call it a neurological problem since neurological problems deal with the nervous system. That’s what a neurological problem is, a problem with the nervous system.

  1595. everyone deals with it so personaly..you are a person who can “suck it up” please don’t judge those who aren’t able to…I admire you

  1596. What a bunch of whining brats I’ve been living with it for 14years my solution accept the pain get over yourself and live your life. I wake up in the middle of the night in agony more often than not, I get up move around do a couple of pushups flex my wrists, and generally get the blood flowing again Then I go back to bed and try and sleep some more. It isn’t fun it isn’t easy but I get through it and I work and support myself. I don’t generally complain about it it’s part of my life I don’t Let it control my life. Someday are good some aren’t I refuse to live like So many of my friends with this craptastic condition. Suck it up people it’s only your life!

    1. Well aren’t you the tough caring guy? Good for you, but you’re still a derierre aperture! Everyone experiences symptoms differently. I would never presume to tell someone to just buck up and get over it. (And NO, I don’t have it.) This may come as a big surprise for you, but everyone is different!

    2. Thetravelersmind. I’m kinda with you on your post. I’m so sick all the time, but I have to atleast try to suck it up. Somedays I just can’t but I’m tierd of all the meds, so I dropped everything and I’m seeing a pm doctor for some blocks in my neck, jaws and back. It would be so nice for a cure or atleast a med that works.

    3. My, my, my…aren’t you just an empathetic fellow. I’m happy you’ve found a way to manage your hand pain…it sounds like your Fibro only affects that part of your body, since that’s the only thing that’s in agony when you wake up. For me unfortunately, it’s every part of my body that hurts, with an ache so deep it’s like ice has been shoved into my joints, rendering me incapable of moving.

      In addition to my Fibro, I have several other medical issues that cause pain and fatigue. I guess I should just suck them up too…you know…while I’m “getting over myself”. What exactly does that mean anyways??

      I have no problem with you sharing your opinion…it’s a free country. I don’t have to like it though and guess what…I don’t. I think your opinion sucks, and I’m appalled that you would treat fellow sufferers with such disrespect.

      Good luck with your health. I hope for your sake it doesn’t fail so badly that you’re dependent on others for your care.

      1. I agree with you Pamela…that was in poor taste……sometimes the pain is so bad it’s hard to ” just suck it up ” I guarantee that guy doesn’t just suck it up when he is in severe pain…….hey buddy why don’t you go and have a baby so us women can tell you to go and ” suck it up ” ……………

    4. Obviously, your “therapy” for dealing with pain is to write/blog. So glad that works for you. But for the others that are sharing their daily experiences and what has and has not worked for them, THAT’S their therapy. . .this is how they deal with the exhaustion, frustration and the daily grind of living with pain. This is what works for them.
      If reading their posts gets under your skin and makes you cranky then don’t read the posts. Doesn’t get much more simple than that!

      Good luck to you while on your journey. =)

    5. I would suggest that you realize that not everyone has the same levels of symptoms you have. I know that I have been told by the most reputable two rheumatologists here that I have the worst case of FMS that they have ever seen in all their years in practice. I think that it’s likely your pain isn’t as severe or as chronic as a whole lot of us who deal with this disease, and other illnesses, on a daily basis. Just because it’s one way for you, doesn’t mean it’s the same way for all the folks who have this horrible disease. I doubt you have CFS/ME along with the FMS, and that is also a severe illness to deal with each day. Some of the things people recommend trying for relief with FMS aren’t things I can do, because I have a very severe case of CFS/ME, as well. So, I suggest you “suck it up” as you so aptly put it, and realize that you are not the center of this universe and you don’t have a clue as to what these illnesses are really like. There is no way I can work and, in fact, I tried to keep working, even after my drs. had told me to resign my job in December. I was a special ed. teacher and tried my best to finish out the year, even though getting out of bed each a.m. was a huge task, and I cried because the pain and the fatigue that is so far beyond exhaustion that it is a whole different category unto itself.was so terrible. I’d cry at work and not know why. I knew I was forgetting things, mixing up names, etc., and one day towards the end of April that year, I suddenly couldn’t take a step. Every system in my body was burned out. I cried and cried at the thought of having to leave my kids to a longterm sub. But I no longer had any choice about it. All I did that first year, was go to drs’ appts. and sleep, sleep, sleep. For anyone wondering about the use of an anti-depressant as part of the treatment of these illnesses, the Serotonin in the brain is depleted and that category of anti-depressants(SSRI) can help a bit with the pain.

  1597. Unless you have lived with this you can’t understand what daily hell we go through random symptons pain so bad it reduces you to tears no sleep falling asleep at the wrong time freezing cold then hot people who think its all in , our minds because they can’t see what its doing to the person who has this thing.I would give anything to get my fotmer life back, so please dont give us false hope make sure your facts are 100 percent .

    1. Jan, have you tried Fibrosence? It’s a natural suppliment pack filled with high doses of Celedrin which helps with inflammation. It helped me a lot, took a couple of weeks to start to see results. I went through the same thing with my hands. I almost had to move back home for my parents to do anything, I could barely wash myself or brush my teeth without tearing up. My hands and other joints feel much better. Now I’m just recovering from Chronic Fatigue, which I’ve also almost beaten.

  1598. Tell us something NEW PLEASE!!!! I DO NOT feel worse in colder weather—this HOT AND HUMID weather just about does me in !!! DON’T PUBLISH ANY MORE CRAP UNTIL YOU HAVE SOMETHING THAT WILL HELP US AND NOT TAKE HUNDREDS OF DOLLARS A MONTH FOR MEDICINE !!!!!!!!!!!!!!!!!!!

    1. I thought I was alone, I don’t feel worse in cold weather either. It’s the hot and humid weather that I can barely move.

    2. The heat and humidity definetly make my pain worse,so does the cold,so does the chilly rainy season,there just isn’t any relief!!

  1599. I have experienced pain that’s been diagnosed as fibromyalgia for 28 years.
    Frankly – the only explanation that ever made real sense to me and still does,
    is Dr. John Sarno’s take that the pain is caused by reduced blood flow and therefore reduced oxygen. He insists things like herniated discs are not the cause of pain
    because not everyone with a herniated disc experiences pain.

    He believes our subconscious mind, because of conscious and unconscious decisions
    we have made, is giving the messages to restrict the blood flow to certain parts.

    I’m giving a very crude explanation here regarding his life’s work.
    His books do a much better job.

    Whether or not he’s right about the mind being the initiating factor – I think his explanation that it’s the lack of blood flow/oxygen causing pain is some comfort that nothing fundamentally is wrong with the body and certainly explains why you can be in very severe pain for years and at some point work it out and be just fine again.

    His work is controversial but definitely worth consideration.

  1600. I have had Fybro for about 18 years -am presently on “Lyrica” for nerve pain -diabetics use it too. It doe help but the almost 30 pounds I have put on makes it a daily diffiult decision- take the pain and try to bear it or take the meds. Yes we do not look like there is anything wrong with us , but trust me it is a living hell every day. Can’t work,feel useless and always hurting somewhere as it moves around from shoulders to neck to parts of back to hips , knees and sometimes ankles.God help us.

  1601. this all sounds true for me when i get sick sick tussinexx helps me get better and my brain does go very hyper and wish I could deal with it better or find somethin to help but I know I have injured my neck and wonder if this has brought on fibermyalgia for me and if it was fixed would it go away

  1602. 24 is FAR to small a participant number to be considered a conclusive study, and from what i can tell, the study is YET to be approved by peers.I think the Journalist has jumped the gun and exaggerated her conclusion that the cause has been found, when in fact, the study doesn’t say that at all, all the study says is there’s a correlation that requires further investigating. I dare say this article in the guardian will cause more harm than good.

  1603. Once again FM patients have been neatly pigeon holed into a nice, tidy, little bundle that will mislead the researchers that were working so diligently to find a true cure. Articles like this should never be published. This “Dr.” proclaims to have made a wide sweeping hypothesis that not a single fibro patient will agree with that truly has the disease. I have never been so disgusted during the 30 years I have suffered with this disease. I feel like I am suddenly in a 30 year flash back to nowhere!

  1604. Interesting to find the reasons for patients suffering.What does it matter they will come up with other medications that we can’t afford.Most people can’t work, on disability and have to suffer anyway when there is no help for new medications or other treatments.I hope that some people can get help finding a cure and all.I don’t think It will be in my day so we cope the best we can.

  1605. i am wondering if this could also be genetic. i remember my mom always complaining about the pain in her legs and other areas. she was diagnosed with arthitis. i just recently was diagnosed finally after many yrs with FM. i now have heard from a cousin who has lupus and has FM also. so now i am worried about my daughter and my sons. i have a great rhuematologist who is treating me right now with flexeril, and that helps. i feel that mine is not severe yet and i dont have to use the flexeril but about once a week or less. i deal with pain mostly by trying to be active and i do watch my diet as i can. if anyone knows of it having genetic link i hope to hear about it.

  1606. I have not cured my Fibro but I have lessened the pain with the Gluten Free diet, less stress, therapeutic yoga, meditation, stretching, walking and knowing my limits. For sleep, I take a good quality melatonin (not all sold over the counter is good quality) and I sleep like a baby and good quality supplements. Drink plenty of water, at least half of your weight, no MSG, no aspartame, no nitrites (found in hot dogs, bacon, meats) and sulfites (found in wine). I eat predominantly Organic vegetables and fruits, very little meat, very little dairy (no milk, almond, rice or coconut milk only). These are most of the things I do to keep it under control with NO MEDS. I also have osteoporosis (thanks to pharm meds), Allergies, sciatic pain, GF intolerance, which caused my leaky gut and intestinal problems. Just need someone to vent to or want more info on how I am doing you can email me at [email protected]

  1607. I do not believe this! This does not come from a reputable source and it is not in the medical journal! Until my doctor tells me there is a reason for fibromyalgia I will not believe it or until it comes from a more reputable source! People need to be careful what they print because they could be misleading and giving wrongful information. I am astonished that someone would print this without more information or more proof than this! It just gripes me. And when we go through all the things we go through with to just try and feel a little better each day and hope that there will be a cure it is not fun for someone to print something that may give false hope and just sounds like that are making fun of the illness! I am more than livid at this being printed without better backing up information!!!!!!!

  1608. I have fibro, plus many other problems that have been mentioned, I was diagnose by a Doctor that wrote a book on fibromyaligia, and then again 4 years later by the same Doctor, I did not know it was the same Doctor, tell he told me he had seen me 4 years previous, all I know is I’m always in pain and never found anything that works I guess all people are different what works for one might not work for another, so that’s all I have to say, Thanks, we all would like a cure…

  1609. SUBJECTS: Twenty-four female FM patients and nine female healthy control subjects were enrolled for study, with 14 additional female control subjects included from previous studies. AVS were identified in hypothenar skin biopsies from 18/24 FM patient and 14/23 control subjects.
    So 75% of FM patients and 61% of the non FM control is hardly a definitive diagnosis

  1610. Does anyone out there knows of any men with Fibro? As a Vet with PTSD and TBI I have taken pain medication for a while now, but I was shocked when my 26 y/o daughter mentioned about her problem (Fibro) and how similar all her symptoms are with mine. Makes me wonder…

    1. I have fibro and so does my father. If he did not have it I may never have known what was wrong with me, and certainly not so quickly.

    2. Ed, try EFT for your PTSD. I had great success in one session. I have Fibro also.

    3. Yes, my cousin has Fibro, and his pain can get unreal. I’ve seen him cry from pain

  1611. I developed this horrible disease about 10 years ago, after I had my appendix removed. I’ve always thought that the surgeon did something that triggered it. I do have sore hands, I’m exhausted all the time and weather can badly affect my aches & pains. I have pressure points that when touched cause extreme pain. I am hoping that the cause can finally be found so a possible cure can follow.

  1612. Maybe it’s a blood flow thing,like how fast blood travels through you? I have Osteoarthritis,fibromyalgia,carpal tunnel,depression,scoliosis and recurrent cellulitis. I take muscle relaxers & naproxen. It helps some,but my tailbone has started hurting & I’m also having difficulty walking. I’m wondering now,if I could have MS. I want to suggest to my doctor oxygen therapy,I don’t know if it will work but I don’t think it would hurt.

  1613. This article has me furious! Rebecca Savastio is giving misleading and flat out dangerous information about a disease she clearly knows nothing about. Her statistics are wrong, her statements are wrong and every word of this article should be retracted before it misleads patients with Fibromyalgia. The study she refers to simply states that doctors have found a way to definitively prove the existence of Fibromyalgia.

    “Dr. Rice, President of Intidyn and the senior researcher on the study published in the journal American Academy of Pain Medicine. “œThis discovery provides concrete evidence of a fibromyalgia-specific pathology which can now be used for diagnosing the disease, and as a novel starting point for developing more effective therapeutics.“

    Please people, read the actual study information given in the source link to Redorbit before sharing this article with anyone you know or care about that suffers, as I do, from this condition.

    1. I agree. This is just a study that is showing part of the pathology, not a singular “cause.” This is an important finding, but not the be-all, end all. And the article DEFINITELY leaves a lot out.

      It also says there is a low level of inflammation in fibro sufferers. Is this a typo? Everything I have ever read, heard, and experienced says the opposite: That high levels of inflammation are part of the problem.

  1614. I also have Fibromyalgia and have had it for quite awhile now.
    Chronic Fatique I’ve had for over 13 yrs now and I take 150 mg of Elavil everynight before bed.The heat bothers me a lot just drains my energy like crazy.I can go from being exhausted in 10 minutes for example to minutes later wide awake.I wake many mornings still very tired.Exercise does really help a lot and I also started taking a seed called Chia for energy which helps.Look it up for nutritional value the list is long for me to put on here loll
    The other thing I take is Hemp Seed with is very good put in smoothies which I make alot
    salad,yogurt ect look up also for nutricional which helps also.Im gglad I found an awlsome site like this.Thank-you

  1615. I cured my Fibromyalgia with diet. Fibromyalgia stems from dysfunction in the gut, and thus the brain. (Look-up “gut-brain axis for more info) A totally gluten free Paleo diet is what cured me, everyone with this condition should try it!

    1. One thing I’ve learned in dealing with Fibro, and a long list of other diseases and disorders, is that what works for one person doesn’t mean it’s going to work for the next. No 2 people respond exactly the same to treatments.
      We have to be responsible and be our own advocates. Question everything.

    2. I agree, Andrea. I’ve had at least some of the symptoms of fibromyalgia for at least 55 yrs & full-blown FMS complete with migraine, IBS, wide-spread pain & fatigue and arthritis diagnosed in the early 1980. I’ve been gluten-free for almost 2 yrs and have gone from taking methadone 4 times a day (for over 20 yrs), to taking tramadol 3-4 times a month, from migraines 3-5 times a week to a total of 2 in the last 2 yrs (both when I ate something with gluten). 3 years ago, I was taking 16 prescription drugs, now I take only thyroid, glucophage & hormones on a regular basis. I’ve gone from being very sedentary, barely able to keep up with cooking & keeping my house barely presentable to doing water aerobics 3 times a week, working out at the gym twice a week and walking 4-5 miles a day when we’re camping.
      I’m sure this won’t be the answer for everyone, but a three-month trial of a gluten free diet is an easy way to test it. It’s really worth the effort to try the diet change instead of waiting for a “cure” like I did for over 30 yrs!

  1616. Sounds like the extreme pain in the hands explains why doctors would think it was psychological. The brain is probably redistributing the pain cause patients to have referred pain left over from their hands

  1617. I don’t have fibro, but I do suffer from a chronic debilitating form of arthritis. I have a hard time reading this and believing it’s true. The symptoms of Fibro are SO varied, and I think that Fibro is used as a blanket diagnosis much of the time when doctors can’t figure out the cause of inflammatory pain. Eg many people with my illness are first wrongly diagnosed with Fibro. Second of all, how many patients did they study? In the document it sounds like.. 1, so does that mean that because I have AS, and brown eyes, that therefore brown eyes are the cause of AS? I think not. I hope they continue doing more research into this possible cause, but from the info here, I would hardly say they’ve discovered a conclusive cause. I’m skeptical…

    1. Far from being a “blanket diagnosis” almost everyone I know with FM has had so many misdiagnosis that they can probably take their own bloods as well as a lot of nurses, should probably glow in th dark from the X rays and resonate near any magnet. The last test I had before my FM diagnosis was a lumbar puncture to rule out MS. All in all 11 years of wrong “labels” before FM was ever mentioned

    1. Has anyone heard of leaky gut syndrome? the impact on your body of this condition, and the diet that helps heal it?

      1. Yes I have. Diet is so important and so is less stress. So we should all be supportive of whatever will make us feel better. Read the China Study and Forks over Knives. It’s very important to eat as many veges fruits and try to eat organic if you can, no preservatives. Smoothies are great for your gut. Montel Williams has MS and he has an awesome tried and true diet. All about the GUT and leaky gut Good luck. Judy

  1618. This is very interesting news.. I also find that very hot weather affects my fibromyalgia.. More fatigue, and more pain, less energy to do anything.. I hope one day they can find a cure for us fibromyalgia patients, cause living this life is very hard on everyone.. I am a single parent of a teenager and life can get rough having to work full time, and keep on going.. Thanks for the informatin..

  1619. This is just new info. But i hope for a cure and that will only happen when the have all the answers. I just hope and pray that it will be in my life time. Very soon i pray!

  1620. My hands rarely hurt, and its not just cold weather but humid weather as well. I wonder if anyone else can’t sleep or can’t stay awake? I think not being able to stay awake might be all the mess.

    1. My hands do hurt. But I also have neuropathy, osteoarthritis and carpal tunnel syndrome. So my hands do hurt. However, you are right about the hot and humid weather as well. I have many times during the day that I feel like I can’t go on any longer because I am so exhausted. Then at night, I toss and turn, sleep a little, then toss and turn again! And worst of all, they have tried about every type of medicine on me and I can’t take any of them.

  1621. I am not sure how this information will be changed or not changed in the future. It is interesting to note that in my case, an RA specialist checked my fingers with some instrument he had and said that my capillaries were not the right size and diagnosed me with Raynaud’s Syndrome, a mild type (no RA or Lupus, but I do have Fibromyalgia). Obviously, this does not cover everyone with Fibromyalgia though.

    http://en.wikipedia.org/wiki/Raynaud's_phenomenonhttp://en.wikipedia.org/wiki/Raynaud's_phenomenon

  1622. Until I see it published in a medical journal, and multiple studies for a long period of time, I take this theory with a grain of salt. It is just that, a theory. I know that people want answers for this medical condition, but, this is not the complete picture. I do believe that there are a bunch of other conditions that are comorbid with fibro, which are psych conditions so there has to be a connection somewhere. Not saying this is a psych condition, but I am also not saying it isn’t.

  1623. How is this answer possible for the pain of fibromyalgia when the onset of fibro most frequently happens to older adults? For instance, mine did not begin until my late thirties/early forties – if this were to be the answer then my body would SPONTANEOUSLY have had to suddenly almost overnight develop the excess vessel nerve endings to cause fibro according to this solution. I find this difficult to believe. A blatant lie for the Guardian to proclaim “Mystery Finally Solved!” – now I am thinking the researchers must have paid the writer of this fallacy, or else the writer is desperate for work and/or attention through use of printed lies. Shameful Guardian. You now have the attention of backlash from us actual fibromyalgia sufferers.

  1624. I believe this is just another theory, I have been a sufferer for over 15 yrs along with other illness`s. It would be fantastic if they found a cure for this awful condition, but I`m not holding any hope at the moment. I would also like to say that there are many sufferers world wide not just in America, I am tired of reading we may have found a cure for the many sufferers of America, well what about the rest of us. P.S MELLO there is no need to leave a sarcastic comment to Arina ( the teacher ) if you are a sufferer of this condition then you should fully understand the confusion we have at times. You didn`t even comment about the topic in hand.

  1625. I think this is HOGWASH Myself!
    I’ve suffered with Fibro for half of my 50 years, & the last 3 years have been my worst.
    Granted, some points are interesting but I don’t see where this solves anything.
    It is NOT in MY head!

  1626. @ mello, maybe you should change your name to GOD, since you like judging so much!!!

  1627. I had surgery on the ulnar nerve that runs near the elbow On both sides. After that I got Fibro . So it could be. But the pain medication did not get filled properly because of all the rules for the heavier drugs. So it could be from all the suffering from the pain of the surgery. So maybe this is good news but I am not excited yet

  1628. 3 out of 6 patients may have had this type of result, but what about the other half of the results?

  1629. THIS IS BUNK, THERE IS NO WAY THAT BECAUSE THE NERVES IN ONE PERSON HAND CAN PINPOINT THE SOLE CAUSE OF PAIN FOR OVER 10 MILLION PEOPLE. THIS ‘DISEASE’ STEMS FROM THE BRAIN AND I BELIEVE THE SPINAL COLUMNS NERVOUS SYSTEM.

  1630. I’m not buying it, I’ve had fibro for 21 years since my son was born, hardly ever have pain in my hands although i do everywhere else and it’s just as bad for me in the summer when it’s warm. Just another theory like all the rest out there

    1. I agree Carmen … I don’t have pain in my hands either, but do have pain in most of the rest of the body. Also the seasons are not a contributing factor for me,

  1631. Not sure this totally solves or cures it. It may be one aspect of the disease. Woman are the main victums. Hormones may be involved. I had Fibromyagia for 15 years that turned into rheumatoid arthritis. The immune system may also be involved. Hormones, immune system, genes, blood – veins – nerves – all involved. I have learned that many of us have lost a important good bacteria in our guts – B. Fragilis that regulates the immune system to reduce inflammation & control the T cells. Have not been able to find it anywhere. You also did not mention the role of inflammation in fibromyagia. We have so many environmental problems today, toxins, pollution, G.M.O.’s, climate change, we are bombarded by radio waves & radiation from all kinds of devices, computers, t.v.’s, cell phones, smart meters & tons of other stuff. We need to clean up the environment,get overpopulation under control & get much smarter about our health. We can go to Mars, & beyond, yet not figure out how to care for our own planet or ourselves, why certain diseases exist, or how to treat, or better yet, cure them. Mother earth must clean itself of polluters, somehow.

  1632. I was told that I had traumatic fibro. from trauma to the body. I had a small surgery at a small surgery center. and from lack of oxygen and tipping my head back to far, and I had a sm. stroke,. I had never had any symptems for fibro until I had HAND surgery. That seems kind of wild.

  1633. I have been diagnosed with this and I have been drinking Aloe Vera Gel…..this has helped me so much. I also take Bee Pollen supplements which gives me more energy and I drink Argi + which helps with the circulation. If anyone would like information on articles that testify to these products, please send me a message. Thank you.

    1. Jannette,

      I’ve had what doctors refer to as “one of the most severe cases of fibromyalgia” they’d encountered. I was diagnosed about twelve years ago, but had been diagnosed with IBS about thirty years ago and then with Epstein-Barr virus (chronic fatigue syndrome) about fifteen years ago. I’m also an “A-type” personality, very driven and tend to burn the candle on both ends. I have sleep apnea, a frequent arythmia, DDD/DJD, arthritis, etc. Pain meds don’t help and I won’t take anti-depressants (not depressed) — I would be VERY interested in your health regimen. Please feel free to contact me via FB or my email: [email protected]

      Thank you, in advance, for your time and consideration. My spirit is strong and mind most days is OK :), but I have expectations of getting better and better.

      Kind Regards,
      Julie Lewis

      1. Hi Julie I am new to this site. I have had this for a about 6 years. I use a medication called low dose naltrexone. Look it up. Taken it since last year March and have felt better. Just added doxycycline to the mix.

  1634. is there any kind of blood test to see if you have FM.?.I have all the symptoms.. but, thought it was RA.. which there IS a blood test for..

    1. not an expert by any means but none of the Doctors I’ve seen has suggested a blood test for Fybro … usually they test pressure points

  1635. When are writers going to learn to site their damn sources. Where did this information come from?

    1. Richard-it would behoove you to look at the entire article before starting to rant, The writer clearly gives three sources…reorbit, women’shealth.com, and yahoonews. While the middle is simply a FAQ, the first and last source cites (cite…not site) the following source material: Scientists at Integrated Tissue Dynamics LLD (Intidyn) reported their findings in the journal Pain Medicine. Their work was part of an Albany Medical College study on fibromyalgia. Honestly, you junior would-be critics are very annoying to those of us who get paid to do it.

    2. Source: RedorbitSource: Womenshealth.govSource: Yahoo News

      Ummmmm did you miss this part ?

  1636. I suffer for 9 years now. I am a teacher and it is great to know tjat so many other women around the world are also lokking for cures..I am also taking anti depressants as well as anti inflammation medication. Some days I cope very good but I don’t go 1 day without pain. I also experience the ‘hiper activity in the brain…Thanks for the article

    1. if you are a teacher i feel sorry for your students!!! learn to spell….. or at least proof read !

      1. Mello
        Why are you jumping on a complete stranger for a some incorrect spelling? That’s just not nice at all. You yourself started a sentence without using a capital twice and did not capitalize I in your own sentence.

  1637. i got diagnose FM as teenager, year ago aswell Scheuermanns disease and then they changed it into Bechterews disease and now they think i also might have Pshoriasis arthritis..I chronic fatigue syndrome its all just guessing diseases…..i myself think i aswell have propably chronic fatigue syndrome..can you seriously have so many “kind of arthritis alike” diseases?? iremember reading while ago you could see FM by brain scanning and it was something with the spinal aswell……sorry my bad english, im from scandinavia.

  1638. I have acute intermittent porphyria, ulcerative colitis, and fibromyalgia. I’m a 36yr old male musician. Marijuana, which helps with my other symptoms as well, works great in my heads and feet!

  1639. Interesting. Wonder if this explains the many blood vessels in my hands and the bottom of my feet and under my toes that knot up and then break and leak blood out, leaving painful ugly bruises?

  1640. Thank you for this article….I’m recently been going through treatment, reading more about what FM is….Pain & constantly exhaustation has been my load to carry. Anything that can help.

  1641. The only thing that worked for me was a combination of plant sourced Magnesium and Malic Acid. It worked wonders for my FM. I was resorting to heavy painkillers before taking it. Look into it guys, I was a doubter that was convinced over a period of 4 days:-)

    1. I so agree with Firefox! I take B12, L-Carnitine and Malic Complete which is magnesium and malic acid. I have taken this since 1991 and as long as I pace my activities, I can manage. Of course, my house isnt spotless, I never go anywhere, I only work PT and go to school PT but I dont feel like I have been run over by a Mac Truck EVERY day….

      1. I agree with magnesium I havent had Malic acid Ill try that too but for me its Cell Food and magnesium seems to help me

  1642. I could have told you that myself I know, it doesn’t stem from the brain. If it did, it would have affected a person mentally and phsychologically long before the physical symptoms. I know I have it. But I also have other pain issues, which in the long run, makes it hard to determine if it is, FM, or chronic pain, example, my back. I have had, back problems for years which in turn, had caused pain eveywhere else, all around.

  1643. I was diagnosed with FM many years ago, then ran across a doctor who believed that FM was actually a symptom and not a separate illness. I was then diagnosed with Lyme and Babesia, which can cause FM-like symptoms. I’d be happy for some type of a cure – hoping it would solve the pain and fatigue issues no matter what !!

    Hoping, but not expecting.

    1. I take Cymbalta and find that if I take it in the morning I don’t have the side effects and it makes easier to get through the day. I have been on it for over 3 years and it helps.

  1644. I have experienced FM symptoms for 40 years. I’ve now been taking Cymbalta for over a year with an amazing decrease in pain. However, I am worried about side effects. While I have had difficulty with sleep for over 30 years, I now can’t get to sleep until 1:00 – 3:00 am and have extreme difficulty getting up in the morning. If I close my eyes for a minute, I’ll fall back sleep – this repeats over and over all morning until I force myself out of bed (it feel like a lovely drug induced sleep. I am going to look into the Guaifenisen treatment.

    1. Please be careful with Cymbalta. It can cause hypomania that begins with insomnia. It is especially dangerous when used with alcohol or stimulant drugs like Ritalin.

  1645. Oh, one more thing. I was wondering if any fibro sufferers are DES daughters? I am a DES daughter (my mother’s doctor had her on about 180 units/day before I was born) and this created other deficiencies in my system. I have always wondered if DES (as it plays with the development of a child’s chromosomes) had any part in FM? Also, most FM sufferers (I am told) are female, and DES had it’s biggest effects on girl babies.

    1. care to tell us what DES is. I tried doing a search on it but got nothing that would suggest it was related to what you are saying came up.

  1646. Hi. I’ve had fibro for the past 20 years and it is not a piece of cake. I was living north of San Francisco — cool, wet climate — and it was driving me nuts, not to mention the pain in my muscles and the migraine headaches (real ones, not imagined). I was seeing a chiropractor, acupuncturist, physical therapist one or two times per week. I then became a guinea pig for all sorts of anti-depressant drugs as the source of FM, at that time, was thought to be neurological. I switched these meds a lot as they prevented me from sleeping, the one thing that was supposed to help (I was sleeping lightly for about 3 hours a night for 3 years). I felt like I was 80 years old and that i was going to waste away to nothing, and that if I had to look at 4 walls for the rest of my life, then life was not worth living. I figured that I would stop the anti-depressants — against doctors orders — because I was feeling worse with them than without them. I did this after suffering a heart attack from the meds at the age of 34.
    I also realized that I always felt better on vacation, and I always vacationed in warm climates. So was it the climate or the vacation that made me feel better? Moved from SF to Tucson and, 6 months after the monsoon was over, I started improving. I made an archaeological excavationin Italy without telling the director of my problem (was afraid I would not be allowed to go). I just figured that I would tough it out. It was difficult, but I toughed it out and was made Field Director of the excavation in the next season. Now I live in Egypt — a nice hot, dry climate. I live in the Bahariya oasis, one of the most arid places on the planet. And I get FM only at very great intervals. It is heartening to hear that the source of FM has been found — I hope their findings are correct as I never had pain in my hands. But I do write all of this to impress upon people that FM is NOT in the mind, it really is in the body. And it is debilitating. Extremely so.

  1647. I was told I have FM and also bad para thyroids Personally I feel that a lot of doctors give the label of FM when they can’t find what is wrong. I can hardly move most days and am taking tramadol for my pain. They say once I have the surgery on my para thyroids that a lot of the pain will stop. How do they know all this foe sure

    1. Hi Billie ! This is just another piece to the puzzle and one we can solve on our own. Modern medicine is motivated by suppress symptoms but never cure an illness or disease because there is no profit in it. Para Thyroid may very well be affected and be attributing to the issues with those who suffer from fibromyalgia but you are right to question how one could know this for certain. Just consider that not that long ago modern medical science thought anyone with symptoms was imagining it. It wasn’t until it was recorded as an epidemic that they real.eyes’d they needed to delve deeper. This is a red flag. A doctor should not dismiss his patient as insane because they do not have all the answers rather than simply acknowledging they aren’t certain what the cause is therefore cannot offer a cure. Allopathic medicine for me signifies Ego something our species is working diligently on dissolving. Look to Alternative care and seek nutritional sources to heal. The first order of business for anyone with Fibro should be to eliminAte and Detox any harmful chemical substances they are consuming whether it be pHarmaceutical med’s, fluOride/chlorine treated water for cooking, bathing or drink preparations, processed foods that use chemical sweeteners and flavor enhancers, isolated Vitamins, Amino Acids and Minerals some which are fabricated in laboratories along with GMO and animal byproducts. When you begin to research the harmful effects of these substances you will real.eyes why your body is having issues and why it is so important to expel them and begin a new lifestyle practice that returns your body to homeostasis. Blessings x0x

  1648. Mmmm i like to take part in some reserch see what they find as im a sufferer of FM/ME, in scotland and docter hear just hand you a leaflet and let you get on with life.

  1649. I love all the people commenting who clearly don’t understand how research works. No, a lot of research is NOT FUNDED by big pharma. Of course, some is, but the majority of researchers are funded either through agencies particular to their disease (Canadian Cancer Society, Foundation Fighting Blindness, Heart and Stroke foundation etc etc etc), or through Government Agencies (Canadian Institute of Health Research, National Institute of Health).

    So before you go off spewing things that you obviously know nothing about, take a minute to read the study, understand what they did, why they did it, and take a note who they’re funded by (This is always available on scientific publications).

    1. Dr Doucette, your comments are good but it is difficult to hear them when you speak from such a lofty place (“I love all the people commenting who clearly don’t understand how research works”). Remember your patients — THEY are the ones who have been suffering for years — not you (unless you have FM as well). FM is NOT a piece of cake.

    2. While I don’t have your qualifications, from what I can see, this particular research was done by Integrated Tissue Dynamics 7 University Place, Suite B236 Rensselaer, New York 12144 ~ a American company that is paid to conduct research by both government and private businesses (I suspect that at least some of these are pharma, don’t you?). This bit of research was Government funded. While I know that research is done by the agencies you listed, I have never heard of a Canadian Fibro Society that does medical research. The one that I belong to is focused on sharing information regarding research from multiple sources and provides information supporting systemic advocacy for patients of doctors like you. I understand that there is a Centre being built in Kelowna to provide services specifically to persons suffering from Fibro. My hope is that it will include a research facility. The problem with Fibro is that the quality of treatment you receive is entirely dependent on how up-to-date your doctor is and sometimes whether or not they believe that Fribro even exists. Not that the ever-changing drug cocktails we take from the Fibro believers are all that effective.. No wonder so many of us are reaching out for and willing to try, any, and all solutions for our misery.
      As well, the tenor of your comment is an excellent example of the medical communities’ lack of empathy for people who are clearly suffering and desperate for relief from their symptoms. You promised to do no harm and if you think these comments and your attitude do no harm, you need to get your head checked. Really. Shame on you. I pray to God that you work in a lab and or some position where you can’t inflict yourself on sick people. Either that or you re read your diatribe and recognize that you really need to do an attitude adjustment if you want to truly be a healer.
      .

  1650. The comments discussing yoga and guafenesin made think about the possible underlying motivations for the blood vessel research discussed in the article. I’d venture to posit that all medical research these days is funded by pharmaceutical companies. A blood vessel cause lends itself nicely to the development of pharmaceuticals, whereas mind-body therapies and a simple treatment like guafenesin have little opportunity for corporate profit. The fact that guafenesin used to be an inexpensive prescription generic and did a backwards transformation to a very expensive brand name OTC product says more about its usefulness for fibro than the lack of studies on the Guaf protocol. I’ve had fibro for over a decade now and just recently learned about the trauma connection. Through understanding the effects of trauma on the brain and body I am finally seeing light at the end of this very dark tunnel. It is not a quick fix and I still need pain meds but I know I am on the right track. Guafenesin has helped too. However, I do think that everyone’s fibro is different because it really is just a symptom that something is not working right. And that something probably varies. (See Patrick Wood’s presentation “Fibromyalgia: New Insights, New Hope” on YouTube.) Which requires a new research paradigm involving cooperation instead of competiton. There is not going to be A winner with THE cause. The brain and body are too complex for that. I think we with fibromyalgia are really pioneers who will create profound changes in Western medicine.

    1. I just commented elsewhere, but I’m a researcher myself, and most (not all, but most) of researchers are NOT funded by pharmaceutical companies. Most are funded by disease specific agencies, and/or government institutions (CIHR, NIH etc the abbreviation definitions can be googled, or seen in my comment below).

      Of course, basic research always hopes to lead to a cure via a drug (it’s sexy!) but again, the majority of us are definitely not funded directly by pharmaceutical companies.

  1651. Hope for all people with FM that they find something that help them to have better days. I work with a new natural product from a bio-tech company in USA. Both the company and products name are ASEA. This helps our cells to repair and be replaced if the damage is to big to be repaired. I have some people with FM that have tried ASEA with good results. We all know this: Healthy cells = Healthy body. Take a look, http://www.ninoconsult.com For a better day!

  1652. Ok…so they are saying that it is possibly linked to excess blood vessels in the hand? JUST the hand or perhaps the hand is only where they were looking and it is possible that we have these excesses also over our entire body? IF they are saying we may have these excesses over our entire body then this would make a lot of sense to me. If not…then I call BS!!!

  1653. Not once have I heard anything about nerve endings in the hands! I’m not buying this as a cure one bit!…per my own experience and what I’ve observed in many of my clients, is that FM is more likely a result of an over stimulated sympathetic nervous system that essentially gets stuck, esp. if one has experience traumatic events, either physical or psycho/emotional. The sympathetic nervous system basically goes unchecked, operates below the conscious radar so to speak and keeps one in a perpetual state of “Fight or Flight” mode that is like a vicious cycle. Working with my own body, yoga has by far, combined with improved diet and moderate cardio exercise, reduced if not eliminated most of my FM symptoms. Yoga, first and foremost…as it’s primary basis is to bring more parasympathetic response in the body, primarily through the BREATH, including breath centric asana, followed with pranayama and meditation/prayer. Cleaning up what one ingests is also extremely helpful,…eliminating processed foods is at the top of the list. Too may toxins in our food, deposit Lord only knows what into our systems and our bodies do not know what to do with the ones that stay in our systems and my guess is the body continually tries to rid itself of these toxins, thus keeping body in a continued state of stress, i.e. sympathetic response, feeding the cycle all the more. I’m not a scientist or a doctor, but I am observant and have my own body as a lab!

    1. hear hear Grace – thats my belief too. I suffer primarily from ME with FM pain – they are basically the same illness just different ends of the spectrum ME = exhaustion, FM = pain and we can be anywhere on the line between the two and in a different place on any given day. Trauma is what i believe caused my illness. The first symptoms of mine that were taken seriously were heart palpitations from the adrenalin being pumped around my body willy nilly as a result of me needing it to overcome the extreme exhaustion i had been suffering for months/years that was never taken seriously. I ate more healthily than anyone i know but my doctors always insisted that if i ate more healthily and did more exercise id be fine …. I rode quad bikes on and off road, had 2 young children, walked a lot and lived an energetic life – i couldnt have fitted more exercise into my life. 4 years before i was diagnosed i was going to the gym 5 days a week. Havent drunk tea or coffee for 35 years and im 53. Tried to be gluten free and lacto free because i realised for some reason i was hyper sensitive to a lot of things early on. Stress was probably my catalyst … stress – trauma/abuse/anxiety … things bodies cant take any more of at a certain point. I am no doctor but since im living as stress and as anxiety free as possible i have get better day by day. Pain is minimal compared to how it used to be and dealable with when i consider how it was previoulsy. Sleep is my main problem now. I really do hope that this arcticle has something to it and it does seem to make sense, in part, but i dont feel its the whole answer for FM let alone ME.

  1654. While I do not suffer from FM, my wife does and I’ve seen it have horrible effects on her over the years. When I finally could not stand to see her dealing with it any longer I did some research and found out about a treatment called The Guaifenesin Protocol by Dr. R. Paul St. Amand. We found a local Dr. who had studied under Dr. Amand and went to her. Once my wife started taking guaifenesin and eliminated the products that were recommended to not use, as well as beginning a regular exercise proram, she began to improve! Now 3 years later (still following the protocol), she feels fantastic and rarely has pain. Don’t get me wrong, there can still be flare ups, but she went from a 44 yr. old woman who felt 84 to someone who is active and healthy. I understand that this may not be the solution for all FM patients, but I believe it is worth looking in to if you haven’t tried it. Hope this helps!

  1655. Hi. Thank you for the mention of Malic acid,Lizette. I will look it up and see how this can benefit me. Have suffered from FM for many years. Would love to be well and work again,or to even have a semblance of a normal life.Cannot have much of a life on disability pension and even they do not believe that FM is real. I had to get a lawyer to help me get it. I am up for review about that. If they believed FM was real and it was proven to them with dr. reports,then my disability wouldn’t be questioned. The only thing good about this that I can see is we who have it are not alone & there should be support groups or more of them. Thanks.

  1656. It’s good to know that Rebecca Savastio believes this research will unlock better future treatments and that we fibromyalgia sufferers will be rejoicing! We have had so many “cures” thrown at us over the years that might work so I for one will not be jumping up and down with joy as there is still a long way to go before this piece of information can produce the “cure”! Too little money has been spent on fibromyalgia research by successive governments and many of the “cures” have been stumbled upon by research into diabetes, parkinsons and epilepsy. This deblitating illness causes sufferers much misery and life style changes. Has Rebecca ever met anyone with the illness?

  1657. The Gov’s are losing the fight and the people have found the Cure through Rick Simpson for many ailments…There will be a lot of discoveries for cures made whether they work or not just to keep the sheeple away from the healing plant and the real truth…Sickening…

    If this one is true well at least now it’s a real disease, or is it???

  1658. I keep reading about miracle cures. At first I get so thrilled to read that my pain and fatigue will be past issues, then I don’t hear about a cure again. I would need more info. on this as I don’t read enough research. I have had fibromyalgia for thirty years. At the time I was told it was a sleep disorder. I pray that some day we’ll find the cure. Meanwhile, let’s all keep going as best we can.

  1659. They have found correlation with probable causation. Discounting it for its initial finding is quite short-sighted. I will follow their progress, in hopes that they’ve discovered a true link.

    1. This article only provides evidence of what is already theorized and possible mechanism of action of antidepressants in alleviating FMS symptoms. There needs to be a much larger randomize, controlled clinical trial to firmly support this claim.

  1660. This article credits no source for the information cited. For this to be a credible story, there should be a link to an article published in a peer-reviewed journal. Bad journalism!

  1661. Does this mean the Guardian will stop publishing derogatory articles about the soft tissue disorder fibromyalgia, such as the ones made in the Dr Crippen column?

  1662. I have osteoarthritis and my blood vessels in the hand effected most has larger blood vessels then the other hand. Could it just be the the inflammation causes the excess of blood vessels but is not the cause of the fm? I had itching on my foot for years and was told by a foot doc that it was all in the head too. That is the answer for everything they can’t explain like said before.

  1663. I recommend locating the primary source if this article if the scientific data will help prove anything. I do hope that they have found the culprit and it does lead to a cure. Staying optimistic for my mother.

  1664. The mistery of fibromyalgia has already been discovered 20 years ago by Prof Dr Dr Med Bauer. He discovered that peripheral nerve compression by scar tissue generates pathological input to the brain, represented as pain.

    In short it can be stated that all local damage to the nervous system, even damage
    caused by entrapment and elongation, spreads slowly and widely to the central and
    peripheral areas and is therefore able to trigger pathophysiological processes away
    from the primary place of damage.

    This discovery has recently been confirmed by the University of Würzburg (fibromyalgia pain is caused by small fiber neuropathy) : http://www.examiner.com/article/study-suggests-fibromyalgia-pain-is-caused-by-small-fiber-neuropathy.

    Prof Bauer also developed a very successfull surgical method to cure fibromyalgia patients (scar tissue around peripheral nerves is removed by surgery).
    Till now he treated approximately 6000 patients. http://www.fms-bauer.com.

    The implementation of this method worlwide would have a drastically positive change for all fibromyagia patients.
    Unfortunately medical industry has no financial benefit to cure fibro patients.

  1665. This is probably one of if not the most ignorant studies to date. If in fact this had to do with blood vessels in your hand why then have they said that FM is kin to MS? Further more; why then test you for lupus,MS and all of the other garbage they have tested us all for?
    My Aunt had MS; my niece has NF and I also have at least one child who has been diagnosed with FM; that being said, the ONLY thing in my family history that is even remotely related or close to FM is the MS. That being said…go back to the drawing board people and seriously figure this out.
    These people out there who are supposedly studying this monster keep going back and forth and have for years, the only thing I am truly happy about is they have decided it is real and not in our heads.
    I have had this for 17 or 18 years now and they say it is not debilitating … they lie!
    So what makes me think they are not lying now? They don’t know what causes it and I doubt there is anyone in the US actually trying to find a cause/cure for this. I know there are organizations in other countries trying but no one has come close.
    I am as sick of it as the rest of you and this gives me no hope for a cure, what do they want to do now? Take our hands off or all of our veins out of our hands..come on folks, find a serious reason/cause and cure for us who have suffered from this monster for way too long….
    They use us as guinny pigs with all of these medications and think it is ok, well it is not !
    I came off of Lyrica and Cymbalta b/c they both stopped working and Cymbalta almost killed me when I came off of it. I was sick as a dog coming off both medications and when I came off Lyrica, I lost 50 lbs. That being said, I am sticking to what I know now and not trying any other garbage medication that they pull out of their butts saying “Oh this helps with FM”.
    FM patients, don’t buy all the lies on this…Do what works for you and don’t bother waiting or hoping for someone to pull an answer out of their hats,…One day they may figure it out but for now, just accept it and do what you can do to maintain life as normal as you can. These idiots out there do not have a clue, I agree with the comment about if it will not profit the government, there will be no cure in our lifetime.

  1666. I will keep an open mind on this idea. 17 years I have had this. I remember being told it was misinformation being given to my brain. When I spoke to my GP and said if I walk a half marathon and take Brufan before I go, I suffer less than if I do the marathon without it then I get back and with 5 minutes almost can’t walk. She agreed, it didn’t add up that it was in my mind.

  1667. http://www.ncbi.nlm.nih.gov/pubmed/18404144

    (2003)

    ” Clinical endocannabinoid deficiency (CECD): can this concept explain therapeutic benefits of cannabis in migraine, fibromyalgia, irritable bowel syndrome and other treatment-resistant conditions?

    Russo EB. GW Pharmaceuticals, 2235 Wylie Avenue, Missoula, MT 59802, USA. [email protected]

    Abstract

    OBJECTIVES:

    This study examines the concept of clinical endocannabinoid deficiency (CECD), and the prospect that it could underlie the pathophysiology of migraine, fibromyalgia, irritable bowel syndrome, and other functional conditions alleviated by clinical cannabis.

    METHODS:

    Available literature was reviewed, and literature searches pursued via the National Library of Medicine database and other resources.

    RESULTS:

    Migraine has numerous relationships to endocannabinoid function. Anandamide (AEA) potentiates 5-HT1A and inhibits 5-HT2A receptors supporting therapeutic efficacy in acute and preventive migraine treatment. Cannabinoids also demonstrate dopamine-blocking and anti-inflammatory effects. AEA is tonically active in the periaqueductal gray matter, a migraine generator. THC modulates glutamatergic neurotransmission via NMDA receptors. Fibromyalgia is now conceived as a central sensitization state with secondary hyperalgesia. Cannabinoids have similarly demonstrated the ability to block spinal, peripheral and gastrointestinal mechanisms that promote pain in headache, fibromyalgia, IBS and related disorders. The past and potential clinical utility of cannabis-based medicines in their treatment is discussed, as are further suggestions for experimental investigation of CECD via CSF examination and neuro-imaging.

    CONCLUSION:

    Migraine, fibromyalgia, IBS and related conditions display common clinical, biochemical and pathophysiological patterns that suggest an underlying clinical endocannabinoid deficiency that may be suitably treated with cannabinoid medicines. “

  1668. This sounds great. I don’t want to sound negative, but the article gives no details about the research that led to the conclusion and whether that research was validated. In fact, the neuroscientist is quoted as using the word ‘could’ and ‘could be’ several times – this sounds like a tentative opinion rather than anything conclusive. And if the mystery is really conclusively solved, what is the recommended treatment?

  1669. I agree with some of the others. Is this just another carrot?
    At the same time, it feels SO good to be told it’s real, after suffering since the mid-80s and continuing to suffer today.
    I anxiously await further developments.

  1670. How can having excess blood vessels in our hands cause ALL of our symptoms?? Why is it then that it comes on after excessive stress/trauma/etc??? Sorry I don’t believe a word of it, lol, it’s just ridiculous!

  1671. There is no way to profit from curing FM, so we will not be cured. Imagine us all free from this curse?!?! The world would change drastically, as millions of people would have energy!!

  1672. I forgot to mention that the arthritis specialists also told me that it can be caused from chicken pox something like and now I forgot what it is called, but it causes burning and red bloches on your hips and it is into the nerves as well. I have also had this and the doctor also told me that this can be caused from chicken pox as well. I wish I could think of it but maybe someone will know what I am talking about. Now I have something else, I have had two failed back surgeries and the neurosurgeon made a mess in my back and caused a hole in my arachnoid, which is the hard covering of my spinal cord that has caused clumps of nerves in my spinal cord that causes burning, horrific pain, that the pain never leaves, it is with me 24/7. I am on a narcotic pain patch and some narcotics to help keep the pain that I can try and handle it but even with strong pain meds, the pain is so bad. Because a person has nerves throughout their body, it is into my mouth, so it is hard to eat at times, into female parts, in to my stomach just horrible burning and all thorugh the body and into the scalp, etc. So with this going on, I can’t say how much of this is fibrotis now or not because the pain a lot the same as the fibrotis as well. It is into my back, legs, upper back, neck, etc. What I find also with this and I did this before I injured my back, that a chiropractor also helped. What gets me through this all is to not dwell on it so much and it is so hard to not do it but if you do, then you just go nuts with pain so go out for a walk, that has helped me before my back surgeries as well and since I hurt my back so bad and then the doctors messed up, I found a tiny bit of different kinds of exercise helped and the ladies that went to the gym also found this as well.

  1673. Goodness! Everyone is so negative on here!!! I have Fibro along with many other problems for years. I am unable to work because the pain is so bad but I will never give up hope. If I see an article like this one that proves scientists are trying to understand our illness it makes me happy because they do care. It’s not so easy to find cures and/or proper treatment but the fact that they are trying is beyond amazing. Being so angry and negative doesn’t get you anywhere.

  1674. DeeDee That is exactly how my fibrositis started as well. I call it fibrositis because it is so much easier to spell. A lot of people do this. It is a burning sensation and it was in my back, in my legs, feet, neck, joints, etc. The specialists that diagnosed me were arthritic specialists and they said it acts a lot like arthritis and that is why a person’s joints hurt so bad and sometimes flare up. I have had it since the early 80’s and my back would hurt so bad that I could hardly sleep because if I slept on my back, it hurt so bad that it would wake me up. I was put on anti depressants because they say if a person gets “down” the pain is more severe. It helped quite a lot and also they told me to try and keep everything low key and not get stressed out because it can make things worse as well. It is horrible. I found that by going to the gym and doing exercises also helped. The only thing here, is you have to work through the pain or else if you don’t, it really doesn’t help. When I went to the gym, I was having some success but there were ladies there that weren’t but they were dwelling on the pain and not trying to dwell and think only of trying to do the exercise. I would ride a stationary bike, do some weight lifting, I would try and work out with light weights and gradually it seemed it got better so I could do more. Everyone is different and the fatigue is something else. It is so hard to get through it and the more a person gets upset, the more the pain gets worse.

  1675. bonjour, il y a un super remède mais la médecine rechigne c’est le cannabis promis juré c’est testé et à coté du symbalta ma copine se sent vachement mieux et psychotrope pour psychotrope vaut mieux un naturel

  1676. I have been diagnosed with Fibromyalgia for over 10 years and my first symptoms did not start in my hands. actually I rarely have pain in my hands,.it is in my lower back, mid back, upper back, neck, basically most of my joints. It starts with pain in one region which when the pain becomes excessive then spreads like fire throughout my whole body. I will start having extreme muscle spasms and when the pain becomes unbearable, I will start to throwup. My skin becomes hot, very painful to touch and very itchy. The only thing that will help me then is large amounts of pain killers and a pill to put me to sleep. If I can induce sleep, it seems like when I awaken much of my pain has subsided. Do any of you have reactions like this? Its so frustrating and after a really bad flareup I am overwhelmed by fatigue for days.

    1. Not sure why they are saying its starts in your hands because it all over my body sone days I cant get out if bed those days its pain meds and sleeping thank the god lord hubby and kids are up to date on reading about fib

    2. i have the same, just like u i end up with throwing up when it gets to bad, i hardly can do anything anymore.. or throw up, at one point i allmost lost voice from all the throwing up, exercies well easy said but trying and from one on the other second i get so much pain … throw up and more pain, its defently a point where i dont want to come.. because after throwing up it ends in having so much pain that i cry and no idea what to do to stop it, painkillers and sleepmeds and try to bare till i fall in sleep… sleeping lots but allways just short.. waking up and cannt really wake up because i cannt keep my eyes open its like i didnt slept at all no mather how long i slept.. i cannt stay awake and just keep falling back in sleep again and again.. and then at other days the pain so bad i just cannt sleep at all…dont even know what worse anymore .. the allways pain, the fatigue or the throw up.. pwffff

  1677. The title to this article is very misleading! The phrase “could be” is not definitive by ANY means! This MAY be a clue, or another anomaly but I believe FM is like a diamond- (Not pretty) multifaceted.

  1678. My burning tingling hypersensitive skin, aching, fatigue have plagued me for years…..I really am tired of trying to figure out what causes it, what its called, but I want to share that since I started taking LDN my life is starting to come back to normal!!!!! give it a try, no side effects, cheap, and for alot of us it works!!!

      1. Hi Colleen, It Low Dose Naltroxene, It has been used for autoimmune diseases, lupus, ms, fibro, thyroiditis, chrons etc. Just google it, Are you on drugs? What symptoms are the worse for you? I was so affraid after trying so many different things that it wouldnt work for me, but it did!!!
        It is “off label” since it is approved at high dose for other conditions. May i ask where you live?

  1679. There are many things involved with FM. I don’t have it as severe as some, but my body is sensitive to hot and cold. A/C really hurts me, but it’s too hot not to have it on. And, I can’t have a fan blowing directly on me cause it hurt; same thing if I went outside on a heavy windy day. And there are times the palms of my hands will feel like they’re on fire, then it goes away. Same thing with my feet. I take Gabapentin for it. Doesn’t work the best but it helps take some of the pain away.

  1680. Mar
    June 22 2013
    Ya! to me a lot of hog wash. doctors may do more research and fined something to help if they had it. My DR.’S keep coming up with excuses as to why my muscles are swollen all on the left side of my body. My upper arm left knee and thigh. My friend is a RN and she says my knee looks like I have water on it .I have had this since 1992. Has got some
    what better, still on 200 mg of Sertraline {antidepressant} every night.
    Hard to exercise when even arm moving back and forth aggravates it

  1681. this article is BS, Shame on whom ever is trying to get discovered using this bogus info. Even a novice can tell this isn’t true!

  1682. D-ribose made me very sick.
    Dr. Saint Amand’s book is VERY helpful, even if you don’t follow his guai protocol. Many people do heal on it. I didn’t but I’m glad I tried. The fibro diet he suggests will definitely reduce your pain. The guai will also help with other problems like asthma. Use the slow release dose.
    My hands are the least of my pain. My shoulders, hamstrings, Achilles tendons, coccyx, etc.are bad. I notice many pain sensations if my skin is stroked or touched. As though the nerve endings are sleeping until someone wakes them.
    FM is strange: since many of us seem to be hyper-flexible we seldom have joint pain.
    The best treatment for me is described online by a doc in the UK who went on a low oxalate diet. It helped enough that she was able to return to her practice. Do a search on low oxalate fibromyalgia and you’ll get her story. IF it works, will take about 3 weeks.
    Magnesium malate reduces pain some, as do Epsom salts baths.
    I find very hot weather to be as painful as very cold. No extremes anymore.

    This article doesn’t address the problems with balance, proprioception, horrible fatigue, fibro fog, and so on. FM seems to be an accumulation of damage and then those genes get turned on. Dr. Saint Amand is no doubt right that when they find it, will be on the X chromosomes in a # of places – which is why more women get it, and why some have more whole body involvement than others.

    It’s not all in your head. Chronic pain changes your brain, though.

  1683. Around 40 to 60 % of people with fibro have Small Fiber Neuropathy(SFN)
    Doing a skin biopsy for SFN is one thing very very few doctors ever did.
    and once someone is DXed with fibro few doctors ever look for another cause for the pain.

    Fibro is not one disorder its a number of disorders that doctors are to lazy to DX

    So claiming one cause for fibro is BS.

    1. Anned i was also dx with sfn but it took me moving to another state and not disclosing that i was dx with fibromyalgia to get more answers i was tired of all the pain and mainly in my lower back and hearing it was all from fibromyalgia. So i found out that i also had DDD and small fiber nerve neuropathy

  1684. A thanks-for-nothing story. I kept looking for the catch — i.e.: “To purchase this miracle drug, just click ‘rush me my trial offer supply’.”

  1685. @Renate – where is your information coming from that ‘most patients become better from D-ribose’ ? First time I’ve heard that ‘most’ people get benefit from that and I’ve been looking into this for a couple years now.

  1686. We are currently reading a book about FM called “What Your Doctor May Not Tell You About Fibromyalgia” by Paul St. Amand & Claudia Marek. Their treatment involves Guaifenesin. Any comments on this?

    1. it worked well for me, some claim they get worse before better though, I use Entex LA. it has the PSeodoephedrine with the guaifenesin which I find also combats fatigue.

  1687. In fibromyalgia, dysfunctional mitocondria seems to be an issue, due to the fact that most patients become better from D-ribose. Is this dysfunction due to changes in the brain due to the blood vessels/nerves dysfunction or is the clue to what creates the disfunction in the blood vessels part of one clue in a bigger picture? Although not all FM patients describe this as the trigger, I can actually witness that the first problem I had was problems in my wrist and hand. GP first thought it was carpal tunnel syndrome and many has described this as the first of many symptoms. The more clinical evidence the better! 🙂

  1688. I thank you for your work and your belief in us.. but…I will believe it, when you prove it and via this means, can cure it.. until then, its just one more theory and we have heard far too many of them and watched them go down in flames,…the only thing I am seeing is you might have found out why so many of us have red painful hands and if with this you can fix that at least, we will bless you.,. but prove the correlation to FM over all, with all of its issues, then you might have something..

  1689. Very interesting, but it may be they found a cause & effect. Find a a lot more hands w/o nerve endings. I personally need to see a lot more cure then “hands.” I have suffered with this for 40 yrs, my entire colon removed because it died, lots of inflammation. I pray for a complete understanding of this disease.

  1690. While this is a major breakthrough, I’m not sure that this finding will turn out to be the cause of fibromyalgia. Having seen this story, I became excited; but being a laboratory technologist, I’ve learned that until you find out WHY there are so many nerve fibers, and WHY that would happen after a trauma, like an accident or surgery, and WHY that would cause so many other conditions like immune problems, thyroid problems, etc…well, the WHY just doesn’t seem to be answered, So, the root cause, and the heredity factor still need to be found. Otherwise, like all the other drugs, we’ll just be treating a symptom like we always have. But it’s a start, and it’s encouraging to see the research that confirms what we already knew. It’s NOT in our heads!

  1691. so what is the cure, how do i confince my doctor, or endocrinologist, im fed up with it

  1692. I have such sympathy for all these contributors. After not being so well a couple of years back. I was diagnosed as having a 16cm cancerous cyst on the ovary. Reason for not feeling well. So full hysterectomy was the only option. Six months later all removed, so should be better. No such luck my aches and pains accelerated throughout my body. Doctors answer …take painkillers. I could hardly turn over in bed took ages to get out of it. And the acute tiredness was unbelievable. Spent hours sleeping…but with no relief from it. Then I researched the reasons. Did I also mention the weight increase. About 1lb a week and eating very little….no appetite. Found I was deficient in that all so important iodine. started supplementing, and within a few weeks the pain began to ease, my appetite returned, and more importantly the tiredness left me so I could go to work concentrate fully and spend less time in bed. I cut out all additives in foodstuffs, continued to dose with supplemental iodine and here two years later totally pain free, full of energy a not one painkiller past my lips since then. Most Fibro sufferers are ladies and we are the highest users of iodine in our bodies. We need more. So research it for yourselves. It may be your problem too..

  1693. -Glad to see the advancement here.. I’ve been battling this issue for 15 years.. I got so sick and tired of Dr’s telling you ” Exercise -Rehab – Diet” – that is there answer to everything, instead of looking further into signs, symptoms, and what people are telling them.. There is nothing wrong with Exercise and Diet etc but it’s not the answer to everything.. You can change oil on your car to prolong engine failure, but it doesn’t fix something that’s wrong with your car if somethings broken.. Hope to see more info on this break through soon..

  1694. Thank Doctors, Researchers and Science! We are lucky to live in a time that medical technology has become advanced enough to take theories and confirm causes of medical conditions like Fibromyalgia!
    Nobody wants to be on all these pharmaceutical medications! Nobody wants to spend their days in bed!
    I became dangerously close to developing addictions to pain medications but I am lucky to live in Canada where Medical Cannabis is available, I went from 11 medications to 0! None! Nada! The only pain med I now take is Cannabis and I`m not a zombie from all the pills anymore.
    I will be following this development to see what else comes out of further research – medical research is one of those things that deserves major funding, let`s hope our governments realize this and supports it more than they ever have! Sick people want to be productive, want to contribute but diseases like Fibro stop us from doing what we wish, reading about these findings is very hopeful! Again, Thank Science!!!

  1695. Thank the god lord my hubby and kids understand my fib and my other health problems i have had a lady come up to me and say why are you in a chair riding aroynd the store and you are to yound to be riding one I look at her and I alway have my papers with me of my health issuse and I make them read a littke bit of it and then they tyrn around and try to be nice and sorry they are sorry I just tell them I am 53y and I would do or take anything not to have all these health issuse

  1696. my 15 year old daughter was diagnose Nov 2012 with this curse. she’s miss school 10th grade and confined to bed in constant pain. She has a million & 1 symptom.plez, plez find cure quick, quick

  1697. Would really like the details of the research. Generic & seeping statements like”Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain.” are only really helpful to us if can source it, read it and digest it in its full state.. Many thanks.

  1698. I sympathize and empathize with those suffering from Fibromyalgia, however, I am saddened to the lack of attention given to an equally debilitating condition, PERIPHERAL NEUROPATHY. 20,000,000 people suffer from this. While many have a known cause, such as diabetes or chemotherapy, so many still have no known cause.

  1699. I could just cry after reading this. I was hurt in a work accident in 1991 with crushing, jerking, and tearing of tissues. And my left arm and hand was squished and jerked at the same time. Because my arm and hand was what was in the most pain (or I thought it was all my arm and hand at first) at the time, it was my left arm and hand that was x rayed, treated in all kinds of ways. Then I realized it was not just my left arm, but my neck and face and jaw too. I remember it to this day. And it did only take a minute to change my whole life. The more treatment I received the more pain I had. The more pain medication I had the more I had other problems from them. I had blinding head aches and my life was in constant pain trying to raise my one and 3 year old daughters. I worked heavy labor work and I loved my job and I went along with the Workers Comp instructions and my work to keep my job and to keep going back to work. The pain increased more and more and spread to my whole body. The only thing that made it better was to do nothing (that I was not able to do because I worked and had a home and children and husband), and some accupuncture. Year later I had a histerectomy and this helped take away some of the pressure that was added to the pain each month. I always thought it helped take away some of the imflamation from my body too. It hurt me to just pick up a little paper. Just to put my fingers together. Each day I tried to smile and work and raise my family. I was a lucky one to have a husband who stood by me. He knew who I was before and he knew it was not in my head. I finally did say it was in my head. It was my my brain in my head that was telling me that there is pain and as long as you do not listen to that brain in my head and find a way to make the pain stop, then I would always have pain in my head. I was took off work and put on disability. Buy this time I had had 2 Thoracic surgeries that did help make it so I could breath again, but pain was still there. I was put through many tests and made to feel bad from the disability office of my work (that was in another state and could care less who i was .) I was cut back on my job hours so it cut my pay, I lost my long term disability from my work and more less fired. I was treated as I as a pain in the corporates butt. gained weight and could not exercise to lose weight. I was an active person who loved activties who felt as if my body was slowly getting stiffer and stiffer. I was cold all the time, But most who did not know me did not know what my life was, because it was not something you want to show to anyone. YOu only go out on days you can smile or you made excuses to stay home. I am not sure how I made it to work each day on all the meds I was on. I was blessed to have 3 Drs. who believed I was in pain and they tried to help. I also learned that some foods added to the pain. And some helped. I leaned to hold my babies different and to not play with them as I wanted to . They are gown now and I am better, but I am only better because I learned to listen to that brain in my head telling me to not do that. Some say I am ok and it is all in my head. I just say, yes it is all in my head. It is my brain in my head that is telling me I am in pain and it is also my brain that is telling me that I need to find a way to stop it and that unless those who speak bad of me have live it, they do not know my true feelings and for that reason it is not their fault they do not know. May they never know be told that the pain is all in Their Head too I recently had some vein work in my legs and it has only been a few days on one and a week on the other and I am amazed at how much lighter my legs feel. I think we have more in our bodies telling us what we feel then just the nerves and I am so happy that they are finally learning this. Some times we need to listen to that all in our head brain. God gave it to us for us to use it. May this study help heal. Thank you for researching and not giving up.

  1700. I would agree to any study. I was first diagnosed with CFS in 1990. Diagnosed with Fibromyalgia in 1993. I actually had some remission in 2000-2002. Now my condition has worsened. I am on disability and fight one infection after another. my lymph nodes in my neck have been enlarged for over a year.. When I am really upset or stressed my left hand hurts worse than anywhere else. I believe I have had this condition my whole life. when I was little I was just always told it was growing pains. I pray for a cure.

  1701. I went through the whole pain management thing and I can tell you that I ended up addicted to fentanyl and oxycontin thanks to those doctors. I didn’t start out to become addicted. It started with hydrocodone which my body built up a tolerance to just as it did to all the other pain meds. I was on 17 different meds at one time and was in the worst shape of my life. I didn’t leave my living room for four years!! I couldn’t walk in a store. I was either on a cane or in a wheelchair because I kept falling and I fractured my toes and feet.

    Anyway, one day I snapped. I got so sick of it that I knew things had to change. Either I was going to change my life, or I was going to die. I started changing my diet. I got a new hair style. I bought clothes that looked really nice and started to dress up. To date I have lost 75 pounds and I went from barely living to going to school full-time at age 39, and I start a work study after school in July. I can walk at WalMart, the mall, 5-10 stores a day!!!

    I eliminated the following things from my diet and I am telling you that if you start looking at food as either nourishment or toxic poison the transition isn’t so bad. I cut out gluten, sugar, artificial sweeteners (the worst thing of all), anything processed or refined, anything smoked, no pork, no redmeat, and no shell fish. So far night shades like tomatoes don’t bother me even though they do some with FMS.

    I eat fruits, veggies, turkey and chicken. I can still eat cheese and plain unsweetened chocolate. These are things that I can eat. You have to eliminate what bothers you.

    The biggest thing that I did was start taking Apple Cider Vinegar three times a day. My pain is gone 90% of the time. I don’t mean better, I mean gone!!! Before you doubt that I really have FMS, I have been diagnose for 15 yrs and I have all 18 pressure points and I got disability because Voc Rehab couldn’t find 1 job I could do. I had to take a nap every 2-3 hours. I was in pain 24-7. Like I said, I wanted to die.

    My whole life has changed. I have come so far. I started last July. I have went from a size 24 to a size 16!!! I am so into herbs and supplements that I am an encyclopedia.

    If you want to know more about me and you want to get daily health tips and everything that I discover about FMS please visit my page.

    http://www.facebook.com/BeingPositiveWithFibromyalgia

    Thanks for reading my story. I want to help as many as I can. This is not a cure but it can be life changing and there is nothing to buy. There is no gimmick. It is a way of life.

    Shell

  1702. I am 57 and have suffered with chronic fatigue for years and since 2008 I am sore and achey all over my body especially my legs and feet. Its daily battle. Its wonderful to read this research and thanks to you doctors for taking the time and interest in this awful ailment that so few understand.

  1703. Dr. Frank Rice, I am appalled to the fact that, just like Allopathic (MD) profession has historically and continually refused to recognize Osteipathic Principles to the pathophysiology and treatment of certain musculoskeletal ailments, you also fail to recognize that the theory you present here has been known to Osteopathic profession for centuries. This is not new knowledge as you present it here! As an Osteopathic physician myself, these so-called “trigger points” or “tender points” are the core to Osteopathic Manipulative Medicine therapy for FMS and related fatigue cluster of syndromes. These maps you present here have been known to the Osteopathic physicians for ages! They are no different to trigger point and tender points maped centuries ago by Oteopathic physicians. This principle holds that musculoskelatal pain is a somatosensory reaction — referred pain to the somatic system as a result of dis-ease, and imbalances in mainly the gastrointestinal system which actually caries a lot of nerve fibers than the brain. Especially the accumulation of toxins in the GI, nutritional factors, prior trauma (physical or emotional) results into referred musculoskeletal pain via fibers (nerves) that then lead to the trigger points or tender points. The treatment is tailored toward restoring this balance; using osteopathic manupilative manual techniques, the so-called mayofascial techniques to treat both the the GI dis-ease as well as the trigger points. Nutritional councelling and psychological councelling are also added to this therapy. It is a disservice that you seem, just like in modern medicine in general, focus on pharmaceutical therapies for maximum profit purposes and interllectual property ownership. A thorough review of the literature will help you in giving a balanced view to this controversial topic.

  1704. Really hope this new findings will ease the suffering of people like my friend Paul murphy and many many others.

  1705. Mt wife is a sufferer of this awful illness and has suffered by the comments as above”there’s nothing wrong with her” or “its all in your head,deal with it”.Now the truth will help her look forward to help and understanding of what she goes through on a daily basis.Thank you to the doctors who have taken the time out to find this well needed information.

  1706. this sounds great — I am ready to back it — so where do I buy some stock on this?

  1707. I am 57 – had FM all my life – diagnosed at 40. On disability – altho I have worked all of my life. Am on Cymbalta – helped relieve 75 of the general pain – taking Melatonin to sleep – no pork or beef – waterbed – use Pot for 44 yrs to help – had 2 babies naturally – lost men, kids, jobs, careers, friends, money, and my sanity because of FM – I need to be studied.

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