My Kid Is Not Crazy Movie Screening and Panel Discussion
Date and time
Location
Staten Island University Hospital Regina McGinn Educational Center - adjacent to main building
475 Seaview Avenue Staten Island, NY 10305Refund Policy
Description
According to the NIMH, as many as 1 in 200 children in the US may suffer from PANDAS/PANS, a post infectious autoimmune encephalitis caused by streptococcus. Many of these children are misdiagnosed and mislabeled as having psychiatric and behavioral disorders. Anorexia, OCD, Depression, Separation Anxiety and loss of cognitive skills are some of the symptoms that are never associated with an infection, especially something so common as streptococcus.
Emmy nominated director Tim Sorel, tracks the journey of six children and their families as they become tangled in the nightmare of a medical system where there is fierce disagreement about how to help these children. It also tells the struggle of Dr Susan Swedo who linked strep to these debilitating mental health conditions.
Also a Discussion with the films director, Tim Sorel
Moderators: Dr Ginny Mantello - Staten Island Borough President James Oddo, Health and Wellness Director
Fern Zagor - CEO, Staten Island Mental Health Society
Special Guest: Dr Susan Swedo- Sr Investigator, Neuroscience Branch, NIMH
Panelist: Dritan Agalliu, Phd- Departments of Neurology, Columbia University Medical Center
Dr Michael Gabriel - Staten Island Pediatrican who treats PANDAS
Dr Susan Schulman - Pediatrican PANDAS Expert
Dr Rosario Trifiletti - Neurologist, PANDAS Expert at the PANDAS/PANS Institute
Tim Sorel - Director, My Kid Is Not Crazy
Schedule:
5-6pm Registration/Networking and Light Meal
6-7:30pm Movie Screening and Commentary from the movie's director, Tim Sorel
7:30-7:45 pm Coffee Break
7:45pm - 9pm Panel Discussion
Organized by
A group of parent advocates that spread awareness about PANDAS/PANS in the Staten Island and NYC surrounding areas. The best way to heal our kids is to educate NYC about this horrible illness. We attend health fairs, PTA meetings and hospital grand rounds. We speak with politicians, schools and have fund raisers.